NATIONAL BLACK, ASIAN, MIXED RACE AND MINORITY ETHNIC TRANSPLANT ALLIANCE (“NBTA”)
FINANCIAL STATEMENTS FOR THE YEAR ENDED 31STMARCH 2024
Registered Charity Number 1177538
Reference and Administrative Information
Trustees
Manharlal Mehta
NWS ILB
Angela Azubuike
Kent, ME19AD
NATIONAL BLACK, ASIAN, MIXED RACE AND MINORITY ETHNIC TRANSPLANT ALLIANCE (“NBTA”)
TRUSTEES' REPORT YEAR ENDED 31ST MARCH 2024
The Trustees present their Report and Financial Statements for the year ended 31st March 2024. The Financial statements have been prepared in accordance with the accounting policies and comply with the Constitution, the Charities Act 2011 and Accounting and Reporting by Charities: Statement of Recommended Practice applicable to charities preparing their accounts in accordance with the Financial Reporting Standard applicable in the UK and Republic of Ireland published on 16 July 2014.
National Black, Asian and Minority Ethnic Transplant Alliance (NBTA) is a registered charity, number 1177538. The governing document is the Constitution incorporated 13.03.2018.
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Appointment of New Trustees
When a need arises the power of appointing new Trustees vests with the Trustees at that time.
Risk Management
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The Trustees of the NBTA constantly monitor and review the major practical and financial risks to the charity. The balance sheet highlights the overall financial state of the charity.
The trustees have referred to the guidance contained in the Charity Commission's general guidance on public benefit when reviewing the charity's aims and objectives.
Objects
The NBTA is an alliance of organisations who are working to achieve better experiences and outcomes for black, Asian and minority ethnic (BAME) people who need organ transplant, stem cell and blood donations. The Alliance is made up of organisations working specifically with BAME communities and representatives from national bodies, the NHS and the voluntary sector.
NBTA’s Strategic Objectives
OBJECTIVE 1: Raising the Profile of Donation OBJECTIVE 2: Raise awareness of the importance of data collection OBJECTIVE 3: Address issues of structural and institutional discrimination OBJECTIVE 4: Ensure UK wide coverage OBJECTIVE 5: We will ensure NBTA is a strong, stable and successful organisation
What we want to achieve:
Evidence suggests that black, Asian and minority ethnic people needing an organ or stem cell transplant, or blood donation are at higher risk of waiting longer and this is often accompanied by poorer experiences.
Our Alliance is working to eliminate delays and improve experiences by increasing donations. At the same time we are working to ensure all black, Asian and minority ethnic people needing an organ or stem cell transplant, or blood donation are treated with dignity and respect.
How we will achieve this change:
NBTA will be the authoritative voice for BAME donation. We aim to raise awareness and promote organ, blood and stem cell donation and transplantation to increase the number of BAME people becoming donors and consenting to donation. We champion donation and address inequalities and barriers faced by BAME communities. We aim to promote effective and efficient partnership working between members, encouraging a coordination of initiatives that make the most of skills, experience and infrastructure already available.
NATIONAL BLACK, ASIAN, MIXED RACE AND MINORITY ETHNIC TRANSPLANT ALLIANCE (“NBTA”)
The actions we take:
NBTA seeks to influence the development and implementation of national policies concerning inequalities relating to stem cells, blood and whole organs transplant to improve provision for BAME patients and communities.
NBTA aims to deliver sustainable change and our key objectives are:
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To promote better co-production, involvement and engagement of BAME communities in the development and delivery of organ, stem cell and blood donation services.
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To develop and implement a national plan for raising awareness amongst all major BAME communities in order to engage effectively with BAME potential donors and patient families.
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Improve the arrangements for BAME data collection, analysis, publication and use to fill research gaps related to organ, stem cell and blood donation and inequalities.
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Facilitate better networking, collaboration and partnership working amongst NBTA members and all stakeholders including organ donation committees, government departments, health professionals, religious organisations, voluntary organisations and NHSBT.
