REGISTERED CHARITY NUMBER: 1182607 aeport ofthe TnJstrRs and Financial 5tstements for thLYear Ended 31 M_arch 2014 al1￿1n8.MND DANIELJAMES LINIT L RAOFORO BUSINESS CEHfRE RADFORD WAY 81LLERICAY Essex CM1208Z hallen MND Contents of the Financial Statements h Year Ended 31 Ma Pa8e Report of the Trustees Independent Examiner's Report ststement of Finandal Actwitie5 Balance Sheet Cash Flowstatement io Notes to the Cash Flow Statement li Notes to the Flnanclal Ststements 12 to 19 Detalled Statèment of Flnanc)al Attknties 20 to 21 _hallenginiMN ort of the Trustees fof the Year Ended 31 Marth 2024 The trustees present their weport with the financial statements of the tharity for the year ended 31 March 2024. The trust&e5 have adopted the provisions of Accounting and Reporting by Charitie5.' Statement of Recommended Practice appli¢able to charities preparing their accounts in accordance with the Financial Reporting Standard applicable in the UK and Republlc of Ireland IFRS 1021 leffectNe l January 20191. OBJEcllvES AND ACTIVITIES Oblectlves and aims The main objective of Challenging MND tsto wovide financial wpport to IndNiduals lfvin8 wlth MND. The aim 15 to pro￿de financial support and assistance for those MNO benefKlarles to undertake an¥ lasung memorable challenges or events with friend5 and famlly. As a charity we have been novel in approathiro the wider communlty supportin8 main carer5 and offering respite to those who Caterf￿ syth inilividuals. We aspire to create lifelong memories for people liwng with MND. Motor neurone dlsease Is a cruel progressfve disease whith attacks the musdes in the body preventing ihem from workbng properly. but the mind stays strong. Therefore, we want to affett the here and now of our benellcja￿es. lives and ensure we add quality experlences to thelr Ilfe. The charSty Is not currently a research-based charlty. As a charit¥ we See raislng awareftess of motor neurone dlsease as a major part ol our work. As of today, there15 sllll no cure, and we see thi5 as unacceptable. By proyiding awareness we hope to int￿a$e the odds of a cure beln8 found, sooner rather than later and help future generatlons. Havin8 Ilstened to the MND community. the chafrty has reco8ni5ed those needs th* are not currenily being met. In additlon to grantlng physical actIv￿leS for indlvlduzls Ilvln8 wlth MND and thelr famlly th creatè lifeloni memorles, we have Implemented a Virwal Reality IVRI projert with the SUPFQrt of Fjix VR. The charfty now provides Individuals who ale wheelchair or bed bound to tontlnuè to enloy actlvltles throueh VA. We have also Tecognlsed the Importan￿ to support fami￿ carers by providing regular reswte, to allow them time to recharge their batteries in order avold tarer crisls. Finally, the tharfty wants to bè able to offer bpspoke support for the newlv bereaved. Hlstory ofthe tharfty Inspired by Alex Gibson, who was diagnosed wlth MNO In 2018, C14ALLENGING MND was created to provlde flnancSal assistance to sufferers of MNO, to undertake lastinB memorable thallenges orevents with frlends and family. With the onset of MND, and resulting deterioratlon of body functton, the mind remains sharp and unaffected, maklng the Importance of ihese memorable occasions invaluable. A fundralsin8 ru8by matth wa5 held for ￿eX In October 2018. but rather than benefit from the proceeds of the event, Alex wanted to create something to benefit all people Ilving with MND. The funds WEre used to klth start the charity as working capital. The charlty officially 83ined stabjs in Marth 2019with the UK Charitie5Commission. To date, Alex's extraordirtrary effort5 of climbing the 3 Peaks and Lryding the 480 mile5 in btheen