{"country": "England & Wales", "charity_number": "1181244", "register_url": "https://register-of-charities.charitycommission.gov.uk/en/charity-search/?p_p_id=uk_gov_ccew_onereg_charitydetails_web_portlet_CharityDetailsPortlet&p_p_lifecycle=0&p_p_state=maximized&p_p_mode=view&_uk_gov_ccew_onereg_charitydetails_web_portlet_CharityDetailsPortlet_regId=1181244", "name": "BARDET-BIEDL SYNDROME UK (BBS UK)", "known_as": null, "other_names": [{"name": "BARDET-BIEDL SYNDROME UK", "name_type": "Working name"}, {"name": "BBS UK", "name_type": "Working name"}], "status": "Registered", "date_registered": "2018-12-18", "date_removed": null, "legal_form": "CIO", "area_of_benefit": null, "address": "43 BALTON WAY, HARWICH", "postcode": "CO12 4UP", "phone": "07591206680", "email": "admin@bbsuk.org.uk", "website": "www.bbsuk.org.uk", "lat": 51.929502, "lng": 1.252988, "activities": "BBS UK provides support, information and advocacy services.  It organises an annual family conference, a family activity weekend and social weekend for adults living with the syndrome.  The charity maintains a website and produces twice-yearly newsletters, an annual Conference Report, information leaflets and online resources.", "purposes": null, "what_charity_does": null, "charitable_objects": "THE OBJECTS OF THE CIO ARE:(A) TO PRESERVE AND PROTECT THE HEALTH AND PROMOTE THE WELFARE OF PERSONS DIAGNOSED WITH BARDET-BIEDL SYNDROME AND THEIR FAMILIES;(B) TO ADVANCE THE EDUCATION OF THE MEDICAL AND EDUCATIONAL PROFESSIONS AND THE GENERAL PUBLIC ON THE SUBJECT OF BARDET-BIEDL SYNDROME AND ITS IMPLICATIONS FOR THE FAMILY AND TO PROMOTE RESEARCH FOR THE PUBLIC BENEFIT IN ALL ASPECTS OF THAT SUBJECT AND TO PUBLISH THE USEFUL RESULTS.", "classifications": [{"type": "How", "code": 306, "description": "Provides Services"}, {"type": "How", "code": 307, "description": "Provides Advocacy/advice/information"}, {"type": "How", "code": 308, "description": "Sponsors Or Undertakes Research"}, {"type": "What", "code": 101, "description": "General Charitable Purposes"}, {"type": "What", "code": 103, "description": "The Advancement Of Health Or Saving Of Lives"}, {"type": "What", "code": 104, "description": "Disability"}, {"type": "Who", "code": 201, "description": "Children/young People"}, {"type": "Who", "code": 203, "description": "People With Disabilities"}], "areas_of_operation": [{"area_type": "Region", "area_description": "Throughout England And Wales"}], "latest_income": 395748, "latest_expenditure": 294676, "fin_period_start": "2024-04-01", "fin_period_end": "2025-03-31", "financial_years": [{"start": "2024-04-01", "end": "2025-03-31", "income": 395748, "expenditure": 294676, "assets": null, "funds": null, "num_employees": null, "accounts_url": null, "accounts_md_url": null}, {"start": "2023-04-01", "end": "2024-03-31", "income": 315787, "expenditure": 279165, "assets": null, "funds": null, "num_employees": null, "accounts_url": null, "accounts_md_url": null}, {"start": "2022-04-01", "end": "2023-03-31", "income": 242781, "expenditure": 250141, "assets": null, "funds": null, "num_employees": null, "accounts_url": null, "accounts_md_url": null}, {"start": "2021-01-01", "end": "2022-03-31", "income": 154564, "expenditure": 93539, "assets": null, "funds": null, "num_employees": null, "accounts_url": null, "accounts_md_url": null}, {"start": "2020-01-01", "end": "2020-12-31", "income": 53704, "expenditure": 55174, "assets": null, "funds": null, "num_employees": null, "accounts_url": null, "accounts_md_url": null}], "documents": [], "trustees": [{"name": "Bilaal Ali", "chair": false, "appointment": "2024-11-09"}, {"name": "Chetankumar Meshram", "chair": false, "appointment": "2023-09-24"}, {"name": "DIANNE JULIE HAND", "chair": false, "appointment": "2018-12-18"}, {"name": "Dr Shehla Mohammed", "chair": false, "appointment": "2021-07-13"}, {"name": "Emma Hughes", "chair": false, "appointment": "2024-11-09"}, {"name": "Gareth Owens", "chair": false, "appointment": "2023-09-24"}, {"name": "Liam Wilkie", "chair": false, "appointment": "2021-07-13"}, {"name": "Natasha Murray", "chair": false, "appointment": "2025-11-08"}, {"name": "RACHAEL  ANNE Zimbler", "chair": false, "appointment": "2018-12-18"}]}