About Kawasaki Disease
About Societi Foundation
Our activities - awareness raising
Our activities - clinical research
Our activities - clinical supervision
Our activities - support for UK families
Financial review
Structure, governance & management
Independent examiner’s statement
Statement of financial activities
Balance sheet
Societi Foundation Trustees Annual Report & Accounts 1 January - 31 December 2024 Registered charity number 1173755
Notes to the financial statements
Detailed statement of financial activities
About Kawasaki Disease
Societi Foundation Annual Report & Accounts January - December 2024
If a child has a PERSISTENT FEVER and two or more of these symptoms THINK KAWASAKI DISEASE Rash Cracked lips/ Bloodshot Swollen ‘strawberry’ tongue eyes glands
----- Start of picture text -----
Persistent Rash
fever
----- End of picture text -----
Bloodshot Swollen Swollen eyes glands fingers/toes
Cases of Kawasaki Disease are increasing in the UK and worldwide. Each year, there are now up to 2,000 hospital admissions for Kawasaki Disease in the UK and this figure continues to rise .
About Kawasaki Disease
Kawasaki Disease is the leading cause of acquired heart disease in UK children. It presents with a range of symptoms. The most characteristic is a persistently high fever lasting five days or more, along with two or more of the following: rash , bloodshot eyes , “strawberry” tongue , cracked or dry lips , redness of the fingers and toes and swollen glands in the neck . Children with Kawasaki Disease are also characteristically irritable .
Research shows that among these cases, 28% of children will suffer some level of heart damage , while 19% will go on to develop serious, lasting coronary artery aneurysms , placing them at much greater risk of major cardiac events or sudden death later in life. Without treatment, up to 3% of affected children may die .
Symptoms may appear in sequence rather than all at once and not every child will show the same signs. Very young babies often show the fewest symptoms , yet they are at the greatest risk. 39% of babies under one year of age will suffer serious heart damage .
Despite being more common than some forms of bacterial meningitis and a more frequent cause of hospitalisation than measles, Kawasaki Disease remains poorly recognised . Low awareness often leads to initial misdiagnosis and delayed treatment , which in turn greatly increases the risk of avoidable, lifelong heart damage.
Not every child with a persistent fever has Kawasaki Disease. However, early diagnosis and prompt treatment are vital, as they significantly reduce the risk of lifelong heart damage . We need both parents and doctors to THINK Kawasaki Disease when faced with a child who has an unexplained persistent fever. This is a serious illness that can damage the coronary arteries - the blood vessels supplying the heart - and cause acquired heart disease in children . Alarmingly, awareness of Kawasaki Disease remains low among the public, families and healthcare professionals.
Outcomes for children improve significantly when Kawasaki Disease is diagnosed and treated quickly. Although the exact cause of the disease remains unknown, raising awareness among parents, carers, the general public, GPs, emergency medicine and paediatric doctors is our best chance to protect children’s hearts .
Greater recognition will lead to earlier diagnosis, prompt treatment and reduced rates of heart damage in children .
About Societi Foundation
Our activities - awareness raising
Our activities - clinical research
Our activities - clinical supervision
Our activities - support for UK families
Financial review
Structure, governance & management
Independent examiner’s statement
Statement of financial activities
Balance sheet
Notes to the financial statements
Detailed statement of financial activities
Societi Foundation - Annual Report & Accounts January 2024 - December 2024
Page 2
About Kawasaki Disease
Societi Foundation Annual Report & Accounts January - December 2024
About Societi Foundation
Established in 2015, Societi is the UK Foundation for Kawasaki Disease. We are a small organisation with a dedicated staff team, supported by an incredible group of volunteers. Our Founder, Rachael McCormack, serves as volunteer CEO and sits on our Board of Trustees, chaired by Professor Robert Tulloh, one of the UK’s leading Kawasaki Disease experts. Our Scientific Advisory Board, comprising nine senior UK clinicians, provides multi-disciplinary advice, ensuring our work is driven by the highest level of Kawasaki Disease knowledge and expertise.
Welcome from our Chairman
contribution of our supporters, funders and partners who make our work possible and amplify our voice so that we can get Kawasaki Disease known more quickly.
Thank you for taking the time to read the Trustees Annual Report. This document, prepared for submission to the Charity Commission, also helps supporters, partners, funders and stakeholders understand more »: Qa about Societi, what is needed to make a difference for those affected by Kawasaki Disease and why our work is so important.
Limited knowledge and misunderstanding around Kawasaki Disease have historically restricted research, constrained clinical resources and left families without the long-term support they need. Societi’s work to enable research, advocate for policy change and build knowledge among clinicians is making an impact. Awareness of incidence and urgency is growing among ‘front-line’ clinicians so that Kawasaki Disease can increasingly be considered as a possible diagnosis at an early stage in any child with persistent fever.
In 2024, Societi undertook an enormous amount of work to change the landscape of Kawasaki Disease in the UK. Two major awareness campaigns, strengthening a nationwide children’s hospital partnership network, thanks to the crucial support of the Randal Foundation, attendance at medical conferences, release of new awareness materials, development of educational resources for clinicians and direct support for families; these are just some of the highlights.
There is still much to do, but with the extraordinary support we received in 2024, we are confident we can continue improving outcomes for children affected by Kawasaki Disease.
Professor Robert Tulloh, Chairman, Societi Foundation
For a small organisation with a small staff team, this impactful output is testament to the phenomenal
A word from our Founder and Volunteer CEO
training and patient care remain the milestones I set right from the start of our charity in 2015 and against which we measure our achievements today.
We can all be so proud of the journey we are on together and the places we’ve reached already. Families now have trusted information; more doctors are equipped with the knowledge to give the best possible care; there’s greater understanding of what “good” looks like in patient care; and UK research is underway to build knowledge for the future. And perhaps most importantly, we now have a huge community who care and who are the incredible power behind our accelerating pace as we help, educate, train, support and care every year.
I’m so very proud of just how much we’ve achieved this year and how much our community “| é; vel has grown. It’s my privilege to be working with such an Luar’, \ amazing network of funders, supporters, families, clinicians, partners and policy makers. Thank you for being there, for standing with us, for providing so much support in so many ways and for helping us push forward 2024 not in inches, but in miles, for Kawasaki Disease awareness.
Thank you to all who are part of our exceptional team for supporting our work, for helping us deliver our mission and for standing with Societi Foundation to get Kawasaki Disease known.
That’s miles in terms of support for families facing Kawasaki Disease; miles more training and awareness with doctors and healthcare professionals; miles in impact from research and understanding this awful disease; and miles forward in public awareness, crucially, building this for parents and all those who care for children.
Rachael McCormack, Societi Founder and Volunteer CEO
Our priorities of awareness, family support, clinical
About Societi Foundation
Our activities - awareness raising
Our activities - clinical research
Our activities - clinical supervision
Our activities - support for UK families
Financial review
Structure, governance & management
Independent examiner’s statement
Statement of financial activities
Balance sheet
Notes to the financial statements
Detailed statement of financial activities
Societi Foundation - Annual Report & Accounts January 2024 - December 2024
Page 3
About Kawasaki Disease
Societi Foundation Annual Report & Accounts January - December 2024
Our mission and purpose:
Our mission - To ensure that 69 million people - the entire UK population knows Kawasaki Disease .
Our purpose - To protect children’s hearts from Kawasaki Disease by improving diagnosis and treatment times in the UK.
Our objectives and activities:
-
The advancement of education for the public benefit into the causes, detection and treatment of Kawasaki disease, by such charitable means as the Trustees shall from time to time determine.
-
The promotion of research into the prevention, diagnosis, causes and treatment of Kawasaki disease by such charitable means as the Trustees shall from time to time determine.
Our values - priority pace partnership
We act We forge strong and quickly with Partnership lasting, partnerships a momentum with organisations that comes who share our from our determination motivation to to transform the succeed f i p environment around Kawasaki Disease.
We work with others to enable them to recognise Kawasaki Disease as a priority
About Societi Foundation
Our activities - awareness raising
Our activities - clinical research
Our activities - clinical supervision
Our activities - support for UK families
Financial review
Structure, governance & management
Our activity areas
Awareness raising
Raising awareness of Kawasaki Disease is our top priority. We work throughout the year to increase understanding of the disease among the public, healthcare professionals and key stakeholders. Our campaigns and partnerships amplify our messages, helping ensure Kawasaki Disease is recognised quickly and accurately.
Clinical research
We support urgently needed research and the sharing of knowledge, helping to influence funders and promote coordination across the field. Societi plays a central role in driving research that improves understanding of Kawasaki Disease and its treatment, both in the UK and internationally.
Clinical supervision
Independent examiner’s statement
Statement of financial activities
Balance sheet
We work to shape policy and clinical practice, collaborating with healthcare partners to improve care for children with Kawasaki Disease. Our work supports the development of best practice guidance, enhances clinician knowledge and helps ensure consistent, high-quality care across healthcare settings.
Support for UK families
Providing reliable information and support is essential for families affected by Kawasaki Disease. We develop accessible, trusted resources for families and patients at every stage, from diagnosis through to adolescence and adult life, ensuring they have the guidance and support they need.
Notes to the financial statements
Detailed statement of financial activities
Societi Foundation - Annual Report & Accounts January 2024 - December 2024
Page 4
About Kawasaki Disease
Societi Foundation Annual Report & Accounts January - December 2024
Our structure
----- Start of picture text -----
Board of Trustees Kawasaki Disease UK
SS [———<—] = = Steering Group
(Societi chair)
Societi Scientific
i!
