|~|e|||~|~|~|~|~|~|~ ~||| |---|---|---|---|---|---|---|---|---|---|---|---|---| ||||||||Unrestricted||Restricted||Endowment|| ||||Detaiis||||funds|||funds|funds|| ||||||||to nearest|F|to|nearest 2|to nearest|f| |B$ Cash|funds|||||||||||| ||||||Total|cash funds||||||| ||||(agres|balances|with receipts and payments|||||||| |||||||account(s))||||||| ||||||||Unrestricted||Restricted||Endowment|| ||||||||funds|||funds|funds|| ||||Details||||to nearest|S|to|nearest 2|to nearest|K| |B2Other|monetary assets|||||||||||| ||||Details||||Fund to which
asset helen s||Cost (optional)||Current value
o tional|| |B3Investment||assets||||||||||| ||||Details||||Fund towhich
asset belon s||Cost (optional)||Current value
o tional|| |B4Assets retained for the||||||||||||| |charity's|own|use||||||||||| ||||||||Fund towhich||Amount due||When due|| ||||Details||||liabil
relates|||o tional|o tional|| |B5Liabilities||||||||||||| |Signed by one or two trustees on
behalf of all the trustees|||||nature|||Print|Name||Date of
a
roval|| ## ## ## |Objec|ti|v|es and|Acti|viti|es|| |---|---|---|---|---|---|---|---| |||||||SORP reference|| |Summary||ofthe purposes|||of|Para 1.17|1)To promote and protect the physical and| |the charity as set out||||in its|||mental
health ofsufferers of Mitochondrial| |governing||document|||||Disease through the provision ofsupport,| ||||||||education
and practical advice.| ||||||||2)To advance the education ofthe public in| ||||||||general (and particularly
among scientists and| ||||||||health professionals)
in all areas relating to| ||||||||Mitochondrial
Disease and to promote research| ||||||||for the public benefit into the causes and| ||||||||treatment
ofthe disease, with the useful| ||||||||results ofsuch research to be disseminated.| |Summary
activities||of the main
in relation to those||||Para 1.17and
1.19|Our website continues to serve as a valuable
resource for:| |purposes
for the public
benefit,
in particular,
the
activities,
projects or services
identified
in the accounts.|||||||those affected by mitochondrial
disease
who can be signposted to many sources of
information
and support| ||||||||the general
public who may learn more| ||||||||about the illness| ||||||||Our principal
activities to date undertaken
for| ||||||||the public benefit are:| ||||||||educating the public by means of handing| ||||||||out literature,
social media and through| ||||||||publicity about mitochondrial
disease| ||||||||enabling affected families to have| ||||||||localised 'missions' to raise awareness
and| ||||||||funds for research| ||||||||the granting offunds to increase support| ||||||||and research to find treatment
and cures| ||||||||for everyone
impacted
by mitochondrial| ||||||||disease| |Statement|||confirming|||Para 1.18|The trustees have had regard to the guidance| |whether|the trustees|||have|||issue by the Charity Commission
on public| |had regard|||to the guidance||||benefit.| |issued|by|the Charity|||||| |Commission|||on public||||| |benefit|||||||| |Policy on|grant making|grant making|grant making|grant making|Para 1.38|continue to grant fund through
The Lily
Foundation
in order to benefit from their| |---|---|---|---|---|---|---| |||||||established
processes of:| |||||||ensuring the worthiness
ofresearch bids| |||||||ascertaining
what the mito community| |||||||itself wants in the way ofresearch and| |||||||support| |||||||We will remain open to alternative
options| |||||||and keep this decision under annual
review.| |Policy on|social investment||||Para 1.38|| |including|program|||related||| |investment||||||| |||||||Contributions
made by volunteers
in both| ||||||Para 1.38|fundraising
and assisting operating
our charity| |Contribution|||made by|||continue to be invaluable,
given we do not| |volunteers||||||employ any staff.| |Other||||||| |Achievements||||and Performance||| ||||||SORP reference|| |||||||We granted f23,237in August 2020through| |||||||the leading charity for mitochondrial
