## **Addison’s Disease What We Do Self-Help Group** # **ANNUAL REPORT 2025 Trustees Annual Report & Accounts for the Year ended 31 December 2025** www.addisonsdisease.org.uk Charity no. 1179825 **Contents** ## **What We Do** |Who are we?|01| |---|---| |**ANNUAL**
Achievements & Performance
Our Impact in 2025|03
04| |**REPORT**
Our Role
Our Membership
Support to suit everyone|05
12
13| |Progress against Key Strategic Goals|14| |**2025**
Collaborations & Associations
Volunteers
Fundraising|15
16
17| |Governance & Structure|20| |Statutory Information|21| |Trustee Board|22| |Statement of Trustee Responsibilities|23| |Risk Management|24| |Our Team|25| |2026 Wish List|26| |Financial Review|27| |Treasurer’s Finance Report|28| |Independent Examiners Report|30| |Statement of Financial Activities|31| |Balance Sheet|32| |Notes to the accounts|33| **Who are we? What We Do** **The Addison’s Self Help Group (ADSHG) is the leading UK charity specialising in supporting people with all forms of adrenal insufficiency, including Addison’s disease, their families and the healthcare professionals working with them.** Addison's disease (Primary adrenal insufficiency) is a rare endocrine condition where the adrenal glands (acorn sized glands that sit on top of the kidneys) stop functioning, no longer producing life-essential steroid hormones, most notably cortisol. It affects around 1:10,000 in the UK, of different ages and genders. There are also two other types of adrenal insufficiency: - Secondary adrenal insufficiency, caused by a problem with the pituitary gland in the brain, and Tertiary adrenal insufficiency which can occur in people who have taken long-term steroid medication for conditions such as asthma, and who stop their medication suddenly. All forms of adrenal insufficiency affect production of steroid hormones by the adrenal gland, notably cortisol. ## **TREATMENT & MANAGEMENT** Adrenal insufficiency is treated by the time-critical, daily replacement of steroid hormones in medication form (glucocorticoids). Patients are steroid-dependent. ADSHG - ANNUAL REPORT 2025 01 ## **What We Do** ## **ADRENAL CRISIS** An inherent complication of all types of adrenal insufficiency is the risk of experiencing a life-threatening adrenal crisis, triggered by low cortisol levels. This occurs when the body is under physiological or extreme psychological stress and its need for cortisol outstrips replacement medication doses. It requires an increase in daily medication doses (Sick Day Rules) to provide additional cortisol. Without sufficient steroid-hormonereplacement medication, all patients with adrenal insufficiency are at risk of a lifethreatening adrenal crisis, requiring urgent administration of an emergency hydrocortisone injection, followed by medical monitoring and IV fluids. Symptoms of adrenal crisis include extreme weakness, a significant drop in blood pressure, drowsiness or mental confusion. Treatment is time-critical but there are many obstacles to successfully drawing up and self-administering an emergency injection whilst acutely unwell. Deterioration in an adrenal crisis can be very fast and can affect even experienced patients. ## **Each year, typically 8% of people with Addison's disease will have an adrenal crisis.** ## **1 in 200 adrenal crises are fatal.** 02 ADSHG - ANNUAL REPORT 2025 ACHIEVEMENTS PERFORMANCE 03 ADSHG - ANNUAL REPORT 2025 ## Our impact in 2025 **Our Impact in 2025!** ADDISON’S DISEASE SELF-HELP GROUP Striving for a world where Addison’s disease and adrenal insufficiency are recognised early and managed effectively so that anyone affected can live confidently and thrive. **13** AWARENESS STANDS **1253** PARAMEDICS, EMTS & STUDENTS TRAINED IN ADRENAL CRISIS **937** MANAGEMENT EMERGENCY INJECTION KITS **930** SOLD REGISTRATIONS FOR ADSHG MEMBER EVENTS & WEBINARS SOCIAL MEETINGS & ADDISON’S AFTERNOON TEAS **13** **3** CONFERENCES ATTENDED **190** GIVEN EMERGENCY INJECTION TRAINING **2489** **15** RESEARCH PROJECTS SUPPORTED MEMBERS SUPPORTED **----- Start of picture text -----**
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ADSHG - ANNUAL REPORT 2025 **Our Role** ## **We had 3 main strands to our work in 2025: Support, Connect & Advance** ## **SUPPORT** _**Providing resources and building a community that helps people self manage their condition and improve their quality of life.**_ ## **Publications** Building on work in 2024, we have continued to prioritise updating our range of printed information booklets, aimed at both patient and healthcare professional audiences, to provide clinically up to date and reviewed information on topics such as: - What are Addison’s disease and adrenal insufficiency? Notes for Primary Care and A&E nurses - Notes for Ward Nurses - Managing Your Addison’s disease or adrenal - insufficiency - When an employee has Addison’s disease or adrenal insufficiency - Diagnosis & Care of a patient with adrenal insufficiency (for GPs) ## **Shop** (https://d42c94e0.myshopify.com) Our online shop has continued to go from strength to strength in 2025. Over 1096 orders were placed with our top products over the course of the year being: - NHS Steroid Emergency cards - Emergency Injection Instruction Leaflets - Medic alert keyrings - ADSHG Steroid Emergency Cards - Small Emergency Injection Kits ADSHG - ANNUAL REPORT 2025 05 ## **Member community** All members are given an account to join our online, member-only community. The wealth of information shared in our forums is testament to the generosity of our community, to use their experiences to help others. 2025 has seen a focus on how to simplify using the online community for first-time users. **A person facing this life-changing diagnosis needs someone who's got your back, and up to date reliable information which is clinically verified. That's the ADSHG.