2021-04-05-accounts - Pans/pandas UK

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www.panspandasuk.org Charity Number: 1178484

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Year ending 5 April 2021
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Annual Report 2020/21 PANS PANDAS UK

Annual Report Year ending 5th April 2021

Introduction

As Charity Secretary, I am pleased to present the Annual Report for 2020-21 for PANS PANDAS UK.

As a charity, PANS PANDAS UK is required to prepare an Annual Return, as the Charity’s gross income in the financial year exceeded £10,000.

The aim of this report is to explain, in plain English, what the Charity has achieved, and how its income has been spent.

The report also helps the Charity Commission to make sure that the details it holds are as complete and accurate as possible. The Annual Return gives the Commission basic financial details, and details of contacts, trustees, activities and of the charity’s classification.

This report is laid out in the following manner:

Section	1:What are PANS and PANDAS, and What is PANS PANDAS UK?	3
Section	2:This Annual Report - General	3
Section	3:Meeting Our Legal Requirements	3
Section	4:Reference and Administrative Details	4
Section	5:Structure, Governance and Management	5
Section	6:Objectives and Activities	5
Section	7:Achievements and Performance	10
Section	8:Financial Review	11
Section	9:Funds Held as Custodian Trustee on Behalf of Others	14
Section	10:Public Beneft Statement	14
Section	11:Plans for Future Periods	14
Section	12:Signed Statement	16

Annual Report Year ending 5th April 2021

Section 1: What are PANS and PANDAS, and what is PANS PANDAS UK?

PANS (Paediatric Acute-onset Neuropsychiatric Syndrome) and PANDAS (Paediatric Auto-immune, Neuropsychiatric Disorders Associated with Streptococcal Infections) are a set of conditions which result in inflammation of the brain, causing a variety of neuro-psychiatric conditions such as OCD, tics and eating disorders.

PANS PANDAS UK (called “we” or “us”) is a UK-wide Charity which was established by a dedicated and determined group of parents with children who are affected by PANS or PANDAS. PANS PANDAS UK commenced work as an organisation in 2017 creating a network of doctors and the PANS Physicians Network Meeting, setting up the Facebook support group, website, etc. Charity status was achieved on 22 May 2018.

PANS PANDAS UK was formed in order to raise awareness and understanding of these conditions amongst the general public and medical professionals. It is our mission to ensure that the conditions are known about in every GP Surgery, every school and every hospital, so every child can receive an early diagnosis and effective treatment. We are working closely with a network of doctors in order to ensure better diagnosis and early effective treatment for those suffering with these little-understood, but lifechanging conditions.

Please visit our website for more information:

www.panspandasuk.org

Section 2: This Annual Report - General

This Annual Report explains our aims and how we have gone about achieving them.

It has been prepared in accordance with the applicable legal requirements.

It gives a balanced view of the charity’s structure, aims, objectives, activities and performance. Importantly, it describes our primary sources of funding, and describes how the money was spent.

It highlights the main activities we have undertaken.

Section 3: Meeting Our Legal Requirements

SORP (FRS 102) is the Charity Commission’s Statement of Recommended Practice - Accounting and Reporting by Charities. We have therefore prepared this report, and our accounts, in accordance with that guidance, as we were founded after 1 January 2016.

Because our income lies between £25,000 and £250,000, we have prepared our accounts on a “Receipts and Payments” basis. This means that our accounts contain a statement summarising all money received and paid out in the financial year, and a statement of our assets and liabilities at the end of the year. Our accounts have been subject to independent examination.

Annual Report Year ending 5th April 2021

The detailed legal requirements for this report are set out in The Charities (Accounts and Reports) Regulations 2008 which provide a legal underpinning for many of the recommendations made in the applicable Charities SORP.

The headings used in our report follow this guidance, as follows:

V Reference and administrative details;
V Structure, governance and management;
V Objectives and activities;
V Achievements and performance;
V A financial review;
V Funds held as custodian trustee on behalf of others;
V Public benefit statement.

Section 4: Reference and Administrative Details

4.1. The Charity’s Name

The Charity’s name is PANS PANDAS UK.

4.2. The Charity’s Registration Number

The Charity’s number is 1178484.

4.3. The Address of the Principal Office

The Charity does not operate from premises, but by a network of people operating from their own homes. The Charity’s formal legal contact is through the Secretary, whose name and address are as follows:

Mrs Vicky Burford,

Lowfield, Long Itchington Road, Offchurch, Leamington Spa, CV33 9AY

The Charity’s Registered Office is as follows: Greville House, 10 Jury Street, Warwick, CV34 4EW

4.4. Names of Charity’s Trustees

Chair: Mrs Georgia Marie Tuckey, 41 Somerset Road, Ryde, Isle of Wight, PO33 1BU.

