|D
CHARITY COMMISSION
FOR ENGLANO
AND WALES|My Mito Mission
Receipts and payments|My Mito Mission
Receipts and payments|My Mito Mission
Receipts and payments|My Mito Mission
Receipts and payments|1176616
accounts|1176616
accounts|CC16a| |---|---|---|---|---|---|---|---| ||For the period
from||1stJanuary
2021|To||31stDecember
2021|| |~
' .
~
~|~ ~||||||| ||Unrestricted
funds||Restricted
funds|Endowment
funds||Total funds|Last year| ||tothe nearest||to the nearest R|tothe nearest 6||tothe nearest R|to the nearest t.| |A1 Receipts
Fundraising
8,Donations
Single Donation|34,441|||||34,441|17,572
10,000| |Sub total (Gross income for||||||34,441|27,572| |AR)|||||||| |A2 Asset and investment
sales,|||||||| |(see table).|||||||| |Sub total|||||||| |Total receipts|34,441|||||34,441|27,572| |Research Grants
Awareness
Costs
Support Costs
Fundraising
Costs
Other ie Admin,
Insurance etc||4,373
160
2,990
1321||||4,373
160
2,990
1321|23,237
5,256
136
400
6&5| |Sub total||8,844||||8,844|29,714| |A4 Asset and investment|||||||| |purchases, (see table)|||||||| |Sub total|||||||| |Total payments||8,844||||8,844|29,714| |Net ofreceipts'(payments)||25,597||||25,597|2,142| |A5 Transfers between funds
A6 Cash funds last year end
Cash funds this year end||24„595
50,192||||50,192|26,737
24,595| |||4|e|~|4|~|e|r ~|~|4|%|~||~|a e||| |---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---| |||||||||||Unrestricted||||Restricted||Endowment|| ||||||||||||funds||||funds|fUncls|| |||||||||||to|nearest||K|to|nearest F.|to nearest|K| |81Cash funds|||||||||||||||||| ||||||||Total cash funds||||||||||| ||||||(agree|balances|with|receipts attd payments|||||||||| ||||||||||account(s))||||||||| |||||||||||Unrestricted||||Restricted||Endowment|| ||||||||||||funds||||funds|funds|| |||||||||||to|nearest||Z|to|nearest R|to nearest|K| |82 Other monetary||assets|||||||||||||||| |||||||||||Fund
asset||to which
belon s||Cost (optional)||Current value
o tional|| |83Investment|assets||||||||||||||||| |||||||||||Fund||to which||||Current value|| |||||||||||asset||belon|s|||o
ional|| |84Assets retained||for|the||||||||||||||| |charity' s own|Use||||||||||||||||| |||||||||||Fund||to which||Amount due||When due|| |||||||||||liabili||relates|||o tional|o tional|| |85Liabilities|||||||||||||||||| |Signed by one or two trustees
behalf of all the trustees|||on|||Signature|||||||Print.|Name||Date of
a
roval|| |CCXXR2acc|unts|(SS)||||||||||||||27/10/2022|| ## ## ||||||SORP reference|| |---|---|---|---|---|---|---| |Summary||ofthe purposes of|||Para 1.1?|1)Topromote and protect the physical and| |the charity as set out||||in its||mental health ofsufferers ofMitochondrial| |governing||document||||Disease through the provision ofsupport,| |||||||education
and practical advice.| |||||||2)Toadvance the education ofthe public in| |||||||general (and particularly
among scientists and| |||||||health professionals)
in all areas relating to| |||||||Mitochondrial
Disease and to promote| |||||||research for the public benefit into the causes| |||||||and treatment
ofthe disease, with the useful| |||||||results ofsuch research to be disseminated.| |Summary
of the main
activities
in relation to those
purposes
for the public
benefit,
in particular,
the
activities, projects or
services identified
in the
accounts.|||||Para 1.17and
1.19|Our website continues to serve asavaluable
resource for:
those afFected by mitochondrial
disease
who can be signposted to many sources
ofinformation
and support
the general public who may learn more| |||||||about the illness| |||||||Our principal
activities todate undertaken
for| |||||||the public benefit are:| |||||||educating the public by means of| |||||||handing
out literature,
social media and| |||||||through
publicity about mitochondrial| |||||||disease| |||||||enabling affected families to have| |||||||localised 'missions' to reduce isolation,| |||||||empower them tofeel a part ofthe| |||||||solution towards finding treatments
and| |||||||acure and be part ofan understanding| |||||||network, together raising awareness
and| |||||||funds for research benefiting
all affected.| |||||||the granting offunds to increase| |||||||research tofind treatment
and cures for| |||||||everyone
impacted
by mitochondriai| |||||||disease, and support.| |Statement||confirming|||Para 1.18|The trustees have had regard tothe guidance| |whether|the trustees|||have||issue by the Charity Commission
on public| |had regard to the|||guidance|||benefit.| |issued by the Charity||||||| |Commission
on public||||||| |benefit||||||| ## ## |ou ma