Advisory Board jl
jl
jl
; jl
Leadership and
jl
Operational Activ it ies a me oe jl
Key Partnerships
Societi Foundation core
volunteers & staff team
Charitable Foundation
INHS| \
RX@_ Royal Co l ege of i Outdoor
. Genardl Bie tttionsis
oanceal ( FEDERATIONFART
I bo sBPSUs
Improvemen “poo oe
og “ecnilaren
Volunteers & UK Health NICE +See
Fundraisers hee Naan Coe Beare d b
Imperial College Healthcare NHS Ormond
Societi beneficiaries and NHS Trust HiSteet
supporters INHS| lospi
University Hospitals of Leicester esiy Fredite
Children’s Hospital
4 , / ¢ | UCL. University HospitalsNHS FoundationBristolTrust
Key:
Key links
Management
& information
flows
----- End of picture text -----
About Societi Foundation Our activities - awareness raising
Our activities - clinical research Our activities - clinical supervision
Our activities - support for UK families
Financial review Structure, governance & management
Independent examiner’s statement
Statement of financial activities Balance sheet
Notes to the financial statements
Detailed statement of financial activities
Societi Foundation - Annual Report & Accounts January 2024 - December 2024
Page 5
About Kawasaki Disease
Societi Foundation Annual Report & Accounts January - December 2024
Our Trustee Board
During 2024, Societi was governed and supported by six trustee Board Members, Professor Robert Tulloh (Chair), Ms Rachael McCormack, Professor Paul Brogan, Mr Roger Greenwood, Mr Gerry Higgins and Professor Michael Danson. Together our trustees bring together a strong combination of skills and expertise to drive and direct the work of Societi Foundation.
Professor Robert Tulloh (Chair)
Professor Michael Danson
Rob, MA DM FRCPCH Honorary Professor of Congenital Cardiology and pulmonary hypertension (retired), is an internationally recognised expert in Kawasaki Disease. Rob led the largest Kawasaki Disease clinic in the UK and the only Adult Kawasaki Disease clinic. He is an active researcher and teacher and has supported Societi since before its formal establishment. Today, as a Trustee, Rob brings a wealth of expert clinical knowledge and broader oversight for our organisation.
Professor Michael Danson is Professor Emeritus of Enterprise Policy at Heriot-Watt University. Mike is a long-term supporter of Societi, giving much welcome advice and support, especially in the area of data analysis. As Trustee, Mike has been able to offer the organisation support across a broad range of topics and his in-depth knowledge and experience have been an invaluable addition to the Board.
Gerry Higgins (resigned 7.6.2024)
Gerry is Managing Director of the Social Enterprise World Forum CIC – a fast growing global organisation which he founded and leads, proactively enabling the development of a global social impact economy. With a BA in Education and a MSc in Business Studies and decades of experience working in, establishing and supporting third sector organisations, Gerry brings in depth expertise in recognising and addressing the challenges of third sector organisational sustainability and leadership to Societi.
Rachael McCormack FCMI FInstLM
Rachael is the Founder of Societi Foundation and was inspired to create our charity after her family was affected by Kawasaki Disease. She’d found support lacking and facts few and far between and so undertook to create our charity to support other affected families. Rachael has experience across the third, public and private sectors and leads a consultancy firm she established in 2003. Rachael holds post graduate qualifications in management, is an active researcher and together with our Board, sets the tempo for our growing organisation.
Our Board is also supported by:
Paul Colcomb, Independent Examiner
Paul is a Partner at Wright Vigar, the retained financial specialists and accountants for Societi Foundation – bringing extensive expertise in charitable organisation structures and financial matters. Paul supports both the team and the Board in financial reporting, annual reporting and Charity governance requirements.
Professor Paul Brogan
Paul is Professor of Vasculitis and Honorary Consultant Paediatric Rheumatologist at Great Ormond Street Hospital (GOSH). An expert in Kawasaki Disease, Paul leads a successful clinical and academic programme of work dedicated to the developing field of paediatric vasculitis and auto-inflammatory diseases, including Kawasaki Disease. He is also Chair of the Vasculitis Consortium and Clinical Lead for Auto-inflammatory Disease at GOSH – and contributes to both the clinical and strategic trajectory of our charity.
Report of the Trustees
The trustees present their report with the financial statements of our charity for the year ended 31 December 2024. The trustees have adopted the provisions of Accounting and Reporting by Charities: Statement of Recommended Practice applicable to charities preparing their accounts in accordance with the Financial Reporting Standard applicable in the UK and Republic of Ireland (FRS 102) (effective 1 January 2019)
Roger Greenwood FLI
Roger is a Landscape Architect and master planner by profession and has been a businessman throughout his career with diverse sector experience. He was the Chief Examiner for his industry professional body for seven years and has been mentor to a vast community of emerging professionals to support them as they developed their practice. He is also, most importantly, a parent of a child affected by Kawasaki Disease. This immensely valuable experience combination of experience and knowledge brings scrutiny, wide ranging skills and support to our charity.
Public benefit - In setting our objectives and planning our activities our Trustees have given careful consideration to the Charity Commission’s guidance on public benefit. In the pages which follow our delivery and impact during January 2024 - December 2024 is set out.
About Societi Foundation
Our activities - awareness raising
Our activities - clinical research
Our activities - clinical supervision
Our activities - support for UK families
Financial review
Structure, governance & management
Independent examiner’s statement
Statement of financial activities
Balance sheet
Notes to the financial statements
Detailed statement of financial activities
Societi Foundation - Annual Report & Accounts January 2024 - December 2024
Page 6
About Kawasaki Disease
Societi Foundation Annual Report & Accounts January - December 2024
Working with our partners
Collaboration is at the heart of everything we do. By working closely with partners and stakeholders, we can achieve shared goals, increase our impact and drive the step change urgently needed for Kawasaki Disease. Partnerships allow us to move further, faster and ultimately protect more children’s hearts.
We are deeply grateful to all our partners who supported Societi in 2024 - those who provided funding, shared information, offered expertise, or contributed in countless other ways to safeguard children affected by Kawasaki Disease. The scale and reach of our impact this year would not have been possible without their generosity and commitment.
A huge thank you to all our phenomenal partners. Your shared vision and support are essential in helping Societi get Kawasaki Disease known across the UK and beyond.
About Societi Foundation
Our activities - awareness raising
Our activities - clinical research
Our activities - clinical supervision
Our activities - support for UK families
Financial review
Structure, governance & management
Independent examiner’s statement
Statement of financial activities
Balance sheet
Notes to the financial statements
Detailed statement of financial activities
Societi Foundation - Annual Report & Accounts January 2024 - December 2024
Page 7
About Kawasaki Disease
Societi Foundation Annual Report & Accounts January - December 2024
Our future plans
Our commitment to tackling Kawasaki Disease, the leading cause of acquired heart disease in children in the UK remains steadfast. Our UK National Strategy, originally developed in 2016 and reviewed for 2021–2025, sets out ambitious targets and defines the key focus areas that guide our work.
Shortly after the establishment of Societi Foundation, we led the creation of the first ever UK strategy for Kawasaki Disease in 2016. This landmark document shaped the first five years of our work, helping us to build partnerships and drive meaningful change across the Kawasaki Disease landscape.
A cornerstone of our progress has been the Children’s Hospital Partnership Programme, generously funded by the Randal Foundation. This programme has delivered a transformative impact, strengthening our clinical networks, enabling information sharing, improving patient care and ultimately driving faster, more accurate diagnoses for children affected by Kawasaki Disease across the UK. Its success demonstrates the power of collaboration and the lasting benefits it brings to Societi Foundation’s mission.
As we move forward, supporting, strengthening and engaging with this powerful network will remain a priority. Its continued growth is vital to achieving our goals and will ensure benefit to children, families and healthcare teams alike.
The strategy was refreshed in 2021 to guide our work through to 2025. It serves as a foundation for collaboration, enabling us to engage with partners, explore shared opportunities and address the challenges we face collectively in improving outcomes for children affected by Kawasaki Disease.
- To read our National Strategy for 2021 2025, click here
About Societi Foundation
Our activities - awareness raising
Our activities - clinical research
Our activities - clinical supervision
Our activities - support for UK families
Financial review
Structure, governance & management
Independent examiner’s statement
Statement of financial activities
Balance sheet
Notes to the financial statements
Detailed statement of financial activities
Societi Foundation - Annual Report & Accounts January 2024 - December 2024
Page 8
About Kawasaki Disease
Societi Foundation Annual Report & Accounts January - December 2024
Awareness raising
Raising awareness of Kawasaki Disease is central to ensuring children receive timely diagnosis and treatment. Early recognition can prevent serious heart complications in affected children. Societi Foundation’s awareness raising work is designed not only to inform but to empower families, support healthcare professionals and ultimately protect children’s hearts.
One of our core activities is producing and disseminating accessible awareness raising and educational materials. Leaflets, infographics and online resources outline the key signs of Kawasaki Disease, explain the importance of early diagnosis and treatment. These resources are carefully designed to reach a broad audience (we need the whole of the UK to KNOW Kawasaki Disease) and are available in multiple formats to suit different needs. The impact of these resources is tangible: parents report feeling more confident recognising early symptoms and clinicians have more tools to support conversations with families. For children, this means faster access to treatment, reducing the risk of long-term heart damage.
Awareness is not just about spreading knowledge, it is about changing outcomes. Societi Foundation’s multifaceted approach ensures that Kawasaki Disease stays on the radar of everyone who matters in a child’s life, from families to healthcare professionals to community members. By focusing on impactful activities, measurable outcomes and meaningful support, we help children navigate Kawasaki Disease safely, while giving families the guidance and reassurance they need.
Our awareness campaigns
Societi runs two major awareness campaigns throughout the year: International Kawasaki Disease Awareness Day on 26 January and World Heart Day on 29 September. Both campaigns run throughout their respective months (and in the case of International Kawasaki Disease
Awareness Day this year, we ran our campaign for a full three months), highlighting Kawasaki Disease throughout the UK population. Our campaigns enable our supporters to raise awareness, they support and inform clinicians and they ensure the voices of children and their families are heard. We engage with media, collaborate with partners, accelerate our social media and drive awareness raising projects throughout these periods to really drive home the importance of KNOWING Kawasaki Disease and that it can help to protect children’s hearts.
