# THE EHLERS-DANLOS SOCIETY

## Details

- **Country:** England & Wales
- **Charity number:** 1180984
- **Status:** Registered
- **Legal form:** Charitable company
- **Registered:** Dec. 4, 2018
- **Register:** https://register-of-charities.charitycommission.gov.uk/en/charity-search/?p_p_id=uk_gov_ccew_onereg_charitydetails_web_portlet_CharityDetailsPortlet&p_p_lifecycle=0&p_p_state=maximized&p_p_mode=view&_uk_gov_ccew_onereg_charitydetails_web_portlet_CharityDetailsPortlet_regId=1180984


## Contact

- **Address:** Office 7, 35-37 Ludgate Hill, London
- **Postcode:** EC4M 7JN
- **Phone:** 00000000
- **Email:** info@ehlers-danlos.com
- **Website:** https://www.ehlers-danlos.com



## Activities

**Objects:** 1. THE RELIEF OF SICKNESS:A) TO PROMOTE AND PROTECT THE PHYSICAL AND MENTAL HEALTH OF SUFFERERS OF EHLERS-DANLOS SYNDROMES (EDS) AND HYPERMOBILTY SPECTRUM DISORDERS (HSD) IN THE UK THROUGH THE PROVISION OF ADVOCACY, SUPPORT, EDUCATION, PRACTICAL ADVICE AND SOCIAL EVENTS.B) TO ADVANCE THE EDUCATION OF THE GENERAL PUBLIC IN ALL AREAS RELATING TO EHLERS-DANLOS SYNDROMES (EDS) AND HYPERMOBILTY SPECTRUM DISORDERS (HSD).2. EDUCATION:A) TO PROMOTE AND FINANCIALLY SUPPORT RESEARCH FOR THE PUBLIC BENEFIT ON THE SUBJECT OF EHLERS-DANLOS SYNDROMES (EDS) AND HYPERMOBILITY SPECTRUM DISORDERS (HSD) AND TO PUBLISH USEFUL RESULTS.

**Activities:** Working to provide learning conferences, collaborative research and education initiatives, awareness campaigns, advocacy, community-building, and care for EDS & HDS population.  A community of individuals, caregivers, healthcare professionals, and supporters, dedicated to saving and improving the lives of those affected by EDS, HSD and related conditions.




## Classification

- **How:** Provides Services, Provides Advocacy/advice/information, Sponsors Or Undertakes Research
- **What:** Education/training, Disability
- **Who:** People With Disabilities



## Areas of operation

- Throughout England And Wales



## Finances

| Period end | Income | Expenditure | Assets | Employees |
|---|---|---|---|---|
| April 30, 2025 | £1552526 | £1409241 | £200179 | 20 |
| April 30, 2024 | £1166070 | £1140663 | £56894 | 14 |
| April 30, 2023 | £1217571 | £1217063 | £31487 | 12 |
| April 30, 2022 | £598909 | £578647 | £30979 | 9 |
| April 30, 2021 | £429673 | £499547 | — | — |



## Trustees

- **Susan Hawkins** (Chair) — appointed April 27, 2020
- Aisling Green — appointed July 26, 2023
- Anoushe Husain — appointed Oct. 23, 2023
- Colin O'Donnell — appointed Dec. 9, 2025
- Dr Akilah Cadet — appointed Oct. 16, 2023
- Dr Melanie Jane MacLeod — appointed April 23, 2020
- Dr Woodrow Gandy — appointed Aug. 3, 2020
- Frances Anne Fitzgerald — appointed Oct. 26, 2023
- John B Zonarich — appointed March 16, 2021
- Robert Rubin — appointed March 23, 2021
- Sue Haskel — appointed April 23, 2020