**NATIONAL BLACK, ASIAN, MIXED RACE AND MINORITY ETHNIC TRANSPLANT ALLIANCE (“NBTA”)**
## **TRUSTEES’ ANNUAL REPORT AND RECEIPTS AND PAYMENTS ACCOUNTS**
## **FOR THE YEAR ENDED 31 MARCH 2025**
**----- Start of picture text -----**
Contents Page
**----- End of picture text -----**
|Contents|Page|
|---|---|
|Trustees’ Annual Report|1-4|
|Receipts and Payments Accounts|5|
|Statement of Assets and Liabilities|5|
|Notes to the Receipts and Payments Accounts|6-7|
|Independent Examiner’s Report|8|
**NATIONAL BLACK, ASIAN, MIXED RACE AND MINORITY ETHNIC TRANSPLANT ALLIANCE (“NBTA”)**
## **NBTA activities on organ donation in 2025**
NBTA were involved in three main areas to promote organ donation in 2025. We continued our partnership work with NHSBT on the development and publication of the annual data report by ethnicity and the Impact Group. In addition, we initiated a pilot project with the Mayor of Harrow on honouring organ donors.
## **Annual data report by ethnicity 2024/25**
The content of this annual report had not been reviewed for many years and NBTA initiated a review by working closely with NHSBT colleagues. Some changes were made in the 2024/25 report, and it was agreed to make further changes in the 2025/26 report. The 2024/25 report was published in November 2025 and a joint webinar was arranged by NBTA and NHSBT to publicise the findings.
Key findings from the report:
- The number of ethnic minority patients waiting for an organ transplant was the highest recorded.
- The number of ethnic minority deceased donors increased by 9%
- The number of ethnic minority living donors increased by 13%
- The number of transplants in people from ethnic minority backgrounds decreased
- Consent rate was 35% for ethnic minority potential donors last year
Organ donation among people from ethnic minority backgrounds increased last year, but the number of people from these communities' receiving transplants fell slightly.
According to the latest _Annual Report on Ethnicity Differences in Organ Donation and Transplantation_ , in 2024/25 there were 96 deceased and 144 living donors from ethnic minority backgrounds – increases of 9% and 13% respectively. However, 1,201 people from these communities received a transplant, down from 1,233 the previous year. This is because 80% of all transplants in people from ethnic minority backgrounds come from white donors and the number of these also dropped by 10% last year.
As of March 31, 2025 **,** 2,526 people from ethnic minority backgrounds were still waiting for a transplant, and almost a third of the total waiting list for a kidney is made up of ethnic minority patients.
Given that kidneys are matched by blood group and tissue type, there is a better chance of not only finding a suitable match from a donor of the same ethnicity, but better outcomes for the patient. And people from ethnic minority backgrounds wait longer for a transplant than their white counterparts. There has been a huge amount of collaborative work between NHSBT and the National BAME Transplant Alliance (NBTA), working to empower Black, Asian and minority ethnic community groups to promote organ donation through their grassroot networks. The Community Grants Programme is well established and helps
1
**NATIONAL BLACK, ASIAN, MIXED RACE AND MINORITY ETHNIC TRANSPLANT ALLIANCE (“NBTA”)**
ethnic minority groups take a leadership role in promoting organ donation among targeted groups. A power point summary of the 2024/25 data report, presented at the webinar by Lisa Mumford from NHSBT is available at EDOT Webinar Master 2025.pdf
## **Update from the Impact Group**
On 4th June 2024, The National Black, Asian and Minority Ethnic (BAME) Transplant Alliance (NBTA) and NHS Blood and Transplant (NHSBT) held a joint conference focused on developing messaging to promote organ donation among faith communities within minority ethnic groups. The event brought together faith leaders, researchers, community representatives, and NHSBT representatives. A report from the Conference was published and is available here. Following the conference, the IMPACT GROUP was formed, jointly chaired by Kirit Modi, MBE, Hon President (NBTA) and John Richardson, Assistant Director – Organ and Tissue Donation (NHSBT), to implement a two-year, 10-point action plan. We are pleased to provide a progress report on the work done by the IMPACT Working Group until the end of November 2025 and are very pleased with the progress to date. A final report will be published in Summer 2026. A copy of the update is available at
## Impact Group progress report Nov 2025.pdf
## **Pilot project with Mayor of Harrow**
Organ donors from Harrow were celebrated at a moving ceremony hosted by the Mayor of Harrow, Councillor Anjana Patel. The event in the Mayor’s Parlour on 24 September marked Organ Donation Week with a powerful message: every donor is a hero.
