OpenCharities

This text was generated using OCR and may contain errors. Check the original PDF to see the document submitted to the regulator.

2021-03-31-accounts

WARRIORS Supporting Children With Cystic Fibrosis

ANNUAL REPORT 2020 - 2021

I'UA

ANNUAL REPORT 2020 - 2021

CONTENTS

4 - An introduction from our ceo

5 - report of the trustees

6 - what we have delivered this year

7 - warrior pack program

8 - research funding

11 - EVENTS

15 - plans for the future

16 - supporters

17 - independent examiners report

18 - Financial Statements

3[3]

ANNUAL REPORT 2020 - 2021

Introduction

CF Warriors was founded to motivate, inspire and support children with cystic fibrosis on their journey to a longer, happier and healthier life. Our mission is to raise awareness of the benefits of sport and exercise to the CF community across the globe, through events, our Warrior Pack Program, and the publication of vital research funded by the charity.

In March 2020 the world became a different place, and the UK was put into lockdown, which made it incredibly difficult for everyone in the country, particularly people dealing with cystic fibrosis. Fortunately, we have been able to continue to operate the charity, and to support families dealing with cystic fibrosis by sending out Warrior Packs to over 250 CF Warriors, not just in the UK but around the world. In October of 2020 we moved into a new commercial unit, as we needed more space for all the new Warrior Pack goodies, and event

equipment we had acquired over the past 2 years, which has given us a base to work from and room to expand.

The charity is so excited to have begun our partnership with the University of Portsmouth and has agreed to a 3-year collaborative programme of research and dissemination of knowledge to promote the benefits of

physical activity, exercise and good nutrition for people with cystic fibrosis.

It is the hope of the charity that we have been able to bring some light in the dark times of this pandemic, and we will continue to do so for as long as we can. Our aim is to reach every child born with this terrible disease, to help them see that they are part of a larger

community who are there to support each other through the hardest of times.

With the help of our friends and supporters who have been so generous with their time throughout the year, we hope to reach even more children in the coming years and build upon what is already a wonderful

community.

Mark Llewellyn-Jones

CEO

4

ANNUAL REPORT 2020 - 2021

Report Of The Trustees For The Period 1st April 2020 To 31st March 2021

The Trustees present their report and financial statements for the period ended 31st March 2021

Structure, Governance & Management

CF Warriors is a Charitable Incorporated Organisation, governed by its constitution as set out in the charityʼs governing document.

Board of Trustees

CF Warriors continues to recruit skilled and experienced trustees to the board to strengthenour team and drive our vision forward.

Management

As CEO, Mark manages the day-to-day operations of the charity, ensuring that the CFWarriors charity delivers its vision and mission each week to the families that register with us. This includes all correspondence to the charity, managing the Warrior Pack Program, event organisation and fundraising, website and social media channels, and liaising with our Research Funding Partners at the University of Portsmouth.

5

ANNUAL REPORT 2020 - 2021

What We Have Delivered This Year

CF Warriors has two main objectives that help deliver the vision of the charity.

Warrior Pack Program

Firstly, there is our Warrior Pack Program which is ongoing and is designed to inspire, motivate and show children suffering with cystic fibrosis that they are part of a larger community. This year we delivered 258 Warrior Packs to families around the world dealing with cystic fibrosis.

Research Funding

Secondly, there is our Research Funding Program, which has received its first round of funding - £25,200 - as part of a 3-year project in partnership with the University of Portsmouth. The charityʼs aims through the research funding are to provide information to parents regarding nutrition, hydration and salt intake when their children are exercising or doing physical activities. We also want to help remove some of the barriers that can often cause children to stop using exercise, or any physical activity, as a way of staying fit and healthy. For example, by targeting some of the nutritional problems CF sufferers have to deal with, it is our hope that this research will give an insight into the effects of good nutrition on combatting the negative impacts of this disease, and help them engage in safe and effective lifelong exercise.

6

ANNUAL REPORT 2020 - 2021

Warrior Pack Program

Our Warrior Pack program has been very popular over the last 12 months, and we have continued to develop & distribute our Packs, including more items that we hope children will find useful, help them feel like part of a larger community and motivate them to stay as fit and healthy as possible.

We have sent out over 250 Warrior Packs to members of the CF community this year, from countries all over the world, a 20% increase on last year. The packs cost £50 to produce, and the costs of sending them vary depending on which country the recipients live in, these costs range from £3 to £30. We also receive requests from many returning families for larger clothing as their children outgrow their Warrior Packs. It is our commitment to these children to meet these needs wherever possible as part of our core charitable objectives.

We know from the many messages we receive on a weekly basis what these packs mean to families and children growing up with cystic fibrosis, and we aim to respond to every request positively so that every child born with this disease can be included in the community.

7

ANNUAL REPORT 2020 - 2021

Research Funding

Partnership between the School of Sport, Health and Exercise Science (University of Portsmouth) and the CF Warriors

This partnership is an initial three-year collaborative programme of research and dissemination of knowledge and education between the School of Sport, Health and Exercise Science at the University of Portsmouth and the CF Warriors charity.

