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2023-03-31-accounts

NATIONAL BLACK, ASIAN, MIXED RACE AND MINORITY ETHNIC TRANSPLANT ALLIANCE (“NBTA”)

FINANCIAL STATEMENTS FOR THE YEAR ENDED 31STMARCH 2023

Registered Charity Number 1177538

Reference and Administrative Information

Trustees

Manharlal Mehta

NWS ILB

Angela Azubuike

Kent, ME19AD

NATIONAL BLACK, ASIAN, MIXED RACE AND MINORITY ETHNIC TRANSPLANT ALLIANCE (“NBTA”)

TRUSTEES' REPORT YEAR ENDED 31ST MARCH 2023

The Trustees present their Report and Financial Statements for the year ended 31st March 2023. The Financial statements have been prepared in accordance with the accounting policies and comply with the Constitution, the Charities Act 2011 and Accounting and Reporting by Charities: Statement of Recommended Practice applicable to charities preparing their accounts in accordance with the Financial Reporting Standard applicable in the UK and Republic of Ireland published on 16 July 2014.

National Black, Asian and Minority Ethnic Transplant Alliance (NBTA) is a registered charity, number 1177538. The governing document is the Constitution incorporated 13.03.2018.

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Appointment of New Trustees
When a need arises the power of appointing new Trustees vests with the Trustees at that time.
Risk Management
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The Trustees of the NBTA constantly monitor and review the major practical and financial risks to the charity. The balance sheet highlights the overall financial state of the charity.

The trustees have referred to the guidance contained in the Charity Commission's general guidance on public benefit when reviewing the charity's aims and objectives.

Objects

The NBTA is an alliance of organisations who are working to achieve better experiences and outcomes for black, Asian and minority ethnic (BAME) people who need organ transplant, stem cell and blood donations. The Alliance is made up of organisations working specifically with BAME communities and representatives from national bodies, the NHS and the voluntary sector.

NBTA’s Strategic Objectives

OBJECTIVE 1: Raising the Profile of Donation OBJECTIVE 2: Raise awareness of the importance of data collection OBJECTIVE 3: Address issues of structural and institutional discrimination OBJECTIVE 4: Ensure UK wide coverage OBJECTIVE 5: We will ensure NBTA is a strong, stable and successful organisation

What we want to achieve:

Evidence suggests that black, Asian and minority ethnic people needing an organ or stem cell transplant, or blood donation are at higher risk of waiting longer and this is often accompanied by poorer experiences.

Our Alliance is working to eliminate delays and improve experiences by increasing donations. At the same time we are working to ensure all black, Asian and minority ethnic people needing an organ or stem cell transplant, or blood donation are treated with dignity and respect.

How we will achieve this change:

NBTA will be the authoritative voice for BAME donation. We aim to raise awareness and promote organ, blood and stem cell donation and transplantation to increase the number of BAME people becoming donors and consenting to donation. We champion donation and address inequalities and barriers faced by BAME communities. We aim to promote effective and efficient partnership working between members, encouraging a coordination of initiatives that make the most of skills, experience and infrastructure already available.

NATIONAL BLACK, ASIAN, MIXED RACE AND MINORITY ETHNIC TRANSPLANT ALLIANCE (“NBTA”)

The actions we take:

NBTA seeks to influence the development and implementation of national policies concerning inequalities relating to stem cells, blood and whole organs transplant to improve provision for BAME patients and communities.

NBTA aims to deliver sustainable change and our key objectives are:

Activities and achievements

April 2022 to March 2023 has been a busy and successful year for NBTA. The impact of the pandemic or organ donation and transplantation, particularly on the ethnic minority communities, was highlighted in the annual report published by NHSBT. It confirmed that the ethnic minority community was affected more severely compared to the white community. The importance of addressing systemic racism within the NHS was emphasised in our work in 2023.

Partnership working with NHSBT

We continued to work with NHSBT under our partnership agreement.

The Annual BAME report on organ donation and transplantation. We helped in the writing the Foreword the 2022/23 report, and Orin Lewis and Kirit Modi were joint signatories to it.

Recruiting more Specialist Nurses for Organ Donation (SNOD) . We worked closely with NHSBT colleagues in the recruitment of new SNODs. The impact was minimal mainly because NHSBT have not taken on board positive action initiatives we have recommended to them.

