## **Aniridia Network** (Registered charity, number 1176792) **Financial statements for the year ended 31 March 2024**
|**Page**|**Contents**|
|---|---|
|2 - 4|Trustees’ annual report|
|5|Independent examiner’s report|
|6|Receipts & payments account|
|7|Statement of assets & liabilities|
|8|Notes to the accounts|
## **Aniridia Network Trustees’ annual report for the year ended 31 March 2024**
**Full name** Aniridia Network
**Organisation type** Charitable incorporated organisation
## **Registered charity number** 1176792
**Principal address** 22 Cornish House, Adelaide Lane, Sheffield, S3 8BJ
## **Trustees (held office throughout year unless noted otherwise)**
Katie Atkinson, Chair James Buller, Trustee Andrew Baghurst, Trustee
## **Independent examiner**
John O’Brien, employee of Community Accounting Plus, Units 1 & 2 North West, 41 Talbot Street, Nottingham, NG1 5GL
## **Governance and management**
The charity is operated under the rules of its governing document adopted 23/01/2018.
Trustees are recruited via adverts on the Aniridia Network’s communications channels to members and followers. Trustees are appointed by members at Annual General Meetings or, on an interim basis, co-opted by the existing trustees (in accordance with the charity’s governing document).
## **Objectives and activities**
The objects of the CIO are, for the public benefit, in the British Isles:
(1) the protection and advancement of health, of people with aniridia, in particular but not exclusively by:
(a) promoting and facilitating research into the causes, effects and treatments of aniridia
(b) providing information to educate people with aniridia, their family members and relevant professionals about the causes, effects, treatments and management of aniridia.
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## **Aniridia Network**
(2) the relief of people suffering from aniridia and their families, in particular but not exclusively by:
(a) providing a network of families, individuals and professionals in order to share: ideas, knowledge and experiences plus give practical and emotional support
(b) providing information and services to people with aniridia, their family members and relevant professionals regarding education, health, employment and social security plus life skills relevant to having aniridia.
(3) the education of the public, in all areas relating to aniridia by:
(a) publicising the needs, stories and achievements of people affected by and working with aniridia
For the purpose of this clause ‘aniridia’ means the genetic conditions causing iris defects (such as aniridia and iris hypoplasia) usually causing visual impairment. Where they occur in people with aniridia it also encompasses related conditions such as: dry eye, keratopathy, nystagmus, cataracts, glaucoma, auditory processing disorder and WAGR.
## **Summary of the main activities undertaken for the public benefit**
Aniridia Network supports people in the UK affected by aniridia: those who have it plus their family, carers, doctors, educators and others. The charity wants all these people to be hopeful, confident, supported and well informed regarding aniridia. For them we: organise conferences, meetups and befriending, provide access to professionals and distribute or signpost to useful information.
## **Public benefit statement**
The Trustees confirm that they have complied with the duty in section 17 of the Charities Act 2011 to have due regard to the Charity Commission's general guidance on public benefit, 'Charities and Public Benefit'.
## **Summary of the main achievements during the period**
Enquiries – 10 medical enquiries on a variety of topics.
Befriending – 8 new members referred to service and offered a buddy, with 4 new adults being offered a buddy or offering to be a buddy. Parent information packs sent to all new members with children. 12 buddy relationships set up in total.
Education – 16 requests for education advice. Information sent out included: pupil passports, EHCP Appendix 1 resource, and links to RNIB Early Years resources and support for parents. 1 referral made to Aniridia Network’s education adviser. 26 parents responded to our survey requesting information about support received from their local authority.
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## **Aniridia Network**
Conference – first in-person conference for 4 years, held in Birmingham on 2[nd] September 2023, with 59 delegates and 9 speakers. The conference covered various topics and included a talk from the Network’s patrons on their careers.
Events – various social events were arranged, including several national Rare Disease Day events and an event in London for Aniridia Day.
## **The charity’s policy on reserves**
The charity has no specific policy with regard to the level of reserves.
Signed on behalf of the charity’s trustees:
Signed
Date 17/11/2024
Andrew Baghurst, Trustee
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## **Independent examiner’s report to the trustees of Aniridia Network for the year ended 31 March 2024**
I report to the trustees on my examination of the accounts of Aniridia Network (the charity) for the year ended 31 March 2024.
