CHARITY COMMISSION FOR ENGLAND AND WAIES Receipts and pa ments accounts CC16a For th• perlod from 1st January 2022 31st 2022 To Section A Receipts and payments Unrostrictsd Restricted fvnd• Endowmènt lund¥ Total fund8 Last year to r*•r••t£ tothg nMr••t£ Al R•e•l Grants Fundrai￿￿ & tiorAlicn* 1,670 34.141 Sub total(Gmss incom& for AR) 61.077 63,847 34,441 A2 Auèt and In¥utm•nt ulm. 1009 tabl•l. Sub totsl rot•l rncelpts fj1 1.670 8J.547 34A41 A3Pa •nl• Rèae8rch Awwd• Support Costs Aw8reness Coyty SLqffi Costs C0818 Olherl Admin i• inwr•r¢• e¢¢ 7,936 13,007 18,6J9 160 4,373 18.639 3,037 3.037 1.321 Sub total A4 A8$•t and Invo8tm•nt urchaseB, see tablg Sub total 83,487 1,670 85.157 N•t of receiptsl(p8ymonts) AS Transfers be￿•*n funds A6 Cash fund¥ last y￿r end Cash funds thls y••r end 21.810 21,610 25,597 50.192 50,192 24,595 28,582 28.5e2 50.192 The above cash fvnds Ind￿Je ￿e￿gnated funds and cash resÈr¥es for 2023 as dela1￿1 In Annual Report CCXX R1 accounts ISSI 0810¥2W23 Section B Statement of assets and liabilities at the end of the period Unrestrlcted lund• Restrlcted fLtnd$ Endowment funds Categories Detalls to nBirest£ to nearnst £ B1 Cuh fund• Total cash lunds Unro•trlthd Rotytrlctod fund¥ fvnd• Endovffliont funds to t)Mve•t£ Detsll8 Fwxl tOTwhl¢h D•tal IoFthr•ll CuYYentv•lu• 83 Inv••tment •8•ots FurKI towhieh Cuvyentva￿0 onal D•tall• C••i{•pU&r•ry B4 A88Otg rotglnod lor th• charlty'• own us• Fu￿1 toY*hl¢h liti￿.1 Amourttdu• lop11￿1 Whgn du• on&1 Details B5 Llabllltl•# ZZ4a Signed by 0[￿ or tr￿t•s¥ ¢)n bèhawof 811 the tru8t888 Date of roval ure Print Naffle Beal 0810912023 CCXX R2 ISSI 08m9￿023 ## **Trustees’ Annual Report for the period** ## **January 2022 to December 2022** ## **Charity name: My Mito Mission** ## **Charity registration number: 1176616** ## **Objectives and Activities** ||SORP reference|| |---|---|---| |Summary of the purposes of
the charity as set out in its
governing document|Para 1.17|**1) To promote and protect the physical and**
**mental health of sufferers of Mitochondrial**
**Disease through the provision of support,**
**education and practical advice.**
**2) To advance the education of the public in**
**general (and particularly among scientists and**
**health professionals) in all areas relating to**
**Mitochondrial Disease and to promote**
**research for the public benefit into the causes**
**and treatment of the disease, with the useful**
**results of such research to be disseminated.**| |Summary of the main
activities in relation to those
purposes for the public
benefit, in particular, the
activities, projects or
services identified in the
accounts.|Para 1.17 and
1.19|**For****_everyone_ with mito:**
**Support, Education & Practical Advice by**
**means of:**
**The granting of funds for**
• **Research - to increase hopes of treatments**
**and a cure**
• **Support - to reduce isolation and create**
**and build peer support**
• **Awareness - to reduce isolation and gain**
**equity in mito’s recognition, support and**
**care.**
**The provision of**
• **Website – Directory/Information**
• **Social Media/PR**
• **Events**
• **Promotional materials**
• **Merchandise**
**For****_those with mito who wish_, all the above**
**PLUS …**| |||• **Provision and support to run an individual**
**‘Mission’**
• **Missionee Meet Up Weekend**
• **Missionee Zoom Meetings**
• **Missionee Facebook Group**
• **Missionee WhatsApp Group**| |---|---|---| |Statement confirming
whether the trustees have
had regard to the guidance
issued by the Charity
Commission on public
benefit|Para 1.18|**The trustees have had regard to the guidance**
**issued by the Charity Commission.**| ## **Additional information (optional)** You may choose to include further statements where relevant about: ||SORP reference|| |---|---|---| |Policy on grant making|Para 1.38|**We continue to consider it prudent to grant**
**our funding through The Lily Foundation in**
**order to benefit from their established**
**processes and expertise in:**
• **ensuring the quality of research bids**
• **ascertaining what the wider mito**