Secretary: Mrs Vicky Burford, Lowfields, Long Itchington Road, Offchurch, Leamington Spa, CV33 9AY.

Treasurer: Mr Philip Edwin Hall, 11, Fernhill Drive, Leamington Spa, CV32 4JX.

Adult Lead: Cindy Hvid, 78, Camilla Road, London, SE16 3NJ.

Advocacy Lead: Zoe Van Den Bosch, 113 Shortlands Road, Kingston, Surrey, KT2 6HF.

No other people served as a charity trustee or custodian trustee in the last financial year.

Annual Report Year ending 5th April 2021

Section 5: Structure, Governance and Management

5.1: Particulars of the Governing Document

The Charity has a formal Constitution, which was approved by the Charity Commission on 22 May 2018.

The Charity is run by the Trustees, as a management committee. The Trustees may be appointed at any time by the management committee.

The Charity operates by means of Trustee meetings, held on a video-conference basis, or physically meeting if necessary. The minutes of the meeting are formally recorded by the Secretary.

Section 6: Objectives and Activities

6.1: The Purposes of the Charity

PANS PANDAS UK was formed in order to raise awareness and understanding of PANS and PANDAS amongst the general public and medical professionals. It is our mission to ensure that the conditions are known about in every GP Surgery, every school and every hospital, so every child can receive an early diagnosis and effective treatment. We are working closely with a network of doctors in order to ensure better diagnosis and early effective treatment for those suffering with these little-understood, but lifechanging conditions.

During the year, the Charity’s objectives and constitution were extended in order to allow us to act as Advocates between families and medical professionals. The adopted wording is: “The provision of one-to-one support, education, practical advice and advocacy to the sufferers (and families) of the medical conditions PANS and PANDAS.”

6.2: The Main Activities Undertaken

Over the last year, we have:

V Held the third AGM in June 2019;
V Continued to grow the PANS Physician’s Network UK (PPN UK);
V Raised just over £50,000 in fundraising activities;
V Launched the 2021 Parent Survey;
V Held a number of All-Party Parliamentary Group (APPG) meetings;
V Put in pre-application for NICE Guidelines;
V Put in application for SIGN Guidelines;
V Appointed an Advocacy Lead to grow the service;
V Appointed an Education Executive to grow the resources for schools;
V Delivered a webinar for teachers, SENCOS and school nurses;
V Developed a number of new awareness videos;
V Funded research projects;
V Commissioned the writing of a UK-focused PANS and PANDAS book;
V Appointed a Young Ambassador;
V Held an Inaugural meeting with the BPNA Research Priority Group;
V Appointed a Media Executive to develop a media presence.

Annual Report Year ending 5th April 2021

6.2.1: Held the Third AGM

The AGM was held in June 2020 via Zoom due to the Coronavirus Pandemic.

The Trustees of the charity were joined by 29 individuals and despite some initial technical teething problems, the meeting was a success.

6.2.2: PANS Physician’s Network UK (PPN UK)

The PANS Physician’s Network UK is a network of medical professionals from different specialities including neurology, immunology, psychiatry, paediatrics and general practice who meet on a quarterly basis to understand PANS and PANDAS better by sharing experiences, treatment successes, discussing anonymous cases and undertaking training.

The meetings ran successfully via Microsoft Teams and we saw a greater number of medical professionals attending, which we put down to the fact that travel is no longer necessary in order to attend.

6.2.3 Fund Raising amounted to over £50,000

PANS PANDAS UK has been extremely fortunate to receive a large number of generous donations and been the recipients of many fundraising activities during 2020/2021.

PANS PANDAS UK instigated its first-ever charity-led fundraising campaign in 2020 by taking part in The Big Give’s Christmas Challenge. Over £30,000 was raised during this fundraiser alone. Fund-raising is accounted for by individuals’ contributions (£19,349) and by external fund-raising activities (£31.140).

6.2.4: Parent Survey

Our second annual parent survey was launched in March 2021 and was completed by 707 members. The comprehensive results will be published very soon, but some of the key data from this questionnaire can be seen below.

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What social care support have you received? 612 respondents
Not Sure/Other 6.54%
No 80.07% 80.07%
Court 0.16%
Child Protection Plan 0.82%
Child in Need Plan 3.27% 80% of families
Safeguarding Team 2.61%
Family Support Worker 8.5%
have not received any
Direct PaymentsRespite Care 2.29%3.76% social care support
Children with Disability Team 7.19%
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Annual Report Year ending 5th April 2021

How would you rate the severity of your child's symptoms at onset

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Mild 74
Moderate 202
Severe 339
Not sure 17
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What is the total esitamted financial impact due to your child's illness?

