2020-11-01-accounts

Trustees’ Annual Report for the period

From 02/11/2019 Period start date To 01/11/2020 Period end date

Charity name: NTM PATIENT CARE UK

Charity registration number: 181372

Objectives and Activities

	SORP reference
Summary of the purposes of the charity as set out in its governing document	Para 1.17	The purpose of NTM Patient Care UK is to provide information and support to NTM patients. We also work with Healthcare Professional (HCP) teams to improve understanding of patient needs, co- ordinating and facilitating the transfer of information in both directions between the two. This purpose is set out in the Constitution as the following objectives; Working to improve the lives of people with non-tuberculous mycobacterial (NTM) infection in the UK, in particular but not exclusively by; a) the provision of education and information to increase understanding of NTM in both the clinical and patient communities. b) the development and implementation of a support network for NTM patient communities.
Summary of the main activities in relation to those purposes for the public benefit, in particular, the activities, projects or services identified in the accounts.	Para 1.17 and 1.19	Main activities for this reporting period include to the following; a) Organisation of regular Trustee Meetings to develop strategies for the patient association to meet its intended goals. b) NTM Patient Care UK has held regular Zoom Meetings for NTM patients and Healthcare Professionals with an interest in NTM. These meetings have included talks & presentations on areas with specific relevance to NTM patients such as physio, pharmacy and dietetics.

		These meetings also provide both support and a forum for NTM patients to share and discuss their experiences of NTM and associated issues. c) Development of a website to allow the patient association to provide information and support to NTM patients; this went live in October 2020. d) Engagement with NTM patients and Healthcare Professionals (HCPs) to develop support in the further development of the patient association. e) NTM Patient Care UK has continued to raise awareness of this disease within the medical community and actively engaged with a number of NTM patients and their wider support community.
Statement confirming whether the trustees have had regard to the guidance issued by the Charity Commission on public benefit	Para 1.18	The trustees have had regard to the Charity Commission’s guidance on public benefit.

Additional information (optional)

You may choose to include further statements where relevant about:

	SORP reference
Policy on grant making	Para 1.38	N/A
Policy on social investment including program related investment	Para 1.38	N/A
Contribution made by volunteers	Para 1.38	N/A
Other		N/A

Achievements and Performance

	SORP reference
Summary of the main achievements of the charity, identifying the difference the charity’s work has made to the circumstances of its beneficiaries and any wider benefits to society as a whole.	Para 1.20	Main activities for this reporting period have included the following; a) Provision of improved support and information specific to NTM patients. b) Development and implementation of a website that provides NTM patients with a source of information and advice specific to their situation. This includes patient stories, frequently asked questions, news stories, research info, links to other information sources as well as information on physio, mental health and other useful info. c) Provision of regular Zoom meetings to provide relevant information and support specific to NTM patients. This has improved support available to these patients as well as providing an excellent opportunity for informal interaction between NTM patients and HCPs. This interaction has provided an improved understanding of NTM and the patient experience within both groups.

Additional information (optional) You may choose to include further statements where relevant about:

Achievements against objectives set	Para 1.41	N/A
Performance of fundraising activities against objectives set	Para 1.41	N/A
Investment performance against objectives	Para 1.41	N/A
Other		N/A

Financial Review

Financial Review
Review of the charity’s financial position at the end of the period	Para 1.21
Statement explaining the policy for holding reserves stating why they are held	Para 1.22	NTM Patient Care UK has no policy for holding reserves and a policy is not considered necessary as the charity has had no spending during this reporting period. The trustees have decided that holding reserves is unnecessary, as during this period the charity had no spending.
Amount of reserves held	Para 1.22	None
Reasons for holding zero reserves	Para 1.22	The charity has had no spending over the reporting period so reserves are not considered necessary.
Details of fund materially in deficit	Para 1.24	N/A
Explanation of any uncertainties about the charity continuing as a going concern	Para 1.23	N/A

