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2021-12-31-accounts

Trustees’ Annual Report for the period

From 1 January 2021 To 31 December 2021

Charity name: Arrhythmogenic Cardiomyopathy Trust

Charity registration number: 1176790

Objectives and Activities

SORP reference
Summary of the purposes of
the charity as set out in its
governing document		 Para 1.17 TO PROMOTE AND PROTECT GOOD
HEALTH FOR THE PUBLIC BENEFIT,
RELATING TO INHERITED HEART
CONDITIONS AND IN PARTICULAR
ARRYTHMOGENIC CARDIOMYOPATHY
BY FUNDING RESEARCH PROJECTS,
SUCH PROJECTS CAN BE
DIAGNOSTIC, CURATIVE,
THERAPEUTIC OR PALLIATIVE IN
NATURE AND TO ENSURE THE
PUBLICATION OF THE USEFUL
RESULTS OF SUCH RESEARCH.
Summary of the main
activities in relation to those
purposes for the public
benefit, in particular, the
activities, projects or
services identified in the
accounts.		 Para 1.17 and
1.19		 Further fundraising. Grant made to UCL
for project “A Clinical and Molecular
Platform for Disease Stratifcation in
Arrhythmogenic Cardiomyopathy” - frst of
two tranches of funding, the second of
which was made in 2022.
Statement confirming
whether the trustees have
had regard to the guidance
issued by the Charity
Commission on public
benefit		 Para 1.18 This guidance has been noted by the
trustees of the charity.

Achievements and Performance

SORP reference
Summary of the main
achievements of the charity,
identifying the difference the
charity’s work has made to
the circumstances of its
beneficiaries and any wider
benefits to society as a
whole.
Para 1.20
During the year, the charity has
successfully raised a further £48,591 to
support its objectives of funding medical
research projects focussed on
Arrhythmogenic Cardiomyopathy, a heart
muscle disease that affects young people.
This means that the charity has raised
almost £150,000 to achieve its objectives.
After reaching an agreement with UCL in
November 2020 to fund a project titled
‘Disease Stratifcation in Arrhythmogenic
Cardiomyopathy,’ we were pleased to see
the project commence as planned during
2021, for which the charity made a frst
tranche payment of £57,651.

Financial Review

Financial Review
Review of the charity’s
financial position at the end
of the period		 Para 1.21 The charity had cash reserves of £77,871 at
year end. The charity holds only cash
deposits, with no debt.
Statement explaining the
policy for holding reserves
stating why they are held		 Para 1.22 Reserves will be held on an ongoing basis
until a research project is successfully
funded.
Amount of reserves held Para 1.22 £77,871
Reasons for holding zero
reserves		 Para 1.22 n/a
Details of fund materially in
deficit		 Para 1.24 n/a
Explanation of any
uncertainties about the
charity continuing as a going
concern		 Para 1.23 No concerns

Structure, Governance and Management

Description of charity’s
trusts:
Type of governing document
(trust deed, royal charter)
Para 1.25		 CIO governing document
How is the charity
constituted?
(e.g unincorporated
association, CIO)		 Para 1.25 CIO
Trustee selection methods
including details of any
constitutional provisions e.g.
election to post or name of
any person or body entitled
to appoint one or more
trustees		 Para 1.25 Trustees appointed by resolution of existing
trustees

Reference and Administrative details

Charity name Arrhythmogenic Cardiomyopathy Trust
Other name the charity uses ACT
Registered charity number 1176790
Charity’s principal address 97 Rosebank, Holyport Road, London SW6 6LJ

Names of the charity trustees who manage the charity

Trustee name Office (if any) Dates acted if not for
whole year		 Name of person (or body)
entitled to appoint trustee
(if any)
1
2
3
4
5
6
7
8
9
10
11
12
13
14
15
16
17
18
19
20		 James Minch Trustee
Kate Minch Trustee
Rachel Bailey Trustee

Corporate trustees – names of the directors at the date the report was approved

Director name

Name of trustees holding title to property belonging to the charity

Dates acted if not for whole year

Trustee name

Funds held as custodian trustees on behalf of others

Description of the assets
held in this capacity		 n/a
Name and objects of the
charity on whose behalf the
assets are held and how this
falls within the custodian
charity’s objects		 n/a
Details of arrangements for
safe custody and
segregation of such assets
from the charity’s own assets		 n/a

Exemptions from disclosure

Reason for non-disclosure of key personnel details

Other optional information

Declarations

The trustees declare that they have approved the trustees’ report above.