** Thank you to our volunteer ‘Forum Buddies’ for their support in keeping the online community informed, safe and accessible. ## **Member emails, newsletters & magazines** We are never short of information to share with our members; from news and updates on our products and services and policy changes, to inspirational personal stories and opportunities to get involved in research. Our monthly member emails and bi-annual newsletters and magazines keep our members aware and prepared. 06 ADSHG - ANNUAL REPORT 2025 ## **What We Do** ## **Website & Social Media** It is important to us that clinically accurate information is freely available to anyone affected by adrenal insufficiency. Our website is kept up to date with information to help support people from ‘newly diagnosed’ to ‘expert patient’. 218,000 users benefitted from our webpages during 2025, with the US, UK and Canada being our most popular browsers. Our Sick Day Rules page continues to draw the most views (over 46,000 in 2025) leading us to develop a Sick Day Rules leaflet to launch in 2026 to help address the questions and uncertainty in the community. **I’m so grateful for all the info and support from ADSHG because my GP knows very little about Addisons and was not convinced until my cortisol results came back. Am still waiting for my first endocrinologist appointment so ADSHG has** Our Forum Buddies **been literally a life saver!** Social media helps us send information beyond our membership, to an engaged audience of over 37,000 followers across all platforms, all keen to learn and support each other. We keep our posts varied; to educate, to engage, to support and to inspire. **----- Start of picture text -----**
Young People Webinar
Living with Addison's disease
& adrenal insufficiency
Ages 13 - 18 SIGN UP
Tuesday 18 Nov: 7pm TODAY.FUND THE
FUTURE.
www.addisonsdisease.org.uk/fundraising
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ADSHG - ANNUAL REPORT 2025 07 ## **CONNECT** _**Making it possible for the voice of people with adrenal insufficiency, including Addison’s disease, to influence, inform & improve the way the healthcare service delivers their care**_ ## **Working with, and supporting, healthcare professionals** This year has seen the launch of our quarterly e-newsletter for healthcare professionals (HCPs): **ADSHG Connection** . By engaging with HCPs at endocrinology medical conferences (British Endocrinology Society: Mar 25, Clinical Update: Nov 25 and British Society for Paediatric Endocrinology & Diabetes: Nov 25), we have attracted over 500 sign ups, allowing us to directly communicate the needs of our adrenal insufficiency community. As hoped, our **Addison’s Disease Day campaign** in 2025 saw us top 2024's engagement with 13 awareness stands in hospitals across the UK. We are so grateful to the endocrine teams that helped share their expertise with colleagues and the public alike. Shrewsbury & Telford NHS Trust Royal United Hospitals Bath NHS Foundation Trust ADSHG - ANNUAL REPORT 2025 08 ## **Awareness Training: 937 Paramedics, EMTs & students trained** We are so grateful to the support of the **Association of Ambulance Chief** **Executives** (AACE) for helping signpost Ambulance trusts across the UK to our free, online Adrenal Crisis Management Awareness Training sessions. Our clinically reviewed content, presented by people with lived experience, supports and brings to life, the Joint Royal Colleges Ambulance Liaison Committee (JRCALC) guidelines for adrenal insufficiency. Feedback from attendees at our sessions, which are led by ADSHG staff Philippa and Chloe, as well as volunteers Alison and Jackie, have been beyond excellent, with an average rating of 9.6/10 from 323 respondents. **"Very good course. Very informative slides. Really good having people who have the condition taking the course, this offers invaluable insight. "** **I loved the course content and found it extremely helpful as you all covered lots of information, from symptoms, treatments, linking it to JRCALC guidelines, and how to spot someone in an adrenal crisis. I now feel much more confident that I will be able to identify it on the road and know how to treat a patient.** **"Very informative with personal stories. Its easy to read about signs and symptoms but having someone describe their own reactions and how they were diagnosed was really helpful"** 09 ADSHG - ANNUAL REPORT 2025 ## **ADVANCE** _**Funding, contributing to, and promoting the development of new innovations and research to improve quality of life for all those with adrenal insufficiency.**_ We continue to be actively involved in looking to advance the understanding and treatment of Addison’s disease (AD) and adrenal insufficiency through: - Funding and facilitating research (seed-funding) - Disseminating information and best practice - Raising awareness of AD/adrenal insufficiency across the healthcare community - Providing training to GPs, paramedics and others critical to patient care and survival Informing and lobbying healthcare decision makers Below are just a sample of the projects we have supported through member engagement, data collection and direct funding. ADSHG - ANNUAL REPORT 2025 10 ## **The Real Story - Improving Adrenal Crisis Management** As we planned last year, in 2025 we focused on adrenal crisis management and where it is today, over 5 years on from Patient Safety initiatives such as the National Steroid Emergency Card, and over a year on from the launch of the NICE Guidelines for the Identification and Management of Adrenal Insufficiency. We named the project ‘The Real Story’. Our initial goal has been to bring together (virtually) experts and stakeholders from across the UK: researchers and clinicians, Patient Support Groups, and people with lived experience. By the end of 2025, we united a group of 30 people with an expertise or interest in adrenal crisis management in the UK, across clinical, patient, PSG and pharmaceutical industries as well as having MP interest. The group is picking up momentum in their achievements and in early 2026 the ADSHG, in collaboration with City St Georges, University of London, plan to launch a patient survey to collect detailed information on the patient experience of adrenal crisis. We look forward to giving a progress report in 2026. ADSHG - ANNUAL REPORT 2025 11 ## **Our Membership** **----- Start of picture text -----**