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Less than £5,000
£5,001 - £50,000
£50,001 - £100,000
More than £100,001
169 231 64 36
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How long did you wait between referral and your first CAMHS appointment? 327 respondents
Less than a month 71
More than 1 month but less than 6 months 155
More than 6 months but less than 1 year 60
More than 1 year but less than 18 months 39
More than 18 months but less than 2 years 13
More than 2 years 17
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Has your child ever been admitted to an inpatient or psychiatric institution?

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22 Yes, voluntarily with parental/carer agreement
2 Yes, via section and against our wishes
3 Yes, via section with parental/carer agreement
12 Other
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Annual Report Year ending 5th April 2021

6.2.5: All Party Parliamentary Group (APPG)

The PANS PANDAS All Party Parliamentary Group comprises a number of MP’s who, despite the challenges faced due to the pandemic, have been able to meet virtually on a number of occasions. These MPs, alongside peers, parent representatives, a respected PPN Doctor and the Charity come together in order to further the PANS PANDAS UK objective ‘Using an integrated inquiry-based approach against relevant legislation, policy and evidence base, reconcile the variation in the detection, diagnosis and provision of treatment of PANS and PANDAS in the UK’ For and on behalf of the thousands of families their children and adults.

6.2.6: Pre-application for NICE Guidelines

NICE is the National Institute for Health and Care Excellence and is the body responsible for producing treatment guidelines for the NHS. As a result of the successful APPG meetings and actions taken by the member MPs outlined above, PANS PANDAS UK has been invited to submit an application for NICE Guidelines. The pre-application has been submitted and we are waiting on a response before progressing to the next stage.

6.2.7: Application for SIGN Guidelines

SIGN is an acronym for Scottish Intercollegiate Guidelines Network and it is the body responsible for producing treatment guidelines in Scotland. A further result of the successful APPG meetings and actions taken by the member MPs is that PANS PANDAS UK has submitted an application for SIGN Guidelines. The application has gone to a decision meeting which is taking place in May 2021.

6.2.8: Appointed an Advocacy Lead to grow the service

Following the addition of Advocacy to the Charity’s objectives, PANS PANDAS UK has appointed an experienced Advocacy Lead with the intention of growing the advocacy service.

6.2.9: Appointed an Education Executive to develop the resources for schools

PANS PANDAS UK appointed an experienced Education Executive to grow a team and develop support resources for schools and support for parents seeking an Educational Health Care Plan (EHCP). An EHCP is a document created in order to identify and state the particular support that must be given to an individual child with additional educational needs. The Education Executive has created various resources for both schools and parents in order to support children in the classroom. CPDAccredited training is also being written in order to further support educators when dealing with pupils and students suffering with symptoms of PANS and PANDAS.

6.2.10: Hosted a webinar for schools

One of the first tasks undertaken by our Education Executive was to put on a webinar for educators, special educational needs Co-ordinators (SENCO’s), school nurses and educational psychologists. Attended by over 100 delegates the webinar is available on our website.

Annual Report Year ending 5th April 2021

6.2.11: Awareness Videos

PANS PANDAS UK released a selection of awareness videos during 2020 and the early part of 2021. These videos can be seen on our website or our YouTube Channel.

6.2.12: Funded Research Projects

PANS PANDAS UK is delighted to have been asked to fund a research project looking at identifying organic markers for Obsessive Compulsive Disorder (OCD). The project is currently undergoing ethical approval and will commence once approval is awarded.

6.2.13: Book

A book is being written which aims to cover all areas of PANS and PANDAS. It is anticipated that it will take the form of a ‘Guide to PANS and PANDAS’ and will be illustrated with real-life stories from individuals who have experienced PANS or PANDAS.

6.2.14: Young Ambassador

PANS PANDAS UK is pleased to have a Young Ambassador on board. Romy Worthington who has a presence on social media and YouTube under the name ‘Ticcer’s Unite’ has agreed to represent the charity to its younger members and has already made her mark, working with our media Executive and raising our Twitter, YouTube, Snapchat and TikTok profiles.

6.2.15: British Paediatric Neurological Association (BPNA) Research Priority Group

The British Paediatric Neurological Association (BPNA) is the professional organisation for doctors who specialise in the care of children with neurological disorders.

PANS PANDAS UK met the BPNA Research Priority Group representatives in 2021 and will be working with them to identify a research question in order to progress with some research, hopefully starting in 2022.

6.2.16: Developing Media Presence

Since appointing our Media Executive, the media profile of PANS PANDAS UK has gone from strength to strength, with appearances by our members on Channel 4’s ‘Steph’s Packed Lunch’ and various local BBC radio interviews. Dr Sarah Jarvis discussed the topics on BBC Radio 2’s Jeremy Vine show. All interviews can be accessed via our website.

