VASCULITIS UK
TRUSTEES’ REPORT AND ACCOUNTS FOR THE YEAR ENDED 31 MARCH 2024
Registered Charity No. 1180473 Registered Company No. CE015479
VASCULITIS UK
REFERENCE AND ADMINISTRATIVE DETAILS
Charity name and number Vasculitis UK Registered charity number: 1180473 Registered company number: CE015479 Principal address Victoria Court 17-21 Ashford Road Maidstone Kent ME14 5DA Trustees The current trustees are as follows: Ms J Edwards Mr A Hart Mr G Hart Mrs D Ireland (Chair) Ms H Pollard Dr P Rutherford Ms D Shonfield Ms C Tolliday Ms M Wright Independent examiner Duncan Cochrane-Dyet BSc (Hons) BFP FCA
1
VASCULITIS UK
REPORT OF THE TRUSTEES
FOR THE YEAR ENDED 31 MARCH 2024
The trustees present their annual report and financial statements of the charity for the year ended 31 March 2024. The trustees have adopted the provisions of the Statement of Recommended Practice (SORP) "Accounting and Reporting by Charities (FRS 102) in preparing the annual report and financial Statements of the charity.
The financial statements have been prepared in accordance with the accounting policies set out in note 1 to the accounts and comply with the charitable company’s governing document, the Charities Act 2011 and Accounting and Reporting by Charities: Statement of Recommended Practice applicable in the UK and Republic of Ireland (effective 1 January 2019).
Structure, management and governance
Vasculitis UK was established as a Charitable Incorporated Organisation on 29 October 2019, and is a registered charity no. 1180473 and a registered charitable company no. CE015479.
Vasculitis UK is governed by its governing document as adopted on 29 October 2019. The constitution is available from Vasculitis UK on request. The charity is managed and administered by the trustees, and administered by other unpaid volunteers whom themselves have vasculitis and a paid administrator. There are no offices, so administrative running costs of the charity are kept at the minimum consistent with the requirements of good governance.
The trustees who served during the year and to date were:-
Ms J Edwards Mr C Harper (resigned) Mrs J Harper (resigned) Mr A Hart (appointed 27 October 2024) Mr G Hart (appointed 27 October 2024) Mrs D Ireland (Chair) Mrs S Mills (resigned) Ms H Pollard Dr P Rutherford Ms D Shonfield Ms C Smith (resigned) Ms C Tolliday Ms M Wright (appointed 12 June 2024)
New trustees are normally elected at the AGM. Trustees may be co-opted by the existing trustees and serve until the next AGM when the co-option needs to be confirmed by election. Trustees serve for a period of time after which they may put themselves forward for re-appointment. Officers are appointed annually by the trustees, normally from amongst themselves. New trustees may be sought by means of a dialogue with known interested parties including those from medical institutions. The induction process includes an initial meeting with the Chair and the other trustees, followed by a process by which they are familiarised with their duties, the grant making process, and the powers and responsibilities of the trustee board.
Objectives of Vasculitis UK and activities for the public benefit
The object of Vasculitis UK is the relief of patients from, and to aid research into the causes of, vasculitis by such means as are charitable. Furthermore, to support sufferers of vasculitis and their relatives and friends by means of a support group. The Trustees confirm that they have complied with the duty in section 4 of the Charities Act 2011 to have due regard to the public benefit guidance published by the Charity Commission in determining the activities undertaken by the Charity.
Vasculitis UK provides support for those suffering from vasculitis and their families by means of peer to peer and informal emotional support, through use of a telephone helpline, post and email; and additionally by means of an open access website, printed material, a regular newsletter and through local support groups. Vasculitis UK also supports academic and clinical research into both improved diagnosis and treatment of vasculitis and also into its causes.
Vasculitis is a collective term for a group of 21 defined rare inflammatory diseases which affect the blood vessels. Whilst there are also acute and localised forms, systemic vasculitis is a potentially life-threatening auto-immune disease which can affect any or multiple organs, causing disability or death. Until the introduction of new medication in the 1970s, some types of vasculitis were invariably fatal within weeks or months. These diseases can affect any age group or gender, although different forms of vasculitis do demonstrate a predisposition for a particular gender or age group.
