CONGENITAL ANAEMIA NETWORK
UNAUDITED FINANCIAL STATEMENTS FOR THE YEAR ENDED 30 JUNE 2021
Charity No: 1176864
CONGENITAL ANAEMIA NETWORK
UNAUDITED FINANCIAL STATEMENTS
FOR THE YEAR ENDED 30 JUNE 2021
| CONTENTS | PAGE |
|---|---|
| General informaton | 2 |
| Trustees’ Annual Report | 3 |
| Responsibilites of the Trustees | 6 |
| Independent Examiner’s report to the members | 7 |
| Statement of Financial Actvites | 8 |
| Balance Sheet | 9 |
| Notes to the fnancial statements | 10-12 |
Charity number: 1176864
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CONGENITAL ANAEMIA NETWORK
GENERAL INFORMATION
| Registered charity name | Congenital Anaemia Network |
|---|---|
| Charity number | 1176864 |
| Principal & registered ofce address | Weaver’s Field |
| Loud Bridge | |
| Chipping | |
| Preston | |
| PR3 2NX | |
| Trustees | Mr Edward Hibbert |
| Dr Christan Babbs | |
| Dr Noémi Roy | |
| Dr Yazann Romahi | |
| Mrs Sandy Hayes | |
| Mrs Lesley McCarthy | |
| Mrs Resina Chowdhury | |
| Ms Kate Magee | |
| Accountants | SPX Oxford Ltd |
| Peace House | |
| Paradise Street | |
| Oxford | |
| OX1 1LD | |
| Independent examiner | Sheila Parry FCCA |
| Bankers | Unity Trust Bank |
Charity number: 1176864
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CONGENITAL ANAEMIA NETWORK
TRUSTEES’ ANNUAL REPORT FOR THE YEAR ENDED 30 JUNE 2021
OBJECTIVES AND ACTIVITIES
The objectives of CAN are:
-
To create a network of patients, carers, parents, families and professionals with the aim of supporting each other, sharing ideas and experiences for those affected by all types of inherited anaemias, including those without a formal diagnosis.
-
To increase the understanding of all types of inherited anaemias amongst patients, carers, parents, families and the general public, including the sub-types, therapies available and access to appropriate resources
-
To collate and distribute sources of information on available services or financial aid for patients and families affected by inherited anaemias.
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To promote and support all activities shown to lead to an improved quality of life in patients with inherited anaemias.
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To promote relevant research and disseminate information and interpretation of published studies through online media.
-
To raise funds and invite and receive contributions from any person or persons who wishes to further the aims of the charity.
-
To promote the involvement of patients and carers in setting the research agenda for inherited anaemias.
ACHIEVEMENTS AND PERFORMANCE
CAN has in the year to June 30[th] 2021, remains severely impacted by the COVID19 pandemic. Like many other charities, CAN had to move all of its activities online. Instead of being able to provide the well-attended yearly Family Day, CAN provided this as an afternoon Zoom sessions of activities. In addition, CAN facilitated several COVID-focused seminars and discussion groups which were widely attended. CAN is also now formally recognised as one of the charities that is contacted by the National Haemoglobinopathy Panel for dissemination of information to all patients across the UK who live with inherited anaemias.
In the context of the worldwide Black Lives Matters movement, CAN commissioned an independent assessment of whether and how to get involved in this topic, and concluded that taking positive action towards tackling racism was the best way of showing solidarity.
Charity number: 1176864
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CONGENITAL ANAEMIA NETWORK
Following a successful anti-racism workshop in Oxford for people living with sickle cell disease, (not funded by CAN) CAN has set aside some funding to repeat this in another part of the country.
CAN has continues to provide numerous aides to patient management including information folders, medication dosette boxes, and water bottles.
CAN has interacted with other charities in the same sector, namely DBA UK, Aplastic Anaemia Trust, and Sickle Cell Awareness UK to promote information about rare anaemias, promote awareness campaigns and plan advocacy activities at the UK and EU level. CAN is formally part of The Healthy Bone Marrow Alliance, which promotes joint working across charities which include inherited anaemias. This is comprised of quarterly meetings, and has resulted in a new project on improved patient pathways.
CAN now has a medical student branch in order to interest medical students in inherited anaemias. CAN also takes on volunteer students including those on the Duke of Edinburgh award.
CAN has been acknowledged in University of Oxford research publications that have resulted from work produced by the research assistant funded by CAN.
Through social media, CAN has promoted high quality information on rare inherited anaemias as well as events that promote joint working across this sector.