in one week.. walking dout￿e marathon,. pedalling the length of the Thames in world record time.. lith'ng one million k85 in 14 htsur5 and beinB instrumental in helping to create this tharity, continues io inspbre not onty those livin8 Wlth motor neurone disease, but aLs0 those who watch In wonderment atsuch great acts of 5elrtessness in the face of adverslty. Paee I Challe MND Report of the Trustees for the Year Ended 31 M 024 OWEcfNESAND AcnvmES Grants We are extremely appreciative to those organisations who have given us grants. whilst at the same time are so grateful to all those organlsations and indlwduals who have taken theirtime to fundraise for us. The charity received the lollowingBrants1£89,(KKII duringthe year. Anonymous 50,000 Openwork Foundation 15,0 HFC 10.000 HadleiÉh Castle Rotary Club 3.5(k) Medlcash Foundatlon 3.C Bruce Wake Charitable Trust 2,5CXJ FSJ Trust 2.000 The Tudwick Foundation 2,OCQ Pilkington Charity I,QJO Vo￿nteerS The charity has gI￿n numerovs motwational talks to schools,. clubs.. rotary clubs: and vartous corporate companles, talking about M￿01 neurone disease and akn how to deal with setbacks In Ilfe. These talks have alway5 been recelved extremely well, leadln8 to many people wantln8 to volunteerforthe charlty. ACHIEVEMENT AND PERFORMANCE Fuhdralslngadlvltles Fundralslng events thls year Indude.. Fundralsin8 events this year Indude.. - Cycle Sportive - GSbbo's Rugby Cup - A city Dinner for a bereaved beneficiary - 300.milè hour cycle ride on the Hase Pino recumbent bike withln 24hour5. at Dunton racttrack Mont Blanc Challenge lsupported by AIGI At the same tlme the charity had several personal fundraising successes. Notebly: Steve Red8ewell's- Two Red8ie walks which raised over £150.Cts) In total. The charity has also given numerous motivational talks to xhools; sports dub5,' and corporate compaTries. tslkin8 about motor neurone disease and h()w to deal with setback5 in life. These talks have always been received extremely weti, leadlng to many people wantingtovolunteer foi the charity. Donatlons We have recelved £278.952 Page 2 Ch311en&inLMND Re ort of the Trustees for the_year Ended 31 March 2Q24 ACHIEVEMENT ANO PERFOAMANCE AthievÈmentslSuc¢esses The charity has had our best year to date wth significant iweases in both Beneficiary numbers, our rea¢h across the UK and the amount raised. - Our fountler Alex Gibson set a world record for a 24-hour Tandem Bike ride. in which he and the supporting Team cyded 300 miles. These events were ¢overed on national TV. radio and pre4 giving the charity fantastsc exposure and raising awareness of motor neurone disease atthe samo time. The charlty has Teceived three short vide05 one lor eath of the two thalLen8es individually and one 3$ a rnlxture of our setvice offerlevents and thallenBes for future promowlth potentlal fyporats Sponsors and or PR campaigns. -Total revamp of our webslie and brandin8 Our first legacy glft - 200 8eneflclarles SLtpport - PR company - The Rlpple effert was contracled for 3 month5 Vlthith 8Ot the Challengin8 key staff on the medla indudlng Good Moming ITV'5 breakfast show, in Several m3lnstream Trxoad5heets. Speerficfocus on dNersity. - Sociol Media metrics have galned tradlon up 250% on last year on average across all platfoms. - New Corporate Sponsor5 PIB/McGilliBokwslAMPIMrtsublshl FINANCIAL REVIEW Income The Income generated throughout the year have been from.. Event Sponsorship Personal Sponsorshlp Events Donations (Personal and Corporatel - Grants Income for the finoncial year Is £413,610. Admlnlstratl¥e Costs currentty stsnds at £91,542. This h35 Increased on105t year due to investment in staff tosts to support