**community wants by way of research and**
**support.**
**We continue to involve our missionees in the**
**decision of what we fund.**
**We will remain open to alternative options**
**and keep this decision under annual review.**| |Policy on social investment
including program related
investment|Para 1.38|**N/A**| |Contribution made by
volunteers|Para 1.38|**Contributions made by volunteers in both**
**assisting operating our charity and helping**
**with awareness events and fundraising**
**continue to be invaluable. Without our**
**volunteer workforce the amount of activity**
**we do would have to be significantly reduced**
**in order to still deliver our key objectives.**
**Volunteer contribution enables such as events**
**to be run, ebay and merchandise sales, social**
**media output, partnership engagement – with**
**time commitments from our volunteers**
**ranging from one day per fortnight to full**
**time.**| |Other||| ## **Achievements and Performance** ||SORP reference|| |---|---|---| |Summary of the main
achievements of the charity,
identifying the difference the
charity’s work has made to
the circumstances of its
beneficiaries and any wider
benefits to society as a
whole.|Para 1.20|**In 2022, we were at last able to grant £40k of**
**designated funds to research (after a delay**
**due to the pandemic) … raising the potential**
**for treatments and a cure. £20k to the**
**Emerald Pilot Study for an assisted listening**
**device for adult patients. £20k to study of**
**potential treatment for Mitochondrial DNA**
**Depletion & Deletions Syndrome.**
**We achieved our first support weekend for**
**our missionees in October 2022. 43 people**
**impacted by mito came together from all over**
**the UK. Special guest scientist Prof. Kostas**
**Tokatlidis attended to talk about**
**mitochondrial research advances.**
**8 new missions joined us. 1 new London-**
**based trustee came on board with personal**
**experience of losing a loved one to mito and**
**significant expertise to offer.**
**We employed our first member of staff on a**
**one-year contract in March 2022,**
**substantially reducing the risk of reliance on**
**our voluntary CEO and improving our**
**sustainability.**
**The charity was offered donated office space**
**at KT Hydraulics in Elland and moved in**
**September 2022. The facility includes a single**
**office with two workstations, use of canteen,**
**meeting rooms and some storage.**
**We increased our partnership working and**
**building including:**
• **Rotary and other talks by our Chair**
• **Forging links with Huddersfield University**
• **Working with Aspire Biosciences in**
**conjunction with The Lily Foundation and**
**eminent mito researcher Antonella**
**Spinnazzola to forge links with research**
**organisations.**
• **An online collaboration with The Wellcome**
**Centre for Mitochondrial research in their**
**‘Twitter Takeover’.**
**The end to covid restrictions saw everyone**
**able to get ‘out and about’ again raising**
**awareness and funds and our flow of income**
**improved as a result. We organised a high**
**profile abseil event and raised around £11k as**
**well as reaching new audiences about our**
**mission. We attended events locally to**| **improve our charity/the illness profile - including first time at Brighouse Gala and Brodstock Music Festival. We improved our Marketing and PR including our social media planning and output, leaflets, website including the directory and merchandise and online shop. We increased our effectiveness in getting across the ‘Mito Matters to Millions’ message and were delighted to liaise with eminent members of the worldwide scientific community as one of the ways we achieved this. We were instrumental in lighting up buildings green for World Mito Week in September and joining in the worldwide campaign highlighting the condition. We applied for and achieved our first ever incoming grants. One from Arnold Clarke for £1k to purchase a branded gazebo. A second £0.67k contribution from The Rank Foundation to our support weekend. As a result of our activities:** • **awareness of the illness was raised amongst thousands of people, reducing the isolation felt by those impacted. Thousands also became more aware of the importance of mito research and its benefits and implications to millions.