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Seek funds for bespoke projects to improve sustainability of BAME-led voluntary and community sector organisations supporting organ, stem cell & blood donation
Activities and achievements
April 2023 to March 2024 has been another busy and successful year for NBTA. Honorary President, Kirit Modi was bestowed with the award of the MBE in March 2023.
Partnership working with NHSBT
We continued to work with NHSBT under our partnership agreement.
The Annual BAME report on organ donation and transplantation. We helped in the writing the Foreword the 2023/24 report, and Orin Lewis and Kirit Modi were joint signatories to it.
Recruiting more Specialist Nurses for Organ Donation (SNOD) . We are still trying to work more closely with NHSBT colleagues in the recruitment of new SNODs. The impact so far has been minimal mainly because NHSBT have not yet fully taken on board positive action initiatives we have recommended to them.
Messaging conference arranged by NBTA and NHSBT
The NBTA arranged an important face to face conference to review massaging to promote organ donation among faith communities in partnership with NHSBT 4 June 2024. A report from the conference was published and is available on the NBTA website. The conference was very successful; there was amazing energy and enthusiasm throughout. The evaluation results are set out in the report. We had four excellent speakers, and their presentations are available on the NBTA website. We are most grateful to everyone who attended the conference for their support and commitment.
The ten Actions arising from the Conference are listed below. NHSBT and NBTA are working in partnership to implement these Actions and have established an Implementation group which will work over the next two years. The group is called IMPACT (Implementation of principal actions arising from Messaging Conference team) and will be chaired jointly by John Richardson and Kirit Modi. Three meetings of the IMPACT have taken place between September and December 2024.
NATIONAL BLACK, ASIAN, MIXED RACE AND MINORITY ETHNIC TRANSPLANT ALLIANCE (“NBTA”)
We believe that the Actions, once implemented, will make a significant contribution to changing attitudes to organ donation and transplantation among faith groups, with your support. We ask that you share with us examples of where the conference outputs have made an impact with the groups you are in contact with. We will keep you updated of progress using the NBTA and NHSBT websites. If you have any queries, please contact John Richardson (John.Richardson@nhsbt.nhs.uk) or Kirit Modi (kiritmodi1@hotmail.com), who are joint chairs of the Impact Group.
Actions arising from the Conference
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NHS Blood and Transplant (NHSBT) will consider how to use the conference outputs to review their messaging for faith groups across their communications and engagement channels.
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NHSBT will work in partnership with NBTA and community groups to develop assets to highlight the new faith specific messages nationally over the next two years.
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NBTA and community groups, including all successful projects funded through the Community Grants Programme will highlight the new messages in their work with faith groups, starting from September 2024 until August 2025.
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NHSBT will consider the issues arising from the survey of Specialist Nurses for Organ Donation (SNODs) presented at the Conference and develop an action plan.
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NHSBT will arrange a meeting by September 2025 of hospital chaplains to review the support they provide in conversations with family members of potential organ donors.
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NHSBT will review the work done by Organ Donation Committees in raising awareness among local faith groups by September 2025.
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NHSBT and NBTA will work in partnership to establish easy access to all relevant assets produced by NHSBT and community groups to raise awareness about both living and deceased donation among faith and minority ethnic communities, through their websites and this will happen by September 2025.
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NHSBT and NBTA will consider options for establishing lead groups or individuals who can coordinate activities within specific faith groups to raise awareness about organ donation, similar to the work currently being done by Jain and Hindu Organ Donation Alliance (JHOD) and African Caribbean Leukaemia Trust (ACLT).
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NHSBT and NBTA will provide six monthly updates on progress to all attendees and arrange a follow up conference in the next two years to review progress.
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NHSBT and NBTA will establish a Messaging Conference Implementation Group to ensure implementation of these actions by September 2024.
