## CONGENITAL ANAEMIA NETWORK
UNAUDITED FINANCIAL STATEMENTS FOR THE YEAR ENDED 30 JUNE 2025
Charity No: 1176864
## CONGENITAL ANAEMIA NETWORK
## UNAUDITED FINANCIAL STATEMENTS
## FOR THE YEAR ENDED
## 30 JUNE 2025
|CONTENTS|PAGE|
|---|---|
|General informaton|2|
|Trustees’ Annual Report|3|
|Responsibilites of the Trustees|5|
Charity number: 1176864
1
## CONGENITAL ANAEMIA NETWORK
## GENERAL INFORMATION
Registered charity name Congenital Anaemia Network Charity number 1176864 Principal & registered office address Weaver’s Field Loud Bridge Chipping Preston PR3 2NX Trustees Mr Edward Hibbert Dr Christian Babbs Dr Noémi Roy Dr Yazann Romahi Mrs Lesley McCarthy Mrs Resina Chowdhury Ms Funmi Dasaolu Ms Katherine Magee
Accountants SPX Oxford Ltd Peace House Paradise Street Oxford OX1 1LD Independent examiner Sheila Parry FCCA Bankers Unity Trust Bank
Charity number: 1176864
2
CONGENITAL ANAEMIA NETWORK
## TRUSTEES’ ANNUAL REPORT FOR THE YEAR ENDED 30 JUNE 2025
## OBJECTIVES AND ACTIVITIES
The objectives of CAN are:
1. To create a network of patients, carers, parents, families and professionals with the aim of supporting each other, sharing ideas and experiences for those affected by all types of inherited anaemias, including those without a formal diagnosis.
2. To increase the understanding of all types of inherited anaemias amongst patients, carers, parents, families and the general public, including the sub-types, therapies available and access to appropriate resources
3. To collate and distribute sources of information on available services or financial aid for patients and families affected by inherited anaemias.
4. To promote and support all activities shown to lead to an improved quality of life in patients with inherited anaemias.
5. To promote relevant research and disseminate information and interpretation of published studies through online media.
6. To raise funds and invite and receive contributions from any person or persons who wishes to further the aims of the charity.
7. To promote the involvement of patients and carers in setting the research agenda for inherited anaemias.
## ACHIEVEMENTS AND PERFORMANCE
CAN has in the year to 30 June 2025 continued to grow and develop its services and community. Our yearly Family Day was once again a great success, attracting strong attendance and receiving excellent feedback from participants and families. The event continues to be a highlight of the CAN calendar and a valued opportunity for our community to connect.
CAN has been proud to support Duke of Edinburgh (DofE) Award volunteers this year, providing meaningful placements for young people undertaking their volunteering component. This initiative has been mutually beneficial, bringing energy and enthusiasm to our activities whilst offering the volunteers valuable experience within a charitable setting.
We have significantly expanded our range of patient information leaflets this year, producing new high-quality materials covering a broader range of inherited anaemia subtypes and related topics.
Charity number: 1176864
3
## CONGENITAL ANAEMIA NETWORK
These leaflets aim to improve understanding and self-management for patients and their families, and have been welcomed by our membership.
The Better Together three-year project, which promoted joint working across charities concerned with inherited anaemias and bone marrow conditions, came to an end this year. CAN is pleased to have been part of this initiative and, through it, has built strong relationships with a number of partner organisations. We continue to work with several of these partners and look forward to maintaining these collaborations going forward.
CAN continues to support medical students and/or school students who would like to do projects with a medical charity, and has been acknowledged in University of Oxford research publications resulting from work supported by the charity.
Through social media and our revamped website, CAN has continued to promote high quality information on rare inherited anaemias and to highlight events and collaborations across the sector.
## FINANCIAL REVIEW
2024-2025 saw income of £20,178 (2024: £15,634), mostly from directed donations. Our total expenditure was £35,962 (2024: £21,173), of which £12,674 was related to Research funding and £10,241 to Family Days. £13,047 was the remainder of our expenditure.
## Going concern
The trustees consider that there were no material uncertainties affecting the charity’s ability to continue as a going concern.
## Future fundraising objectves
Currently the majority of CAN’s income is from a single funder, and we aim to broaden our fundraising. This is challenging in the current climate, but we have had some success with sponsored events and aim to do more in this area.
## STRUCTURE GOVERNANCE AND MANAGEMENT
## Governing Document
CAN is a Charitable Incorporated Organisation, and was registered with the Charity Commission on 26[th] January 2018. CAN does not have any employees.
## Recruitment and appointment of new trustees
Trustees are recruited upon expression of interest. There is currently insufficient interest to allow rotation of trustees.
All trustees give their time voluntarily and receive no remuneration or other benefits.
## Risk management
The trustees have a duty to identify and review the risks to which the charity is exposed and to ensure appropriate controls are in place to provide a reasonable assurance against fraud and error.
## REFERENCE AND ADMINISTRATIVE DETAILS
See p2
Charity number: 1176864
4
CONGENITAL ANAEMIA NETWORK
## TRUSTEES’ ANNUAL REPORT FOR THE YEAR ENDED 30 JUNE 2025
## RESPONSIBILITIES OF THE TRUSTEES
The trustees are responsible for preparing the Trustees’ Annual Report and the financial statements in accordance with applicable law and regulations.
Charity Law requires the trustees to prepare financial statements for each financial year. Under that law the trustees have elected to prepare the financial statements in accordance with United Kingdom Generally Accepted Accounting Practice (United Kingdom Accounting Standards and applicable law). Under charity law the trustees must not approve the financial statements unless they are satisfied that they give a true and fair view of the state of affairs of the charity and the income and expenditure of the charity for that year.
