## **Aniridia Network** (Registered charity, number 1176792) **Financial statements for the year ended 31 March 2022**
|**Page**|**Contents**|
|---|---|
|2 - 4|Trustees’ annual report|
|5|Independent examiner’s report|
|6|Receipts & payments account|
|7|Statement of assets & liabilities|
|8 - 9|Notes to the accounts|
## **Aniridia Network Trustees’ annual report for the year ended 31 March 2022**
**Full name** Aniridia Network
**Organisation type** Charitable incorporated organisation
## **Registered charity number** 1176792
**Principal address** 22 Cornish House, Adelaide Lane, Sheffield, S3 8BJ
## **Trustees (held office throughout year unless noted otherwise)**
Katie Atkinson, Chair James Buller, Trustee Andrew Baghurst, Trustee, from September 2021 Dave McKay, Trustee, April to September 2021 Eleanor Burke, Trustee, April to June 2021
## **Independent examiner**
John O’Brien, employee of Community Accounting Plus, Units 1 & 2 North West, 41 Talbot Street, Nottingham, NG1 5GL
## **Governance and management**
The charity is operated under the rules of its governing document adopted 23/01/2018.
Trustees are recruited via adverts on the Aniridia Network’s communications channels to members and followers. Trustees are appointed by members at Annual General Meetings or, on an interim basis, co-opted by the existing trustees (in accordance with the charity’s governing document).
## **Objectives and activities**
The objects of the CIO are, for the public benefit, in the British Isles:
(1) the protection and advancement of health, of people with aniridia, in particular but not exclusively by:
(a) promoting and facilitating research into the causes, effects and treatments of aniridia
(b) providing information to educate people with aniridia, their family members and relevant professionals about the causes, effects, treatments and management of aniridia.
(2) the relief of people suffering from aniridia and their families, in particular but not exclusively by:
2
(a) providing a network of families, individuals and professionals in order to share: ideas, knowledge and experiences plus give practical and emotional support
(b) providing information and services to people with aniridia, their family members and relevant professionals regarding education, health, employment and social security plus life skills relevant to having aniridia.
(3) the education of the public, in all areas relating to aniridia by:
(a) publicising the needs, stories and achievements of people affected by and working with aniridia
For the purpose of this clause ‘aniridia’ means the genetic conditions causing iris defects (such as aniridia and iris hypoplasia) usually causing visual impairment. Where they occur in people with aniridia it also encompasses related conditions such as: dry eye, keratopathy, nystagmus, cataracts, glaucoma, auditory processing disorder and WAGR.
## **Summary of the main activities undertaken for the public benefit**
Aniridia Network supports people in the UK affected by aniridia: those who have it plus their family, carers, doctors, educators and others. The charity wants all these people to be hopeful, confident, supported and well informed regarding aniridia. For them we: organise conferences, meetups and befriending, provide access to professionals and distribute or signpost to useful information.
## **Public benefit statement**
The Trustees confirm that they have complied with the duty in section 17 of the Charities Act 2011 to have due regard to the Charity Commission's general guidance on public benefit, 'Charities and Public Benefit'.
3
## **Aniridia Network**
## **Summary of the main achievements during the period**
Enquiries – 8 medical enquiries on a variety of topics, 2 enquiries regarding Personal Independence Payment (PIP) and Disability Living Allowance (DLA).
Befriending – 20 individuals interacted with the befriending service, 9 parent information packs were sent out and 15 buddy relationships were set up.
Education – 5 pupil passports issued, 2 EHCP resources issued, 2 pupil passports and EHCP resources issued to teachers of the visually impaired, work progressing on new resource to support parents with babies with aniridia.
Conference – integrated in to the 5[th] European Aniridia Conference, a 2-day event with 45 speakers over 43 sessions, 353 attendees and 10 patients/parents benefited from 25-minute video clinics with Moorfields Eye Hospital consultants.
## **The charity’s policy on reserves**
The charity has no specific policy with regard to the level of reserves.
Signed on behalf of the charity’s trustees:
Signed
Date 19/07/2022
Andrew Baghurst, Trustee
4
## **Independent examiner’s report to the trustees of Aniridia Network for the year ended 31 March 2022**
I report to the trustees on my examination of the accounts of Aniridia Network (the charity) for the year ended 31 March 2022.
## **Responsibilities and basis of report**
As the trustees of the charity you are responsible for the preparation of the accounts in accordance with the requirements of the Charities Act 2011 (‘the Act’). I report in respect of my examination of the charity’s accounts carried out under section 145 of the 2011 Act and in carrying out my examination I have followed all the applicable Directions given by the Charity Commission under section 145(5)(b) of the Act.