Central to this partnership is the promotion of the benefits of physical activity, exercise and good nutrition for people with cystic fibrosis. This involves conducting research studies to answer important questions raised by people with cystic fibrosis to help them engage in safe and effective lifelong exercise, as well as translating and publicising our collaborative research findings and other key educational sessions to people with cystic fibrosis through the charity network.

The 3 years, full-time, fully funded PhD studentship is being supervised by Dr Zoe Saynor, a world leading expert in exercise and cystic fibrosis, and an active member of the European Cystic Fibrosis Society exercise working group, alongside Dr Jo Corbett and Dr Anthony Shepherd. Additional clinical and research input will also come from clinical colleagues and an ongoing collaborative with the adult and paediatric cystic fibrosis services at the University Hospital Southampton NHS Foundation Trust.

The title of the PhD is:

Exercise and Nutrition for People with Cystic Fibrosis in the Modulator Era

The successful candidate will join the Physical Activity, Health and Rehabilitation Thematic Research Group, led by Dr Zoe Saynor, whilst also working closely with colleagues in the Extreme Environments Thematic Research Group. This position also involves working closely with clinical colleagues (clinicians and physiotherapists) within the respiratory and paediatric departments at the University Hospital Southampton NHS Foundation Trust. The primary research environments are the exercise laboratories at the University of Portsmouth. The successful candidate will be working in a team with her supervisors and clinical staff and will be fully immersed in running clinical trials and the analyses of data.

8

ANNUAL REPORT 2020 - 2021

The title of the PhD is:

Exercise and Nutrition for People with Cystic Fibrosis in the Modulator Era

The successful candidate will join the Physical Activity, Health and Rehabilitation Thematic Research Group, led by Dr Zoe Saynor, whilst also working closely with colleagues in the Extreme Environments Thematic Research Group. This position also involves working closely with clinical colleagues (clinicians and physiotherapists) within the respiratory and paediatric departments at the University Hospital Southampton NHS Foundation Trust. The primary research environments are the exercise laboratories at the University of Portsmouth. The successful candidate will be working in a team with her supervisors and clinical staff and will be fully immersed in running clinical trials and the analyses of data.

They are expected to conduct research that has been informed by people with cystic fibrosis and aims to benefit people with cystic fibrosis. Specifically, the research undertaken aims to further our understanding on the topics of exercise and nutrition for people with cystic fibrosis as we transition into the modulator era, building on previous work conducted by the supervisory team.

This PhD studentship is an exciting opportunity in partnership with the Charity, and the student will also be working closely with the charity to disseminate research findings to people with cystic fibrosis and their families.

As well as conducting research, Dr Zoe Saynor and the PhD student will collaborate closely with the charity and will be available to deliver monthly Q&A sessions through the CF Warriors platform. Both will also be available to deliver educational sessions. Josh Llewellyn-Jones has agreed to provide a talk at the University of Portsmouth free of charge once a year as part of the program. Dr Zoe Saynor will be an advocate for the charity and available when needed for talks / Q&As free of charge.

9

ANNUAL REPORT 2020 - 2021

PhD Programme of Research to commence in October 2021:

The schedule of research is as follows:

Study 1 Evaluate the current hydration / salt requirement for people with CF (global)

Study 4 Evaluate the knowledge regarding diet and exercise in people with CF

Study 6 Laboratory study: Explore the effects of an alternative low-sugar high-calorie supplement versus currently prescribed supplements for people with cystic fibrosis on glycaemic control, fat oxidation at rest and during exercise and vascular health

The initial grant of £25,200 was made this year, to be followed by a further two payments of £26,400 in October 2022 and £27,600 in October 2023.

10

ANNUAL REPORT 2020 - 2021

Events

Unfortunately, due to the pandemic, group events like the Warrior Games, or any dinners that we were planning, were put on hold. However, the CF Warriors community didnʼt let us down, and came out in force to do their own challenges to help us raise money and awareness for the charity.

Warrior Games

This yearʼs event was unfortunately cancelled but we still had donations from some amazing supporters who also helped raise awareness for the charity through some of their social media content where they talked about the charity. Massive thank you to Jonny Gray and the rest of the team at the RAF for keeping us updated throughout the changing situation during lockdown. We hope to be back in 2022!

Ben Mudge - £903 - Cycle / Assault Bike Marathon Challenge

Ben, who has cystic fibrosis, wanted to take on a challenge he could do while self-isolating, so decided what better way than to do a marathon on his home bike. However, in true CF Warrior style, he wanted to push himself and show what he could do so did a marathon x2.6 while helping the charity to raise awareness and funds.

Rhys Jenkins - Wales Coast Path - £2,091

Over the course of 3 weeks in August 2020, Rhys Jenkins, an ultra-marathon runner from Cardiff, took on 870 miles of the Wales Coast Path. Starting in the North and running South, he covered every inch of the worldʼs first ever coastal path. The journey began in Chester and ended in Chepstow.

To give you a sense of the challenge – it is the equivalent of running 33.2 marathons and climbing the height of Everest 4.5 times."

