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← Congenital Anaemia Network

2023-06-30-accounts

CONGENITAL ANAEMIA NETWORK

UNAUDITED FINANCIAL STATEMENTS FOR THE YEAR ENDED 30 JUNE 2023

Charity No: 1176864

CONGENITAL ANAEMIA NETWORK

UNAUDITED FINANCIAL STATEMENTS

FOR THE YEAR ENDED 30 JUNE 2023

CONTENTS PAGE
General information 2
Trustees’ Annual Report 3
Responsibilities of the Trustees 5
Independent Examiner’s report to the members 6
Statement of Financial Activities 7
Balance Sheet 8
Notes to the fnancial statements 9-11

Charity number: 1176864

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CONGENITAL ANAEMIA NETWORK

GENERAL INFORMATION

Registered charity name Charity number 1176864 Principal & registered office address Weaver’s Field Loud Bridge Chipping Preston PR3 2NX

Congenital Anaemia Network

Trustees

Mr Edward Hibbert Dr Christian Babbs Dr Noémi Roy Dr Yazann Romahi Mrs Sandy Hayes Mrs Lesley McCarthy Mrs Resina Chowdhury

Accountants

SPX Oxford Ltd Peace House Paradise Street Oxford OX1 1LD

Independent examiner Bankers

Sheila Parry FCCA Unity Trust Bank

Charity number: 1176864

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CONGENITAL ANAEMIA NETWORK

TRUSTEES’ ANNUAL REPORT FOR THE YEAR ENDED 30 JUNE 2023

OBJECTIVES AND ACTIVITIES

The objectives of CAN are:

  1. To create a network of patients, carers, parents, families and professionals with the aim of supporting each other, sharing ideas and experiences for those affected by all types of inherited anaemias, including those without a formal diagnosis.

  2. To increase the understanding of all types of inherited anaemias amongst patients, carers, parents, families and the general public, including the subtypes, therapies available and access to appropriate resources

  3. To collate and distribute sources of information on available services or financial aid for patients and families affected by inherited anaemias.

  4. To promote and support all activities shown to lead to an improved quality of life in patients with inherited anaemias.

  5. To promote relevant research and disseminate information and interpretation of published studies through online media.

  6. To raise funds and invite and receive contributions from any person or persons who wishes to further the aims of the charity.

  7. To promote the involvement of patients and carers in setting the research agenda for inherited anaemias.

ACHIEVEMENTS AND PERFORMANCE

CAN has in the year to June 30[th] 2023, been in steady state. The yearly Family Day was once again successful with over 100 participants, some of whom travelled as far away as from Wales. Our members enjoyed more regular contact with a Newsletter. Our members have asked that we start a second event to be carried out in the winter.

CAN has continued to provide numerous aides to patient management including information folders, medication dosette boxes, and water bottles.

CAN is formally part of Better Together, which promotes joint working across charities which include inherited anaemias, namely Aplastic Anaemia Trust, and 4 other small charities which all work around bone marrow conditions. CAN has a formal Steering Committee Member in this newly funded initiative, as well as

Charity number: 1176864

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CONGENITAL ANAEMIA NETWORK

“community representatives” from our patient group involved directly in the projects.

CAN continues to support medical students and/or school students who would like to do projects with a medical charity.

CAN has been acknowledged in University of Oxford research publications that have resulted from work produced by the research assistant funded by CAN.

Through social media, CAN has promoted high quality information on rare inherited anaemias as well as events that promote joint working across this sector.

FINANCIAL REVIEW

2022-2023 saw income of £8,223 (2022: £24,139), mostly from directed donations. Our total expenditure was £11,742 (2022: below £0), of which £18,972 was a directed donation for research, which was spent supporting a research assistant at the Weatherall Institute of Molecular Medicine. £1,948 was the remainder of our expenditure.

Going concern

The trustees consider that there were no material uncertainties affecting the charity’s ability to continue as a going concern.

Future fundraising objectives

Currently the majority of CAN’s income is from a single funder, and we aim to broaden our fundraising. This is challenging in the current climate, but we have had some success with sponsored events and aim to do more in this area.

STRUCTURE GOVERNANCE AND MANAGEMENT

Governing Document

CAN is a Charitable Incorporated Organisation, and was registered with the Charity Commission on 26[th] January 2018. CAN does not have any employees.

Recruitment and appointment of new trustees

Trustees are recruited upon expression of interest. There is currently insufficient interest to allow rotation of trustees.

All trustees give their time voluntarily and receive no remuneration or other benefits.

Risk management

The trustees have a duty to identify and review the risks to which the charity is exposed and to ensure appropriate controls are in place to provide a reasonable assurance against fraud and error.

REFERENCE AND ADMINISTRATIVE DETAILS

See p2

Charity number: 1176864

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CONGENITAL ANAEMIA NETWORK

TRUSTEES’ ANNUAL REPORT FOR THE YEAR ENDED 30 JUNE 2023

RESPONSIBILITIES OF THE TRUSTEES

The trustees are responsible for preparing the Trustees’ Annual Report and the financial statements in accordance with applicable law and regulations.