The ceremony honoured two families whose loved ones gave the gift of life through organ donation after death, as well as six individuals who have donated a kidney while living. Organised by the Mayor in partnership with Kirit Modi, MBE, Hon President of NBTA, and supported by NHS Blood and Transplant and the NHS, the event spotlighted the urgent need for more donors and the incredible impact of those who step forward.
## **Speakers included:**
- Laura Kendall, Specialist Nurse for Organ Donation at Northwick Park Hospital
- Harvinder Dulku, Living Kidney Donor Coordinator at Hammersmith Hospital
- Dr Dela Idowu, Founder of Gift of Life Donation (GOLD)
- Manhar Mehta, Chairman of Vanik Council UK (VCUK)
- Prafula Shah, Chair of the Jain and Hindu Organ Donation Alliance (JHOD)
Their stories and advocacy underscored a shared mission: to build awareness, break down barriers, and encourage more people to say yes to organ donation.
Varsha Siyani was one of the living kidney donors honoured by the Mayor. She donated a kidney to her brother, and both are doing well. Varsha Siyani said: “Donating a kidney has been one of the most rewarding things I have ever done. It’s a gift of life, and I hope more
2
**NATIONAL BLACK, ASIAN, MIXED RACE AND MINORITY ETHNIC TRANSPLANT ALLIANCE (“NBTA”)**
people, especially from Asian communities, will consider it because every donor has the power to change someone’s world”. We are most grateful to Cllr Anjana Patel for her amazing support and plan to develop this approach in 2026.
Further details about this project are available from the NBTA website at Harrow Mayor honours organ donors - NBTA
---------------------------------------------------------------------------------
## **NBTA work on Stem cell Registration**
During the financial year of 2024/5 the NBTA’s Stem Cell Diversification Group SubCommittee (SCDG) comprising of secular and faith-based stem cell organisations continued working diligently in developing a consistent dialogue and meetings with the 4 members of the UK’s Aligned Stem Cell Registry (Anthony Nolan, NHS Blood and Transplant, DKMS and Welsh Bone Marrow Donor Registry) plus the UK Stem Cell Oversight Committee (UKSCOC) and British Society of Blood and Marrow Transplantation and Cellular Therapy (BSBMTC). This NBTA Stem Cell Diversification Group Sub-Committee’s main focus is to analyse the past and present-day status of the Registry with a collective future aim to redress the disproportionate accessibility chances of a patient of diverse background finding a wellmatched donor in comparison to their White Northern European counterpart. During this financial year the NBTA’s Stem Cell Diversification Group Sub-Committee continued lobbying its proposed new strategy and bodies of work to recruit more diverse individuals to the UK Stem Cell Register.
Such a national strategy is planned to be multi-track, with a plan for growing donor registrations in the UK and overseas, as well as addressing any other challenges (e.g., socioeconomic barriers) in the patient journey that further impact on those from minority ethnic and mixed heritage backgrounds. Fundamentally, it is proposed that the strategy needs to be embraced by the Aligned Registry and UKSCOC in order to empower and resource the community-based organisations who can best deliver the significant growth in minority ethnic and mixed heritage donor recruitment needed in the UK.