11

ANNUAL REPORT 2020 - 2021

Events

Next Gen Planners - 24-hour Global Commute - £2,738

The 24-Hour Global Commute combined two things:

• Raising money for 2 charities via charity challenges from the NextGen Planners Community;

• Speaking with financial planners from all around the globe.

Their two chosen charities were CF Warriors and Stroke Association. They chose these charities because their loyal contributors to the Next Gen Planners Morning Commute have been directly affected by the causes that these charities strive to help.

Some of the challenges that their brave volunteers took part in included climbing Mount Everest (on the stairs), rowing the English Channel (in the garden) and more socially distanced endurance-style challenges. All to promote the importance of sport and exercise to stay fit and healthy.

Linc Cymru - 870 Challenge - £871

Linc Cymruʼs team of colleagues had a plan to cover 870 miles – the length of the Wales Coastal Path and raise £870 for CF Warriors.

At a time when exercise and fresh air are proving to be vital for everyoneʼs wellbeing, they thought that this would be a perfect time for a physical challenge in the great outdoors, (in their local area of course!)

Their plan allowed them to cover as many miles as they want, whether it was 2, 5 or even 10 miles; it all counted and would help them reach their goal. The idea was that they could walk, run, cycle or even get creative – 8 minutes on a trampoline is equivalent to 1 mile, and half hour of dancing during a home disco was 2 miles of exercise.

12

ANNUAL REPORT 2020 - 2021

Events

Cooper Sheppard – Cooper’s CF 65 Challenge - £565

9-year-old Cooper, who has a younger brother with cystic fibrosis, had been taking part in exercising with Josh at 7pm every evening, and enjoyed the classes so much that he decided he would like to do something to help fundraise for CF Warriors, so he decided to do a challenge and came up with his CF 65 Challenge.

His challenge was to do 65 sit ups, 65 mountain climbers, 65 jumping Jack's, a 65-minute bounce on the trampoline and 65 squats – all to be completed in 2.5 hours! He helped the charity raise some much-needed funds while also helping to raise awareness and inspire people who follow the charity to stay active during the pandemic

Enzo Gibson – Cinder Track Challenge - £1,380

Enzo, one of our CF Warriors (and Alec!) rode his new bike from Whitby to Scarborough to raise some funds for the charity, on the Cinder Track, a 21.5-mile route, which is pretty big for a 6-year-old! They actually managed 22.6 miles in just under 3.5 hours!

Kerrie Stoner - Home Lockdown Workouts & Bootcamps - £1,437

Kerrie started her free home lockdown workouts to help keep people motivated and moving at a very uncertain time for everyone. We all know how important it is to keep the body and mind active where possible, and her help and support had huge benefits for everyone involved. We had so many wonderful messages regarding all the hard work Kerrie put into

each workout.

As some of the restrictions were removed after the initial lockdown, Kerrie started her outdoor bootcamps to get people exercising together and raised so much awareness for the importance of exercise not only physically, but also for everyoneʼs mental wellbeing.

13

ANNUAL REPORT 2020 - 2021

Events

Elaine Milne – X-Box Warriors - £1,447

Elaine persuaded 4 boys from Scotland to team up in the last few hours of lockdown before they went back to school, to game for 16 hours to raise awareness CF Warriors and they didnʼt disappoint, gaming all the way through the night to help raise money for the charity, with help from their mums and Elaine!

Josh Llewellyn-Jones

Instagram & Facebook workouts during lockdown to help get children with cystic fibrosis (and others) up and exercising for at least 15 minutes every day at 7pm Christmas Advent – Workouts with CF Warriors online thr ughout December to motivate children to keep fit and active in the lead up to Christmas

14

ANNUAL REPORT 2020 - 2021

Plans For The Future

• To enhance our partnership with the University of Portsmouth and our Research Funding Program through development of clear communication material on findings of the research

Volunteers

A huge thank you to all the volunteers who made the last year such a memorable one and helped the charity to continue to raise awareness while the country was still in lockdown. This is not a full list of everyone who played a part in the charity throughout the year as several of our events were held remotely without our direct participation, but their involvement in the CF Warriors community is no less important than those that get special mention

15

ANNUAL REPORT 2020 - 2021

Supporters

A huge thank you to our network of supporters who have helped fund the charity throughout the year, and to all those who took up a challenge to help raise funds and awareness for the charity through the pandemic.

ors

16

ANNUAL REPORT 2020 - 2021

Independent examiner's report on the accounts

Section A Independent Examinerʼs Report

Report to the trustees/ CF Warriors members of On accounts for the year 31 March 2021 Charity no 1178063 ended (if any) Set out on pages The Trusteeʼs Report and Accounts set out on pages 1 to 13 I report to the trustees on my examination of the accounts of the above charity (“the Trust”) for the year ended 31 March 2021 Responsibilities and As the charity's trustees, you are responsible for the preparation of the basis of report accounts in accordance with the requirements of the Charities Act 2011 (“the Act”).

I report in respect of my examination of the Trustʼs accounts carried out under section 145 of the 2011 Act and in carrying out my examination, I have followed all the applicable Directions given by the Charity Commission under section 145(5)(b) of the Act.

