2025-03-31-accounts - The Jorja-Rose Foundation

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Trustees' Annual Report for the period

Period start date Period end date 31 January 2025 31 January 2026 From To

Section A Reference and administration details

Charity name The Jorja-Rose Foundation

Other names charity is known by Registered charity number (if any) 1179565 Charity's principal address 1 Ridgeway Walk Top Valley Nottingham Postcode NG5 9DP

Names of the charity trustees who manage the charity

Trustee name	Office (if any)	Name of person (or body) entitled to appoint trustee (ifany)
Carla Ann Dawson	Chair	The Jorja-Rose Foundation
Lee Dawson		The Jorja-Rose Foundation
Stephanie Marie Holecza		The Jorja-Rose Foundation
Jennifer Marie Blair		The Jorja-Rose Foundation
Annette Yvonne Gilbert		The Jorja-Rose Foundation

Names of the trustees for the charity, if any, (for example, any custodian trustees)

Name Dates acted if not for whole year

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Names and addresses of advisers (Optional information)	Names and addresses of advisers (Optional information)	Names and addresses of advisers (Optional information)
Type of adviser	Name	Address




Name of chief executive or names of senior staff members (Optional information)

Section B	Structure,	governance and management

Description of the charity’s trusts

CIO Foundation Constitution

Type of governing document (eg. trust deed, constitution) Foundation How the charity is constituted (eg. trust, association, company) Elected by trustees Trustee selection methods (eg. appointed by, elected by)

Additional governance issues (Optional information)

You may choose to include New trustees receive an induction outlining the charity’s aims, additional information, where governing document, key policies, and their responsibilities. relevant, about: Trustees are supported with guidance and training as required. • policies and procedures The charity is governed by a Board of Trustees who oversee its adopted for the induction strategic direction and activities. The Foundation works alongside and training of trustees; volunteers and external partners, including healthcare professionals and community supporters, to deliver its work.
• the charity’s organisational structure and any wider The trustees confirm that any potential conflicts of interest are network with which the declared and managed appropriately, and that no improper charity works; relationships or transactions have taken place. Trustees regularly
• review the main risks facing the charity, including financial and relationship with any related safeguarding risks, and have procedures in place to manage these
parties; and ensure the charity is well run and compliant.
• trustees’ consideration of major risks and the system All newly appointed trustees are required to undergo criminal record and procedures to manage checks. them.

The charity remains registered with the Fundraising Regulator to ensure that all fundraising activity complies with the relevant policies and guidelines and reflects good ethical practice.

The trustees have adopted the Charity Governance Code and are working towards its principles. The Board has decided not to adopt the recommended nine-year trustee term limit, as it is considered counterproductive to the charity’s purposes. The charity’s goals remain clear, and the trustees are committed to maintaining a compassionate approach, with all trustees dedicated to supporting and achieving the charity’s aims on a personal level.

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Section C Objectives and activities

Summary of the objects of the charity set out in its governing document Summary of the main activities undertaken for the public benefit in relation to these objects (include within this section the statutory declaration that trustees have had regard to the guidance issued by the Charity Commission on public benefit)	Our main purpose is to provide compassionate support and practical help to children diagnosed with cancer and their families while they undergo treatment at Nottingham’s Queen’s Medical Centre, and to continue that support for families in Nottingham who are living with the devastating loss of a child.Alongside this, we are committed to raising awareness and improving understanding of childhood cancers, particularly brain tumours — the illness that took our beloved Jorja-Rose. Everything we do is driven by her story and by our determination to bring comfort, hope, and kindness to other families facing the unimaginable.
	This year has been one of meaningful growth, compassion, and renewed purpose for The Jorja-Rose Foundation. Guided by our commitment to support children with cancer and their families, we have expanded our services to meet emotional, developmental, and practical needs during the most challenging times. A key development this year has been the introduction of tailored book hampers to our range of available support items. Carefully curated to suit different ages and interests, these hampers are designed to offer children an escape from treatments and the monotony of long hospital stays. By encouraging imagination and storytelling, the hampers provide comfort, distraction, and moments of joy when they are needed most. Included within these hampers are toddler activity boards, specifically chosen to help improve dexterity and coordination, supporting early development even while children are undergoing treatment. We have also continued to support parents directly by providing Costa vouchers, offering small but meaningful moments of relief. These vouchers help parents take a pause, recharge, and feel supported while spending long hours by their child’s bedside. Looking ahead, we are actively developing creative packs aimed at enhancing artistic skills and providing children with tools to express and regulate their emotions. Through art and creativity, children can communicate feelings that are often difficult to put into words, supporting their emotional wellbeing alongside their medical care. We have strengthened our support by building links with other charities that specialise in mental wellbeing. By working closely with these organisations, we have gained valuable insight, guidance, and skills that enable us to better support children fighting cancer, as well as their siblings and parents. This collaboration helps families express their emotions, build coping strategies, and navigate the significant mental and emotional toll that cancer treatments can place on the whole family. Alongside our support initiatives, a major focus this year has been fundraising towards the purchase of our hospital garden and future ‘Haven of Hope’. This vision represents a significant milestone for the Foundation. Our ‘Haven of Hope’ will be a welcoming place for families to visit between treatments—a calm, restorative

