## **Trustees' Annual Report for the period**
Period start date Period end date Day Month Year Day Month Year 06 04 2024 05 04 2025 **From To**
## Section A Reference and administration details
**Charity name** GoPI3Ks (Genetic Overgrowth PI3K Support)
**Other names charity is known by**
**Registered charity number (if any)** 1176289
**Charity's principal address**
8 Bolton Avenue
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8 Bolton Avenue|
8 Bolton Avenue|
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|Accrington||
|Lancashire||
|**Postcode**|BB5 6HN|
## **Names of the charity trustees who manage the charity**
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20|**Trustee name**|**Office (if any)**|**Dates acted if not for whole**
**year**|**Name of person (or body) entitled**
**to appoint trustee(if any)**|
|---|---|---|---|---|
||MandySellars|Chairperson|||
||Susan Jane Harper|Treasurer|||
||Amanda Jane
Kenyon|Secretary|||
||Katie Louise
Kavannah|Trustee|||
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**Names of the trustees for the charity, if any, (for example, any custodian trustees)**
**Name Dates acted if not for whole year**
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**Names and addresses of advisers (Optional information)**
**Type of adviser Name Address**
**Name of chief executive or names of senior staff members (Optional information)**
## **Section B Structure, governance and management**
## **Description of the charity’s trusts**
Type of governing document Constitution (December 2017) (eg. trust deed, constitution) How the charity is constituted Charitable Incorporated Organisation (C.I.O) (eg. trust, association, company) Trustee selection methods Trustees are appointed and/or reappointed at annual meetings by those (eg. appointed by, elected by) currently holding roles as trustees
## **Additional governance issues (Optional information)**
- Apart from the very first trustees, every trustee must be appointed or
- You **may choose** to include reappointed by a resolution passed at a properly convened meeting of the
- additional information, where existing charity trustees. This is undertaken at an annual meeting.
- relevant, about: In selecting individuals as trustees, the existing trustees must have regard policies and procedures to the skills, knowledge and experience needed for the effective
- adopted for the induction and administration of the C.I.O.
- training of trustees;
- the charity’s organisational The current trustees will make available to each new trustee, on or before structure and any wider their first appointment: network with which the charity A copy of the current version of the constitution.
- works; A copy of the C.I.O’s latest trustee annual report and statement of
- relationship with any related accounts. parties; All trustees give their time on a voluntarily basis and received no
- trustees’ consideration of remuneration or other benefits, apart from reasonable expenses that are
- major risks and the system paid when having undertaken work for the charity.
- and procedures to manage them.
## **Section C Objectives and activities**
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**Summary of the objects of the charity set out in its governing document**
To advance the education of the general public & those living with PROS by raising awareness, providing information & educational materials. For the prevention & alleviation of poverty for the public benefit of those in need with PROS (PIK3CA Related Overgrowth Spectrum) by providing financial grants.
||To advance the education of the general public & those living with PROS
by raising awareness, providing information & educational materials.
For the prevention & alleviation of poverty for the public benefit of those
in need with PROS (PIK3CA Related Overgrowth Spectrum) by providing
financial grants.|To advance the education of the general public & those living with PROS
by raising awareness, providing information & educational materials.
For the prevention & alleviation of poverty for the public benefit of those
in need with PROS (PIK3CA Related Overgrowth Spectrum) by providing
financial grants.|
|---|---|---|
|**Summary of the main**
**activities undertaken for the**
**public benefit in relation to**
**these objects (include within**
**this section the statutory**
**declaration that trustees have**
**had regard to the guidance**
**issued by the Charity**
**Commission on public**
**benefit)**||In the planning our activities during the financial period of 2024-
2025, all trustees kept in mind the Charity Commission’s guidance
on public benefit. This places the focus on the general public as a
whole as well as those living with the rare overgrowth condition,
PROS. (PIK3CA Related Overgrowth Spectrum) that the charity
was set up to support.
Online awareness
Our online presence was as always a big focus for the charity
during the last financial year. The ease and popularity of using
social media platforms such as X, Facebook & Instagram as well
as applications like Microsoft Teams and Zoom allowed us to
continue to raise awareness of PIK3CA Related Overgrowth
Spectrum and interact with the general public as well as PROS
individuals and families. Using such media breaks down barriers
that can occur due to location, financial costs, time and health
factors.
