## **Trustees' Annual Report for the period** 

||Period start date|Period start date|||Period end date|Period end date||
|---|---|---|---|---|---|---|---|
||01|April|2021||31|March|2022|
|**From**||||**To**||||



## Section A                        Reference and administration details 

**Charity name** The 1p36 Family Trust 

**Other names charity is known by Registered charity number (if any)** 1181988 **Charity's principal address** 2 Lambardes, New Ash Green Longfield **Postcode DA3 8HX** 

**Names of the charity trustees who manage the charity** 

|1<br>2<br>3<br>4<br>5<br>6<br>7<br>8<br>9<br>10<br>11<br>12<br>13<br>14<br>15<br>16<br>17<br>18<br>19<br>20|**Trustee name**|**Office (if any)**|**Dates acted if not for whole**<br>**year **|**Name of person (or body) entitled**<br>**to appoint trustee (ifany)**|
|---|---|---|---|---|
||Rebecca Rolleston|Chair|||
||Gareth Twynam|Treasurer|||
||MaryDaniels||||
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**Names of the trustees for the charity, if any, (for example, any custodian trustees)** 

**Name Dates acted if not for whole year** 

March **2012** 

**TAR** 

1 



## **Names and addresses of advisers (Optional information)** 

**Type of adviser Name Address** 

## **Name of chief executive or names of senior staff members (Optional information)** 

## **Section B              Structure, governance and management** 

## **Description of the charity’s trusts** 

Constitution. Type of governing document (eg. trust deed, constitution) Charitable Incorporated Organisation. How the charity is constituted (eg. trust, association, company) Appointed by resolution passed at a properly convened meeting of the Trustee selection methods charity trustees. (eg. appointed by, elected by) 

- (eg. trust, association, company) 

## **Additional governance issues (Optional information)** 

You **may choose** to include additional information, where relevant, about: 

- policies and procedures adopted for the induction and training of trustees; 

- the charity’s organisational structure and any wider network with which the charity works; 

- relationship with any related parties; 

- trustees’ consideration of major risks and the system and procedures to manage them. 

## **Section C                    Objectives and activities** 

The provision of support to children and adults affected by 1p36 deletion syndrome and their families in the UK. 

**Summary of the objects of the charity set out in its governing document** 

March **2012** 

**TAR** 

2 



The arranging of a conference every other year, open to all such families, to share research and practice concerning management of symptoms, treatment and sharing educational content about 1p36 deletion syndrome. This allows families to share together and learn together as they gather in one place for a weekend. 

The arranging of a family fun day in the intervening year for mutual support and networking. 

**Summary of the main activities undertaken for the public benefit in relation to these objects (include within this section the statutory declaration that trustees have had regard to the guidance issued by the Charity Commission on public benefit)** 

## **Additional details of objectives and activities (Optional information)** 

You **may choose** to include further statements, where relevant, about: 

- policy on grantmaking; 

- policy programme related investment; 

- contribution made by volunteers. 

March **2012** 

**TAR** 

3 



Section D                      Achievements and performance 

Our first conference was successfully held in July 2021 at the Doubletree **Summary of the main** by Hilton Hotel, Dartford Bridge, attended by 134 people. Speakers **achievements of the charity** attended in person and remotely, due to ongoing travel restrictions. **during the year** Planning commenced for the 2022 family fun day and fundraising continued, with the reserves policy being satisfied. 

March **2012** 

**TAR** 

4 



## **Section E                    Financial review** 

The main expenditure of the charity is the holding of a conference every **Brief statement of the** other year. The trustees will aim to hold in reserve 50% of the projected **charity’s policy on reserves** costs in the intervening year. 

## **Details of any funds materially** 

**in deficit** 

## **Further financial review details (Optional information)** 

You **may choose** to include additional information, where relevant about: 

- the charity’s principal sources of funds (including any fundraising); 

- how expenditure has supported the key objectives of the charity; 

- investment policy and objectives including any ethical investment policy adopted. 

