# Cure Usher Syndrome

## Details

- **Country:** England &amp; Wales
- **Charity number:** 1181293
- **Other names:** CURE, CUREUSHER, Cure Usher
- **Status:** Registered
- **Legal form:** CIO
- **Registered:** Dec. 20, 2018
- **Register:** https://register-of-charities.charitycommission.gov.uk/en/charity-search/?p_p_id=uk_gov_ccew_onereg_charitydetails_web_portlet_CharityDetailsPortlet&amp;p_p_lifecycle=0&amp;p_p_state=maximized&amp;p_p_mode=view&amp;_uk_gov_ccew_onereg_charitydetails_web_portlet_CharityDetailsPortlet_regId=1181293


## Contact

- **Address:** 6, Valdene Drive, Worsley, Manchester
- **Postcode:** M28 7GA
- **Phone:** 07792 700660
- **Email:** pippadutton@cureushersyndrome.com
- **Website:** www.cureushersyndrome.com



## Activities

**Objects:** TO PROMOTE AND PROTECT THE HEALTH OF THOSE SUFFERING FROM GENETICALLY INHERITED USHER SYNDROME, THROUGH THE PROVISION OF INFORMATION FOR PEOPLE AFFECTED BY THIS CONDITION, AND BY FUNDING SCIENTIFIC RESEARCH INTO THE CAUSES, TREATMENT AND CURE OF ALL TYPES OF THE CONDITION AND PUBLISHING THE USEFUL RESULTS.

**Activities:** Working to increase awareness and raise funds for research into a cure for Usher syndrome, the leading cause of genetically inherited combined hearing and sight loss.




## Classification

- **How:** Makes Grants To Individuals, Makes Grants To Organisations, Provides Advocacy/advice/information, Sponsors Or Undertakes Research, Acts As An Umbrella Or Resource Body
- **What:** General Charitable Purposes, The Advancement Of Health Or Saving Of Lives, Disability
- **Who:** Children/young People, Elderly/old People, People With Disabilities, Other Defined Groups, The General Public/mankind



## Geography

- Throughout England And Wales





## Trustees

| Name | Role | Appointed |
|---|---|---|
| **Christopher Rowe** | Chair | Nov. 15, 2024 |
| David Ashton BSe |  | May 18, 2023 |
| Graham John Dutton |  | Oct. 21, 2024 |
| Laura Norton |  | Feb. 3, 2023 |
| Mark Jordon |  | Feb. 3, 2023 |
| Melvyn Keen |  | July 23, 2024 |
| Pippa Jane Dutton |  | Oct. 21, 2024 |
| Sharon Rowe |  | Nov. 15, 2024 |