Social media awareness is rising too as a result of the parents from the support group tweeting various celebrities, scientists, medical professionals and MP’s.

6.3: Statement of Compliance

The Trustees believe they have complied with the duty in Section 4 of the 2006 Act in having due regard to guidance on public benefit published by the Charity Commission.

Annual Report Year ending 5th April 2021

Section 7: Achievements and Performance

We report on our performance and achievements on several measures.

7.1: Our Main Mission

Our main mission is to ensure that PANS and PANDAS are known about in every GP Surgery, every school and every hospital. This is a long-term goal and will take some time to accomplish. Whilst we have not achieved this mission at this early stage, we are making good headway towards raising awareness in all of these areas as we described in Section 6.

7.2: “Members”

Currently PANS PANDAS UK does not have a formal ‘membership’ structure for the charity; we count the members of the Facebook support group as our membership. Currently, there are 3,621 members of the PANS PANDAS UK Support Group and 208 Members of the PANS PANDAS UK Support Group for Adults.

7.3: Service User Feedback

Here is some feedback the charity has received from individuals they have been able to support and some members of the online support group.

“So grateful for all you do. In 2012 when this illness started for us there was nothing, no charity, no official voice. To see where we are now because of you guys is amazing. I am so grateful for the charity and for all of you who put so much energy into it xxx”

“So happy to have found the charity. Months of having no idea what my daughter is suffering. We have a little bit of hope now on the horizon.”

“Thank you doesn’t seem big enough! But thank you so much for all of the time, heartache, strategy planning and love you put into advocating and trying to save our children.”

Annual Report Year ending 5th April 2021

“Thank you from the bottom of my heart! Honestly don’t know where we would be without the support provided by the amazing charity.”

“There is so much love care and support in this group, like every precious one in this group I can’t thank you enough for all you do. It will be forever appreciated.”

Section 8: Financial Review

8.1: The Reporting Period for this Report

The Charity’s financial performance reported below is for the period from 6 April 2020 to 5 April 2021.

8.2: Our Accounts and Bankers

The Charity operates using only one bank account, as follows: Santander Business Account Sort Code: 09 01 29 Account Number: 23328323.

8.3: Financial Results: Receipts and Payments, and Assets and Liabilities

We have prepared our accounts on a “Receipts and Payments” basis, which means that we have recorded cash flows in and out during the accounting period. The slight disadvantage in this approach is that some known future income, and some known expenditure, are not recorded. The magnitude of these known sums is minor in respect of the total turnover, and the financial position of the Charity.

The Assets and Liabilities Statement makes an assessment of these sums, in order to present the current status in respect of assets or liabilities.

The sheet overleaf (Form CC16a) presents the financial performance using the Charity Commission’s reporting Form CC16a. This form records:

V Section A: The Receipts and Payments during the financial year;

V Section B: The Assets and Liabilities of the Charity at the year end.

The assets of the Charity are the funds in our Santander Account, as that is the only account we hold. The Examiner agreed that a separate Assets and Liabilities Statement was not needed, as the Charity’s cash position represented its assets.

We have no fixed or material assets of any significance; we only hold trivial items such as stocks of stationery etc.

We have no property assets.

The assets and liabilities have been independently scrutinised, and the auditor has prepared a statement of conformity.

Annual Report Year ending 5th April 2021

Charity Name : Charity No: PANS / PANDAS UK 1178484 Receipts and payments accounts CC16a For the period To from 06/04/2020 05/04/2021

Section A Receipts and payments

A1 Receipts	Unrestricted funds to the nearest £ 50,489 - - 238 - - - - 50,727 - - - 50,727 16,959 - - 1,563 - - - - - 18,522	Restricted funds to the nearest £ - - - - - - - - - - - - - - - - - - - - - - -	Endowment funds to the nearest £ - - - - - - - - - - - - - - - - - - - - - - -	Total funds to the nearest £ 50,489 - - 238 - - - - 50,727 - - - 50,727 16,959 - - 1,563 - - - - - 18,522	Last year to the nearest £
Fund Raising	50,489				22,751
Conferences	-				-
PANS Physicians' Network	-				-
Exhibitor / Awareness	238				-
	-				-
	-				-
	-				-
	-				-
*Sub total*(Gross income for AR)	50,727				22,751

A2 Asset and investment sales, (see table).
	-
	-				-
*Sub total*	-				-
*Total receipts* A3 Payments
					22,751

Fund Raising	16,959	-	-	16,959	6,713
Conferences	-	-	-	-	3,865
PANS Physicians' Network	-	-	-	-	2,317
Exhibitor / Awareness	1,563	-	-	1,563	3,896
Transactions for nextyear's events	-	-	-	-	-
	-	-	-	-	-
	-	-	-	-	-
	-	-	-	-	-
	-	-	-	-	-
**Sub total **	18,522	-	-	18,522	16,791