Summary of the objects of the
charity set out in its
governing document
Summary of the main
activities undertaken for the
public benefit in relation to
these objects (include within
this section the statutory
declaration that trustees have
had regard to the guidance
issued by the Charity
Commission on public
benefit)

Our main purpose is to provide compassionate support and
practical help to children diagnosed with cancer and their families
while they undergo treatment at Nottingham’s Queen’s Medical
Centre, and to continue that support for families in Nottingham who
are living with the devastating loss of a child.Alongside this, we are
committed to raising awareness and improving understanding of
childhood cancers, particularly brain tumours — the illness that
took our beloved Jorja-Rose. Everything we do is driven by her
story and by our determination to bring comfort, hope, and
kindness to other families facing the unimaginable.

This year has been one of meaningful growth, compassion, and
renewed purpose for The Jorja-Rose Foundation. Guided by our
commitment to support children with cancer and their families, we
have expanded our services to meet emotional, developmental,
and practical needs during the most challenging times.
A key development this year has been the introduction of tailored
book hampers to our range of available support items. Carefully
curated to suit different ages and interests, these hampers are
designed to offer children an escape from treatments and the
monotony of long hospital stays. By encouraging imagination and
storytelling, the hampers provide comfort, distraction, and moments
of joy when they are needed most. Included within these hampers
are toddler activity boards, specifically chosen to help improve
dexterity and coordination, supporting early development even
while children are undergoing treatment.
We have also continued to support parents directly by providing
Costa vouchers, offering small but meaningful moments of relief.
These vouchers help parents take a pause, recharge, and feel
supported while spending long hours by their child’s bedside.
Looking ahead, we are actively developing creative packs aimed at
enhancing artistic skills and providing children with tools to express
and regulate their emotions. Through art and creativity, children
can communicate feelings that are often difficult to put into words,
supporting their emotional wellbeing alongside their medical care.
We have strengthened our support by building links with other
charities that specialise in mental wellbeing. By working closely
with these organisations, we have gained valuable insight,
guidance, and skills that enable us to better support children
fighting cancer, as well as their siblings and parents. This
collaboration helps families express their emotions, build coping
strategies, and navigate the significant mental and emotional toll
that cancer treatments can place on the whole family.
Alongside our support initiatives, a major focus this year has been
fundraising towards the purchase of our hospital garden and future
‘Haven of Hope’. This vision represents a significant milestone for
the Foundation. Our ‘Haven of Hope’ will be a welcoming place for
families to visit between treatments—a calm, restorative

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environment offering a much-needed break away from hospitals, appointments, and daily pressures. It will be a space for rest, reconnection, and healing as families navigate their cancer journey together.

None of this would be possible without the generosity of our supporters, fundraisers, and partners. Your continued belief in our mission allows us to grow, innovate, and provide hope, comfort, and care to the families who need it most. Together, we are creating moments of relief today and building brighter possibilities for the future.

Additional details of objectives and activities (Optional information)

You may choose to include further statements, where We have no investments or loans as we aim to keep the charity accounts relevant, about: as simple as we possibly can. All money donated should and will benefit our families, improve life in hospital and/or raise awareness and further • policy on grantmaking; education and research into brain cancer.

policy programme related investment;
contribution made by volunteers.

