About Kawasaki Disease
About Societi Foundation
Our activities - awareness raising
Our activities - clinical research
Our activities - clinical supervision
Our activities - support for UK families
Financial review
Structure, governance & management
Independent examiner’s statement
Statement of financial activities
Balance sheet
Societi Foundation Annual Report & Accounts
1 January 2023 - 31 December 2023 Registered charity number 1173755
Notes to the financial statements
Detailed statement of financial activities
About Kawasaki Disease
About Kawasaki Disease
Kawasaki Disease symptoms
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Persistent Rash Cracked lips/ Bloodshot Swollen Swollen
fever ‘strawberry’ eyes glands fingers/toes
tongue
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Annual Report & Accounts Jan 2023 - Dec 2023
Kawasaki Disease is the leading cause of acquired heart disease in children in the UK.
prompt treatment. Studies show that children treated early have a lower risk of serious heart damage than those treated later. Doctors should aim to diagnose and treat children as soon as possible – at five days of fever or as quickly as practical after that. Research has shown that the risk of heart damage grows with increasing delay.
It mainly affects young children but it can affect people of any age. Its impact can be most serious in the very young, particularly infants. Identified in 1967 in Japan by Dr Tomisaku Kawasaki, the cause of Kawasaki Disease is still unknown. The illness presents with several symptoms common to a variety of other childhood diseases and infections and is therefore often misdiagnosed. Kawasaki Disease is a serious disease which can cause coronary artery damage and life-long heart disease.
Kawasaki Disease is a serious illness and is more common than some forms of bacterial meningitis, and a more common reason for children to be hospitalised than measles. Although outcomes for Kawasaki Disease can be just as serious as these well known illnesses, clinical awareness levels and knowledge around Kawasaki Disease in doctors is low – we must change this!
Kawasaki Disease has a range of symptoms including a characteristic and distinctively persistent high fever for five days or more, rash, bloodshot eyes, “strawberry” tongue, cracked, dry lips, redness of the fingers and toes and swollen glands in the neck. Kawasaki Disease can be present with some or all of these symptoms and symptoms often appear in series (i.e. not all at once).
Kawasaki Disease is increasingly common. The graph below, based on Societi’s study on hospital admissions for Kawasaki Disease shows there are up to 1,000 hospital admissions in the UK every year. Once thought of as a rare disease, this now outdated idea, wrongly held on to by some, leads to delayed diagnosis and with this, increased risk of serious heart damage for children. Across the globe cases are doubling every ten years. This is why it is the leading cause of acquired heart disease in UK children. We are working to raise awareness to make sure that doctors EXPECT to see Kawasaki Disease and are READY to treat it.
Kawasaki Disease should always be considered in any child with unexplained persistent fever of five days. It is a serious illness that can cause damage to the blood vessels in the heart, and leads to acquired heart disease in about one in five affected children.
Children with Kawasaki Disease have much improved chances of a good recovery with timely diagnosis and
About Societi Foundation
Our activities - awareness raising
Our activities - clinical research
Our activities - clinical supervision
Our activities - support for UK families
Financial review
Structure, governance & management
Independent examiner’s statement
Statement of financial activities Balance sheet
Notes to the financial statements
Detailed statement of financial activities
Societi Foundation - Annual Report & Accounts January 2023 - December 2023
Page 2
About Kawasaki Disease
About Societi Foundation
What we do
Our ambition is that EVERYONE knows Kawasaki Disease. In the UK today, affected children face the same poor prospects in terms of outcomes as they did 20 years ago. We want to change that.
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The perception of Kawasaki Disease as a rare illness hampers UK research which is stifled by a lack of funds. It also hampers clinical resource allocation and long term clinical support that research shows families need. A lack of awareness of the true incidence of Kawasaki Disease among ‘front line’ clinicians needs to be addressed, in order for Kawasaki Disease to be considered as a possible diagnosis at an early stage, in any child with a persistent fever.
Awareness raising
Awareness is our number 1 priority and we work throughout the year to get Kawasaki Disease
known. Societi also leads two major campaigns each year, working with a large variety of partners to raise the profile of Kawasaki Disease. Our partners amplify our key messages in a way that otherwise would not be possible. For example, outdoor screen advertiser, Clear Channel has supported Societi on four separate occasions over the past two years, displaying our campaigns over their vast network of digital advertising screens, reaching millions of people.
We enable urgently needed research and pursue change to policy and clinical practice for Kawasaki Disease. Not enough is known about Kawasaki Disease, its symptoms or its treatment. Long term care for affected families is limited. Many agencies, doctors and parents are unaware of the disease. We are changing this.
Clinical research
We enable urgently needed research and knowledge sharing, influencing funders and enabling co-ordination. Societi was the catalyst for a ¤5m pan-European clinical trial investigating acute Kawasaki Disease treatments and for which we are co-investigators. We also undertake in-house research such as our studies investigating Kawasaki Disease hospital admissions in the UK and our Diagnosis Day study collecting information from families regarding their child’s diagnosis.
This annual report is an important document and has been prepared by Societi Foundation for submission to the Charity Commission. It also serves to help supporters, partners, funders and anyone who reads it to get to know a little more about Societi and Kawasaki Disease - something which is hugely valuable.
Our objectives and activities:
Clinical supervision
- The advancement of education for the public benefit into the causes, detection and treatment of Kawasaki disease, by such charitable means as the Trustees shall from time to time determine.
Societi pursues changing policy and clinical practice for Kawasaki Disease, working with many clinical partners to shape new care protocols and health policy. For example, we worked with NHS England Clinical Directors and national experts from UK hospitals to develop and publish a new UK guideline for long term management of those with heart damage. We worked with NICE to develop new guidelines for fever in the under fives to aid diagnosis of Kawasaki Disease. We also undertake projects to support clinicians develop their knowledge of Kawasaki Disease. We are currently in year 2 of a 3 year Hospital Partnership Programme funded by the Randal Charitable Foundation, supporting paediatric and emergency teams to share and grow knowledge of Kawasaki Disease throughout the UK..
- The promotion of research into the prevention, diagnosis, causes and treatment of Kawasaki disease by such charitable means as the Trustees shall from time to time determine.
Our values:
Priority - We work with others to enable them to recognise Kawasaki Disease as a priority
Pace - We act quickly with a momentum that comes from our motivation to succeed
Support for UK families
We recognise that reliable, Kawasaki Disease related information and support is a critical lifeline for families at the centre of the “flat spin” that is a Kawasaki Disease diagnosis. Developing easily accessible, trusted resources for families and patients from first diagnosis through teenage years and to living adult life with Kawasaki Disease, is our fourth important activity area. Societi has created an award winning online Family Portal and MySocieti, our online Youth Portal, all of which are loaded with expert backed information and user friendly, engaging resources. We distribute our resources to families, GPs and hospitals right across the UK to ensure families have access to them when they need them most.
Partnership - We forge strong and lasting, partnerships with organisations who share our determination to transform the environment around Kawasaki Disease in the UK, and beyond.
Significant activities
Societi has four activity areas around which all our actions and operations are focussed. These are as follows:
About Societi Foundation
Our activities - awareness raising
Our activities - clinical research
Our activities - clinical supervision
Our activities - support for UK families
Financial review
Structure, governance & management
Independent examiner’s statement
Statement of financial activities
Balance sheet
Notes to the financial statements
Detailed statement of financial activities
Societi Foundation - Annual Report & Accounts January 2023 - December 2023
Page 3
About Kawasaki Disease
About Societi Foundation
Our organisational structure
Societi is a small organisation with a dedicated staff team supported by a phenomenal team of volunteers. Founder, Rachael McCormack acts as voluntary CEO for the organisation and sits on our Board of Trustees, which is chaired by Professor Robert Tulloh, the leading UK Kawasaki Disease expert. The Kawasaki Disease UK Steering Group guides our strategy while our Scientific Advisory Board of 9 UK doctors deliver expert multi-disciplinary guidance.
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Annual Report & Accounts 1 2 3 4 5
Jan 2023 - Dec 2023
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Societi Foundation Organisational Structure
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Board of Trustees Kawasaki Disease UK
Steering Group
(Societi chair)
Societi Scientific
Advisory Board
Leadership and
Operational Activ it ies
Key Partnerships
Societi Foundation Core
Volunteers & Staff Team
Volunteers &
Fundraisers
Societi Beneficiaries and
Supporters
Key:
Key links
Management
& information
flows
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About Societi Foundation
Our activities - awareness raising
Our activities - clinical research
Our activities - clinical supervision
Our activities - support for UK families
Financial review
Structure, governance & management
Independent examiner’s statement
Statement of financial activities Balance sheet
Notes to the financial statements
Detailed statement of financial activities
Societi Foundation - Annual Report & Accounts January 2023 - December 2023
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About Kawasaki Disease
About Societi Foundation
Our Trustee Board
During 2023, Societi was governed and supported by seven Trustee Board Members, Ms Rachael McCormack, Prof Robert Tulloh, Prof Paul Brogan, Mr Roger Greenwood, Mr Gerry Higgins, Professor Michael Danson and Mr Peter Ware. Together our trustees bring together a strong combination of skills and expertise to drive and direct the work of our charity.
Annual Report & Accounts Jan 2023 - Dec 2023
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Rachael McCormack FCMI FInstLM
experience have been an invaluable addition to the Board.
Rachael is the Founder of Societi Foundation and was inspired to create our charity after her family was affected by Kawasaki Disease. She’d found support lacking, and facts few and far between and so undertook to create our charity to support other affected families. Rachael has experience across the third, public and private sectors, and leads a consultancy firm she established in 2003. Rachael holds post graduate qualifications in management, is an active researcher and together with our Board, sets the tempo for our growing organisation.
Gerry Higgins
Gerry is Managing Director of the Social Enterprise World Forum CIC – a fast growing global organisation which he founded and leads, proactively enabling the development of a global social impact economy. With a BA in Education and a MSc in Business Studies and decades of experience working in, establishing and supporting third sector organisations, Gerry brings in depth expertise in recognising and addressing the challenges of third sector organisational sustainability and leadership to Societi.
Professor Robert Tulloh
Peter Ware
Rob, MA DM FRCPCH Honorary Professor of Congenital Cardiology and pulmonary hypertension (retired), is an internationally recognised expert in Kawasaki Disease. Rob led the largest Kawasaki Disease clinic in the UK and the only Adult Kawasaki Disease clinic. He is an active researcher and teacher, and has supported Societi since before its formal establishment. Today, as a Trustee, Rob brings a wealth of expert clinical knowledge and broader oversight for our organisation.
Peter is Partner and Head of the Government Sector at Browne Jacobson LLP, specialising in complex procurement, shared services, PFI, outsourcing and public sector joint ventures. His extensive knowledge and his time leading major projects has given him a wealth of experience across sectors. He is also Finance and Membership Secretary of the Procurement Lawyers Association, on the editorial board of CIPFA’s TISOnline, on the editorial Board for Lexis Nexis Local Government and a regular public speaker.
Professor Paul Brogan
Our Board is also supported by:
Paul is Professor of Vasculitis and Honorary Consultant Paediatric Rheumatologist at Great Ormond Street Hospital (GOSH). An expert in Kawasaki Disease, Paul leads a successful clinical and academic programme of work dedicated to the developing field of paediatric vasculitis and auto-inflammatory diseases, including Kawasaki Disease. He is also Chair of the Vasculitis Consortium, and Clinical Lead for Auto-inflammatory Disease at GOSH – and contributes to both the clinical and strategic trajectory of our charity.