2
VASCULITIS UK
REPORT OF THE TRUSTEES
FOR THE YEAR ENDED 31 MARCH 2024
Objectives of Vasculitis UK and activities for the public benefit (continued)
At present, vasculitis cannot be cured but it can usually be controlled by appropriate medication. However there is a tendency to relapse. The cause is not yet determined but evidence suggests a genetic predisposition coupled with an “environmental” trigger, such as an infection. Many of the symptoms of vasculitis are non-specific, so recognition and diagnosis is difficult and often delayed, resulting in irreversible damage to organs, such as kidneys, lungs, eyes, ears, digits & limbs, central and peripheral nervous system, heart and gastro-intestinal system. Thus, although the underlying disease may be controlled, the patient may be left with chronic disabilities.
As vasculitis is essentially an auto-immune disease, treatment is based on powerful immune-suppressing drugs. These in turn may have serious side-effects thus compounding the problems for the sufferer. For the majority of those with vasculitis, it is a lifetime disease which affects their working and personal life. Many need ongoing medical and community care and are dependent on social welfare benefits.
The aims and objectives of the charity, both short-term and long-term, are:
-
To support those who are suspected of having vasculitis, those newly diagnosed, and those living with vasculitis as a chronic disease, by informing and educating them about all aspects of their illness. The philosophy of Vasculitis UK is that those who are well informed about their disease are better able to manage their disease and cope with it.
-
To raise awareness of this group of rare diseases amongst the general populace and most especially healthcare professionals, with a view to improving recognition and early diagnosis.
-
To promote understanding of the nature, symptoms and treatment of vasculitic diseases among medical professionals.
-
To ensure accessibility of high quality care for those suffering from all types of vasculitis.
-
To enable sufferers from these rare diseases to contact others with a similar condition.
-
To support research into the causes of vasculitis and to seek improvements in diagnosis and treatment of the various types of vasculitis.
-
To work with other organisations and healthcare professionals to improve the recognition, diagnosis and treatment of vasculitis.
-
To support people with vasculitis in coping with daily life and to support their families and carers.
We achieve these aims and objectives as follows:
-
By means of printed literature, a telephone helpline manned by knowledgeable volunteers, email and postal support.
-
In the interest of ensuring access and support for all, regardless of means, we make no charge for membership or services - all income is derived from voluntary donations and voluntary fund-raising.
-
We provide support for those who are having difficulty in securing adequate diagnosis or treatment by advising on procedures for securing referrals for primary, second or even tertiary opinion. We are aided in this through our close connections with clinicians who work with vasculitis patients and have knowledge and experience of the disease.
-
We produce a high quality informative bi-annual newsletter which is delivered by post, free of charge, to those who choose to receive it.
-
We have a comprehensive informative website which is highly respected by professionals and highly acclaimed by users.
-
We provide two online vasculitis discussion groups, one “open” and one “closed” for the benefit of the increasing numbers who have internet access.
-
We encourage, the development of new local vasculitis support groups by offering them modest initial start- up financial and practical support. Although these are considered to be independent autonomous groups, all operating in different ways to suit local circumstances, we continue to foster and encourage them by offering practical support.
-
We provide advice on welfare benefits. This is assisted by the charity’s membership of an agency which in turn, for a modest subscription, provides Vasculitis UK with up to date general information and advice which we are permitted to share with members.
-
We have links with medical professional groups working in the field of vasculitis such as the UK & Ireland Vasculitis Study Group (UKIVAS) and the British Society of Rheumatologists.
-
We have connection with and representation on statutory bodies involved in healthcare, such as NHS England and NICE.
VASCULITIS UK
3
REPORT OF THE TRUSTEES
FOR THE YEAR ENDED 31 MARCH 2024
Objectives of Vasculitis UK and activities for the public benefit (continued)
-
We are affiliated with other related charities such as Genetic Alliance and Rare Disease UK. This gives us a stronger voice and allows us to make collaborative efforts in initiatives designed to improve care for those with rare diseases like vasculitis.
-
When funds permit, we offer financial support for vasculitis-related research projects and routinely offer practical support to researchers in a variety of ways. We are registered with the National Institute for Health Research as collaborative funders and where funding is given it is to projects that have already been peer reviewed and scrutinised by larger bodies such as the NIHR, Wellcome Trust or Arthritis UK.
-
We do occasionally offer small bursaries or travel bursaries to those involved in research or for general research that is not part of a specific research project, such as the vasculitis genetic biobank and the new Vasculitis Registry (or database) operated under the supervision of UKIVAS.
We do not offer financial support or grants to individuals or groups, other than as above.
