Trustees. Annual Report for the period Perioj slart date Petvjd end date 2024 2025 From To Section A Reference and administration details Charity name The JiROse FOUndatn Other names charity is known by Reglstered charlty number Irf any) 1179565 Charlty's princlpal address i 1 Rldgeway Walk Top Valley Nottingham Postcode NG5 9DP Names of the charlty trustees who manage the charlty Trust•• nom• LiJt•s act•d rf not IN T*thol• Offic• Ilf 4DyI Nam• of p•r50n lor bodyl •ntI•d olnt trust•• The Jorja-Rose Foundatlon The Jorja-Ros@ Foundation The Jorja-Rose Foundation Carla Ann Dawson Lee Dawson Stephanie Marie Holecza Jennifer Marie Blalr Annette Yvonne Gilbert Chalr The JoTia-Rose Foundatlon The Jorla-Rose Foundatlon 10 11 12 13 14 15 16 17 18 19 Names of the Irustees for the charity. rfany, (for example. any custodian trustees) Name Dates acted rf not for whole ear TAR M8rth 2012
Names and addresses of advisers (Optional Infomiatlon) of adviser Name Address Name of chief executlve or names of senior staff members (Optional infomiation) Section B Structure, overnance and mana ement Des¢rlpllon ol the charlty's trusts CIO Foundation Consttlutlon Type of goveming document How the charity Is constituted Foundatlon Trustee selectlon methods Elècted by trustees Addltlonal governance Issues (Optional infomiation) You may Choose lo include Nottinghem Communlty and Voluntary Service continues to be a great additional information, where source for advice and Iraining for us. We still acknowledge that we are a relevant, about.. small charity but pride ourselves on following correct procedures and are constantly learning new skills in a bid lo excel our charlty further. We conlinuè to attend workshops and tralnlng Courses to enable us io buikl our knoedge 8nd confKJence working within the ch8rity sector. Workshops include bid writing, trust and corporate fundraising as well as capital campaigns, prqecl management and ch8ri1y fin8nce. These aid us greatly in ensuring we are following correct guidance and protocols expected of us. We remain membei ch8rrties wlth Brain Tumour Research and look lo them also for 5UPPOrt and guidance. We have regular correspondence with them and continue to attend annual member party workshops which we find to be a great opportunity to network and leam from other charities that have succeeded in Iheir goals and objectives. We have met many wonderful and inspiring people through these workshops and we get the opportunity to tell our own story and further our support nelwork by altetyling these. Newly appointed Iruslees and volunteers will need criminal record checks. We continue our registration with the Fundraising regulator to ensure all our charity fundraising adheres to Ihe policies and guidelines sel, to maintain gcx)d ethical fijndraising. We have accepted the Charity Govemance CcJe and are working towards its principles. We have tsken the deasion not to adopt the suggestion that trustees should not serve for more than 9 years as we see il is counterproductive to our purposes. Our charty goals remain clear and we seek to remain a compassionate charity where 811 Irustees are committed and deiled to su rtin and achievin our oals on a ersonal level. policles and procedures adopted for the induction and training of Irustees. the charity's organisalional structure and any wder network with which the chaTIty works., relatlonshlp with any ielated parties., trustees, conslderatlon of malor risks and the system and procedures to manage them. Section C ectives and activities TAR M8r¢ 2012
Our main objeclives Indude providing support and services for children and their families diagnosed with cancer and Ltndergoing trealment in Nottingham's Queens Medical Centre as well as supporting families of bereaved children within Nottingham. We r8ise awareness and advan education for childhood cancers, speufically brain tumouts which is the disease that took our Joria-Rose. Summary ofthe objects of the charity set out in Its governing document We have C#tinUed lo deltver our toiletry packs across many of the childrens wards at QMC. We now provide packs across all childrens wards as well as Billies house which houses families that musl travel to Nottingham Hospital for treatment for their child. We have a cupboard on ward E39 vthich is the children's oncology ward which holds our toiletry pack stock which we replenlsh frequently Ihroughoul the year. We liaise with staff and parenls lo ensure tt)e supplies we offer are useful and are often adding extra items upon request to ensure we are provKling what is aclualty needed for our families. PASICS have continued to be our link wth famllies as they spend much more lime on the wards and have direct contact with patients and their families. I feel they have great insight to the needs within the hospital. We greatly appreciaie their help for this as it can be mentally challenging at times on the wards for me personally. We were Ihrllled to offer our family's and worklng staff a Christmas dlnner on Chnstrnas day. Each year our numbers grow higher and this year we were pleased to be able to provide 145 dinners across 5 childrens wards on christmas day. We have provided these for a number of years now and slaff and p8rents are well accustomed to our annual visit whlch has made our numbers grow futher each year. We are proud to be able to provide these along with extra treats gifts for famllies unable lo enjoy Christmas al home Summary of the maln activlties undertaken for the public benefit In relatlon to these objects (include vAthln