2021-12-31-accounts - Cure Usher Syndrome

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Trustees’ Annual Report for the period

From: 1 January 2021 to 31 December 2021

Charity name: Cureusher

Charity registration number: 1181293

Objectives and Activities

	SORP reference
Summary of the purposes of the charity as set out in its governing document	Para 1.17	To promote and protect the health of those suffering from genetically inherited usher syndrome, through the provision of information for people affected by this condition, and by funding scientific research into the causes, treatment and cure of all types of the condition and publishing the useful results.
Summary of the main activities in relation to those purposes for the public benefit, in particular, the activities, projects or services identified in the accounts.	Para 1.17 and 1.19	Raising funds to increase collaboration and research into a cure/treatment for usher syndrome, the leading cause of deaf- blindness.
Statement confirming whether the trustees have had regard to the guidance issued by the Charity Commission on public benefit	Para 1.18	The trustees have had regard to the guidance issued by the Charity Commission on public benefit when planning the activities.

Achievements and Performance

	SORP reference
Summary of the main achievements of the charity, identifying the difference the charity’s work has made to the circumstances of its beneficiaries and any wider benefits to society as a whole.	Para 1.20	£6,625 was raised during the year.

Financial Review

Financial Review
Review of the charity’s financial position at the end of the period	Para 1.21	This year, the charity had net loss on the general fund of £836. This was after the purchase of equipment of £3,026. There remain strong general reserves of £24,670 at the period end.
Statement explaining the policy for holding reserves statingwhytheyare held	Para 1.22	The charity aims to have reserves to support 6 months of charitable activities.
Amount of reserves held	Para 1.22	Reserves at 31 December 2021 were £24,670. The trustees will look to build upon this in the next financial year.
Reasons for holding zero reserves	Para 1.22	Not applicable.
Details of fund materially in deficit	Para 1.24	Not applicable.
Explanation of any uncertainties about the charity continuing as a going concern	Para 1.23	The charity is a going concern.

Structure, Governance and Management

Description of charity’s trusts:
Type of governing document (trust deed, royal charter)	Para 1.25	CIO – Foundation Registered 20 December 2018.
How is the charity constituted? (e.g unincorporated association, CIO)	Para 1.25	Charitable Incorporated Organisation.
Trustee selection methods including details of any constitutional provisions e.g. election to post or name of any person or body entitled to appoint one or more trustees	Para 1.25	By appointment of the board of trustees.

Reference and Administrative details

Charity name	Cureusher
Other name the charity uses
Registered charity number	1181293
Charity’s principal address	7 Weymouth Gardens Gateshead Tyne and Wear NE9 6UT

Names of the charity trustees who manage the charity

Trustee name	Office (if any)	Dates acted if not for whole year
Keith Hardy	Chair	30 September 2021
Stephen Edward White	Trustee	11 January 2021
Ian Rankin	Trustee
Joanne Lesley White	Trustee

– Corporate trustees names of the directors at the date the report was approved

Director name None

Name of trustees holding title to property belonging to the charity

Trustee name	Dates acted if not for whole year
None

Funds held as custodian trustees on behalf of others

Description of the assets held in this capacity	None.
Name and objects of the charity on whose behalf the assets are held and how this falls within the custodian charity’s objects	Not applicable.
Details of arrangements for safe custody and segregation of such assets from the charity’s own assets	Not applicable.

Exemptions from disclosure

Reason for non-disclosure of key personnel details

Other optional information

Declarations

The trustees declare that they have approved the trustees’ report above.

Signed on behalf of the charity’s trustees

Signature(s) Full name(s) Position (eg Secretary, Chair, etc) Date
	IAN RANKIN
	Trustee
	03/08/2022
	03/08/2022

Charity Name No (if any) CUREUSHER 1181293 Receipts and payments accounts CC16a For the period Period start date Period end date To from 01/01/2021 31/12/2021

Section A Receipts and payments

A1 Receipts	Unrestricted funds to the nearest £ 2,521 3,162 939 - 3 - - - 6,625 - - - 6,625 - 216 191 780 2,616 96 173 363 - 4,435 3,026 - 3,026 7,461 - 836 - 25,506 24,670	Restricted funds to the nearest £ - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - -	Endowment funds to the nearest £ - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - -	Total funds to the nearest £ 2,521 3,162 939 - 3 - - - 6,625 - - - 6,625 - 216 191 780 2,616 96 173 363 - 4,435 3,026 - 3,026 7,461 - 836	Last year to the nearest £
Donations	2,521				2,986
Just Giving	3,162				2,089
Facebook donations	939				7,245
HearingFund	-				15,000
Bank interest	3				6
	-				-
	-				-
	-				-
*Sub total*(Gross income for AR)	6,625				27,326

A2 Asset and investment sales, (see table).
	-
	-				-
*Sub total*	-				-
*Total receipts* A3 Payments
					27,326

Donations	-				5,000
Just Giving	216				216
Advertising	191				115
Accountancyfees	780				480
Fundraisingevent entry& clothing	2,616				261
Insurance	96				-
Website	173				-
Misc expenditure	363				-
	-				-
**Sub total **	4,435				6,072

A4 Asset and investment purchases, (see table)
Compluter equipment	3,026				-
	-
**Sub total **	3,026				-
*Total payments* *Net of receipts/(payments)* A5 Transfers between funds A6 Cash funds last year end *Cash funds this year end*
					6,072

	- 836	-	-	- 836	21,254
	-	-	-	-	-
	25,506	-	-	25,506	4,252
	24,670	-	-	24,670	25,506

CCXX R1 accounts (SS)

03/08/2022

Section B Statement of assets and liabilities at the end of the period	Section B Statement of assets and liabilities at the end of the period	Section B Statement of assets and liabilities at the end of the period
Categories Signed by one or two trustees on behalf of all the trustees B5 Liabilities B3 Investment assets B2 Other monetary assets B4 Assets retained for the charity’s own use B1 Cash funds	Details Details *Total cash funds* (agree balances with receipts and payments account(s)) Current account Reserve account Details Details Computer equipment Details Signature	Unrestricted funds Restricted funds to nearest £ to nearest £ 2,161 - 22,509 - - - 24,670 - OK OK Unrestricted funds Restricted funds to nearest £ to nearest £ - - - - - - - - - - - - Fund to which asset belongs Cost (optional) - - - - - Fund to which asset belongs Cost (optional) 3,026 - - - - - - - - Fund to which liability relates Amount due (optional) - - - - - Print Name IAN RANKIN	Endowment funds to nearest £
			-
			-
			-
			-
			OK
			Endowment funds to nearest £
			-
			-
			-
			-
			-
			-
			Current value (optional)
			-
			-
			-
			-
			-
			Current value (optional)
			2,269
			-
			-
			-
			-
			-
			-
			-
			-
			When due (optional)






			Date of approval
		IAN RANKIN	03/08/2022

CCXX R2 accounts (SS)

03/08/2022