Soft ones United Kingdom Tru8to8s of Soft Bonè8 UK Foundatlon Regl8tered Charlty No: 1181117 statoment of Accounts for the yoar 5th April 2021- 311t March 2022 Proparod by A Ockondon Tru81ee Soft Bones UK Foundatlon Trustees of Soft Bones UK Foundatlon Year endod 31It March 2022 Contents Charlty Partlculars Trustees Report Treasurers Report Rocolpt and Paymont Account y￿r ondod 31•t March 2022 Trust•es of Soft Bonos UK Foundation Year ended 31sI March 2022 CHARITY PARTICULARS Charlty rnglstratlon no: Tru8tge8 Meryl ChambBr8 Lee Corstorphln Susan Homan Sandra Ockenden Rina Skinnor Chalr & Covordlnator FinancelFundraislng Treasurer Technical Support Communications Correspondonce address (Chair) 5 Southflelds Portche8ter Faraham Hamp8hlre P016 9FG Prlnclpal Banker• Lloyd8 Bank Andovfjr BX1 1LT Trustoes of Soft Bones UK Foundation Year ended 31LIt March 2022 Truste88 Annual Re Constitution Soft Bones UK Foundation is conslituled by a conveyance document dated 161h September 2018 and is registered with the Charity Commission under Charity Number 1181117. anisation The charity is administered by an 818Ct8d board ofTrusleg5 who normally meet a minimum of three limes a year. The names of serving Iruslees and the other charity particulars are listed above. New or co-opted members are appointèd, inducted and givan delails of their responsibilities by the Trustees and Very little ¢onlinuous training is required. Alms and Ob'ectlVg8 The charity aims are to promote greater understanding of the causes, symptoms and Irealmenl of Hypophosphalasia IHPP); to raise public awareness of the symptoms, ne8ds and r81al8d medical Conditions of those living with HPP and lo assist people, their relatives and carers to gel in contact with each other and to exchange information and experiences. Achlevements ril 2021- M rch 2022 The HPP infomialion packs have b8en printed and are now in the process of being dglivered to all children's hospitals in the UK. We continue to increase our social media ft)olprint lo make information about HPP more accessible. Ilab We participated in the Rare Thinking Conference in November 2021 and continue lo work closely with Metabolic Support UK and alongside Softbones USA. Thanks to our Su orter8 We would like to thank ev8ryone who fundraised for Softbones UK. Donatlons and Grants Alexandra Ockenden Trustee of Soft Bone5 Foundation UK Dated Trustees of Soft 8ono8 UK Foundatlon Year endod 31Bt March 2022 Treasurorfs R8 ort In order to fulfil our dutles under the Charities Act 1993, 1 h8ve compil8d fi'nancial spraadshaets for the charity recordlng all expenditure and income, including patty cash payments, for this financial year ended 318t March 2022. All these payments have been checked against receipls in the bank account and recorded as Sncome or axpanditure to give a true and fair view under the Charities Act 1993. Susan Homan Treasurer IL Dated Trustogs of Soft Bonos UK Foundation Yèar onding 4 April 2022 Racèlpts and Payments Account 2021 Unrestricted to nearost 2022 Recèlpts Donations Fundraisinglevonts Grant 662 443 Total Recelpts 662 443 Paym•nts 2021 2022 Sundrle8 Google Suito Webslte Special Project- HPP Informatlon Pack {Productlon) Donation Travel Exponse6 30 41 106 14 1,217 1,695 478 Total Payments 3,089 Cash and bank balance at year 3,565 ond 558 Asset purcha8e8 Receipts Exp8ndltur• 662 3,089 443 558