During this financial year we have continued to interact, share
information and raise the profile of the GoPI3Ks charity. The aim is
to raise awareness of PROS to our followers; those living with
PROS, medical professionals and the general public.
During the charities online fundraisers and those fundraisers
organised by our supporters we are able to reach a significant
number of people. These can be through Facebook posts, posts on
X and Instagram posts as well as sending emails to our mailing list.
During each post we provide links to the GoPI3Ks website, which
would explain to the viewer/reader what PROS is and how it can
affect individuals. The website also explains what we (the GoPI3Ks
charity) does to support those living with PROS, as well as
providing links to our dedicated social media pages and contact
details. We also share links to our funding application form as well
as our GoPI3Ks You Tube channel. This information will help
anyone wanting to support us further through their own fundraising
or maybe if they, a family member or they know someone living
with PROS who may need support financially or psychologically.
Additionally, our online presence allows us to share relevant
articles, current research papers, interact with medical individuals
and groups as well passing on news worthy information about
PROS to the general public as well as the PROS community.
Attending virtual online events also led to engagement between
various rare disease groups, rare disease advocates and the
general public which enabled us to highlight PROS and the work
we do at GoPI3Ks supportingthose livingwith this rare overgrowth|
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## condition.
## Attending events
During this financial period. We were able to attend a face to face fundraiser that allowed us to raise funds for GoPI3Ks as well as raising awareness of PROS to the general public attending this event.
During this year we collaborated with PIPgen who are a consortium of over 11 universities, research institutes and companies across 8 countries from Europe & the UK which came together to host and train 15 PhD Candidates in the field of PI3K basic and translational research. Together with an art school of Cambridge (CSVPA), PIPgen developed an Art-Science exchange programme: PIPgenerating Art, their aim was to disseminate science from the perspective of artists. As a charity we worked closely with the organisers, scientists and artists to educate them on what PROS is, what it is like to live with to enable them to produce their final art pieces. We attended the event where we were able to mingle with scientists, artists and the general public as well as take part in a Q and A session to again raise awareness of PROS and what we do at the charity.
## Grant making
Again through our fundraising and that of our supporters it has allowed us to offer financial grants to those living with PROS. During this last financial year we were able to help several families with travel costs to attend hospital appointments, funding specialised mental health support, as well as equipment to help one of our younger members. Help with making a garden safe and secure, funds towards a much needed short break away and also helping a family pay for tests and doctors consultations that wasn’t covered by their insurance. Finally during the Christmas period we were able to help some of our members with a small grant to make the festive period a little easier for them.
## Public awareness
Our charity trustees and supporters of the charity continue to raise awareness of PROS to friends, families and the wider population. Our continued presence online, particularly engaging with several rare groups, charities, as well the general public has allowed us to raise the awareness of PROS and the work we do at GoPI3Ks. This has been achieved through the sharing of information via electronic means, through emails, online discussions and workshops and also sharing the website address to those with an interest.
Additionally, our attendance in person at fundraisers and collaborative events has led to an increased awareness of PROS and also the charity and what we do to support those with this rare overgrowth condition.
## **Additional details of objectives and activities (Optional information)**
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Our grant making policy states that a copy of the medical evidence supporting a diagnosis of PROS needs to be provided from a relevant medical professional and/or hospital, before an application can be processed.
You **may choose** to include further statements, where relevant, about:
- policy on grantmaking;
- policy programme related investment;
- contribution made by volunteers.
We also ask for evidence of any relevant financial quotes relating to the requested item, equipment or service that the funding is needed for. As a charity we may also undertake relevant searches to gauge if these can be sourced at a cheaper price. Where relevant and appropriate, we prefer to pay a company directly for any item or service we may be providing to the applicant.
If we are unable to pay the company directly for said item or service and the applicant is to receive the funds, they are asked to sign a declaration of receiving charity funds.
This states as follows: I [insert name] confirm that any money / items I receive that are supplied and / or funded by the GoPI3Ks charity will not be sold or passed on to any other parties or used for any other purposes than what the grant has been designated for.
This declaration is not needed if we are reimbursing an applicant for the extra costs that they have already been paid for as long as receipts are provided.
As always we owe a huge sense of gratitude to those that have given their time freely and helped the charity to continue their fundraising and raising awareness. Without their time & generosity we would not be able to achieve the charity goals that we set.
