CHARITY COMMISSION FOR ENGLAND AND WALES Trustees, Annual Report for the period From 1 January 2020 31 Decombor 2020 Charlty name: Arrhythmog•nlc Cardlomyopathy Trust Charity rnglstration number: 1176790 Objectives and Activities Summary of the purposes of the charity 45 sol out In governing documertt P*¥117 TO PROMOTE AND PROTECT GOOD HEALTH FOR THE PUBLIC BENEFIT. RELATING TO INHERITED HEART CONDITIONS AND IN PARTICULAR ARRYTHMOGENIC CAADIOMYOPATHY BY FUNDING RESEARCH PROJECTS, SUCH PROJECTS CAN BE DIAGNOSTIC, CURATIVE. THERAPEUTIC OR PALLIATIVE IN NATURE AND TO ENSURE THE PUBLICATION OF THE USEFUL RESULTS OF SUCH FIESEARCH. Summary of the main activities In relation lo those purposes lor Ihe public benefit. In partlCLtlaf. the activities. proieds or serviees Identified in the accounts P¥41 17v Further lundraising. Funding call and tender process lor lirst grant. with shortlisl ol loui apiCatIonS. Review ol applicats'on in eoniunction with Cafdiomyopalhy UK and rewesentalives from lour principal UK NHS Tnjsls. Final decision TeaCd on lunding research project and CommereMent ol legal agreement. This guKlance has been noted by the truste9$ of Ihe charty. Slalemenl confirming whether the Irustees have had regard lo the guidance issued by the Chaiity Commission on public benefit
Achievements and Performance During the year, the chartty has successlully raised a further £20,303 to support its objectives of funding medical research projects locussed on Arrhylhmogenic Cardiomyopaihy, a heart muscle disease that affects young people. Summary oflhe main achievements ol the chanly, Idenlifying the difference the charity s work has made to Ihe circumstances of Ils beneficianes and any wider benefits 10 50aety as whole Pw•120 This means that the Charity has raised almost £l1)0,000 lo achieve ils objectives. In 2018, Ihe charity slated its aim ol linalising a projed lor support in year 3 01 operaDon120201. This aim was achieved through the charity's first lunding call, and successful interview process. Four applicabons weie $horUisled lor inlervi8W, with a final agreement reached with tho successful applicant in November 2020. The project'Disease Siralificalion in Arrhythmogenic Cardiomyopathy, 11 be undertaken by UCL, funded by ACT. and will commence in 2021.
Financial Review Review ol the chanty's financial position al the erKI of the period Pw•121 The charity is on course lo achieve rts objectives of making a research grant In year 3120201 The charity holds only cash deposits, with no debt Reserves will be held on an ongoing basis until a research project Is successftjlly lunded Statement explaining the policy for holding SerVeS 51aling why they are held Amount of reserves held Reasons lor hol(Jing zero reserves r• I IZ ',P*rn122 £98,303 ,Pw•122 nla Delails ol fund materially In deficit PmlZ4 I nla Explanatson of any uncertainties about the charity ¢onbnuing as a going concem No concems
Striicliiro. Govoriinc• aii(l Maiiagomonl CIO yov•ininu docum•nl cio Tiu•l••• iFwnl•d by i••olulion ol exi•bn i)v pni•on ui iK)dy •nlill•d lo aiiwiinl on• L)r nioi• Rof•r•nc• and Admlnl8lrallve detall• Chjfily n•m• Olh•r n•m• Iho ch•rily RfrgI•i•i ch•rily numb•r Ch•nly'• pnneip•l •ddr••i Arihythm¢)g•nic cardmy0p1hY Tru•l ACT 1170790 97 Robank. HolyF47rt Ro4d. London SM 6U
Names of the charity trustees who manage the ch#rity TnMts• n•m• DatH acted 11 not lor whol• yvr Nam• of per•oD lor body) •ntitl•d to lppolnt tru•tse James Minch Trustee Kale Minch Trustee Rachel Bailey Trustee 10 11 12 13 14 15 16 17 18 19 20 Corporate Iruslees- names ol the diTettors al the dale the report was approved Dlr•Gtor Mm• Name of trustees holding lille lo propety belonging lo the charity Tru•tre name Oats• *Cknd rf notfor whol• yur
Funds held as custodian trustees on behalf of others i Descnplion ol the assets nla held In this capacrty i Name and obiects of the chanty on whose behalf the assets are held and how this I falls within ihe custodian ' charty's objecis 'nla Details of arrangements for I nla sale Custody and sggregatson ol such assels I from the chanty's ¢Nn assets Exemptions from disclosure Reason for non-disdosure of key personnel dtlaily Other optional Information