In preparing these financial statements, the trustees are required to:
- select suitable accounting policies and apply them consistently;
- observe the methods and principles in the Charities SORP
- make judgements and estimates that are reasonable and prudent;
- state whether applicable UK Accounting Standards have been followed, subject to any material departures disclosed and explained in the financial statements;
- prepare the financial statements on the going concern basis unless it is inappropriate to presume that the charity will continue in operation.
The trustees are responsible for keeping adequate accounting records that are sufficient to show and explain the charity’s transactions and disclose with reasonable accuracy at any time the financial position of the charity and which enable them to ensure that the financial statements comply with the Charities Act 2011. They are responsible for safeguarding the assets of the charity and hence for taking reasonable steps for the prevention and detection of fraud and other irregularities.
## INDEPENDENT EXAMINATION
Sheila Parry will be considered for re-appointment at the next trustees’ meeting as independent examiner for the ensuing year.
Signed on behalf of the trustees
……………………………………..
Date …
Charity number: 1176864
5
Charity Name No (if any) Congenital Enaemia Network 1176864 Receipts and payments accounts CC16a For the period Period start date Period end date To from 7/1/2024 6/30/2025
## Section A Receipts and payments
|Section A Receipts and payments|||||
|---|---|---|---|---|
|to the nearest £
A1 Receipts
Donations
6,041
Grants
4,137
-
-
-
-
-
-
10,178
-
-
_Sub total_-
_Total receipts_ 10,178
Unrestricted
funds
_Sub total(Gross income for AR)_
A2 Asset and investment sales,
(see table).|Restricted funds
to the nearest £
-
10,000
-
-
-
-
-
-
10,000
-
-
-
10,000|to the nearest £
-
-
-
-
-
-
-
-
-
-
-
-
-
Endowment
funds|Total funds
to the nearest £
6,041
14,137
-
-
-
-
-
-
20,178
-
-
-
20,178|Last year
to the nearest £|
|||||15,634|
|||||-|
|||||-|
|||||-|
|||||-|
|||||-|
|||||-|
|||||-|
|||||15,634|
||||||
||||||
|||||-|
|||||-|
||||||
||10,000|-|20,178|15,634|
|A3 Payments
Just Givingcharges
216
Merchandise
-
Insurance
168
Research funding
5,000
Patient support
930
FamilyDayexpenses
10,241
Volunteer expenses
3,537
Travel and subsistence
-
Printing,postage & stationery
1,638
Governance costs
654
Other expenditure
4,764
_Sub total_ 27,148
-
-
_Sub total_ -
_Total payments_ 27,148
_Net of receipts/(payments)_ - 16,970
A5 Transfers between funds
-
A6 Cash funds last year end
49,737
_Cash funds this year end_ 32,767
A4 Asset and investment
purchases, (see table)|-
-
7,674
-
-
-
-
-
-
1,140
8,814
-
-
-
8,814
1,186
-
22,636
23,822|-
-
-
-
-
-
-
-
-
-
-
-
-
-
-
-
-
-
-|216
-
168
12,674
930
10,241
3,537
-
1,638
654
5,904
35,962
-
-
-
35,962
- 15,784
-
72,373
56,589||
|---|---|---|---|---|
|||||216|
|||||1,584|
|||||14|
|||||2,337|
|||||2,900|
|||||9,361|
|||||2,520|
|||||20|
|||||380|
|||||1,314|
|||||15|
|||||20,661|
||||||
||||||
||||||
|||||-|
||||||
|||||20,661|
||||||
||1,186|-|- 15,784|- 5,027|
||-|-|-|-|
||22,636|-|72,373|77,400|
||23,822|-|56,589|72,373|
## Section B Statement of assets and liabilities at the end of the period
|Categories
B1 Cash funds
B2 Other monetary assets
B3 Investment assets
B5 Liabilities
B4 Assets retained for the
charity’s own use|Details
Unity Trust Current Account:
Unrestricted funds
Research Funding
J4G
Charities Trust
CAN Wales
Details
Details
Details
Details
_Total cash funds_
(agree balances with receipts and payments
account(s))|to nearest £
32,767
-
-
-
-
-
32,767
OK
to nearest £
-
-
-
-
-
-
Unrestricted
funds
Unrestricted
funds
Fund to which asset
belongs
Fund to which asset
belongs
Fund to which
liability relates|Restricted funds
to nearest £
13,435
1,700
5,597
3,090
-
23,822
OK
Restricted funds
to nearest £
-
-
-
-
-
-
Cost (optional)
-
-
-
-
-
Cost (optional)
-
-
-
-
-
-
-
-
-
-
-
-
-
Amount due
(optional)|to nearest £
Endowment
funds|
|---|---|---|---|---|
||||||
||||||
||||||
||||||
||||||
||||||
||||||
|||||-|
|||||OK|
|||||to nearest £
Endowment
funds|
|||||-|
|||||-|
|||||-|
|||||-|
|||||-|
|||||-|
|||||Current value
(optional)|
|||||-|
|||||-|
|||||-|
|||||-|
|||||-|
|||||Current value
(optional)|
|||||-|
|||||-|
|||||-|
|||||-|
|||||-|
|||||-|
|||||-|
|||||-|
|||||-|
|||||When due
(optional)|
||||-||
||||-||
||||-||
||||-||
- Signed by one or two trustees on Date of behalf of all the trustees Signature Print Name approval