A4 Asset and investment
purchases, (see table)
	-	-		-	-
	-	-		-	-
**Sub total **	-	-		-	-	-

*Total payments*	18,522	-		-	18,522	16,791
*Net of receipts/(payments)*	32,205	-		-	32,205	5,960
A5 Transfers between funds	-	-	-		-	-
A6 Cash funds last year end	22,415	-	-		22,415	16,455
*Cash funds this year end*	54,620	-		-	54,620	22,415

Annual Report Year ending 5th April 2021

Independent examiner’s report to the trustees of PANS PANDAS UK

I report on my examination of the accounts of the charity (“the Trust”) for the year ended 5[th] April 2021

Responsibilities of Trustees and Examiner

I report in respect of my examination of the Trust’s accounts carried out under section 145 of the 2011 Act and in carrying out my examination, I have followed all the applicable Directions given by the Charity Commission under section 145(5)(b) of the Act.

Independent Examiner’s statement

I have completed my examination. I confirm that no material matters have come to my attention in connection with the examination which gives me cause to believe that in, any material respect:

The accounting records were not kept in accordance with section 130 of the Charities Act; or
The accounts did not accord with the accounting records; or
The accounts did not comply with the applicable requirements concerning the form and content of accounts set out in the Charities (Accounts and Reports) Regulations 2008 other than any requirement that the accounts give a ‘true and fair’ view which is not a matter considered as part of an independent examination.

I have no concerns and have come across no other matters in connection with the examination to which attention should be drawn in this report in order to enable a proper understanding of the accounts to be reached.

Steven Mugglestone BA (Hons) FCA Michael Harwood & Co Chartered Accountants Greville House 10 Jury Street Warwick Warwickshire CV34 4EW

11 June 2021

Annual Report Year ending 5th April 2021

8.4 Policies on Reserves

We seek to hold a minimum bank balance equating to about 6 months’ turnover. This provides a more than sufficient buffer to allow us to meet our obligations, to undertake our activities, and to pay our suppliers promptly.

We will review this reserves policy in the light of more operational experience.

8.5 Funds in Deficit

We do not have any funds in deficit. Our only funds are, as has been described, held in the Santander account. This is in healthy surplus.

Section 9: Funds Held as Custodian Trustee on Behalf of Others

PANS PANDAS UK does not hold any assets in respect of other charities.

Section 10: Public Benefit Statement

We believe we have complied with the duty to have due regard to the guidance on public benefit published by the commission in exercising their powers or duties.

Section 11: Plans for Future Periods

Although only larger charities subject to statutory audit are required to provide details of plans for future periods, we nevertheless describe our plans for the following activities in the financial year 2020/21:

V Continue with APPG and follow up recommendations from MPs;
V Webinar for GP’s;
V Continue to expand our media profile;
V Identify doctors to work with PPN UK on adult issues;
V Create a network for functional doctors to run alongside the PPN;
V Create a network for nurses to run alongside the PPN;
V Fund more research in relation to PANS and PANDAS in the UK.

11.1: All-Party Parliamentary Group (APPG)

Following a number of virtual meetings with the APPG, recommendations for next steps remain the same as last year and are outlined below:

V Request that MPs begin an Early Day Motion.
V Gather names of ‘sympathetic MPs’ to support this motion, with the goal of parliamentary debate.
V Alert relevant media outlets on the progression of the cause and the condition of PANS/PANDAS.
V Have head of Select Committee request a meeting with Jeremy Hunt.
V Request that MPs engage in conversation with Secretary of State for Health and Social Care, Matt Hancock: pair specific asks with parliamentary action with the goal of NHS approval of treatment process in accordance to UK guidelines.

Annual Report Year ending 5th April 2021

V MPs to request meeting with Department of Health and Social Care
V Charity to organise meetings with NHS England, NHS Scotland, NHS Wales, NHS Health and Social Care Northern Ireland and Health Education England.

A number of these recommendations are underway.

11.2: Information Webinar for GP’s

Following the success of the recent Educator’s Webinar, PANS PANDAS UK plans to provide an information webinar for GPs. This will be approximately 1 hour in duration and will be free to access.

11.3: Expand on Media Profile and Finalise Documentary

The charity has a group of dedicated journalists, presenters, media and PR representatives who are all keen to work together to raise the profile of PANS and PANDAS. The charity is currently in discussions with a number of journalists and producers who are keen to cover this subject area.

11.4: Identify Doctors to Work with PPN UK on Adults

With the substantial increase in adult sufferers of PANS approaching the charity for support, it has become a priority for PANS PANDAS UK to identify doctors who are prepared to learn about the adult conditions and treat people accordingly.