FINANCIAL REVIEW
2020-2021 saw income of £12,778 (2020: £37,603), mostly from directed donations. Our total expenditure was £20,920 (2020: £18,636), of which £18,972 was a directed donation for research, which was spent supporting a research assistant at the Weatherall Institute of Molecular Medicine. £1,948 was the remainder of our expenditure.
Going concern
The trustees consider that there no material uncertainties affecting the charity’s ability to continue as a going concern.
Future fundraising objectives
Currently the majority of CAN’s income is from a single funder, and we aim to broaden our fundraising. This is challenging in the current climate, but we have had some success with sponsored events and aim to do more in this area.
STRUCTURE GOVERNANCE AND MANAGEMENT
Governing Document
CAN is a Charitable Incorporated Organisation, and was registered with the Charity Commission on 26[th] January 2018. CAN does not have any employees.
Recruitment and appointment of new trustees
Charity number: 1176864
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CONGENITAL ANAEMIA NETWORK
Trustees are recruited upon expression of interest. There is currently insufficient interest to allow rotation of trustees.
All trustees give their time voluntarily and receive no remuneration or other benefits.
Risk management
The trustees have a duty to identify and review the risks to which the charity is exposed and to ensure appropriate controls are in place to provide a reasonable assurance against fraud and error.
REFERENCE AND ADMINISTRATIVE DETAILS
See p2
Charity number: 1176864
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CONGENITAL ANAEMIA NETWORK
TRUSTEES’ ANNUAL REPORT FOR THE YEAR ENDED 30 JUNE 2021
RESPONSIBILITIES OF THE TRUSTEES
The trustees are responsible for preparing the Trustees’ Annual Report and the financial statements in accordance with applicable law and regulations.
Charity Law requires the trustees to prepare financial statements for each financial year. Under that law the trustees have elected to prepare the financial statements in accordance with United Kingdom Generally Accepted Accounting Practice (United Kingdom Accounting Standards and applicable law). Under charity law the trustees must not approve the financial statements unless they are satisfied that they give a true and fair view of the state of affairs of the charity and the income and expenditure of the charity for that year.
In preparing these financial statements, the trustees are required to:
-
select suitable accounting policies and apply them consistently;
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observe the methods and principles in the Charities SORP
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make judgements and estimates that are reasonable and prudent;
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state whether applicable UK Accounting Standards have been followed, subject to any material departures disclosed and explained in the financial statements;
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prepare the financial statements on the going concern basis unless it is inappropriate to presume that the charity will continue in operation.
The trustees are responsible for keeping adequate accounting records that are sufficient to show and explain the charity’s transactions and disclose with reasonable accuracy at any time the financial position of the charity and which enable them to ensure that the financial statements comply with the Charities Act 2011. They are responsible for safeguarding the assets of the charity and hence for taking reasonable steps for the prevention and detection of fraud and other irregularities.
INDEPENDENT EXAMINATION
Sheila Parry will be considered for re-appointment at the next trustees’ meeting as independent examiner for the ensuing year.
Signed on behalf of the trustees
……………… ……………………..
Date ……April 20[th] 2022.
Charity number: 1176864
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CONGENITAL ANAEMIA NETWORK
INDEPENDENT EXAMINER’S REPORT TO THE MEMBERS OF CONGENITAL ANAEMIA NETWORK FOR THE YEAR ENDED 30 JUNE 2021
I report on the accounts of the charity for the year ended 30 June 2021, which are set out in pages 7 - 11.
RESPECTIVE RESPONSIBILITIES OF TRUSTEES AND EXAMINER
The trustees are responsible for the preparation of the accounts. The trustees consider that an audit is not required for this year under section 144(2) of the Charities Act 2011 (the 2011 Act) and that an independent examination is needed.
Having satisfied myself that the charity is not subject to audit under charity law and is eligible for independent examination it is my responsibility to:
-
examine the accounts under section 145 of the 2011 Act;
-
to follow the procedures laid down in the general Directions given by the Charity Commission under section 145(5)(b) of the 2011 Act; and
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to state whether particular matters have come to my attention.
BASIS OF INDEPENDENT EXAMINER’S REPORT
My examination was carried out in accordance with the General Directions given by the Charity Commission. An examination includes a review of the accounting records kept by the charity and a comparison of the accounts presented with those records. It also includes consideration of any unusual items or disclosures in the accounts and the seeking of explanations from you as trustees concerning any such matters. The procedures undertaken do not provide all the evidence that would be required in an audit and consequently no opinion is expressed as to whether the accounts present a ‘true and fair view’ and the report is limited to those matters set out in the statement below.
