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← Congenital Anaemia Network

2024-06-30-accounts

CONGENITAL ANAEMIA NETWORK

UNAUDITED FINANCIAL STATEMENTS FOR THE YEAR ENDED 30 JUNE 2024

Charity No: 1176864

CONGENITAL ANAEMIA NETWORK

UNAUDITED FINANCIAL STATEMENTS

FOR THE YEAR ENDED 30 JUNE 2024

CONTENTS PAGE
General information 2
Trustees’ Annual Report 3
Responsibilities of the Trustees 5
Independent Examiner’s report to the members 6
Statement of Financial Activities 7
Balance Sheet 8
Notes to the financial statements 9-11

Charity number: 1176864

1

CONGENITAL ANAEMIA NETWORK

GENERAL INFORMATION

Registered charity name Congenital Anaemia Network Charity number 1176864 Principal & registered office address Weaver’s Field Loud Bridge Chipping Preston PR3 2NX

Trustees

Mr Edward Hibbert Dr Christian Babbs Dr Noémi Roy Dr Yazann Romahi Mrs Lesley McCarthy Mrs Resina Chowdhury Ms Funmi Dasaolu Ms Katherine Magee

Accountants SPX Oxford Ltd Peace House Paradise Street Oxford OX1 1LD Independent examiner Sheila Parry FCCA Bankers Unity Trust Bank

Charity number: 1176864

2

CONGENITAL ANAEMIA NETWORK

TRUSTEES’ ANNUAL REPORT FOR THE YEAR ENDED 30 JUNE 2024

OBJECTIVES AND ACTIVITIES

The objectives of CAN are:

  1. To create a network of patients, carers, parents, families and professionals with the aim of supporting each other, sharing ideas and experiences for those affected by all types of inherited anaemias, including those without a formal diagnosis.

  2. To increase the understanding of all types of inherited anaemias amongst patients, carers, parents, families and the general public, including the sub-types, therapies available and access to appropriate resources

  3. To collate and distribute sources of information on available services or financial aid for patients and families affected by inherited anaemias.

  4. To promote and support all activities shown to lead to an improved quality of life in patients with inherited anaemias.

  5. To promote relevant research and disseminate information and interpretation of published studies through online media.

  6. To raise funds and invite and receive contributions from any person or persons who wishes to further the aims of the charity.

  7. To promote the involvement of patients and carers in setting the research agenda for inherited anaemias.

ACHIEVEMENTS AND PERFORMANCE

CAN has in the year to June 30[th] 2024, been in a state of gentle growth. The board has had one member resign but another member has come forward. Our yearly Family Day was once again successful with over 100 participants. Our members enjoyed more regular contact with a Newsletter. Our members have asked that we start a second event to be carried out in the winter and we have now started putting on a Cinema Event in February which had a lot of success.

CAN has continued to provide numerous aides to patient management including information folders, medication dosette boxes, and water bottles.

CAN is formally part of Better Together, which promotes joint working across charities which include inherited anaemias, namely Aplastic Anaemia Trust, and 4 other small charities which all work around bone marrow conditions. CAN has a formal Steering Committee Member in this newly funded

Charity number: 1176864

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CONGENITAL ANAEMIA NETWORK

initiative, as well as “community representatives” from our patient group involved directly in the projects.

CAN continues to support medical students and/or school students who would like to do projects with a medical charity.

CAN has been acknowledged in University of Oxford research publications that have resulted from work produced by the research assistant funded by CAN.

Through social media, CAN has promoted high quality information on rare inherited anaemias as well as events that promote joint working across this sector. We have revamped our website and are producing more high-quality information sheets for our patient group.

FINANCIAL REVIEW

2023-2024 saw income of £15,634 (2023: £8,223), mostly from directed donations. Our total expenditure was £21,173 (2023: £11,742), of which £9,361 was related to Family Days. £11,812 was the remainder of our expenditure.

Going concern

The trustees consider that there were no material uncertainties affecting the charity’s ability to continue as a going concern.

Future fundraising objectives

Currently the majority of CAN’s income is from a single funder, and we aim to broaden our fundraising. This is challenging in the current climate, but we have had some success with sponsored events and aim to do more in this area.