International Kawasaki Disease Awareness Day
2024 was our biggest awareness campaign ever, so big that it formed part of a three-month national campaign, starting in January and concluding with our attendance at
the RCPCH conference at the end of March. Our campaign included the following:
-
Enabling our amazing supporters across the UK to raise awareness of Kawasaki Disease and raise funds for Societi. From televised darts to new clothing ranges - our supporters are just phenomenal and amplify our voice in ways we just couldn’t do alone.
-
Amplifying our social media, posting 50 times on 26 January alone. During the course of the three month campaign we put out 299 posts with our furthest reaching reel gaining more than 940,000 views.
-
Strengthening our Children’s Hospital Partnership Programme, generously funded by the Randal Charitable Foundation by increasing our network to include 68 UK hospitals, updating, refreshing and creating new resources to share with them.
-
Being incredibly privileged to once again have the support of Clear Channel (now Bauer Media). They generously donated advertising space, displaying our awareness raising messages for 12 days across their network of digital screens in 17 UK shopping centres, allowing millions of families to KNOW Kawasaki Disease, spot the signs and be able to advocate for their children.
Vv - Collaborating with Ava Mayfair to create a charity Frosted Rose wax melt. Ava Mayfair donated £1 - £3 for each purchase of a Societi collaboration product, me 4 ————— raising over £7,000 for Societi. They also posted our awareness raising TEMPERS wallet cards with every product they sent out over the campaign period - that’s tens of thousands of Kawasaki Disease pieces of information reaching households across the UK.
- Encouraging our supporters to contact their local monuments and landmarks, asking them to light up red for International Kawasaki Disease Awareness Day. Nineteen of the UK’s most well known landmarks and buildings showed their support - including the iconic Blackpool Tower - raising awareness in areas across the UK with a staggering total population of over 11.5 million.
About Societi Foundation
Our activities - awareness raising
Our activities - clinical research
Our activities - clinical supervision
Our activities - support for UK families
Financial review
Structure, governance & management
Independent examiner’s statement
Statement of financial activities
Balance sheet
Notes to the financial statements
Detailed statement of financial activities
Societi Foundation - Annual Report & Accounts January 2024 - December 2024
Page 9
About Kawasaki Disease
Societi Foundation Annual Report & Accounts January - December 2024
- Working with NHS Blood & Transplant to hold a wonderful parliamentary event to highlight plasma donation to MPs and how important it is to make medicines, such as IVIG, which is used to treat children with Kawasaki Disease.
Our three month long campaign culminated in our attendance at the RCPCH conference at the end of March. Generous funding from the Randal Foundation for our Children’s Hospital Partnership Programme allowed us to attend and enabled HUNDREDS of fabulous conversations with doctors. And, thanks supporter donations and fundraising, we were able to deliver a Kawasaki Disease symposium session - where we presented a patient and clinical perspective on Kawasaki Disease to a packed audience. So much was the interest in our session that it over-ran by 45 minutes!
Every year, our World Heart Day army of supporters and partners grows ever larger and stronger, amplifying our voice and getting Kawasaki Disease known to more and more people throughout the UK and beyond.
This year we delivered a campaign to support the implementation of our guidance for managing patients with long-term heart damage as a result of Kawasaki Disease. One in five children affected by Kawasaki Disease develop serious heart damage and require lifelong specialist follow up. With an estimated 20,000 children, young people and adults having been affected by Kawasaki Disease, there is an ever-growing group in the UK of people who need and deserve to be able to access the lifetime specialist care experts have set out as needed.
About Societi Foundation
Our activities - awareness raising
Our activities - clinical research
Our activities - clinical supervision
Our activities - support for UK families
Financial review
If you’d like to read more about our International Kawasaki Disease Awareness Day campaign, you can read our Impact Statement here.
World Heart Day
29 September - World Heart Day - is an annual campaign led by the World Heart Federation and is one of the biggest days in the Societi calendar. It’s a huge opportunity for us to raise awareness of Kawasaki Disease to a global audience and to deliver a campaign that WILL protect hearts affected by Kawasaki Disease.
Our supporters on social media made our World Heart Day campaign reach further than we could have imagined. Our first post shared on World Heart Day highlighted the symptoms of Kawasaki Disease. This post alone reached nearly 1 million social accounts - that’s a LOT of Kawasaki Disease awareness!
To help us achieve our aims, our campaign included contacting EVERY NHS Trust, Health Board and Integrated Care Board in the UK with important Kawasaki Disease guidance. We also created a statement which was sent to many media outlets and to our partners.
There was so much else going on too through the month of September to support our World Heart Day campaign. A collaboration with the Medical Lounge, Kawasaki Disease family stories, fundraiser videos, a brand new, furry #TeamSocieti member, a raffle, a creative competition, wear red days and coffee mornings - the list goes on!
If you’d like to read more about our World Heart Day campaign, you can read our Impact Statement here.
Structure, governance & management
Independent examiner’s statement
Statement of financial activities
Balance sheet
Notes to the financial statements
Detailed statement of financial activities
Societi Foundation - Annual Report & Accounts January 2024 - December 2024
Page 10
About Kawasaki Disease
Societi Foundation Annual Report & Accounts January - December 2024
Social media – public awareness
Outside of our major campaign periods, work to raise awareness among the public also continued throughout 2024. Audience numbers, follower counts and post reach showed steady growth across Instagram, Facebook, X (Twitter) and LinkedIn.
In 2024, our social media impact grew significantly. Our Facebook reach grew by 354% from 2023, our link clicks more than doubled and our content interactions more than tripled. Instagram reach rose to nearly 1.3 million people. We also gained followers across all our platforms, enabling us to share our awareness messages even more widely.
Social media remains a vital channel for raising awareness and building knowledge about Kawasaki Disease. As our online community grows, so too does our ability to achieve higher engagement and extend our reach, helping us to inform and support more people than ever before.
Maintaining and updating our website
Our website remains a vital hub for families, clinicians and the public, with regular updates ensuring information is current, accessible and reliable. We continue to provide tailored resources, including films and our parent and carers booklet.
With 18,000 users during 2024, the website remains our single greatest repository of information and must be maintained to a high standard. We also strengthen, maintain and update the technical performance of the site, ensuring our website remains a trusted, easy-to-use resource for all seeking information on Kawasaki Disease.
Supporting our supporters - #TeamSocieti and keeping them informed
support and enable them however we are able to. To keep #TeamSocieti informed and connected, we continue to produce regular newsletters, shared via social media, our website and direct email. These updates highlight our projects, activities and progress while celebrating the remarkable achievements of our supporters. Their commitment drives our work forward and by keeping in touch we ensure they know just how much their efforts matter in our combined efforts to protect children’s hearts.
Societi online shop
Sales continued to bring in revenue during 2024 with an ever-expanding selection of Societi branded merchandise available for purchase on the website. All items are brought forward mindful of their potential to raise awareness of Kawasaki Disease, for example, branded t-shirts, bags and hoodies.
Revealed to our supporters ahead of World Heart Day, in conjunction with a naming competition, was one of cutest ever additions to the shop - our Societi Bear. The winning name of Braveheart the Bear was selected and Braveheart was made available to supporters as a Christmas stockingfiller and also entertained us all on our social media platforms with his version of ‘Bear on a Chair’.
About Societi Foundation
Our activities - awareness raising
Our activities - clinical research
Our activities - clinical supervision
Our activities - support for UK families
Financial review
Structure, governance & management
Independent examiner’s statement
A new animation highlighting plasma donation
Working with the fantastic Animation Guys, Societi created a new animation to highlight the importance of donating plasma and IVIG in the treatment of Kawasaki Disease. The animation was created specifically for this event but has been useful for Societi in lots of other situations. The animation can be viewed here .
Statement of financial activities
Balance sheet
TeamSocieti is at the heart of everything we do.
Their support is essential in raising both vital funds and awareness of Kawasaki Disease across the UK. In 2024, families, many directly affected by Kawasaki Disease, organised inspiring fundraising and awareness events, giving their time and energy to help protect children’s hearts. From marathons and kilt walks to wolf runs and red beards, our supporters have taken on incredible challenges. We are grateful for every effort made by our supporters to raise awareness of Kawasaki Disease and we
Notes to the financial statements
Detailed statement of financial activities
Societi Foundation - Annual Report & Accounts January 2024 - December 2024
Page 11
About Kawasaki Disease
Societi Foundation Annual Report & Accounts January - December 2024
NHSBT blood donor event
Societi supported NHSBT in their blood donor event on 20 May, designed to encourage donors to consider donating plasma. Societi provided thank you cards to event attendees which highlighted the importance of donating blood plasma in the production of IVIG as the treatment for Kawasaki Disease.
The timeline for the project over two years includes engagement via attendance at events, distribution of information through existing and new social media and networking channels, the creation of new supporting information resources and a family film which will all highlight the importance of knowing Kawasaki Disease and the importance of blood and plasma donation specifically to Black heritage audiences.
As part of the project, our brand-new TEMPERS leafet which can be viewed here was developed and launched on social media in 2024. It has been distributed widely at conferences, to GP practices in areas of high diversity and with organisations working in Black heritage communities.
About Societi Foundation
Our activities - awareness raising
Our activities - clinical research
Our activities - clinical supervision
Our activities - support for UK families
Financial review
Structure, governance & management
NHSBT Community Grants Partnership
Funding from NHS Blood and Transplant (NHSBT) through their Community Grants Partnership has enabled Societi to launch a twoyear project aimed at increasing engagement with supporters of Blood and Transplant Black heritage. Black children are disproportionately affected by Kawasaki Disease, with rates around three times higher than average. Blood and plasma donations are vital for producing immunoglobulin, the main treatment for Kawasaki Disease. However, donation levels within Black African and Caribbean communities remain below average. Through this project, Societi started to work closely with NHSBT to raise awareness and engagement with these communities, helping to support both treatment availability and improved outcomes for children affected by Kawasaki Disease.