Independent I have completed my examination. I confirm that no material matters have examiner's statement come to my attention in connection with the examination which gives me cause to believe that in, any material respect:

I have no concerns and have come across no other matters in connection with the examination to which attention should be drawn in this report in order to enable a proper understanding of the accounts to be reached.

Signed:
Name:
Relevant professional
qualification(s) or body
(if any):
Address:		 Date: 25 January 2022
Stephen Thomas
ACA
Fairoaks, 1 Pentre-poeth Road, Bassaleg, NP10 8LN

17

ANNUAL REPORT 2020 - 2021

----- Start of picture text -----
Charity Name No (if any)
CF Warriors 1178063
Receipts and payments accounts CC16a
For the period Period start date Period end date
To
from 01/04/2020 31/03/2021
Section A Receipts and payments
Unrestricted Restricted Endowment
Total funds Last year
funds funds funds
to the nearest £ to the nearest £ to the nearest £ to the nearest £ to the nearest £
A1 Receipts
Donations 28,959 - - 28,959 97,002
Event sponsorship and ticket sales - - - - 9,762
- - - - -
- - - - -
- - - - -
- - - - -
- - - - -
- - - - -
Sub total (Gross income for AR) 28,959 - - 28,959 106,763
A2 Asset and investment sales, (see
table).
- - - -
- - - - -
Sub total - - - - -
Total receipts 28,959 - - 28,959 106,763
A3 Payments
Grants to fund research 25,200 - - 25,200 -
"CF Warrior" packs distributed free of charge 17,750 - - 17,750 13,963
Employee costs 22,268 - - 22,268 8,746
Office costs and fundrasing expenses 4,632 - - 4,632 22,577
Social media expenses 3,010 3,010 1,750
Legal and professional fees 1,873 1,873 1,128
Communication and IT expenses 1,847 1,847 822
Bank and payment processing fees 883 - - 883 1,010
Insurance 318 - - 318 -
Donations 150 - - 150 8,200
- - - -
- - - - -
Sub total 77,931 - - 77,931 58,196
A4 Asset and investment purchases,
(see table)
- - - -
- - - -
Sub total - - - - -
Total payments 77,931 - - 77,931 58,196
Net of receipts/(payments) - 48,972 - - - 48,972 48,567
A5 Transfers between funds - - - - -
A6 Cash funds last year end 84,831 - - 84,831 36,264
Cash funds this year end 35,858 - - 35,858 84,831
----- End of picture text -----

CCXX R1 accounts (SS)

25/01/2022

18

ANNUAL REPORT 2020 - 2021


2020 -
Section B Statement of assets and liabilities at the end of the period
Categories
Signed by one or two trustees on behalf of all
the trustees
B5 Liabilities
B3 Investment assets
Details
Details
B2 Other monetary assets
Details
Total cash funds
(agree balances with receipts and payments
account(s))
B4 Assets retained for the charityʼs
own use
Details
Cash at bank
Loan balance
B1 Cash funds
Details
Signature
Other taxation and social security		 Details
Details
Total cash funds
(agree balances with receipts and payments
account(s))
Details
Cash at bank
Loan balance		 Unrestricted
funds
to nearest £
36,500
-
642
-
35,858
OK
Unrestricted
funds
to nearest £
-
-
-
-
-
-
Fund to which
asset belongs		 Restricted
funds
to nearest £
-
-
-
-
OK
Restricted
funds
to nearest £
-
-
-
-
-
-
Cost (optional)		 Endowment
funds
to nearest £
-
-
-
-
OK
Endowment
funds
to nearest £
-
-
-
-
-
-
Current value
(optional)
-
-
-
-
-		 -
-
-
-
-
Details
Details		 Fund to which
asset belongs
Fund to which
liability relates		 Current value
(optional)
-
-
-
-
-
-
-
-
-
When due
(optional)
Date of
approva
25/1/2022
25/1/2022
Other taxation and social security
Unrestricted

CCXX R2 accounts (SS)

25/01/2022

19

27F Vale Business Park Llandow Vale of Glamorgan CF71 7PF info@cfwarriors.org.uk www.cfwarriors.org.uk Charity No: 1178063

Trustees' Annual Report for the period

Period start date Period end date 1 April 2020 31 March 2021

From

To

Section A

Reference and administration details

Charity name

CF Warriors

Other names charity is known by

Registered charity number (if any) 1178063

Charity's principal address Unit 27F Vale Business Park Llandow Vale of Glamorgan Postcode CF71 7PF

Names of the charity trustees who manage the charity

1
2
3
4
5
6
7
8
9
10
11
12
13
14
15
16
17
18
19
20		 Trustee name Office (if any) Dates acted if not for whole
**year **		 Name of person (or body) entitled
to appoint trustee (ifany)
Josh Llewellyn-
Jones OBE		 Chair Acted whole period
Paul Langmaid
CBE		 Acted whole period
Steve Doyle Acted wholeperiod
Jane Sharpe Acted wholeperiod
Paul Floyd Acted wholeperiod
Names of the trustees for the charity, if any, (for example, any custodian trustees)
Name Dates acted if not for whole year

March 2012

TAR

1

Names and addresses of advisers (Optional information)

Type of adviser Name Address

Name of chief executive or names of senior staff members (Optional information)

