| bjective | s | and A | ctivities | |
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| reference | ||||
| Introduction | Donnie Berenblut was born on Thursday 20 April 2017. |
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| He had Trisomy 18and was not expected to live more | ||||
| than a few days or weeks. ln the end, he lived 142 |
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| days, spending the entirety of his life in neonatal |
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| intensive care at University College Hospital, London. |
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| The care Donnie received was, at times, | ||||
| ground-breaking, creative, collaborative, |
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| compassionate, respectful and outstanding, And yet life |
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| was really very hard for his family, who spent long | ||||
| hours on the unit and faced uncertainty and worry at all |
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| times of day and night. Other families with babies on |
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| the neonatal unit spoke of arduous journeys, stress and |
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| financial sacrifices. | ||||
| Donnie's Fund seeks to address some ofthese |
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| challenges: to improve the lives of families with babies |
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| in neonatal intensive care through projects that cannot |
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| be paid for from NHS budgets. | ||||
| The charity was founded in 2017 and this 2021 report |
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| is the charity's fourth Annual Report. |
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| Summary ofthe purposes of the charity as set out in its governing document |
Para 1.17 | To promote and protect good health for the public benefit by: 1.providing additional resources, equipment and training in University College Hospitals, London and other hospitals, hospices and medical facilities in England; 2. To facilitate medical research carried out in |
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| England and internationally; and 3.To create resources |
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| and raise awareness for the furtherance of |
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| understanding medical ethics. |
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| Summary ofthe main activities in |
Para 1,17 and 1.19 |
Web-based camera system | ||
| relation to those purposes for the public benefit, in articular the |
In 2018,the Trustees agreed to fund a statewf-the-art camera system to allow families to see their babies when away from the neonatal unit. There is evidence from the United States where such s stems are |
| activities, projects | or | widespread that this alleviates the logistical and |
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| services identified | in | emotional challenges that families face when their baby |
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| the accounts. | is on a neonatal unit. |
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| The first shipment offour neonatal cameras arrived |
in | |||
| the UK in 2019,the result ofsuccessfully negotiating |
a | |||
| cast-free trial period with the supplier, Angel Eye, with |
a | |||
| small number ofcameras. | ||||
| We worked very hard in collaboration with the neonatal |
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| clinicians on logistics, governance, engagement, |
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| training and feedback processes. Due to a combination |
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| offactors, notably a hospital-wide focus on the |
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| installation ofa new electronic patient record system, |
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| the trial finally began in January 2620. |
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| Feedback from the staff and families was that the trial | ||||
| was exceptionally successful in demonstrating a |
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| significant positive impact on families without unduly |
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| impacting on staff. We received moving feedback from some families who were fortunate enough to benefit |
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| from the four trial cameras, which remained operational |
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| throug hout 2020. | ||||
| We finalised our contract with the supplier, the |
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| additional 28 cameras were delivered and all the IT |
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| back-end work was concluded early in 2020. |
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| Unfortunately, the Covid-19 pandemic subsequently |
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| placed heavy demands on the entire hospital, both |
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| clinical and technical, which prevented the additional |
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| cameras going live until 1 November 2020. |
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| The Trustees negotiated with the cameras' supplier, |
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| who agreed that our billing period should begin from |
1 | |||
| November 2020. The 2021 accounts therefore include |
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| the first year's cost for the camera system. | ||||
| Charitable projects: Other |
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| Donnie's Fund pre-paid for a year's worth ofmassage |
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| therapy sessions for parents in 2020. Unfortunately, |
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| with the onset of Covid, the service had to be | ||||
| suspended. Sessions restarted on 10 May 2021.The |