Paul Colcomb, Independent Examiner
Paul is a Partner at Wright Vigar, the retained financial specialists and accountants for Societi Foundation – bringing extensive expertise in charitable organisation structures and financial matters. Paul supports both the team and the Board in financial reporting, annual reporting and Charity governance requirements.
About Societi Foundation
Our activities - awareness raising
Our activities - clinical research
Our activities - clinical supervision
Our activities - support for UK families
Financial review
Structure, governance & management
Independent examiner’s statement
Roger Greenwood FLI
Roger is a Landscape Architect and master planner by profession, and has been a businessman throughout his career with diverse sector experience. He was the Chief Examiner for his industry professional body for seven years and has been mentor to a vast community of emerging professionals to support them as they developed their practice. He is also, most importantly, a parent of a child affected by Kawasaki Disease. This immensely valuable experience combination of experience and knowledge brings scrutiny, wide ranging skills and support to our charity.
Professor Michael Danson
Professor Micheal Danson is Professor Emeritus of Enterprise Policy at Heriot-Watt University. Mike is a long term supporter of Societi, giving much welcome advice and support, especially in the area of data analysis. As Trustee, Mike has been able to offer the organisation support across a broad range of topics and his in-depth knowledge and
Report of the Trustees
The trustees present their report with the financial statements of our charity for the year ended 31 December 2023. The trustees have adopted the provisions of Accounting and Reporting by Charities: Statement of Recommended Practice applicable to charities preparing their accounts in accordance with the Financial Reporting Standard applicable in the UK and Republic of Ireland (FRS 102) (effective 1 January 2019)
Public benefit - In setting our objectives and planning our activities our Trustees have given careful consideration to the Charity Commission’s guidance on public benefit. In the pages which follow our delivery and impact during January 2023 - December 2023 is set out.
Statement of financial activities
Balance sheet
Notes to the financial statements
Detailed statement of financial activities
Societi Foundation - Annual Report & Accounts January 2023 - December 2023
Page 5
About Societi Foundation
About Kawasaki Disease
Working with our partners
By working in partnership, we can achieve our stated aims and those shared aims of our partners and stakeholders. In partnership we can have greater impact, work with increased pace and reach; and create the urgently needed step change for Kawasaki Disease.
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The extensive impact we made throughout the year would not have been at such an immense scale, had it not been for ALL our partners - each one generously providing their help and expertise.
Societi works closely with partners and stakeholders to achieve our shared aims. By working in partnership, we recognise we can have much greater impact - and go further forward, faster to protect more children’s hearts.
Huge thanks must go to all our phenomenal partners for all their support, enabling such success in our campaign. These brilliant organisations have shared aims with Societi Foundation and are essential in helping us to get Kawasaki Disease known across the UK and beyond.
We are deeply grateful to ALL our partners who supported Societi in 2023, shared Kawasaki Disease information, generously donated and provided funding or lent their expert support for Societi projects - all to benefit and safeguard children affected by Kawasaki Disease!
About Societi Foundation
Our activities - awareness raising
Our activities - clinical research
Our activities - clinical supervision
Our activities - support for UK families
Financial review
Structure, governance & management
Independent examiner’s statement
Statement of financial activities Balance sheet
Notes to the financial statements
Detailed statement of financial activities
Societi Foundation - Annual Report & Accounts January 2023 - December 2023
Page 6
About Kawasaki Disease
About Societi Foundation
Our future plans
Our aim to tackle the leading cause of acquired heart disease in children in the UK remains the same. Our UK National Strategy which was originally created in 2016 and reviewed and updated for 2021 - 2025 defines ambitious targets and the focus areas for our work, going forward.
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Annual Report & Accounts Jan 2023 - Dec 2023
Shortly after Societi Foundation was established, we led the development of the first ever UK Strategy for Kawasaki Disease in 2016. This important document successfully directed the focus of the first five years of work by our charity. In that time much has been achieved, working through partnerships and creating change across the landscape of Kawasaki Disease.
The strategy was refreshed in 2021, and shapes our work up to 2025. Our strategy is a starting point from which to engage with partners to discuss mutual opportunities to address the challenges we collectively face and to drive the work of Societi Foundation.
To read our National Strategy for 2021 - 2025 click here.
About Societi Foundation
Our activities - awareness raising
Our activities - clinical research
Our activities - clinical supervision
Our activities - support for UK families
Financial review Structure, governance & management
Independent examiner’s statement Statement of financial activities Balance sheet
Notes to the financial statements Detailed statement of financial activities
Societi Foundation - Annual Report & Accounts January 2023 - December 2023
Page 7
Our activities - awareness raisin g
About Kawasaki Disease
Our activities around raising awareness of Kawasaki Disease
We raise awareness of Kawasaki Disease to improve diagnosis and treatment times and reduce the risk of heart damage in our children. Through multi media campaigns, we aim to reach ‘just’ 66 million people - the entire UK population!
Annual Report & Accounts Jan 2023 - Dec 2023
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During 2023, the fantastic Hinch family used their combined following of nearly six million people to help raise awareness of Kawasaki Disease. They shared our posts and insta stories which had a phenomenal effect on our ability to get Kawasaki Disease known. Our Instagram reach alone grew by 28,000 percent!! THANK YOU so much to the Hinch family for their ongoing support. We look forward to continuing to work in partnership with them!
Working with Mr and Mrs Hinch!
Social media influencer, Sophie Hinchliffe - also known as ‘Mrs Hinch’, famous for her online cleaning tips, and her husband Jamie, generously gave their extraordinary support to Societi Foundation, after their son was affected by Kawasaki Disease in 2023.
The Hinch family want to support Societi to ensure that other families and doctors know the signs and can recognise Kawasaki Disease quickly.
About Societi Foundation
Our activities - awareness raising
Our activities - clinical research
Our activities - clinical supervision
Our activities - support for UK families
Financial review
Structure, governance & management
Independent examiner’s statement
Statement of financial activities
Balance sheet
Notes to the financial statements
Detailed statement of financial activities
Societi Foundation - Annual Report & Accounts January 2023 - December 2023
Page 8
Our activities - awareness raisin g
About Kawasaki Disease
Our activities around raising awareness of Kawasaki Disease
We raise awareness of Kawasaki Disease to improve diagnosis and treatment times and reduce the risk of heart damage in our children. Through multi media campaigns, we aim to reach ‘just’ 66 million people - the entire UK population!
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The project involved the production of a beautiful bespoke Societi wax melt pack. A percentage of the proceeds from the sale of the special packs were to be donated to Societi and plans were made to include Kawasaki Disease information cards in every single purchase from Ava Mayfair during our three month long campaign - that’s tens of thousands of Kawasaki Disease information cards distributed right across the UK. We are so grateful to Hannah and the entire team at Ava Mayfair for their hard work and generosity, and for enabling such amazing awareness raising.
Working with Ava Mayfair
Having previously worked with Ava Mayfair, Mrs Hinch and team introduced us to Hannah Chapman, the owner of Ava Mayfair.
Societi worked on plans to collaborate with Mrs Hinch and Hannah Chapman and the team at Ava Mayfair to raise funds and awareness of Kawasaki Disease around International Kawasaki Disease Awareness Day 2024.
About Societi Foundation
Our activities - awareness raising
Our activities - clinical research
Our activities - clinical supervision
Our activities - support for UK families
Financial review
Structure, governance & management
Independent examiner’s statement
Statement of financial activities
Balance sheet
Notes to the financial statements
Detailed statement of financial activities
Societi Foundation - Annual Report & Accounts January 2023 - December 2023
Page 9
Our activities - awareness raisin g
About Kawasaki Disease
Our activities around raising awareness of Kawasaki Disease
We raise awareness of Kawasaki Disease to improve diagnosis and treatment times and reduce the risk of heart damage in our children. Through multi media campaigns, we aim to reach ‘just’ 66 million people - the entire UK population!
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Annual Report & Accounts Jan 2023 - Dec 2023
Overall during 2023 impressions on Facebook increased by 96.6% and reach increased by 137.6%. Our Instagram reach increased by 95.4% to nearly 1,000,000 people. We gained followers across all of our social platforms allowing us to raise even more awreness. Sharing our awareness raising messages across social media is a key channel for awareness and developing Kawasaki Disease knowledge. As our social media following continues to grow, we are able to achieve greater levels of engagement, constantly furthering our reach.
Social media – public awareness
Work to raise awareness among the public continued throughout 2023 on Instagram, Facebook, Twitter and LinkedIn with audience numbers, numbers of followers and post reach continuing to grow.
We will continued to invest in our online campaigns and work hard to raise awareness via effective digital marketing initiatives.
About Societi Foundation
Our activities - awareness raising
Our activities - clinical research
Our activities - clinical supervision
Our activities - support for UK families
Financial review
Structure, governance & management
Independent examiner’s statement
Statement of financial activities
Balance sheet
Notes to the financial statements
Detailed statement of financial activities
Societi Foundation - Annual Report & Accounts January 2023 - December 2023
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Our activities - awareness raisin g
About Kawasaki Disease
Our activities around raising awareness of Kawasaki Disease
We raise awareness of Kawasaki Disease to improve diagnosis and treatment times and reduce the risk of heart damage in our children. Through multi media campaigns, we aim to reach ‘just’ 66 million people - the entire UK population!
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Annual Report & Accounts Jan 2023 - Dec 2023
Collaborating with NHS Blood and Transplant
Societi supported NHSBT in another plasma donation campaign in November. Societi supporter, Alister Jenkins (also a contributor to our family films) donated plasma in a Societi t-shirt and gave Societi permission to work with NHSBT to share his story.
Societi worked in partnership with the brilliant team at NHS Blood and Transplant (NHSBT) throughout 2023. With the expert communications team at NHSBT, a media release was prepared to highlight the importance of plasma donations and the need for more donors.
Societi also started collaboration with NHSBT during 2023 to hold a parliamentary event to raise awareness of plasma donation at the beginning of 2024, encouraging our supporters to write to MPs, raise awareness of Kawasaki Disease and ask them to attend the session. Work also started on a new dedicated plasma amination created to support the session.
With the press release picked up by the Express, Sky News, ITV, the Independent, the Sun and many more news outlets, the impact of the article, for plasma donation registrations and Kawasaki Disease awareness, was just immense reaching a staggering 25 MILLION people.
About Societi Foundation
Our activities - awareness raising
Our activities - clinical research
Our activities - clinical supervision
Our activities - support for UK families
Financial review
Structure, governance & management
Independent examiner’s statement
Statement of financial activities
Balance sheet
Notes to the financial statements
Detailed statement of financial activities
Societi Foundation - Annual Report & Accounts January 2023 - December 2023
Page 11
Our activities - awareness raisin g
About Kawasaki Disease
Our activities around raising awareness of Kawasaki Disease
We raise awareness of Kawasaki Disease to improve diagnosis and treatment times and reduce the risk of heart damage in our children. Through multi media campaigns, we aim to reach ‘just’ 66 million people - the entire UK population!
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The website remains our single greatest repository of information and must be maintained to a high standard.
Website updates
Our website was significantly updated in 2023, with approximately 50 pages (c. 50%) being overhauled, updated or retired. Web based information was significantly added to, messaging strengthened and support resources for families and clinicians were added. The Family Portal, to which traffic was directed during Awareness Day has also been demonstrably updated, new films added, our parent and carers booklet included (as an online page and downloadable resource) and much more.