Mark Llewellyn-Jones – Chief Executive Officer

Section B Structure, governance and management

Description of the charity’s trusts

Constitution Type of governing document (eg. trust deed, constitution) CIO – Charitable incorporated organisation How the charity is constituted (eg. trust, association, company) (1) Apart from the first charity trustees, every trustee must be Trustee selection methods appointed [for a term of 3 years] by a resolution passed at a (eg. appointed by, elected by) properly convened meeting of the charity trustees (2) In selecting individuals for appointment as charity trustees, the charity trustees must have regard to the skills, knowledge and experience needed for the effective administration of the CIO

Additional governance issues (Optional information)

CF Warriors continues to recruit skilled and experienced trustees to the board to strengthen our team and drive our vision forward.

You may choose to include additional information, where relevant, about:

Section C Objectives and activities

March 2012

TAR

2

For the public benefit, the relief of sickness and the preservation of health among people with cystic fibrosis by:

Summary of the objects of the charity set out in its governing document

(a) providing goods and/or equipment that can be used to aid the fitness and health of people with cystic fibrosis and support and practical advice for carrying out appropriate forms of exercise; (b) Providing funding for research into cystic fibrosis, in particular the treatment of cystic fibrosis and the effects of exercise on people with cystic fibrosis

For the public benefit, the relief of sickness and the preservation of health
among people with cystic fibrosis by:
(a) providing goods and/or equipment that can be used to aid the
fitness and health of people with cystic fibrosis and
support and practical advice for carrying out appropriate
forms of exercise;
(b) Providing funding for research into cystic fibrosis, in particular the
treatment of cystic fibrosis and the effects of exercise on
people with cystic fibrosis
Summary of the main
activities undertaken for the
public benefit in relation to
these objects (include within
this section the statutory
declaration that trustees have
had regard to the guidance
issued by the Charity
Commission on public
benefit)		 Events
Unfortunately, due to the pandemic, group events like the Warrior
Games, or any dinners that we were planning, were put on hold.
However, the CF Warriors community didn’t let us down, and came out in
force to do their own challenges to help us raise money and awareness
for the charity.
Warrior Games
This year’s event was unfortunately cancelled but we still had donations
from some amazing supporters who also helped raise awareness for the
charity through some of their social media content where they talked
about the charity. Massive thank you to Jonny Gray and the rest of the
team at the RAF for keeping us updated throughout the changing
situation during lockdown. We hope to be back in 2022!
Ben Mudge - £903 - Cycle / Assault Bike Marathon Challenge
Ben, who has cystic fibrosis, wanted to take on a challenge he could do
while self-isolating, so decided what better way than to do a marathon on
his home bike. However, in true CF Warrior style, he wanted to push
himself and show what he could do so did a marathon x2.6 while helping
the charity to raise awareness and funds.
Rhys Jenkins - Wales Coast Path - £2,091
Over the course of 3 weeks in August 2020, Rhys Jenkins, an ultra-
marathon runner from Cardiff, took on 870 miles of the Wales Coast
Path. Starting in the North and running South, he covered every inch of
the world’s first ever coastal path. The journey began in Chester and
ended in Chepstow.
To give you a sense of the challenge – it is the equivalent of running 33.2
marathons and climbing the height of Everest 4.5 times.
Next Gen Planners - 24-hour Global Commute - £2,738
The 24-Hour Global Commute combined two things:
• Raising money for 2 charities via charity challenges from the NextGen
Planners Community; and
• Speaking with financial planners from all around the globe.
Their two chosen charities were CF Warriors and Stroke Association.
They chose these charities because their loyal contributors to the Next
Gen Planners Morning Commute have been directly affected by the
causes that these charities strive to help.
Some of the challenges that their brave volunteers took part in included
climbing Mount Everest (on the stairs), rowing the English Channel (in
the garden) and more socially distanced endurance-style challenges. All
to promote the importance of sport and exercise to stay fit and healthy.
Linc Cymru - 870 Challenge - £871
Linc Cymru’s team of colleagues had a plan to cover 870 miles – the
length of the Wales Coastal Path and raise £870 for CF Warriors.
Atatimewhenexercise andfreshairare provingto bevital for

March 2012

TAR

3

everyone’s wellbeing, they thought that this would be a perfect time for a physical challenge in the great outdoors, (in their local area of course!) Their plan allowed them to cover as many miles as they want, whether it was 2, 5 or even 10 miles; it all counted and would help them reach their goal. The idea was that they could walk, run, cycle or even get creative – 8 minutes on a trampoline is equivalent to 1 mile, and half hour of dancing during a home disco was 2 miles of exercise.

Cooper Sheppard – Cooper’s CF 65 Challenge - £565

9-year-old Cooper, who has a younger brother with cystic fibrosis, had been taking part in exercising with Josh at 7pm every evening, and enjoyed the classes so much that he decided he would like to do something to help fundraise for CF Warriors, so he decided to do a challenge and came up with his CF 65 Challenge.