Independent examiner’s statement
Statement of financial activities
Balance sheet
Notes to the financial statements
Detailed statement of financial activities
Societi Foundation - Annual Report & Accounts January 2024 - December 2024
Page 12
Societi Foundation Annual Report & Accounts January - December 2024
About Kawasaki Disease
Enabling clinical research
Research is vital to understanding Kawasaki Disease, improving diagnosis, treatment and long-term care for affected children. Societi Foundation plays a central role in enabling and supporting research that can directly impact clinical practice and patient outcomes.
We identify funds and lever efforts building on enhanced awareness of need, to undertake and urgently advance critical research to understand, diagnose and manage Kawasaki Disease. Our work includes supporting and undertaking studies from tracking incidence and outcomes to enabling and supporting clinical trials exploring Kawasaki Disease treatments.
Societi is part of a community with unparalleled experience and knowledge of Kawasaki Disease. We collaborate closely with UK clinical experts, while also recognising that families with lived experience bring vital insight and understanding. By valuing and learning from this lived experience, we ensure our work is informed by the perspectives of those who know Kawasaki Disease firsthand.
Our research explores every available source of knowledge, from clinical evidence to family experience, to build the clearest, most complete picture of what is happening in the UK around Kawasaki Disease. This work directly supports faster diagnosis, leading to quicker treatment and better long-term health outcomes for children affected by Kawasaki Disease.
The impact of this research is tangible: it improves diagnostic pathways, informs treatment guidelines and ultimately leads to better care and outcomes for children. Families benefit too, as research helps clinicians offer evidence-based advice, anticipate potential complications and develop more effective support strategies.
By investing in and enabling research, Societi Foundation ensures that knowledge about Kawasaki Disease continues to grow.
Hospital episodes statistics (HES) data
Societi Foundation worked with NHS Digital who produce hospital episode statistic (HES) data to explore further analysis and breakdown of the data.
Colleagues at NHS Digital kindly provided a vast amount of HES data on Kawasaki Disease hospital admissions and patient numbers from 2006 – 2024. The data includes Kawasaki Disease as a primary and secondary diagnosis and has been broken down by ethnicity, age, gender. It also gives insights into primary and secondary diagnoses concurrent with a Kawasaki Disease diagnosis. This is an extremely rich dataset that Societi is using to inform our work. Findings from the dataset confirm the continued upward trend of Kawasaki Disease cases in the UK as can be seen from the below graph based on this HES data. Thanks to Societi Trustees, Professor Robert Tulloh and Professor Mike Danson for their help and advice in analysing the data which will be ongoing and will inform and reinforce Societi’s narrative going forward.
About Societi Foundation
Our activities - awareness raising
Our activities - clinical research
Our activities - clinical supervision
Our activities - support for UK families
Financial review
Structure, governance & management
Independent examiner’s statement
Statement of financial activities
Balance sheet
Notes to the financial statements
Detailed statement of financial activities
Societi Foundation - Annual Report & Accounts January 2024 - December 2024
Page 13
Societi Foundation Annual Report & Accounts January - December 2024
About Kawasaki Disease
KD-CAAP Trial
In 2016, Societi was the catalyst for a ¤5m panEuropean clinical trial investigating acute Kawasaki Disease treatments. Since that time, Societi have continued to be involved with the trial for which we were co-investigators and led a hugely successful programme of Patient and Public Information (PPI). Societi also supported the trial in other areas where ever possible including creating a clinician checklist to be used to guide recruitment discussions.
Recruitment for the KD-KAAP trial concluded and the study ended on 31 July 2024. The total number of participants included in the study was 103. In our support as PPI Lead, Societi were asked to help with collection of results where delays were causing issues.
We continued to support the KD-CAAP trial during 2024, keeping the dedicated webpages reviewed and updated and worked with the trial team to review the PPI plan.
Diagnosis Day survey
After an increase in followers, Societi re-released our Diagnosis Day poll and promoted to families across Facebook and Instagram. The poll was open to all families who had received a Kawasaki Disease diagnosis between March 2016 and April 2024.
This was the third release of the poll and it received 147 responses bringing the total to 231 responses across the 2018, 2022 and 2024 surveys. Analysis of the results has taken place and a paper is underway. A decision was made to open the survey for a final time to gain data on diagnoses up to the end of March 2025. This will provide nine complete years of data which can then be mapped to hospital episode statistics data (see above) from 2016 – 2025.
About Societi Foundation
Our activities - awareness raising
Our activities - clinical research
Our activities - clinical supervision
Our activities - support for UK families
Financial review
Structure, governance & management
Independent examiner’s statement
Statement of financial activities
Balance sheet
Notes to the financial statements
Detailed statement of financial activities
Societi Foundation - Annual Report & Accounts January 2024 - December 2024
Page 14
About Kawasaki Disease
Societi Foundation Annual Report & Accounts January - December 2024
Clinical supervision
Helping clinicians recognise and diagnose Kawasaki Disease quickly is crucial to protecting children’s hearts. Early diagnosis reduces the risk of serious complications and equipping healthcare professionals with knowledge and confidence is key to achieving this. Societi Foundation supports clinicians through education, networking and providing practical resources, ensuring children receive timely, life-saving care.
We provide targeted learning opportunities such as webinars, symposiums and case-based sessions, covering the presentation, diagnosis and treatment of Kawasaki Disease as well as providing patient perspective. Clinicians gain practical guidance on recognising early signs, differentiating it from other illnesses and understanding when urgent referral is needed. These sessions boost confidence and improve diagnostic accuracy, directly translating into faster, better care for children.
Societi also shapes professional networks, enabling clinicians to discuss complex cases, share experiences and seek advice. These connections encourage collaboration and consistent, high-quality care for all children, regardless of location.
Practical tools, including quick-reference guides, clinical pathways and evidence based updates, further support decision making in busy clinical environments. By making accurate information accessible when it matters most, clinicians can act promptly, reducing delays in treatment and protecting children’s hearts.
Supporting clinicians is ultimately about changing outcomes. By equipping healthcare professionals with the skills, resources and confidence they need, Societi Foundation ensures Kawasaki Disease is recognised quickly and treated effectively, providing reassurance to families and safeguarding the health and futures of affected children.
Throughout 2024, the Children’s Hospital Partnership Programme continued to make strong progress, with a total of 63 partner hospitals across the UK and 98 Kawasaki Disease Ambassadors recruited to our network by the end of the year.
We actively engaged with our partner hospitals by sharing mail-
outs and digital versions of newly developed information, educational materials and updates to existing resources. These resources were provided in a wide variety of formats, supporting both self-directed learning and teaching and catering to different learning preferences and styles.
RCPCH conference
In March, Societi attended the Royal College of Paediatrics and Child Health Conference which is an excellent opportunity to engage directly with the clinicians responsible for diagnosing and treating Kawasaki Disease in our children.
Across three busy days, we focused on sharing our resources, raising awareness and holding important conversations about Kawasaki Disease. The interest and engagement shown by clinicians towards our work and resources was extremely positive, reflecting the growing recognition of just how vital it is for doctors to know about and fully understand Kawasaki Disease, in order to protect children’s hearts.
Kawasaki Disease symposium
About Societi Foundation
Our activities - awareness raising
Our activities - clinical research
Our activities - clinical supervision
Our activities - support for UK families
Financial review
Structure, governance & management
Independent examiner’s statement
Children’s hospital partnership programme
Our Children’s Hospital Partnership Programme provided the structure to our clinical supervision work supporting clinician’s across the UK. In 2024, Societi entered the third and final year of a planned programme of activities funded by the Randal Charitable Foundation.
The funding across three years of the programme has given Societi the opportunity to fast track our work with clinicians and build a huge network clinical Kawasaki Disease Ambassadors across UK hospitals. The generous support provided by the Randal Charitable Foundation has allowed this phenomenal achievement which is providing vital awareness, training, information and knowledge in our hospitals and is saving and improving lives.
During the RCPCH Conference, Societi hosted a dedicated Kawasaki Disease Symposium, with speakers including Societi Founder, Rachael McCormack, Societi Chair, Professor Robert Tulloh and Societi Advisory Board member, Professor Ifeanyichukwu Okike, (Vice Chair of the BPSU.)
Statement of financial activities
Balance sheet
Notes to the financial statements
Detailed statement of financial activities
Societi Foundation - Annual Report & Accounts January 2024 - December 2024
Page 15
About Kawasaki Disease
Societi Foundation Annual Report & Accounts January - December 2024
The session explored:
-
key issues affecting Kawasaki Disease patients in the UK,
-
• the rationale behind the BPSU Kawasaki Disease surveillance studies and the importance of understanding incidence and impact.
-
the need to keep Kawasaki Disease firmly on the diagnostic radar, the role of differential diagnosis and the challenges that remain in ensuring timely recognition and treatment.
The symposium was a huge success, delivered to a packed audience with standing room only. It generated so much interest and discussion that it ran over by 45 minutes. Feedback on the day and in follow-up communications, were overwhelmingly positive.
Presenting to Trent Paediatricians
Societi partnered with the BPSU to deliver an online Kawasaki Disease seminar to Paediatricians across the Trent region.
The fabulous Professor Ifeanyichukwu Okike, Vice Chair of the BPSU, kindly invited us to join him in a training event for around 60 consultants. The session looked at the importance of data collection for certain childhood diseases before we delivered a focused session including the following headings:
-
About Kawasaki Disease
-
Societi, the UK Foundation for Kawasaki Disease
-
Patient and Public Involvement
-
Children’s Hospital Partnership Programme
-
• Q&A
It was fantastic to hear that many of the consultants were already thinking Kawasaki Disease and we saw an increase in the use of our clinician facing resources to further enhance doctor knowledge as a result of the session.
A ‘Quick Guide’ to Kawasaki Disease lifetime management guidance
Working closely with our Scientific Advisory Board, Societi developed a ‘quick guide’ to Kawasaki Disease lifetime management guidance, designed to give clinicians a clear,
accessible overview of the lifetime care needs of affected children.