STRUCTURE GOVERNANCE AND MANAGEMENT

Governing Document

CAN is a Charitable Incorporated Organisation, and was registered with the Charity Commission on 26[th] January 2018. CAN does not have any employees.

Recruitment and appointment of new trustees

Trustees are recruited upon expression of interest. There is currently insufficient interest to allow rotation of trustees.

All trustees give their time voluntarily and receive no remuneration or other benefits.

Risk management

The trustees have a duty to identify and review the risks to which the charity is exposed and to ensure appropriate controls are in place to provide a reasonable assurance against fraud and error.

REFERENCE AND ADMINISTRATIVE DETAILS

See p2

Charity number: 1176864

4

CONGENITAL ANAEMIA NETWORK

TRUSTEES’ ANNUAL REPORT FOR THE YEAR ENDED 30 JUNE 2024

RESPONSIBILITIES OF THE TRUSTEES

The trustees are responsible for preparing the Trustees’ Annual Report and the financial statements in accordance with applicable law and regulations.

Charity Law requires the trustees to prepare financial statements for each financial year. Under that law the trustees have elected to prepare the financial statements in accordance with United Kingdom Generally Accepted Accounting Practice (United Kingdom Accounting Standards and applicable law). Under charity law the trustees must not approve the financial statements unless they are satisfied that they give a true and fair view of the state of affairs of the charity and the income and expenditure of the charity for that year.

In preparing these financial statements, the trustees are required to:

The trustees are responsible for keeping adequate accounting records that are sufficient to show and explain the charity’s transactions and disclose with reasonable accuracy at any time the financial position of the charity and which enable them to ensure that the financial statements comply with the Charities Act 2011. They are responsible for safeguarding the assets of the charity and hence for taking reasonable steps for the prevention and detection of fraud and other irregularities.

INDEPENDENT EXAMINATION

Sheila Parry will be considered for re-appointment at the next trustees’ meeting as independent examiner for the ensuing year.

Signed on behalf of the trustees

Noémi Roy

……………………………………..

Date …April 29[th] 2025

Charity number: 1176864

5

CONGENITAL ANAEMIA NETWORK

INDEPENDENT EXAMINER’S REPORT TO THE MEMBERS OF CONGENITAL ANAEMIA NETWORK FOR THE YEAR ENDED 30 JUNE 2024

I report on the accounts of the charity for the year ended 30 June 2024, which are set out in pages 7 - 11.

RESPECTIVE RESPONSIBILITIES OF TRUSTEES AND EXAMINER

The trustees are responsible for the preparation of the accounts. The trustees consider that an audit is not required for this year under section 144(2) of the Charities Act 2011 (the 2011 Act) and that an independent examination is needed.

Having satisfied myself that the charity is not subject to audit under charity law and is eligible for independent examination it is my responsibility to:

BASIS OF INDEPENDENT EXAMINER’S REPORT

My examination was carried out in accordance with the General Directions given by the Charity Commission. An examination includes a review of the accounting records kept by the charity and a comparison of the accounts presented with those records. It also includes consideration of any unusual items or disclosures in the accounts and the seeking of explanations from you as trustees concerning any such matters. The procedures undertaken do not provide all the evidence that would be required in an audit and consequently no opinion is expressed as to whether the accounts present a ‘true and fair view’ and the report is limited to those matters set out in the statement below.

INDEPENDENT EXAMINER’S STATEMENT

In connection with my examination, no matter has come to my attention:

(1) which gives me reasonable cause to believe that, in any material respect, the requirements:

have not been met; or

(2) to which, in my opinion, attention should be drawn in order to enable a proper understanding of the accounts to be reached.

Sheila Parry FCCA

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Date……29 April 2025.………………………….

