OpenCharities

Barth Syndrome UK

Country
England & Wales
Charity number
1181830
Status
Registered
Reporting
Up to date Last filed March 8, 2026. Filing history
Registered
Jan. 31, 2019
Legal form
CIO

Address

Address
1 The Vikings
Romsey
SO51 5RG

Activities

Working throughout the UK, we assist families with Barth syndrome with support, information and access to expert care.We fund research into treatments and a cure.

Objects: The Relief Of Individuals With, And Carriers Of, Barth Syndrome And Their Families, Within The United Kingdom And Elsewhere In The World In Particular But Not Exclusively By:a) Providing Access To Information, Advice And Support In Relation To The Condition To The Public And, In Particular, Diagnosed Individuals And Their Extended Families And Those In The Educational, Scientific, Medical And Allied Health Care Professions.b) The Promotion And Funding Of Research Into The Causes And Effects Of The Condition And The Dissemination Of The Useful Results Of The Same For The Benefit Of The Public.

Classification

How
Makes Grants To Individuals, Makes Grants To Organisations, Provides Services, Provides Advocacy/advice/information, Sponsors Or Undertakes Research
What
General Charitable Purposes, The Advancement Of Health Or Saving Of Lives
Who
Children/young People, People With Disabilities, Other Charities Or Voluntary Bodies, Other Defined Groups

Geography

Area of benefit
Within The United Kingdom And Elsewhere In The World
Country
Ireland, Scotland, United States
Region
Throughout England And Wales

Finances

Period end Filed Income Expenditure
Dec. 31, 2025 March 8, 2026On time £58,080 £36,586
Dec. 31, 2024 Oct. 31, 2025On time £25,067 £33,206
Dec. 31, 2023 March 18, 2024On time £79,374 £60,567
Dec. 31, 2022 March 2, 2023On time £11,845 £46,135
Dec. 31, 2021 March 8, 2022On time £31,007 £44,840

Trustees

Name Appointed
Ralph Steven Easterbrook (Chair) Aug. 14, 2025
Kelsey Leigh Doran Oct. 19, 2025
Paul Laurence Ford Jan. 17, 2024
Susan Williams Oct. 2, 2025
Suzanne Michelle Green Aug. 10, 2026