Achievements and performance of Vasculitis UK, and plans for future years
Governance and trustees
The AGM was held by Zoom in October, again very well attended by all trustees and 45 members. The speakers were well received. Professor Dorian Haskard from Imperial College London reported on the Education Prize winners, where students from a variety of schools had to design an e-poster explaining aspects of vasculitis. Our second speaker was Dr Jo Robson from Bristol talking on Steroids and their effects on us.
All our meetings are held this way.
One new coopted trustee was approved in October at the AGM. Two more were confirmed at the AGM.
We have changed our registered Office to Victoria Court 17-21 Ashford Road, Maidstone, ME14 5DA and a new business phone number 03003650070. This replaces a domestic address in Winster Derbyshire and their home phone number.
Our one employee has attended many meetings and conferences representing Vasculitis UK, across the country; including BSR, RCN, UKIVAS, EULAR and many more. This is raising our profile and the awareness of vasculitis. We are considering employing a second person to help with our increased activities.
Patient support
Our helpline continues to support vasculitis patients and their families. The questions are very varied, from support for the newly diagnosed (and steering them away from Google), to people just wanting to talk to a fellow vascy. We have even had people referred to us from Versus Arthritis. We signpost patients to vasculitis specialists and centres. There is a very active and supportive Facebook group, there is also a hobbies group which last year had a competition for the Christmas card. We produce the biannual magazine which goes to all members.
The Charity supports a number of autonomous local support groups.
Working with medical professionals
The trustees have attended many conferences and had stands (and spoken) at the BSR, RSN and UKIVAS events. It is all about raising awareness of a group of very rare diseases. We work with and partly fund RAIRDA and also UKIVAS. We are regularly invited to join Teams or Zoom calls with Imperial College, Nottingham University and others.
We are working with Imperial on a schools’ education prize where they will produce an e-poster about vasculitis.
Membership
Full membership is open, free to all aged over 18, both patients and family members. We ask that they complete a membership form, so that they complete the GDPR declaration. Members on the list receive the newsletter and are deemed full members. These are available on our website. Our website is open to all.
4
VASCULITIS UK
REPORT OF THE TRUSTEES
FOR THE YEAR ENDED 31 MARCH 2024
Research
The research grants delayed or given extensions because of Covid are beginning to complete. The call went out in 2024, and applications are currently with the SAB. Hopefully, three will be approved by the trustees. A new research policy was approved changing the emphasis to reflect more a vasculitis topic rather than academic grant. We have again been working closely with other charities especially in Covid antibody response. The MELODY study which we funded the initial research is being reported in the Lancet.
We do now undertake smaller grants outside of the SAB process where the Trustees feel they improve the lives of our members. One such was a “Guided Imagery” course. This was to help with fatigue and managing pain in a different way. The programme is now on our website.
Financial review
The results for the year to 31 March 2024 are set out on page 9.
The trustees use the key performance indicators detailed as follows to measure the activities of the charity.
Incoming resources for the year amounted to £226,253 (2023 - £239,961) primarily arising from donations. Donations showed a decrease of 2.7% vs the prior year, which had seen a very generous legacy of £31,375. Resources expended during the year totalled £220,944 (2023 - £189,233), as grants awarded were increased in the year to make mor complete use of the surplus. The net surplus for the year therefore was reduced to £5,309 (2023 - £51,273) resulting in accumulated funds at the year end of £858,607 (2023 - £853,298).
The base income for Vasculitis UK comes from voluntary donations by members and funeral donations in memory of a loved one, but fundraising activities undertaken by others in support of Vasculitis UK has now become the main source of income. Basic running costs of the trust are relatively low, the main administrative expense being that of printing and mailing the high quality Vasculitis UK Newsletter & Journal.
Risk management, and principal risks and uncertainties
The trustees review at least annually the major risks to which Vasculitis UK is exposed, and systems have been established to mitigate these risks. In reaching decisions the trustees continually bear in mind the major governing, operational and financial risks which the charity faces. For the year ended 31 March 2024, the principal risks specific to the charity are maintaining or increasing the charity’s income to enable it to continue to achieve its objects, properly controlling expenses, failure to assess and manage operational risk (including inadequate controls and procedures governing financial control) and failure to meet its regulatory and legal requirements.