## **Independent examiner’s statement**
I have completed my examination. I confirm that no matters have come to my attention in connection with the examination giving me cause to believe that in any material respect:
1. accounting records were not kept in respect of the charity as required by section 130 of the Act; or
2. the accounts do not accord with those records.
I have no concerns and have come across no other matters in connection with the examination to which attention should be drawn in this report in order to enable a proper understanding of the accounts to be reached.
Signed _________________________ Date ______________________ 19/07/2022 John O’Brien MSc, FCCA, FCIE Employee of Community Accounting Plus
5
## **Aniridia Network Receipts & payments account for the year ended 31 March 2022**
|_2021_
Total
**Unrestricted**
Funds
**Funds**
£
**Note**
**£**
**Receipts**
5394
Grants & donations
**2**
8757
-
Exchange rate gains
2
5394
**Total receipts**
**8759**
**Payments**
-
Training
220
102
Conference
-
-
Conference - transfer to Aniridia Spain
-
-
Conference - returned to funders
-
-
Internal services - Education
18
455
Internal services - IT
293
107
Membership fees
50
185
Insurance
-
-
Postage
178
-
Election Fees
2487
226
Marketing
-
11
Bank Fees
3
316
Website Fees
286
-
Volunteer awards
40
1402
**Total payments**
**3575**
3991
**Net receipts/(payments)**
5184
45400
Cash funds at start of this period
46581
-
Transfers between funds
277
49391
**Cash funds at end of this period**
**52042**|**_2022_**
**Restricted**
**Total**
**Funds**
**Funds**
**£**
**£**
13428
22185
-
2
**13428**
**22187**
-
220
10273
10273
3485
3485
1933
1933
-
18
-
293
-
50
-
-
-
178
-
2487
-
-
269
272
-
286
-
40
**15960**
**19535**
(2533)
2651
2810
49391
(277)
-
**0**
**52042**|
|---|---|
6
## **Aniridia Network Statement of assets and liabilities at 31 March 2022**
|_2021_
£
**Cash assets**
49391
Bank accounts
49391
**Assets retained for the charity’s own use**
414
General equipment.
**Liabilities**
-
Creditors - Independent examination fee
-|**_2022_**
**£**
52042
**52042**
414
(420)|
|---|---|
||**(420)**|
These financial statements are accepted on behalf of the charity by:
Signed Date 19/07/2022 Andrew Baghurst, Trustee
7
## **Aniridia Network Notes to the accounts for the year ended 31 March 2022**
## **1. Receipts & payments accounts**
Receipts and payments accounts contain a summary of money received and money spent during the period and a list of assets and liabilities at the end of the period. Usually, cash received and cash spent will include transactions through bank accounts and cash in hand.
## **2. Grants & donations**
|CAF Donate
CafePress
Everyclick
Justgiving
Paypal Giving Fund
Other
NSS grant and donations for EAC|**Unrestricted**
**£**
3142
19
21
1053
10
4512
-
**8757**|**Restricted**
**£**
-
-
-
-
-
-
13428
**13428**|**Total**
**£**
3142
19
21
1053
10
4512
13428|
|---|---|---|---|
||||**22185**|
## **3. Funds analysis**
|**Restricted funds**
European Aniridia Conference
**Unrestricted funds**
General Fund|**Opening**
**balance**
**£**
2810
**2810**
46581
**46581**|**Receipts (Payments)**
**£**
**£**
13428
(15960)
**13428**
**(15960)**
8759
(3575)
**8759**
**(3575)**|**Transfers**
**£**
(277)
**(277)**
277
**277**|**Closing**
**balance**
**£**
-|
|---|---|---|---|---|
|||||**-**|
|||||52042|
|||||**52042**|
The transfer from the European Aniridia Conference fund to the General fund reflects the release of restrictions on the use of a portion of a donation.
## **4. Premises & staff**
The Aniridia Network has no staff employed and no premises.
## **5. Trustees’ remuneration**
Trustees received no expenses, remuneration or benefits in this period.
**6. Related party transactions**
There were no related party transactions in this period.
8
## **Aniridia Network**
## **7. Glossary of terms**
**Creditors:** These are amounts owed by the charity, but not paid during the accounting period.
**Restricted funds:** These are funds given to the charity, subject to specific restrictions set by the donor, but still within the general objects of the charity.
9