The guide was distributed through our Children’s Hospital Partnership network, shared with clinicians at the RCPCH Conference and made freely available for download via the Societi website. To maximise reach, we also ran a targeted social media campaign on X and LinkedIn and promoted the resource through professional networks.
Distributing GP packs
Throughout 2024, Societi continued to raise awareness among GPs across the UK through distribution of our dedicated GP Packs.
In response to supporter requests, we provided information directly to local surgeries and in some cases targeting entire areas, including all GP practices in Lincolnshire.
With generous funding from Cheshire Community Foundation, we also delivered our packs to surgeries throughout East Cheshire.
Our ongoing work to educate GP’s is vital, as they are often the first clinicians to see children with Kawasaki Disease. Supporting them with knowledge and resources plays a critical role in ensuring timely recognition and diagnosis.
Case study resource
Following feedback from clinicians that casebased learning would be especially useful, Societi developed a new Kawasaki Disease Case Study resource.
The case studies, initially presented at our Kawasaki Disease Symposium, had proved hugely impactful. Building on this, we expanded the resource to include additional cases based on real-life published scenarios. Developed in close collaboration with our Scientific Advisory Board, the final resource provides practical, scenario-based insights to support clinician learning.
The Case Study resource was widely distributed across our clinical network and actively promoted through our social media channels to maximise reach and impact.
Clinician’s quiz
Building on Societi’s Acute Management of Kawasaki Disease film and Little Book of Kawasaki Disease, we developed a new Clinician’s Quiz as an interactive training resource.
The quiz provides questions with immediate answers and results, offering clinicians an engaging way to test and strengthen their knowledge of Kawasaki Disease. Created with the input of our Scientific Advisory Board, the resource has quickly become hugely popular across our clinical network, adding another valuable format to our suite of educational tools.
About Societi Foundation
Our activities - awareness raising
Our activities - clinical research
Our activities - clinical supervision
Our activities - support for UK families
Financial review
Structure, governance & management
Independent examiner’s statement
Statement of financial activities
Balance sheet
Notes to the financial statements
Detailed statement of financial activities
Societi Foundation - Annual Report & Accounts January 2024 - December 2024
Page 16
Societi Foundation Annual Report & Accounts January - December 2024
About Kawasaki Disease
The Medical Lounge
Societi partnered with The Medical Lounge, run by two experienced paramedics who deliver engaging education via social media to prehospital clinicians, to host an online webinar for paramedics, nurses and other pre-hospital staff.
The session covered the acute presentation of Kawasaki Disease, potential emergency presentations in the weeks and months following illness and the challenges of recognition in adolescents and young adults. A key focus was identifying the pre-hospital opportunities for intervention at each stage.
The webinar was very well received, with insightful questions and comments highlighting how Kawasaki Disease patients are managed by emergency services and the challenges paramedics can face. The session was made freely available on the Medical Lounge site and was distributed by Societi to all UK ambulance trusts. Importantly, it continued to be accessed in the weeks and months following delivery, extending its reach and impact.
Development of acute management and diagnosis guidelines
In 2024, Societi began work on developing a new national guideline for the diagnosis and treatment of acute Kawasaki Disease, in partnership with the Royal College of Paediatrics and Child Health (RCPCH). By following the College’s formal processes, the final guideline will be eligible for RCPCH endorsement.
A memorandum of understanding defined clear outlines of responsibility between Societi and RCPCH, a development group established and key stakeholders identified. Work is now underway, with the ambitious target of producing a full draft guideline by July 2026.
Until the new acute management and diagnosis guidelines are complete and have been published, Societi will continue to offer support to NHS Trusts and hospitals to ensure any local Kawasaki Disease guidance is based on up-to-date, UK relevant evidence.
support to Societi, contributing to our newly funded NHSBT project and our World Heart Day campaign.
Review of clinical information on Societi’s website
In 2024, a full review of all clinical information available on the Societi website was undertaken, guided by our Scientific Advisory Board.
The clinician’s area of our website provides a comprehensive suite of resources, including educational materials, links to key Kawasaki Disease research, management papers and a dedicated Clinician Q&A, developed from the many discussions we’ve had with clinicians at events, conferences and webinars.
This section of the website is well used, regularly updated and continues to grow as new information and resources are added, ensuring clinicians have access to current, practical and reliable information.
About Societi Foundation
Our activities - awareness raising
Our activities - clinical research
Our activities - clinical supervision
Our activities - support for UK families
Financial review
Structure, governance & management
Independent examiner’s statement
Statement of financial activities
Scientific Advisory Board
Kawasaki Disease has wide-ranging effects on children, making a multi-disciplinary approach to both research and care essential. Societi is privileged to be supported
by the outstanding clinical expertise of our Scientific Advisory Board ap=f amy : and recruitment of new members remains an important and ongoing \ : AES priority. In 2024, Dr Ifeanyichukwu f Okike, Consultant Paediatrician and Vice Chair of the BPSU Scientific Committee, was formally appointed to the Board and provided invaluable
Balance sheet
Notes to the financial statements
Detailed statement of financial activities
Societi Foundation - Annual Report & Accounts January 2024 - December 2024
Page 17
About Kawasaki Disease
Societi Foundation Annual Report & Accounts January - December 2024
Family support
Kawasaki Disease affects the whole family, not just the child. Societi Foundation provides support to help families navigate diagnosis, treatment and long-term care, ensuring they are informed, reassured and connected.
We offer practical resources, including information leaflets, guides and online tools, helping families understand the disease, treatment options and potential complications. Resources like our family stories and films help families to reduce the feeling of isolation that can accompany Kawasaki Disease and find emotional strength.
We work hard to ensure that our information and therefore, support extends into hospitals, clinics and GP surgeries which means we can provide guidance for families during the acute phase, helping them understand what to expect and how to care for their child. Our information also addresses long-term concerns for families, children and young people, from what to expect in terms of follow-up to simple lifestyle advice, ensuring children thrive after illness. The poitive impact is profound: families feel empowered, informed and less anxious. By addressing emotional, practical and informational needs, Societi Foundation ensures that no family faces Kawasaki Disease alone, helping them navigate the challenges and uncertainties with confidence.
Keeping information updated and available to families Societi offers a wide range of resources in various formats, all designed to support families and individuals affected
by Kawasaki Disease. Our information helps patients and their families during the acute phase, throughout followup periods and even many years later when new questions may arise. We continually review our resources to ensure the most up-to-date information is always available to our beneficiaries.
Societi is also available via email and direct messaging to support families and individuals who may have specific questions not directly answered by the resources on our website. With the help of our Scientific Advisory Board, we work hard to provide our beneficiaries with the information they need. While we cannot provide medical advice, we will always do our best to help and will signpost families to appropriate places or organisations where they can find the help they need.
About Societi Foundation
Supporter stories
Sharing family stories is a powerful way to provide support and reassurance to Our activities other families experiencing - awareness similar challenges and to raise awareness of raising Kawasaki Disease. We are extremely grateful to the Our activities families featured on our - clinical Family Stories webpage which is continually research updated as more families
feel able to share their experiences. We especially like to thank those families who generously shared their Kawasaki Disease journeys during 2024, helping to support others and raise awareness which helps protect children’s hearts.
Our activities - clinical supervision
Getting our family information into clinical settings
Our activities - support for UK families
Having accurate, high-quality Kawasaki Disease resources available to families while their children are in hospital is vital. Discussions with healthcare professionals can sometimes
Financial review
be overwhelming, leading to confusion or forgotten details, especially in the whirlwind of a Kawasaki Disease diagnosis. Our Kawasaki Disease Guide for Families and Carers was designed to address this challenge. We have distributed hundreds of copies of this guide and other patient information through our Children’s Hospital Partnership Programme hospitals across the UK, as well as at the RCPCH conference, so that families can receive them at the point of diagnosis. By making these resources readily available, we ensure families have the information they need, exactly when they need it.
Structure, governance & management
Independent examiner’s statement
Statement of financial activities
Children’s story
It can be difficult for children affected by Kawasaki Disease or their siblings and friends, to understand everything that has happened and why. After being asked by a number of supporters if any resources existed to help children understand Kawasaki Disease, we created a children’s story designed to explain the illness, hospital treatment, medications and any changes that may occur after some children return home. The story which was made available on our website, can be viewed here .
Balance sheet
Notes to the financial statements
Our aim is to develop the story into a physical illustrated children’s book which can be made available to families affected by Kawasaki Disease.
Detailed statement of financial activities
Societi Foundation - Annual Report & Accounts January 2024 - December 2024
Page 18
About Kawasaki Disease
Societi Foundation Annual Report & Accounts January - December 2024
Fundraiser support - webpages
Fundraisers play a vital role in the RACE to get Kawasaki Disease known. As well as raising awareness, the funds our supporters raise make it possible for us to continue our work and create real impact around Kawasaki Disease.
London to Paris Bike Ride A We always do our best to help supporters raise awareness and funds wherever we can. To Societi Non-uniform Day en make this easier, we updated the fundraising section of our website to provide fresh ideas, inspiration and practical support. The updated pages showcase a wide range of activities for supporters to get involved in and offer guidance to help them succeed in whatever fundraising challenge they choose.
Sharing our supporter survey results
In 2024, we A MASSIVE 72% had been a supporter shared the results for over a year, with the majority being a supporter for several years! of our supporter Less than a month survey with our community. The survey provided a wealth of Several y Less than six months valuable insights, years LvsAbout a year including the fantastic finding that nearly three i quarters of our supporters have followed Societi for over a year. In fact, there was so much useful information gathered that we created a short video to share the key findings in an engaging way. The video can be viewed here.