Number of Members
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Membership numbers have continued their slow but steady rise during 2025, with both digital and postal memberships paid memberships available (£33 and £35 respectively). We continue to offer up to 250 sponsored places to those who are unable to afford their subscription. **Belonging is strength.** _**Sponsor a Member Donor, 2025 Total of £2584 raised in campaign**_ ## **Type of Membership** The majority of our members like to receive our news and updates through their front door (postal members) ## **Gender** The majority of our members are female ## **Age** The largest age group of our members is 55 - 70 with only one third being outside of this range. ## **Member Benefits** Access to our online member forum - A member pack with a copy of all of our key leaflets - An invitation to our annual member events with access to expert speaker - Access to member only ‘Social Meetings’ when they are held regionally by volunteers - News updates and information via our monthly member emails and biannual magazine & newsletters - Shop discount codes - A member vote at our annual AGM 12 ADSHG - ANNUAL REPORT 2025 ## **Support to suit everyone** We strive to provide resources and support that everyone affected by Addison’s disease and adrenal insufficiency might need and look for. Here we share just some of the comments left on our social media to show how the charity can impact lives in different ways. 13 ADSHG - ANNUAL REPORT 2025 ## **Progress against key Strategic Goals** **----- Start of picture text -----**
Key Goals Progress / Status
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|**Key Goals**|**Progress / Status**| |---|---| ||| |Invest in and Improve website navigation &
usability|Website re-design project started Nov 2025.
Projected completion June 26| |Improve navigation & accesibility of
Community Online Forum|Forum updates completed and ‘How To’ guides in
development. Projected completion Q3 2026| |Expand staffing resource to support Social
Media|Social Media Assistant recruited (7hrs/week)| |Review & update all printed leaflets|In progress. All existing leaflets have been reviewed
post NICE Guidelines and re-designed with a focus on
readabilty and accessibility. New leaflets ongoing| |Promote direct interaction of members with
Healthcare professionals|Rolling and expanding programme of member
events, webinars and injection training events with
balance of online and in-person events, and
geographically varied venues (allowing as many
people to engage as possible).| |Grow Awareness of key audiences through
direct training and provision of training
resources|Paramedic Awareness Training ongoing, expanding
(900+ trained in 2025) and well received. Projects in
progress with Call Handlers and Carers/Care Homes.
Sign ups to the HCP newsletter promoted via
conferences.| |Ongong support of Healthcare Professionals,
and Education of Primary Care and A&E staff|Rolling programmes. Publication of updated GP
leaflet and collaboration with Pitutiary Foundation to
produce Adrenal Insufficiency Action Plan, both
particularly targeting GPs. Plan to attend RCGP
conference in 2026.| |High level Influence as: Developing advocacy
role as appropriate|Real Story project (adrenal crisis management)
launched in 2025 - ongoing. Planned advocacy
campaign around discontinuation of Hydrocortisone
Sodium Phosphate in 2026| ADSHG - ANNUAL REPORT 2025 14 Our Collaborations & Associations BMJ Learning beacon for rore diseases National Voices no ror• lovrney oloTre RARE DISEASEIIK European Society for Paediatric Endocrinology European Society OF Endocrinology raremlnds The • Pituitary Foundation NHS Mentsi Health for the Rare Disease Community jrcalc GENETIC ALLIANCE" England ASSOCIATION OF AMBULANCE CHIEF EXECUTIVES Specialised HealthcareAlliance LEE'S LIGHT XITAPO ADDISON'S DISEASEAWAREMESS Worfd ￿lIa￿e ol Pftuil•ry Ctyer¥Z•tK￿$ NICE National Institute for Health and Care Excellence International Adrenal Consortium The Royal College of Emergency Medicine •• Irish Endocrine Sociely Royal College of Physicians Society for Endocrinology CITY fvORTHEIPN IRELAND ST GEORGE'S RARE DISEASE PARTNERSHIP VNIVEK51TYC)F L(JNtKJN 15 ADSHG - ANNUAL REPORT 2025 ## **Volunteers** We are thrilled to welcome some new volunteers to our team in 2025: helping with proof reading, awareness stands and literature reviews. We have some obvious stand out volunteers whom, it is not exaggerating to say, are part of the very core of the charity, and we owe them a huge debt of gratitude. There are however, also so many people involved, in so many ways, that offer their time and their expertise to work with us to achieve the most we can for the Addison’s and adrenal insufficiency community. ## **So, to the...