disease,| |||||||The Lily Foundation
(TLF)towards a research| |Summary
of the main
achievements
ofthe charity,
identifying
the difference the
charity's
work has made to|||||Para 1.20|project in Neuropsychiatric
and Brain Imaging
of Primary
Mitochondrial
Disease (expected
start date Q12021).| |the circumstances
of its
beneficiaries
and any wider
benefits to society as a
whole.||||||In addition tothe above, in liaison with TLF,
we re-allocated f14,000offunding awarded
in 2019previously
designated
for the 'Oxford| |||||||Drug Repurposing'
project, as follows:| |||||||-f10,000-The RUDY Study, a platform to| |||||||facilitate patient engagement
in research.| |||||||This funding
will enable mitochondrial
disease| |||||||patients to be included
(expected start date| |||||||Sept 2020)| |||||||—f4,000-Added to the Neuropsychiatric
and| |||||||Brain Imaging of Primary Mitochondrial
Disease project, bringing total tof27,237| |||||||At the outset ofthe pandemic,
we re-assigned| |||||||perishable
donated goods we could no longer| |||||||use in tombolas etc into 'Hug Bundles'. Over| |||||||M individuals
and families affected by| |||||||mitochondrial
disease received them.| |We created our new website launched
in May|We created our new website launched
in May| |---|---| |in line with our re-brand of2019.It is now|| |considerably
more impactful
and easier to|| |navigate for the general
public, supporters|| |and those impacted
by mito. It also enabled|| |us to host an online shop launched
in|| |November,
selling merchandise.|| |As well asthe shop, other new income|| |streams have been developed,
in particular|| |online ones:|| |Shopping commission
sites: Amazon|| |Smile 8 Give As You Live. Small amount|| |generated to date, but large growth|| |potential.|| |Facebook fundraising
was finally|| |enabled
in February 2020and generated|| |E3.6k.|| |We have developed
Ebay and Facebook|| |Marketplace
donations
and sales-|| |combined these brought
in a retail total|| |ofE1.1k.|| |We began running
atombola stall on|| |Brighouse outdoor market
in late|| |September, once pandemic
restrictions|| |allowed.|| |We welcomed 3patrons —Edmund
Thornhill,|| |Neil Hurst and Nick Powell from the worlds|of| |business, entertainment
and sport|| |respectively.|| |The charity has launched
five further localised|| |missions centred around an individual
mito|| |sufferer(s) - empowering
their families,|| |friends and communities
to raise awareness|| |and funds for research tothe extent they|| |wish, and are able. Despite the limitations|of| |the pandemic,
income from missions|| |(excluding the original, Emma's) has risen|| |from f125in 2019to E3k in 2020.|| |Just as importantly,
we have facilitated
and|| |encouraged
liaison and support between
our|| |missionees.
Friendships
are being formed and|| |a sense ofempowerment
reported
by some|| |ofthose running
their own missions from|| |feeling a 'part ofthe solution'.|| |Due to the tremendous
voluntary
support we|| |receive, our annual
administration
expenses|| ## |Statement
expiaining
the
policy for holding reserves
stating
why they are held|Statement
expiaining
the
policy for holding reserves
stating
why they are held|Statement
expiaining
the
policy for holding reserves
stating
why they are held|Statement
expiaining
the
policy for holding reserves
stating
why they are held|Statement
expiaining
the
policy for holding reserves
stating
why they are held|Statement
expiaining
the
policy for holding reserves
stating
why they are held|Statement
expiaining
the
policy for holding reserves
stating
why they are held|Para 1.22|We do not have a reserves policy at this time
and do not consider that our financial
position
requires one.| |---|---|---|---|---|---|---|---|---| |Amount of||reserves||held|||Para 1.22|None| |Reasons|for holding||||zero||Para 1.22|We have funds which will already enable us to| |reserves||||||||grant fund next year. We have no expenditure| |||||||||to which we are committed.