Additional information (optional) You may choose to include further statements	Additional information (optional) You may choose to include further statements	where relevant about:
The charity’s principal sources of funds (including any fundraising)	Para 1.47	NTM Patient Care received a single grant from a pharmaceutical company (£25,000.00) in March 2020.
Investment policy and objectives including any social investment policy adopted	Para 1.46	N/A
A description of the principal risks facing the charity	Para 1.46	N/A
Other		N/A

Structure, Governance and Management

Description of charity’s trusts:		N/A
Type of governing document (trust deed, royal charter)	Para 1.25	Constitution of the Charitable Incorporated Organisation (CIO)
How is the charity constituted? (e.g unincorporated association, CIO)	Para 1.25	Charitable Incorporated Organisation (CIO)
Trustee selection methods including details of any constitutional provisions e.g. election to post or name of any person or body entitled to appoint one or more trustees	Para 1.25	Trustees include founding individuals, NTM patients and HCPs to ensure the best representation of the needs of NTM patients. More details of Trustee selection is provided in the Constitution.

Additional information (optional)

You may choose to include further statements where relevant about:

Policies and procedures adopted for the induction and training of trustees	Para 1.51	N/A
The charity’s organisational structure and any wider network with which the charity works	Para 1.51	N/A
Relationship with any related parties	Para 1.51	N/A
Other		N/A

Reference and Administrative details

Charity name	NTM Patient Care UK
Other name the charity uses	N/A
Registered charity number	1181372
Charity’s principal address	Royal Free London NHS Foundation Trust, Pond St, Hampstead, London NW3 2QG

Names of the charity trustees who manage the charity during period of report

1 2 3 4 5 6 7 8 9 10 11 12 13 14 15 16 17 18 19 20	Trustee name	Office (if any)	Dates acted if not for whole year	Name of person (or body) entitled to appoint trustee (ifany)
	Prof Marc Lipman	Trustee
	Prof James Chalmers	Trustee	Resigned 29-June-2020
	Mr Robin Arnell	Trustee	Resigned 09-September-2020
	Ms Judi Bitel	Trustee	Resigned 09-September-2020
	Prof Michael King	Trustee	from 07-August-2020

– Corporate trustees names of the directors at the date the report was approved

Director name N/A

Name of trustees holding title to property belonging to the charity

Trustee name	Dates acted if not for whole year
N/A

Funds held as custodian trustees on behalf of others

Description of the assets N/A held in this capacity

Name and objects of the N/A charity on whose behalf the assets are held and how this falls within the custodian charity’s objects Details of arrangements for N/A safe custody and segregation of such assets from the charity’s own assets

Additional information (optional)

Names and addresses of advisers (Optional information)

Names and addresses of advisers (Optional information)	Names and addresses of advisers (Optional information)	Names and addresses of advisers (Optional information)
Type of adviser Name Address
Technical & Medical Communications advisor	John Hockley	Axiom Health Ltd, 399 Station Road, Petworth, West Sussex

Name of chief executive or names of senior staff members (Optional information)

N/A

Exemptions from disclosure

Reason for non-disclosure of key personnel details

N/A

Other optional information

N/A

Declarations

The trustees declare that they have approved the trustees’ report above.

Signed on behalf of the charity’s trustees

Signature(s) Marc LipmanMarc Lipman (Oct 24, 2021 20:20 GMT+1) Full name(s) Prof Marc Lipman Position (eg Secretary, Chair Chair, etc) Date Oct 24, 2021

Trustee Annual Report-DOC 24-OCT-2021 (Period 02.11.2019 to 01.11.2020)

Final Audit Report

2021-10-24

Created: 2021-10-24 By: Sarah Bryant ([e-mail]) Status: Signed Transaction ID: CBJCHBCAABAAHT-BcsFTvzhL0axpkK6S-ioFdVZWgF40

"Trustee Annual Report-DOC 24-OCT-2021 (Period 02.11.2019 to 01.11.2020)" History

Document created by Sarah Bryant ([e-mail])

2021-10-24 - 7:03:53 PM GMT- IP address: 158.172.153.1

Document emailed to Marc Lipman ([e-mail]) for signature

2021-10-24 - 7:05:42 PM GMT

Email viewed by Marc Lipman ([e-mail])

2021-10-24 - 7:19:41 PM GMT- IP address: 94.175.228.196

Document e-signed by Marc Lipman ([e-mail])

Signature Date: 2021-10-24 - 7:20:08 PM GMT - Time Source: server- IP address: 94.175.228.196

Agreement completed.