Working with the team at Digital Planning we also worked to improve how our website works by boosting our organic SEO and making the best use of donated a Google Ad grant.
The improvements made to the back end of our website mean that our information is easier to find and much more accessible to families, clinicians and the general public who want to know more about Kawasaki Disease.
About Societi Foundation
Our activities - awareness raising
Our activities - clinical research
Our activities - clinical supervision
Our activities - support for UK families
Financial review
Structure, governance & management
Independent examiner’s statement
Statement of financial activities
Balance sheet
Notes to the financial statements
Detailed statement of financial activities
Societi Foundation - Annual Report & Accounts January 2023 - December 2023
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Our activities - awareness raisin g
About Kawasaki Disease
Our activities around raising awareness of Kawasaki Disease
We raise awareness of Kawasaki Disease to improve diagnosis and treatment times and reduce the risk of heart damage in our children. Through multi media campaigns, we aim to reach ‘just’ 66 million people - the entire UK population!
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Annual Report & Accounts Jan 2023 - Dec 2023
Our supporters took on some fantastic challenges from the London Marathon to the Serpentine Swim and the Edinburgh Kilt walk to skydiving - and everything in between!
Supporting our Supporters
TeamSocieti is at the very heart of everything we do and their support is essential to us in terms of both raising much needed funds and raising awareness of Kawasaki Disease throughout the UK.
We help our supporters in their awareness and fundraising efforts in every way we can. Our gratitude to every single member of #TeamSocieti for their unrelenting effort and their show of support is endless.
In 2023, families, often who have been affected by Kawasaki Disease themselves, delivered inspiring fundraising and awareness raising events and generously gave their time energy to help further Societi’s aims and protect children’s hearts from Kawasaki Disease.
Below are just some of the things our supporters got up to throughout 2023.
Click on the images below to what just some of our supporters have been up to in their fabulous fundraising and awareness raising activities:
About Societi Foundation
Our activities - awareness raising
Our activities - clinical research
Our activities - clinical supervision
Our activities - support for UK families
Financial review
Structure, governance & management
Independent examiner’s statement
Statement of financial activities
Balance sheet
Notes to the financial statements
Detailed statement of financial activities
Societi Foundation - Annual Report & Accounts January 2023 - December 2023
Page 13
About Kawasaki Disease
Our activities - awareness raisin g
Our activities around raising awareness of Kawasaki Disease
We raise awareness of Kawasaki Disease to improve diagnosis and treatment times and reduce the risk of heart damage in our children. Through multi media campaigns, we aim to reach ‘just’ 66 million people - the entire UK population!
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Annual Report & Accounts Jan 2023 - Dec 2023
As well as information about projects and activities, our newsletters also draw attention to the incredible hard work and achievements of #TeamSocieti. It is their support that drives us and helps us to achieve our objectives for Kawasaki Disease in the UK.
The Societi newsletter
To help keep our supporters informed about our work, Societi produces a regular newsletter that is distributed through our social media, on our website and by direct email to our supporters.
We love hearing all about what our supporters are up to and we hope they like to hear about what we are doing just as much!
Our newsletters keep our supporters informed about everything we are doing throughout the year, how they can get involved in our work and everything they have been up to, to raise awareness of Kawasaki Disease and to support Societi too.
Click to the images below to read our 2023 Summer and Christmas newsletters.
About Societi Foundation
Our activities - awareness raising
Our activities - clinical research
Our activities - clinical supervision
Our activities - support for UK families
Financial review
Structure, governance & management
Independent examiner’s statement
Statement of financial activities
Balance sheet
Notes to the financial statements
Detailed statement of financial activities
Societi Foundation - Annual Report & Accounts January 2023 - December 2023
Page 14
Our activities - awareness raisin g
About Kawasaki Disease
Our activities around raising awareness of Kawasaki Disease
We raise awareness of Kawasaki Disease to improve diagnosis and treatment times and reduce the risk of heart damage in our children. Through multi media campaigns, we aim to reach ‘just’ 66 million people - the entire UK population!
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Annual Report & Accounts Jan 2023 - Dec 2023
in between - just phenomenal! Of course we had some simply stunning photos.
Our Virtual 10K for World Heart Day
2023’s annual Societi Virtual 10K was our 5 year anniversary and was a huge highlight of our World Heart Day campaign, taking on a truly global form!
We are so grateful to everyone who supported Societi, and took part in our Virtual 10K, raised much needed funds for Societi Foundation and raised awareness of Kawasaki Disease in their communities across the UK - and across the world!!
Our marvellous Supporters took their virtual 10K right across the world from America to the Peak District, from Mount Kilamanjaro to the Brecon Beacons and everywhere
About Societi Foundation
Our activities - awareness raising
Our activities - clinical research
Our activities - clinical supervision
Our activities - support for UK families
Financial review
Structure, governance & management
Independent examiner’s statement
Statement of financial activities
Balance sheet
Notes to the financial statements
Detailed statement of financial activities
Societi Foundation - Annual Report & Accounts January 2023 - December 2023
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Our activities - awareness raisin g
About Kawasaki Disease
Our activities around raising awareness of Kawasaki Disease
We raise awareness of Kawasaki Disease to improve diagnosis and treatment times and reduce the risk of heart damage in our children. Through multi media campaigns, we aim to reach ‘just’ 66 million people - the entire UK population!
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channels as a hashtag and on other communications.
Updating our strapline and rebranding merchandise
During 2023 we considered our strapline that follows the Societi name ‘the UK Foundation for Kawasaki Disease’ and updated it to ‘We are the UK Foundation for Kawasaki Disease’.
The creation of a new Societi branded water bottle for supporters completing our World Heart Day Virtual 10K was the first product to feature the updated strap line. We have further expanded the range of updated Societi merchandise available on our shop since the event, as stocks depleted over time.
The strap line was made more prominent on our branded products to reinforce who we are, and what we do as an organisation and was also used across our social media
About Societi Foundation
Our activities - awareness raising
Our activities - clinical research
Our activities - clinical supervision
Our activities - support for UK families
Financial review
Structure, governance & management
Independent examiner’s statement
Statement of financial activities
Balance sheet
Notes to the financial statements
Detailed statement of financial activities
Societi Foundation - Annual Report & Accounts January 2023 - December 2023
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About Kawasaki Disease
Our activities - awareness raisin g
Our activities around raising awareness of Kawasaki Disease
We raise awareness of Kawasaki Disease to improve diagnosis and treatment times and reduce the risk of heart damage in our children. Through multi media campaigns, we aim to reach ‘just’ 66 million people - the entire UK population!
Annual Report & Accounts Jan 2023 - Dec 2023
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Christmas stocking-filler, a bespoke Societi heart-shaped biscuit decorating kit. The kit was created in partnership with Honeywell Bakes, who created a custom biscuit cutter, as per Societi’s heart logo.
Societi online shop
Sales continued to bring in revenue during 2023 with an ever-expanding selection of Societi branded merchandise available for purchase on the website. All items are brought forward mindful of their role as agents of public awareness – e.g. branded bags and hoodies.
Each box contained 4 Societi heart-shaped biscuits, a tube of icing and 3 packs of decorations, making it easy for little hands to get busy raising awareness of Kawasaki Disease.
One of our most exciting additions to the shop was our 2023
About Societi Foundation
Our activities - awareness raising
Our activities - clinical research
Our activities - clinical supervision
Our activities - support for UK families
Financial review
Structure, governance & management
Independent examiner’s statement
Statement of financial activities
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Detailed statement of financial activities
Societi Foundation - Annual Report & Accounts January 2023 - December 2023
Page 17
Our activities - awareness raisin g
About Kawasaki Disease
Our activities around raising awareness of Kawasaki Disease
We raise awareness of Kawasaki Disease to improve diagnosis and treatment times and reduce the risk of heart damage in our children. Through multi media campaigns, we aim to reach ‘just’ 66 million people - the entire UK population!
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Throughout January, partners including the Department for Health and Social Care, NHS England and the World Heart Federation also got behind our campaign. Key partners including the Chemical Business Association, the Randal Charitable Foundation, Greenstones and Conect4Children stepped in amongst many others - creating far reaching impact. As a result, we sent our messages further than we could have hoped! The estimated total reach across social media during the campaign was over ONE AND A HALF MILLION people. Read our impact statement here.
International Kawasaki Disease Awareness Day
We were just delighted with the level of support shown and so grateful to every single supporter who raised awareness, organised events, asked local landmarks to light up, donated and gave their support on Awareness Day! From climbing Wainwrights to liking and sharing Facebook posts, everything our supporters did helped get Kawasaki Disease known and helped protect children’s hearts.
Our Awareness Day campaign ran from the very start of January, and on awareness day alone, we posted a extraordinary 66 posts across our social media platforms.
About Societi Foundation
Our activities - awareness raising
Our activities - clinical research
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Our activities - support for UK families
Financial review
Structure, governance & management
Independent examiner’s statement
Statement of financial activities
Balance sheet
Notes to the financial statements
Detailed statement of financial activities
Societi Foundation - Annual Report & Accounts January 2023 - December 2023
Page 18
Our activities - awareness raisin g
About Kawasaki Disease
Our activities around raising awareness of Kawasaki Disease
We raise awareness of Kawasaki Disease to improve diagnosis and treatment times and reduce the risk of heart damage in our children. Through multi media campaigns, we aim to reach ‘just’ 66 million people - the entire UK population!
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Annual Report & Accounts Jan 2023 - Dec 2023
doing this and for using their mighty influence for good - for our children. We are so proud to have joined forces to raise awareness of the symptoms of Kawasaki Disease on a global scale, so powerfully!
Working with the World Heart Federation
On International Kawasaki Disease Awareness Day, our long-standing and brilliant partner, the World Heart Federation, lent us their BIG heart to help protect tiny hearts – a stunning gesture from such a globally influential organisation!
We are deeply grateful to the World Heart Federation for lending us their BIG heart on International Kawasaki Disease Awareness Day - helping to protect the tiniest hearts. We are so ‘heartened’ to have their wonderful support, year-round, but on the most important day in our calendar, too.
They did this by temporarily removing the heart from their logo on all social media channels on January 26th - with a post explaining why - alongside Kawasaki Disease awareness information. We are so grateful to them for
About Societi Foundation
Our activities - awareness raising
Our activities - clinical research
Our activities - clinical supervision
Our activities - support for UK families
Financial review
Structure, governance & management
Independent examiner’s statement
Statement of financial activities
Balance sheet
Notes to the financial statements
Detailed statement of financial activities
Societi Foundation - Annual Report & Accounts January 2023 - December 2023
Page 19
Our activities - awareness raisin g
About Kawasaki Disease
Our activities around raising awareness of Kawasaki Disease
We raise awareness of Kawasaki Disease to improve diagnosis and treatment times and reduce the risk of heart damage in our children. Through multi media campaigns, we aim to reach ‘just’ 66 million people - the entire UK population!
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Annual Report & Accounts Jan 2023 - Dec 2023
totalling 1 MILLION people - so we are confident that tens of thousands more now know of Kawasaki Disease - a first, crucial step in growing awareness.
Lighting up for Kawasaki Disease awareness
We were delighted to see more landmarks than ever before light up red for International Kawasaki Disease Awareness Day this year - right across the UK, from Swansea to Norfolk, to Sunderland and Inverness. The hard work and dedication of #TeamSocieti ensured that a total of fifteen landmarks shone red, alongside local press stories to explain just why - letting everyone in their communities know more about Kawasaki Disease.