th1$ section the statutory declaration that trustees hav• had regard to the guidance issued by the Charity Commlssion on publlc benefit) We have o)ntlnued to spread awareness and galn support for our Campaign whlch is exlremely important lo us all. We are still working lo gain support lo our petition which will be sent lo parliament in hopes to educate doclors further In spotting Papllledema (swelling of the optlc nerve) as we believe Ihls is vital In aiding doctors lo make 8 referral in order for a tumour to be spotted much earfier. therefore ensuring trealment begins as soon as possible. We liaised with our local MP this year and were thrilled lo be a part of him choosing to attend the Brain Tumour Research m8nifeslo launch. This is vilal as11 INghlighls the need for hlgher funding and investments into research as well as ensuring the government declares brain tumour5 a clinical priority and increase participation in lrfe saving trials for those affected by brain lumours. We a extremely proud to have been present for this and that our efforts in ensuring our local MP was presenl also were successful. Our website has proved useful in our networking aims, and we have noticed a number of new enquirtes and support over Ihe previous months. We continue Io UFrtYate and develop this as we go along. We continue to push for our idea to install a gardenl nature sensory area on grounds within Queens Medical Centre. This is something we have been hoping lo achieve for a long time. We believe this will be a much valued and extremely useful facility as there are r[rentlY such areas available to patients or their families. Confirmation is needed before some major fundraising action beglns to ensure this dream of ours becomes a reality. TAR arch 2012
Our informative children's bcM)ks are in the last stages of development. These will be given to familie5 upon diagnosis or before procedures which aim to explain to children in 8 more chikllike manner about Canr, procedures and machines. This is another important goal for us lo achieve and we are excited for them lo be launched. However, given the sensilivity and the need to be biologi(zlly correct we are assuring all areas have been thoroughly checked by professionals before publi&g1ion. We are thrilled with what we have created $0 far and are extremely proud to be able Io Provide supwrt in Ihis manner. It was an area that I persmally felt needed excelling within the hospital from when I myself was in that situation. I felt the infofmation we were given was confusing and scary foT my daughter and her siblings...in an already very scary situatKsn we have aimed to explain clearty but in a way that is easier lo understand what a diagnosis means and the treatments and procedure that follow that diagnosis. We aim to illustrate our books in a childllke manner to ease chlklren and sibllngs being glven such informalion. Thls year we also purchased 8 number of birthday supplies to launch our 'Blrthdays in hospital, support. These include banners, balloons and paty supplies as well links with local mascol serVS and cake providing services paid for by us. Our aim is to support parents in making birthdays SPèU81 even rf thelf chlld i8 in hospitsl. Addltlonal details of oblectives and actlvltles (Optional Infomiatlon) TAR 2012
We have no investments or loans as we aim to keep the charity accounls as simple as we possibly can. All money donated shoubj and will benefil our families, improve lrfe in hospital andlor raise awareness and further education and research into brain cancer. You may choose to indude further stalements, where relevant, about.. policy on grantmaking; policy programme related investment- conlribulion made by volunteers. Section D Achievements and performance Summary ol the maln achlevements of Ihe charlty during the year Our toiletry and 8clivity packs have contlnued to be our most useful conlribution to our famllies. We have donated hundreds this year once again and with the help of PASICS tharity who work more directly on Ihe wards we have distributed them across all children's wards and Bllly's house, which houses f8milies recelving treatment that reslde out of Nottingham. We have also ensured a stock of glfts and activity equlpmenl to be distributed by PASICS to patientsl families they feel thèse wlll b&neflt. We have continued to add extra items lo our packs throughout the years. Pamper products including bathrobes, sllppers, eye masks, ear plugs, hair brushes and aromaiherapy oils have been added to our loilety deliveries in hope to relieve some stress for parents and bring some relaxation onto the wards. I have personally attended 8rom8iher8Py courses to be able lo offer arom8therapy directly to families as I feel the holistic benefits 8re masslve and can help ease the stress and straln of hospi181 Ilfe. Ddivering dinners lo famllies unable to be home for Christmas as well as staff working on Christsnas day has been another success. Over 145 Christmas dinners were delivered across 5 children's w8rds on Christmas day. We have continued to highlighl the importance of our campaign lo ensure doctors are able to SFQt papilledema in future patients presenting symptoms which may indicale a brain tumour. This we hope will decrease diagn05iS time further leading to faster and more effecttve trealment. We are exated to launch our information books and feel these will be a vital source of support for families. Fin81 touches are needed lo ensure the are factuall correct and that illustration is to 8 hi h stsndard. Section E Financial review TAR March 2012