2021-10-24 - 7:20:08 PM GMT

	NTM Patient Care UK	NTM Patient Care UK	NTM Patient Care UK	No (if any)	CC16a
	Receipts andpayments accounts
	For the period from	01/11/2019	To	01/11/2020
Section A Receipts an	d payments
A1 Receipts	Unrestricted funds to the nearest £	Restricted funds to the nearest £	Endowment funds to the nearest £	Total funds to the nearest £
	25,000	-	-	25,000	-
	-	-	-	-	-
	-	-	-	-	-
	-	-	-	-	-
	-	-	-	-	-
	-	-	-	-	-
	-	-	-	-	-
	-	-	-	-	-
Sub total(Gross income for AR)	25,000.00	0.00	0.00	25,000.00	0.00
A2 Asset and investment sales, (see table).
	-	-	-	-
	-	-	-	-	-
Sub total	0.00	0.00	0.00	0.00	0.00
Total receipts A3 Payments
	25,000.00	0.00	0.00	25,000.00	0.00
	-	-	-	-	-
	-	-	-	-	-
	-	-	-	-	-
	-	-	-	-	-
	-	-	-	-	-
	-	-	-	-	-
	-	-	-	-	-
	-	-	-	-	-
	-	-	-	-	-
Sub total	0.00	0.00	0.00	0.00	0.00
A4 Asset and investment purchases, (see table)
	-	-	-	-
	-	-	-	-
Sub total	0.00	0.00	0.00	0.00	0.00
Total payments Net of receipts/(payments) A5 Transfers between funds A6 Cash funds last year end Cash funds this year end
	0.00	0.00	0.00	0.00	0.00
	25,000.00	0.00	0.00	25,000.00	0.00
	-	-	-	-	-
	-	-	-	-	-
	25,000.00	0.00	0.00	25,000.00	0.00
Section B Statement o	f assets and	liabilities at	the end of t	he period
Categories Signed by one or two trustees on behalf of all the trustees Sign None Details Details None Unrestricted grant pro pharmaceutical comp B1 Cash funds Details B2 Other monetary assets Details T (agree balances wit None B4 Assets retained for the charity’s own use B5 Liabilities B3 Investment assets Details None Marc Lipman	Details		Unrestricted funds to nearest £	Restricted funds to nearest £
	Unrestricted grant pro pharmaceutical comp	vided by any.	25,000	-	-
			-	-	-
			-	-	-
	T (agree balances wit	otal cash funds h receipts and payments account(s))	25,000.00	0.00	0.00
			OK	OK	OK
	Details		Unrestricted funds to nearest £	Restricted funds to nearest £
	None		-	-	-
			-	-	-
			-	-	-
			-	-	-
			-	-	-
			-	-	-
	Details		Fund to which asset belongs	Cost (optional)
	None			-	-
				-	-
				-	-
				-	-
				-	-
	Details		Fund to which asset belongs	Cost (optional)
	None			-	-
				-	-
				-	-
				-	-
				-	-
				-	-
				-	-
				-	-
				-	-
	Details		Fund to which liability relates	Amount due (optional)
	None			-
				-
				-
				-
				-
	Sign	ature	Print	Name
					Date of approval
			Prof Mar	cLipman
		1
Marc Lipman (Oct 26, 2021 08:34 GMT+1)

CCXX R1 accounts (SS)

25/10/2021

Oct 26, 2021