NATIONAL BLACK, ASIAN, MIXED RACE AND MINORITY ETHNIC TRANSPLANT ALLIANCE (“NBTA”)
Work on Stem cell Registration:
During the whole of financial year2023/24 the NBTA’s Stem Cell Diversification Group SubCommittee (SCDG) comprising of secular and faith-based stem cell organisations worked diligently in developing a consistent dialogue and meetings with the 4 members of the UK’s Aligned Stem Cell Registry (Anthony Nolan, NHS Blood and Transplant, DKMS and Welsh Bone Marrow Donor Registry) plus the UK Stem Cell Oversight Committee (UKSCOC). This NBTA Stem Cell Diversification Group Sub-Committee’s main focus is to analyse the past and present-day status of the Registry with a collective future aim to redress the disproportionate accessibility chances of a patient of diverse background finding a well-matched donor in comparison to their White Northern European counterpart. During this financial year the NBTA’s Stem Cell Diversification Group Sub-Committee created and proposed a new strategy and bodies of work to recruit more diverse individuals to the UK Stem Cell Register.
Such a national strategy is planned to be multi-track, with a plan for growing donor registrations in the UK and overseas, as well as addressing any other challenges (e.g., socioeconomic barriers) in the patient journey that further impact on those from minority ethnic and mixed heritage backgrounds. Fundamentally, it is proposed that the strategy needs to be embraced by the Aligned Registry and UKSCOC in order to empower and resource the community-based organisations who can best deliver significant growth in minority ethnic & mixed heritage donor recruitment needed in the UK.
Our Stem Cell aims:
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To improve the availability of a suitably matched stem cell donor for all BAME and mixed heritage (MH) patients with a blood cancer or blood disorder
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To question the Aligned Registry members and Department of Health on the advances made for BAME+MH patients since the formation of the UK Stem Cell Strategic Oversight Committee in 2010
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To collaborate with the clinical community to learn of their need to successfully treat patients from BAME+ MH communities.
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To understand the current and future strategy in ensuring delivery of services to BAME+ MH patients with a blood cancer or blood disorder
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To work with the Aligned Registry and Department of Health in advancing treatments for BAME+MH patients
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To hold accountable the Aligned Registry and Department of Health for improvement of treatments available to BAME+ MH blood cancer and blood disorder patients
Work on Blood donation:
Various NBTA members have continued bespoke awareness and registration drive initiatives on improving the number of Black blood donors and the regularity of donation. This is all part of NHSBT’s requirement need for more people of Black heritage to grow the number of blood donors with well-matched blood to help those with sickle cell disorder.
The increased demand for some rare blood subtypes, such as Ro, that are more common in people of Black heritage means we need more Black people to become blood donors.
Donors from Black heritage communities provide better matched blood to those who need it.
NATIONAL BLACK, ASIAN, MIXED RACE AND MINORITY ETHNIC TRANSPLANT ALLIANCE (“NBTA”)
NBTA Trustees
The three trustees, Orin Lewis, Kirit Modi and Manhar Mehta met during 2023. At our recent meeting we identified the following priorities for 2024: Giving priority to work related to organ messaging and stem cell donation, supporting the implementation of the Meeting the Need strategy, improving our website, and engaging more with associated stakeholders.
Reference and Administrative Information
Details are shown on page 1.
Financial Review
Reserves policy
The Trustees are endeavouring its build up its financial donor base with a view to having reserves of up to four months operating expenditure.
Financial position
In the year to 31 March 2024 total income for the year amounted for the year amounted to £3,695 (2023 £1.995). The reserves at 31 March 2024 were £28,153 (2023 £30,519).
Trustees’ responsibilities in relation to the financial statements
The charity trustees are responsible for preparing a trustees’ annual report and financial statements in accordance with applicable law and United Kingdom Accounting Standards (United Kingdom Generally Accepted Accounting Practice).
Charity law requires the charity trustees to prepare financial statements for each year which give a true and fair view of the state of affairs of the charity and of the incoming resources and application of resources, including the income and expenditure, of the charity for that period. In preparing the financial statements, the trustees are required to:
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select suitable accounting policies and then apply them consistently;
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observe the methods and principles in the Charities SORP;
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make judgements and estimates that are reasonable and prudent;
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state whether applicable UK accounting standards have been followed, subject to any material departures disclosed and explained in the financial statements;
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prepare the financial statements on the going concern basis unless it is inappropriate to presume that the charity will continue in business.