So many supporters this year personally got involved by asking their local authorities and landmark owners to make this happen - we are very grateful to everyone who contributed to this amazing, UK-wide spectacle. The support we received from these splendid regional landmarks and their custodians (who switched on the lights!) was just immense!
These key landmarks are at the heart of communities
About Societi Foundation
Our activities - awareness raising
Our activities - clinical research
Our activities - clinical supervision
Our activities - support for UK families
Financial review
Structure, governance & management
Independent examiner’s statement
Statement of financial activities
Balance sheet
Notes to the financial statements
Detailed statement of financial activities
Societi Foundation - Annual Report & Accounts January 2023 - December 2023
Page 20
Our activities - awareness raisin g
About Kawasaki Disease
Our activities around raising awareness of Kawasaki Disease
We raise awareness of Kawasaki Disease to improve diagnosis and treatment times and reduce the risk of heart damage in our children. Through multi media campaigns, we aim to reach ‘just’ 66 million people - the entire UK population!
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Together we worked throughout the whole of September, to raise awareness. We published a media release, encouraged supporters to hold coffee and cake mornings and wear red days, released an expert led podcast series for clinicians and shared our family podcast series. We also held our annual virtual 10k as well as fundraising to make Kawasaki Disease visible to the many GP’s attending the RCGP Conference.
Our World Heart Day campaign
World Heart Day is a global campaign that gives us a tremendous opportunity to raise awareness of Kawasaki Disease and work alongside extraordinary partners supporters.
Once again we worked with our wonderful partners at the World Heart Federation to deliver a campaign with a focus on Kawasaki Disease into adulthood. Too many children affected by Kawasaki Disease receive a late diagnosis which can increase the risk of long-term heart damage.
Read our World Heart Day impact statement here.
About Societi Foundation
Our activities - awareness raising
Our activities - clinical research
Our activities - clinical supervision
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Financial review
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Detailed statement of financial activities
Societi Foundation - Annual Report & Accounts January 2023 - December 2023
Page 21
Our activities - clinical research
Our activities around clinical research
We work to lever efforts building on enhanced awareness of need, to undertake and urgently advance critical research to understand, diagnose and manage Kawasaki Disease. Click on the buttons below to find out about our activities around clinical research:
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About
Kawasaki
Disease
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About Societi Foundation
Annual Report & Accounts Jan 2023 - Dec 2023
Our activities - awareness raising
1 2 3 4 45
families and patients affected by Kawasaki Disease were represented. Our work included ensuring the profile of the trial was raised and the information families needed, as they considered taking part in the trial, was available in user friendly formats. Trial specific web pages created and updated by Societi can be viewed on our website here.
Supporting the KD-CAAP trial investigating acute treatments for Kawasaki Disease
Societi continued to lead the PPI elements as part of the Trial Management Group and Trial Steering Group for the delivery of KD-CAAP (Kawasaki Disease Coronary Artery Aneurysm Prevention), the largest Kawasaki Disease clinical trial of its type to ever take place.
Our activities - clinical research
Societi continued to support the KD-KAAP trial throughout 2023, post contract period for PPI Lead wherever possible. For example, providing trial resources to support the team in their general assembly, continuing to promote the trial, displaying our KD-CAAP website pages and supporting the TMG where possible.
Contractual delivery commitment cameto a formal end in March 2023. However, trustees agreed to continue supporting the work stream, given the significance of the trial to our organisation.
Our activities - clinical supervision
As part of our role, Societi ensured that the views of
Our activities - support for UK families
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Our activities
- support for
Kawasaki Disease Clinical Trial Checklist!
UK families
Kawasaki Disease is the leading cause of acquired heart disease Financial
These observations have been important drivers for a trial to improve
in children in Europe. It’s time we changed that... Kawasaki Disease outcomes across Europe. The KD-CAAP trial is a multi-centre randomised, controlled, open-label, blinded endpoint assessed, trial to review
explore the effi cacy and safety of adjunctive corticosteroid therapy combined with IVI G /aspirin, versus IVIG/aspirin alone in unselected Kawasaki ...Together we will Dise ase
This checklist has been developed to complement the clinical trial information and training Investigators have received. cases across Europe.
It is intended to be a helpful ‘at a glance’ guide for clinicians approaching families to invite them to participate.The KD-CAAP Clinical Trial Why Corticosteroids?
Corticosteroids are an effecti The f o v llowing resources for the e treatment for virtually all forms of vasculitis,
1. What is a clinical trial? Lots of illnesses, including Kawasaki Disease, don’t have treatments that are good enoughWhen doctors want need to prove whether they work through something called a trial to find better treatments, they KWhat is the aim of the KD-CAAP trial?or KD-CAAP is a phase III multi-centre, randomised, open-label, blinded endpoint assessed, trial of corticosteroids pluimmunoglobulin (IVIG) and aspirin, versus IVIG and asprevention of coronary artery aneurysms (CAA) in Kawasaki Disease. Societi is patient and public involvement (PPI) lead and co-investigator for the KD-CAAP trial which is the single greatest opportunity for transformation in patient care, improving outcomes in Kawasaki Disease, in a generation.awasaki Disease4. What happens if you join the trial? Coronary All children taking part in thyou’d get if you decided not to join the trialHalf of the children who join will get the extra medicineHalf of the children will get the standard treatmentAll children in the trial will also have:but they have not been adopted Disease cases, for which there remains signifi cant equipoise. Increasingly compelling evidence summarised above from randomised controlled trials and meta-analyses supports corticospatients with severe Kawasaki Disease, particularly for Japanese patients with a Kobayashi score ≥5, and for whom CAA risk is 20-30% despite IVIG. This does not, however, resolve the ongoing debate about which Kawasaki Disease patients should be considered as “severe” outside of Japan, since the Kobayashi score and other clinical severity-scoring systems have poor predictive value in non-Japanese patients. Given however, the aforementioned high CAA complication rates seen across Europe (16-45%), all Kawasaki Disease patients are arguably at high-risk of CAA despite IVIG, and could therefore potentially Artery Aneurysm KD-CA Spotting Zthe challenges of Kawasaki Disease Diagnosis within this Prevention trial, p ack. p A e e s at irin for intravenous bras! Overcoming eroid use as primary adjunctive treatment for trial get the treatments s fi rst-line treatment of unselected Kawasaki P Clinical Trial are available: - available The following patient/parent resources for the KD-CAAP Clinical Trial are available: available to download by scanning the QR code below. RCPCH endorsed TEMPERS mnemonic awareness leafl et Kawasaki Disease within this p ack. - - available Long term issues leafl et for parents and carers download by scanning the QR code below. - available to Structure, governance & management
2. Why do we need a trial for Kawasaki Disease? The aim of the KD-CAAP trial is to determine whether adding immediate corticosteroid treatment to standard of care IVIG and aspirin will reduce coronary artery aneurysm (CAA) rates in unselected Kawasaki Disease patients across Europe compared with IVIG and aspirin alone. -- benefi t from adjunctive corticosteroids as primary treatment for Kawasaki Disease. Therefore there remains signifi cant equipoise regarding the use of corticosteroids as primary treatment combined with IVIG for all patients, i.e. not just the most severe cases.training in Kawasaki Diseaseextra monitoring by a doctor with specialist extra checks of their heart and other extra tests Time to ‘Think Kawasaki Independent
Kawasaki Disease is the leading cause of acquired heart disease in childrenThe way we treat it hasn’t changed or improved for many years Even with current treatment, many children get serious heart damageKD-CAAP is the name of a project - or trial - doctors are working on with families like yours, to see if we can find a better treatmentKD-CAAP project began because a mum whose little girl had Kawasaki Disease, wanted to help find better Why do we need a clinical trial? A number of recent studies conducted in different European countries(UK, Sweden, and Germany), Russia, and tdemonstrated alarmingly high rates of coronary complications despite IVIG. Coronary artery aneurysm (CAA) rates ranged from 16% in the Swedish study (45% in infants under 12 months), to as high as 42% in younger children in the German survey. In the UK, a recent survey (2013-2015) suggested that 19% of children with Kawasaki Disease still developed CAA despite IVIG; and, even more worryingly in that survey, 39% of patients under the age of 1 year developed CAA despite IVIG [7]. These high complication rates now emphasise the need for an urgent reappraisal of IVIG and aspirin as the primary therapeutic agents for Kawasaki Disease.We have recently published evidence-based, consensus European guidelines for the diagnosis and treatment of Kawasaki Disease and in doing so clearly 5. Important information Like all medicines, steroids have some side effectsThese are temporary and not seriousWe involved families who’d faced Kawasaki Disease to -- Where can I fi nd out more about KD-CAAP? You can fi nd out more about the KD-CAAP clinical trial by visiting the UCL KD-CAAP website You can also visit the KD-CAAP web pages at https://www.societi.org.uk/kd-caap/ or scan the QR code below:to keep a close eye on your childquickly as we think they shouldthey leave hospital to keep an eye on recoveryextra treatment if they don’t get better as extra appointments with specialist doctors after h e Unitettp://k Clinician information posterRCGP e-learning module - scan the QR code to access.available within this pack. d caap.mrcctu.ucl.ac.uk/ or scan the QR code below: States have recently General awareness poster available within this pack.- Disease’ RCPCH-BPSU webinar - scan the QR code to access.- the QR code below to acces Family information portal s. - scan examiner’s statementStatement of financial
treatments observed: help decide about steroids and after we’d explain the My Societi Youth Portal activities
Families, whose children had Kawasaki Disease helped design the trialChildren who had Kawasaki Disease have been involved in the trial d esign too • Higher CAA rates than previously considered to be associated with IVIG-• Important evidence gaps regarding lack of an appropriate clinical tool to • Signif treated Kawasaki Disease;stratif target for more aggressive cant equipoise among y patients at hi 6. Makin side effects, they said they’d have chosen this extra treatment if it had been available ghest risk of CAA outside of Japan, and hence who to Trial Partners treatment; and the paediatric community across Europe regarding g a decision - scan the Q R code below to access. societi.org.uk Assent/consent forms at p artici p atin g KD-CAAP centres- available
the use of adjunctive treatm We d o need a decision quickly - and you will get the ents for unselected Kawasaki Disease cases.
3. About KD-CAAP Trial Partners standIf yo u join the trial you’ll know quickly about which ard treatment quicklyTrial Partners Balance sheet
We want to see whet her adding one extra medicine treat ment you’ll receive and you’ll receive extra
to the standard treatment can help protect children’s monitoring by your doctors societi.org.uk societi.org.uk
hearts from damageWe will add a medicine called a steroid to the standard You don’the standard treatment t have to join the trial - your child will get Trial Partners
treatment for Kawasaki Disease - aspirin and IVIGDoctors in countries like Japan, where Kawasaki Disease is more common, already treat children with 7. More information societi.org.uk Notes to
steroids and they have less heart damage than we do
Kawasaki Disease is what’s called an inflammatory disease and steroids are already safely given to Families can be directed to: www.societi.org.uk and www.societi.org.uk/kd-caap the financial
children with other inflammatory diseases, which is Provide information sheets statements
why doctors want to see if they work for Kawasaki Disease too Provide booklet “Kawasaki Disease, a guide for families and carers”
Detailed
statement
of financial
Societi Foundation - Annual Report & Accounts January 2023 - December 2023 Page 22 activities
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Our activities - clinical research
About Kawasaki Disease
Our activities around clinical research
We work to lever efforts building on enhanced awareness of need, to undertake and urgently advance critical research to understand, diagnose and manage Kawasaki Disease. Click on the buttons below to find out about our activities around clinical research:
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Annual Report & Accounts Jan 2023 - Dec 2023
Analysing our Diagnosis Day poll data
Once all collected data has been analysed, the aim is to publish a paper which will enable Societi to highlight diagnosis issues and focus training about Kawasaki Disease and help overcome problems being faced. It will also highlight the differential diagnosis challenges (for doctors) and what to look out for (for parents).