11.5: Create a network for Functional Doctors to run alongside the PPN (PANS Functional Network)

There are different types of medical practice. Allopathic medicine relates to the kind of medicine we are familiar with from the NHS and when we visit our GP, and it is what might be considered as ‘normal’ medicine. There is a growing area of medicine known as functional medicine which involves a range of treatments including diet, exercise, herbal treatments and other treatments perhaps not offered via the NHS. Increasing numbers of the families we support are choosing functional medicine over allopathic medicine. PANS PANDAS UK has therefore decided that it would be in the best interests of our members to create a PANS Functional Network to run alongside the PPN UK, in order to share knowledge and experience. It may be at some point in the future that these two meetings will be streamlined into one larger meeting.

11.6: Create a network for Nurses to run alongside the PPN (PANS Nurses Network)

PANS PANDAS UK is receiving more and more enquiries from nurses who are involved in the care of children with these conditions. With this in mind, the Charity felt it was prudent to develop a network for these nurses to run alongside the PPN UK, in order to share knowledge, experience and ideas for moving awareness and treatment forward. It may be at some point in the future that all medical networks will be streamlined into one larger meeting.

11.7: Research

PANS PANDAS UK is keen to develop or identify and fund further research and/or clinical trials within the UK in order to identify the very best course of treatment for individuals affected by these conditions.

Annual Report Year ending 5th April 2021

Section 12: Signed Statement

I, Vicky Burford, hereby sign this Annual Report as a true record of the activities of the Charity for the year from 6th April 2020 to 5th April 2021.

Signed: …………………………………………………………..

Name: Vicky Burford

Position: Secretary, PANS PANDAS UK.

Date: ………………………………….26 August 2021

Having been duly authorised to do so by the Trustees of the Charity.

Digitally Signed Document Document ID: 6BBEB13CAE3232

Document Details:

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Filename: 21.06.11 PANS PANDAS UK 2021 Accounts.PDF
Client of: Michael Harwood & Co
Signature Details
Name: Vicky Burford
Email: secretary@panspandasuk.org
Date & Time: 29/07/2021 12:45:36 (BST)
IP Address: 78.145.149.164
PANS / PANDAS UK confirms that the information is correct
Signing Statement:
and complete to the best of their knowledge and belief.
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REGISTERED CHARITY NUMBER: 1178484

REPORT OF THE TRUSTEES AND UNAUDITED FINANCIAL STATEMENTS FOR THE YEAR ENDED 5 APRIL 2021

FOR

PANS / PANDAS UK

Michael Harwood & Co Chartered Accountants Greville House 10 Jury Street Warwick Warwickshire CV34 4EW

PANS / PANDAS UK

CONTENTS OF THE FINANCIAL STATEMENTS for the Year Ended 5 April 2021

		Page
Report of the Trustees	1	to	2
Independent Examiner's Report		3
Statement of Financial Activities		4
Balance Sheet		5
Notes to the Financial Statements	6	to	8
Detailed Statement of Financial Activities		9

PANS / PANDAS UK

REPORT OF THE TRUSTEES for the Year Ended 5 April 2021

The trustees present their report with the financial statements of the charity for the year ended 5 April 2021. The trustees have adopted the provisions of Accounting and Reporting by Charities: Statement of Recommended Practice applicable to charities preparing their accounts in accordance with the Financial Reporting Standard applicable in the UK and Republic of Ireland (FRS 102) (effective 1 January 2019).

OBJECTIVES AND ACTIVITIES

Objectives and aims

PANS PANDAS UK (called "we" or "us") is a UK-wide Charity which was established by a dedicated and determined group of parents with children who are affected by PANS or PANDAS. PANS PANDAS UK commenced work as an organisation in 2017 creating a network of doctors and the PANS Physicians Network Meeting, setting up the Facebook support group, website, etc. Charity status was achieved on 22 May 2018.

Please visit our website for more information:

www.panspandasuk.org

FINANCIAL REVIEW

Going concern

The Charity's financial position in the year 2020/21 was, quite fortunately, unaffected by Covid. In the previous year (2019/20), our income from individual donations was £4,808, and this rose to £19,349 in 2020/21. We did not expect individual donations to be affected, but nor did we expect such a significant rise. The income source which may have been susceptible to Covid was fund-raising events. In 2019/20, events raised £17,811, but this too rose substantially to £31,140 in the last financial year of 2020/21. The Charity has survived Covid in a strong position.

STRUCTURE, GOVERNANCE AND MANAGEMENT Governing document

The charity is controlled by its governing document, a deed of trust and constitutes an unincorporated charity.