## Section D Achievements and performance
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## Section D Achievements and erformance p
**Summary of the main achievements of the charity during the year**
Our main achievements during this last financial year saw the charity have a good balance between donations, fundraising, grant making and a continued focus on raising awareness of PROS and GoPI3Ks alike. Donations: We are continually grateful for those who have donated funds over this last financial year, without their support we wouldn’t be able to achieve the goals we set as a charity. Fundraising: Throughout this financial year we received several donations from PayPal, from those that chose GoPI3Ks as their nominated charity when they shop, as well as when gift aid was ticked during fundraisers. Also during this financial period we are grateful to an individual donor who uses Charitable Giving Fund to donate £25 to GoPI3Ks every month. We are also grateful to one of our GoPI3Ks families who also donates monthly to us. April 2024: In April one of our GoPI3Ks members ran the Brighton marathon in aid of GoPi3Ks and raised over £1,000. Also in this month we attended a ghost hunt organised by a friend of our chairperson where we could raise awareness of PROS and also raised over £370 during our ghostly evening. May 2024: Also in May, a face to face fundraiser meant we were able to raise over £140 for the charity as well as raising awareness to the general public about PROS and the work that we do as a charity to help those living with this rare condition. September 2024: One of our members who lives with PROS took on a challenge to ride her horse 50 miles during September to raise money for us and she raised over £200. Also one of the mums of a little girl who lives with PROS organised a raffle at her daughters school and raised over £299 December 2024: We received a research grant from the VTCT foundation _( VTCT Foundation seeks to invest in all forms of research and services that help people living with a visible difference and their families and carers to overcome any social, physical, psychological, emotional or other disadvantage)._ The grant will allow us to carry out a year-long research project in 2025 alongside researchers at the Centre for Appearance Research at the University of the West of England.
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Section D Achievements and erformance p
Our aim is to look in to the psychological burden of living with PROS with the goal of understanding this aspect of living with this rare condition as well as developing resources that can be widely used and distributed to those living with PROS, parents of a child with PROS, medical professionals, educational settings and the general public. January 2025:
We received a donation following our collaboration with PIPGen in September of last year. February 2025:
The annual birthday fundraiser from our chairperson made over £1,000
We received an amazing donation of £500 from someone who lives with PROS and came across the work we are doing within the PROS community. Also in February we had a donation of £50 from a nursery who had nominated us as their charity to support. March 2025:
Also one of our members and her son who lives with PROS, along with his friends organised an auction for GoPI3Ks and raised over an amazing £650.
Grants provided: April 2024: In April we were able to help out a family with the travel costs to their hospital appointment. June 2024:
We were able to help by funding some specialist mental health support to help one of our members August 2024:
We funded a short break for one of our families before the new school term begin in September. September 2024:
We were able to help out one of our families whose young daughter has a suppressed immune system due to medication she takes to help her condition. Their garden wasn’t secure or safe for her to play in so we contributed towards this enabling her to have a safe and secure place to spend time outside. October 2024: During October we were able to help several families, one with
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Section D Achievements and erformance p
travel expenses to their hospital appointment and another young member where we provided equipment to help them during their long wait and travel to and from hospital appointments. December 2024:
During this month we helped out a family who’s insurance didn’t cover a series of blood tests and doctor consultations they needed, so we were able to cover this for them.
Also in December we gave a number of grants to some of our members/families to make their Christmas a little easier.
Additional achievements: April 2024:
Following on from the previous financial year, we continued our collaboration between GoPI3Ks, a paediatric consultant at GOSH (Great Ormond Street hospital) and a researcher (VTCT) Foundation Senior Research Fellow, Chartered Psychologist (BPS) & Registered Health Psychologist (HCPC) at the Centre for Appearance Research (CAR) University of the West of England). Our aim was and is to look in to the psychological burden of living with PROS (Parents of children, teenagers & adults) We recognise through other work/surveys that there is a huge psychological effect for those living and affected by PROS that is not addressed within the traditional medical setting.
We worked together to devise a short survey on how living with PROS effects their life, from the physical, financial, psychological to their mental health. This was sent to our mailing list and posted on several social media groups. The responses we received highlighted several areas that individuals and families struggle with and showed that there is a huge need for further research to be undertaken.