Joint Summit at City Hall in London

We organised a face-to-face summit at City Hall in London to mark the third anniversary of the change in law to opt out in England in partnership with City Hall and the Jain and Hindu Organ Donation Alliance (JHOD).

The summit revealed that there has been limited impact of the change in law for several reasons, including COVID-19. The consent rate of family members who agree to donate the organs of loved family members after death has gone down from 72% in 2020 to 70% in 2022. This reduction is also present in the consent rates among Asian and Black potential donors. The initial evaluation undertaken by the London School of Hygiene and Tropical medicine on the impact of the change in law indicates that the new law is not making things easier for ethnic minority families “at the bedside” when specialist nurses discuss organ donation with them.

NATIONAL BLACK, ASIAN, MIXED RACE AND MINORITY ETHNIC TRANSPLANT ALLIANCE (“NBTA”)

Six recommendations emerged from the summit are listed below.

  1. For the Secretary of State for Health and Social Care To urgently develop and publish the Implementation Plan for the “Honouring the gift of donation: utilising organs for transplant” report, given that its implementation must be cost neutral.

2. For the Mayor of London

To arrange a debate on Organ Donation and Transplantation to mark Organ Donation week in September 2023.

3. For Leaders of London Councils

To promote organ donation within the boroughs during Organ Donation Week in September 2023 and to consider the approach taken by Brent and Harrow Councils.

4. For NHS Blood and Transplant (NHSBT)

To work in partnership with the NKF, NBTA, JHOD and the London Specialist Nurses Team to produce a Guidance Pack to support London boroughs in promoting organ donation locally during Organ Donation Week in September 2023.

5. For NHSBT

To consider the findings of the impact of the change in law to opt out in England presented at the Summit and to implement recommendations of the final report due in Autumn 2023 from the London School of Hygiene and Tropical Medicine.

6. For NKF, NBTA and JHOD

To highlight the outcomes from the Summit and to encourage Kidney Patients Associations, Organ Donation Committees, the London Kidney Network and ethnic minority community groups in London to take on leadership roles to increase awareness about organ donation and help reduce inequality of provision.

Work on Blood donation:

Various NBTA members have continued bespoke awareness and registration drive initiatives on improving the number of Black blood donors and the regularity of donation. This is all part of NHSBT’s requirement need for more people of Black heritage to grow the number of blood donors with well-matched blood to help those with sickle cell disorder.

The increased demand for some rare blood subtypes, such as Ro, that are more common in people of Black heritage means we need more Black people to become blood donors.

Donors from Black heritage communities provide better matched blood to those who need it.

Work on Stem cell Registration:

During the whole of 2023 the NBTA’s Stem Cell Diversification Group Sub-Committee (SCDG) comprising of secular and faith-based stem cell organisations worked diligently in developing a consistent dialogue and meetings with the 4 members of the UK’s Aligned Stem Cell Registry (Anthony Nolan, NHS Blood and Transplant, DKMS and Welsh Bone Marrow Donor Registry) plus the

NATIONAL BLACK, ASIAN, MIXED RACE AND MINORITY ETHNIC TRANSPLANT ALLIANCE (“NBTA”)

UK Stem Cell Oversight Committee (UKSCOC). This NBTA Stem Cell Diversification Group SubCommittee’s main focus is to analyse the past and present-day status of the Registry with a collective future aim to redress the disproportionate accessibility chances of a patient of diverse background finding a well-matched donor in comparison to their White Northern European counterpart. During this financial year the NBTA’s Stem Cell Diversification Group Sub-Committee created and proposed a new strategy and bodies of work to recruit more diverse individuals to the UK Stem Cell Register.

Such a national strategy is planned to be multi-track, with a plan for growing donor registrations in the UK and overseas, as well as addressing any other challenges (e.g., socioeconomic barriers) in the patient journey that further impact on those from minority ethnic and mixed heritage backgrounds. Fundamentally, it is proposed that the strategy needs to be embraced by the Aligned Registry and UKSCOC in order to empower and resource the community-based organisations who can best deliver the significant growth in minority ethnic and mixed heritage donor recruitment needed in the UK.