REFERENCE AND ADMINISTRATIVE DETAILS Registered Charity number

1178484

Principal address

Lowfields Long Itchington Road Offchurch Leamington Spa CV33 9AY

Trustees

Mrs G Tuckey Mrs V Burford P Hall Ms C Hvid Ms Z Van Den Bosch

Independent Examiner

Michael Harwood & Co Chartered Accountants Greville House 10 Jury Street Warwick Warwickshire CV34 4EW

Page 1

PANS / PANDAS UK

REPORT OF THE TRUSTEES for the Year Ended 5 April 2021

Approved by order of the board of trustees on 11 June 2021 and signed on its behalf by:

Mrs V Burford - Trustee

Page 2

INDEPENDENT EXAMINER'S REPORT TO THE TRUSTEES OF PANS / PANDAS UK

Independent examiner's report to the trustees of PANS / PANDAS UK

I report to the charity trustees on my examination of the accounts of PANS / PANDAS UK (the Trust) for the year ended 5 April 2021.

Responsibilities and basis of report

As the charity trustees of the Trust you are responsible for the preparation of the accounts in accordance with the requirements of the Charities Act 2011 ('the Act').

I report in respect of my examination of the Trust's accounts carried out under section 145 of the Act and in carrying out my examination I have followed all applicable Directions given by the Charity Commission under section 145(5)(b) of the Act.

Independent examiner's statement

I have completed my examination. I confirm that no material matters have come to my attention in connection with the examination giving me cause to believe that in any material respect:

accounting records were not kept in respect of the Trust as required by section 130 of the Act; or 2. the accounts do not accord with those records; or
the accounts do not comply with the applicable requirements concerning the form and content of accounts set out in the Charities (Accounts and Reports) Regulations 2008 other than any requirement that the accounts give a true and fair view which is not a matter considered as part of an independent examination.

Steven Mugglestone BA (Hons) FCA Michael Harwood & Co Chartered Accountants Greville House 10 Jury Street Warwick Warwickshire CV34 4EW

11 June 2021

Page 3

PANS / PANDAS UK

STATEMENT OF FINANCIAL ACTIVITIES for the Year Ended 5 April 2021

		5.4.21	5.4.20
		Unrestricted	Total
		fund	funds
	Notes	£	£
INCOME AND ENDOWMENTS FROM
Donations and legacies		50,727	22,751
EXPENDITURE ON
Raising funds		18,522	16,791
NET INCOME		32,205	5,960
RECONCILIATION OF FUNDS
Total funds brought forward		22,415	16,455
TOTAL FUNDS CARRIED FORWARD		54,620	22,415

The notes form part of these financial statements

Page 4

PANS / PANDAS UK

BALANCE SHEET 5 April 2021

5.4.21 Unrestricted fund Notes £ CURRENT ASSETS Cash at bank 54,620 NET CURRENT ASSETS 54,620 TOTAL ASSETS LESS CURRENT LIABILITIES 54,620 NET ASSETS 54,620 FUNDS 4 Unrestricted funds 54,620 TOTAL FUNDS 54,620	5.4.20 Total funds £ 22,415
	22,415
	22,415
	22,415
	22,415
	22,415

The financial statements were approved by the Board of Trustees and authorised for issue on 11 June 2021 and were signed on its behalf by:

V Burford - Trustee

The notes form part of these financial statements

Page 5

PANS / PANDAS UK

NOTES TO THE FINANCIAL STATEMENTS for the Year Ended 5 April 2021

1. ACCOUNTING POLICIES

Basis of preparing the financial statements

The financial statements of the charity, which is a public benefit entity under FRS 102, have been prepared in accordance with the Charities SORP (FRS 102) 'Accounting and Reporting by Charities: Statement of Recommended Practice applicable to charities preparing their accounts in accordance with the Financial Reporting Standard applicable in the UK and Republic of Ireland (FRS 102) (effective 1 January 2019)', Financial Reporting Standard 102 'The Financial Reporting Standard applicable in the UK and Republic of Ireland' and the Charities Act 2011. The financial statements have been prepared under the historical cost convention.

Income

All income is recognised in the Statement of Financial Activities once the charity has entitlement to the funds, it is probable that the income will be received and the amount can be measured reliably.

Expenditure

Liabilities are recognised as expenditure as soon as there is a legal or constructive obligation committing the charity to that expenditure, it is probable that a transfer of economic benefits will be required in settlement and the amount of the obligation can be measured reliably. Expenditure is accounted for on an accruals basis and has been classified under headings that aggregate all cost related to the category. Where costs cannot be directly attributed to particular headings they have been allocated to activities on a basis consistent with the use of resources.

Taxation

The charity is exempt from tax on its charitable activities.