We hope through funding, we can carry out research to understand this in more detail in the hope to make positive changes in the future to integrate mental health services as a regular option for those living with and affected by PROS. As well as developing physical and online resources to help patients, doctors and family and friends have a better understanding of how PROS can affect someone’s mental health and how they/we can help.
Also during this month we added more vital information to our website focusing on the RDCN (Rare Disease Collaborative Network) This included the contact details for the Segmental Overgrowth and Vascular Malformations clinic, which includes 6 centres around the U.K.
The purpose of the RDCN is that it will become a more visible
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Section D Achievements and erformance p
service for referring doctors, new patients/families and existing patients and families that need continued medical support, which should improve the patient access and ease the stress and worry of the patient/family journey.
An adult centre has also been set up with the RDCN, so that there will be, for the first time, somewhere for patients to either transition to from their child clinics (if they need ongoing specialist care), or be referred into as an adult if they have either never had their condition investigated or experience new clinical problems.
In April 2024 we signed up with the “I am number 17” campaign and their next stage to raise awareness and hopefully make changes for those living with rare conditions. The awareness amongst the public and healthcare professionals of those with rare conditions is very low, which often results in people with rare diseases often being misdiagnosed and experience care inequity. So, in 2024, the “I am number 17” campaign were calling on Members of Parliament (MPs) to represent all their constituents and Elevate Care for Rare. Their aim consisted of three steps: Reducing variation in services Improving coordination of care Strengthening awareness of a rare disease
This involved meetings with other rare disease groups and the “I am number 17” team to discuss the best ways to achieve this the objective and push for awareness of rare patients and their families.
Also in April we attended a workshop with the Appearance Collective focusing on social media and appearance-altering conditions. They shared the findings of a recent qualitative research into the experiences of adults and young people with visible differences who use social media. The workshop also included interactive discussions about experiences of using social media as a charity and the key needs of your members. We also had an opportunity to directly inform the social media resources that were being developed by the VTCT Foundation team at CAR, which will be freely available to Appearance Collective members.
May 2024:
Along with one of our volunteers who is a parent to a child with PROS we were invited to give a presentation on: what is PROS, our journeys as an adult growing up with PROS and a parent to a child living with this condition. These presentations were given to the members of the PIPgen team (a consortium of over 11 universities, research institutes and companies across 8 countries from Europe & the UK which has come together to host & train 15 PhD Candidates in the field of PI3K basic and translational
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Section D Achievements and erformance p
research). The presentation was also delivered to students at the art school of Cambridge (CSVPA) who together with the PIPgen team developed an Art-Science exchange programme. The aim was to disseminate science from the perspective of artists. All 15 projects within the PIPgen network were transformed into unique pieces of Art. These projects were focused on the PI3K pathway and culminated with an in-person, open-door, art exhibition where all 15 art and science students presented their works and interact with scientists and a lay audience.
## August 2024:
The charity signed up for Dazzle4Rare24, this online campaign is designed to raise awareness of rare groups and charities as they share each other’s information and websites, thus reaching a greater audience.
## September 2024:
We attended the open art exhibition from the collaboration between ourselves, PIPgen and art school of Cambridge (CSVPA). Here we got to meet the artists and scientists involved in this project and took part in an open round table to answer any questions they had about PROS. We also had merchandise at the event that featured a QR code link to our website donation page. This was a good networking opportunity and led to good relationships with some of the scientists in the area as well as fermenting our relationship with the PIPgen team which may lead to further projects in the future.
## December 2024:
Working alongside a senior researcher at the Centre for Appearance Research (CAR) we were successful in our grant application from the VTCT Foundation. We have funding for a year-long project which focuses on the impact of the psychological burden living with PROS can bring. As stated earlier, the purpose of this project is to gain a better understanding of this in more detail in the hope to make positive changes in the future to integrate mental health services as a regular option for those living with and affected by PROS. We will also be developing physical and online resources to help patients, doctors and family and friends as well as the general public have a better understanding of how PROS can affect someone’s mental health and how they/we can help.
## February 2025:
Throughout Rare Disease Month in February, we shared information slides online, on various social media platforms, with different contacts within the rare disease community, with doctors and also the general public. These contained various facts about PROS: symptoms, complications, treatment options, diagnosis and research updates. We also included our website address on these
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Section D Achievements and erformance p
slides so people could get in touch and learn more about PROS and GoPI3Ks.
