
## **Trustees' Annual Re ort for the eriod p p** 

Period start date Period end date 1 April 2022 31 March 2023 **From To** 

## Section A                        Reference and administration details 

**Charity name** The 1p36 Family Trust **Other names charity is known by Registered charity number (if any)** 1181988 **Charity's principal address** 2 Lambardes, New Ash Green, Longfield. **Postcode DA3 8HX** 

## **Names of the charity trustees who manage the charity** 

|1<br>2<br>3<br>4<br>5<br>6<br>7<br>8<br>9<br>10<br>11<br>12<br>13<br>14<br>15<br>16<br>17<br>18<br>19<br>20|**Trustee name**|**Office (if any)**|**Dates acted if not for whole**<br>**year**|**Name of person (or body) entitled**<br>**to appoint trustee (if any)**|
|---|---|---|---|---|
||Rebecca Rolleston|Chair|||
||Gareth Twynam|Treasurer|||
||MaryDaniels||||
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**Names of the trustees for the charity, if any, (for example, any custodian trustees)** 

**Name Dates acted if not for whole year** 

March **2012** 

**TAR** 

1 



## **Names and addresses of advisers (Optional information)** 

**Type of adviser Name Address** 

## **Name of chief executive or names of senior staff members (Optional information)** 

## **Section B              Structure, governance and management** 

## **Description of the charity’s trusts** 

Constitution Type of governing document 

(eg. trust deed, constitution) Charitable Incorporated Organisation How the charity is constituted (eg. trust, association, company) Appointed by resolution passed at a properly convened meeting of the Trustee selection methods charity trustees. (eg. appointed by, elected by) 

- (eg. trust, association, company) 

## **Additional governance issues (Optional information)** 

You **may choose** to include additional information, where relevant, about: 

- policies and procedures adopted for the induction and training of trustees; 

- the charity’s organisational structure and any wider network with which the charity works; 

- relationship with any related parties; 

- trustees’ consideration of major risks and the system and procedures to manage them. 

## **Section C                    Objectives and activities** 

The provision of support to children and adults affected by 1p36 deletion syndrome and their families in the UK. 

**Summary of the objects of the charity set out in its governing document** 

March **2012** 

**TAR** 

2 



The arranging of a conference every other year, open to all such families, to share research and practice concerning management of symptoms, treatment and sharing educational content about 1p36 deletion syndrome. This allows families to share together and learn together as they gather in one place for a weekend. The arranging of a Family Fun Day in the intervening year for mutual support and networking. The trustees had due regard to the Charity Commission’s guidance on public benefit when exercising any powers or duties to which the guidance is relevant. 

**Summary of the main activities undertaken for the public benefit in relation to these objects (include within this section the statutory declaration that trustees have had regard to the guidance issued by the Charity Commission on public benefit)** 

## **Additional details of objectives and activities (Optional information)** 

You **may choose** to include further statements, where relevant, about: 

- policy on grantmaking; 

- policy programme related investment; 

- contribution made by volunteers. 

March **2012** 

**TAR** 

3 



Section D                      Achievements and performance 

**Summary of the main achievements of the charity during the year** 

Our first Family Fun Day was successfully held in August 2022 at Altrincham. Planning commenced for the 2023 conference and fundraising continued, with the reserves policy being satisfied. 

March **2012** 

**TAR** 

4 



## **Section E                    Financial review** 

**Brief statement of the charity’s policy on reserves** 

The main expenditure of the charity is the arranging of a conference every other year. The trustees will aim to hold in reserve, 50% of the projected costs in the intervening year. 

**Details of any funds materially in deficit** 

## **Further financial review details (Optional information)** 

You **may choose** to include additional information, where relevant about: 

- the charity’s principal sources of funds (including any fundraising); 

- how expenditure has supported the key objectives of the charity; 

- investment policy and objectives including any ethical investment policy adopted. 