## **Our continuing Stem Cell aims:**
- To improve the availability of a suitably matched stem cell donor for all Black, Asian, Minority Ethnic (BAME) and Mixed Heritage (MH) patients with a blood cancer or blood disorder
- To question the Aligned Registry members and Department of Health on the advances made for BAME+MH patients since the formation of the UK Stem Cell Strategic Oversight Committee in 2010
- To collaborate with the clinical community to learn of their need to successfully treat patients from BAME+ MH communities.
3
**NATIONAL BLACK, ASIAN, MIXED RACE AND MINORITY ETHNIC TRANSPLANT ALLIANCE (“NBTA”)**
- To understand the current and future strategy in ensuring delivery of services to BAME+ MH patients with a blood cancer or blood disorder
- To work with the Aligned Registry and Department of Health in advancing treatments for BAME+MH patients
- To hold accountable the Aligned Registry and Department of Health for improvement of treatments available to BAME+ MH blood cancer and blood disorder patients
## **Work on Blood donation:**
Various NBTA members have continued bespoke awareness and registration drive initiatives on improving the number of Black blood donors and the regularity of donation. This is all part of NHSBT’s requirement need for more people of Black heritage to grow the number of blood donors with well-matched blood to help those with sickle cell disorder.
The increased demand for some rare blood subtypes, such as Ro, that are more common in people of Black heritage means we need more Black people to become blood donors.
Donors from Black heritage communities provide better matched blood to those who need it.
## **NBTA Trustees**
The three trustees, Orin Lewis, Kirit Modi and Manhar Mehta met during the financial year of 2024/25. At our recent meeting we identified the following priorities for 2025/26: Giving priority to work related to blood and stem cell donation, supporting the implementation of the Meeting the Need strategy, improving our website and social media presence, and engaging more with our patrons and ambassadors.
---------------------------------------------------------------------------------------------------
4
## **NATIONAL BLACK, ASIAN, MIXED RACE AND MINORITY ETHNIC TRANSPLANT ALLIANCE (“NBTA”)**
## **Statement of Receipts and Payments for the year ended 31 March 2025**
||**Unrestricted Restricted**|**Unrestricted Restricted**|**Total**|**Total**|
|---|---|---|---|---|
||**Funds**|**Funds**|**2025**|**2024**|
|**Receipts**|**£**|**£**|**£**|**£**|
|**Grants received**|7,546|27,454|35,000|-|
|**Membership fees**|1,650|-|1,650|2,300|
|**Organ Donation Summit contributions**|-|-|-|1,218|
|**Donations**|-|-|-|117|
|**Bank interest**|71|-|71|60|
||____|____|_____|____|
|**Total receipts**|9,267|27,454|36,721|3,695|
||____|____|_____|____|
|**Payments**|||||
|**Ethnicity Transplantation and**|||||
|**Transfusion Inquiry**|(4,837)|(4,620)|(9,457)|-|
|**Organ Donation Summit**|-|-|-|(1,853)|
|**Administration**|(1,402)|(5,000)|(6,402)|(4,208)|
||____|____|_____|____|
|**Total payments**|(6,239)|(9,620)|(15,859)|(6,061)|
||____|____|_____|____|
|**Net receipts/(payments)**|**3,028**|**17,834**|**20,862**|**(2,366)**|
|**Cash funds brought forward at 1 April**|**28,153**|**-**|**28,153**|**30,519**|
||_____|_____|_____|_____|
|**Cash funds as at 31 March**|**31,181**|**17,834**|**49,015**|**28,153**|
||_____|_____|_____|_____|
|**Statement of Assets and Liabilities as at 31March 2025**|||||
||Unrestricted Restricted||Total|Total|
||Funds|Funds|2025|2024|
||£|£|£|£|
|Cash at bank|31,181|17,834|49,015|28,153|
||_____|_____|_____|_____|
|**Total Assets**|**31,181**|**17,834**|**49,015**|**28,153**|
||_____|_____|_____|_____|
Signed on behalf of the Trustees:
Orin Cadogan-Lewis
18[th] December 2025
5
**NATIONAL BLACK, ASIAN, MIXED RACE AND MINORITY ETHNIC TRANSPLANT ALLIANCE (“NBTA”)**
## **Notes to the Receipts and Payments Account for the year ended 31 March 2025**
## **1. Organisation**
NBTA is a charitable organisation which registered with the Charity Commission for England and Wales, number 1177538, on 13 March 2018.