His challenge was to do 65 sit ups, 65 mountain climbers, 65 jumping Jack's, a 65-minute bounce on the trampoline and 65 squats – all to be completed in 2.5 hours! He helped the charity raise some much-needed funds while also helping to raise awareness and inspire people who follow the charity to stay active during the pandemic

Enzo Gibson – Cinder Track Challenge - £1,380

Enzo, one of our CF Warriors (and Alec!) rode his new bike from Whitby to Scarborough to raise some funds for the charity, on the Cinder Track, a 21.5-mile route, which is pretty big for a 6-year-old! They actually managed 22.6 miles in just under 3.5 hours!

Kerrie Stoner - Home Lockdown Workouts & Bootcamps - £1,437

Kerrie started her free home lockdown workouts to help keep people motivated and moving at a very uncertain time for everyone. We all know how important it is to keep the body and mind active where possible, and her help and support had huge benefits for everyone involved. We had so many wonderful messages regarding all the hard work Kerrie put into each workout.

As some of the restrictions were removed after the initial lockdown, Kerrie started her outdoor bootcamps to get people exercising together and raised so much awareness for the importance of exercise not only physically, but also for everyone’s mental wellbeing.

Elaine Milne – X-Box Warriors - £1,447

Elaine persuaded 4 boys from Scotland to team up in the last few hours of lockdown before they went back to school, to game for 16 hours to raise awareness CF Warriors and they didn’t disappoint, gaming all the way through the night to help raise money for the charity, with help from their mums and Elaine!

Josh Llewellyn-Jones

Instagram & Facebook workouts during lockdown to help get children with cystic fibrosis (and others) up and exercising for at least 15 minutes every day at 7pm

Christmas Advent – Workouts with CF Warriors online throughout December to motivate children to keep fit and active in the lead up to Christmas

March 2012

TAR

4

Plans For The Future

Additional details of objectives and activities (Optional information)

March 2012

TAR

5

Volunteers

A huge thank you to all the volunteers who made the last year such a memorable one and helped the charity to continue to raise awareness while the country was still in lockdown. This is not a full list of everyone who played a part in the charity throughout the year as several of our events were held remotely without our direct participation, but their involvement in the CF Warriors community is no less important than those that get special mention

Supporters

You may choose to include further statements, where relevant, about:

A huge thank you to our network of supporters who have helped fund the charity throughout the year, and to all those who took up a challenge to help raise funds and awareness for the charity through the pandemic.

March 2012

TAR

6

Section D Achievements and performance

Summary of the main achievements of the charity during the year

Introduction

CF Warriors was founded to motivate, inspire and support children with cystic fibrosis on their journey to a longer, happier and healthier life. Our mission is to raise awareness of the benefits of sport and exercise to the CF community across the globe, through events, our Warrior Pack Program, and the publication of vital research funded by the charity. In March 2020 the world became a different place, and the UK was put into lockdown, which made it incredibly difficult for everyone in the country, particularly people dealing with cystic fibrosis. Fortunately, we have been able to continue to operate the charity, and to support families dealing with cystic fibrosis by sending out Warrior Packs to over 250 CF Warriors, not just in the UK but around the world. In October of 2020 we moved into a new commercial unit, as we needed more space for all the new Warrior Pack goodies, and event equipment we had acquired over the past 2 years, which has given us a base to work from and room to expand. The charity is so excited to have begun our partnership with the University of Portsmouth and has agreed to a 3-year collaborative programme of research and dissemination of knowledge to promote the benefits of physical activity, exercise and good nutrition for people with cystic fibrosis. It is the hope of the charity that we have been able to bring some light in the dark times of this pandemic, and we will continue to do so for as long as we can. Our aim is to reach every child born with this terrible disease, to help them see that they are part of a larger community who are there to support each other through the hardest of times. With the help of our friends and supporters who have been so generous with their time throughout the year, we hope to reach even more children in the coming years and build upon what is already a wonderful community.

Mark Llewellyn-Jones CEO

March 2012

TAR

7

Section D

Achievements and erformance p What We Have Delivered This Year CF Warriors has two main objectives that help deliver the vision of the charity. • Firstly, there is our Warrior Pack Program which is ongoing and is designed to inspire, motivate and show children suffering with cystic fibrosis that they are part of a larger community. This year we delivered 258 Warrior Packs to families around the world dealing with cystic fibrosis. • Secondly, there is our Research Funding Program, which has received its first round of funding - £25,200 - as part of a 3-year project in partnership with the University of Portsmouth. The charity’s aims through the research funding are to provide information to parents regarding nutrition, hydration and salt intake when their children are exercising or doing physical activities. We also want to help remove some of the barriers that can often cause children to stop using exercise, or any physical activity, as a way of staying fit and healthy. For example, by targeting some of the nutritional problems CF sufferers have to deal with, it is our hope that this research will give an insight into the effects of good nutrition on combatting the negative impacts of this disease, and help them engage in safe and effective lifelong exercise. Warrior Pack Program Our Warrior Pack program has been very popular over the last 12 months, and we have continued to develop & distribute our Packs, including more items that we hope children will find useful, help them feel like part of a larger community and motivate them to stay as fit and healthy as possible. We have sent out over 250 Warrior Packs to members of the CF community this year, from countries all over the world, a 20% increase on last year. The packs cost £50 to produce, and the costs of sending them vary depending on which country the recipients live in, these costs range from £3 to £30. We also receive requests from many returning families for larger clothing as their children outgrow their Warrior Packs. It is our commitment to these children to meet these needs wherever possible as part of our core charitable objectives. We know from the many messages we receive on a weekly basis what these packs mean to families and children growing up with cystic fibrosis, and we aim to respond to every request positively so that every child born with this disease can be included in the community. Research Funding Partnership between the School of Sport, Health and Exercise Science (University of Portsmouth) and the CF Warriors charity This partnership is an initial three-year collaborative programme of research and dissemination of knowledge and education between the School of Sport, Health and Exercise Science at the University of

