The Endometriosis Foundation Jan 10[th] , 2022 – Jan 10[th] , 2023, Trustee Report
It currently takes on 7-9 YEARS from average the onset of symptoms to achieving a diagnosis of Endometriosis.
People with Endometriosis deserve better!
Trustee Report Stop denying people with Endometriosis January 10[th] , 2022 – January 10access to treatment![th] , 2023
The Endometriosis Foundation Jan 10[th] , 2022 – Jan 10[th] , 2023, Trustee Report
Charity Name
The Endometriosis Foundation
Registered Charity Number
1178525
Registered Charity Address
601 Prince Avenue
SS0 0JQ
Contact
0300 102 7007
www.theendometriosisfoundation.org hello@theendometriosisfoundation.org
The Endometriosis Foundation Jan 10[th] , 2022 – Jan 10[th] , 2023, Trustee Report
About us.
The Endometriosis Foundation is a not-for-profit organisation dedicated to raising awareness of Endometriosis, providing trusted and transparent information, education, and support. One of the biggest challenges people with Endometriosis face is accessing the right information and care which is why we are dedicated to arming people with transparent, reliable, and trusted information to help guide them through their journey with Endometriosis.
Our Mission.
Our mission is to create a future where Endometriosis is recognised and understood.
Our Vision.
Our vision is a future where everybody with Endometriosis receives the care and support they need, especially those within the later stages.
Our Goal.
Our goal continues to be to raise awareness of Endometriosis, providing reliable and trusted information. We continue to educate healthcare professionals and the public.
Our Story.
The Endometriosis Foundation was set up by Carla Cressy from Essex, England, who suffered from most of the obvious signs of Endometriosis from the age of just 13, but despite multiple visits to her GP and emergency admissions to A&E, for years her symptoms were dismissed and wrongly diagnosed.
Carla was officially diagnosed with Endometriosis aged 25, over a decade after her symptoms started. This late diagnosis impacted much of her adult life, resulting in 8 surgeries - including a bladder reconstruction, bowel surgery – resulting in a temporary ileostomy (stoma), and a total hysterectomy – taking away the chance of her ever bearing her own child, and forcing her into surgical menopause at just 29 years of age.
The Endometriosis Foundation Jan 10[th] , 2022 – Jan 10[th] , 2023, Trustee Report
To this very day, Carla has never received any information or support outside of her family and friends.
As a consequence of her suffering, she decided she wanted to make a difference. She set up an online support group which now helps thousands of people. She began carrying out talks in schools which led her to starting a national campaign to raise awareness of Endometriosis amongst those in education.
Her campaign was supported by our late, honourable Chair and Trustee, Sir David Amess - MP for Southend-West, to which on March 14th, 2018, The Endometriosis All-Party Parliamentary Group (APPG) was formed and a little over a year later, Endometriosis was included in the school curriculum.
About Endometriosis.
Endometriosis (pronounced en-doh-me-tree-o-sis) is a common yet widely under-recognised and misunderstood condition affecting more than 10% of the female population. It can cause enormous suffering but remains understudied, under-diagnosed and poorly treated.
In the UK, it currently takes on average between 7-9 years from the onset of symptoms to achieving a diagnosis of Endometriosis. This is unacceptable! In 8 years, a student completes an entire cycle of school.
Endometriosis can carry a lot of uncertainty and symptoms which can have a significant impact on a person's quality of life, affecting school attendance and the ability to pursue a professional career. The symptoms can impact fertility and relationships and can often result in feelings of isolation and depression.
In severe cases, Endometriosis can sometimes result in the loss of normal hormone activity and loss of reproductive function leading to infertility and early onset menopause. In the more extreme cases, Endometriosis can be life threatening by impacting on kidney, bowel and lung function, and there is currently no cure.
The Endometriosis Foundation Jan 10[th] , 2022 – Jan 10[th] , 2023, Trustee Report
People with Endometriosis deserve better!
Trustee Report January 10[th] , 2022 – January 10[th] , 2023
OUR YEARLY ACHIEVEMENTS.
The launch of our website
Our all-inclusive website is now officially live with tailored information for all those affected by Endometriosis including guidance on the treatments available, the signs to look out for, referral pathways, nutritional advice, and fertility. We regularly review and, where necessary, update our information ensuing people with Endometriosis have access to up-todate information and guidance, ensuring all those affected or at risk of developing Endometriosis can make informed decisions around their care.
Planning our 2023 campaign
This year we made a start on our fertility awareness campaign to encourage a fair and positive change for people living with Endometriosis. The campaign began with achieving sponsorship with leading endoscope manufacturer Karl Storz who provided space and equipment to hold our real stories campaign filming series only this time with a focus around fertility. We held two events, capturing stories from women through our community groups who bravely shared their experiences on camera. These story telling videos will be used to share real-life perspectives on how Endometriosis affects fertility and the struggles those affected face.
Confirmation of our official launch event
Our official launch event date has now been secured and will take place on Tuesday, 7[th] March 2023[, ] at the Palace of Westminster, House of Lords.
The Endometriosis Foundation Jan 10[th] , 2022 – Jan 10[th] , 2023, Trustee Report
Confirmation of our local to Southend-on-Sea launch event
Our official local launch event date has now been secured and will take place on Friday, 31[st] March 2023 at Porters Civic House, the Mayoral Parlour in Southend-on-Sea.
Sponsorship
We secured official sponsorship with the Centre for Reproductive and Genetic Health as their chosen charity.
The Endometriosis Foundation
12 months Accounts to 10th January 2023 Registered Charity Number 1178525
Income and Expenditure
| Income and Expenditure | |
|---|---|
| 10.01.23 | |
| INCOME | |
| Carla Cressey Accumulated Expenses 2018-2023 | |
| (relinquished) | £3,285.32 |
| Accumulated Accountants Expenses 2019-2023 | |
| (relinquished) | £250.00 |
| Fundraising | £778.37 |
| Sponsorship | £1,000.00 |
| Donations | £2,172.76 |
| Paypal | £66.88 |
| Easy Fundraising | £32.30 |
| Bank Interest | £26.69 |
| Total Income | £7,612.32 |
| EXPENDITURE | |
| Online support subscriptions & service including | |
| Email, web support, data analysis, dropbox, adobe, zoom | £483.90 |
| Phone Services | £120.00 |
| Home Office Costs | £360.00 |
| Accounting Costs | £25.00 |
| Fund Raising Regulator | £50.00 |
| Ansvar Insurance | £110.36 |
| Fund Raising Platform | £311.92 |
The Endometriosis Foundation Jan 10[th] , 2022 – Jan 10[th] , 2023, Trustee Report
£7.70
Bank Charges
Total Expenditure
Excess of Income over Expenditure
£1,468.88 £6,143.44
Notes:
Income for Year Ended 10.1.23 includes Carla Cressey expenses of £3,285.32 incurred in maintaining the charity from2018-2023 which have been relinquished to improve the financial status. The accounts fees for 2019-2023 have also been reclassified as a donation to the charity.
Fundraising activities during this period were adversely affected by personal illness and Covid-19.
The Trustees declare that they approve of the Trustees’ report above.
Signed on behalf of the charity’s trustees –
Signature
Full name
Dr. Joseph B Davis
Position (Trustee, Secretary, Chair etc)
Trustee
Date
24 July 2023
Charity registration number 1178525