NBTA is a coalition of organisations which seeks to promote awareness of organ and stem cell donation amongst black, Asian and minority ethnic (“BAME”) people and to increase the number of donors from these communities.
## **2. Funds**
The General Fund includes unrestricted grants, donations and membership fees less associated expenditure.
purposes. There were the following restricted funds in the year.
||**Messaging**||**Total**|
|---|---|---|---|
||**Conference**|**APPG**|**Restricted**|
||**Fund**|**Fund**|**Fund**|
||**£**|**£**|**£**|
|Cash funds brought forward at 1 April 2024|-|-|-|
|Receipts|5,000|22,454|27,454|
|Payments|(5,000)|(4,620)|
(9,620)|
||____|_____|_____|
|Cash funds carried forward at 31 March 2025|
-|17,834|17,834|
||____|_____|_____|
## Messaging Conference Fund
A grant of £5,000 was received to pay for the Messaging Conference Secretariat expenses.
## APPG Fund
A grant of £30,000 was received in the year to support the secretariat role of NBTA to the All-Party Parliamentary Group (APPG) on Transplantation and Transfusion. £22,454 of this grant was ring-fenced to fund a consultant to lead work on the stem cell registry and report preparations.
6
**NATIONAL BLACK, ASIAN, MIXED RACE AND MINORITY ETHNIC TRANSPLANT ALLIANCE (“NBTA”)**
## **Notes to the Receipts and Payments Account for the year ended 31 March 2025**
## **3. Administration costs**
|**Administration costs**|||
|---|---|---|
||**2025**|**2024**|
||**£**|**£**|
|Secretariat fees and expenses|5,100|2,100|
|Website and advertising|840|1,463|
|Meeting costs|-|185|
|Insurance|406|395|
|Bank charges|56|65|
||____|____|
|Total|6,402|4,208|
||____|____|
## **4. Trustees’ remuneration and other transactions**
No Trustee received any remuneration or expenses during the year (2024: Nil). There were no related party transactions.
7
**Independent examiner’s report to the trustees National Black, Asian, Mixed Race and Minority Ethnic Transplant Alliance (“NBTA”)**
I report to the trustees on my examination of the accounts of the National Black, Asian, Mixed Race and Minority Ethnic Transplant Alliance (“NBTA”) (the Charity) for the year ended 31 March 2025.
## **Responsibilities and basis of report**
As the trustees of the Charity, you are responsible for the preparation of the accounts in accordance with the requirements of the Charities Act 2011 (‘the Act’).
I report in respect of my examination of the Charity’s accounts carried out under section 145 of the 2011 Act and in carrying out my examination I have followed all the applicable Directions given by the Charity Commission under section 145(5)(b) of the Act.
## **Independent examiner’s statement**
I have completed my examination. I confirm that no material matters have come to my attention in connection with the examination giving me cause to believe that in any material respect:
1. accounting records were not kept in respect of the Trust as required by section 130 of the Act; or
2. the accounts do not accord with those records.
I have no concerns and have come across no other matters in connection with the
examination to which attention should be drawn in this report in order to enable a proper understanding of the accounts to be reached.
**Signed:**
**Name:** Mark Pooley FCA
**Address:** Metis Tax, Chartered Accountants, Castlemead, Lower Castle Street, Bristol, BS1 3AG
**Date:** 29 January 2026
8