Declaratlon3 Th• tru•t••• d•¢l•r• thal th•y h•v• •ppmv•d th• tru•lw•' rnporl •bov•. Slgr*•d on b•half of th• ¢ty•rlty'• truit••• Full n•iiid•l iAMi3 il-. HSL £4LI.C Po•liion l•g SKr•tsry, Ch•lr. •tcl . IRM%TE[ rcuSTEE D•1• Iq
| Arrhythmogenic Cardiomyopathy Trust | Arrhythmogenic Cardiomyopathy Trust | Arrhythmogenic Cardiomyopathy Trust | Arrhythmogenic Cardiomyopathy Trust | Arrhythmogenic Cardiomyopathy Trust | No(if any) | No(if any) | ||
|---|---|---|---|---|---|---|---|---|
| Receipts andpayments accounts | ||||||||
| For the period from |
01/01/2020 | To | 31/12/2020 | |||||
| Section A Receipts and payments | ||||||||
| Unrestricted funds |
Restricted funds | Endowment funds |
Total funds | |||||
| to the nearest £ | to the nearest £ | to the nearest £ | to the nearest £ | |||||
| A1 Receipts | ||||||||
| Income | 20,303 | - | - | 20,303 | ||||
| - 0 | - | - | - | |||||
| - 0 | - | - | - | |||||
| - 0 | - | - | - | |||||
| - 0 | - | - | - | |||||
| - 0 | - | - | - | |||||
| - 0 | - | - | - | |||||
| - 0 | - | - | - | |||||
| Sub total_(Gross income for AR) _ | 20,303 |
- | - | 20,303 | ||||
| A2 Asset and investment sales, (see table). |
||||||||
| - 0 | - 0 | - 0 | - | |||||
| - 0 | - 0 | - 0 | - | |||||
| Sub total | - 0 |
- 0 | - 0 | - | ||||
| **Total receipts ** | 20,303 |
- 0 | - 0 | 20,303 | ||||
| A3 Payments | ||||||||
| Expenses | - 0 | - | - | - | ||||
| - 0 | - | - | - | |||||
| - 0 | - | - | - | |||||
| - 0 | - | - | - | |||||
| - 0 | - | - | - | |||||
| - 0 | - | - | - | |||||
| - 0 | - | - | - | |||||
| - 0 | - | - | - | |||||
| - 0 | - | - | - | |||||
| **Sub total ** | - 0 |
- | - | - | ||||
| A4 Asset and investment purchases,(see table) |
||||||||
| - 0 | - 0 | - 0 | - | |||||
| - 0 | - 0 | - 0 | - | |||||
| **Sub total ** | -0 |
-0 | -0 | - | ||||
| **Totalpayments ** | - 0 |
- 0 | - 0 | - | ||||
| **Net of receipts/(payments) ** | 20,303 |
- | - | 20,303 | ||||
| A5 Transfers between funds | - 0 | - | - | - | ||||
| A6 Cash funds lastyear end | - 0 | - | - | - | ||||
| **Cash funds thisyear end ** | 20,303 |
- | - | 20,303 | ||||
| Section B Statement of assets and liabilities at the end of the period | ||||||||
| Categories | Details | Unrestricted funds |
Restricted funds | |||||
| to nearest £ | to nearest £ | |||||||
| B1 Cash funds | 87,493 | - | ||||||
| - | - |
CCXX R1 accounts (SS)
31/10/2020
1
| - | - | |||||||
|---|---|---|---|---|---|---|---|---|
| Total cash funds | 87,493 | - | ||||||
| (agree balances with receipts and payments account(s)) |
Agreement Error | |||||||
| Unrestricted funds |
Restricted funds | |||||||
| Details | to nearest £ | to nearest £ | ||||||
| B2 Other monetary assets | - | - | ||||||
| - | - | |||||||
| - | - | |||||||
| - | - | |||||||
| - | - | |||||||
| - | - | |||||||
| Details | Fund to which asset belongs |
Cost (optional) | ||||||
| B3 Investment assets | - | |||||||
| - | ||||||||
| - | ||||||||
| - | ||||||||
| - | ||||||||
| Details | Fund to which asset belongs |
Cost (optional) | ||||||
| B4 Assets retained for the charity’s own use |
- | |||||||
| - | ||||||||
| - | ||||||||
| - | ||||||||
| - | ||||||||
| - | ||||||||
| - | ||||||||
| - | ||||||||
| - | ||||||||
| Details | Fund to which liability relates |
Amount due (optional) |
||||||
| B5 Liabilities | - | |||||||
| - | ||||||||
| - | ||||||||
| - | ||||||||
| - | ||||||||
| Signed by one or two trustees on behalf of all the trustees |
Signature | Print Name | ||||||
CCXX R2 accounts (SS)
31/10/2020
2
CC16a Last year to the nearest £ - - - - - - - - - - 0 - 0 - 0 - - - - - - - - - - - 0 - 0 - - - - Endowment funds to nearest £ - -
CCXX R3 accounts (SS)
31/10/2020
3
- OK Endowment funds to nearest £ - - - - - - Current value (optional) - - - - - Current value (optional) - - - - - - - - - When due (optional)
Date of approval
CCXX R4 accounts (SS)
31/10/2020
4