Societi membership
benefits including shop discounts, member only events and their very own Societi keyring. Our first member event was a webinar, ‘Ask the Kawasaki Disease Expert’, where members heard from Societi Chairman Professor Robert Tulloh as he answered their questions. Later in the year, members also joined in our online bingo event. Both events proved to be great successes. We continue to promote Societi membership as an effective way to support Societi Foundation.
Supporter Panel
Throughout 2024, Societi continued to work closely with our Supporter Panel to ensure our supporters remain at the heart of everything we do. The panel is made up of individuals who have kindly agreed to be contacted when their input would be valuable, for example, when developing our membership offer or designing and testing new resources. For each project, we invite a selection of panel members to take part and contribute their insights and experiences.
Advice for families about the winter ‘coughs, colds and bugs’
We asked Professor, Damian Roland, Consultant in Paediatric Emergency Medicine and member of our Scientific Advisory Board if he’d share some advice for our families, as we went into the winter ‘coughs, colds and bugs’ period.
We’re often contacted in the winter by parents worried about fevers. We know it can be a tricky time with so many bugs, coughs and colds, which can be especially scary at times with fevers linked to Kawasaki Disease.
The video was very well received by our supporters who found reassurance in Professor Roland’s advice. It can be ~~—_——~~ viewed here.
About Societi Foundation
Our activities - awareness raising
Our activities - clinical research
Our activities - clinical supervision
Our activities - support for UK families
Financial review
Structure, governance & management
Independent examiner’s statement
Statement of financial activities
Balance sheet
In January 2024, we were thrilled to launch Societi’s first ever membership - a brand new way for our supporters to get involved and help sustain our work. Supporters were invited to become members of Societi, gaining access to exclusive
Notes to the financial statements
Detailed statement of financial activities
Societi Foundation - Annual Report & Accounts January 2024 - December 2024
Page 19
About Kawasaki Disease
Societi Foundation Annual Report & Accounts January - December 2024
Financial review
Financial position
At the period end, the charity had total unrestricted reserves of £40,928 (2023: £84,747).
Reserves policy
Context - Societi Foundation (Societi) has established a reserves policy to protect its activities by providing a financial comfort zone against an unpredictable environment and to make sufficient provision for future cash flow requirements to sustain our charitable activities. The policy also provides the framework for future strategic planning and decision-making. The development of an effective reserves policy will reduce the impact of financial risks upon the continuing operations of Societi.
The reserves policy and the establishment of ranges is based upon an annual risk assessment of the internal and external operating environment, as well as having a due regard for the nature of activities undertaken by Societi for our beneficiaries.
Following the impact of the COVID-19 pandemic on the charitable sector and the potential cost of living impact on donors, the charity has factored this into determining the desired level of reserves alongside its growth aspirations.
Scope - This policy relates to Societi Foundations operation as a charity with four strategic aims - to raise awareness, enhance clinical supervision, enable clinical research and support the UK Support Group. In setting this policy Trustees are aware that, as a newly established organisation our reserves policy will need to be under regular review and be adjusted appropriately to reflect growth in our organisation.
Reserves - Societi Foundation holds unrestricted reserves derived from fundraiser income or donations that can be spent at the discretion of the Trustees in furtherance of any of Societi’s objectives.
Range of reserves held - The target range for reserves has been set by Trustees at no less than £80,000. This policy remains under informal review (annually) and formal review (every 3 years) to ensure that, as a new charity with a rapidly changing financial environment (due to positive growth and an increasing supporter/fundraiser base) our reserves policy remains relevant and continues to act to appropriately safeguard the future operation of Societi.
Approach to reserves - The work of our charity is both planned and reactive. As well as planned works, such as the development and delivery of Societi-led projects, opportunities can be presented - or circumstances arise which demand an immediate response or a new approach. New funding opportunities also arise which may require match funding and in order to ensure we are well placed to take advantage of these, and through these, address the
challenges presented to UK children by Kawasaki Disease, reserves are held by Societi.
Societi has grown into an established organisation and whilst maintaining minimal overheads, now employs a small staff team. As such, continuity planning for challenging circumstances that may arise are allowed for in the reserves. Trustees have considered operational costs when setting the reserves policy, current and planned commitments and the level of reserves set in this policy reflects operating costs of around 6-9 months.
Our current modest reserves level reflects:
-
the current level of turnover of the organisation.
-
the need to continue our primary operations - awareness raising - in the face of financial pressures Trustees have satisfied themselves that these can be continued with the modest financial provisions described in this policy.
-
experience of establishing and growing Societi from a new organisation - Trustees have a proven track record of delivering the work of the charity within a small budget having started the charity without grants or access to donations/fundraising.
Management of reserves - Any reserves held in excess of the target percentage will be reviewed by Societi Foundation Trustees on a regular basis and an appropriate range of options will be considered, which might include releasing the funds to enhance delivery of Societi’s objectives. As we grow as a charity this reserves policy could be updated to include provisions such as investment of funds, to generate further income and allow the expansion of Societi’s work. As a young organisation our current focus is on actions to deliver against our objectives and grow our reach.
The movement of funds to and from the reserves identified above will be at the discretion of the Trustees.
Reviewing our policy - The Charity Commission recommends that charities develop their reserves policy and their planning at the same time, recognising that strategic and financial planning informs the development of reserves policies and vice versa. Trustees recognise the importance of setting our operational budgets to identify peaks or troughs in cash flow and the reserves policy must ensure the troughs in funding can be met from reserves held.
Our reserves policy will be regularly reviewed in light of the changing funding and financial climate and other emerging risks. We publish our assessment of the risks that we are facing as part of our statutory accounts/ annual report.
This policy will also be amended in line with UK Government guidance, as amended.
About Societi Foundation
Our activities - awareness raising
Our activities - clinical research
Our activities - clinical supervision
Our activities - support for UK families
Financial review
Structure, governance & management
Independent examiner’s statement
Statement of financial activities
Balance sheet
Notes to the financial statements
Detailed statement of financial activities
Societi Foundation - Annual Report & Accounts January 2024 - December 2024
Page 20
About Kawasaki Disease
Societi Foundation Annual Report & Accounts January - December 2024
Structure, governance and management
Governing document
The legal form of the charity is that of a Charitable Incorporated Organisation (CIO) which is controlled by its governing document, its constitution dated 10 July 2017.
Recruitment and appointment of new trustees
- Selecting trustees preparations - Prior to mapping out our selection process for Trustees joining Societi Foundation, Trustees are alerted to, and informed of existing and new rules regarding eligibility and automatic disqualification of charity Trustees. Any amendments to these provisions are circulated automatically to Trustees, and the most up-to-date guidance will be consulted at each point a recruitment process is considered (and always before commencement).
Trustees are aware of the need for a balance of skills and abilities on our Board - as well as the need for available capacity in all Trustees if we are to achieve our objectives as a charity. A “hands-on” role is expected from all Trustees as we guide and grow our organisation. In determining the need for additional Trustees therefore we consider current skills, abilities and capacity - as well as horizon scanning for the skill sets and capacity we will need in order to achieve current and future plans.
Process to appoint trustees - The procedures for electing or appointing new Trustees is set out in overview in our Constitution. Section 10 of the
Societi Foundation Constitution notes:
(1) Apart from the first charity Trustees, every trustee must be appointed for a term of three years by a resolution passed at a properly convened meeting of the charity Trustees.
(2) In selecting individuals for appointment as charity trustees, the charity Trustees must have regard to the skills, knowledge and experience needed for the effective administration of the CIO.
We acknowledge that we are quorate with five Trustees but we recognise that, for a strong organisation, our aim is always to exceed this minimum number of Trustees and that our Trustee cohort should bring breadth of reach, capacity and energy, to ambitiously drive our organisation.
Recruiting trustees - As the requirements for Trustees within our growing charity are changing rapidly - mirroring the growth we experience and plan to continue to achieve, it is essential that Trustees joining Societi Foundation can be selected to meet these changing needs. Equally, it is essential that new Trustees are able to join the organisation and bring strong, positive contributions - and in doing this they must match and
exceed the level of ambition for our organisation as demonstrated by our current Trustees.
We will work to recruit Trustees not simply when vacancies occur, but when needs are identified. We will recruit through informal and formal processes - as may be needed and best suited to the Trustee position(s) which we have identified to fill.
Appointment - Information on prospective Trustees including professional biographies and/or the findings from formal recruitment processes and/or references taken up will inform the appointment process. Trustees will make a majority decision on the appointment of any new Trustee(s) at a formally convened meeting of the Board of Trustees - whether within or outside of the cycle of planned meetings. This recognises that additional meetings may be called to confirm the appointment of a Trustee if needed.
Induction and training of new trustees
Induction - We recognise that an appropriately organised induction for all new Trustees is vital. It is a gateway for both new trustees - helping them to get up to speed with the role, the organisation and their legal responsibilities.
Trustees are alert to the need for a strong induction which ensures we can provide evidence that the people in our organisation have an awareness and understanding of our ambitions and aims - but also, essentially, key policies and procedures such as health and safety and data protection. Our Trustee induction programme includes a variety of activities over a period of time, including:
-
Meetings and introductions to other Trustees, beneficiaries, service users etc
-
Invitations to events, meetings and presentations
-
A trustee induction pack
-
Buddying or coaching
About Societi Foundation
Our activities - awareness raising
Our activities - clinical research
Our activities - clinical supervision
Our activities - support for UK families
Financial review
Structure, governance & management
Independent examiner’s statement
Statement of financial activities
Balance sheet
Notes to the financial statements
Detailed statement of financial activities
Societi Foundation - Annual Report & Accounts January 2024 - December 2024
Page 21
About Kawasaki Disease
Societi Foundation Annual Report & Accounts January - December 2024
Reference and administrative details
Registered charity number
1173755
Principal address
Victoria Court Holme Lane Winthorpe Newark Nottinghamshire NG24 2NU
Trustees
R Tulloh R E A Greenwood R D Greenwood G Higgins (resigned 7.6.24) P Brogan M W Danson
Independent examiner
Wright Vigar Limited Chartered Accountants & Business Advisers 15 Newland Lincoln Lincolnshire LN1 1XG
Approved by order of the board of trustees on 22 October 2025 and signed on its behalf by: .................................................................... C,jwesrnaQ R E A Greenwood - Trustee
Thank you
Our annual report is more than just a record of our year - it’s an opportunity to share our story. We hope it gives you a deeper understanding of Societi Foundation and of Kawasaki Disease.