** - **Trustees** : for your loyalty, experience and strategic guidance - **Conference Stand Dynamos** : Alison, Noel and Jennifer, for your enthusiasm, engagement, patience and diligence - **Proof readers:** for your eye for detail and your kind feedback - **Article and blog writers** : for your interest, eloquency, and honesty - **Enquiries aka ‘Ask Alison’** : for your knowledge, empathy and dedication **Clinical Advisory Panel** : for your expertise, patience, and guidance - **Awareness Stand Organisers** : for your energy, passion and motivation **Project volunteers / Consultants** : for your advice and expertise - **Gratitude Team:** for your thoughtfulness and kindness - **Events Support team** : for your support, energy and drive - **Social Meeting hosts** : for your kindness and support of others Thank You! 16 ADSHG - ANNUAL REPORT 2025 ## **Fundraising** 2025 has been an incredible year for fundraising, with our community coming together in inspiring ways to raise both vital funds and awareness. Chloe, our Community Fundraising Manager, has proudly supported our fundraisers throughout the year and introduced several new and recurring fundraising campaigns, helping bring people together and make an even greater impact. ## **Steps for Addison’s Awareness Campaign Launch** In February, we launched the ‘Steps for Addison’s Awareness’ fundraising challenge. Participants took on a personalised step or distance goal throughout the month, symbolising the challenging journey faced by many people living with these rare conditions. Our team of 20 fundraisers raised over £7,000 for our charity across the month, culminating on Rare Disease Day (28 February). ## **The London Landmarks Half Marathon (LLHM)** In April, we had the privilege of supporting our nine fundraisers who ran in the LLHM. These incredible runners raced past iconic landmarks such as Big Ben, St Paul's Cathedral and the Tower of London, raising over an impressive £8,400. Chloe attended the race alongside an ADSHG team of staff and volunteers, creating a truly supportive atmosphere at our charity cheer station. ## **Addison's Afternoon Tea Campaign** 2025 was the second year of our ‘Addison’s Afternoon Tea’ campaign. Throughout May, eight tea parties were hosted by community members to raise awareness, funds and bring people with adrenal insufficiency together. Thanks to the dedication of our volunteers and hosts, these events were a huge success, raising an astounding £12,700. ADSHG - ANNUAL REPORT 2025 17 ## **Small Charity Week Campaign Launch** From 23-30 June, we participated in our first matched-funding campaign with the Big Give. Our target was to raise £2,500 from our community, matched by another £2,500 from the champion sponsor, Global’s Make Some Noise. However, thanks to the generosity of our community, we raised over £9,500 in total! The success of this campaign has truly inspired us and we hope to take part in another matched-funding campaign in 2026. ## **Sponsor a Member This September Campaign** In September, our 'Sponsor a Member This September' campaign invited donors to give £33 to fund a year’s membership for someone who is unable to afford the membership fee. The campaign was another great success, raising funds to sponsor 73 charity memberships. Each sponsored member will have full access to our digital membership, including forum access, a member pack and other exclusive member benefits. **As an existing member I fully appreciate the value of this organisation. Happy to be able to help someone else benefit from this amazing support & resources.** _**(Campaign Donor)**_ ## **Festive Fundraiser: Buy a Bauble Campaign** To wrap up an exciting year, we had our ‘Buy a Bauble’ campaign in December, where donors could add a virtual bauble to our Christmas tree to raise funds. The campaign raised an impressive £2,070, with 111 supporters participating. ## Thank You! This year, our incredible supporters organised everything from sponsored challenges and fundraising nights to bake sales and parties - each making a meaningful difference. We are deeply grateful to all our fundraisers and donors, including our corporate donors, legacy donors and those who have given in memory of someone special. Quite simply, none of our work would be possible without you all. Your generosity enables us to continue our vital work. Thank you for standing with us and we look forward to building on this success in 2026 and beyond. ADSHG - ANNUAL REPORT 2025 18 ## **Corporate supporters** In 2025, our charity has been fortunate to receive support from a wide range of corporate organisations. The generosity of these businesses has enabled us to continue our vital work for our community. Below, we are delighted to share a selection of the companies that have supported us this year: As a small charity, corporate support makes a significant difference. We rely on the generosity of both individuals and organisations to sustain and grow our work. Whether through donations, pro bono support, volunteering, matched giving or payroll giving, every contribution strengthens our impact. We would like to extend our sincere thanks to all our corporate supporters in 2025. Your input has been invaluable and we look forward to continuing our collaboration (and welcoming new supporters) in 2026. Together, we can make a difference. 