# MANCHESTER  TEACHING AND RESEARCH FOR RARE DISEASE GROUP    ( MANTRRA)

## Details

- **Country:** England & Wales
- **Charity number:** 1180101
- **Status:** Registered
- **Legal form:** CIO
- **Registered:** Sept. 27, 2018
- **Register:** https://register-of-charities.charitycommission.gov.uk/en/charity-search/?p_p_id=uk_gov_ccew_onereg_charitydetails_web_portlet_CharityDetailsPortlet&p_p_lifecycle=0&p_p_state=maximized&p_p_mode=view&_uk_gov_ccew_onereg_charitydetails_web_portlet_CharityDetailsPortlet_regId=1180101


## Contact

- **Address:** Manc. Centre for Genomic Medicine, St Mary's Hospital, Oxford Road, Manchester
- **Postcode:** M13 9WL
- **Phone:** 01617010980
- **Email:** Siddharth.Banka@mft.nhs.uk



## Activities

**Objects:** THE OBJECT OF THE CIO SHALL BE TO ADVANCE AND PROMOTE THE SCIENCE AND MEDICAL PRACTICE OF RARE DISEASE GENOMIC MEDICINE FOR THE PUBLIC BENEFIT BY:- PROMOTING EDUCATION IN RARE GENETIC DISEASES , SUPPORTING THOSE WHO HAVE AN INTEREST IN THIS AREA SO THAT THEY MAY BE AIDED IN THEIR JOINT ENDEAVOURS TO DIAGNOSE, UNDERSTAND, PREVENT, ALLEVIATE AND CURE CONGENITAL MALFORMATIONS AND CONDITIONS WITH A GENETIC AETIOLOGY; - SUPPORTING AN INTERNATIONAL RARE DISEASE MEETING AT LEAST EVERY TWO YEARS;- SUPPORT TRAINING IN THE FIELD OF RARE DISEASES THROUGH BURSARIES AND SCHOLARSHIPS- CARRY OUT RESEARCH AND PRODUCE AND DISSEMINATE REPORTS, STATEMENTS, AND RESEARCH FINDINGS

**Activities:** The object of MANTRRA is to advance and promote the science and medical practice of Rare Disease Genomic Medicine.  It will further education who in Rare Genetic Diseases , supporting those who have an interest in this area so that they may be aided in their joint endeavours to diagnose, understand, prevent, alleviate and cure congenital malformations and conditions.




## Classification

- **How:** Makes Grants To Individuals, Provides Advocacy/advice/information, Sponsors Or Undertakes Research
- **What:** The Advancement Of Health Or Saving Of Lives
- **Who:** Children/young People, Elderly/old People, People With Disabilities, Other Defined Groups, The General Public/mankind



## Areas of operation

- Throughout England And Wales



## Finances

| Period end | Income | Expenditure | Assets | Employees |
|---|---|---|---|---|
| April 1, 2025 | — | — | — | — |
| April 1, 2024 | £0 | £882 | — | — |
| April 1, 2023 | £0 | £312 | — | — |
| April 1, 2022 | £3550 | £0 | — | — |
| April 1, 2021 | £7000 | £0 | — | — |
| April 1, 2020 | £16384 | £9436 | — | — |



## Trustees

- Dr Jill Clayton-Smith — appointed Jan. 1, 2018
- Dr SIDDHARTH MANISH BANKA — appointed Jan. 1, 2018
- SOFIA DOUZGOU HOUGE — appointed Jan. 1, 2018