Going concern
The trustees have considered the charity’s forecasts, taking into account the residual effects of the COVID-19 pandemic. The eventual impact of the pandemic on the charity has been minimal, and although the overall economy is expected to grow slowly, the charity has very low fixed costs and the activity resulting in expenditure can be managed appropriately in relation to the income and available resources. Consequently the trustees are confident that the charity will be able to continue to operate effectively, and have prepared the accounts on the going concern basis.
Reserves policy
The policy is decided by the trustees so that funds can be used in accordance with Vasculitis UK’s charitable objects, and reserves maintained at a reasonable level. The trustees consider that the unrestricted reserves of £858,607 (2023 - £853,298) at 31 March 2024 will be more than sufficient to cover the charity’s fixed costs for 2024/25.
Investment policy
The charity’s investments are limited to funds in the bank account and on deposit. The trustees approach the investment of any funds in a cautious manner with the intention of maximising the return to the charity whilst maintaining the value of the capital.
5
VASCULITIS UK
REPORT OF THE TRUSTEES
FOR THE YEAR ENDED 31 MARCH 2024
Key management personnel remuneration
The trustees consider the board of trustees as comprising the key management personnel of the charity in charge of directing and controlling the charity and running and operating the charity on a day-to-day basis. All trustees give of their time freely and no trustee remuneration was paid in the year. Details of trustee expenses and related party transactions are disclosed in note 10 to the accounts. Trustees are required to disclose all relevant interests and register them with the Chairman.
Trustees’ responsibilities
The trustees are responsible for preparing the Trustees’ Annual Report and the financial statements in accordance with applicable law and United Kingdom Accounting Standards (United Kingdom Generally Accepted Accounting Practice).
The law applicable to charities in England & Wales requires the trustees to prepare financial statements for each financial year which give a true and fair view of the state of affairs of the charity and of the incoming resources and application of resources of the charity for that year. In preparing these financial statements, the trustees are required to:
-
select suitable accounting policies and then apply them consistently;
-
observe the methods and principles in the Charities SORP 2015 (FRS 102);
-
make judgements and estimates that are reasonable and prudent;
-
state whether applicable accounting standards have been followed, subject to any material departures disclosed and explained in the financial statements; and
-
prepare the financial statements on the going concern basis unless it is inappropriate to presume that the charity will continue in operation.
The trustees are responsible for keeping proper accounting records that disclose with reasonable accuracy at any time the financial position of the charity and enable them to ensure that the financial statements comply with the Charities Act 2011, the Charity (Accounts and Reports) Regulations 2008 and the provisions of the trust deed. They are also responsible for safeguarding the assets of the charity and hence for taking reasonable steps for the prevention and detection of fraud and other irregularities.
The trustees are responsible for the maintenance and integrity of the charity and financial information included on the charity’s website. Legislation in the United Kingdom governing the preparation and dissemination of financial statements may differ from legislation in other jurisdictions.
This report was approved by the board of trustees on 23rd February 2024.
D IRELAND CHAIR
6
INDEPENDENT EXAMINER’S REPORT TO THE TRUSTEES OF
VASCULITIS UK
I report to the charity trustees on my examination of the accounts of the charity for the year ended 31 March 2024 which are set out on pages 8 to 15.
Responsibilities and basis of report
As the charity’s trustees you are responsible for the preparation of the accounts in accordance with the requirements of the Charities Act 2011 (‘the Act’).
I report in respect of my examination of the charity’s accounts carried out under section 145 of the Act and in carrying out my examination I have followed all the applicable Directions given by the Charity Commission under section 145(5)(b) of the Act.
Independent examiner's statement
I have completed my examination. I confirm that no material matters have come to my attention in connection with the examination giving me cause to believe that in any material respect:
-
accounting records were not kept in respect of the charity as required by section 130 of the Act; or
-
the accounts do not accord with those records; or
-
the accounts do not comply with the applicable requirements concerning the form and content of accounts set out in the Charities (Accounts and Reports) Regulations 2008 other than any requirement that the accounts give a ‘true and fair view’ which is not a matter considered as part of an independent examination.
I have no concerns and have come across no other matters in connection with the examination to which attention should be drawn in this report in order to enable a proper understanding of the accounts to be reached.