19 ADSHG - ANNUAL REPORT 2025 GOVERNANCE STRUCTURE 20 ADSHG - ANNUAL REPORT 2025 ## **Statutory information** The Addison’s Disease Self-Help Group (ADSHG) is a Charitable Incorporated Organization (CIO) registered with the Charity Commission for England and Wales as charity number 1179825 and CIO number CE015063. The charity was founded by Deana Kenward MBE in 1984. She remains a Patron of the charity. Registered Office: ADSHG, 117 Kingsley Avenue, Rugby, CV21 4JZ Email: enquiries@addisons.org.uk Website: www.addisonsdisease.org.uk ## **Constitution** The charity is controlled by its governing document (constitution) which is available on our website. As stated, we exist to “promote the relief of persons with Addison’s disease, in particular by the provision of support, information and communication for such persons, their families and carers and by such charitable means as the trustees determine.” ## **Principal Bankers** : CAF Bank Ltd ## **Independent Examiner** : Andrew Churchill-Stone FCA DChA Mercer Lewin Ltd Chartered Accountants Botley Road, Oxford, OX2 OHP ## **Trustee Board:** The charity is governed by an elected body of trustees consisting of not more than twelve and not less than three members. Each trustee is elected for a three-year term at an Annual General Meeting (AGM), or may be co-opted by existing trustees between AGMs. Meeting in person or virtually, with additional subgroup or single-item agenda meetings convened where needed, the trustees provide direction to the charity’s executive team. ## www.addisonsdisease.org.uk Charity no. 1179825 21 ADSHG - ANNUAL REPORT 2025 ## **Trustee Report** As Chair of Trustees, I am happy to report we have a well balanced Trustee body, bringing not only a wide range of Trustees with lived experience of Addison's Disease, but also large and small scale business experience blended with the expertise of specialist medics who are world leading in their knowledge of adrenal insufficiency. During 2025 we were sorry to say goodbye to Phil Kaye who retired from his position for reasons of ill health. We welcomed new trustees, Tom Barnes, Benjamin Ducaseau and Ryan Richardson. New trustees are warmly welcomed, onboarded both in terms of the responsibilities of a trustee role, and a comprehensive introduction to the charity. I think the Trustee board and the Charity are in the best shape that I have seen the Charity in my seven years as a Trustee. ## **dom hargreaves** CHAIRMAN Christine Walters Stuart Pinkerton Robert McClements Dom Hargreaves Lisa Shepherd Katie Harris Martin Hendry Alessandro Prete Benjamin Ducaseau Ryan Richardson Tom Barnes 22 ADSHG - ANNUAL REPORT 2025 ## **Statement of Trustee Responsibilities** The charity trustees are responsible for preparing the Trustees’ Annual Report and the financial statements in accordance with applicable law and United Kingdom Accounting Standards (United Kingdom Generally Accepted Accounting Practice). The law applicable to charities in England and Wales requires the trustees to prepare financial statements for each financial year which give a true and fair view of the state of affairs of the charity and of the incoming resources and application of resources, of the charity for that period. In preparing the financial statements, the trustees are required to: - select suitable accounting policies and apply them consistently; - observe the methods and principles in the applicable Charities SORP; - make judgements and estimates that are reasonable and prudent; - state whether applicable accounting standards have been followed, subject to any material departures that must be disclosed and explained in the financial statements; and - prepare the financial statements on a going concern basis unless it is inappropriate to presume that the charity will continue in business. The trustees are responsible for keeping proper accounting records that disclose with reasonable accuracy at any time the financial position of the charity and to enable them to ensure that the financial statements comply with the Charities Act 2011, the applicable Charities (Accounts and Reports) Regulations 2008 and the provisions of the charity’s constitution. They are also responsible for safeguarding the assets of the charity and hence for taking reasonable steps for the prevention and detection of fraud and other irregularities. 23 ADSHG - ANNUAL REPORT 2025 ## **Risk Management** We continue to routinely monitor operational risks, financial risks, reputational risks, and legal risks such as data protection, regulatory, safeguarding and others. Major risks which the charity faces on a regular basis are reviewed regularly by trustees. We have internal controls, policies and procedures to provide reasonable assurances against material misstatement or loss. Other risks that are considered include, for example, cybersecurity and human resource risks. ## **Financial risk and controls** Financial risks we need to monitor, manage or mitigate against include funding shortfalls, inadequate reserves, investment losses, and fraud. The Treasurer approves all spending or refers to other trustees where decisions need full board approval. Payments require dual authorisation. Reserve funds are retained in fixed term deposit based (no-risk) accounts. The charity’s receipts and payments processes, book-keeping and annual statutory accounts are managed by contracted agencies. The charity maintains liability and indemnity insurances. ## **Clinical and scientific information qualit** y The ADSHG is supported by an independent clinical panel of endocrinologists with an interest in adrenal medicine, known as the Clinical Advisory Panel (CAP). We are indebted to our medical advisers for their pro bono support and advice. The current CAP members (in no particular order) are Professor John Wass, Dr Alessandro Prete, Professor Wiebke Arlt, Professor Will Drake, Dr Steve Kell, Professor Simon Pearce, Stuart Pinkerton, Dr Georgina Russell, Lisa Shepherd RN, Dr Francesca Swords, Sam Westall, Dr Prethivan Gopalakrishnan, Dr Sofia Llahana and Matthew Heppel. 