INDEPENDENT EXAMINER’S STATEMENT
In connection with my examination, no matter has come to my attention:
(1) which gives me reasonable cause to believe that, in any material respect, the requirements:
-
to keep accounting records in accordance with section 130 of the 2011 Act; and
-
to prepare accounts which accord with the accounting records and comply with the accounting requirements of the 2011 Act
have not been met; or
(2) to which, in my opinion, attention should be drawn in order to enable a proper understanding of the accounts to be reached.
Sheila Parry FCCA
………………………………………………
Date………22 April 2022……………..………………………….
Charity number: 1176864
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CONGENITAL ANAEMIA NETWORK
STATEMENT OF FINANCIAL ACTIVITIES FOR THE YEAR ENDED 30 JUNE 2021
| Unrestricted | Restricted | Total Funds |
Unrestricted | Restricted | Total Funds |
|
|---|---|---|---|---|---|---|
| Funds | Funds | 2021 | Funds | Funds | 2020 | |
| Note | £ | £ | £ | £ | £ | £ |
| Income from: | ||||||
| Donatons and legacies 3 |
12,778 | - | 12,778 | 11,183 | 25,847 | 37,030 |
| Other income | - | - | - | 573 | - | 573 |
| Total income | 12,778 | - | 12,778 | 11,756 | 25,847 | 37,603 |
| Expenditure on: | ||||||
| Raising funds 6 |
716 | - | 716 | 923 | - | 923 |
| Charitable actvites 7 |
1,232 | 18,972 | 20,204 | 3,484 | 14,229 | 17,713 |
| Total expenditure | 1,948 | 18,972 | 20,920 | 4,407 | 14,229 | 18,636 |
| Net income / -expenditure |
10,830 | - 18,972 | - 8,142 | 7,349 | 11,618 | 18,967 |
| Transfers between funds |
- | - | - | - | - | - |
| Net movement in funds |
10,830 | - 18,972 | - 8,142 | 7,349 | 11,618 | 18,967 |
| Reconciliaton of funds: |
||||||
| Total funds brought forwards |
33,711 | 25,337 | 59,048 | 26,362 | 13,719 | 40,081 |
| Total funds carried forward |
44,541 | 6,365 | 50,906 | 33,711 | 25,337 | 59,048 |
The Statement of Financial Activities includes all gains and losses in the year and therefore a statement of total recognised gains and losses has not been prepared.
All of the above amounts relate to continuing activities.
The notes on pages 10 to 12 form part of these financial statements.
Charity number: 1176864
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CONGENITAL ANAEMIA NETWORK
BALANCE SHEET AS AT 30 JUNE 2021
| 2021 | 2021 | 2020 | 2020 | |
|---|---|---|---|---|
| Not e |
£ | £ | £ | £ |
| Current assets | ||||
| Debtors: Amounts falling due within one year |
- | - | ||
| Cash at bank and in hand | 57,169 | 59,792 | ||
| 57,169 | 59,792 | |||
| Creditors: Amounts falling due within oneyear 7 |
6,263 | 744 | ||
| Net current assets | 50,906 | 59,048 | ||
| Net assets | 50,906 | 59,048 | ||
| The funds of the charity | ||||
| Funds | ||||
| Unrestricted income funds | 44,541 | 33,711 | ||
| Restricted income funds | 6,365 | 25,337 | ||
| Total funds 8 |
50,906 | 59,048 |
For the year ended 30 June 2021 the charity was entitled to exemption from audit under section 145 of the Charities Act 2011.
Trustees responsibilities:
-
The members have not required the charity to obtain an audit of its accounts for the year in question in accordance with section 145; and
-
The trustees acknowledge their responsibilities for complying with the requirements of the Act with respect to accounting records and the preparation of accounts.
These financial statements were approved by the members of the committee and authorised for issue on …………………. and are signed on their behalf by:
…
Noémi Roy……………….. Trustee
Charity number: 1176864
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CONGENITAL ANAEMIA NETWORK
NOTES TO THE ACCOUNTS FOR THE YEAR ENDED 30 JUNE 2021
1. ORGANISATION STATUS
Congenital Anaemia Network is a Charitable Incorporated Organisation.
2. ACCOUNTING POLICIES
Basis of accounting
These financial statements have been prepared under the historical cost convention and in accordance with applicable United Kingdom accounting standards and the requirements of the Statements of Recommended Practice 2015 (SORP 2015), ‘Accounting and Reporting by Charities’, issued by the Charities Commission.
Accounting period
These accounts cover the year to 30 June 2021 but the comparative figures cover seventeen months.