Our Stem Cell aims:

NBTA Trustees

The three trustees, Orin Lewis, Kirit Modi and Manhar Mehta met during 2022. At our recent meeting we identified the following priorities for 2023: Giving priority to work related to blood and stem cell donation, supporting the implementation of the Meeting the Need strategy, improving our website and social media presence, and engaging more with our patrons and ambassadors.

Reference and Administrative Information

Details are shown on page 1.

Financial Review

Reserves policy

The Trustees are endeavouring its build up its financial donor base with a view to having reserves of up to four months operating expenditure.

NATIONAL BLACK, ASIAN, MIXED RACE AND MINORITY ETHNIC TRANSPLANT ALLIANCE (“NBTA”)

Financial position

In the year to 31 March 2023 total income for the year amounted for the year amounted to £1,995 (2022 £25,300). The reserves at 31 March 2023 were £30,519 (2022 £30,282).

Trustees’ responsibilities in relation to the financial statements

The charity trustees are responsible for preparing a trustees’ annual report and financial statements in accordance with applicable law and United Kingdom Accounting Standards (United Kingdom Generally Accepted Accounting Practice).

Charity law requires the charity trustees to prepare financial statements for each year which give a true and fair view of the state of affairs of the charity and of the incoming resources and application of resources, including the income and expenditure, of the charity for that period. In preparing the financial statements, the trustees are required to:

The trustees are responsible for keeping proper accounting records that disclose with reasonable accuracy at any time the financial position of the charity. They are also responsible for safeguarding the assets of the charity and the group and hence taking reasonable steps for the prevention and detection of fraud and other irregularities.

The trustees are responsible for the maintenance and integrity of the corporate and financial information included on the charity’s website. Legislation in the United Kingdom governing the preparation and dissemination of financial statements may differ from legislation in other jurisdictions.

Signed on behalf of the Trustees:

Orin Cadogan-Lewis, OBE

16 January 2024

NATIONAL BLACK, ASIAN, MIXED RACE AND MINORITY ETHNIC TRANSPLANT ALLIANCE (“NBTA”)

Statement of Receipts and Payments Year ended
31 March 2023		 Year ended
31 March 2023		 Year ended
31 March 2022		 Year ended
31 March 2022
Funds
£ £ £ £
Receipts:
Grants received - 23,150
Donations 1 100
Membershipfees 1,950 2,050
Bank interest 44
Total receipts 1,995 25,300
Payments:
- Administration: (1,758) (1,013)
Total payments (1,758) (1,013)
Net receipts 237 24,287
Funds brought forward at 1 April 30,282 - 5,995
Funds as at 31 March £ 30,519 £ 30,282

Statement of Assets and Liabilities as at 31 March

Statement of Assets and Liabilities as at 31 March Statement of Assets and Liabilities as at 31 March Statement of Assets and Liabilities as at 31 March Statement of Assets and Liabilities as at 31 March
2023 2022
£ £
Cash at bank £ 30,519 £ 30,282
General unrestricted reserves £ 30,519 £ 30,282

Signed on behalf of the Trustees:

Orin Cadogan-Lewis, OBE

16 January 2024

NATIONAL BLACK, ASIAN, MIXED RACE AND MINORITY ETHNIC TRANSPLANT ALLIANCE (“NBTA”)

Notes to the Receipts and Payments Account

1. Organisation

NBTA is a charitable organisation which registered with the Charity Commission for England and Wales, number 1177538, on 13 March 2018.

NBTA is a coalition of organisations which seeks to promote awareness of organ and stem cell donation amongst black, Asian and minority ethnic (“BAME”) people and to increase the number of donors from these communities.

2. Funds

The General Fund includes unrestricted grants, donations and membership fees less associated expenditure.

3. Grants received

3.
Grants received
2023 2022
£ £
NHS Blood and Transplant - 23,150
Total - 23,150

4. Administration costs

2023 2022
£ £
Secretariat fees and expenses 151 150
Website and advertising 275 275
Travel expenses - -
Accountancy 882 144
Insurance 378 348
Bank charges 72 96
Total 1,758 1,013

5. Trustees’ remuneration and other transactions

No Trustee received any remuneration or expenses during the year (2022: Nil). There were no related party transactions.