Fund accounting

Unrestricted funds can be used in accordance with the charitable objectives at the discretion of the trustees.

Restricted funds can only be used for particular restricted purposes within the objects of the charity. Restrictions arise when specified by the donor or when funds are raised for particular restricted purposes.

Further explanation of the nature and purpose of each fund is included in the notes to the financial statements.

2. TRUSTEES' REMUNERATION AND BENEFITS

There were no trustees' remuneration or other benefits for the year ended 5 April 2021 nor for the year ended 5 April 2020.

Trustees' expenses

There were no trustees' expenses paid for the year ended 5 April 2021 nor for the year ended 5 April 2020.

3. COMPARATIVES FOR THE STATEMENT OF FINANCIAL ACTIVITIES

	Unrestricted
	fund
	£
INCOME AND ENDOWMENTS FROM
Donations and legacies	22,751
EXPENDITURE ON
Raising funds	16,791
NET INCOME	5,960
RECONCILIATION OF FUNDS
Total funds brought forward	16,455
TOTAL FUNDS CARRIED FORWARD	22,415

Page 6

continued...

PANS / PANDAS UK

NOTES TO THE FINANCIAL STATEMENTS - continued for the Year Ended 5 April 2021

4. MOVEMENT IN FUNDS

		Net
		movement	At
	At 6.4.20	in funds	5.4.21
	£	£	£
Unrestricted funds
General fund	22,415	32,205	54,620
TOTAL FUNDS	22,415	32,205	54,620
Net movement in funds, included in the above are as follows:
	Incoming	Resources	Movement
	resources	expended	in funds
	£	£	£
Unrestricted funds
General fund	50,727	(18,522)	32,205
TOTAL FUNDS	50,727	(18,522)	32,205
Comparatives for movement in funds
		Net
		movement	At
	At 6.4.19	in funds	5.4.20
	£	£	£
Unrestricted funds
General fund	16,455	5,960	22,415
TOTAL FUNDS	16,455	5,960	22,415
Comparative net movement in funds, included in the above are as follows:
	Incoming	Resources	Movement
	resources	expended	in funds
	£	£	£
Unrestricted funds
General fund	22,751	(16,791)	5,960
TOTAL FUNDS	22,751	(16,791)	5,960
A current year 12 months and prior year 12 months combined position is as follows:
		Net
		movement	At
	At 6.4.19	in funds	5.4.21
	£	£	£
Unrestricted funds
General fund	16,455	38,165	54,620
TOTAL FUNDS	16,455	38,165	54,620

Page 7

continued...

PANS / PANDAS UK

NOTES TO THE FINANCIAL STATEMENTS - continued for the Year Ended 5 April 2021

4. MOVEMENT IN FUNDS - continued

A current year 12 months and prior year 12 months combined net movement in funds, included in the above are as follows:

	Incoming	Resources	Movement
	resources	expended	in funds
	£	£	£
Unrestricted funds
General fund	73,478	(35,313)	38,165
TOTAL FUNDS	73,478	(35,313)	38,165

5. RELATED PARTY DISCLOSURES

There were no related party transactions for the year ended 5 April 2021.

Page 8

PANS / PANDAS UK

DETAILED STATEMENT OF FINANCIAL ACTIVITIES for the Year Ended 5 April 2021

	5.4.21	5.4.20
	£	£
INCOME AND ENDOWMENTS
Donations and legacies
Donations	50,489	22,751
Exhibitor / Awareness	238	-
	50,727	22,751
Total incoming resources	50,727	22,751
EXPENDITURE
Other trading activities
Fund raising	16,959	6,713
Conferences	-	3,865
PANS Physician's network	-	2,317
Exhibitor / Awareness	1,563	3,896
	18,522	16,791
Total resources expended	18,522	16,791
Net income	32,205	5,960

This page does not form part of the statutory financial statements

Page 9

Independent examiner’s report to the trustees of PANS PANDAS UK

I report on my examination of the accounts of the charity (“the Trust”) for the year ended 5[th] April 2021

Responsibilities of Trustees and Examiner

Independent Examiner’s statement

I have completed my examination. I confirm that no material matters have come to my attention in connection with the examination which gives me cause to believe that in, any material respect:

The accounting records were not kept in accordance with section 130 of the Charities Act; or
The accounts did not accord with the accounting records; or
The accounts did not comply with the applicable requirements concerning the form and content of accounts set out in the Charities (Accounts and Reports) Regulations 2008 other than any requirement that the accounts give a ‘true and fair’ view which is not a matter considered as part of an independent examination.

Steven Mugglestone BA (Hons) FCA Michael Harwood & Co Chartered Accountants Greville House 10 Jury Street Warwick Warwickshire CV34 4EW

11 June 2021