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| relevant expenditure was therefore in the 2020 |
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| accounts. | ||||
| Even after resumption, there were several weeks when |
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| the practitioner could not attend due to self-isolation |
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| etc. Nonetheless, across what was left of the year, |
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| parents received 134massages. |
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| Among the many warm pieces offeedback received were the following, from parents, each ofwhom spent more than six months on the neonatal unit ("NNU"): |
| "Ithas been life changing. A real change from the |
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| madness of having a child on the NNU. Thank you! |
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| "These treatments have made a huge difference to my |
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| wellbeing on the unit, and am very grateful for them. |
I | ||
| hope it continues to help other parents too. Thank you |
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| so much!". | |||
| Statement | The Trustees confirm that they have referred to the | ||
| confirming whether the trustees have |
guidance issued by the Charity Commission on public benefit. This guidance is on hand whenever the |
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| had regard to the guidance issued by the Charity Commission on |
Trustees meet and is referred to in particular when reviewing the organisation's aims and objectives and planning future activities and in particular when decisions regarding spend are made. |
in | |
| ublic benefit |
| Additional | Additional | information | information | (optional) | (optional) | ||
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| You ma | choose to indude | further | statements where relevant about: |
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| soRp | |||||||
| reference | |||||||
| Donnie's Fund has no paid staff, and everything it |
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| Contribution made by volunteers |
Para 1.38 | achieves is thanks to the efforts of volunteers. We are very grateful to the volunteers who assist us and provide their skills and expertise on a pro-bono basis, including maintaining our website, and our community |
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| fundraisers. | |||||||
| In total, Donnie's Fund raised just over E4,000 in the |
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| year. This was significantly down on previous years |
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| Performance | of | (approximately f40,000 in 2020). |
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| fundraising activities against objectives set |
Para 1.41 | The reduced income was the result of a considered approach by the Trustees, who took the view that |
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| active fundraising should not be pursued. This position |
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| was set at the 2020 Annual General Meeting, as |
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| reported last year, and confirmed during 2021. |
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| This was for two main reasons: | |||||||
| ~ Donnie's Fund has established a reputation |
for | ||||||
| successful comedy events as its prime |
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| mechanism for fundraising. The last such event |
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| took place just before Covid hit the UK in 2020. |
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| With Covid rules fluctuating throughout 2021, no |
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| similar event could be planned. | |||||||
| ~ successful fundraising in previous years, along |
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| with the delayed start of billing for the camera |
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| system, meant that the charity had cash in hand |
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| and no driving need for active fundraising. | |||||||
| Therefore, no income target was set for the year. |
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| We remain very grateful to our donors and all funds |
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| raised are carefully used in furtherance ofour |
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| charitable objectives. |
| We would particularly like to pay tribute to the late |
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| Rosemary Beckett, a former midwife, who heard ofthe |
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| work ofour charity, was moved by it, and chose to | |||||
| leave a legacy to Donnie's Fund in her will. Itwas |
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| extremely kind of her to think ofus. |
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| chieve | men | ts | and Performance | ||
| SORP | |||||
| reference | |||||
| Web-based camera system |
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| We have received the following data related to the |
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| Summary ofthe main achievements |
Para 1.20 | usage of the camera system in 2021: |
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| ofthe charity, identifying the difference the |
Number offamilies signed up in 2021; 325 Number oftimes a camera was accessed by a family |
in | |||
| charity's | work | has | 2021:4,107 | ||
| made to | the | Number of minutes cameras were viewed by families |
in | ||
| circumstances | of its | 2021:12,321 | |||
| beneficiaries | and | ||||
| any wider benefits society as a whole. |
to | Therefore, each of the 32 cameras was used by approximately 10families during the course ofthe year, |
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| each family used their camera approximately 12times, |
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| and each viewing session was 3 minutes, on average. |
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| The family with the most camera views in 2021 viewed |
