Trustees’ Report
and Financial Statement for the year ended 5 April 2024
Registered Charity Number 1177440
Page 1
Charity Information
Trustees
Philip Falzon Sant Manduca Orarin Falzon Sant Manduca Taksada Sangkachantra
Registered Address
Talliston West Drive Virginia Water GU25 4NE United Kingdom
Registered Charity Number 1177440
Bankers
Nat West PLC Rickmansworth (A) Branch 159 High Street RICKMANSWORTH Herts WD3 1AR
REPORT OF THE TRUSTEES
The Trustees have pleasure in presenting their fifth annual report for the purposes of the Charities Act 2011, together with the accounts for the year ended 5 April 2024. The trustees have adopted the provisions of the Statement of Recommended Practice ‘Accounting and Reporting by Charities’ issued in March 2005 in preparing this annual report and financial statement of the Charity.
HISTORY
The Charity was founded in early 2018 in honour of Elisabeth Manduca, both to commemorate this eight-year old girl’s long, brave but ultimately unsuccessful battle against the disease Diffuse Intrinsic Pontine Glioma (DIPG), the second most common type of high grade (malignant) brain tumours in children; and to raise funding and to increase support for groundbreaking research and treatment.
Page 2
STRUCTURE, GOVERNANCE AND MANAGEMENT
Elisabeth’s Foundation is constituted under a Charity Commission Scheme of 6 March 2018. It has a Trustee Board of 4, without a Chairman, and operates without staff, chargeable overheads or expenses.
PUBLIC BENEFIT
The identifiable benefit provided by the Charity is research into, and education about, Diffuse Intrinsic Pontine Glioma (DIPG), by making grants for the purchase of services and equipment required to advance both the background science and, in due course, the relief of children with the disease.
OBJECTIVES
Our declared objectives are twofold: to relieve sickness and to promote and protect good health by supporting research into the treatment of DIPG; and to advance the education of the public in all areas relating to DIPG.
ACHIEVEMENTS AND PERFORMANCE
It has been a less successful period than last year. Within our aims and objectives, we set ourselves two priorities: firstly, to determine how and where we would concentrate our efforts and, secondly, how best as a small team with few resources we could raise funds that would begin to make a difference.
In this period, we continued to concentrate some funding on a ‘start-up’ centre within the Children’s Hospital (Kinderspital) in Zurich. This centre soon divided into two distinct but enmeshed areas: the DIPG Research Institute (DRIz), with focus on building up the critical but so far very incomplete data on this complex disease; and the DIPG Centre of Excellence (DCEz) which delivers diagnoses, trials and (in due course) treatment to the children.
Individuals have again, been generous, although the charity has failed to match last year’s outstanding contributions to tackle a disease very few would have heard of, in aid of a start-up organisation in Switzerland whose outputs (let alone outcomes) were uncertain. Efforts have inevitably been severely hampered by the Covid 19 pandemic.
This year has been a difficult year and we have not managed to raise any money due to the current economic climate and the political uncertainty around the world.
Page 3
FUTURE ACTIVITIES
The Charity will aim to widen the net for donations at the same time as publicising the disease to a broader public. We will be seeking more support from other charities and funding organisations, although we recognise we are in a competitive market, not least as we are so small and DIPG is largely unknown to the public.
STATEMENT OF TRUSTEES’ RESPONSIBILITIES
The Trustees are responsible for preparing the Report of the Trustees and the Financial Statement in accordance with applicable law and UK Accounting Standards. The law applicable to charities in England and Wales required the Trustees to prepare financial statements which give a true and fair view of the state of affairs of the Charity and of the incoming resources and application of those resources for that period. In preparing this financial statement, the Trustees are required to:
-
Select a suitable accounting policy and apply it consistently.
-
Observe the methods and principles in the Charities SORP.
-
Make judgements and estimates that are reasonable and prudent.
-
Keep proper accounting records that disclose with reasonable accuracy at any time the financial position of the Charity.
-
Safeguard the assets of the Charity and hence take reasonable steps for the prevention and detection of fraud and other irregularities.
Approved by the Trustees and signed on their behalf.
Orarin Falzon Sant Manduca
Date: 16th April 2024.
Annexes
A: Financial Statement ELISABETH’S FOUNDATION
Page 4
Income & Expenditure Year to 5th April 2024
| INCOME £ (GBP) |
INCOME £ (GBP) |
|---|---|
| Voluntary Income - Donations & Events Donations Sub total |
|
| 0.00 0.00 |
|
| Expenditure Administration Commissions Sub total Funding Total Expenditure |
|
| 0.00 0.00 |
|
| SURPLUS/DEFICIT for 2023/2024 | 0.00 |
Page 5