c|hoo|se to|include furt|her statements|where relevant about:| |---|---|---|---|---|---| |||||SORP reference|| ||||||This year, we continue to consider it prudent| |||||Para 1.38|to grant fund through
The Lily Foundation
in| |Policy on|grant making||||order to benefit from their established| ||||||processes of:| ||||||ensuring the worthiness
ofresearch bids| ||||||ascertaining
what the mito community| ||||||itself wants in the way ofresearch and| ||||||support| ||||||We will remain open to alternative
options| ||||||and keep this decision under annual
review.| |Policy on|social investment|||Para 1.38|| |including|program||related||| |investment|||||| ||||||Contributions
made by volunteers
in both| |||||Para 1.38|fundraising
and assisting operating our charity| |Contribution||made by|||continue to be invaluable,
given we do not| |volunteers|||||employ any staff.| |Other|||||| |Achieve|me|nts|and Performance||| |||||SORP reference|| ||||||In previous years we granted
funding through| ||||||the leading charity for mitochondrial
disease,| ||||||The Lily Foundation
(TLF)to various projects| |Summary|of|the main||Para 1.20|such as research, studies and activities| |achievements
ofthe charity,
identifying
the difference the|||||supporting
those with mitochondrial
disease
and their families.| |charity's|work has made to||||| |the circumstances
ofits
beneficiaries
and any wider
benefits to society as a
whole.|||||However
in 2021,we were unable to do so,
because the continuing
pandemic
has
prevented
the vast majority ofresearch and
support projects togoahead. We are hopeful| ||||||that 2022 will see us able to re-establish
our| ||||||grant funding.| ||||||We hosted a Monthly
Raffle via Facebook| ||||||(licensed with the Small Societies Lottery| ||||||through
our local council) which ran from| ||||||January toJuly which generated
K6,210| ||||||income, with an expenditure
off1,990(which| ||||||was all spent an the cash prizes, leaving s| ||||||profit ofK4,220.| ## |One ofour missions, continued
with their|| |---|---| |weekly tombola stall attheir local market|| |which, despite Covid restrictions earlier in the
year, raised overf$,500.|| |We have tripled our eBay income from 2020,|| |generating f2.2kofsales ofdonated goods|| |from our supporters.|| |In April, we introduced
a regular donation|| |scheme via GoCardless where charity|| |supporters
can set up monthly direct debits.|5| |people have signed up and have ambitions to|| |promote the scheme further
in 2022.|| |During World Mitochondrial
Disease|| |Awareness
Week, we ran a 'Light Up For Mito'|| |campaign to complement
the one ran by the|| |International
Mito Patients (IMP).Around|| |1,200used our Facebook Frames which raised|| |awareness ofMito and My Mito Mission. We|| |sold branded
candles and manged some|| |celebrity endorsement
by sending our candles|| |and requests tocontribute.|| |10JustGiving
Fundraising
Events were set up
in 2021,raising overf$.7kfrom 190donors.|| |These events ranged from Runs/Marathons
to
Sponsored Litter Picks to Head Shaves. f3.7k|| |was also donated toour Missionee's|| |JustGiving
pages, making our JustGiving|| |Income f7.4k in 2021.|| |The charity launched
afurther 2 localised|| |missions centred around an individual
mito|| |sufferer - empowering
their families, friends|| |and communities
to raise awareness
and|| |funds for research tothe extent they wish,|| |and are able. Despite the limitations ofthe|| |ongoing pandemic,
income from missions|| |(excluding the original, Emma's) has risen
from fSkin 2020tof11.8k in 2021.|| |We have continued tofacilitate and|| |encourage
liaison and support between our|| |missionees. Our voluntary
CEO started|| |hosting monthly
zoom meetings forthe|| |missionees
which in itself gives support to|| |those affected by the condition.|| |Due tothe tremendous
voluntary
support we|| |receive, our annual
administration
expenses|| |have been kept below 5%ofoutgoings at|| |3.7%. All other outgoings
have been for|| |Achievements
against|Para 1.41| |---|---| |objectives set|| |Performance
offundraising
activities against objectives|Para 1.41| |set|| |investment
performance|Para 1.41| |against objectives|| |Reviewer|| |Other|| ## |Review|ofthe charity's|Para 1.21|We began the year with f24,585.47in the| |---|---|---|---| |financial|position at the end||bank and ended with f50,192.06| |ofthe period|||| ||||620kofthe opening balance was designated| ||||to research during 2020.This would normally| ||||have been granted
in Summer 2021but due to| ||||the pandemic,
