OpenCharities

Mind Body Eds

Country
England & Wales
Charity number
1177182
Status
Registered
Reporting
Up to date Last filed Aug. 24, 2026. Filing history
Registered
Feb. 15, 2018
Legal form
CIO

Address

Address
c/o Shaw Gibbs
Wey Court West
Union Road
Farnham
Surrey
GU9 7PT

Activities

Our Charity provides grants to individuals with, or suspected of having, the condition of Ehlers Danlos syndromes to allow for timely treatment and diagnosis of the disease and its symptoms; we also aim to raise awareness among the public and within the medical profession. We operate across the UK.

Objects: 1) The Relief Of Sickness And The Preservation And Promotion Of Good Health Among People Suffering From Ehlers Danlos Syndromes, Comorbidities And Related Conditions In Particular But Not Exclusively By: A) Providing Information And Grants Of Financial Assistance To Those Diagnosed With Such Conditions, And Those Seeking A Diagnosis. B) Providing Grants Of Financial Assistance To Organisations Undertaking Research Into Ehlers Danlos Syndromes, Comorbidities And Related Conditions, The Useful Results Of Which Will Be Disseminated For The Public Benefit. 2) To Advance The Education Of The Public In Ehlers Danlos Syndromes, Comorbidities And Related Conditions In Particular But Not Exclusively By Providing Informative Talks Designed To Raise Awareness And Further Knowledge Of The Conditions Among The Medical Profession. For The Purposes Of This Clause: Ehlers-Danlos Syndromes (Eds) Are A Group Of Rare Inherited Conditions That Affect Connective Tissue. Connective Tissues Provide Support In Skin, Tendons, Ligaments, Blood Vessels, Internal Organs And Bones. There Are Thirteen Different Types Of Eds That May Share Some Symptoms, Including: An Increased Range Of Joint Movement, Stretchy Skin, Fragile Skin That Breaks Or Bruises Easily. The Different Types Of Eds Are Caused By Faults In Certain Genes That Make Connective Tissue Weaker. Depending On The Type Of Eds, The Faulty Gene May Have Been Inherited From One Parent, Or Both Parents. Sometimes The Faulty Gene Isn't Inherited, But Occurs In The Person For The First Time. Eds Can Affect People In Different Ways. For Some, The Condition Is Relatively Mild, While For Others Their Symptoms Can Be Disabling And Life-Threatening. Comorbidities And Related Conditions Include: Autonomic Nervous System Disorders; Cardiovascular Dysautonomia; Functional Gastrointestinal Disorders; Immune System Dysregulation; Exocrine Gland Dysfunction; Mast Cell Activation Disorder; Musculoskeletal System Disorders; Skin And Mucosa Disorders; Nervous System Disorders; Gynaecological Disorders; Chronic Fatigue Syndrome; Chronic Pain Syndrome And Psychiatric Disorders.

Classification

How
Makes Grants To Individuals, Makes Grants To Organisations, Provides Other Finance, Provides Services, Provides Advocacy/advice/information, Sponsors Or Undertakes Research
What
General Charitable Purposes, Education/training, The Advancement Of Health Or Saving Of Lives, Disability
Who
Children/young People, Elderly/old People, People With Disabilities, Other Charities Or Voluntary Bodies, The General Public/mankind

Geography

Region
Throughout England And Wales

Finances

Period end Filed Income Expenditure
Dec. 31, 2025 Aug. 24, 2026On time £15,913 £17,037
Dec. 31, 2024 Oct. 15, 2025On time £6,458 £28,497
Dec. 31, 2023 June 24, 2024On time £23,109 £16,738
Dec. 31, 2022 Oct. 29, 2023On time £31,125 £31,065
Dec. 31, 2021 Sept. 1, 2022On time £41,600 £18,954
Dec. 31, 2020 Oct. 14, 2021 £10,388 £6,988

Trustees

Name Appointed
Dr Rochelle Dodds Sylvester Aug. 27, 2024
Francesca Oosthuizen Nov. 26, 2019
Kevin John Sylvester Feb. 15, 2018
Martin Raymond Coleman Aug. 27, 2024