Signed on behalf of the charity’s trustees Signature(s) Full name(s) James Minch Rachel Bailey Position (eg Trustee Trustee Secretary, Chair, etc) Date 30.10.22

Arrhythmogenic Cardiomyopathy Trust Arrhythmogenic Cardiomyopathy Trust Arrhythmogenic Cardiomyopathy Trust Arrhythmogenic Cardiomyopathy Trust Arrhythmogenic Cardiomyopathy Trust No(if any) No(if any)
Receipts andpayments accounts
For the period
from		 01/01/2021 To 31/12/2021
Section A Receipts and payments
Unrestricted
funds		 Restricted funds Endowment
funds		 Total funds
to the nearest £ to the nearest £ to the nearest £ to the nearest £
A1 Receipts
Income 48,591 - - 48,591
- 0 - - -
- 0 - - -
- 0 - - -
- 0 - - -
- 0 - - -
- 0 - - -
- 0 - - -
Sub total_(Gross income for AR) _
48,591		 - - 48,591
A2 Asset and investment sales,
(see table).
- 0 - 0 - 0 -
- 0 - 0 - 0 -
Sub total
- 0		 - 0 - 0 -
**Total receipts **
48,591		 - 0 - 0 48,591
A3 Payments
Expenses 562 - - 562
Grants made 57,651 - - 57,651
- 0 - - -
- 0 - - -
- 0 - - -
- 0 - - -
- 0 - - -
- 0 - - -
- 0 - - -
**Sub total **
58,213		 - - 58,213
A4 Asset and investment
purchases,(see table)
- 0 - 0 - 0 -
- 0 - 0 - 0 -
**Sub total **
-0		 -0 -0 -
**Totalpayments **
58,213		 - 0 - 0 58,213
**Net of receipts/(payments) ** -
9,622		 - - -
9,622
A5 Transfers between funds - 0 - - -
A6 Cash funds lastyear end 87,493 - - 87,493
**Cash funds thisyear end **
77,871		 - - 77,871
Section B Statement of assets and liabilities at the end of the period
Categories Details Unrestricted
funds		 Restricted funds
to nearest £ to nearest £
B1 Cash funds 77,871 -
- -

CCXX R1 accounts (SS)

31/10/2020

1

- -
Total cash funds 77,871 -
(agree balances with receipts and payments
account(s))		 OK
Unrestricted
funds		 Restricted funds
Details to nearest £ to nearest £
B2 Other monetary assets - -
- -
- -
- -
- -
- -
Details Fund to which asset
belongs		 Cost (optional)
B3 Investment assets -
-
-
-
-
Details Fund to which asset
belongs		 Cost (optional)
B4 Assets retained for the
charity’s own use		 -
-
-
-
-
-
-
-
-
Details Fund to which
liability relates		 Amount due
(optional)
B5 Liabilities -
-
-
-
-
Signed by one or two trustees on behalf
of all the trustees		 Signature Print Name
James Minch

CCXX R2 accounts (SS)

31/10/2020

2

CC16a Last year to the nearest £ - - - - - - - - - - 0 - 0 - 0 - - - - - - - - - - - 0 - 0 - - - - Endowment funds to nearest £ - -

CCXX R3 accounts (SS)

31/10/2020

3

- OK Endowment funds to nearest £ - - - - - - Current value (optional) - - - - - Current value (optional) - - - - - - - - - When due (optional)

Date of approval

30.10.22

CCXX R4 accounts (SS)

31/10/2020

4

CHARITY COMMISSION FOR ENGLAND AND WALES Independent examiner's report on the accounts Section A Independent Examiner's Report Report to the trusteesl members of ARRHYTHMOGENIC CARDIOMYOPATHY TRUST On accounts for the year ended 31 December 2021 Charity no lif any) 1176790 I report to the trustees on my examination of the accounts of the above charity {"the Trust.) for the year ended Responsibilitios and basis of report As the charity's trL¢Stees, you are responsible for the preparation of the accounts in accordance with the requirements of the Charities Act 2011 ("the Act"). I report in respect of my examination of the Trust's accounts carried out under section 145 of the 2011 Act and in carrying out my examination, I have followed all the applicable Directions given by the Charity Commission under section 145{5}{b} of the Act. Independent I have completed my examination. I confirm that no material matters have examlner's statement come to my attention in connection with the examination (1*•￿ d1&el￿) which gives me cause to believe that in, any material respect.. the accounting records were not kept in accordance with section 130 of the Charities Act; or the accounts did not accord with the accounting records., or the accounts did not comply with the applicable requirements concerning the form and content of accounts set out in the Charities (Accounts and Reports) Regulalions 2008 other than any requirement that the accounts give a 'true and fair, view which is not a matter considered as part of an independent examination. I have no COn￿rnS and have come across no other matters in connection with the exarnination to which attention should be drawn in this report in order to enable a proper understanding ofthe accounts to be reached. Please delete the words in the brackets if they do not apply. Slgned: Date: I ID.LuLI Name: ErMIL4 LLJU EEO¢q Relevant professional qualificationls) or body lif any): QA. (ILAEwJ) Address: i TtJoTlrKJ(x Ph£L Lo rK) Oo NJ SwJii- a%NJ IER Oct 2018

Section Disclosure Only complete if the examiner needs to highlight material matters of con￿rn (see CC32, Independent examination of charity accounts.. directions and guidance for examiners}. Give here brief details of any items that the examiner wishes to disclose. IER Oct 2018