Also for Rare Disease Day, the 28[th] of February, we created some slides with quotes from those living with PROS which we called “Voices of the PROS community” This year we asked individuals living with PROS and parents of children with PROS “ What was your first thought when you/your child was diagnosed with PROS?” Also “What is your thought/s now living with or having a child with PROS?” March 2025:
We met with some of those within the PROS community, from various countries around the world and two researchers from University of West England and the CAR (Centre for Appearance Research) to start the project in to psychological burden of living with PROS. Here the focus group discussed what the main causes and burdens people / families live with, this brought up several categories which gave us a lot of material to work with to help design the main survey. April 2025: we attended an online meeting, comprising of a number of worldwide patient organisations who have an interest in Vascular conditions. Here we discussed a Proposal for the Establishment of a Patient Committee within ISSVA (International Society Study Vascular Anomilies) A proposal was written to be presented at the annual conference in April 2025. - Continued work throughout 2024 25 Our social media pages continue to be a source of communication between the families, these are also updated with any new medical developments that arise, as is the GoPI3Ks website. As well as information on such things as mental health awareness week/month, children’s mental health awareness week, information on support for parents, teenagers and children. Whether this be workshops, webinars or informal groups. Such information comes from continued contact with various medical professionals and scientific researchers as well as online information from other support groups as well as PROS charities from around the world. We also keep people updated by emailing families and patients using our mailing list with any online or face to face conferences or workshops within the rare disease community that they may feel they would benefit from attending. As well as information on current research options that participants could take part in if they feel it would be beneficial for them. Our annual newsletter is another source that helps keep those living with PROS and their families up to date with what the charity is doing, how the charity can help them, but also what is new within the research of PROS.
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## **Section E Financial review**
We hold cash at the bank of £16,731.22. The majority of our funds are **Brief statement of the** unrestricted and are considered reserves that are freely available to **charity’s policy on reserves** spend on any of the charity’s purposes. This being to offer financial grants to individuals living with PROS, to relieve poverty and aid their independence and daily living.
However, we do hold a small amount of funds that are restricted as of March 2024 that have been set aside for a particular project, setting up of a patient registry, totalling: £1,541.60.
The charity does hold a policy on reserves which can be viewed on our website under the section: privacy, safeguarding, terms and conditions. **Details of any funds materially** Not applicable. **in deficit Further financial review details (Optional information)**
Our main source of funding this financial year continues to be through You **may choose** to include generous donations, online fundraising by the trustees and supporters, additional information, where face to face fundraising and other supporters raising money via online relevant about: platforms such as the PayPal Giving Fund and the Charitable Giving the charity’s principal Fund.
- the charity’s principal sources of funds (including any fundraising);
- We have also received a grant this financial year from the VTCT
- how expenditure has foundation that has enabled us to begin our mental health / psychological project in to the psychological burden of living with PROS.
- supported the key objectives of the charity;
- investment policy and The income raised was used to help those living with PROS by giving objectives including any grants to aid their daily living and alleviate any poverty that occurred due ethical investment policy to living with this medical condition. Please refer to the achievements and adopted. performance section of this report under grants provided for more details.
## **Section F Other optional information**
Future plans:
Our future plans as always is to continue to educate the public about PROS as well as those living with PROS and to raise the profile of GoPI3Ks and inform people how they can help raise funds. We will undertake this by making sure that we will remain visible online, on our social media pages and by attending relevant online events as well as face to face events and fundraisers.
We will continue to financially help PROS individuals and their families to aid their daily living and alleviate and/or prevent poverty that can develop due to the extra costs living with PROS can bring.
To reassess at regular periods our way of fundraising and raising awareness and to develop ways to increase this within the general population and for those living with PROS.
We will continue to update the GoPI3Ks website with relevant information and contact details, which for many is their first port of call when researching PROS.
We will continue to work closely with the Senior Research Fellow at the Centre for Appearance Research (CAR) University of the West of England to look further in to the psychological burden of
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living with PROS, along with those within the PROS community, from different backgrounds, ethnicity, gender and sexuality. We will develop a larger scale survey to gauge more of an understanding of how PROS effects all aspects of an individual and family life. The resources that we develop following this year-long project will be used and distributed to those within the medical field, healthcare professionals, educational settings and even friends and family, to further their understand PROS and the effect it can have on various aspects of a person/families life.