With the help of Professor Robert Tulloh and Professor Mike Danson, analysis of our Diagnosis Day research poll results got underway during 2023.
With a jump in follower and supporter numbers during 2023, due to social collaborations, it was planned to reopen the poll during 2024 to new responses, adding to those already collected.
About Societi Foundation
Our activities - awareness raising
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Societi Foundation - Annual Report & Accounts January 2023 - December 2023
Page 23
Our activities - clinical research
Our activities around clinical research
We work to lever efforts building on enhanced awareness of need, to undertake and urgently advance critical research to understand, diagnose and manage Kawasaki Disease. Click on the buttons below to find out about our activities around clinical research:
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Disease
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Our activities - awareness raising
Incidence of Kawasaki Disease
Societi Founder, Rachael McCormack contributed to the paper as a co-author. Rachael provided input on the technical data summaries, the plain English summary and presentation / dissemination materials.
A paper - led by Dr Fiona Pearce of University Hospitals Nottingham - discussing and analysing Kawasaki Disease incidence records as included within the NCARDRS database was published during 2023.
Our activities - clinical research
The paper identified all cases in hospital episode statistics using data obtained from the National Congenital Anomaly and Rare Disease Registration Service (NCARDS). The paper calculated incidence rate ratios, assessing the influence of age, sex, ethnicity and index of multiple deprivation.
Societi contributed to research led by Dr Fiona Pearce of the University of Nottingham, into incidence of Kawasaki Disease using hospital admissions data for England 20062021.
Our activities - clinical supervision
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Societi Foundation - Annual Report & Accounts January 2023 - December 2023
Our activities - clinical research
About Kawasaki Disease
Our activities around clinical research
We work to lever efforts building on enhanced awareness of need, to undertake and urgently advance critical research to understand, diagnose and manage Kawasaki Disease. Click on the buttons below to find out about our activities around clinical research:
Annual Report & Accounts Jan 2023 - Dec 2023
1 2 3 4 45
Societi also retrieved Hospital Episode Statistics for Kawasaki Disease in England between 2006 and 2022 from NHS digital and conducted a further FOI study with NHS Trusts and Health Boards across Wales, Scotland and Northern Ireland to gain incidence data in these areas to 2022.
Working with partners to obtain incidence data
During 2023, Societi worked with a number of partners to collect data on Kawasaki Disease incidence throughout the UK.
NHSBT shared data for the national immunoglobulin database showing a significant spike in use of IVIG for Kawasaki Disease in the year to December 2022. Societi also worked with NHS National Clinical Director, Professor Simon Kenny and NHS England to investigate primary admissions for Kawasaki Disease across England from 2016 - 2022.
Work is ongoing to understand the absolute picture of the number of children affected by Kawasaki Disease in the UK.
About Societi Foundation
Our activities - awareness raising
Our activities - clinical research
Our activities - clinical supervision
Our activities - support for UK families
Financial review
Structure, governance & management
Independent examiner’s statement
Statement of financial activities
Balance sheet
Notes to the financial statements
Detailed statement of financial activities
Societi Foundation - Annual Report & Accounts January 2023 - December 2023
Page 25
Our activities - clinical research
About Kawasaki Disease
Our activities around clinical research
We work to lever efforts building on enhanced awareness of need, to undertake and urgently advance critical research to understand, diagnose and manage Kawasaki Disease. Click on the buttons below to find out about our activities around clinical research:
Annual Report & Accounts Jan 2023 - Dec 2023
1 2 3 4 45
The workshop gave the opportunity to raise the profile of Kawasaki Disease with industry partners (pharmaceutical companies) who are active in this area, as well as doctors and other organisations like ours. A very worthwhile day spent raising awareness, and laying the foundations for a greater focus for research in the future, in Kawasaki Disease and in doing so, improving outcomes for children in the future.
National Institute for Health and Care Research workshop
Societi was invited to to represent our community and join the Clinical Studies Group (U.K.) for Paediatric Rheumatology, focusing on the U.K. wide research needs for children’s rheumatological illnesses.
Kawasaki Disease is the second most common vasculitis in children.
About Societi Foundation
Our activities - awareness raising
Our activities - clinical research
Our activities - clinical supervision
Our activities - support for UK families
Financial review
Structure, governance & management
Independent examiner’s statement
Statement of financial activities
Balance sheet
Notes to the financial statements
Detailed statement of financial activities
Societi Foundation - Annual Report & Accounts January 2023 - December 2023
Page 26
Our activities - clinical su ervision p
About Kawasaki Disease
Our activities around clinical supervision
Gaps exist in current provision for Kawasaki Disease children in their long term care. We work to close these gaps, as well as connect long term care to long term research. Click on the buttons below to find out about our activities around clinical supervision:
Annual Report & Accounts Jan 2023 - Dec 2023
2 3 4 5 61 72 38 49 105 111 122 133 144 155
1
and relationships developed. Societi also worked to build on relationships and grew our total partnership numbers to 73 individuals from 45 hospitals throughout the UK.
Children’s Hospital Partnership Programme
2023 was the second year of our three year Children’s Hospital Partnership Programme generously funded by the Randal Charitable Foundation.
Societi attended targeted events including the RCPCH annual conference, the RCGP conference and supported the organisation of a Kawasaki Disease symposium to enable further knowledge exchange and identify additional Ambassadors. A Societi web page here provides more detailed updates on progress against each of our programme milestones to date.
Our Kawasaki Disease educational materials and resources were updated and expanded to support our efforts in supporting existing and forming new strategic partnerships with major children’s hospitals.
Key contacts with UK children’s hospitals were identified
Specified milestones Work to date Progress Digital resources Societi’s Kawasaki Disease digital clinical information resources continue to be reviewed and updated in line with Follow up on the delivery of our hard copy resources. All digital resources, have been digital clinical information issued to all partners along with family and carer resources. and resources to assess any further needs or All centres have been invited to request any further information required. requirements Creation of additional learning materials Extensive work has gone into the creation and development Creation of additional of new and existing Kawasaki Disease educational resources including our ‘Little Book of Kawasaki Disease’ - aimed at A B C learning materials and resources based on more junior members of paediatric teams, and our new film ‘Kawasaki Disease - acute management - an expert led requirements and needs of discussion’ - aimed at more senior members. Our Kawasaki key hospital contacts Disease resource booklet has been reviewed and updated and a new format for the booklet has been introduced, together with the addition of a targeted GP edition. Societi have distributed a number of Kawasaki Disease training Deliver bespoke training resources to all hospital partners within the partnership programme and these have also been shared at conference, symposiums and Deliver bespoke Kawasaki promoted widely to our clinician audience on social media platform s. 20 Disease training based on Our training resources include: developed proposals for ● our new film ‘Kawasaki Disease - acute management - an 20 UK hospitals expert led discussion’ endorsed by the RCPCH education and learning committee ● a RCPCH Kawasaki Disease webinar ● our RCGP e-learning course - renewed September 2023 for a further two years We have had contact with a number of hospitals from the partnership programme who have expressed an interest in Societi providing face to face training for their clinical staff. RCPCH Conference Societi attended the RCPCH Conference in May 2023 directly Attendance at RCPCH engaging with an estimated 200 individuals. 50 paediatric conference with a goal to practitioners at varying levels shared their contact details identify 10 further with Societi and all received Kawasaki Disease clinical learning hospitals with which to resources funded by the partnership programme. 7 key develop relationships and contacts were identified as new partners to the programme potential Kawasaki Disease making a total of 67 contacts across 43 UK hospitals. Ambassadors Kawasaki Disease Symposium Working with colleagues at Great Ormond Street Hospital, Deliver a Kawasaki Disease a Kawasaki Disease symposium took place in May 2023 to symposium to be recorded an assembly of over 150 doctors. The paediatric cardiology and shared online to all UK event was organised by Societi Scientific Advisory Board NHS Trusts and Health member, Dr Filip Kucera with Societi providing Kawasaki boards and all KD-CAAP Disease learning resources to all attendees. centres across Europe Hard copy information A hard copy issue of all newly developed and updated clinical Deliver/replenish hard copy resources, along with family and carer resources has been clinical information to all now been delivered to 67 key contacts at the 43 currently hospitals engaged (Min 45 engaged centres. Work will be undertaken to recruit to the centres) target number of 45 centres though our supporter base later in the year. Clinically backed report Further work has been completed to inform quantitative baseline data to the end of 2022. This additional gathered Deliver clinically backed data includes an extension to Societi Kawasaki Disease report including incidence data for NI, Scotland and Wales as well as NHS milestones reached, England incidence data. Societi’s qualitative Diagnosis Day changes in outcomes and study which includes data from nearly 80 families will shortly lives saved be published.
About Societi Foundation
Our activities - awareness raising
Our activities - clinical research
Our activities - clinical supervision
Our activities - support for UK families
Financial review
Structure, governance & management
Independent examiner’s statement
Statement of financial activities
Balance sheet
Notes to the financial statements
Detailed statement of financial activities
Societi Foundation - Annual Report & Accounts January 2023 - December 2023 Page 27
Our activities - clinical su ervision p
About Kawasaki Disease
Our activities around clinical supervision
Gaps exist in current provision for Kawasaki Disease children in their long term care. We work to close these gaps, as well as connect long term care to long term research. Click on the buttons below to find out about our activities around clinical supervision:
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Annual Report & Accounts Jan 2023 - Dec 2023
1
Launching our doctor training film
the film also benefits from the expertise of Dr Harsita Patel who brings her PIMS-TS knowledge to contrast this with Kawasaki Disease. The film also features our KD-CAAP trial, noting the importance of this research exploring adjunctive therapy for acute Kawasaki Disease.
Expertly created and carefully crafted specifically for healthcare professionals, our doctor’s training film was launched in January 2023. The film was shared as part of our Children’s Hospital Partnership Program and in our wider doctor training and awareness raising work and is RCPCH Education and Learning Committee endorsed.
We know that this crucial, expert-led training resource will do so much to train doctors, secure that all-important early diagnosis and ultimately, protect tiny hearts. Watch our clinician training film here.
Focusing on the acute management of Kawasaki Disease, and with discussion led by renowned Kawasaki Disease expert, Dr Jethro Herberg from Imperial College, London,
About Societi Foundation
Our activities - awareness raising
Our activities - clinical research
Our activities - clinical supervision
Our activities - support for UK families
Financial review
Structure, governance & management
Independent examiner’s statement
Statement of financial activities
Balance sheet
Notes to the financial statements
Detailed statement of financial activities
Societi Foundation - Annual Report & Accounts January 2023 - December 2023
Page 28
Our activities - clinical su ervision p
About Kawasaki Disease
Our activities around clinical supervision
Gaps exist in current provision for Kawasaki Disease children in their long term care. We work to close these gaps, as well as connect long term care to long term research. Click on the buttons below to find out about our activities around clinical supervision:
==> picture [382 x 24] intentionally omitted <==
----- Start of picture text -----
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Annual Report & Accounts Jan 2023 - Dec 2023
Attendance at the RCPCH Conference
resource, our patient facing Parent & Carer Guide, long term issues leaflets, clinical guidelines for long term care, laminated clinician and general awareness posters, TEMPERS leaflets, NICE guidance, Research papers on Kawasaki Disease, Diagnosis Day research postcards, symptom wallet cards and so much more.
