**Cadasil Support UK** Charity number 1175812
## **Annual Report and Financial Statements**
**for the year ended 30 June 2021**
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## **Cadasil Support UK**
## **Annual Report and Financial Statements**
**For the year ended 30 June 2021**
|**Contents**|**Page**|
|---|---|
|Trustees' report|2 to 5|
|Statement of financial activities|6|
|Balance sheet|7|
|Notes to the accounts|8, 9|
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## **Cadasil Support UK Trustees' report**
The Members of the charity are its Trustees for the purpose of the Foundation Model Charitable Incorporated Organisation or CIO and who throughout this report are collectively referred to as the trustees.
Trustees who have held office for the period 1July 2020 to 30 June 2021:
|**Name**
|**Position**|**Appointed**|**Resigned**|
|---|---|---|---|
|Mrs Karen Carter
|Chairperson|November 2017||
|Mrs Chops Carter||November 2017||
|Mr Glenn Bate||April 2018||
## **Method of appointment**
In accordance with the charity’s constitution a minimum of three trustees must always be appointed. All Trustees give their time voluntarily and receive no benefits from the charity. Any expenses reclaimed from the charity are set out in the notes to the accounts. New Trustees are given a formal induction covering the charity’s aims, objectives and challenges, the funding and an overview of how the charity’s services and activities are carried out.
## **Principal address**
Reservoir House Ogden Halifax HX2 8YA
## **Bankers**
Barclays Bank plc
## **Governing document**
Charitable Incorporated Organisation - Foundation Registered 20[th] November 2017 The charity is governed by its Constitution, which will be reviewed annually and revised if necessary, in line with Charity Commission guidance and approval.
The charity is incorporated through the legal status of a Charitable Incorporated Organisation (CIO), which means if the CIO is wound up, the trustees of the CIO have no liability to contribute to its assets and no personal responsibility for settling its debts and liabilities.
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## **Objects of the organisation**
The principle activity of the charity is to promote and protect the physical and mental health of sufferers of cerebral autosomal dominant arteriopathy with subcortical infracts and leukoencephalopathy (CADASIL) and their relatives and carers, through the provision of support, education and practical advice and through the provision of research funding.
## **Review of progress and achievements**
## **Achievements, Performance and demonstration of Public Benefit**
This year has been another good year for the Charity as we have continued to grow both in raising awareness and in our social media group. We hoped to report that financially we would be at least able to cover the very limited planned expenditure and at best able to report a larger surplus than the previous year. We are pleased and thankful to all involved in the charity to be able to present this report and healthy financial statement for the third year of the charity’s development, despite this was the year that Covid-19 really began to cause chaos in the world.
The main focus of the charity during these 12 months has been the same as last year:
- Promoting and increasing the public profile of the charity
- Raising funds to continue the maintenance and hosting costs of our website.
- Championing one of our main aims which is to raise public awareness of cadasil.
- Continue to promote awareness and build a good relationship with Professor Markus and the cadasil team at Addenbrookes Hospital at the University of Cambridge.
## **Raising awareness**
Our Facebook group continues to grow and now has 942 members which is our main ‘go to place’ for support. More members are commenting more and become more noticeable in the group. Members don’t just rely on the administrators of the group and actually converse between themselves more.
We have continued to share the cadasil support group to other Facebook pages and groups, especially those which concentrated on MS (something people with cadasil with are often misdiagnosed with), stroke survival groups and also migraine groups. We have maintained our relationships with similar group administrators and refer members to these groups too. For example, people who believe they have cadasil (but have chosen not to be tested) can join a group with people in the same position rather than be in a group where people have definite diagnosis.
This year we also produced more leaflets about cadasil and the similarities between it and Multiple Sclerosis. We have continued to distribute these all over the United Kingdom just as we have done in the previous year. This is something we will continue to do in years to come.
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## **Cadasil Support UK Trustees' report continued ..**
## **Website**
We have continued to keep the website up to date and so it has a wealth of vital information for both those with families and / or carers. More importantly it leads people to our Facebook group where they can seek support and advice from ‘real people’ who know what they are talking about and going through and more importantly, support each other.
## **Risk Management**
The charity does not employ staff and does not own or lease premises which makes the financial risk very low however funding and fundraising continues to be a priority to ensure the charity continues to deliver activities as set out in the constitution.
## **Financial Review**
The statement of financial activities provides a summary of our income and expenditure from 1[st] July 2020 to 30[th] June 2021.
The balance sheets present a healthy picture for the second year with a surplus on the year of £4,789.
## **Financial Outlook**
The board continues to aim to increase current levels of unrestricted income
## **Future Plans**
The charity will continue to review its policies and practices in the next financial year. Opportunities for us to design, print and promote leaflets on Cadasil will be explored in the hope we can place them in hospitals and GP’s across the UK. Cadasil Support will be looking to develop robust and fit for purpose policies and procedures to ensure the governance of the charity is strengthened and continues to be successful.