Section D Achievements and performance

Summary of the main While continuing to meet our existing commitments, this year we achievements of the charity have also focused on developing new ideas and exploring during the year additional ways to support the families we serve. As we grow as a charity, we are committed to creating new initiatives that enhance children’s experiences during hospital treatment, as well as supporting precious moments at home. Our aim is to help families create lasting memories, while easing the stress and emotional strain that cancer places on the entire family.

We have continued to highlight the importance of our campaign to improve awareness and early recognition of papilledema in patients presenting with symptoms that may indicate a brain tumour. By supporting earlier identification, we aim to reduce diagnosis times and enable faster access to more effective treatment.

Throughout the year, we have written to various local MPs to ensure this campaign remains active and visible. We have also shared updates from our partner charity, Brain Tumour Research, including information on its parliamentary initiatives, to encourage MPs to attend, engage with, and support these important missions.

Section E Financial review

We will retain sufficient funds to function effectively. We will not accrue Brief statement of the reserves greater than 30% of annual income with a maximum reserve of charity’s policy on reserves £5000.

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Details of any funds None materially in deficit

Further financial review details (Optional information)

You may choose to include additional information, where relevant about:

the charity’s principal sources of funds (including any fundraising);
how expenditure has supported the key objectives of the charity;
investment policy and objectives including any ethical investment policy adopted.

All funds raised during the year were generated through fundraising activities and public donations. We have continued to feel the impact of the cost-of-living crisis, which has been reflected in our income; however, we have still successfully met our objectives and maintained our commitments.All donations received are used exclusively to fund our hospital support packs and to support our work in raising awareness of brain tumours and the importance of early diagnosis. We ensure that the Code of Fundraising Practice is followed at all times and encourage anyone fundraising on our behalf to adhere to these standards.

The charity did not receive any complaints during the year. Our complaints procedure is available via the Fundraising Regulator.

All expenditure directly supported our charitable objectives, with funds benefiting the families we support or contributing to our efforts to raise awareness and advance education and research. The charity does not pay wages or salaries, and we do not hold any investments.

Section F Other optional information

The Jorja-Rose Foundation was established following the loss of my daughter, Jorja-Rose, to an aggressive brain tumour in 2017. During the long and difficult periods spent in hospital, I gained first-hand insight into the needs of children on the wards and the families supporting them. Every achievement we have made, and every future goal we set, is rooted in that experience. We work closely with the hospital and PASICS to ensure that all donations and gifts are delivered where they are most needed and make a meaningful difference.

Although we continue to feel the impact of the cost-of-living crisis on our fundraising efforts. Despite this, we have maintained a steady and loyal level of support, for which we are incredibly grateful. We continue to apply for grant funding, as unfortunately we were unable to secure a grant during the year. Despite this, we remain committed to pursuing this avenue of support to help strengthen and grow the charity’s work in the future.

Everything we do is in memory of Jorja-Rose, and we are committed to following all policies and procedures properly to ensure her legacy continues with integrity and care. Sharing Jorja’s story remains deeply personal and incredibly important to us, and each time it reaches someone new, it feels like a meaningful achievement. Her story continues to play a vital role in raising awareness of childhood brain tumours and the urgent need for earlier diagnosis.

As a small organisation, our ambitions can sometimes feel like a mountain to climb, but we remain determined and focused on achieving them. Every action taken in Jorja-Rose’s name matters deeply to us, and we strive to continue providing the support we know makes such a difference to families during hospital stays. Alongside this, we are continually learning, developing new ideas,

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and finding better ways to support those who need us most. Each year, our hope is simply that we have helped at least one family feel supported, understood, and less alone.

During the year, a number of our trustees have faced personal challenges, which has inevitably impacted both our capacity and our fundraising efforts. Despite this, we remain committed to learning new skills, growing the charity, and pushing forward together. We are incredibly grateful for the time, dedication, and effort given by our trustees and volunteers, even during periods of personal difficulty. Their commitment clearly reflects how much this charity and its work mean to us all. We will continue to tell Jorja-Rose’s story, appreciate the support we so gratefully receive, and strive to grow the charity in the years ahead. With determination, compassion, and hope, we remain focused on creating change, supporting families, and turning our ideas into reality — for change, and for hope

Section G Declaration

The trustees declare that they have approved the trustees’ report above.