## **Responsibilities and basis of report**
As the trustees of the charity you are responsible for the preparation of the accounts in accordance with the requirements of the Charities Act 2011 (‘the Act’). I report in respect of my examination of the charity’s accounts carried out under section 145 of the 2011 Act and in carrying out my examination I have followed all the applicable Directions given by the Charity Commission under section 145(5)(b) of the Act.
## **Independent examiner’s statement**
I have completed my examination. I confirm that no matters have come to my attention in connection with the examination giving me cause to believe that in any material respect:
1. accounting records were not kept in respect of the charity as required by section 130 of the Act; or
2. the accounts do not accord with those records.
I have no concerns and have come across no other matters in connection with the examination to which attention should be drawn in this report in order to enable a proper understanding of the accounts to be reached.
21/11/2024 Signed _________________________ Date ______________________ John O’Brien MSc, FCCA, FCIE Employee of Community Accounting Plus
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## **Aniridia Network Receipts & payments account for the year ended 31 March 2024**
|**Aniridia Network**
**Receipts & payments account**
**for the year ended 31 March 2024**|||
|---|---|---|
|_2023_
Total
**Unrestricted**
Funds
**Funds**
£
**Note**
**£**
**Receipts**
3180
Grants & donations
**2**
3247
-
Conference attendance
1013
-
Bank interest
105
3
Exchange rate gains
-
3183
**Total receipts**
**4365**
**Payments**
-
Conference
5245
664
European Aniridia Conference grants
-
251
Events
-
587
Internal services - IT
310
103
Membership fees
77
420
Independent examination fees
438
96
Insurance
96
175
Printing and postage
583
52
Trustee expenses
290
81
Election Fees
201
4
Bank Fees
52
320
Website Fees
326
60
Volunteer awards
17
2813
**Total payments**
**7635**
370
**Net receipts/(payments)**
(3270)
52042
Cash funds at start of this period
52412
52412
**Cash funds at end of this period**
**49142**|**Restricted**
**Funds**
**£**
-
-
-
-
**-**
-
-
-
-
-
-
-
-
-
-
-
-
-
**-**
-
-
**-**|**_2024_**
**Total**
**Funds**
**£**
3247
1013
105
-|
|||**4365**|
|||5245
-
-
310
77
438
96
583
290
201
52
326
17|
|||**7635**|
|||(3270)
52412|
|||**49142**|
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## **Aniridia Network Statement of assets and liabilities at 31 March 2024**
|**Aniridia Network**
**Statement of assets and liabilities**
**at 31 March 2024**||
|---|---|
|_2023_
£
**Cash assets**
52412
Bank accounts
52412
**Assets retained for the charity’s own use**
414
General equipment
**Liabilities**
(438)
Creditors - Independent examination fee
(438)|**_2024_**
**£**
49142|
||**49142**|
||414
(360)|
||
**(360)**|
These financial statements are accepted on behalf of the charity by:
Signed Date 17/11/2024 Andrew Baghurst, Trustee
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## **Aniridia Network Notes to the accounts for the year ended 31 March 2024**
## **1. Receipts & payments accounts**
Receipts and payments accounts contain a summary of money received and money spent during the period and a list of assets and liabilities at the end of the period. Usually, cash received and cash spent will include transactions through bank accounts and cash in hand.
## **2. Grants & donations**
|CAF Donate
Cafess
Give As You Live
Justgiving
Paypal Giving Fund
Other|**Unrestricted**
**£**
2307
20
34
584
162
141
**3247**|**Restricted**
**Total**
**£**
**£**
-
2307
-
20
-
34
-
584
-
162
-
141
**-**
**3247**|
|---|---|---|
## **3. Premises & staff**
The Aniridia Network has no staff employed and no premises.
## **4. Trustees’ remuneration**
- Trustees received no expenses, remuneration or benefits in this period.
## **5. Related party transactions**
- There were no related party transactions in this period.
## **6. Glossary of terms**
**Creditors:** These are amounts owed by the charity, but not paid during the accounting period.
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