| We y11 retain sufficient fijnds to function effectivety. We will not accrue Brief statement of the '. reserves greater than Th of annual income with a maximum reserve of charity's policy on reserves £5000. Details of any funds materially in deficit None Further financial review details (Optional infonnation) All funds this year were raised by fundraising and public donations. We have felt the effect of the cost of living crisis again this year and our incom& has reflected this, hever we have still managed to achieve our goals and maintain our commitrnents. All donatnS received are spent exclusively on supplies for our hospital support packs and our goals lo spread awareness foi braln tumours and early diagnosis. We ensure that the code of fundraislng Practi is kept al all times and urge members of the public fundraising on our behalf to adh8re to this also. You may choose to include additional information, where relev8nl about: the charity's princlpal sources of funds Ilncluding any fundraisingl., how expendlture has supported the key oblectlves of the charity; Investment pollcy and obleetives including any ethical investment policy adopted. We have not received any complaints this year. Our complaints procedure Is available vta the fUrraisIng regulator Our expenditure has supported our objectives as all monies spent has benefrted either our families or our bid lo raise awareness and advance educailon and research. We do nol pay any wages for employment. We do rnt hdd any investrnents. Section F other o tional information The Jorja-Rose Foundatton wa$ eslablished followlrKJ the d88th of my daughter to an aggresslve braln tumour in 2017. During our lengthy Stays in hospitsl, I of course gained insight lo Ihe needs of the wards. Our achievements and fulure goals are all bom from this insight. We work dlreetly with the hospitsl and PASICS to ensure our donations and glfts are delivered to benefit those in need. We are pleased that thls year has sllghtly Improved Ilnanclally for us but we are still feel the effects of the cost of living crisis is impacling us in our fvndraising efforts. We have maintained a steady source of support however which we are extremely grateful for. We are 8iming lo apply for grants this year as we feel this may aid us in excelling our charity efforts further. We have never felt confident enough in Ihe past as we recognise we are a sm811 tharity and concentrated more on support from public donalions and fundraising. However, we now have support in applying for grants and feel we are ready to move on to doing this. Everything we do is in memory of Jory&Rose and we strive to follow poliaes and procedures woperly lo ensure the continuation of her legacy. It is a personal achievement each lime we reach sometw)dy new by leS1ing Jorjas story which has always been vit81 in raising awareness into childhood brain lumours. We have many large goals which often feel a mountain to climb with us being such a small organisation and are working hard in achieving them. Everylhing we do in J¢wia-Rose's name is extremely important to us and we Strive lo continue the support we provide as we realise how these seemingly small things help families in hos ital so much. Alon side this we are continuall leamin and rowin ¢)ur ideas and oals. Each ear we fk¢ } fJ&-fvo8< Fovhd&ti• Jijk bin$ 1179&0 TAR March 2012
only hope that we have made a difference to a famlty in need. We continue to tell Jorias St and slrive to maintain the support we so gratefvlly receive. We hope to continue our Servi and support for our families and grow the charity further over the years. With detemination and commilmen( we hope that our achievemenls wll grow further and we will succeed in our goals and materialise our amazing ideas to reality. Section G Declaration The trustses declare that th•y have approved the trust¢es' report above. Slgned on behalf of the charlty's trustees Slgnature(sl Full name(s) CFtRLA OAknJknJ Positlon (eg Secretary, Chair, et¢) Date 2211/25 TAR Klar¢h 2012
CHARITY COMMISSION FOR ENGLAND AND WAIES The JoiJa4ose Foundaiion Recei tsand ents accounts CC16a For the period from To 31.01.2024 3110112025 Section A Receipts and payments Unrestrict•d funds R•sirictod funds Endowment funds Total funds Last year Al Rocoi Ch&rity lundraffJ•rs Sponsoiships Publi¢ donabons 000 Bu Donouons tot ross Income AR) S•1 an $00 t&bl• . n5¢M¢M s• A3P• •ntx C051 ofvolunl•ry I19 Fundf8I51ng costs C0515 ol Chan1•D AdNilthS Hospilèi lo1lry bnd pampor9*S ospil81 •¢livitypacks and 91ft5 Edu¢•iion Travol Computer, pnniinp •nd odve H05pIIBI Cttrl8lmÈs dinno1$ Wob$rt8 pr0oucl doma1 182 1.760 1.760 1,77 200 140 140 1.046 41 192 44• 41 Sub total A4 Ass•1 and Investment Sub total Net of rncelpts/(paymentsJ A5 Tran$f•rs betweon lund$ A6 cash funds last Yr end Cash funds thls year end 1.543 l.S43 2,973 2,315 CCXX R1 actr Issi 2010112025
Section B Statement of assets and liabilities at the end of the period Unrestricted hjnds Restrtcted Ivnds to rb•anTr&t E Endowmgnt funds to n•4r••tt Fyvi 81 Cash funds Total ¢ash fiinds Urn•$tri¢i•d funds Rostrlctod fund5 to nMr••t£ Endgwmgni funds to nur•6te Details Nr C¥ry•ffl v•lu• •r1 Details N¢x C••llopO•r* Fund biwNeh ••Mt b I1rdn9 Costs Curr•M¥•lu• on•1 Deiall$ Ch•irfy UrHIw 84 A8t9 retalnod for tho charlty'8 own 1180 221 246 costs Lg•let $i•nd io 215 Slor4@ Tubs 116 25Q FWKI to whlch Vth•n du• Details B5 Liabilitie• SKJned by Or trust$ on behalf ofall th• trust8 Datè of oval Print Namg CARLA ()AwJSO ?1/1 125 G5 CCXX R2 acGounts ISSI 20101r2025