the increased benefidary 5UPPOrt and external consultants lfjifted Philanthropy and The Ripple Effertl. Two main sources of Income: fundraising and 8rant applications. We have 8rown our successful grant making applications by c62%.1£55k In 1023 and 2024 £89kl. As the charity we are appreciatlve to those OTganisations who have provided us grants. At the same time are appreciatlve to all those organisations and Indtvlduals who have taken tt￿rr time ro fundfaist foru FLrruRE PLANS Currently, we are looking at rewording the constitution, In order to really help u5 achieve our ultlmate goal of servln8 the MND community. By widening the remit. we as a ¢olledive organi5ation would be able to help provide more support and assistance to the MNO beneficlary. This15currently being looked irto in more depth. STRucfuRE, GOVERNAN￿ AND MANAGEMENT Govemln8 document The charity is controlled by its governlng document, a deed of trust and constitutes art unincorporated charity. Page 3 allen Report of the Trustees he Year En Marth 2024 STRUCWRE. GOVERNANCE AND MANAGEMENT Organisational structure The Char￿ty currerltly has fovr Trustees, one Chlef Executive and one Patron. Our Chief Exetutive, Liane Iles . ha5 worked a5 a full-time tonsultant sinte March 2022 and is responsible for the day-today running of the charity. The Trustees meet on a regular basls to thscuss performance of the CEO and the dirertion of the charity. Together wth the CEO. the Trustees confirm strateBy and goals.. as well as agreeing future fundr¢isin8 events and ideas. REFERENCE AND ADMINISTRATIVE DETAILS Re8lsiered Charlty number 1182607 Prlnclpal addre5$ Unlt L Radford Business Centie, Rèdford Way Billericay Essex CM12 OBZ Trustees Mr A Gibson Mr P Everitt Ms Watson Mr7 Slngh Shoker Independent Exarnkner Daniel Bull DANIEL JAMES UNIT L RADFORD BUSINESS CENTRE RADFORD WAY BILLERICAY Essex CM1208Z Page4 Challen8inLMN ort of the Trustees for the Year Ended 31 March 2024 SUMMARY This Veèr the charity 15 immensely proudto have.. - Increased the awareness of Motor Neurone Disease as an illne55 wlth no cure. Raised awareness and publicity of the charity. - Increased ovr beneficiary numbers from 96 to 222 Increased the awareness of thallenglng MND through netWOF*ing with other charities suth as the Rob Burrow and Doddie WeiT Foundations, as well as the MNDA, various NHS Trusts, Hospitals, Hospices and the Insurance Industry In the City. - Appointed a new Event5 and Fundraiser As a new charity, we have learned to adapt. expect the unexpeded; and resolve subsequent problems that may arise. The charity IS honoured to have such an amazing of volunteers and supporters, without whom our work would be so mvch harder. Flnally, we are of course indebted to our awe-rnspiring benefiaartes who have gisrtn us such incredible feedback that we are ¢ontinually inspired to work harder every dayto create lifelong memories. P05t Ba13nee Sheet Events None are noted. Approved by order of the board of trustees on....-..... .. and ￿1fte￿ on its bèhalf bv.. son- Trustee Pa8e 5 Inde ndent Examinees Re allen In MND ort tu theTruste Independent examlner'5 r¢port to the trustees of Ch¥U¢ftglnE MND l TQPOft to the charily trustees on my exawwnatlon of the accounts of ChaWengin8 MND (the Tru5tl for Ihe yeai ended 31 March 2024. Rèspon51bllltles and basls of report A5 the charlty trustees of the Trust you are responslble for the preparation of the accounts in accordance with the Tequlrements of the Charltles A¢¢ 2011 l*heAct'l. S report In respect of my examination of the Tru5fs accounts orried out under Section 145 gf the Acl and in carrying out my examlnation I have followed all appllcable Dlrections