Charity Law requires the trustees to prepare financial statements for each financial year. Under that law the trustees have elected to prepare the financial statements in accordance with United Kingdom Generally Accepted Accounting Practice (United Kingdom Accounting Standards and applicable law). Under charity law the trustees must not approve the financial statements unless they are satisfied that they give a true and fair view of the state of affairs of the charity and the income and expenditure of the charity for that year.

In preparing these financial statements, the trustees are required to:

The trustees are responsible for keeping adequate accounting records that are sufficient to show and explain the charity’s transactions and disclose with reasonable accuracy at any time the financial position of the charity and which enable them to ensure that the financial statements comply with the Charities Act 2011. They are responsible for safeguarding the assets of the charity and hence for taking reasonable steps for the prevention and detection of fraud and other irregularities.

INDEPENDENT EXAMINATION

Sheila Parry will be considered for re-appointment at the next trustees’ meeting as independent examiner for the ensuing year.

Signed on behalf of the trustees

……………………………………..

Date …March 1, 2024

Charity number: 1176864

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CONGENITAL ANAEMIA NETWORK

INDEPENDENT EXAMINER’S REPORT TO THE MEMBERS OF CONGENITAL ANAEMIA NETWORK FOR THE YEAR ENDED 30 JUNE 2023

I report on the accounts of the charity for the year ended 30 June 2023, which are set out in pages 7 - 11.

RESPECTIVE RESPONSIBILITIES OF TRUSTEES AND EXAMINER

The trustees are responsible for the preparation of the accounts. The trustees consider that an audit is not required for this year under section 144(2) of the Charities Act 2011 (the 2011 Act) and that an independent examination is needed.

Having satisfied myself that the charity is not subject to audit under charity law and is eligible for independent examination it is my responsibility to:

BASIS OF INDEPENDENT EXAMINER’S REPORT

My examination was carried out in accordance with the General Directions given by the Charity Commission. An examination includes a review of the accounting records kept by the charity and a comparison of the accounts presented with those records. It also includes consideration of any unusual items or disclosures in the accounts and the seeking of explanations from you as trustees concerning any such matters. The procedures undertaken do not provide all the evidence that would be required in an audit and consequently no opinion is expressed as to whether the accounts present a ‘true and fair view’ and the report is limited to those matters set out in the statement below.

INDEPENDENT EXAMINER’S STATEMENT

In connection with my examination, no matter has come to my attention: (1) which gives me reasonable cause to believe that, in any material respect, the requirements:

have not been met; or

(2) to which, in my opinion, attention should be drawn in order to enable a proper understanding of the accounts to be reached.

Sheila Parry FCCA

………………………………………………

Date……5[th] March 2024.………………………….

Charity number: 1176864

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CONGENITAL ANAEMIA NETWORK Charity number: 1176864

CONGENITAL ANAEMIA NETWORK

STATEMENT OF FINANCIAL ACTIVITIES FOR THE YEAR ENDED 30 JUNE 2023

Note
Income from:
Donations and
legacies
3
Charitable
activities
Other trading
activities
Other income
Total income
Expenditure on:
Raising funds
4
Charitable
activities
5
Total expenditure
Net income / -
expenditure
Transfers between
funds
Net movement in
funds
Reconciliation of
funds:
Total funds brought
forwards
Total funds carried
forward		 Unrestri
cted
Funds
£
8,223
-
-
-
8,223
216
9,735
9,951
- 1,728
-
- 1,728
53,507
51,779		 Restric
ted
Funds
£
-
-
-
-
-
-
1,791
1,791
- 1,791
-
- 1,791
26,764
24,973		 Total
Funds
2023
£
8,223
-
-
-
8,223
216
11,526
11,742
- 3,519
-
- 3,519
80,271
76,752		 Unrestri
cted
Funds
£
15,702
-
-
-
15,702
286
6,450
6,736
8,966
-
8,966
44,541
53,507		 Restric
ted
Funds
£
8,437
-
-
-
8,437
-
-
11,962
-
11,962
20,399
-
20,399
6,365
26,764		 Total
Funds
2022
£
24,139
-
-
-
24,139
286
-5,512
-5,226
29,365
-
29,365
50,906
80,271

The Statement of Financial Activities includes all gains and losses in the year and therefore a statement of total recognised gains and losses has not been prepared. All of the above amounts relate to continuing activities. The notes on pages 9 to 11 form part of these financial statements.

Charity number: 1176864

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CONGENITAL ANAEMIA NETWORK

BALANCE SHEET AS AT 30 JUNE 2023

Not
e
Current assets
Debtors: Amounts falling due
within one year
Cash at bank and in hand
Creditors: Amounts falling due
within one year
7
Net current assets
Net assets
The funds of the charity
Funds
Unrestricted income funds
Restricted income funds
Total funds
8		 2023
£
£
-
77,400
77,400
648
76,752
76,752
51,779
24,973
76,752		 2022
£
£
-
81,603
81,603
1,332
80,271
80,271
53,507
26,764
80,271		 2022
£
£
-
81,603
81,603
1,332
80,271
80,271
53,507
26,764
80,271
80,271
53,507
26,764
80,271

For the year ended 30 June 2023 the charity was entitled to exemption from audit under section 145 of the Charities Act 2011.