Signed on behalf of the charity’s trustees

ed on behalf of the charity’s trustees	’s trustees
Signature(s) Full name(s) Position (eg Secretary, Chair, etc) Date Carla Dawson Chair 29/01/26		Jennifer Blair (Jan 30, 2026 14:30:45 GMT)
		Jennifer Blair
	Chair		Trustee
	29/01/26

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	The Jorja-Rose Foundation Charity Name	The Jorja-Rose Foundation Charity Name	The Jorja-Rose Foundation Charity Name	1179565 No (if any)	CC16a
	For the period from	31.01.2025 Period start date	To	31/01/2026 Period end date

Section A Receipts and payments
A1 Receipts	Unrestricted funds to the nearest £ 430 465 - - - 895 - - - 895 110 144 160 800 87 1,301 - - 1,301 - 406 406 1,430 1,024	Restricted funds to the nearest £ - - - - - - - - - - - - - - - - - - - - - - - - - - - -	Endowment funds to the nearest £ - - - - - - - - - - - - - - - - - - - - - - - - - - - -	Total funds to the nearest £ 430 465 - - - 895 - - 895 110 144 - 160 800 87 1,301 - - - 1,301 406	Last year to the nearest £
Charityfundraisers	430				1,040
Sponsorships
Public donations	465				1,050
Paypalgiving
Bu Donations
	-				-
	-				-
	-				-
*Sub total*(Gross income for AR)	895				2,090

A2 Asset and investment sales, (see table).
	-
	-				-
*Sub total*	-				-
*Total receipts* A3 Payments
					2,090

Cost of voluntaryreceipts:
Printed CharityHoodies	110
Fundraisingcosts	144				182
Costs of charitable Activities:					-
Book Hampers	160				1,750
Food and Drink Vouchers	800				440
Computer, printingand advertising	87				140
**Sub total **	1,301				3,633

A4 Asset and investment purchases (see table)
,
	-
**Sub total **	-				-
*Total payments* *Net of receipts/(payments)* A5 Transfers between funds A6 Cash funds last year end *Cash funds this year end*
					3,633

	- 406	-	-	406	1,543
	406	-	-	406	1,543
	1,430	-	-	1,430	2,973
	1,024	-	-	1,024	1,430

CCXX R1 accounts (SS)

29/01/2026

Section B Statement of assets and liabilities at the end of the period	Section B Statement of assets and liabilities at the end of the period	Section B Statement of assets and liabilities at the end of the period
Categories Signed by one or two trustees on behalf of all the trustees B1 Cash funds B2 Other monetary assets B4 Assets retained for the charity’s own use B5 Liabilities B3 Investment assets	Signature Storage Tubs Serving trolley Leaftet stand Balloon filler and Arch End of year balance Details *Total cash funds* (agree balances with receipts and payments account(s)) None Details Details None Birthday supplies for hospital Chalk Board signs and Pens Details Details Charity Uniform Collection Tubs Microphone None Jennifer Blair (Jan 30, 2026 14:55:41 GMT)	Unrestricted funds Restricted funds to nearest £ to nearest £ - - - - - 1,024 OK OK Unrestricted funds Restricted funds to nearest £ to nearest £ - - - - - - - - - - - - Fund to which asset belongs Cost (optional) - - - - - Fund to which asset belongs Cost (optional) fundraising costs 221 fundraising costs 245 fundraising costs 20 hospital activities 50 advertising 10 Events 215 Hospital packs 115 Hospital packs 250 Fundraising costs 57 Fund to which liability relates Amount due (optional) - - - - - Print Name Carla Dawson Jennifer Blair	Endowment funds to nearest £
			-
			-
			-
			-
			OK
			Endowment funds to nearest £
			-
			-
			-
			-
			-
			-
			Current value (optional)
			-
			-
			-
			-
			-
			Current value (optional)
			-
			-
			-
			-
			-
			-
			-
			-
			-
			When due (optional)






			Date of approval
		Carla Dawson	29/01/2026
	Jennifer Blair (Jan 30, 2026 14:55:41 GMT)	Jennifer Blair	29/01/2026

CCXX R2 accounts (SS)

29/01/2026