March 2012

TAR

8

Section D

Achievements and erformance p

Portsmouth and the CF Warriors charity.

Central to this partnership is the promotion of the benefits of physical activity, exercise and good nutrition for people with cystic fibrosis. This involves conducting research studies to answer important questions raised by people with cystic fibrosis to help them engage in safe and effective lifelong exercise, as well as translating and publicising our collaborative research findings and other key educational sessions to people with cystic fibrosis through the charity network. The 3 years, full-time, fully funded PhD studentship is being supervised by Dr Zoe Saynor, a world leading expert in exercise and cystic fibrosis, and an active member of the European Cystic Fibrosis Society exercise working group, alongside Dr Jo Corbett and Dr Anthony Shepherd. Additional clinical and research input will also come from clinical colleagues and an ongoing collaborative with the adult and paediatric cystic fibrosis services at the University Hospital Southampton NHS Foundation Trust.

The title of the PhD is:

Exercise and nutrition for people with cystic fibrosis in the modulator

era. The successful candidate will join the Physical Activity, Health and Rehabilitation Thematic Research Group, led by Dr Zoe Saynor, whilst also working closely with colleagues in the Extreme Environments Thematic Research Group. This position also involves working closely with clinical colleagues (clinicians and physiotherapists) within the respiratory and paediatric departments at the University Hospital Southampton NHS Foundation Trust. The primary research environments are the exercise laboratories at the University of Portsmouth. The successful candidate will be working in a team with her supervisors and clinical staff and will be fully immersed in running clinical trials and the analyses of data. They are expected to conduct research that has been informed by people with cystic fibrosis and aims to benefit people with cystic fibrosis. Specifically, the research undertaken aims to further our understanding on the topics of exercise and nutrition for people with cystic fibrosis as we transition into the modulator era, building on previous work conducted by the supervisory team. This PhD studentship is an exciting opportunity in partnership with the Charity, and the student will also be working closely with the charity to disseminate research findings to people with cystic fibrosis and their families. As well as conducting research, Dr Zoe Saynor and the PhD student will collaborate closely with the charity and will be available to deliver monthly Q&A sessions through the CF Warriors platform. Both will also be available to deliver educational sessions. Josh Llewellyn-Jones has agreed to provide a talk at the University of Portsmouth free of charge once a year as part of the program. Dr Zoe Saynor will be an advocate for the charity and available when needed for talks / Q&As free of charge.

PhD Programme of Research to commence in October 2021:

March 2012

TAR

9

Section D

Achievements and erformance p

The schedule of research is as follows:

Study 1 Evaluate the current hydration / salt requirement for people Study 2 Evaluate the experiences of people with CF who are now on m regarding their sweat responses, hydration and nutrition req evaluate current salt tablet use and nutritional supplement u Study 3 Laboratory study: Explore the thermo-physiological response dehydration in people with cystic fibrosis during exercise in n conditions and exercise in the heat compared to healthy peo changed on modulators Study 4 Evaluate the knowledge regarding diet and exercise in people Study 5 Assess the physical activity, glycaemic control and body comp children and adults with cystic fibrosis Study 6 Laboratory study: Explore the effects of an alternative low-su supplement versus currently prescribed supplements for peo fibrosis on glycaemic control, fat oxidation at rest and during vascular health

The initial grant of £25,200 was made this year, to be followed by a further two payments of £26,400 in October 2022 and £27,600 in October 2023.

March 2012

TAR

10

Section E

Financial review

Cash reserves at 31 March 2021 were £35,858 in unrestricted funds

Brief statement of the charity’s policy on reserves

The initial research funding grant of £25,200 was made this year, to be followed by a further two payments of £26,400 in October 2022 and £27,600 in October 2023. In order to continue our Warrior Pack Program alongside this research funding, it is necessary to hold at least £30,000 to cover the running costs of the charity.

Details of any funds materially Not applicable in deficit

Further financial review details (Optional information)

You may choose to include additional information, where relevant about:

Section F

Other optional information

Section G Declaration

The trustees declare that they have approved the trustees’ report above.