## **Section G Declaration**
**The trustees declare that they have approved the trustees’ report above.**
**Signed on behalf of the charity’s trustees**
**Signature(s)** Susan Jane Harper **Full name(s)** Mandy Sellars **Position (eg Secretary, Chair,** Chairperson Treasurer **etc) Date** 30/07/2025
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|**GoPI3Ks**|||**1176289**||
|---|---|---|---|---|
|**Receipts and payments accounts**||||**CC16a**|
|**For the period**
**from**|06/04/2024|**To**|05/04/2025||
|**Section A Receipts and payments**|**Section A Receipts and payments**||||||
|---|---|---|---|---|---|---|
|**A1 Receipts**|**Unrestricted**
**funds**
**to the nearest £**
**1,555**
**3,993**
**604**
**24,870**
**-**
**-**
**31,022**
**-**
**-**
**-**
**31,022**
**4,050**
**146**
**101**
**21,870**
**26,167**
**-**
**-**
**-**
**26,167**
**4,855**
**11,876**
**16,731**|**Restricted**
**funds**
**to the nearest £**
**-**
**-**
**-**
**-**
**-**
**-**
**-**
**-**
**-**
**-**
**-**
**-**
**-**
**-**
**-**
**-**
**-**
**-**
**-**
**-**
**-**
**-**
**-**
**-**
**-**
**-**
**-**
**-**
**-**|**Endowment**
**funds**
**to the nearest £**
**-**
**-**
**-**
**-**
**-**
**-**
**-**
**-**
**-**
**-**
**-**
**-**
**-**
**-**
**-**
**-**
**-**
**-**
**-**
**-**
**-**
**-**
**-**
**-**
**-**
**-**
**-**
**-**
**-**
**-**
**-**|**Total funds**
**to the nearest £**
**1,555**
**3,993**
**604**
**24,870**
**-**
**-**
**-**
**-**
**31,022**
**-**
**-**
**-**
**31,002**
**4,050**
**146**
**101**
**21,870**
**-**
**-**
**-**
**-**
**26,167**
**-**
**-**
**-**
**26,167**
**4,855**||**Last year**
**to the nearest £**|
|Donations|**1,555**|||||**11,876**|
|Fundraisingevents|**3,993**||||||
|Gift Aid(PayPal & Ebay)|**604**|||||**-**|
|Grants|**24,870**|||||**-**|
|||||||**-**|
|||||||**-**|
||**-**|||||**-**|
||**-**|||||**-**|
|**_Sub total_**_(Gross income for_
_AR)_|**31,022**||||||
||||||||
|**A2 Asset and investment sales,**
**(see table).**|||||||
||**-**||||||
||**-**|||||**-**|
|**_Sub total_**|**-**|||||**-**|
|**_Total receipts_**
**A3 Payments**|||||||
|||||||**11,876**|
||||||||
|
Individualgrants|**4,050**|||||**-**|
|Fundraising& expenses costs|**146**|||||**-**|
|Public LiabilityInsurance|**101**|||||**-**|
|Moneyto UWE for researchproject|**21,870**|||||**-**|
|||||||**-**|
|||||||**-**|
|||||||**-**|
|||||||**-**|
|||||||**-**|
|**_Sub total_ **|**26,167**||||||
||||||||
|**A4 Asset and investment**
**purchases (see table)**|||||||
|**,**|**-**||||||
||**-**||||||
|**_Sub total_ **|**-**|||||**-**|
|**_Total payments_**
**_Net of receipts/(payments)_**
**A5 Transfers between funds**
**A6 Cash funds last year end**
**_Cash funds this year end_**|||||||
|||||||**-**|
||||||||
||**4,855**||**-**|
**4,855**||**11,876**|
|||**-**|**-**|||**-**|
||**11,876**|**-**|**-**|**11,876**||**-**|
||**16,731**|**-**|**-**|**16,731**||**11,876**|
CCXX R1 accounts (SS)
30/07/2025
1
|**Section B Statement of assets and liabilities at the end of the period**|**Section B Statement of assets and liabilities at the end of the period**|**Section B Statement of assets and liabilities at the end of the period**||
|---|---|---|---|
|**Categories**
Signed by one or two trustees on
behalf of all the trustees
**B1 Cash funds**
**B2 Other monetary assets**
**B4 Assets retained for the**
**charity’s own use**
**B5 Liabilities**
**B3 Investment assets**|Signature
**Details**
**Details**
**Details**
**Details**
**_Total cash funds_**
(agree balances with receipts and payments
account(s))
**Details**|**Unrestricted**
**funds**
**Restricted**
**funds**
**to nearest £**
**to nearest £**
**15,189**
**1,542**
**-**
**-**
**-**
**-**
**15,189**
**1,542**
Agreement Error
Agreement Error