## **Section F                     Other optional information** 

## **Section G                    Declaration** 

**The trustees declare that they have approved the trustees’ report above.** 

**Signed on behalf of the charity’s trustees** 

**Signature(s) Full name(s)** Rebecca Rolleston **Position (eg Secretary, Chair,** Chair **etc) Date** 07/09/2022 

March **2012** 

**TAR** 

5 




**Charity Name No (if any) The 1p36 Family Trust 1181988 Receipts and payments accounts CC16a For the period** Period start date Period end date **To from** 01/04/2021 31/03/2022 

## **Section A Receipts and payments** 

|**A1 Receipts**|**Unrestricted**<br>**funds**<br>**to the nearest**<br>**£**<br>**577**<br>**8,162**<br>**830**<br>**1,075**<br>**-**<br>**-**<br>**-**<br>**-**<br>**10,644**<br>**-**<br>**-**<br>**-**<br>**10,644**<br>**216**<br>**7,188**<br>**47**<br>**7,694**<br>**-**<br>**-**<br>**-**<br>**-**<br>**-**<br> **15,145**<br>**-**<br>**-**<br> **-**<br>**15,145**<br>**-                 4,501**<br>**10,000**<br>**14,193**<br>**19,692**|**Restricted**<br>**funds**<br>**to the nearest £**<br>**-**<br>**-**<br>**-**<br>**-**<br>**-**<br>**-**<br>**-**<br>**-**<br>**-**<br>**-**<br>**-**<br>**-**<br>**-**<br>**-**<br>**-**<br>**-**<br>**-**<br>**-**<br>**-**<br>**-**<br>**-**<br>**-**<br>**-**<br>**-**<br>**-**<br>**-**<br>**-**<br>**-**<br>**-               10,000**<br>**10,000**<br>**-**|**Endowment**<br>**funds**<br>**to the nearest £**<br>**-**<br>**-**<br>**-**<br>**-**<br>**-**<br>**-**<br>**-**<br>**-**<br>**-**<br>**-**<br>**-**<br>**-**<br>**-**<br>**-**<br>**-**<br>**-**<br>**-**<br>**-**<br>**-**<br>**-**<br>**-**<br>**-**<br>**-**<br>**-**<br>**-**<br>**-**<br>**-**<br>**-**<br>**-**<br>**-**<br>**-**|**Total funds**<br>**to the nearest £**<br>**577**<br>**8,162**<br>**830**<br>**1,075**<br>**-**<br>**-**<br>**-**<br>**-**<br>**10,644**<br>**-**<br>**-**<br>**-**<br>**10,644**<br>**216**<br>**7,188**<br>**47**<br>**7,694**<br>**-**<br>**-**<br>**-**<br>**-**<br>**-**<br>**15,145**<br>**-**<br>**-**<br>**-**<br>**15,145**<br>**-                 4,501**|**Total funds**<br>**to the nearest £**<br>**577**<br>**8,162**<br>**830**<br>**1,075**<br>**-**<br>**-**<br>**-**<br>**-**<br>**10,644**<br>**-**<br>**-**<br>**-**<br>**10,644**<br>**216**<br>**7,188**<br>**47**<br>**7,694**<br>**-**<br>**-**<br>**-**<br>**-**<br>**-**<br>**15,145**<br>**-**<br>**-**<br>**-**<br>**15,145**<br>**-                 4,501**|**Last year**<br>**to the nearest £**|
|---|---|---|---|---|---|---|
|Donations|**577**|||||**1,687**|
|Fundraisingactivities|**8,162**|||||**1,728**|
|Online fundraising|**830**|||||**248**|
|Conference fees|**1,075**|||||**-**|
|Grants|**-**|||||**73**|
||**-**|||||**-**|
||**-**|||||**-**|
||**-**|||||**-**|
|**_Sub total_**_(Gross income for_<br>_AR)_|**10,644**|||||**3,736**|
||||||||
|**A2 Asset and investment sales,**<br>**(see table).**|||||||
||**-**||||||
||**-**|||||**-**|
|**_Sub total_**|**-**|||||**-**|
|**_Total receipts_**<br>**A3 Payments**|||||||
|||||||**3,736**|
||||||||
|Cost of fundraisingactivities|**216**|||||**127**|
|Conference venue hire|**7,188**|||||**-**|
|Postage|**47**|||||**27**|
|Other conference costs|**7,694**|||||**-**|
|Refunds for cancelled events|**-**|||||**330**|
|Website|**-**|||||**92**|
||**-**|||||**-**|
||**-**|||||**-**|
||**-**|||||**-**|
|**_Sub total_ **|**15,145**|||||**576**|
||||||||
|**A4 Asset and investment**<br>**purchases, (see table)**|||||||
||**-**||||||
||**-**||||||
|**_Sub total_ **|**-**|||||**-**|
|**_Total payments_**<br>**_Net of receipts/(payments)_**<br>**A5 Transfers between funds**<br>**A6 Cash funds last year end**<br>**_Cash funds this year end_**|||||||
|||||||**576**|
||||||||
||**-                 4,501**|**-**|**-**|**-                 4,501**||**3,160**|
||**10,000**|**-               10,000**|**-**|**-**||**-**|
||**14,193**|**10,000**|**-**|**24,193**||**-**|
||**19,692**|**-**|**-**|**19,692**||**3,160**|