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## **Cadasil Support UK Statement of Financial Activities For the year ended 30 June 2021**
||||**Total**|**Total**|
|---|---|---|---|---|
|||**Unrest'd**|**Funds**|**Funds**|
|||**Funds**|**2021**|**2020**|
|||**£**|**£**|**£**|
|**Income and endowments from:**|||||
|Donations and Legacies||6,463|6,463|4,618|
|||**––––––**|**––––––**|**––––––**|
|**Total income and endowments**||6,463|6,463|4,618|
|||**––––––**|**––––––**|**––––––**|
|**Expenditure on:**|||||
|Costs incurred|Note 8|5,378|5,378|3,633|
|||**––––––**|**––––––**|**––––––**|
|**Total resources expended**||5,378|5,378|3,633|
|||**––––––**|**––––––**|**––––––**|
|**Net movement in funds**||1,085|1,085|985|
|**Total funds brought forward**||£3,704|£ 3,704|2,717|
|||**––––––**|**––––––**|**––––––**|
|**Total funds carried forward**||£ 4,789|£ 4,789|£ 3,704|
|||**––––––**|**––––––**|**––––––**|
All income and expenditure derive from continuing activities.
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**Cadasil Support UK Balance sheet as at 30th June 2021**
|||**2021**|||**2020**||
|---|---|---|---|---|---|---|
||**£**||**£**|**£**||**£**|
|**Current assets**|||||||
|Bank Accounts|5,040|||3,954|||
|**Liabilities**|||||||
|Accruals and deferred income|(251)|||(250)|||
|**Net current assets**|||4,789|||3,704|
|||**––––––**|||**––––––**||
|**Total assets less current liabilities**|||4,789|||3,704|
|||**––––––**|||**––––––**||
|**Net assets**||£|4,789||£|3,704|
|||**––––––**|||**––––––**||
|**Capital funds**|||||||
|Unrestricted funds|||4,789|||3,704|
|||**––––––**|||**––––––**||
|**Total funds**||£|4,789||£|3,704|
|||**––––––**|||**––––––**||
## **Approval of the accounts**
The annual report and accounts were approved at a meeting of the Trustees held on 1 April 2022
_Karen Ann Carter_
Karen Ann Carter
Trustee
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**Cadasil Support UK Notes to the accounts For the year ended 30 June 2021**
## **1 Accounting Policies**
## **a Basis of accounting**
The financial statements have been prepared under the historical cost convention and in accordance with the Statement of Recommended Practice, Accounting and Reporting by Charities (SORP 2000).
## **b Income**
Donations and legacies are accounted for when received by the charity. Other income is accounted for on an accruals basis as far as is prudent to do so.
## **c Grants**
Revenue grants are recognised in the Statement of Financial Activities on receipt, subject to any required conditions being met or services being provided. Capital grants are recognised on receipt in the Statement of Financial Activities. This policy has been adopted to give a true and fair view as recommended by the SORP.
## **d Tangible Fixed Assets**
Tangible fixed assets are capitalised if they can be used for more than one year and cost at least £250.
Expenditure on charitable activities includes the purchase of microchip scanning equipment. In the opinion of the trustees, this equipment has limited useful life & a policy of full write off of the purchase cost in the year of acquisition has been adopted.
## **2 Fund accounting**
Funds held by the charity are either:
## **Unrestricted general funds**
These are funds which can be used in accordance with the charitable objects at the discretion of the trustees.
## **Restricted funds**
These are funds that can only be used for particular restricted purposes within the objects of the charity. Restrictions arise when specified by the donor or when funds are raised for particular restricted purposes.
## **Designated funds**
These are funds set aside by the trustees out of unrestricted general funds for specific future purposes or projects.
Further explanation of the nature and purpose of each fund is included in the notes to the accounts.
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## **Cadasil Support UK Notes to the accounts continued For the year ended 30 June 2021**
|**3 Debtors and prepayments**
Debtors
Prepayments
**4 Cash at bank and in hand**
Cash at bank and in hand
**5 Creditors and accruals**
Creditors
Accruals
Deferred income|2021
£
-
-|
|---|---|
||-|
||2020
£
5,040|
||5,040|
||2021
£
-
251
-|
||251|
## **6 Trustee remuneration and expenses**
No trustees received any remuneration or expenses during the accounting period.
## **7 Related party transactions**
There were no related party transactions to report during the accounting period.
## **8 Expenditure on raising funds**
|Donation to Addenbrookes
Professional fees
Web hosting fees
Leaflets and promotional
Postage and stationery
Accountancy
|**2021**
5,000
-
124
-
4
250
**––––––**
5,378
**––––––**
|**2020**
3,000
-
94
80
209
250
**––––––**
3,633
**––––––**|
|---|---|---|
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