Trustees responsibilities:

These financial statements were approved by the members of the committee and authorised for issue on …………………. and are signed on their behalf by:

…

Noémi Roy……………….. Trustee

Charity number: 1176864

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CONGENITAL ANAEMIA NETWORK

NOTES TO THE ACCOUNTS FOR THE YEAR ENDED 30 JUNE 2023

1. ORGANISATION STATUS

Congenital Anaemia Network is a Charitable Incorporated Organisation.

2. ACCOUNTING POLICIES

Basis of accounting

These financial statements have been prepared under the historical cost convention and in accordance with applicable United Kingdom accounting standards and the requirements of the Statements of Recommended Practice 2015 (SORP 2015), ‘Accounting and Reporting by Charities’, issued by the Charities Commission.

Accounting period

These accounts cover the year to 30 June 2023.

Fund accounting

Unrestricted funds are available for use at the discretion of the trustees in furtherance of the general objectives of the charity.

Income

All incoming resources are included in the Statement of Financial Activities when the charity is legally entitled to the income and the amount can be quantified with reasonable accuracy.

Donations and legacies are reported in the Statement of Financial Activities if they are received or due in the financial year.

Fixed assets

Fixed assets (excluding investments) are stated at cost less accumulated depreciation. The costs of minor additions or those costing below £1,000 are not capitalised.

Depreciation

Depreciation is calculated so as to write off the cost of an asset, less its estimated residual value, over the useful economic life of that asset as follows:

Office equipment – 25% straight line Computer equipment – 33% straight line

Expenditure

Expenditure is accounted for on an accruals basis and has been classified under headings that aggregate all costs related to the category. Expenditure represents amounts invoiced, including value added tax.

Taxation

The Charity is exempt from corporation tax on its charitable activities. Value Added Tax is not recoverable by the Charity and as such is included in the relevant costs in the statement of financial activities.

Charity number: 1176864

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CONGENITAL ANAEMIA NETWORK

NOTES TO THE ACCOUNTS FOR THE YEAR ENDED 30 JUNE 2023

3. INCOME FROM DONATIONS AND LEGACIES
Unrestric
ted
Funds
£
Donations and legacies
Donations
5,703
Grant
2,520
8,223
4. EXPENDITURE ON RAISING FUNDS
Unrestric
ted
Funds
£
Just Giving charges
216
Merchandise
-
Total expenditure on raising
funds
216
5. EXPENDITURE ON CHARITABLE ACTIVITIES
Unrestric
ted
Funds
£
Research funding
-
Family Day expenses
1,093
Volunteer expenses
840
Other expenditure
6,428
Travel and subsistence
256
Printing, postage & stationery
1,154
Governance costs
-36
9,735
6. GOVERNANCE COSTS
Unrestric
ted
Funds
£
Accountancy
- 80
Independent Examiner's fee
44
Total governance costs
-36		 Restrict
ed
Funds
£
-
-
-
Restrict
ed
Funds
£
-
-
-
Restrict
ed
Funds
£
891
900
-
-
-
-
-
1,791
Restrict
ed
Funds
£
-
-
-		 Total
Funds
2023
£
5,703
2,520
8,223
Total
Funds
2023
£
216
-
216
Total
Funds
2023
£
891
1,993
840
6,428
256
1,154
-36
11,526
Total
Funds
2023
£
- 80
44
-36		 Total
Funds
2022
£
15,702
8,437
24,139
Total
Funds
2022
£
216
70
286
Total
Funds
2022
£
- 11,962
4,020
1,617
147
-
-
666
-5,512
Total
Funds
2022
£
566
100
666

Charity number: 1176864

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CONGENITAL ANAEMIA NETWORK

NOTES TO THE ACCOUNTS FOR THE YEAR ENDED 30 JUNE 2023

7. CREDITORS

. CREDITORS
Other creditors 2023
£
648
648		 2022
£
1,332
1,332

8. INCOME FUNDS

General Funds
Unrestricted income funds
Restricted Funds
Research funding
J4G
Charities Trust
CAN Wales
Total funds		 At 1
July
2022
£
53,507
15,237
2,840
5,597
3,090
26,764
80,271		 Incom
e
£
8,223
-
-
-
-
-
8,223		 Expendi
ture
£
9,951
1,791
-
-
-
1,791
11,742		 Transf
ers
£
-
-
-
-
-
-
-		 At 30
June
2023
£
51,779
13,446
2,840
5,597
3,090
24,973
76,752

9. TRUSTEE REMUNERATION & RELATED PARTY TRANSACTIONS

No member of the board of trustees received any remuneration or incurred any expenses during the year.

There were no related party transactions during 2022-23.

Charity number: 1176864

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