24 ADSHG - ANNUAL REPORT 2025 **Our Team** In 2025 the day-to-day running of the charity was carried out by a hard working and passionate team. Led by Cathy Thompson, Director, who joined the charity in May 2024, the staffing team has grown to be able to achieve more of their goals, and grow their engagement with members, the wider adrenal insufficiency community, and the clinicians that support them. Each team member has a specialist skill set and experience in relation to their individual role, however there is inevitable cross over within a team of this size, and it is very much testament to the team pulling together, that they manage to achieve so much on limited resource. _2025 has been an exciting and packed year for the operational team: we have defined our roles a little, and as a result, become more confident in them. We have pushed forwards together to expand our aspirations, and clarity our goals for the year, and are thrilled that we have been able to use our limited resources with such impact._ _Although all of our team works remotely and nearly all of our team work part-time, we have a strong connection and a shared passion for working as hard as we can for the adrenal insufficiency community._ **----- Start of picture text -----**
Alison Mainwaring Philippa Sharman
Enquiries Comms & Health
Liaison Mgr
Sophie Dziwinski
Trusts & Grants
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Chloe Mezzetti
Fundraising
Manager
Charlotte Owst
Social Media Assistant
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Cathy Thompson
Director
Thea Blunt
Ops & Member Support
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25 ADSHG - ANNUAL REPORT 2025 ## **Our 2026 Wish List** - To further develop our Adrenal Crisis Management training to Paramedics and Paramedic Students. - To develop a website resource that is easy to navigate, clinically accurate and which helps people feel aware and prepared - To offer members access to online webinars on a variety of subjects from Sick Day Rules to emotional and psychological well-being - To continue to bring people together to drive improvements in effective Adrenal Crisis Management, improving patient safety. - To increase the number of face-to-face member events and access to expert advice from healthcare professionals presenting - To have more video and animated assets to engage people on social media - To support improvements in therapeutic treatment programs for people with adrenal insufficiency, including Addison’s disease. 26 ADSHG - ANNUAL REPORT 2025 FINANCIAL REVIEW 27 ADSHG - ANNUAL REPORT 2025 ## **Treasurer’s Finance Report** II’m pleased to present our annual accounts. Over the past year we have continued to refine our financial processes, resulting in clearer, more accurate reporting. The ADSHG has benefitted significantly from the restructuring of several key areas of the Charity. These changes have improved efficiency, reduced costs, and strengthened our long-term position. We have also been fortunate to have Cathy leading the organisation for the last 18 months; her leadership has brought positive progress across all areas of our work. ## **Income** Our income was £389,162; an increase of £72,819 from 2024. The increase was due to multiple factors: - We received a Gift Aid payment relating to donations from previous years, that had been due but not yet claimed. - An increase in donations and fundraising was very welcoming. Although this is an important part of our income, it is probably the most vulnerable to cost of living and other issues. I must thank all our members and non-members who tirelessly raise money for the Charity and Chloe, our Community Fundraising Manager for her hard work to support them. - Membership numbers have increased. We always endeavour to make the Charity an invaluable part of a member's life. It is always positive to see our membership renewals at a good level and membership retention is so important for any Charity. Your membership allows us to plan and build for the year and the future. Never think that it doesn't matter. - Our shop has increased its sales. The shop has moved to a new system which has reduced costs and makes a more efficient, user friendly experience for members. We have also expanded our range of products. ## **Expenditure and fund balances** Our expenditure was £333,115; an increase of £9,059. Our expenditure increased mostly due to our wage bill increasing. This was due to the increase in our employed staffing (our hard working Communications & Health Liaison Manager, Philippa, now has some part-time support. Chloe moved her focus to her fundraising position and we employed a part-time Trust & Foundations manager. 28 ADSHG - ANNUAL REPORT 2025 Funding our member get-togethers is another important function of the Charity. Having attended most of the events, it's satisfying to talk to members about their experiences. I’m always moved by the number of members who have never met anyone else that has adrenal insufficiency. For them, these meetings are a potential lifesaver and for many, these gatherings are deeply meaningful and often life changing. ## **Primary purpose training** Our trading activity helps us deliver against our charitable objects by providing resources to fund the support of people living with adrenal insufficiency, including Addison’s Disease, and those who care for them. The shop is online only and focuses on sales of items that can be used by people with adrenal insufficiency, to manage their medications, deal with emergency situations, educate their family and friends, and handle interactions with their healthcare professionals. ## **Reserves Strategy** During the period the charity will retain minimum unrestricted liquid reserves sufficient to meet normal operating costs including payroll for a minimum of six months, plus any