Charity number: 1176864

6

CONGENITAL ANAEMIA NETWORK

STATEMENT OF FINANCIAL ACTIVITIES FOR THE YEAR ENDED 30 JUNE 2024

Note
Income from:
Donations and legacies
3
Total income
Expenditure on:
Raising funds
4
Charitable activities
5
Total expenditure
Net income / -expenditure
Transfers between funds
Net movement in funds
Reconciliation of funds:
Total funds brought
forwards
Total funds carried
forward		 Unrestricted
Funds
£
15,634
15,634
1,800
17,036
18,836
- 3,202
-
- 3,202
51,779
48,577		 Restricted
Funds
£
-
-
-
2,337
2,337
- 2,337
-
- 2,337
24,973
22,636		 Total Funds
2024
£
15,634
15,634
1,800
19,373
21,173
- 5,539
-
- 5,539
76,752
71,213		 Unrestricted
Funds
£
8,223
8,223
216
9,735
9,951
- 1,728
-
- 1,728
53,507
51,779		 Restricted
Funds
£
-
-
-
1,791
1,791
- 1,791
-
- 1,791
26,764
24,973		 Total Funds
2023
£
8,223
8,223
216
11,526
11,742
- 3,519
-
- 3,519
80,271
76,752

The Statement of Financial Activities includes all gains and losses in the year and therefore a statement of total recognised gains and losses has not been prepared.

All of the above amounts relate to continuing activities.

The notes on pages 9 to 11 form part of these financial statements.

Charity number: 1176864

7

CONGENITAL ANAEMIA NETWORK

BALANCE SHEET AS AT 30 JUNE 2024

Note
Current assets
Debtors: Amounts falling due within one year 7
Cash at bank and in hand
Creditors: Amounts falling due within one
year
8
Net current assets

Net assets

The funds of the charity
Funds
Unrestricted income funds
Restricted income funds
Total funds
9		 2024
£
£
154
72,373
72,527
1,314
71,213


71,213
48,577
22,636
71,213		 2023
£
£
-
77,400
77,400
648
76,752

76,752
51,779
24,973
76,752		 2023
£
£
-
77,400
77,400
648
76,752

76,752
51,779
24,973
76,752
76,752
51,779
24,973
76,752

For the year ended 30 June 2024 the charity was entitled to exemption from audit under section 145 of the Charities Act 2011.

Trustees responsibilities:

These financial statements were approved by the members of the committee and authorised for issue on ……29/4/25……………. and are signed on their behalf by:

…

Noémi Roy…… Trustee

…..

Charity number: 1176864

8

CONGENITAL ANAEMIA NETWORK

NOTES TO THE ACCOUNTS FOR THE YEAR ENDED 30 JUNE 2024

1. ORGANISATION STATUS

Congenital Anaemia Network is a Charitable Incorporated Organisation.

2. ACCOUNTING POLICIES

Basis of accounting

These financial statements have been prepared under the historical cost convention and in accordance with applicable United Kingdom accounting standards and the requirements of the Statements of Recommended Practice 2015 (SORP 2015), ‘Accounting and Reporting by Charities’, issued by the Charities Commission.

Accounting period

These accounts cover the year to 30 June 2024.

Fund accounting

Unrestricted funds are available for use at the discretion of the trustees in furtherance of the general objectives of the charity.

Income

All incoming resources are included in the Statement of Financial Activities when the charity is legally entitled to the income and the amount can be quantified with reasonable accuracy.

Donations and legacies are reported in the Statement of Financial Activities if they are received or due in the financial year.

Fixed assets

Fixed assets (excluding investments) are stated at cost less accumulated depreciation. The costs of minor additions or those costing below £1,000 are not capitalised.

Depreciation

Depreciation is calculated so as to write off the cost of an asset, less its estimated residual value, over the useful economic life of that asset as follows:

Office equipment – 25% straight line Computer equipment – 33% straight line

Expenditure

Expenditure is accounted for on an accruals basis and has been classified under headings that aggregate all costs related to the category. Expenditure represents amounts invoiced, including value added tax.

Taxation

The Charity is exempt from corporation tax on its charitable activities. Value Added Tax is not recoverable by the Charity and as such is included in the relevant costs in the statement of financial activities.

