| Short Title | Full Priority Wording | ||
|---|---|---|---|
| What strategies can increase awareness and understanding ofDCM amongst |
|||
| Raising Awareness | healthcare professionals and the public? Can these strategies help improve |
||
| timely diagnosis and management ofDCM? |
|||
| 2 | Natural History |
What is the natural history ofDCM? What is the relationship between DCM asymptomatic spinal cord compression or canal stenosis'? What factors |
and |
| influence the natural history ofthe disease? |
|||
| Diagnostic Criteria |
What is are the diagnostic criteria ofDCM? What is the role of imaging and when should imaging be used in the assessment ofDCM? |
||
| What assessment tools can be used to evaluate functional impairment, |
|||
| Assessment and |
disability and quality oflite in people with DCM? What instruments, tools or |
||
| Monitoring | methods can be used or developed to monitor people with DCM for disease |
||
| progression or improvement either before or aRer surgical treatment? |
|||
| 5 | Pathophysiology | What is the pathophysiology ofDCM? What are the mechanisms of neurological injury and the molecular and anatomical consequences'? |
|
| What is the role of rehabilitation following surgery for DCM? Can structured |
|||
| Rehabilitation | postoperative rehabilitation improve outcome following surgery for DCM'? What |
||
| are the most effective strategies? | |||
| 1' | Novel Therapies | Can novel therapies, including stem-cell, gene, pharmacological and neuroprotective therapies, improve the health and wellbeing ofpeople liVing with |
|
| DCM and slow down disease progression' ? | |||
| Socio-economic | What is the socio-economic impact ofDCM? @hefinancial impact of living |
with | |
| Impact | OCM to the individual, their supporters and society as a whole) |
||
| Imaging Techniques | What is the role ofdynamic or novel imaging techniques and neurophysiology the assessinent ofDCM? |
in | |
| 10 | Individualising Surgery |
Are there clinical and imaging factors that can help a surgeon select who should undergo surgical decompression in the setting of DCM? At what stage of the disease is surgery the preferred management strategy? |
| Restricted | Unrestricted | Total | Total | |||
|---|---|---|---|---|---|---|
| funds | funds | funds | funds | |||
| 2021 | 2021 | 2021 | 2020 | |||
| Note | R | f. | ||||
| Income from." | ||||||
| Donations | 12,088 | 106,229 | 118,317 | 26,001 | ||
| Charitable activities |
4,946 | 4,946 | 7,727 | |||
| investments | 21 | 21 | ||||
| Total income | 12,088 | 111,196 | 123,284 | 33,728 | ||
| Expenditure on: |
||||||
| Raising funds | 1,842 | 1,842 | ||||
| Charitable activities |
7,994 | 65,518 | 73,512 | 29,870 | ||
| Total expenditure | 7,994 | 67,360 | 75,354 | 29,870 | ||
| Net movement | in funds | 4,094 | 435836 | 47,930 | 3,858 | |
| Reconciliation | offunds: | |||||
| Total funds brought forward | 8,493 | 8,493 | 4,635 | |||
| Net movement | in funds | 4,094 | 43,836 | 47,930 | 3,858 | |
| Total funds carried forward | 4,094 | 52,329 | 56,423 | 8,493 |
| Unrestricted | Total | Total |
|---|---|---|
| funds | funds | funds |
| 2021 | 2021 | 2020 |
| R | ||
| 4,946 | 4,946 | 7,727 |
| Unrestricted | Total | Total |
|---|---|---|
| funds | funds | funds |
| 2021 | 2021 | 2020 |
| R | ||
| 21 | 21 |
| Unrestricted | Total | Total | ||||
|---|---|---|---|---|---|---|
| funds | funds | funds | ||||
| 2021 | 2021 | 2020 | ||||
| Costs | ofraising | voluntary | income | 1,842 | 1,842 |
| Activities | |||||
|---|---|---|---|---|---|
| undertaken | Support | Total | Total | ||
| directly | costs | funds | funds | ||
| 2021f | 2021 | 2021 | 2020 | ||
| Charitable | activities | 5,964 | 67,548 | 73,512 | 29,870 |
| Total 2020 | 8,424 | 21,446 | 29,870 |
| Charitable | Total | Total | |
|---|---|---|---|
| activities | funds | funds | |
| 2021 | 2021 | 2020 | |
| Education | 3,095 | 3,095 | 3,559 |
| Research | 2,869 | 2,869 | 4,865 |
| 5,964 | 5,964 | 8,424 |
| Charitable | Total | Total | ||
|---|---|---|---|---|
| activities | funds | funds | ||
| 2021 | 2021 | 2020 | ||
| General office expenses | 71 | 71 | 1,020 | |
| Computer expenses |
768 | 768 | 647 | |
| Insurance | 398 | 398 | 248 | |
| Subscriptions | 157 | 157 | 157 | |
| Travel and subsistence | 182 | |||
| Grant funded | Google advertisements | 50,519 | 50,519 | 18,632 |
| Consultancy | 14,375 | 14,375 | ||
| Governance | costs | 1,260 | 1,260 | 560 |
| 67,548 | 67,548 | 21,446 |
| 2021 | 2020 | ||
|---|---|---|---|
| R | |||
| Prepayments | and accrued income | 149 | f49 |
| Tax recoverable | 5,000 | 2,438 | |
| Grants receivable | 2,088 | ||
| 7,237 | 2,587 |
| 2021 | 2020 | ||
|---|---|---|---|
| Trade creditors | 1,875 | ||
| Accruals | and deferred income | 3,200 | 750 |
| 5,075 | 750 |