The trustees are responsible for keeping proper accounting records that disclose with reasonable accuracy at any time the financial position of the charity. They are also responsible for safeguarding the assets of the charity and the group and hence taking reasonable steps for the prevention and detection of fraud and other irregularities.
The trustees are responsible for the maintenance and integrity of the corporate and financial information included on the charity’s website. Legislation in the United Kingdom governing the preparation and dissemination of financial statements may differ from legislation in other jurisdictions.
NATIONAL BLACK, ASIAN, MIXED RACE AND MINORITY ETHNIC TRANSPLANT ALLIANCE (“NBTA”)
Signed on behalf of the Trustees:
Orin Cadogan-Lewis, OBE, 23 January 2025
| Statement of Receipts and Payments | Year ended 31 March 2024 |
Year ended 31 March 2024 |
Year ended 31 March 2023 |
Year ended 31 March 2023 |
|---|---|---|---|---|
| Funds | ||||
| £ | £ | £ | £ | |
| Receipts: | ||||
| Grants received | - | - | ||
| Membership fees | 2,300 | 1,950 | ||
| Organ Donation Summit contributions | 1,218 | - | ||
| Donations | 117 | 1 | ||
| Bank interest | 60 | 44 | ||
| Total receipts | 3,695 | 1,995 | ||
| Payments: | ||||
| Organ Donation Summit | (1,853) | - | ||
| Administration: | (4,208) | (1,758) | ||
| Total payments | (6,061) | (1,758) | ||
| Net (payments)/receipts | (2,366) | 237 | ||
| Funds brought forward at 1 April | 30,519 | 30,282 | ||
| Funds as at 31 March | £ 28,153 | £ 30,519 | ||
| Statement of Assets and Liabilities as at 31 March 2024 2023 £ £ Cash at bank £ 28,153 £ 30,519 General unrestricted reserves £ 28,153 £ 30,519 |
Statement of Assets and Liabilities as at 31 March 2024 2023 £ £ Cash at bank £ 28,153 £ 30,519 General unrestricted reserves £ 28,153 £ 30,519 |
Statement of Assets and Liabilities as at 31 March 2024 2023 £ £ Cash at bank £ 28,153 £ 30,519 General unrestricted reserves £ 28,153 £ 30,519 |
Statement of Assets and Liabilities as at 31 March 2024 2023 £ £ Cash at bank £ 28,153 £ 30,519 General unrestricted reserves £ 28,153 £ 30,519 |
|---|---|---|---|
| 2024 | 2023 | ||
| £ | £ | ||
| £ 28,153 | £ 30,519 | ||
| £ 28,153 | £ 30,519 | ||
NATIONAL BLACK, ASIAN, MIXED RACE AND MINORITY ETHNIC TRANSPLANT ALLIANCE (“NBTA”)
Signed on behalf of the Trustees:
Orin Cadogan-Lewis, OBE
23 January 2025
Notes to the Receipts and Payments Account
1. Organisation
NBTA is a charitable organisation which registered with the Charity Commission for England and Wales, number 1177538, on 13 March 2018.
NBTA is a coalition of organisations which seeks to promote awareness of organ and stem cell
donation amongst black, Asian and minority ethnic (“BAME”) people and to increase the number of donors from these communities.
2. Funds
The General Fund includes unrestricted grants, donations and membership fees less associated expenditure.
3. Administration costs
| Secretariat fees and expenses Website and advertising Meeting costs Accountancy Insurance Bank charges Total |
2024 | 2023 |
|---|---|---|
| £ | £ | |
| 2,100 | 151 | |
| 1,463 | 275 | |
| 185 | - | |
| - | 882 | |
| 395 | 378 | |
| 65 | 72 | |
| 4,208 | 1,758 | |
4. Trustees’ remuneration and other transactions
No Trustee received any remuneration or expenses during the year (2023: Nil). There were no related party transactions.