Charity number: 1176864

9

CONGENITAL ANAEMIA NETWORK

NOTES TO THE ACCOUNTS FOR THE YEAR ENDED 30 JUNE 2024

3. INCOME FROM DONATIONS AND LEGACIES

Donations and legacies
Donations
Grant		 Unrestricted
Funds
£
12,202
3,432
15,634		 Restricted
Funds
£
-
-
-		 Total
Funds
2024
£
12,202
3,432
15,634		 Unrestricted
Funds
£
5,703
2,520
8,223		 Restricted
Funds
£
-
-
-		 Total
Funds
2023
£
5,703
2,520
8,223

4. EXPENDITURE ON RAISING FUNDS

Unrestricted
Funds
£
Just Giving charges
216
Merchandise
1,584
1,800
. EXPENDITURE ON CHARITABLE ACTIVITIES
Unrestricted
Funds
£
Insurance
14
Research funding
-
Patient support
2,200
Patient support for
conferences
700
Family Day expenses
9,361
Volunteer expenses
2,520
Other expenditure
527
Travel and subsistence
20
Printing, postage & stationery
380
Governance costs
1,314
17,036
. GOVERNANCE COSTS
Unrestricted
Funds
£
Accountancy
1,070
Independent Examiner's fee
244
1,314		 Unrestricted
Funds
£
Just Giving charges
216
Merchandise
1,584
1,800
. EXPENDITURE ON CHARITABLE ACTIVITIES
Unrestricted
Funds
£
Insurance
14
Research funding
-
Patient support
2,200
Patient support for
conferences
700
Family Day expenses
9,361
Volunteer expenses
2,520
Other expenditure
527
Travel and subsistence
20
Printing, postage & stationery
380
Governance costs
1,314
17,036
. GOVERNANCE COSTS
Unrestricted
Funds
£
Accountancy
1,070
Independent Examiner's fee
244
1,314		 Restricted
Funds
£
-
-
-
Restricted
Funds
£
-
2,337
-
-
-
-
-
-
-
-
2,337
Restricted
Funds
£
-
-		 Total
Funds
2024
£
216
1,584
1,800
Total
Funds
2024
£
14
2,337
2,200
700
9,361
2,520
527
20
380
1,314		 Unrestricted
Funds
£
216
-
216
Unrestricted
Funds
£
-
-
-
-
1,093
840
6,428
256
1,154
- 36		 Unrestricted
Funds
£
216
-
216
Unrestricted
Funds
£
-
-
-
-
1,093
840
6,428
256
1,154
- 36


Restricted
Funds
£
-
-
-
Restricted
Funds
£
-
891
-
-
900
-
-
-
-
-


Total
Funds
2023
£
216
-
216
Total
Funds
2023
£
-
891
-
-
1,993
840
6,428
256
1,154
- 36



























































19,373 9,735 1,791 11,526

Total
Funds
2024
£

1,070

244

1,314		 Unrestricted
Funds
£
- 80
44
Restricted
Funds
£

-

-

-		 Total
Funds
2023
£
- 80
44
1,314 - - 36 - 36

5. EXPENDITURE ON CHARITABLE ACTIVITIES

6. GOVERNANCE COSTS

Charity number: 1176864

10

CONGENITAL ANAEMIA NETWORK

NOTES TO THE ACCOUNTS FOR THE YEAR ENDED 30 JUNE 2024

7. DEBTORS

Other debtors
. CREDITORS
Other creditors		 2024
£
154
154
2024
£
1,314
1,314		 2023
£
-
-
2023
£
648
648

8. CREDITORS

9. INCOME FUNDS

General Funds
Unrestricted income funds
Restricted Funds
Research funding
J4G
Charities Trust
CAN Wales
Total funds		 At 1 July
2023
£
51,779
13,446
2,840
5,597
3,090
24,973
76,752		 Income
£
15,634
-
-
-
-
-
15,634		 Expenditure
£
18,836
2,337
-
-
-
2,337
21,173		 Transfers
£
-
-
-
-
-
-
-		 At 30 June
2024
£
48,577
11,109
2,840
5,597
3,090
22,636
71,213

10. TRUSTEE REMUNERATION & RELATED PARTY TRANSACTIONS

No member of the board of trustees received any remuneration or incurred any expenses during the year.

There were no related party transactions during 2023-24.

Charity number: 1176864

11