** • **The research projects we funded bring additional hope to all those affected.** • **The support we funded brought increased peer support, a sense of community and belonging and practical information to our beneficiaries impacted by the illness.** **Additional information (optional)** You may choose to include further statements where relevant about: Achievements against Para 1.41 objectives set Performance of fundraising Para 1.41 activities against objectives set Investment performance Para 1.41 against objectives Other ## **Financial Review** |**Financial Review**||| |---|---|---| |Review of the charity’s
financial position at the end
of the period|Para 1.21|**We ended 2022 with £28,583 in the bank.**
**Aside from reserves of £6.7k for ongoing**
**expenses (as below), we have designated £9k**
**to research awards. A balance of around £12k**
**is left to fund awareness, support and any**
**additional running costs. However, if we do**
**not secure grant funding for our October 2023**
**Meet Up, it may be needed to fund or part-**
**fund this event.**
| |Statement explaining the
policy for holding reserves
stating why they are held|Para 1.22|**Trustees discussed reserves at their April 2023**
**meeting and confirmed a retained level of**
**£6.7k, which equates to approximately 12**
**weeks’ worth of unrestricted expenditure.**
**This will help My Mito Mission to withstand a**
**number of scenarios including a sustained**
**increase in inflation combined with a fall in**
**income, to provide the capability for trustees**
**to then make sure expenditure could be**
**reduced in a managed fashion, avoiding the**
**need to halt important work abruptly and**
**cover staffing costs. My Mito Mission has very**
**few recurring ongoing costs, with levels of**
**expenditure determined by income banked**
**through previous fundraising. All reserves**
**over and above this retained amount are**
**designated to charitable activities.**| |Amount of reserves held|Para 1.22|**£15.7k**| |Reasons for holding zero
reserves|Para 1.22|**N/A**| |Details of fund materially in
deficit|Para 1.24|**N/A**| |Explanation of any
uncertainties about the
charity continuing as a going
concern|Para 1.23|**N/A**| |**Additional information (optional)**
You may choose to include further statements|**Additional information (optional)**
You may choose to include further statements|where relevant about:| |---|---|---| |The charity’s principal
sources of funds (including
any fundraising)|Para 1.47|**The vast majority (97.4%) of our funds in 2022**
**were publicly raised for the purpose of raising**
**awareness, research and support. It is**
**therefore imperative for us to keep as much**
**of these funds as possible for this direct**
**purpose.**
**As we continue to grow, we need additional**
**funds to support our internal infrastructure eg**
**increased staffing, improved systems, training,**
**expertise etc. Having a staff member enabled**
**us to apply for grant funding for the first time**
**to support our growth costs and enhance our**
**sustainability. Whilst we were unsuccessful in**
**securing the level of funds we need, we**
**nonetheless achieved our first grants,**
**representing 2.6% of our 2022 income.**| |Investment policy and
objectives including any
social investment policy
adopted|Para 1.46|| |A description of the principal
risks facing the charity|Para 1.46|**Lack of capacity is our greatest risk. Whilst**
**reduced due to the employment of our**
**Charity Manager in March, there is still**
**significant reliance on volunteers, especially**
**the full-time voluntary CEO role of our Chair,**
**whose ability to continue in the role is limited**
**due to age. The growth of the charity means**
**our staff are struggling to cope with the**
**workload and we are aware we need to**
**address this issue as wegrow even more.**| |Other||| ## **Structure, Governance and Management** |Description of charity’s
trusts:||| |---|---|---| |Type of governing document
(trust deed, royal charter)|
Para 1.25|**Trust Deed**| |How is the charity
constituted?
