# NYSTAGMUS NETWORK

## Details

- **Country:** England & Wales
- **Charity number:** 1180450
- **Status:** Registered
- **Legal form:** CIO
- **Registered:** Oct. 29, 2018
- **Register:** https://register-of-charities.charitycommission.gov.uk/en/charity-search/?p_p_id=uk_gov_ccew_onereg_charitydetails_web_portlet_CharityDetailsPortlet&p_p_lifecycle=0&p_p_state=maximized&p_p_mode=view&_uk_gov_ccew_onereg_charitydetails_web_portlet_CharityDetailsPortlet_regId=1180450


## Contact

- **Address:** 6 Lancaster Gardens, KINGSTON UPON THAMES, Surrey
- **Postcode:** KT2 5NL
- **Phone:** 01427718093
- **Email:** info@nystagmusnet.org
- **Website:** www.nystagmusnetwork.org



## Activities

**Objects:** 1) TO ADVANCE THE EDUCATION OF THE PUBLIC IN AND TO PROMOTE RESEARCH INTO THE CONDITION KNOWN AS NYSTAGMUS AND TO PUBLISH THE USEFUL RESULTS OF ANY SUCH RESEARCH.2) FOR THE RELIEF OF SICKNESS OF NYSTAGMUS SUFFERERS AND THEIR FAMILIES.

**Activities:** The Nystagmus Network provides information and support to people affected by nystagmus, raises awareness of this complex condition, and funds research.




## Classification

- **How:** Provides Services, Provides Advocacy/advice/information, Sponsors Or Undertakes Research
- **What:** Disability
- **Who:** People With Disabilities



## Areas of operation

- Throughout England And Wales



## Finances

| Period end | Income | Expenditure | Assets | Employees |
|---|---|---|---|---|
| Dec. 31, 2025 | £160052 | £108595 | — | — |
| Dec. 31, 2024 | £97419 | £116074 | — | — |
| Dec. 31, 2023 | £122841 | £68632 | — | — |
| Dec. 31, 2022 | £94707 | £95927 | — | — |
| Dec. 31, 2021 | £88702 | £99688 | — | — |



## Trustees

- Andrew Charles McFarlane — appointed April 28, 2023
- Anthony Blackman — appointed Dec. 13, 2025
- David John Parfett — appointed Aug. 22, 2025
- Dr Harshal Kubavat — appointed Nov. 19, 2021
- Dr John Symeon Vekinis — appointed June 9, 2021
- Hannah Donnelly — appointed Aug. 1, 2024
- KATHRYN HEATHER SWANSTON — appointed Nov. 25, 2020
- Karen Ann Chu — appointed Nov. 25, 2020
- Mari McLellan — appointed Feb. 17, 2026
- PETER JAMES GREENWOOD — appointed Oct. 29, 2018
- RICHARD GELLER — appointed Feb. 17, 2026
- VICKY PITMAN — appointed Oct. 29, 2018
- VIVIEN MARY JONES — appointed Oct. 29, 2018