We enjoyed an intensive, busy but very special and powerful few days for Kawasaki Disease awareness exhibiting at the Royal College of Paediatrics and Child Health annual conference in May 2023. The conversations we had showed a huge appetite for learning resources and doctors who wanted to know more!
HUGE THANKS too, to the incredibly supportive Randal Charitable Foundation - providing funding so we could be there - and for funding so many of the training resources that were so eagerly consumed!
Doctors visiting our stand devoured everything that we had on offer, which included Kawasaki Disease Resource Booklets, our ‘Little Book of Kawasaki Disease’ learning
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Our activities - clinical su ervision p
About Kawasaki Disease
Our activities around clinical supervision
Gaps exist in current provision for Kawasaki Disease children in their long term care. We work to close these gaps, as well as connect long term care to long term research. Click on the buttons below to find out about our activities around clinical supervision:
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Scottish postcard
These were particularly well-received among local clinicians attending the RCPCH and sunsequently the RCGP conference.
Produced especially for the 2023 RCPCH Conference in Glasgow in May we produced a resource, giving an accurate and current snapshot of Kawasaki Disease specifically in Scotland.
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About Kawasaki Disease
Our activities around clinical supervision
Gaps exist in current provision for Kawasaki Disease children in their long term care. We work to close these gaps, as well as connect long term care to long term research. Click on the buttons below to find out about our activities around clinical supervision:
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Annual Report & Accounts Jan 2023 - Dec 2023
- Received a copy of our clinical resource booklet
Training symposium; paediatric cardiology
Societi’s Scientific Advisory Board Member, Dr Filip Kucera, assembled over 150 doctors to talk and train on paediatric cardiology and Kawasaki Disease as key topics in May 2023. With funding generously donated from the Randal Charitable Foundation, we were able to promote the event ahead of time and share the event invitation with our network of doctors through social media.
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Received a copy of our “The Little Book of Kawasaki Disease”
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Heard from us - on the support we offer doctors to learn about Kawasaki Disease and support families affected. They were given our contact details so they can find out more - and get all our family and clinical resources, for use in their hospitals and for families in their care.
We were also able to ensure that everyone attending the event not only heard about a range of aspects of Kawasaki Disease, but they also;
…Sharing knowledge & supporting families affected by Kawasaki Disease
About Societi Foundation
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We are the UK Foundation for Kawasaki Disease; a parent-led charity (1173755) which is clinician backed
Here to help FAMILIES IN YOUR CARE with trusted information
Here to help YOU with resources, training materials & CPD
We are guided by clinical experts, carefully designing materials for families affected by Kawasaki Disease. Our resources help at every step – through diagnosis, recovery, returning to nursery/school – and beyond.
We’re committed to helping children’s doctors grow and update their knowledge of Kawasaki Disease. We’ve produced films, webinars, training packs and helped shape national guidelines. Our resources are FREE.
Download our guide for families and carers
Watch our RCPCH endorsed, expert-led discussion on Kawasaki Disease Acute Management
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About Kawasaki Disease
Our activities around clinical supervision
Gaps exist in current provision for Kawasaki Disease children in their long term care. We work to close these gaps, as well as connect long term care to long term research. Click on the buttons below to find out about our activities around clinical supervision:
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Attendance at the RCGP conference
After a successful fundraising campaign, we were able to take advantage of a smaller 2mx2m stand at charity rates and capitalised on a lot of the work/resources already completed through attendance at RCPCH conference earlier in the year. W GP specific resources were available for the conference too including promotion of the RCGP eLearning course.
As part of our World Heart Day campaign, we asked our supporters to help us hit our target to enable us to reach the RCGP conference in October 2023 - a conference attended by around 1,200 GPs, giving us the opportunity to meet them and talk to them about Kawasaki Disease. Our supporter survey feedback, told us we must get more GPs to know Kawasaki Disease. So many families experience delays in diagnosis at the early stage, including with their GP.
Attendance at the conference represented a unique opportunity to engage with GPs, raise awareness of Kawasaki Disease, highlight issues and promote our resources.
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About Kawasaki Disease
Our activities around clinical supervision
Gaps exist in current provision for Kawasaki Disease children in their long term care. We work to close these gaps, as well as connect long term care to long term research. Click on the buttons below to find out about our activities around clinical supervision:
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Societi had budgeted for renewal of the hosting for a further two years.
Renewal of our RCGP e-learning course
The initial commitment we made to have the RCGP host our e-learning course expired at the end of September 2023.
Promoting the course to GPs through attendance at the RCGP conference was particularly impactful and renewing the hosting of the course at this point was a significant opportunity.
RCGP provided a statistics report on the course which stated that there had been a great total unique access and user completion since the launch of the course.
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About Kawasaki Disease
Our activities around clinical supervision
Gaps exist in current provision for Kawasaki Disease children in their long term care. We work to close these gaps, as well as connect long term care to long term research. Click on the buttons below to find out about our activities around clinical supervision:
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from child to adult services.
Expert podcast – Kawasaki Disease into adulthood
As part of our drive to ensure doctors and health professionals THINK Kawasaki Disease, we produced a suite of five podcasts for release on World Heart Day based on the theme of ‘Kawasaki Disease into Adulthood’.
We are so grateful to our experts for their generosity in sharing their time, knowledge contributing to create such an incredibly important resource. Having shared them across our social media channels, they’ve been heard hundreds of time – that’s hundreds more doctors thinking about Kawasaki Disease and gaining an understanding of the implications of Kawasaki Disease into adulthood!
Our ‘umbrella episode’ in this series featured an interview with leading UK clinicians Dr Tom Johnson and Professor Rob Tulloh. They talk about the challenges faced by cardiologists with patients with both a known and unknown history of Kawasaki Disease and issues such as the transition of care
You can listen to our Kawasaki Disease into Adulthood expert podcast here.
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About Kawasaki Disease
Our activities around clinical supervision
Gaps exist in current provision for Kawasaki Disease children in their long term care. We work to close these gaps, as well as connect long term care to long term research. Click on the buttons below to find out about our activities around clinical supervision:
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based on a RCPCH training webinar given by Professor Robert Tulloh and Professor Paul Brogan.
Updating our Spotting Zebras information guide
An update to our ‘Spotting Zebras’ clinician’s information guide was made in 2023. Thanks to Trustees Professor Robert Tulloh and Professor Paul Brogan for their leadership and support with this project.
The updated document including the insert into our Children’s Hospital Partnership Program resource folder was reprinted before being taken to the RCPCH conference to take account of the changes.
Our Spotting Zebras booklet was originally produced
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About Kawasaki Disease
Our activities around clinical supervision
Gaps exist in current provision for Kawasaki Disease children in their long term care. We work to close these gaps, as well as connect long term care to long term research. Click on the buttons below to find out about our activities around clinical supervision:
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depth understanding of Kawasaki Disease that children need them to have. Armed with the knowledge this little book contains, doctors are brilliantly well placed to spot it, quickly, treat it urgently - and protect tiny hearts from serious harm.
The Little Book of Kawasaki Disease
Societi created this lovely little book - a doctor training resource – which is packed with lots of information, including things we think doctors will already know about Kawasaki Disease and perhaps things that they won’t (yet!).
Thanks to Dr Jethro Herberg, Dr Filip Kucera and Professor Robert Tulloh for authoring all the clinical content.
It’s aim is to help doctors quickly and easily, get the in-
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About Kawasaki Disease
Our activities around clinical supervision
Gaps exist in current provision for Kawasaki Disease children in their long term care. We work to close these gaps, as well as connect long term care to long term research. Click on the buttons below to find out about our activities around clinical supervision:
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Creating our Kawasaki Disease resource booklet for clinicians
for GPs. The booklets were taken to the RCPCH conference in May and the RCGP conference in October respectively.
The resource folders that were created for our Chilren’s Hospital Partnership Programme were so popular, that we decided to produce a more concise version that we could share with even more clinicians.
It really can’t be overstated just how popular these were (and continue to be) with clinicians who were very keen to take away copies with them.
Two versions of the booklet were created - one for paediatricians and hospital doctors and another specifically
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About Kawasaki Disease
Our activities around clinical supervision
Gaps exist in current provision for Kawasaki Disease children in their long term care. We work to close these gaps, as well as connect long term care to long term research. Click on the buttons below to find out about our activities around clinical supervision:
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Annual Report & Accounts Jan 2023 - Dec 2023
consider Kawasaki Disease in infants presenting with just an unexplained fever, and no other symptoms.
Poster updates
Societi regularly reviews and updates all the resources we produce.
Posters were replaced in all online locations and updated within our hard copy packs too.
Ahead of our exhibition at the 2023 RCPCH conference, key updates were made to our clinican’s and general awareness posters – emphasising the need for clinicians to
You can view and download a version of these posters by clicking the Images below.
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About Kawasaki Disease
Our activities around clinical supervision
Gaps exist in current provision for Kawasaki Disease children in their long term care. We work to close these gaps, as well as connect long term care to long term research. Click on the buttons below to find out about our activities around clinical supervision:
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The information in our clinicians area is well used and is regularly reviewed and updated with new information being added constantly.
Updating and reviewing our website clinician’s area
The information within the clincian’s area on our website includes learning information and resources, links to useful Kawasaki Disease research, papers on Kawasaki Disease Management and a clinician Q&A which has been created following many of the discussions we have had with clinicians during events, conferences and webinars.
To view the clinician’s area of our website, click here or on the image below.
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About Kawasaki Disease
Our activities around clinical supervision
Gaps exist in current provision for Kawasaki Disease children in their long term care. We work to close these gaps, as well as connect long term care to long term research. Click on the buttons below to find out about our activities around clinical supervision:
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Enabling delivery of training
children to be able to recognise Kawasaki Disease and treat it as an emergency.
Societi enabled training sessions for clinicians in both hospitals and GP surgeries throughout 2023 by providing our clinical learning resources to centres who requested them.
We’re very grateful to everyone who requested training packs and and delivered training that will help to protect children’s hearts and will truly make a difference for children who will be affected by Kawasaki Disease in their local area.
Sessions were held by supporters and/or staff at centres who know Kawasaki Disease and understand the need for all clinical staff who will come into contact with unwell
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About Kawasaki Disease
Our activities around clinical supervision
Gaps exist in current provision for Kawasaki Disease children in their long term care. We work to close these gaps, as well as connect long term care to long term research. Click on the buttons below to find out about our activities around clinical supervision:
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tests. The document underwent clinician review before circulation to Hospital Partnership contacts and uploading onto the Societi webpage. Thank you to Professor Robert Tulloh for making a review of the updated text before this was issued.
Updating our clincian frequently asked questions
Societi’s clinician FAQs were reviewed and updated in 2023. The document has now been split into different sections and additional questions have been added forming a section on long term management and another on cardiac emergency.
To view the FAQ document, click here or the image below.