(e.g unincorporated
association, CIO)|Para 1.25|**Charitable Trust**| |Trustee selection methods
including details of any
constitutional provisions e.g.
election to post or name of
any person or body entitled
to appoint one or more
trustees|Para 1.25|**Appointed by resolution of the existing**
**Trustees at a Special Meeting**| **Additional information (optional)** You may choose to include further statements where relevant about: Policies and procedures Para 1.51 adopted for the induction and training of trustees The charity’s organisational Para 1.51 structure and any wider network with which the charity works Relationship with any related Para 1.51 parties Other ## **Reference and Administrative details** Charity name Other name the charity uses Registered charity number Charity’s principal address ## **Names of the charity trustees who manage the charity** |1
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14|**Trustee name**|**Office (if any)**|**Dates acted if not for whole**
**year **|**Name of person (or body) entitled**
**to appoint trustee (ifany)**| |---|---|---|---|---| ||**Christopher Appleby**|||| ||**Christine Beal**|**Chair**||| ||**Amanda Caldwell**|||| ||**Bethany Ellis**|**Treasurer**||| ||**Francesca**
**Sevilla-Rebelderia**||**13th April 2022**|| ||**Graham Wright**|||| |||||| |||||| |||||| |||||| |||||| |||||| |||||| |||||| 15 16 17 18 19 20 ## – Corporate trustees names of the directors at the date the report was approved **Director name** ## Name of trustees holding title to property belonging to the charity **Trustee name Dates acted if not for whole year** ## **Funds held as custodian trustees on behalf of others** Description of the assets held in this capacity Name and objects of the charity on whose behalf the assets are held and how this falls within the custodian charity’s objects Details of arrangements for safe custody and segregation of such assets from the charity’s own assets ## **Additional information (optional)** ## **Names and addresses of advisers (Optional information)** **Type of Name Address adviser** ## **Name of chief executive or names of senior staff members (Optional information)** ## **Exemptions from disclosure** Reason for non-disclosure of key personnel details ## **Other optional information** ## **Declarations** **The trustees declare that they have approved the trustees’ report above.** **Signed on behalf of the charity’s trustees** **Signature(s)** **Full name(s)** **Position (eg Secretary, Chair, etc)** **Date** ||Christine Beal|Beth Ellis| |---|---|---| ||Chair|Treasurer| |||| ||5thJuly 2023|| CHARITY COMMISSION FOR ENGLAND AND WALES Independent examiner's report on the accounts Section A Independent Examiner's Report R0POrt to the trustee81 members of Mifo MISSIO On aeeounts for the year ended Charlty no (If any) 12. 2oZ2 117 &£ Ib Sot olrt on pages I report to the trustees on my examination of the accounts of the above tharity (Ihè Trusf) for the year ended Re8ponslbllltlo8 and As the charity trustees of the Trust, you are resp(ThibFe for the preparatkjn ba81s of report of the accounts in 8Cfx¥dance with Ihe requirements of th8 Charities Act 2011 (Ihe Acr). I report In respect of my examinati￿ of the Trust's accounts carded out under section 145 of the 2011 Act and in caryng out my examlnatlon, I have followed the apph'cable DirectTrons given by the Charity Commission under seclion 1495Xb) of th8 I have (x)mpleted my examination. l 0)nfI￿ that no materlal matters have come to my attentlon lolher Ihan that dlsclosed beSow ') in connection Imth the examinallon which gives me cause to believe that in. any material respecL' a(thuntrvJ rècords not k8Pt in ac￿anCe sectlon 130 of the Act or accounts do not accord with the accounting records Indepondont oxamlnorf8 Statomont I have no ￿ncernS and ha¥p come across no crther matter8 in conneclion wbth the examination to which attention should be drab￿ In or(ler to 8nabl8 a proper understanding of the accounts to be reached. ' Pl&ase delete the words in the brackets rfthey do not apply. Slgnod: Dote: S.9. 2ozS Namo: PMILIPIA SAr4£ Wl L Relevant professlonal quallflcation{s) or body (If any): AsstsahYi•A oc ACCoUdn￿tr TELHTrJI CiJSTrJS' Addre88: LOSÉ LEA KASYKI L 3pF IER October 2018 Section B Disclosure Only complete rf the examiner needs to highlight matters of concem (see CC32, Independent exAmination of tharty acwjnts: directions and guidance for examiners). Give horg brief dfttails of any items that tho examinerwishes to di¥¢108e. IER October 2018