Signed on behalf of the charity’s trustees

Signature(s) Paul Langmaid CBE Full name(s) Josh Llewellyn-Jones OBE Position (eg Secretary, Chair, Trustee Trustee etc) Date 25/1/2022

March 2012

TAR

11

----- Start of picture text -----
Charity Name No (if any)
CF Warriors 1178063
Receipts and payments accounts CC16a
For the period Period start date Period end date
To
from 01/04/2020 31/03/2021
Section A Receipts and payments
Unrestricted Restricted Endowment
Total funds Last year
funds funds funds
to the nearest £ to the nearest £ to the nearest £ to the nearest £ to the nearest £
A1 Receipts
Donations 28,959 - - 28,959 97,002
Event sponsorship and ticket sales - - - - 9,762
- - - - -
- - - - -
- - - - -
- - - - -
- - - - -
- - - - -
Sub total (Gross income for AR) 28,959 - - 28,959 106,763
A2 Asset and investment sales, (see
table).
- - - -
- - - - -
Sub total - - - - -
Total receipts 28,959 - - 28,959 106,763
A3 Payments
Grants to fund research 25,200 - - 25,200 -
"CF Warrior" packs distributed free of charge 17,750 - - 17,750 13,963
Employee costs 22,268 - - 22,268 8,746
Office costs and fundrasing expenses 4,632 - - 4,632 22,577
Social media expenses 3,010 3,010 1,750
Legal and professional fees 1,873 1,873 1,128
Communication and IT expenses 1,847 1,847 822
Bank and payment processing fees 883 - - 883 1,010
Insurance 318 - - 318 -
Donations 150 - - 150 8,200
- - - -
- - - - -
Sub total 77,931 - - 77,931 58,196
A4 Asset and investment purchases,
(see table)
- - - -
- - - -
Sub total - - - - -
Total payments 77,931 - - 77,931 58,196
Net of receipts/(payments) - 48,972 - - - 48,972 48,567
A5 Transfers between funds - - - - -
A6 Cash funds last year end 84,831 - - 84,831 36,264
Cash funds this year end 35,858 - - 35,858 84,831
----- End of picture text -----

CCXX R1 accounts (SS)

25/01/2022

Section B Statement of assets and liabilities at the end of the period Section B Statement of assets and liabilities at the end of the period Section B Statement of assets and liabilities at the end of the period
Categories
Signed by one or two trustees on behalf of all
the trustees
B5 Liabilities
B3 Investment assets
B2 Other monetary assets
B4 Assets retained for the charity’s
own use
B1 Cash funds
Details
Details
Details
Total cash funds
(agree balances with receipts and payments
account(s))

Details
Cash at bank
Loan balance
Details
Signature
Other taxation and social security		 Unrestricted
funds
Restricted
funds
to nearest £
to nearest £
36,500
-
-
642
-
-
-
35,858
-
OK
OK
Unrestricted
funds
Restricted
funds
to nearest £
to nearest £
-
-
-
-
-
-
-
-
-
-
-
-
Fund to which
asset belongs
Cost (optional)
-
-
-
-
-
Fund to which
asset belongs
Cost (optional)
-
-
-
-
-
-
-
-
-
Fund to which
liability relates
Amount due
(optional)
Unrestricted
639
-
-
-
-
Print Name
Josh Llewellyn-Jones
Paul Langmaid		 Endowment
funds
to nearest £
-
-
-
-
OK
Endowment
funds
to nearest £
-
-
-
-
-
-
Current value
(optional)
-
-
-
-
-
Current value
(optional)
-
-
-
-
-
-
-
-
-
When due
(optional)
Date of
approval
25/1/2022
25/1/2022

CCXX R2 accounts (SS)

25/01/2022

Independent examiner's report on the accounts

Section A Independent Examinerʼs Report

Section A Independent Examinerʼs Report Independent Examinerʼs Report
Report to the trustees/
members of
On accounts for the year
ended
Set out on pages
Responsibilities and
basis of report
Independent
examiner's statement
Signed:
Name:
Relevant professional
qualification(s) or body
(if any):
Address:		 CF Warriors
31 March 2021
Charity no
(if any)
1178063
The Trusteeʼs Report and Accounts set out on pages 1 to 13 of the attached report
I report to the trustees on my examination of the accounts of the above
charity (“the Trust”) for the year ended
31 March 2021
As the charity's trustees, you are responsible for the preparation of the
accounts in accordance with the requirements of the Charities Act 2011
(“the Act”).
I report in respect of my examination of the Trustʼs accounts carried out
under section 145 of the 2011 Act and in carrying out my examination, I
have followed all the applicable Directions given by the Charity Commission
under section 145(5)(b) of the Act.
I have completed my examination. I confirm that no material matters have
come to my attention in connection with the examination which gives me
cause to believe that in, any material respect:

the accounting records were not kept in accordance with section 130
of the Charities Act; or
the accounts did not accord with the accounting records; or
the accounts did not comply with the applicable requirements
concerning the form and content of accounts set out in the Charities
(Accounts and Reports) Regulations 2008 other than any requirement
that the accounts give a ʻtrue and fairʼ view which is not a matter
considered as part of an independent examination.
I have no concerns and have come across no other matters in connection
with the examination to which attention should be drawn in this report in
order to enable a proper understanding of the accounts to be reached.
Date:
25 January 2022
°
°
°
25 January 2022
Stephen Thomas
ACA
Fairoaks, 1 Pentre-poeth Road, Bassaleg, NP10 8LN