## **Section F                     Other optional information** 

## **Section G                    Declaration** 

**The trustees declare that they have approved the trustees’ report above.** 

**Signed on behalf of the charity’s trustees** 

**Signature(s)** Gareth Twynam **Full name(s)** Rebecca Rolleston **Position (eg Secretary, Chair,** Chair **etc) Date** 

March **2012** 

**TAR** 

5 



||**Charity Name**<br> <br>**The 1p36 Family Trust**|**Charity Name**<br> <br>**The 1p36 Family Trust**|**Charity Name**<br> <br>**The 1p36 Family Trust**|**Charity Name**<br> <br>**The 1p36 Family Trust**|**CC16a**|
|---|---|---|---|---|---|
||**For the period from**|<br>Period start date<br>1/4/22|**To**<br>|||
|||||||
|**Section A Receipts and payments**||||||
|**A1 Receipts**|**Unrestricted**<br>**funds**<br>**to the nearest      £**<br>**586**<br>**10,862**<br>**1,842**<br>**0**<br>**114**<br>**0**<br>**0**<br>**0**<br> <br>**13,404**<br>**0**<br>**0**<br>**0**<br>**13,404**<br>**0**<br>**250**<br>**295**<br>**3,947**<br>**8**<br>**94**<br>**8**<br>**0**<br>**0**<br>**4,602**<br>**0**<br>**0**<br>**0**<br>**4,602**<br>**8,802**<br>**0**<br>**19,692**<br>**28,494**|**Restricted funds**<br>**to the nearest £**|**Endowment**<br>**funds**<br>**to the nearest £**|**Total funds**<br>**to the nearest £**|**Last year**<br>**to the nearest £**|
|Donations|**586**|**0**<br>**0**<br>**0**<br>**0**<br>**0**<br>**0**<br>**0**<br>**0**|**0**<br>**0**<br>**0**<br>**0**<br>**0**<br>**0**<br>**0**<br>**0**|**586**<br>**10,862**<br>**1,842**<br>**0**<br>**114**<br>**0**<br>**0**<br>**0**|**577**|
|Fundraisingactivities|**10,862**||||**8,162**|
|Online fundraising|**1,842**||||**830**|
|Conference fees|**0**||||**1,075**|
|Refunds|**114**||||**0**|
||**0**||||**0**|
||**0**||||**0**|
||**0**||||**0**|
|**_Sub total(Gross income for AR)_**|<br>**13,404**|**0**|**0**|**13,404**|**10,644**|
|||||||
|**A2 Asset and investment sales,**<br>**(see table).**||||||
||**0**|**0**<br>**0**|**0**<br>**0**|**0**<br>**0**||
||**0**||||**0**|
|**_Sub total_**|**0**|**0**|**0**|**0**|**0**|
|**_Total receipts_**<br>**A3 Payments**||||||
|||**0**|**0**|**13,404**|**10,644**|
|||||||
|Cost of fundraisingactivities|**0**|**0**<br>**0**<br>**0**<br>**0**<br>**0**<br>**0**<br>**0**<br>**0**<br>**0**|**0**<br>**0**<br>**0**<br>**0**<br>**0**<br>**0**<br>**0**<br>**0**<br>**0**|**0** <br>**250** <br>**295** <br>**3,947** <br>**8** <br>**94** <br>**8** <br>**0** <br>**0**|**216**|
|Conference venue hire|**250**||||**7,188**|
|Other conference costs|**295**||||**7,694**|
|FamilyFun Daycosts|**3,947**||||**47**|
|Postage|**8**||||**0**|
|Website|**94**||||**0**|
|Sundries|**8**||||**0**|
||**0**||||**0**|
||**0**||||**0**|
|**_Sub total_**|**4,602**|**0**|**0**|**4,602**|**15,145**|
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|**A4 Asset and investment**<br>**purchases, (see table)**||||||
||**0**|**0**<br>**0**|**0**<br>**0**|**0**<br>**0**||
||**0**|||||
|**_Sub total_**|**0**|**0**|**0**|**0**|**0**|
|**_Total payments_**<br>**_Net of receipts/(payments)_**<br>**A5 Transfers between funds**<br>**A6 Cash funds last year end**<br>**_Cash funds this year end_**||||||
|||**0**|**0**|**4,602**|**15,145**|
|||||||
||**8,802**|**0**|**0**|**8,802**|**-4,501**|
||**0**|**0**|**0**|**0**|**0**|
||**19,692**|**0**|**0**|**19,692**|**24,193**|
||**28,494**|**0**|**0**|**28,494**|**19,692**|



**Section B Statement of assets and liabilities at the end of the period** 

|**Categories**<br>**B1 Cash funds**|**Details**<br>Nat West Bank|**Unrestricted**<br>**funds**<br>**to nearest £**<br>**28,494**<br>**0**|**Restricted funds**<br>**to nearest £**|**Endowment**<br>**funds**<br>**to nearest £**|
|---|---|---|---|---|
||||**0**<br>**0**|**0**|
|||||**0**|
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|||
|---|---|
|~~**_Total cash funds_**~~<br>(agree balances with receipts and payments<br>account(s))<br>**Details**<br>**B2 Other monetary assets**<br> <br>**Details**<br>**B3 Investment assets**<br>**Details**<br>**B4 Assets retained for the**<br>**charity’s own use**<br>**Details**<br>**B5 Liabilities**<br>Signed by one or two trustees on behalf of<br>all the trustees<br>Signature|**0**|
||**28,494**|
||Rebecca Rolleston|
||Gareth Twynam|