projected winding up costs. ## **Financial position** The Charity remains in a strong financial position, with reserves that provide against short term fluctuations in membership, donations, or fundraising income. The Charity is there for the benefit of our members. All employees, volunteers, medical experts and trustees work tirelessly to make the Charity a success. Our volunteers, medical experts, and trustees attend the various meetings, with only minimal expenses – typically travel and accommodation reimbursed. I am pleased with our financial performance this year. At the same time, it is essential that we continue to plan to safeguard the Charity’s long-term health. Every member of our community plays a vital role in sustaining and strengthening ADSHG. ## **Stuart Pinkerton** ADSHG TRUSTEE AND TREASURER 29 ADSHG - ANNUAL REPORT 2025 ## **Independent Examiners Report** I report to the charity trustees on my examination of the accounts of Addison's Disease Self Help Group (the Charity) for the year ended 31 December 2025. **Responsibilities and basis of report:** As the charity trustees of the Charity you are responsible for the preparation of the accounts in accordance with the requirements of the Charities Act 2011 ('the Act'). I report in respect of my examination of the Charity's accounts carried out under Section 145 of the Act and in carrying out my examination I have followed all applicable Directions given by the Charity Commission under Section 145(5)(b) of the Act. I **ndependent examiner's statement** Since your charity's gross income exceeded £250,000 your examiner must be a member of a listed body. I can confirm that I am qualified to undertake the examination because I am a member of the Institute of Chartered Accountants in England and Wales, which is one of the listed bodies. I have completed my examination. I confirm that no material matters have come to my attention in connection with the examination giving me cause to believe that in any material respect: - 1.accounting records were not kept in respect of the Charity as required by Section 130 of the Act; or - 2.the accounts do not accord with those records; or - 3.the accounts do not comply with the applicable requirements concerning the form and content of accounts set out in the Charities (Accounts and Reports) Regulations 2008 other than any requirement that the accounts give a true and fair view which is not a matter considered as part of an independent examination. I have no concerns and have come across no other matters in connection with the examination to which attention should be drawn in this report in order to enable a proper understanding of the accounts to be reached. ## **Andrew Churchill Stone** MERCER LEWIN CHARTERED ACCOUNTANTS, 6-7 CITIBASE NEW BARCLAY HOUSE, 234 BOTLEY RD, OXFORD, OX2 OHP 30 ADSHG - ANNUAL REPORT 2025 statement of Financial Activities olso ltsipO% AOOISON'S oiseAse SELF HeLP GROUP STATEMENT OF FINANCIAL ACTIVITIES FOR THE YEAR ENDED 31 DECEMBER 2025 2025 T(A•l 2024 T(A81 lund$ fundi IPICOME AND ENDOWMENTS FRO•A 232.814 13.3SS 246.11 198.179 c￿rA*bI• *ctlvltl 64.186 72.894 1.764 64.186 72.894 1.784 39.741 61.039 12.142 Totsl 75 EXPENDITURE ON CharH•bl• actlvlll•• lamil 62.416 62.416 72.5 46. 41.884 derslandry 59.197 1.765 59.197 38.216 43.320 43.963 18.811 17.640 Tolal •xp•ndlturn on Ch•rli•bl• •¢tlvltl•• CO￿ ol funth Governw￿ oigl 51.970 51,970 60.285 Totsl 18.811 NET INCOMEI(EXPENDITURE) Trnn•f•rn l>•tw••n lund• 79.143 (4.285) 56.047 17.713) N•1 mo¥•ffl•nt In fund• 175.857 1￿.18? (4.285 56.047 17.713) RECOMCIUATV)N OF FUNDS TO￿ lorward 167.372 2S.569 197.941 TOTAL FUNDS CARRIED FORWARD 141.189 31 ADSHG - ANNUAL REPORT 2025 ## **Balance Sheet** These financial statements were approved by the board of trustees and authorised for issue on 9th May 2026, and were signed on it’s behalf by: Stuart Pinkerton, Trustee/Treasurer 9th May 2026 32 ADSHG - ANNUAL REPORT 2025 Notes to the accounts: Yr ending 31.12.25 olso blpGtO ACCOUNTING POLICIES BASIS OF PREPARING THE FINANCIAL STATEMENTS The financial statements ol the chanly. which ￿ a public beneftt enb'ty under FRS 102. have been wepared in accordance with the Chanb'es SORP IFRS 1021 'AccDunling and Reporting by Charities.. Slatement of Recommended Practsce appI￿ab￿ to charilies preparing their accounts in accordance wilh Ihe Financial ReFQrting Standard applicable In the UK and Republic ol Ireland IFRS 102) leflectsve 1 January 20191,. Financlal Reporting Slandard 102 'The Financ￿1 Reportsng Standard applicable in the UK and Republic of Ireland. and the Chantses Aci 2011. Th8 financial slaiements have b8en prepared under the h￿tOriCal cost convention. as fflodified by the revaluation of certain assets. INCOME I Incorne Is recognlsed in the Statement ol Financlal Actlvities once the charity has entrtlement to Iho funds. It is probable Ihat the incom8 will be r￿1Ved ar)d Ihe am￿nI can be m8asured reliably. EXPENDITURE Liabilitles are recognlsed a5 expenditure a5 soon a5 there 13 a legal or constructlve obllgation committlng th8 charity to that exp8nditure, il ts probable that a transfer of ecDnomlc ben8fit5 will be required In selllemenl the amount ol Ihe obligat>on can be measured rel￿bly. Expenditure is ￿￿nted lor on an ruals basis and has been classified under heading5 thal a93regale all cost related lo ihe category. Vthere costs cannot be directly attn'buled to particular headings they have been allocated lo acllvits'85 on basis consisl8nl wilh the use ol resources. TANGIBLE FIXED ASSETS No asse15 wer8 purchased. deweci8ted or disposed of in thls ffjportlng perlod. STOCKS Stocks are valued at the lower of co&1 and net reallsabla valu8, alter maklng due allowance f￿ obsolet and skMI moving It8m5. TAXATION The charily Is exempl Irom tax ￿ ils ctharltsble aclivilies. FUND ACCOUNTING Unreslncled lurKJs can be used In accOrda￿e with the charitabl8 o*eclNes 81 the dlscrotion of the trustees. Restrlcled funds can only be used for partlcular restrlcted purposes vlrthln objecls of Ihe charlty. Restrictions an5e when specified by the dornr or when lunds are raised lor p8rUcu18r reslricled purposes. Further explanation of the nature and purpose of each fund is Included in the noies lo the financial slalemenis. PENSION COSTS AND OTHER POST41ETIREMENT BENEFITS The ch8rity operate5 8 defined contribution pension scheme_ Conth"butions payable lo the charlty's pensSon scheme are charged to Ihe Ststemenl ol Flnancial AclNltles in the period to wh￿h Ihey relate. 