We will not grant| |||||||||out any funding
which would take us anywhere| |||||||||near a nil balance.| |Details offund materially||||||in|Para 1.24|None| |deficit||||||||| |Explanation||ofany|||||Para 1.23|None| |uncertainties||about||the||||| |charity continuing|||as||a going|||| |concern||||||||| |Additional||information||||{optional)||| |You ma|choose||to|include further statements||||where relevant
about:| |||||||||Our normal,
principal sources offunding were| |The charity's
principal
sources offunds (including|||||||Para 1.47|badly impacted
by the covid-19 pandemic-
fundraising
from events and public donation
through
collections.| |any fundraising}||||||||| |||||||||Events either organised
by ourselves or others| |||||||||were almost all cancelled from March, and| |||||||||huge detrimental
effect on collecting cans,| |||||||||sponsored
events etc. Having been on track to
raise f50k in 2020the cancellation ofmost| |||||||||activity meant this was no longer achievable.| |||||||||As listed previously,
we put focus on building| |||||||||new income streams online to help mitigate| |||||||||this. In the event therefore, we were pleased to
raise f27.6k.| |||||||||We are aware that this was largely due toour| |||||||||largest ever single donation of610k in January| |||||||||2020, and grateful that this came in a very| |||||||||opportune
year when other sources offunds| |||||||||were denied to us.| |Investment||policy|and|||||| |objectives
including
any
social investment
policy|||||||Para 1.46|| |adopted||||||||| |||||||||The principal
risk remains our reliance ofthe| |A description
risks facing||of the principal
the charity|||||Para 1.46|Chair's voluntary
time in a 'CEO' type role to
move the charity forward.| ## |Description
of charity's|||||| |---|---|---|---|---|---| |trusts:|||||| |Type ofgoverning
document||Para 1.25|Trust Deed||| |';trust deed. ro 'Gi chef"FBI"3|||||| |How is the charity||Para 1.25|Charitable|Trust|| |constituted?|||||| |(B.g un!ncoI pcrated|||||| |associatIon.
ClQ&|||||| |Trustee selection methods||Para 1.25|Trustees appoint any new trustees as per Trust||| |including
details ofany|||Deed document||| |constitutional
provisions|e.g.||||| |election to post or name|of||||| |any person or body entitled|||||| |to appoint one or more|||||| |trustees|||||| |Additional
information|{optional)||||| |You ma
choose to include further statements|||where relevant||about:| |Policies and procedures|||||| |adopted
for the induction|and||||| |training
oftrustees|||||| |The charity's
organisational
structure
and any wider||Para 1.51|||| |network
with which the|||||| |charity works|||||| |Relationship
with any related||Para 1.51|||| |parties|||||| |Other|||||| ## ## |ofthe charity trust|ees who manage|the charity|||| |---|---|---|---|---|---| |Trustee name|Office (ifany)|Dates acted ifnot for whole
ear|Name
to a|ofperson (or body) entitled
oint trustee
ifan|| |Christine
Beal|Chair||||| |Joanna
Flynn|Secretary||||| |Bethany
Ellis|Treasurer||||| |Sophie Whittaker|||||| |Christopher
Appleby|||||| |Name oftrustees
holding|title|to property
belonging
to th|to property
belonging
to th|e charity| |---|---|---|---|---| |Trustee name||Dates acted ifnot for whole||ear| |Funds held as custodian|||trustees on behalf ofothers|| |Description
ofthe assets||None||| |held
in this capacity||||| |Name and objects ofthe||None||| |charity on whose behalf|the|||| |assets are held and how|this|||| |falls within the custodian||||| |charity's
objects||||| |Details ofarrangements|for|None||| |safe custody and||||| |segregation
ofsuch assets||||| |from the charity's
own assets||||| ## ## ## ##