Duncan Cochrane-Dyet BSc (Hons) BFP FCA Independent Examiner Borough Green United Kingdom
21 February 2025
7
VASCULITIS UK
STATEMENT OF FINANCIAL ACTIVITIES
(INCORPORATING AN INCOME AND EXPENDITURE ACCOUNT)
FOR THE YEAR ENDED 31 MARCH 2024
| INCOME Donations Charitable activities Investment income - bank interest receivable Other income - income tax recoverable Total incoming resources EXPENDITURE Costs of raising funds: Raising funds Expenditure on charitable activities: Charitable activities Support costs Total resources expended Net income, and net movement in funds for the year RECONCILIATION OF FUNDS Unrestricted funds Balance at 1 April Unrestricted funds Balance at 31 March |
Notes 3 4 5 6 7 11 11 |
Unrestricted Funds 2024 218,028 50 8,175 - _ 226,253 _ 3,522 162,442 54,980 _ 220,944 _ 5,309 853,298 _ £858,607 _ __ |
Unrestricted Funds 2023 229,807 5 1,846 8,303 _ 239,961 _ 2,449 142,709 44,075 _ 189,233 _ 50,728 802,570 _ £853,298 _ __ |
|---|---|---|---|
The notes on pages 11 to 15 form part of these accounts.
8
VASCULITIS UK
BALANCE SHEET
AS AT 31 MARCH 2024
| FIXED ASSETS CURRENT ASSETS Debtors Cash at bank and in hand CREDITORS: AMOUNTS FALLING DUE WITHIN ONE YEAR NET ASSETS THE FUNDS OF THE CHARITY UNRESTRICTED FUNDS General Designated TOTAL FUNDS |
Notes 8 9 10 11 11 |
2024 2023 271 471 _ _ £271 £671 _ _ 5,371 1,668 852,964 851,159 _ _ £858,336 £852,827 _ _ - - _ _ £858,607 £853,298 _ _ _ _ 531,521 435,939 327,086 417,359 _ _ £858,607 £853,298 _ _ _ __ |
|---|---|---|
Approved by the trustees on 23rd February 2025 and signed on their behalf by:
D IRELAND CHAIR
The notes on pages 11 to 15 form part of these accounts.
9
VASCULITIS UK
STATEMENT OF CASH FLOWS
FOR THE YEAR ENDED 31 MARCH 2024
Cash flow statement Net cash flow from operating activities Management of investments Increase in cash NOTES TO THE CASH FLOW Adjustments to exclude non-cash items Net incoming resources Depreciation (Increase)/decrease in debtors Increase/(decrease) in creditors Net cash inflow from operating activities Reconciliation of net cash flow to movement in net cash funds Increase in cash in the year/year Net opening funds Net closing funds Changes in cash funds Balance b/fwd Short term deposits £737,153 Bank and cash £114,006 _ £851,159 _ ____ |
Unrestricted Unrestricted Funds Funds 2024 2023 1,805 49,854 - - _ _ £1,805 £49,854 _ _ _ _ 5,309 50,728 200 200 (3,704) (1,074) - - _ _ £1,805 £49,854 _ _ _ _ 1,805 49,854 851,159 801,305 _ _ £852,964 £851,159 _ _ _ _ Cash Non-cash Balance flow movements c/fwd (40,918) - £696,235 42,723 - £156,729 ___ £1,805 - £852,964 ___ ______ |
|---|---|
The notes on pages 11 to 15 form part of these accounts.
10
VASCULITIS UK
NOTES TO THE ACCOUNTS
31 MARCH 2024
1. ACCOUNTING POLICIES
(a) Basis of accounting
at cost or transaction value unless otherwise stated in the relevant note to these accounts. The financial statements have been prepared in accordance with the Statement of Recommended Practice: Accounting and Reporting by Charities preparing their accounts in accordance with the Financial Reporting Standard applicable in the UK and Republic of Ireland (FRS 102) (effective 1 January 2019) and the Financial Reporting Standard applicable in the United Kingdom and Republic of Ireland (FRS 102) and the Charities Act 2011.
The charity constitutes a public benefit entity as defined by FRS 102. The legal form is that of a Charitable Incorporated Organisation in the form of a charitable company limited by guarantee and registered with the Charity Commission. The registered address is shown on page 1. The nature of the charity’s operations and its principle activities are detailed in the Report of the Trustees.
The financial statements have been prepared on a going concern basis as the trustees believe that no material uncertainties exist. The trustees have considered the level of funds held and the expected level of income and expenditure for 12 months from authorising these financial statements, taking into account the residual impact of the COVID-19 pandemic. The budgeted income and expenditure is sufficient with the level of resources for the charity to be able to continue as a going concern.
The financial statements are presented in sterling, being the charity’s functional currency, rounded to the nearest £1.