33 ADSHG - ANNUAL REPORT 2025 olso INVESTMENT INCOME 2025 2024 Deposit account interest 4.149 5.242 TRUSTEES. REMUNERATION AND BENEFITS There were no Irustees. remuneratbon or other benefits for the year ended 31 December 2025 nor for the year ended 31 December 2024. TRUSTEES, EXPENSES Reimbursements tot811ing £830 were paKI lo tmste8s' to cover expenses pald by tru5tees' for the year ended 31 December 2025. COMPARATIVES FOR THE STATEMENT OF FINANCIAL ACTIVITIES Unrestncted Desbjnated funds Fund Restr￿ted funds Total funds INCOME AND EN(>OWMENTS FROM Donatlons and legac￿5 198.179 198,179 Charltablo actlvlths Shop sales Income Membership fee income Other income 39.741 61.039 12.142 39,741 61,039 12.142 Investmenl inccxne 5.242 Totsl 316.343 316 343 EXPENDITURE ON Charttablo activlths Supporting patients aNI famllles Connecbng healthcare professionals pabents Advancing kncvwbèdge and und8rst8ndin9 Olher project work Shop costs 72.508 72.508 41.884 35.820 43.963 41,884 43,320 43,963 Total •xp•ndltur• on Charltabl• actlvltl•g Cosl of ralsing lundg Gov8mance cost 60.285 18.721 60,285 18,721 Tot*1 324 056 NET INCOMEI(EXPENDrruRE) Transfers between funds {2131 (7,500> (7,713) Not movement in funds RECONCIUATION OF FUNDS Total funds br(wght forward (5,2131 (7,SOO (7,713> 172.585 33,069 205,654 34 ADSHG - ANNUAL REPORT 2025 pISo COMPARATIVES FOR THE STATEMENT OF FINANCIAL ACTIVITIES - continuod Unrestricted Desynaled ReStr￿ted funds Fund funds Total funds TOTAL FUNDS CARRIED FORWARD 167.372 5.000 25.569 STOCKS 2025 2024 Stocks 8.275 DEBTORS: AMOUNTS FALUNG DUE WITHIN ONE YEAR 2025 2024 Tr&Je debtors Prepayments and accrued income 13 CREDITORS: AMouKfs FALLING OUE ￿THIN ONE YEAR 2025 2024 Trade credilors Other creditors 3.631 14,969 MOVEMENT IN FUNDS Net movemonl In funds Tr8nsfers be￿een funds At 31112125 At 111125 Unr•gtrl¢t•d fund• General lund Addison's and Prtuilary I￿larKI Emergency Reserve Fund Website Development Fund Living With Addison's Fund 167,372 5,000 79,143 I155.0￿) 91,515 5,01)O 110,01)O 16.189 110.0 35.000 118.811) 172,372 60.332 232.704 Restrict•d fund* Medical Research Fund Hospilal Saturday Fund Grant Th8 BIG GNe Neroscine BKJsci8nc88 Fund 25.569 117.640) 2,C(iO 8,368 7,929 2,OCIO 8,368 25 569 TOTAL FUNDS 253.988 35 ADSHG - ANNUAL REPORT 2025 olso MOVEMENT IN FUNDS - contlnu•d Comp8ralive net movemènt In lunds, included in Ihe above are as follows: Incomln9 resources Resources expended Movemenl in funds Unr•strlcted fund• General fund 316,343 (316.556) (213 Reslrlcted lunds Medical Research Fund 17.5C¥)} 17,500 TOTAL FUNDS 324.056 A current ye8r 12 months and prlor year 12 months combined posltlon is as lollows= Nel movement in funds Translers between funds Al 31112125 At 111124 Unr•strlct•d fund• General fund Addi50n's and Prtuithry Irelar Emergency ReseNe Fund Website Development Fund Living With Addtson's Fund 172,585 78,930 I160.0￿) 91.515 5.000 110.000 16.189 110,1 35.000 10.000 (18,811) 172,585 60.119 232,704 Rostrlcted fund¥ ADSHG MedKal Resaarch FuThJ Addts￿,s Ireland Fund Endocrinology Travel Fund Ronald Rogers - Gwenl RCGP Module Publicabons ReV￿W Reserve Ywng and Newty Di89n0s￿l Medical Research Resefve Medical Research Fund Hospltal Salurday Fund Grant The BIG GNe Neroscine BKJsciencas Fund 11,190 333 64 633 5,000 1,900 (11.190) {333} {64} (633) I5.0￿) {1.9LKI) 210 13,739 {210} 19,330 125.1401 2,(XJO 8,368 7.929 2.000 8.368 117851 TOTAL FUNDS 205 654 253.988 36 ADSHG - ANNUAL REPORT 2025 olso MOVEMENT IN FUNDS- ¢ontlnu•d A curTenl year 12 nwJnlh8 8nd piior year 12 months combin8d net movement in funds, included in the abov8 are as follows: Incoming resources Resources expended Movem8nl in lunds Unro8trict•d funds General fund Website Development Fund 692.150 1613.2201 18.8111 78.930 18.811> 692,150 1632.0311 60.119 R•8lrlct•d funds Medical Research FUTh Hospital Saturday Fund Grant The BIG GNe Neroscine BKJsci8nce8 Fund {25.1401 125.140> 2.000 8.368 2.987 2,CMJO 8,368 2.987 13.355 TOTAL FUNDS 705.505 657,1711 48.334 -The Medical Research Fund consists on monl8s donated to fund medical research and 8UPM medlcal prole5510n81s. -The Hosprtal Saturday Fund Grant is desi9naied {set aside by Ihe trustees) lo provlde S x Paramedic Training Sessions in 2026. -The BIG Give Fund ￿ designated {sel aslde by the Irusteesl to F￿¥￿Ie 2 Member Gel Togethers in 2026, -The Neurocrlne Biosclences fund is designaled Isel aside by the Irusleesl for Ihe Creatson of updated emergency injecilon videos and ihe deslgn arKI print of an informailon booklet for young pec¢)le wlth ￿1renal insufficiency al SecorKlary SChc￿lI. RELATED PARTY DISCLOSURES Th8re no related party transactK)ns for the year e￿Ied 31 December 2025. 10. ADDITIONAL NOTES il The charrty's core cost5 have been allocated based on staff actiwly as follows.. Chantable acbvities 78% (Support 22%, Connecl 22%, Advance 22%. Projects 10%, Shop 2%), Fundrai51ng 20%. and Governarte 37 ADSHG - ANNUAL REPORT 2025