HEAD and NECK CANCER UK
Charity number: 1175181
HANCUK- Annual Report 2020-21
1[st] October 2020- 30[th] September 2021
Restricted activities due to Covid and related issues
Due to the constraints imposed by HM Government in relation to the Covid 19 pandemic, coupled with the ongoing restrictions placed on visitors by Hospitals and Medical centres throughout the UK, the charity has been unable to continue their valued peer project with current in-patients. Nevertheless, the Trustees have participated in a number of projects designed to improve the outcomes for people suffering from Head and Neck Cancer. The Trustees held two Trustee meetings and created a council with wider input from Head and Neck Cancer survivors and Associated Health Professionals. The latter group met on two occasions during the year in question. All meetings were held online using the zoom platform.
1. Advocacy roles and involvement in projects
Lymphatic mapping of Oropharyngeal Cancer – UCL (University College of London) Consultee (Patient Expert) – Nivolumab- NICE (National Institute for Health and Care Excellence)
Public Involvement Improvements – NICE
Head and Neck Timed Pathway group – NHS (National Health Service) Head and Neck Specification Review – NHS
Co-applicant- public involvement -EVEREST project- redesigning referral pathway – Royal Marsden – NIHR (National Institute of Health Research)
Genomic Drivers & advanced Cancers- Bayer (pharmaceutical company)
2. Raising Awareness
The charity’s much acclaimed website has been updated and improved with the addition of further patient stories and videos relating to Head and Neck Cancer. Additionally, a number of patients and carers have been assisted by e-mail correspondence and telephone calls; or signposted to specialist support groups.
Trustees have presented via video/zoom/teams to various groups across the European Union.
3. Links with other groups
A new link with H&NC Merseyside & Cheshire support and research group was created but the link with the Plymouth- based group was lost as that group was dissolved. Initial contact was made with a series of other support groups with a view towards more coordination amongst the Head and Neck Cancer community.
4. Fundraising
Supporters have raised £4615 by participating in a number of events and projects around the UK
A very generous supplier has donated printed tee shirts for supporters participating in events around the country.
A number of donations have been received in memory of patients who have passed away.
5. Future events
The Business Plan which was due for review in October 2020 has been examined and updated. The anticipated outcomes within the original plan have been reviewed and most of the original Aims within the plan have been achieved. Some of the original Aims have been deferred or updated.
The Trustees intend to expand the geographical base of the charity by inviting a series of interested parties from around the country to participate in meetings (which are currently held online) to help formulate policy and future strategy.
The charity’s social media presence is currently poor due to a lack of volunteers with sufficient time, expertise and interest. It is hoped to improve this aspect drastically within the very near future.
As Covid constraints are relaxed, it is hoped that the Trustees may participate in face-to-face lectures and presentations.
HANCUK – Accounts to 30-9-2021
| Income Donations TOTAL Liabilities Opening Balance Add surplus for year TOTAL |
Income & Expenditure Account £Expenditure £ P.O.Box subscription 360.00 4615.12 Website 120.00 4615.12 TOTAL 480.00 Surplus on year 4135.12 4615.12 BALANCE SHEET £ Assets £ 15752.27 Cash at Bank 19887.39 4135.12 19887.39 TOTAL 19887.39 |
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