For us, that awareness matters. Every person who learns to recognise this serious disease helps strengthen our mission to protect children’s hearts.
Thank you for taking the time to read our report and learn about our work. Your interest and support mean so much to us.
With my very best wishes,
Rachael McCormack, Founder for Societi Foundation
About Societi Foundation
Our activities - awareness raising
Our activities - clinical research
Our activities - clinical supervision
Our activities - support for UK families
Financial review
Structure, governance & management
Independent examiner’s statement
Statement of financial activities
Balance sheet
Notes to the financial statements
Detailed statement of financial activities
Societi Foundation - Annual Report & Accounts January 2024 - December 2024
Page 22
About Kawasaki Disease
Societi Foundation Annual Report & Accounts January - December 2024
About Societi Foundation
Our activities - awareness raising
Independent Examiner's Report to the Trustees of Societi Foundation
Independent examiner's report to the trustees of Societi Foundation
I report to the charity trustees on my examination of the accounts of Societi Foundation (the Trust) for the year ended 31 December 2024.
Responsibilities and basis of report
As the charity trustees of the Trust you are responsible for the preparation of the accounts in accordance with the requirements of the Charities Act 2011 ('the Act').
I report in respect of my examination of the Trust's accounts carried out under Section 145 of the Act and in carrying out my examination I have followed all applicable Directions given by the Charity Commission under Section 145(5)(b) of the Act.
Our activities - clinical research
Our activities - clinical supervision
Our activities - support for UK families
Independent examiner's statement
I have completed my examination. I confirm that no material matters have come to my attention in connection with the examination giving me cause to believe that in any material respect:
- accounting records were not kept in respect of the Trust as required by Section 130 of the Act; or
Financial review
-
the accounts do not accord with those records; or
-
the accounts do not comply with the applicable requirements concerning the form and content of accounts set out in the Charities (Accounts and Reports) Regulations 2008 other than any requirement that the accounts give a true and fair view which is not a matter considered as part of an independent examination.
I have no concerns and have come across no other matters in connection with the examination to which attention should be drawn in this report in order to enable a proper understanding of the accounts to be reached.
Structure, governance & management
Independent examiner’s statement
Paul Colcomb FCCA
Wright Vigar Limited Chartered Accountants & Business Advisers 15 Newland Lincoln Lincolnshire LN1 1XG Date: .............................................22.10.2025
Statement of financial activities
Balance sheet
Notes to the financial statements
Detailed statement of financial activities
Societi Foundation - Annual Report & Accounts January 2024 - December 2024
Page 23
About Kawasaki Disease
Societi Foundation Annual Report & Accounts January - December 2024
Statement of financial activities for the year ended 31 December 2024
| Unrestricted | Restricted | 2024 Total | 2023 Total | ||
|---|---|---|---|---|---|
| Notes | funds £ | funds £ | funds £ | funds £ | |
| INCOME AND ENDOWMENTS FROM | |||||
| Donations and legacies | 115,605 | 20,000 | 135,605 | 134,634 | |
| Other trading activities | 2 | 7,498 | - | 7,498 | 4,925 |
| Other income | - | - | - | 1,588 | |
| Total | 123,103 | 20,000 | 143,103 | 141,147 | |
| EXPENDITURE ON | |||||
| Raising funds | 18,287 | 7,500 | 25,787 | 34,513 | |
| Charitable activities Kawasaki Disease awareness |
135,335 | 25,800 | 161,135 | 122,043 | |
| Total | 153,622 | 33,300 | 186,922 | 156,556 | |
| NET INCOME / (EXPENDITURE) | (30,519) | (13,300) | (43,819) | (15,409) | |
| Transfer between funds | 11 | (13,300) | 13,300 | - | - |
| Net movement in funds | (43,819) | - | (43,819) | (15,409) | |
| RECONCILIATION OF FUNDS | |||||
| Total funds brought forward | 84,747 | - | 84,747 | 100,156 | |
| TOTAL FUNDS CARRIED FORWARD | 40,928 | - | 40,928 | 84,474 |
About Societi Foundation
Our activities - awareness raising
Our activities - clinical research
Our activities - clinical supervision
Our activities - support for UK families
Financial review
Structure, governance & management
Independent examiner’s statement
Statement of financial activities
Balance sheet
Notes to the financial statements
Detailed statement of financial activities
Societi Foundation - Annual Report & Accounts January 2024 - December 2024
Page 24
About Kawasaki Disease
Societi Foundation Annual Report & Accounts January - December 2024
Balance sheet for the Year Ended 31 December 2024
About Societi Foundation
Our activities - awareness raising
| Unrestricted | Restricted | Restricted | 2024 | 2023 | ||
|---|---|---|---|---|---|---|
| Notes | funds £ | funds £ | Total funds £ | Total funds £ | ||
| FIXED ASSETS | ||||||
| Intangible assets | 6 | - | - | - | 157 | |
| Tangible assets | 7 | 266 | - | 266 | 553 | |
| 266 | - | 266 | 690 | |||
| CURRENT ASSETS | ||||||
| Stocks | 8 | 2,447 | - | 2,447 | 1,991 | |
| Debtors | 9 | 2,340 | - | 2,340 | 23,240 | |
| Cash at bank | 43,380 | - | 43,380 | 64,621 | ||
| 48,167 | - | 48,167 | 89,852 | |||
| CREDITORS | ||||||
| Amounts falling due within one year | 10 | (7,505) | - | (7,505) | (5,795) | |
| NET CURRENT ASSETS | 40,662 | - | 40,662 | 84,057 | ||
| TOTAL ASSETS LESS CURRENT | 40,928 | - | 40,928 | 84,747 | ||
| LIABILITIES | ||||||
| NET ASSETS | 40,928 | - | 40,928 | 84,747 | ||
| FUNDS | 11 | |||||
| Unrestricted funds | 40,928 | 84,747 | ||||
| TOTAL FUNDS | 40,928 | 84,747 |
The financial statements were approved by the Board of Trustees and authorised for issue on 22 Oct 2025 and were signed on its behalf by:
Our activities - clinical research
Our activities - clinical supervision
Our activities - support for UK families
Financial review
Structure, governance & management
Independent examiner’s statement
R E A Greenwood - Trustee
Statement of financial activities
Balance sheet
Notes to the financial statements
Detailed statement of financial activities
Societi Foundation - Annual Report & Accounts January 2024 - December 2024
Page 25
About Foundation Societi Foundation Kawasaki Annual Report & Accounts Disease January - December 2024 About Societi Foundation Intangible assets Our activities Amortisation is provided at the following annual rates in - awareness order to write off each asset over its estimated useful life. raising Website - 33% on cost Tangible fixed assets Our activities Depreciation is provided at the following annual rates in - clinical order to write off each asset over its estimated useful life. research Computer equipment - 33% on cost Stocks Stocks are valued at the lower of cost and net realisable Our activities value, after making due allowance for obsolete and slow - clinical moving items. supervision Taxation The charity is exempt from tax on its charitable activities. Our activities Fund accounting - support for Unrestricted funds can be used in accordance with the UK families charitable objectives at the discretion of the trustees. Restricted funds can only be used for particular restricted purposes within the objects of the charity. Restrictions arise when specified by the donor or when funds are Financial raised for particular restricted purposes. review Further explanation of the nature and purpose of each fund is included in the notes to the financial statements. Structure, governance & management Independent examiner’s statement Statement of financial activities Balance sheet
Notes to the financial statements for the Year Ended 31 December 2024 1. Accounting policies Intangible assets Amortisation is provided at the following annual rates in Basis of preparing the financial statements order to write off each asset over its estimated useful life. The financial statements of the charity, which is a public benefit entity under FRS 102, have been prepared Website - 33% on cost in accordance with the Charities SORP (FRS 102) Tangible fixed assets ‘Accounting and Reporting by Charities: Statement of Depreciation is provided at the following annual rates in Recommended Practice applicable to charities preparing order to write off each asset over its estimated useful life. their accounts in accordance with the Financial Reporting Standard applicable in the UK and Republic of Ireland (FRS Computer equipment - 33% on cost 102) (effective 1 January 2019)’, Financial Reporting Stocks Standard 102 ‘The Financial Reporting Standard applicable Stocks are valued at the lower of cost and net realisable in the UK and Republic of Ireland’ and the Charities Act value, after making due allowance for obsolete and slow 2011. The financial statements have been prepared under moving items. the historical cost convention.
The charity is a Charitable Incorporated Organisation (CIO) registered with the Charity Commission in England and Wales.
Financial reporting standard 102 - reduced disclosure exemptions The charity has taken advantage of the following disclosure exemption in preparing these financial statements, as permitted by FRS 102 ‘The Financial Reporting Standard applicable in the UK and Republic of Ireland’: • the requirements of Section 7 Statement of Cash Flows.
Income All income is recognised in the Statement of Financial Activities once the charity has entitlement to the funds, it is probable that the income will be received and the amount can be measured reliably. Donations in kind are valued at the market rate of the services donated.
Expenditure Liabilities are recognised as expenditure as soon as there is a legal or constructive obligation committing the charity to that expenditure, it is probable that a transfer of economic benefits will be required in settlement and the amount of the obligation can be measured reliably. Expenditure is accounted for on an accruals basis and has been classified under headings that aggregate all cost related to the category. Where costs cannot be directly attributed to particular headings they have been allocated to activities on a basis consistent with the use of resources.