CCXX R1 accounts (SS) 

07/09/2022 

1 



## **Section B Statement of assets and liabilities at the end of the period** 

|**Categories**<br>Signed by one or two trustees on<br>behalf of all the trustees<br>**B1 Cash funds**<br>**B2 Other monetary assets**<br>**B4 Assets retained for the**<br>**charity’s own use**<br>**B5 Liabilities**<br>**B3 Investment assets**|Signature<br>**Details**<br>**Details**<br>Nat West Bank<br>**Details**<br>**Details**<br>**_Total cash funds_**<br>(agree balances with receipts and payments<br>account(s))<br>**Details**|**Unrestricted**<br>**funds**<br>**Restricted**<br>**funds**<br>**to nearest £**<br>**to nearest £**<br>**19,692**<br>**-**<br>**-**<br>**-**<br>**-**<br>**-**<br>**19,692**<br>**-**<br>OK<br>OK<br>**Unrestricted**<br>**funds**<br>**Restricted**<br>**funds**<br>**to nearest £**<br>**to nearest £**<br>**-**<br>**-**<br>**-**<br>**-**<br>**-**<br>**-**<br>**-**<br>**-**<br>**-**<br>**-**<br>**-**<br>**-**<br>**Fund to which**<br>**asset belongs**<br>**Cost (optional)**<br>**-**<br>**-**<br>**-**<br>**-**<br>**-**<br>**Fund to which**<br>**asset belongs**<br>**Cost (optional)**<br>**-**<br>**-**<br>**-**<br>**-**<br>**-**<br>**-**<br>**-**<br>**-**<br>**-**<br>**Fund to which**<br>**liability relates**<br>**Amount due**<br>**(optional)**<br>**-**<br>**-**<br>**-**<br>**-**<br>**-**<br>Print Name<br>Rebecca Rolleston|**Endowment**<br>**funds**<br>**to nearest £**|
|---|---|---|---|
||||**-**|
||||**-**|
||||**-**|
||||**-**|
||||OK|
||||**Endowment**<br>**funds**<br>**to nearest £**|
||||**-**|
||||**-**|
||||**-**|
||||**-**|
||||**-**|
||||**-**|
||||**Current value**<br>**(optional)**|
||||**-**|
||||**-**|
||||**-**|
||||**-**|
||||**-**|
||||**Current value**<br>**(optional)**|
||||**-**|
||||**-**|
||||**-**|
||||**-**|
||||**-**|
||||**-**|
||||**-**|
||||**-**|
||||**-**|
||||**When due**<br>**(optional)**|
|||||
|||||
|||||
|||||
|||||
|||||
||||Date of<br>approval|
||||07/09/2022|
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CCXX R2 accounts (SS) 

07/09/2022 

2 