glven by the Charity Commission under Section 1451511bl of the A¢1. Independenl examlner's statement Since your charity's gross income exceeded £250.OCA) your examlnÈr must be a member of a11sted body. I can confirm that S am quallfled to UAdertake the eXamInatk￿ because l am a memberof the Instltute of Nnan¢lal Accountants, whlch Is onè of the listed bodle I have completed my examlnallon. I confirm fh?t no materSal matters have come to my attenilon In connectlon wlth the examlnatlon glvlng me cause tc* belleve that In any materlal respect: accountln8 records weie not kept In respect of the Trust as requlred by Section 130 of the Act.. or the accounts do not accord wlth those records; or the account5 do not wmply wlth the applkable req4rlrements concemln8 thefomi and content of account5 set out In the Charltles IAccounts and Reports) ReBulatlons 21))8 other than any requlrement that the accounts glve a true and falr vlew whlth Is not a matter con51dered as part of an Independent exarnination. I have no concerns and have come across no other matters In connertlon wlth the examlnatlon to whlch altentlon should bo drawn In thls report in order to onable a proper understandin8 of the atcounls to be reached. Danid Bull The Inslltute of Flnanclal Accountants DANIELJAMES UNIT L RADFORD BUSINESS CENTRE RADFORD WAY BILLERICAY Essex CM12 OBZ Date:... Pa8e 6 Cb8llenLin&MND statement of Financial Artwities forthe Year Ended 31 March 2024_ 31.324 Tota5 fvnds 31.3.23 Total funds fund fvnd INCOME AND ENDOWMENTS FROM DonatSons and legac(es 259,258 278,952 278,952 Charitsble acti￿￿{e5 Grants lo.ts 99.0 55,120 277,663 Other tradin8 ortiv￿.es 35.659 35,659 413,611 592,041 Total 324,611 89,C EXPENOITURE ON Ra1sin8 funds 116.799 68,511 68,511 Charltable actlvlties Gr3ntS Beneflc13ry Payments General Expenses Professlonol Fees 19.795 191.710 3,208 69,189 19,795 244,123 3,208 69,189 54,5 93.590 1,274 39,720 52,413 404,826 305,883 Tatsl 352.413 52,413 286,158 NET INCOMVIEXPENMREI {27A121 36.587 8.785 RECONCIUATION OF FUNDS Totsl funds brou8ht forward 148,688 434,846 TOTAL FUNDS CAHRIÉD FORWARD 407,044 36.587 443,631 434,846 The notesfomi part ofthese financial statements Page 7 Ch311en MND Balallce Sheet 31 March 2024 31.3.24 Total furMIs 31.3.23 Totsl fund5 Unrestrlcted nd Restrfrted fvnd Notes FIXEO ASSETS Intsn8ible assets Tangible assets li 12 1.365 5.518 1,365 5,518 931 6,883 931 CURRENT ASSETS Stocks Debtors Cash at bank and In hartd 15.462 11731 394.938 15.462 11731 431,525 14,067 436,880 36,587 410,227 36,587 446,814 450,947 CREDrroRS Amount5 fallin8 due wlthin one year 15 Iio.C661 110,0661 117,0321 NEf CURRENT ASSETS 4W,161 36587 436,748 433,915 TOTALASSEfs LESS aiRRENT LIABIUTIES 407.044 36,587 443,631 434,846 N￿AssET5 407.044 36,587 443,631 434￿46 The notesform partof these financial statements Page 8 continued... Ch3llengin&MND Balance 5heet- 31 March 2_0_24 ntinued FUNDS Unrestritted funds flestritted fund5 16 407.044 36,587 434,846 443,631 434,846 TOTAL FUNDS The financial ststernents were approved by the Board of Trustees and authori5ed for issue on and were si8ned on its behaw by: A Gibson- Trystee Mr P Everitt-Trustee (.[ l(FQ- s Watson- Trustee MrTSlngh Sho stee The notrs fomi part of these financial statements Pa8e9 Ch?Ilen MND Cash Flow Statetnent forthe Year Ended 31 March 2 24 31.324 313.23 Cash flows from operatln8 act[￿eS Cash generated from operation5 3,135 291.283 Net cash provided by operating artiwties 3,13S 291,283 Cash flows from Investlng actlvlUe5 Purchase of intanglble fixed assets Purchase of tangible fixed assets 110201 16,6701 13991 Net cash used in investin6 activstles I8,4￿) 13991 Change In cash and