2022-12-31-accounts - Cure Usher Syndrome

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Trustees’ Annual Report for the period

From 1 January 2022 to 31 December 2022

Charity name: Cureusher

Charity registration number: 1181293

Objectives and Activities

	SORP reference
Summary of the purposes of the charity as set out in its governing document	Para 1.17	To promote and protect the health of those suffering from genetically inherited usher syndrome, through the provision of information for people affected by this condition, and by funding scientific research into the causes, treatment and cure of all types of the condition and publishing the results.
Summary of the main activities in relation to those purposes for the public benefit, in particular, the activities, projects or services identified in the accounts.	Para 1.17 and 1.19	Raising funds to increase collaboration and research into a cure/treatment for usher syndrome, the leading cause of deaf- blindness.
Statement confirming whether the trustees have had regard to the guidance issued by the Charity Commission on public benefit	Para 1.18	The trustees have had regard to the guidance issued by the Charity Commission on public benefit when planning the activities.

Achievements and Performance

	SORP reference
Summary of the main achievements of the charity, identifying the difference the charity’s work has made to the circumstances of its beneficiaries and any wider benefits to society as a whole.	Para 1.20	Two high profile trustees have been appointed. Events raising awareness have started during the year which have led to increased income and expenditure. £10,000 was donated to UCL in the year.

Financial Review

Review of the charity’s financial position at the end of the period	Para 1.21	The charity had a net deficit on the general fund of £7,638. There remain strong general reserves of £17,032 at the year end.
Statement explaining the policy for holding reserves stating why they are held	Para 1.22	The charity aims to have reserves to support 6 months of charitable activities. Reserves at 31 December 2022 were £17,032. The trustees will look to build upon this in the next financial year.
Amount of reserves held	Para 1.22	£17,032.
Reasons for holding zero reserves	Para 1.22	Not applicable
Details of fund materially in deficit	Para 1.24	Not applicable
Explanation of any uncertainties about the charity continuing as a going concern	Para 1.23	The charity is a going concern.

Structure, Governance and Management

Description of charity’s trusts:
Type of governing document	Para 1.25	CIO – Foundation Registered 20 December 2018.
How is the charity constituted?	Para 1.25	Charitable Incorporated Organisation.
Trustee selection methods including details of any constitutional provisions e.g. election to post or name of any person or body entitled to appoint one or more trustees	Para 1.25	By appointment of the board of trustees.

Reference and Administrative details

Charity name	Cureusher
Other name the charity uses
Registered charity number	1181293
Charity’s principal address	Dalmar House Barras Lane Estate Dalston CA5 7NY

Names of the charity trustees who manage the charity

Trustee name	Office (if any)	Dates acted if not for whole year	Name of person (or body) entitled to appoint trustee (if any)
Joanne Lesley White
Ian Rankin
Stephen Edward White
Keith Hardy
Emma Handford		14/12/2022
Laura Norton		03/02/2023
Mark Jordon		03/02/2023
Mike George Lambert Barker		31/01/2023
David Ashton BSe		18/05/2023

– Corporate trustees names of the directors at the date the report was approved

Director name None

Name of trustees holding title to property belonging to the charity

Trustee name	Dates acted if not for whole year
None

Funds held as custodian trustees on behalf of others

Description of the assets held in this capacity	None
Name and objects of the charity on whose behalf the assets are held and how this falls within the custodian charity’s objects	Not applicable
Details of arrangements for safe custody and segregation of such assets from the charity’s own assets	Not applicable

Exemptions from disclosure

Reason for non-disclosure of key personnel details

Other optional information

Declarations

The trustees declare that they have approved the trustees’ report above.

Signed on behalf of the charity’s trustees

Signature(s) Full name(s) Position (eg Secretary, Chair, etc) Date
	IAN RANKIN
	Trustee
	13 September 2023
	13 September 2023

Charity Name		No (if any)
CUREUSHER		1181293
Receipts andpayments accounts			CC16a
For the period from	Period start date 01/01/2022	Period end date To 31/12/2022

