| Page | |
|---|---|
| Reference an/ administrative details ofthe charity, its Trustees and advisers |
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| Trustees' report |
2-9 |
| Independent examiner's report |
10 |
| Statement offinancial activities | |
| Balance sheet | 12 |
| Notes tothe financial statements | 13-20 |
| Top | Ten Researc | h Priorit | ies | |
|---|---|---|---|---|
| Short Title | Full Priority Wording | |||
| What strategies can increase awareness and understanding ofDCM amongst |
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| Raising Awareness | healthcare professionals and the public? Can these strategies help improve |
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| timely dia nosis and management ofDCM? |
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| What is the natural history ofDCM? What is the relationship between DCM |
and | |||
| 2 | Natural History |
asymptomatic spinal cord compression or canal stenosis'? What factors |
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| Inliuence the natural history ofthe disease? |
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| 3 | Diagnostic | Cdteria | What is are the diagn'ostic criteria ofDCM? What is the role ofimaging and when should imaging be used in the assessment ofDCM? |
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| What assessment tools can be used to evaluate functional impairment, |
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| Assessment | and | disability and quality oflife in people with DCM? What instruments, tools or |
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| Monitoring | methods can be used or developed to monitor people with DCM Ibr disease |
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| progression or improvement either before orafter surgical treatment? |
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| 5 | Pathophysiology | What is the pathophysiology of DCM'? What are the mechanisms of neurological injuly and. the molecular and anatomical consequences? |
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| What is the role of rehabilitation following surgery for DCM'? Can structured |
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| 6 | Rehabilitation | postoperative rehabilitation improve outcome following surgery for DCM? What |
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| are the most effective strategies'? | ||||
| Can novel therapies, including stem-cell, gene, pharmacoiogical and |
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| 7 | Novel Therapies | neuroprotective therapies, improve the health and wellbeing ofpeople living with |
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| DCM and slow down disease progression? | ||||
| Socio-economic | What is the socio-economic impact of DCM'? (The hnancial impact ofliving |
vvith | ||
| Impact | OClM to the individual, their supporters and sociefy as a vAole) |
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| Imaging Techniques |
What is the role ofdynamic or novel imaging techniques and neurophysiology the assessment ofDCM? |
in | ||
| 10 | Individualising Sugary |
Are there clinical and imaging factors that can help a surgeon select who should undergo surgical decompression in the setting ofDCM? At what stage ofthe disease is surgery the preferred management strategy' ? |
| Restricted | Unrestricted | 'Total | Total | |||||
|---|---|---|---|---|---|---|---|---|
| funds | funds | funds | funds | |||||
| 2022 | 2022 | 2022 | 2021 | |||||
| Note | f. | |||||||
| Income from: | ||||||||
| Donations | 4,524 | 741829 | 79,353 | 118,317 | ||||
| Charitable activities |
2,252 | 2,252 | 4,946 | |||||
| Investments | 3 | 3 | 21 | |||||
| Total income | 4,524 | 77,084 | 123,284 | |||||
| Expenditure on: |
||||||||
| Raising funds | 3,785 | 3,785 | 1,842 | |||||
| Charitable activities |
8,618 | 69,939 | 78,557 | 73,512 | ||||
| Total expenditure | 8,618 | 73,724 | 82,342 | 75,354 | ||||
| Net movement | in funds | (4,094) | 3,360 | (734) | 47,930 | |||
| Reconciliation | offunds: | |||||||
| Total funds brought | forward | 4,094 | 52,329 | 56,423 | 8,493 | |||
| Net movement | in funds | (4,094) | 3,360 | (734) | 47,930 | |||
| Total funds carried forvvard | 55s689 | ' ' | 55&689 | 56r423 |
| Restricted | Unrestricted | Total | Total | |
|---|---|---|---|---|
| funds | funds | funds | funds | |
| 2022 | 2022 | 2022 | 2021 | |
| F | ||||
| Donations | 73,829 | 73,829 | 106,229 | |
| Grants | 4,524 | 1,000 | 5,524 | 12,088 |
| 4,524 | 74,829 | 79,353 | l18,317 | |
| Total 2021 | 12,088 | 106,229 | 118,317 |
| Unrestricted | Total | Total |
|---|---|---|
| funds | funds | funds |
| 2022 | 2022 | 2021 |
| 2,252 | 2,252 | 4,946 |
| Unrestricted | Total | Total |
|---|---|---|
| funds | funds | funds |
| 2022 | 2022 | 2021 |
| Unrestricted | Total | Total |
|---|---|---|
| funds | 'funds | funds |
| 2022 | 2022 | 2021 |
| 3,785 | 3,785 | 1,S42 |
| Activities | |||||
|---|---|---|---|---|---|
| undertaken | Suppott | Total | Total | ||
| directly | costs | funds | funds | ||
| 2022 | 2022 | 2022 | 2021 | ||
| R | |||||
| Charitable | activities | 2,695 | 75,862 | 78,557 | 73,512 |
| Total 2021 | 5,964 | 67,54S | 73;512 |
| Charitable | Total | Total | |
|---|---|---|---|
| activities | funds | funds | |
| 2022 | 2022 | 2021 | |
| K | |||
| Education | 2,538 | 2,538 | 3,095 |
| Research | 157 | $57 | 2,869 |
| 2,695 | 2,695 | 5,964 |
| Charitable | Total | Total | ||
|---|---|---|---|---|
| activities | funds | funds | ||
| 2D22 | 2D22 | 2021 | ||
| Staff costs | 14,291 | 14,291 | ||
| General office expenses | 584 | 584 | 71 | |
| Computer expenses | 1,000 | 1,DQD | 768 | |
| Insurance | 426 | 426 | 398 | |
| Subscriptions | 194 | 194 | f57 | |
| Travel and subsistence | 72 | 72 | ||
| Grant funded | Google advertisements | 49,920 | 49,92Q | 50,5f9 |
| Consultancy | 8,115 | 8,115 | 14,375 | |
| Governance | costs | 1,260 | 1,26D | 1,260 |
| 75,862 | 75,862 | 67,548 |
| 2022 | 2021 | ||
|---|---|---|---|
| Trade debtors | 2,252 | ||
| Prepayments | and accrued income | 167 | 149 |
| Tax recoverable | 625 | 5,000 | |
| Grants receivable | 2,088 | ||
| 3,044 | ?,23? |
| 2022 | 202$ | ||
|---|---|---|---|
| Trade creditors | 1,040 | 1,875 | |
| Accruals and deferred | income | 1,200 | 3,200 |
| 2,240 | 5,075 |
| Statement offunds | - current year | ||||
|---|---|---|---|---|---|
| Balance at | |||||
| Balance at 1 | 30June | ||||
| July 2021 | Income | Expenditure | 2022 | ||
| R | |||||
| Unrestricted funds |
|||||
| General Funds | 52,329 | T7,084 | (73,T24) | 55,689 | |
| Restricted funds | |||||
| Facing Myelopathy | Together | 4,094 | (4,094) | ||
| DCM COINS Project | 4,524 | (4,524) | |||
| 4,094 | 4,524 | (8,618) | |||
| Total offunds | 56,423 | 81,698 | }82,342} | 55,689 |