**Unrestricted**
**funds**
**Restricted**
**funds**
**to nearest £**
**to nearest £**
**-**
**-**
**-**
**-**
**-**
**-**
**-**
**-**
**-**
**-**
**-**
**-**
**Fund to which**
**asset belongs**
**Cost (optional)**
**-**
**-**
**-**
**-**
**-**
**Fund to which**
**asset belongs**
**Cost (optional)**
**-**
**-**
**-**
**-**
**-**
**-**
**-**
**-**
**-**
**Fund to which**
**liability relates**
**Amount due**
**(optional)**
**-**
**-**
**-**
**-**
**-**
Print Name
Mandy Sellars
Susan Harper|**Endowment**
**funds**
**to nearest £**|
||||**-**|
||||**-**|
||||**-**|
||||**-**|
||||OK|
||||**Endowment**
**funds**
**to nearest £**|
||||**-**|
||||**-**|
||||**-**|
||||**-**|
||||**-**|
||||**-**|
||||**Current value**
**(optional)**|
||||**-**|
||||**-**|
||||**-**|
||||**-**|
||||**-**|
||||**Current value**
**(optional)**|
||||**-**|
||||**-**|
||||**-**|
||||**-**|
||||**-**|
||||**-**|
||||**-**|
||||**-**|
||||**-**|
||||**When due**
**(optional)**|
|||||
|||||
|||||
|||||
|||||
|||||
||||Date of
approval|
|||Mandy Sellars|30/07/2025|
|||Susan Harper|30/07/2025|
CCXX R2 accounts (SS)
30/07/2025
2
## **Independent examiner's report on the accounts**
**Section A Independent Examiner’s Report**
|**Report to the trustees**
**On accounts for the year**
**ended**
**Set out on pages**|Charity Name
GoPI3Ks (Genetic Overgrowth PI3K Support)|Charity Name
GoPI3Ks (Genetic Overgrowth PI3K Support)|Charity Name
GoPI3Ks (Genetic Overgrowth PI3K Support)|
|---|---|---|---|
|||||
||05/04/2025|**Charity no**
**(if any)**|1176289|
|||||
||1-2
1-(remember to include the page numbers of additional sheets)|||
||I report to the trustees on my examination of the accounts of the above
charity (“the Trust”) for the year ended 05/04/2025.|||
**Responsibilities and** As the charity's trustees, you are responsible for the preparation of the **basis of report** accounts in accordance with the requirements of the Charities Act 2011 (“the Act”).
I report in respect of my examination of the Trust’s accounts carried out under section 145 of the 2011 Act and in carrying out my examination, I have followed all the applicable Directions given by the Charity Commission under section 145(5)(b) of the Act.
**Independent examiner's statement** I have completed my examination. I confirm that no material matters have come to my attention in connection with the examination which gives me cause to believe that in, any material respect:
- the accounting records were not kept in accordance with section 130 of the Charities Act; or
- the accounts did not accord with the accounting records; or
- the accounts did not comply with the applicable requirements concerning the form and content of accounts set out in the Charities (Accounts and Reports) Regulations 2008 other than any requirement that the accounts give a ‘true and fair’ view which is not a matter considered as part of an independent examination.
I have no concerns and have come across no other matters in connection with the examination to which attention should be drawn in this report in order to enable a proper understanding of the accounts to be reached.
**Date:** 18 October 2025
**Signed: Name:** Sean Hegarty **Relevant professional** The Institute of Chartered Accountants in England and Wales **qualification(s) or body (if any):** ACA 8468485
1
**Oct 2018**
**IER**
**Address:** Chartered Accountants' Hall, Moorgate Place, London EC2R 6EA
## **Section B Disclosure**
Only complete if the examiner needs to highlight material matters of concern (see CC32, Independent examination of charity accounts: directions and guidance for examiners).
**Give here brief details of any items that the examiner wishes to disclose** .
No matters of concern
2
**Oct 2018**
**IER**