Section A Receipts and payments	Section A Receipts and payments
A1 Receipts	Unrestricted funds to the nearest £ 6,602 12,600 1,772 50 20,758 - - 41,782 - - - 41,782 10,000 216 267 600 30,203 96 - 4,292 3,747 - 49,420 - - 49,420 - 7,638 - 24,670 17,032	Restricted funds to the nearest £ - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - -	Endowment funds to the nearest £ - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - -	Total funds to the nearest £ 6,602 12,600 1,772 - 50 20,758 - - 41,782 - - - 41,782 10,000 216 267 600 30,203 96 - 4,292 3,747 - 49,420 - - - 49,420 - 7,638	Last year to the nearest £
Donations	6,602				2,521
Just Giving	12,600				3,162
Facebook donations	1,772				939
HearingFund					-
Bank interest	50				3
Events	20,758				-
	-				-
	-				-
*Sub total*(Gross income for AR)	41,782				6,625

A2 Asset and investment sales, (see table).
	-
	-				-
*Sub total*	-				-
*Total receipts* A3 Payments
					6,625

Donations	10,000				-
Just Giving	216				216
Advertising	267				191
Accountancyfees	600				780
Fundraisingevent entry& clothing	30,203				2,616
Insurance	96				96
Website	-				173
Misc expenditure	4,292				363
Print andpostage	3,747
	-				-
**Sub total **	49,420				4,435

A4 Asset and investment purchases, (see table)
Compluter equipment					3,026
	-
**Sub total **	-				3,026
*Total payments* *Net of receipts/(payments)* A5 Transfers between funds A6 Cash funds last year end *Cash funds this year end*
					7,461

	- 7,638	-	-	- 7,638	- 836
	-	-	-	-	-
	24,670	-	-	24,670	25,506
	17,032	-	-	17,032	24,670

CCXX R1 accounts (SS)

29/11/2023

Section B Statement of assets and liabilities at the end of the period	Section B Statement of assets and liabilities at the end of the period	Section B Statement of assets and liabilities at the end of the period
Categories Signed by one or two trustees on behalf of all the trustees B5 Liabilities B3 Investment assets B2 Other monetary assets B4 Assets retained for the charity’s own use B1 Cash funds	Details Details *Total cash funds* (agree balances with receipts and payments account(s)) Current account Reserve account Details Details Computer equipment Details Signature	Unrestricted funds Restricted funds to nearest £ to nearest £ 1,974 - 15,058 - - - 17,032 - OK OK Unrestricted funds Restricted funds to nearest £ to nearest £ - - - - - - - - - - - - Fund to which asset belongs Cost (optional) - - - - - Fund to which asset belongs Cost (optional) 3,026 - - - - - - - - Fund to which liability relates Amount due (optional) - - - - - Print Name IAN RANKIN	Endowment funds to nearest £
			-
			-
			-
			-
			OK
			Endowment funds to nearest £
			-
			-
			-
			-
			-
			-
			Current value (optional)
			-
			-
			-
			-
			-
			Current value (optional)
			1,513
			-
			-
			-
			-
			-
			-
			-
			-
			When due (optional)






			Date of approval
		IAN RANKIN	13 September
			2023

CCXX R2 accounts (SS)

29/11/2023

Independent examiner's report on the accounts

Section A Independent Examiner’s Report

Report to the trustees/ Charity Name Cureusher members of On accounts for the year 31 December 2022 Charity no 1181293 ended (if any) Set out on pages 1 to 2 (remember to include the page numbers of additional sheets)

I report to the trustees on my examination of the accounts of the above charity (“the Trust”) for the year ended 31/12/2022.

Responsibilities and As the charity trustees of the Trust, you are responsible for the preparation basis of report of the accounts in accordance with the requirements of the Charities Act 2011 (“the Act”).

I report in respect of my examination of the Trust’s accounts carried out under section 145 of the 2011 Act and in carrying out my examination, I have followed the applicable Directions given by the Charity Commission under section 145(5)(b) of the Act.

Independent I have completed my examination. I confirm that no material matters have examiner's statement come to my attention in connection with the examination which gives me cause to believe that in, any material respect:

accounting records were not kept in accordance with section 130 of the Act or
the accounts do not accord with the accounting records

I have no concerns and have come across no other matters in connection with the examination to which attention should be drawn in order to enable a proper understanding of the accounts to be reached.

Signed: Date: 13 September 2023 Name: Mrs Alison Welton Relevant professional FCA qualification(s) or body (if any): Address: Dalmar House, Barras Lane Estate, Dalston Carlisle CA5 7NY.

October 2018

IER

Section B Disclosure

Only complete if the examiner needs to highlight matters of concern (see CC32, Independent examination of charity accounts: directions and guidance for examiners).

Give here brief details of any items that the examiner wishes to disclose .

October 2018

IER