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| their baby 199times in the three months that they |
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| benefited from our webcam system. |
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| We also received moving testimonials about the impact |
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| of the cameras, in the year 2021.Three ofthese |
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| comments are included here, verbatim: |
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| "It's has been amazing to have access to the camera |
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| especially for the extended family, who can't meet our |
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| baby right now including my family who live in another |
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| country. It also helped me to establish pumping at the |
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| beginning of our journey. Thank you!" |
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| "This is fantastic. Really helped with my own mental |
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| health as was struggling going through big surgery and still not being able to see my baby. " |
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| "My husband and I try to be there with our son 24hours |
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| but there are occasions due to childcare for our eldest | |||||
| that we cannot and having the camera to know he's not crying is a relief. " |
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| Parents were surveyed to ask them a raft ofquestions |
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| about their attitudes to the cameras. Among the |
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| responses, 67.5%said having access "greatly reduces | |||||
| my anxiety and stress", 100%felt that the system gave them "a closer connection" to their bab and 100% |
| R | eview ofthe | eview ofthe | eview ofthe | eview ofthe | eview ofthe | eview ofthe | Para 1,21 | During 2020, Donnie's Fund received a total income |
of | ||||
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| ch | arity's financial | E4,097.56. Fundraising costs were zero. |
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| po th sition at e period |
the | end | of | Qf total expenditure off24, 853.39, the vast majority was on charitable activities, with f24,178spent on the |
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| cameras project. Donnie's Fund ended 2020 with |
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| F92,937.95 in funds. | |||||||||||||
| At the 2021 Annual General Meeting, the Trustees |
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| reviewed the financial position and opted to continue |
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| the approach set in 2020 to hold back from significant | |||||||||||||
| fundraising for the present. |
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| At the end of2021, the charity therefore remained |
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| comfortably within the parameters ofthe reserves policy |
',see below), but the policy will need to be | ||||||||||||
| reviewed as part ofthe thinking about the overall |
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| strategy of the charity. |
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| Statement | explaining | Para 1.22 | The Trustees have in the past agreed to work towards; |
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| the policy for holding reserves stating why they are held |
~ Holding sufficient funds to guarantee the continued funding of the camera project for three financial years. |
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| ~ holding reserves off10,000to fund shortfalls |
in | ||||||||||||
| income when income does not reach expected |
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| levels. | |||||||||||||
| The remaining general funds are held in an accessible |
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| current account as unrestricted funds which may be |
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| used generally to further the Donnie's Fund objectives. |
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| The Trustees will assess the need for investment |
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| periodically, including at the AGM. Any funds invested |
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| will be in schemes marketed as 'low risk'. |
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| Amount | of | reserves | Para 1.22 | Our reserves at 31 December 2021 were f92,937.95. | |||||||||
| held | |||||||||||||
| Reasons for | holding | Para 1.22 | n/a | ||||||||||
| zero reserves | |||||||||||||
| Details | of | fund | Para 124 | n/a | |||||||||
| materiall | in | deficit | |||||||||||
| Explanation | ofany | Para 1.23 | n/a | ||||||||||
| uncertainties | about | ||||||||||||
| the charity | |||||||||||||
| continuing | as | a | |||||||||||
| oln | con | earn |
| tructure, | Governance | and Mana | gement | |||
|---|---|---|---|---|---|---|
| Description | ofcharity's | |||||
| trusts: | ||||||
| Type ofgoverning document |
Para 1.25 | Constitution | ||||
| How is the | charity | Para 1.25 | CIO | |||
| constituted? | ||||||
| Trustee selection methods | Para 1,25 | Trustees were | appointed | to four-year | terms | |
| including details of any constitutional provisions e.g, |
at the inception of the charity. Methods selection ofreplacement Trustees are |
for to be |
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| election to | post or name of | decided. | ||||
| any person | or body entitled | |||||
| to appoint | one or more | |||||
| trustees |
| eference and | Administ | rative |
detai | ls | |
|---|---|---|---|---|---|
| Chari name |
Donnie's | Fund | |||
| Other name the charit uses |
n/a | ||||
| R istered chari |
number | 1174829 | |||
| Charity's principal |
address | 58 Broadfieids | Ave, Edgware, | Middx HA8 8SW |
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