(b) Incoming resources
Incoming resources are included in the Statement of Financial Activities (SOFA) when the charity becomes entitled to the income, the trustees are certain they will receive the resources, and the monetary value of the resources can be measured reliably.
Voluntary income received by way of donations and gifts is included in full in the Statement of Financial Activities when received. In the event that a donation is subject to conditions that require a level of performance before the charity is entitled to the funds, the income is deferred and not recognised until either those conditions are filly met, or the fulfilment of those conditions is wholly within the control of the charity and it is probable that those conditions will be fulfilled in the reporting year.
Legacy gifts are recognised on a case-by-case basis following the granting of probate when the administrator/executor for the estate has communicated in writing both the amount and the settlement date.
Sales of goods and other income is recognised when receivable as long as it is capable of financial measurement.
Amounts receivable under the Gift Aid Scheme are recognised on an accruals basis when a claim has been compiled and therefore the amount can be quantified on a reasonable and consistent basis.
Interest on funds held on deposit is included when receivable and the amount can be measured reliably by the charity; this is normally upon notification of the interest paid or payable by the bank.
Time donated by volunteers is not measured and quantified, as to do so would not be a sensible use of the charity’s resources.
(c) Resources expended
Resources expended are recognised in the year in which they are incurred. Resources expended are shown net of VAT where this is recoverable. All costs ate allocated between the expenditure categories of the Statement of Financial Activities on a basis designed to reflect the use of the resource. Where costs relate to a particular activity these are allocated directly, otherwise costs are apportioned on an appropriate basis.
11
VASCULITIS UK
NOTES TO THE ACCOUNTS
31 MARCH 2024
(c) Resources expended (continued)
Charitable expenditure comprises those costs incurred by the charity in the delivery of its activities and services for its members. It includes both costs that can be allocated directly to such activities and those costs of an indirect nature necessary to support them.
Governance costs include those costs associated with meeting the constitutional and statutory requirements of the charity and include the independent examination fees and costs linked to the strategic management of the charity.
(d) Grants payable
Grants payable are payments made to third parties in the furtherance of the charity’s objects. Grants are usually recognised when the recipient is notified, and the trustees deem that therefore an obligation exists to pay the grants.
(e) Realised gains and losses
All gains and losses are taken to the Statement of Financial Activities as they arise.
(f) Debtors and creditors
Debtors and creditors with no stated interest rate and receivable or payable within one year are recorded at transaction price. Any losses arising from impairment are recognised in expenditure.
(f) Tangible fixed assets
Tangible fixed assets are initially recognised at cost, including cost of bringing them into their intended working condition. Thereafter they are stated at cost less accumulated depreciation and any accumulated impairment losses. Depreciation is charged so as to allocate the cost of tangible fixed assets less their residual value over their estimated useful lives using the straight-line method. Depreciation is provided at the following annual rates:
Computer equipment – 20%
- (g) Funds
All funds are currently unrestricted and comprise net incoming resources for the objects of the charity without further specified purpose. Designated funds represent those identified by the trustees for the award of grants. All other funds are available as general funds to be applied at the discretion of the trustees.
(g) Judgements and key sources of estimation uncertainty
No judgements and assumptions have been made in the process of preparing the financial statements that might have a significant effect on amounts recognised in the financial statements, except for those disclosed in note 1.
2. TAXATION
The charity is an exempt charity within the meaning of schedule 3 of the Charities Act 2011 and is considered to pass the tests set out in Paragraph 1 Schedule 6 Finance Act 2010 and therefore it meets the definition of a charitable company for UK corporation tax purposes.