and the stalling ofresearch| ||||during this time, bids could not be invited
in| |||||||Autumn
2020.Therefore, these funds will| |---|---|---|---|---|---|---| |||||||carry over into 2022.| |||||||This year's income wasf34,451.03 and| |||||||outgoings fS,S44A4 making additional
cash| |||||||funds this year off25,606.59.| |||||||We were pleased tosee this upturn
in income| |||||||in 2021.It has enabled us to designate a| |||||||further K20kto research, making atotal of
f40kto be allocated to projects which come| |||||||forward
in Spring 2022.| |||||||This therefore leaves approximately
K10kin| |||||||undesignated
funds going into 2022.| |Statement|explaining||the||Para 1.22|We do not have a reserves policy because we| |policy for holding reserves||||||do not consider that our financial position| |stating
why|they are||held|||requires one at this time.| |||||||We have designated
f40k for research grants| |||||||in 2022, leaving K10kwhich we consider to be| |||||||enough to support ongoing costs and any| |||||||other projects we may wish to action.| |Amount of|reserves||held||Para 1.22|None —butf40k designated
funds as above| |Reasons for holding|||zero||Para 1.22|We have only very minor monthly
operating| |reserves||||||costs and expenditure to which we are| |||||||committed. We feel confident that our| |||||||fundraising
ability and established
fundraising| |||||||streams ensure these will be easily covered.| |||||||We would not grant out funding
which would| |||||||take us anywhere
near a nil balance and| |||||||would review and reduce funds designated to| |||||||research should this be necessary.| |Details offund materially||||in|Para 1.24|None| |deficit||||||| |Explanation|ofany||||Para 1.23|None| |uncertainties
about|||the|||| |charity continuing||as a going||||| |concern||||||| ## |ou ma
choo|se to include fu|rther statement|s
where relevant about:|| |---|---|---|---|---| ||||Our usual, principal sources of|funding were| |The charity's
principal
sources offunds (including||Para 1.47|badly impacted
bythe ongoing covid-19
pandemic —specifically, fundraising
from|| |any fundraising)|||events and public donation through|| ||||collections.|| ||||Wefelt unable to plan our own|big events due| ||||tothe uncertainty
surrounding|Covid safety| |||||||and regulations,|and other missions as well as|and other missions as well as| |---|---|---|---|---|---|---|---|---| |||||||supporters
were|also affected|by this.| |||||||Our biggest streams ofincome||were| |||||||JustGiving (f7Ak), the Monthly||Raffle (f6.2k),| |||||||events ran by our Missionees (f6.4k),||| |||||||Facebook Fundraisers (f2.5k) and eBay (f23k)||| |Investment|policy||and|||||| |objectives including
any
social investment
policy|||||Para 1.46|||| |aclop'ted||||||||| |||||||The principal
risk remains our||reliance of the| |||||||Chair's voluntary|time in a 'CEO' type role to|| |A description||ofthe||principal|Para 1.46|move the charity|forward.|| |risks facing||the charity||||||| |Other||||||||| ## |tructure, Governance|and Man|agement|| |---|---|---|---| |Description
ofcharity's|||| |trusts:|||| |Type of governing
document||Trust Deed|| |How is the charity|Para 1.25|Charitable|Trust| |constituted?|||| |Trustee selection methods|Para 1.25|Trustees appoint any new trustees as per|| |including
details of any||Trust Deed|document| |constitutional
provisions e.g.|||| |election to post or name of|||| |any person or body entitled|||| |to appoint one or more|||| |trustees|||| |The charity's|organisational|Para i.51| |---|---|---| |structure
and|any wider|| |network with|which the|| |charity works||| |Relationship|with any related|Para 1.51| |parties||| |Other||| ## |Refere|nce and Administ|nce and Administ|rative
detail| |---|---|---|---| |Charity|name||My Mito Mission| |Other name||the charity uses|None| |Registered||charity number|1176616| |Charity's|principal address||44d Long Ridge| ||||Brighouse| ||||West yorkshire| ||||HD6 MZ| ## |unds held as cust|odia|n tru| |---|---|---| |Description
ofthe assets||None| |held
in this capacity||| |Name and objects ofthe||None| |charity on whose behalf|the|| |assets are held and how|this|| |falls within the custodian||| |charity's objects||| |Details of arrangements|for|None| |safe custody and||| |segregation
ofsuch assets||| |from the charity's
own||| |assets||| ## ## |Names an|d addresses ofa|dvisers
(Optional
information)|| |---|---|---|---| |Type of|Name|Address|| |adviser|||| |Name of|chief executive or names ofsenior staff members||(Optional information)| ## ## ## ##