Fund accounting
Unrestricted funds are available for use at the discretion of the trustees in furtherance of the general objectives of the charity.
Income
All incoming resources are included in the Statement of Financial Activities when the charity is legally entitled to the income and the amount can be quantified with reasonable accuracy.
Donations and legacies are reported in the Statement of Financial Activities if they are received or due in the financial year.
Fixed assets
Fixed assets (excluding investments) are stated at cost less accumulated depreciation. The costs of minor additions or those costing below £1,000 are not capitalised.
Depreciation
Depreciation is calculated so as to write off the cost of an asset, less its estimated residual value, over the useful economic life of that asset as follows:
Office equipment – 25% straight line Computer equipment – 33% straight line
Expenditure
Expenditure is accounted for on an accruals basis and has been classified under headings that aggregate all costs related to the category. Expenditure represents amounts invoiced, including value added tax.
Taxation
The Charity is exempt from corporation tax on its charitable activities. Value Added Tax is not recoverable by the Charity and as such is included in the relevant costs in the statement of financial activities.
Charity number: 1176864
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CONGENITAL ANAEMIA NETWORK
NOTES TO THE ACCOUNTS FOR THE YEAR ENDED 30 JUNE 2021
| 3. INCOME FROM DONATIONS AND LEGACIES |
3. INCOME FROM DONATIONS AND LEGACIES |
|||
|---|---|---|---|---|
| Unrestricted | Restricted | Total Funds |
Total Funds |
|
| Funds | Funds | 2021 | 2020 | |
| £ | £ | £ | £ | |
| Donatons and legacies | ||||
Donatons |
12,778 | - | 12,778 | 37,030 |
| 12,778 | - | 12,778 | 37,030 | |
| 4. EXPENDITURE ON RAISING FUNDS |
||||
| Unrestricted | Restricted | Total Funds |
Total Funds |
|
| Funds | Funds | 2021 | 2020 | |
| £ | £ | £ | £ | |
| Just Giving charges | 216 | - | 216 | 216 |
| Merchandise | 500 | - | 500 | 707 |
| Total expenditure on raising funds | 716 | - | 716 | 923 |
| 5. EXPENDITURE ON CHARITABLE ACTIVITIES | ||||
| Unrestricted | Restricted | Total Funds |
Total Funds |
|
| Funds | Funds | 2021 | 2020 | |
| £ | £ | £ | £ | |
| Donatons given | - | - | - | 100 |
Research funding |
- | 18,972 | 18,972 | 14,229 |
| Patent support | 50 | - | 50 | - |
Family Day expenses |
- | - | - | 897 |
| Other expenditure | 101 | - | 101 | 1,545 |
| Printng, postage & statonery | 493 | - | 493 | - |
Governance costs |
588 | - | 588 | 942 |
| 1,232 | 18,972 | 20,204 | 17,713 | |
| 6. GOVERNANCE COSTS |
||||
| Unrestricted | Restricted | Total Funds |
Total Funds |
|
| Funds | Funds | 2021 | 2020 | |
| £ | £ | £ | £ | |
| Accountancy | 508 | - | 508 | 702 |
| Independent Examiner's fee | 80 | - | 80 | 240 |
| Total governance costs | 588 | - | 588 | 942 |
Charity number: 1176864
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CONGENITAL ANAEMIA NETWORK
NOTES TO THE ACCOUNTS FOR THE YEAR ENDED 30 JUNE 2021
7. CREDITORS
| 7. CREDITORS |
||
|---|---|---|
| Creditors: Amounts falling due within one year | ||
| 2021 | 2020 | |
| £ | £ | |
| Other creditors | 6,263 | 744 |
| 6,263 | 744 |
8. INCOME FUNDS
| 8. INCOME FUNDS |
|||||
|---|---|---|---|---|---|
| At 1 July 2020 |
Income | Expenditure | Transfers | At 30 June 2021 |
|
| £ | £ | £ | £ | £ | |
| General Funds | |||||
| Unrestricted income funds | 33,711 | 12,778 | 1,948 | - | 44,541 |
| Restricted Funds | |||||
| Research funding | 22,247 | - | 18,972 | - | 3,275 |
| CAN Wales | 3,090 | - | - | - | 3,090 |
| 25,337 | - | 18,972 | - | 6,365 | |
| Total funds | 59,048 | 12,778 | 20,920 | - | 50,906 |
9. TRUSTEE REMUNERATION & RELATED PARTY TRANSACTIONS
No member of the board of trustees received any remuneration or incurred any expenses during the year.
There were no related party transactions during 2020-21.
Charity number: 1176864
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