12
VASCULITIS UK
NOTES TO THE ACCOUNTS
31 MARCH 2024
3. DONATIONS
| 2024 |
2023 | ||
|---|---|---|---|
| Donations via charity accounts | 35,791 | 32,127 | |
| Donations via Justgiving | 74,064 | 64,349 | |
| Fundraising – other donations | 6,625 | 20 | |
| General – gift aid donations | 5,700 | 60,358 | |
| General – other donations | 94,283 | 40,727 | |
| Legacies | 319 | 31,375 | |
| Other miscellaneous receipts | 1,246 | 851 | |
| __ | __ | ||
| £218,028 __ |
£229,807 __ |
||
| __ | __ | ||
| 4. | CHARITABLE ACTIVITIES | ||
| 2024 | 2023 | ||
| Other sales | 50 | 5 __ |
|
| __ | |||
| £50 | £5 | ||
| __ | __ | ||
| __ | __ | ||
| 5. | EXPENDITURE ON RAISING FUNDS | ||
| 2024 | 2023 | ||
| Shop purchases | 151 | 281 | |
| Fundraising | 3,372 | 2,168 __ |
|
| __ | |||
| £3,522 __ |
£2,449 __ |
||
| __ | __ | ||
| 6. | EXPENDITURE ON CHARITABLE ACTIVITIES | ||
| 2024 | 2023 | ||
| Research bursary | - | - | |
| Research grants | 158,242 | 135,659 | |
| Training course grants | - | - | |
| Conferences | 4,200 | 7,050 __ |
|
| __ | |||
| £162,442 _ _ |
£142,709 _ _ |
All research grants in 2024 and 2023 were made to institutions (universities and colleges), and none to private individuals.
13
VASCULITIS UK
NOTES TO THE ACCOUNTS
31 MARCH 2024
7. OTHER COSTS
| OTHER COSTS | ||
|---|---|---|
| 2024 | 2023 | |
| Support costs: | ||
| Administration | 7,376 | 5,478 |
| Advertising and marketing | 3,278 | 2,222 |
| Accountancy | 157 | 119 |
| Bank fees | 93 | 57 |
| Depreciation | 200 | 200 |
| General expenses | 1,043 | 1,310 |
| Insurance | 454 | 454 |
| IT software & consumables | 228 | 261 |
| Printing & postage | 7,276 | 6,231 |
| Staff payroll costs | 17,256 | 12,516 |
| Staff expenses | - | 1,674 |
| Subscriptions | 11,217 | 9,342 |
| Support group expenditure | 963 | - |
| Telephone and internet | 158 | 163 |
| Travel – international | 1,342 | - |
| Website hosting/maintenance | 2,250 | 3,856 |
| Governance costs: | ||
| AGM expenses | 97 | - |
| Trustees’ expenses (note 12) | 1,593 | - |
| Legal expenses | - | 192 |
| __ | __ | |
| £54,980 _ _ |
£44,075 _ _ |
8. TANGIBLE FIXED ASSETS
| COST At 1 April Additions Total DEPRECIATION At 1 April Charge in the year/year Accumulated depreciation NET BOOK VALUE At 1 April At 31 March |
Computer equipment Total 1,000 1,000 - - _ _ £1,000 £1,000 _ _ 529 329 200 200 _ _ £729 £529 _ _ £471 £671 _ _ _ _ £271 £471 _ _ _ _ |
Total |
|---|---|---|
14
VASCULITIS UK
NOTES TO THE ACCOUNTS
31 MARCH 2024
9. DEBTORS
| DEBTORS | ||
|---|---|---|
| 2024 | 2023 | |
| Donations receivable | 2,909 | 1,228 |
| Taxation due back to the charity | 2,462 | 440 |
| Amounts due by refund from the bank | - | - |
| __ | __ | |
| £5,371 _ _ |
£1,668 _ _ |
10. CREDITORS: AMOUNTS FALLING DUE WITHIN ONE YEAR
| Other creditors _ _ ____ |
2024 - _ £- _ _ _ |
2023 |
|---|---|---|
| - _ £- _ ____ |
- UNRESTRICTED FUNDS
| Balance b/fwd Unrestricted general fund £435,939 Unrestricted designated fund £417,359 _ Total unrestricted funds £853,298 _ |
Incoming Resources resources expended 226,253 (62,702) - (158,242) __ £226,253 £(220,944) ___ ______ |
Transfers Balance c/fwd (67,969) £531,521 67,969 £327,086 __ - £858,607 ___ __ |
|---|---|---|
General unrestricted funds are available to be applied at the discretion of the trustees.
Designated funds represent those amounts set aside by the trustees for the payment of approved and therefore committed research and similar grants and bursaries.
12. REMUNERATION OF KEY MANAGEMENT PERSONNEL AND RELATED PARTY TRANSACTIONS
The trustees consider the board of trustees as comprising the key management personnel of the charity in charge of directing and controlling the charity and running and operating the charity on a day-to-day basis. All trustees give of their time freely and no trustee remuneration was paid in the year (2023 - £nil).
Trustees are required to disclose all relevant interests and register them with the Chair. Expenses were reimbursed to trustees totalling £1,593 (2023 - £nil).
There were no other transactions with related parties.
15