# NYSTAGMUS NETWORK

## Details

- **Country:** England &amp; Wales
- **Charity number:** 1180450
- **Status:** Registered
- **Legal form:** CIO
- **Registered:** Oct. 29, 2018
- **Register:** https://register-of-charities.charitycommission.gov.uk/en/charity-search/?p_p_id=uk_gov_ccew_onereg_charitydetails_web_portlet_CharityDetailsPortlet&amp;p_p_lifecycle=0&amp;p_p_state=maximized&amp;p_p_mode=view&amp;_uk_gov_ccew_onereg_charitydetails_web_portlet_CharityDetailsPortlet_regId=1180450


## Contact

- **Address:** 6 Lancaster Gardens, KINGSTON UPON THAMES, Surrey
- **Postcode:** KT2 5NL
- **Phone:** 01427 718093
- **Email:** info@nystagmusnet.org
- **Website:** www.nystagmusnetwork.org



## Activities

**Objects:** 1) TO ADVANCE THE EDUCATION OF THE PUBLIC IN AND TO PROMOTE RESEARCH INTO THE CONDITION KNOWN AS NYSTAGMUS AND TO PUBLISH THE USEFUL RESULTS OF ANY SUCH RESEARCH.2) FOR THE RELIEF OF SICKNESS OF NYSTAGMUS SUFFERERS AND THEIR FAMILIES.

**Activities:** The Nystagmus Network provides information and support to people affected by nystagmus, raises awareness of this complex condition, and funds research.




## Classification

- **How:** Provides Services, Provides Advocacy/advice/information, Sponsors Or Undertakes Research
- **What:** Disability
- **Who:** People With Disabilities



## Geography

- Throughout England And Wales





## Trustees

| Name | Role | Appointed |
|---|---|---|
| Andrew Charles McFarlane |  | April 28, 2023 |
| Anthony Blackman |  | Dec. 13, 2025 |
| David John Parfett |  | Aug. 22, 2025 |
| Dr Harshal Kubavat |  | Nov. 19, 2021 |
| Dr John Symeon Vekinis |  | June 9, 2021 |
| Hannah Donnelly |  | Aug. 1, 2024 |
| KATHRYN HEATHER SWANSTON |  | Nov. 25, 2020 |
| Karen Ann Chu |  | Nov. 25, 2020 |
| Mari McLellan |  | Feb. 17, 2026 |
| Nigel Antony Brice |  | June 1, 2026 |
| Oliver James Coburn |  | June 1, 2026 |
| PETER JAMES GREENWOOD |  | Oct. 29, 2018 |
| RICHARD GELLER |  | Feb. 17, 2026 |
| VICKY PITMAN |  | Oct. 29, 2018 |
| VIVIEN MARY JONES |  | Oct. 29, 2018 |