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Frequently Asked Questions about Kawasaki Disease
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Kawasaki Disease is the leading cause of acquired heart disease in UK children...
...faster diagnosis and treatment can change that!
Statement of financial activities
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The UK Foundation for Kawasaki Disease
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societi.org.uk
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About Kawasaki Disease
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Our activities around support for UK families
We recognise that when faced with a diagnosis of Kawasaki Disease, support, expert backed information and helpful resources are of vital importance to families. Our work enables a sustained focus on family support. Click on the buttons below to find out about our activities around supporting UK families:
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Launching our family story films
similar situations.
Our family story films were released on International Kawasaki Disease Awareness Day, 26 January 2023.
The films have provided families affected by Kawasaki Disease with valuable information and reassurance derived from the familiarity of our supporters’ similar experiences.
Working with the Animations Guys a total of five family films were produced, including one with snippets from each story, and released on International Kawasaki Disease Awareness Day.
We are deeply grateful to the Randal Charitable Foundation and The Chemical Business Association, whose funding made it possible to create our new family story films.
Four fabulous volunteers – Alister, Manda, Olivia and Laura each generously contributed their time and their incredible stories to help other families going through
You can watch our family stories here.
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About Kawasaki Disease
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We recognise that when faced with a diagnosis of Kawasaki Disease, support, expert backed information and helpful resources are of vital importance to families. Our work enables a sustained focus on family support. Click on the buttons below to find out about our activities around supporting UK families:
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effects into adulthood. Each supporter superbly tells their story, highlighting the issues they have faced and the challenges they have overcome.
Kawasaki Disease into adulthood - supporter stories
As part of our podcast series ‘Kawasaki Disease into Adulthood’ for World Heart Day, Societi produced four supporter stories.
We are so grateful to our supporters for their generosity in sharing their time and their stories contributing to create such incredibly important resources.
Episodes in the series feature four incredible supporters, Rosie, Kris, James and Massoud, all of whom have been affected by Kawasaki Disease and have lived with the
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About Kawasaki Disease
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Our activities around support for UK families
We recognise that when faced with a diagnosis of Kawasaki Disease, support, expert backed information and helpful resources are of vital importance to families. Our work enables a sustained focus on family support. Click on the buttons below to find out about our activities around supporting UK families:
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Sharing family stories is also an extremely powerful way to raise awareness of Kawasaki Disease. It is our hope it will help grow understanding, awareness and knowledge about Kawasaki Disease.
Family story podcasts
On World Heart Day Societi released a series of family Kawasaki Disease story podcasts.
Thanks to the support and generosity of five remarkable supporters, these podcasts focused on the acute periods around Kawasaki Disease including issues around diagnosis and feature stories from supporters whose families have been affected. The stories highlight issues, challenges and insights into what can be an extremely difficult time.
Huge thanks to Sian, Alister, Manda, Laura and Olivia whose stories are unique, powerful and will make a huge difference to others experiencing a diagnosis of Kawasaki Disease in many so ways and raising much needed awareness.
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About Kawasaki Disease
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We recognise that when faced with a diagnosis of Kawasaki Disease, support, expert backed information and helpful resources are of vital importance to families. Our work enables a sustained focus on family support. Click on the buttons below to find out about our activities around supporting UK families:
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time of year by parents worried about fevers.
Some advice for the winter season
Societi Advisory Board member, Hon Professor Damian Roland, generously gave his time to share his expert knowledge around children’s illness over the winter period with our supporters.
We asked Hon Professor, Damian Roland, Consultant in Paediatric Emergency Medicine, to give our supporters some thoughts and reassurance.
We’re very grateful to Honorary Professor, Damian Roland for supporting us with the creation of this video.
We know the winter can be a tricky time with so many bugs, coughs and colds and we’re often contacted at this
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About Kawasaki Disease
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We recognise that when faced with a diagnosis of Kawasaki Disease, support, expert backed information and helpful resources are of vital importance to families. Our work enables a sustained focus on family support. Click on the buttons below to find out about our activities around supporting UK families:
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individuals from the panel to give them the option to get involved.
Societi supporter panel
Societi set up a supporter panel during 2023 to ensure that we continue to have our supporters at the heart of all our workstreams.
We want our Supporter panel to be as representative as possible across out supporter network which was extremely well received with 12 individuals from across the UK signing up intitially and more since. We will maintain an open invitation for this group and work to increase diversity.
The panel is a group of supporters who have agreed for us to contact them when we have pieces of work where a supporter view would be helpful, such as in developing a membership offer or designing and testing our resources. For each project we are able to approach a selection of
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About Kawasaki Disease
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We recognise that when faced with a diagnosis of Kawasaki Disease, support, expert backed information and helpful resources are of vital importance to families. Our work enables a sustained focus on family support. Click on the buttons below to find out about our activities around supporting UK families:
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We received a briiliant response to the survey which made it apparent that the majority of Societi supporters (78%) have followed us for over one year, with 50% having been involved with Societi for several years - which is just fantastic.
Societi Supporter survey
Reviewing what we do is part of keeping our information and services well-tuned into what supporters need. During 2023 we asked supporters to complete a short survey to tell us about how we have supported them, what more they need and where there are gaps, so we can focus our energy on these areas.
A report was produced summarising the findings with a series of prioritised recommendations for Societi to take forward.
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About Kawasaki Disease
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Our activities around support for UK families
We recognise that when faced with a diagnosis of Kawasaki Disease, support, expert backed information and helpful resources are of vital importance to families. Our work enables a sustained focus on family support. Click on the buttons below to find out about our activities around supporting UK families:
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Supporters direct our GP information
surgeries and supporters were also given the opportunity to donate £5 to guarantee their local surgery was included in the mailout.
After producing our brand new GP resource booklet in 2023 and it having such a brilliant reception from doctors at the RCGP conference, we asked supporters to nominate their local GP surgery to recieve a copy too.
Our GP resource booklets were greatly received with sureries contacting Societi to request further resources, information and training.
Founder, Rachael sponsored the postage and packing of the first 20 supporters to nominate their local GP
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About Kawasaki Disease
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We recognise that when faced with a diagnosis of Kawasaki Disease, support, expert backed information and helpful resources are of vital importance to families. Our work enables a sustained focus on family support. Click on the buttons below to find out about our activities around supporting UK families:
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The app would be a highly effective and desirable tool but explorations highlighted the cost of the app would be restrictive unless specifically funded.
Exploring a Societi application
The development of a Societi application that would help families through their Kawasaki Disease journey and help clinicians to access Kawasaki Disease information quickly was explored with an app developer in 2023.
Work is ongoing to seek funding for the app which we hope to develop in the future.
A discovery workshop was held with the developer and the initial stages of the structure and design of the app were investigated.
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Financial review
About Kawasaki Disease
Financial position
At the period end, the charity had total unrestricted reserves of £84,747 (2022: £100,156).
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Annual Report & Accounts Jan 2023 - Dec 2023
Reserves policy
Approach to reserves
The work of our charity is both planned and reactive. As well as planned works, such as the development and delivery of Societi-led projects, opportunities can be presented - or circumstances arise which demand an immediate response or a new approach. New funding opportunities also arise which may require match funding and in order to ensure we are well placed to take advantage of these, and through these address the challenges presented to UK children by Kawasaki Disease, reserves are held by Societi.
Context
Societi Foundation (Societi) has established a reserves policy to protect its activities by providing a financial comfort zone against an unpredictable environment and to make sufficient provision for future cash flow requirements to sustain our charitable activities. The policy also provides the framework for future strategic planning and decision-making. The development of an effective reserves policy will reduce the impact of financial risks upon the continuing operations of Societi.
Societi has grown into an established organisation and whilst maintaining minimal overheads, now employs a small staff team. As such, continuity planning for challenging circumstances that may arise are allowed for in the reserves. Trustees have considered operational costs when setting the reserves policy, current and planned commitments and the level of reserves set in this poilcy relects operating costs of around 6-9 months.
The reserves policy and the establishment of ranges is based upon an annual risk assessment of the internal and external operating environment, as well as having a due regard for the nature of activities under taken by Societi for our beneficiaries.
Scope
This policy relates to Societi Foundations operation as a charity with four strategic aims - to raise awareness, enhance clinical supervision, enable clinical research and support the UK Support Group. In setting this policy Trustees are aware that, as a newly established organisation our reserves policy will need to be under regular review and be adjusted appropriately to reflect growth in our organisation.
Our current modest reserves level reflects:
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the current level of turnover of the organisation.
-
the need to continue our primary operations - awareness raising - in the face of financial pressures Trustees have satisfied themselves that these can be continued with the modest financial provisions described in this policy.
Reserves
Societi Foundation holds unrestricted reserves derived from fundraiser income or donations that can be spent at the discretion of the Trustees in furtherance of any of Societi’s objectives.
- experience of establishing and growing Societi from a new organisation - Trustees have a proven track record of delivering the work of the charity within a small budget having started the charity without grants or access to donations/fundraising.
Range of reserves held
The target range for reserves has been set by Trustees at no less than £80,000. This policy remains under informal review (annually) and formal review (every 3 years) to ensure that, as a new charity with a rapidly changing financial environment (due to positive growth and an increasing supporter/fundraiser base) our reserves policy remains relevant and continues to act to appropriately safeguard the future operation of Societi. At the year end the charity had unrestricted reserves of £84,747 which included functional fixed assets of £690. The ‘free reserves available to the charity was £84,057 which is just above the minimum level per the reserves policy of £80,000.
About Societi Foundation
Our activities - awareness raising
Our activities - clinical research
Our activities - clinical supervision
Our activities - support for UK families
Financial review
Structure, governance & management
Independent examiner’s statement
Statement of financial activities
Balance sheet
Notes to the financial statements
Detailed statement of financial activities
Societi Foundation - Annual Report & Accounts January 2023 - December 2023
Page 50
Financial review
About Kawasaki Disease
Financial position
Annual Report & Accounts Jan 2023 - Dec 2023
At the period end, the charity had total unrestricted reserves of £84,747 (2022: £100,156).
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About Societi Foundation
Our activities - awareness raising
Financial Review
Management of reserves
Any reserves held in excess of the target percentage will be reviewed by Societi Foundation Trustees on a regular basis and an appropriate range of options will be considered, which might include releasing the funds to enhance delivery of Societi’s objectives. As we grow as a charity this reserves policy could be updated to include provisions such as investment of funds, to generate further income and allow the expansion of Societi’s work. As a young organisation our current focus is on actions to deliver against our objectives and grow our reach.
The movement of funds to and from the reserves identified above will be at the discretion of the Trustees.
Our activities - clinical research
Our activities - clinical supervision
Our activities - support for UK families
Reviewing our policy
The Charity Commission recommends that charities develop their reserves policy and their planning at the same time, recognising that strategic and financial planning informs the development of reserves policies and vice versa. Trustees recognise the importance of setting our operational budgets to identify peaks or troughs in cash flow and the reserves policy must ensure the troughs in funding can be met from reserves held.
Our reserves policy will be regularly reviewed in light of the changing funding and financial climate and other emerging risks. We publish our assessment of the risks that we are facing as part of our statutory accounts/ annual report.
This policy will also be amended in line with UK Government guidance, as amended.
Financial review
Structure, governance & management
Independent examiner’s statement
Statement of financial activities
Balance sheet
Notes to the financial statements
Detailed statement of financial activities
Societi Foundation - Annual Report & Accounts January 2023 - December 2023
Page 51
About Kawasaki Disease
Structure, governance and management
Governing document
The legal form of the charity is that of a Charitable Incorporated Organisation (CIO) which is controlled by its governing document, its constitution dated 10 July 2017.