Notes to the financial statements Detailed statement of financial Page 26 activities
Societi Foundation - Annual Report & Accounts January 2024 - December 2024
About Societi Foundation Kawasaki Annual Report & Accounts Disease January - December 2024 About Societi Foundation Our activities 2024 £ 2023 £ - awareness 2,540 2,759 raising 4,958 2,166 7,498 4,925 Our activities - clinical Totals £ research 1,680 20,120 Our activities - clinical 2023 supervision Total activities £ 3,748 6,783 Our activities 185 187 - support for 619 626 UK families 8,459 8,872 - 622 4,997 10,504 Financial review 157 2,523 266 389 9 - Structure, 1,680 1,140 governance & management 20,120 31,646 Independent examiner’s statement Statement 2024 £ 2023 £ of financial activities 78,879 45,424 1,767 878 80,646 46,302 Balance sheet 2024 2023 2 1 Notes to the financial statements Detailed statement of financial Page 27 activities ~~|~~
| 2. OTHER TRADING ACTIVITIES 2024 £ Fundraising events 2,540 Merchandise income 4,958,958958 7,498,498498 3. SUPPORT COSTS Other £ Governance costs £ Kawasaki Disease awareness 18,440 1,680 Support costs, included in the above, are as follows: 2024 Kawasaki Disease awareness £ Postage and stationery 3,748 Insurance 185 Accountancy 619 Office costs 8,459 Legal and professional fees - Administrative staff costs 4,997 Amortisation of intangible fixed assets 157 Depreciation of tangible fixed assets 266 Interest payable and sim chs 9 Independent Examination 1,680 20,120 4. TRUSTEES’ REMUNERATION AND BENEFITS There were no trustees’ remuneration or other benefits for the year ended 31 December 2024 nor for the year ended 31 December 2023. Trustees’ expenses There were no trustees’ expenses paid for the year ended 31 December 2024 nor for the year ended 31 December 2023. 5. STAFF COSTS 2024 £ Wages and salaries 78,879 Other pension costs 1,767 80,646,646646 No employees received employee benefits over £60,000. The average monthly number of employees during the year was as follows: 2024 Administration 2 No employees received emoluments in excess of £60,000. Notes to the financial statements for the Year Ended 31 December 2024 societiforKawasakiDisease |
2023 £ 2,759 2,166,166166 4,925,925925 Totals £ 20,120 2023 Total activities £ 6,783 187 626 8,872 622 10,504 2,523 389 - 1,140 31,646 2023 £ 45,424 878 46,302,302302 2023 1 |
|---|---|
Societi Foundation - Annual Report & Accounts January 2024 - December 2024
About Societi Foundation Kawasaki Annual Report & Accounts Disease January - December 2024 About Societi Foundation
|6. INTANGIBLE FIXED ASSETS
COST
At 1 January 2024 and 31 December 2024
AMORTISATION
At 1 January 2024
Charge for year
At 31 December 2024
NET BOOK VALUE
At 31 December 2024
At 31 December 2023
7. TANGIBLE FIXED ASSETS
COST
At 1 January 2024 and December 2024
DEPRECIATION
At 1 January 2024
Charge for year
At 31 December 2024
NET BOOK VALUE
At 31 December 2024
At 31 December 2023
8. STOCKS
Stocks
9. DEBTORS: AMOUNTS FALLING DUE WITHIN
ONE YEAR
Trade debtors
Prepayments and accrued income
10. CREDITORS: AMOUNTS FALLING DUE
WITHIN ONE YEAR
Taxation and social security
Other creditors
societiforKawasakiDisease|2024 £
2,447
2024 £
-
2,340
2,340
2024 £
2,100
5,405
7,505|Website £
11,932
11.775
157
11,932
-
157
Computer
equipment £
1,512
979
267
1,246
266
533
2023 £
1,991
2023£
18,588
4,652
23,240
2023 £
984
4,811
5,795
~~|~~|Our activities
- awareness
raising
Our activities
- clinical
research
Our activities
- clinical
supervision
Our activities
- support for
UK families
Financial
review
Structure,
governance &
management
Independent
examiner’s
statement
Statement
of financial
activities
Balance sheet
~~|~~|
|---|---|---|---|
Notes to the financial statements Detailed statement of financial Page 28 activities
Societi Foundation - Annual Report & Accounts January 2024 - December 2024
About Societi Foundation Kawasaki Annual Report & Accounts Disease January - December 2024 About Societi At 31.12.24 £ Foundation funds £ - Our activities (13,300) 40,928 - awareness raising 13,300 - 40,928 Resources Resources Our activities expended £ expended £ - clinical research (153,622) (30,519) Our activities (33,300) (13,300) - clinical (186,922) (43,819) supervision At 31.12.23 Our activities funds £ £ - support for UK families (15,409) 84,747 (15,409) 84,747 Financial Resources review
| 11. MOVEMENT IN FUNDS At 1.1.24 £ Unrestricted funds General fund 84,747 Restricted funds Randal Charitable Foundation - TOTAL FUNDS 84,747 Net movement in funds, included on the previous page are as follows: Unrestricted funds General fund Restricted funds Randal Charitable Foundation TOTAL FUNDS Comparatives for movement in funds Unrestricted funds General fund TOTAL FUNDS Comparative net movement in funds, included in the above are as follows Unrestricted funds General fund Restricted funds Randal Charitable Foundation TOTAL FUNDS societiforKawasaki |
Net movement in funds £ (30,519) (13,300) (43,819) Incoming resources £ 123,103 20,000 143,103 At 1.1.23 £ 100,156 100,156 Incoming resources £ 101,147 40,000 141,147 Disease |
Transfer between funds £ (13,300) 13,300,300300 - Resources expended £ (153,622) (33,300) (186,922) Net movement in funds £ (15,409) (15,409)15,409),409)409)) Resources expended £ (116,556) (40,000) (156,556) |
At 31.12.24 £ - 40,928 40,928,928928 Resources expended £ (30,519) (13,300) (43,819) At 31.12.23 £ 84,747 84,747,747747 Movement in funds £ (15,409) - (15,409) |
|---|---|---|---|
Structure, governance & management Independent examiner’s statement Statement of financial activities Balance sheet
Randal Charitable Foundation Fund - The fund arose from a grant made to Societi to focus on building a strategic partnership with children’s hospitals in the UK promoting awareness campaigns and engagement initiatives for Kawasaki Disease.
Transfers between funds - A transfer of £13,300 was made from general funds to the Randal Charitable Foundation Fund as planned in the project budget.
12. RELATED PARTY DISCLOSURES During the period, the Charity received donated services of £57,850 (2023: £45,850) from Lanarca Limited, a company in which trustees R E A Greenwood and R D Greenwood are directors.
Notes to the financial statements Detailed statement of financial Page 29 activities
Societi Foundation - Annual Report & Accounts January 2024 - December 2024
About Kawasaki Disease
Societi Foundation Annual Report & Accounts January - December 2024
Detailed statement of financial activities for the year ended 31 December 2024
About Societi Foundation
| Detailed statement of financial activities for the year ended 31 December 2024 | Detailed statement of financial activities for the year ended 31 December 2024 | Detailed statement of financial activities for the year ended 31 December 2024 | Foundation |
|---|---|---|---|
| INCOME AND ENDOWMENTS | 2024 £ | 2023 £ | |
| Donations and legacies | Our activities | ||
| Donations | 46,621 | 20,503 | - awareness |
| Gift aid Grants |
142 30,992 |
400 67,881 |
raising |
| Gifts in kind | 57,850 | 45,850 | |
| Other trading activities | 135,605 | 134,634 | Our activities - clinical |
| Fundraising events Merchandise income |
2,540 4,958 |
2,759 2,166 |
research |
| Other income | 7,498 | 4,925 | Our activities |
| Other Income Total incoming resources |
- 143,101 |
1,588 141,147 |
- clinical supervision |
| EXPENDITURE | |||
| Raising donations and legacies | |||
| Wages | 19,720 | 22,712 | Our activities |
| Pensions Fundraising costs Other trading activities |
442 - 20,162 |
439 5,514 28,665 |
- support for UK families |
| Opening stock | 1,991 | 2,346 | |
| Purchases Closing stock Charitable activities |
6,081 (2,447) 5,625 |
5,493 (1,991) 5,848 |
Financial review |
| Wages Pensions |
59,159 1,325 |
22,712 439 |
Structure, |
| Subscriptions | 2,383 | 2,005 | governance & |
| Advertising Travel and subsistence |
7,136 1,071 |
- 2,879 |
management |
| Resource Films | - | 15,840 | |
| Donated services Kawasaki Course Development Events and Conferences |
57,850 2,250 9,841 |
45,850 672 - |
Independent examiner’s |
| Support costs | 141,015 | 90,397 | statement |
| Other | |||
| Postage and stationery | 3,748 | 6,783 | Statement |
| Insurance Accountancy Office costs |
185 619 8,459 |
187 626 8,872 |
of financial activities |
| Legal and professional fees | - | 622 | |
| Administrative staff costs | 4,997 | 10,504 | |
| Computer software | 157 | 2,523 | |
| Computer equipment | 266 | 389 | Balance sheet |
| HMRC interest | 9 | - | |
| Governance costs | 18,440 | 30,506 | |
| Independent Examination | 1,680 | 1,140 | Notes to |
| Total resources expended NET EXPENDITURE |
186,922 (43,819) |
156,556 (15,409) |
the financial statements |
Detailed statement of financial Page 30 activities
Societi Foundation - Annual Report & Accounts January 2024 - December 2024
About Kawasaki Disease
About Societi Foundation
Our activities - awareness raising
Our activities - clinical research
Our activities - clinical supervision
Our activities - support for UK families
Financial review
Structure, governance & management
Independent examiner’s statement
Statement of financial activities
Balance sheet
Societi Foundation is a registered charity in England & Wales, number 1173755
Societi Foundation Victoria Court, Holme Lane Winthorpe, Newark NG24 2NU
info@societi.co.uk
Notes to the financial statements
Detailed statement of financial activities