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Annual Report & Accounts Jan 2023 - Dec 2023
2
Recruitment and appointment of new trustees
must match and exceed the level of ambition for our organisation as demonstrated by our current Trustees.
We will work to recruit Trustees not simply when vacancies occur, but when needs are identified. We will recruit through informal and formal processes - as may be needed and best suited to the Trustee position(s) which we have identified to fill.
Selecting Trustees - preparations
Prior to mapping out our selection process for Trustees joining Societi Foundation, Trustees are alerted to, and informed of existing and new rules regarding eligibility and automatic disqualification of charity Trustees. Any amendments to these provisions are circulated automatically to Trustees, and the most up to date guidance will be consulted at each point a recruitment process is considered (and always before commencement).
Appointment
Information on prospective Trustees including professional biographies and/or the findings from formal recruitment processes and/or references taken up will inform the appointment process. Trustees will make a majority decision on the appointment of any new Trustee(s) at a formally convened meeting of the Board of Trustees - whether within or outside of the cycle of planned meetings. This recognises that additional meetings may be called to confirm the appointment of a Trustee if needed.
Trustees are aware of the need for a balance of skills and abilities on our Board - as well as the need for available capacity in all Trustees if we are to achieve our objectives as a charity. A “hands-on” role is expected from all Trustees as we guide and grow our organisation. In determining the need for additional Trustees therefore we consider current skills, abilities and capacity - as well as horizon scanning for the skill sets and capacity we will need in order to achieve current and future plans.
Induction and training of new Trustees
Induction
We recognise that an appropriately organised induction for all new Trustees is vital. It is a gateway for both new trustees - helping them to get up to speed with the role, the organisation and their legal responsibilities.
Process to appoint Trustees
The procedures for electing or appointing new Trustees is set out in overview in our Constitution. Section 10 of the Societi Foundation Constitution notes:
Trustees are alert to the need for a strong induction which ensures we can provide evidence that the people in our organisation have an awareness and understanding of our ambitions and aims - but also, essentially, key policies and procedures such as health and safety and data protection. Our Trustee induction programme includes a variety of activities over a period of time, including:
(1) Apart from the first charity Trustees, every trustee must be appointed for a term of three years by a resolution passed at a properly convened meeting of the charity Trustees.
(2) In selecting individuals for appointment as charity trustees, the charity Trustees must have regard to the skills, knowledge and experience needed for the effective administration of the CIO.
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Meetings and introductions to other Trustees, beneficiaries, service users etc
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Invitations to events, meetings and presentations
We acknowledge that we are quorate with five Trustees but we recognise that, for a strong organisation, our aim is always to exceed this minimum number of Trustees and that our Trustee cohort should bring breadth of reach, capacity and energy, to ambitiously drive our organisation.
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A Trustee induction pack
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Buddying or coaching
About Societi Foundation
Our activities - awareness raising
Our activities - clinical research
Our activities - clinical supervision
Our activities - support for UK families
Financial review
Structure, governance & management
Independent examiner’s statement
Statement of financial activities
Balance sheet
Recruiting Trustees
As the requirements for Trustees within our growing charity are changing rapidly - mirroring the growth we experience and plan to continue to achieve, it is essential that Trustees joining Societi Foundation can be selected to meet these changing needs. Equally, it is essential that new Trustees are able to join the organisation and bring strong, positive contributions - and in doing this they
Notes to the financial statements
Detailed statement of financial activities
Societi Foundation - Annual Report & Accounts January 2023 - December 2023
Page 52
About Kawasaki Disease
Structure, governance and management
Governing document
The legal form of the charity is that of a Charitable Incorporated Organisation (CIO) which is controlled by its governing document, its constitution dated 10 July 2017.
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Annual Report & Accounts Jan 2023 - Dec 2023
Reference and administrative details
Thank you
Registered charity number
Our annual report is an important document for us as a charity. But it serves to do much more than that by helping anyone who reads it to get to know a little more about Societi and Kawasaki Disease than they did before.
1173755
Principal address
Victoria Court Holme Lane Winthorpe Newark Nottinghamshire NG24 2NU
For me, that’s a truly valuable outcome to have achieved. Sharing knowledge and growing the number of people who can recognise this often pernicious disease will always remain a core aim for Societi.
Thank you for reading our annual report. The time you’ve invested in understanding more about our work means such a lot.
Trustees
R Tulloh R E A Greenwood R D Greenwood G Higgins (resigned 7.6.24) P Brogan M W Danson (appointed 6.2.23) P T Ware (resigned 15.12.23)
With my very best wishes,
Rachael McCormack, Founder for Societi Foundation
Independent examiner
Wright Vigar Limited Chartered Accountants & Business Advisers 15 Newland Lincoln Lincolnshire LN1 1XG
Approved by order of the board of trustees on 27 August 2024 and signed on its behalf by:
....................................................................
R E A Greenwood - Trustee
About Societi Foundation
Our activities - awareness raising
Our activities - clinical research
Our activities - clinical supervision
Our activities - support for UK families
Financial review
Structure, governance & management
Independent examiner’s statement
Statement of financial activities
Balance sheet
Notes to the financial statements
Detailed statement of financial activities
Societi Foundation - Annual Report & Accounts January 2023 - December 2023
Page 53
About Kawasaki Disease
Independent examiner’s report
Independent examiner’s report to the Trustees of Societi Foundation
About Societi Foundation
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Annual Report & Accounts Jan 2023 - Dec 2023
Independent Examiner's Report to the Trustees of Societi Foundation
Independent examiner's report to the trustees of Societi Foundation
Our activities - awareness raising
Our activities - clinical research
I report to the charity trustees on my examination of the accounts of Societi Foundation (the Trust) for the year ended 31 December 2023.
Responsibilities and basis of report
As the charity trustees of the Trust you are responsible for the preparation of the accounts in accordance with the requirements of the Charities Act 2011 ('the Act').
I report in respect of my examination of the Trust's accounts carried out under Section 145 of the Act and in carrying out my examination I have followed all applicable Directions given by the Charity Commission under Section 145(5)(b) of the Act.
Our activities - clinical supervision
Our activities - support for UK families
Independent examiner's statement
I have completed my examination. I confirm that no material matters have come to my attention in connection with the examination giving me cause to believe that in any material respect:
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accounting records were not kept in respect of the Trust as required by Section 130 of the Act; or
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the accounts do not accord with those records; or
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the accounts do not comply with the applicable requirements concerning the form and content of accounts set out in the Charities (Accounts and Reports) Regulations 2008 other than any requirement that the accounts give a true and fair view which is not a matter considered as part of an independent examination.
I have no concerns and have come across no other matters in connection with the examination to which attention should be drawn in this report in order to enable a proper understanding of the accounts to be reached.
Financial review
Structure, governance & management
Independent examiner’s statement
Paul Colcomb FCCA
Wright Vigar Limited Chartered Accountants & Business Advisers 15 Newland Lincoln Lincolnshire LN1 1XG
Statement of financial activities
Balance sheet
27 August 2024
Notes to the financial statements
Detailed statement of financial activities
Societi Foundation - Annual Report & Accounts January 2023 - December 2023
Page 54
About Kawasaki Disease
Independent examiner’s report
Statement of financial activities for the year ended 31 December 2023
About Societi Foundation
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Annual Report & Accounts Jan 2023 - Dec 2023
| Unrestricted | Restricted | 2023 Total | 2022 Total | ||
|---|---|---|---|---|---|
| Notes | funds £ | funds £ | funds £ | funds £ | |
| INCOME AND ENDOWMENTS FROM | |||||
| Donations and legacies | 94,634 | 40,000 | 134,634 | 82,841 | |
| Other trading activities Other income |
2 | 4,925 1,588 |
- - |
4,925 1,588 |
14,223 5,095 |
| Total | 101,147 | 40,000 | 141,147 | 102,195 | |
| EXPENDITURE ON | |||||
| Raising funds | 18,763 | 15,750 | 34,513 | 36,015 | |
| Charitable activities | |||||
| Kawasaki Disease awareness | 97,793 | 24,250 | 122,043 | 89,235 | |
| Total | 116,556 | 40,000 | 156,556 | 125,250 | |
| NET INCOME / (EXPENDITURE) | (15,409) | - | (15,409) | 23,091 | |
| RECONCILIATION OF FUNDS | |||||
| Total funds brought forward | 100,156 | - | 100,156 | 123,247 | |
| TOTAL FUNDS CARRIED FORWARD | 84,747 | - | 84,474 | 100,156 |
Our activities - awareness raising
Our activities - clinical research
Our activities - clinical supervision
Our activities - support for UK families
Financial review
Structure, governance & management
Independent examiner’s statement
Statement of financial activities
Balance sheet
Notes to the financial statements
Detailed statement of financial activities
Societi Foundation - Annual Report & Accounts January 2023 - December 2023
Page 55
Independent examiner’s report
Balance sheet 31 December 2022
About Kawasaki Disease
About Societi Foundation
| Annual Report & Accounts Jan 2023 - Dec 2023 Notes Unrestricted funds £ Restricted funds £ Total FIXED ASSETS Intangible assets 7 157 - Tangible assets 8 533 - 690 - CURRENT ASSETS Stocks 9 1,991 - Debtors 10 23,240 - Cash at bank 64,621 - 89,852 - CREDITORS Amounts falling due within one year 11 (5,795) - NET CURRENT ASSETS 84,057 - TOTAL ASSETS LESS CURRENT LIABILITIES 84,747 - NET ASSETS 84,747 - FUNDS 12 Unrestricted funds Restricted funds TOTAL FUNDS 3 3 4 5 2 2 1 1 8 7 6 |
||
|---|---|---|
| 2023 funds £ Total 157 553 690 1,991 23,240 64,621 89,852 (5,795) 84,057 84,747 84,747 84,747 - 84,747 |
2022 funds £ 2,681 122 2,803 2,346 28,594 99,610 130,550 (33,197) 97,353 100,156 100,156 100,156 - 100,156 |
The financial statements were approved by the Board of Trustees and authorised for issue on 27 August 2024 and were signed on its behalf by:
R E A Greenwood - Trustee
Our activities - awareness raising
Our activities - clinical research
Our activities - clinical supervision
Our activities - support for UK families
Financial review
Structure, governance & management
Independent examiner’s statement
Statement of financial activities
Balance sheet
Notes to the financial statements
Detailed statement of financial activities
Societi Foundation - Annual Report & Accounts January 2023 - December 2023
Page 56
About Kawasaki Disease
Independent examiner’s report
Notes to the financial statement for the year ended 31 December 2023
About Societi Foundation
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Annual Report & Accounts Jan 2023 - Dec 2023
Intangible assets
1. Accounting policies
Amortisation is provided at the following annual rates in order to write off each asset over its estimated useful life. Website - 33% on cost
Basis of preparing the financial statements
The financial statements of the charity, which is a public benefit entity under FRS 102, have been prepared in accordance with the Charities SORP (FRS 102) ‘Accounting and Reporting by Charities: Statement of Recommended Practice applicable to charities preparing their accounts in accordance with the Financial Reporting Standard applicable in the UK and Republic of Ireland (FRS 102) (effective 1 January 2019)’, Financial Reporting Standard 102 ‘The Financial Reporting Standard applicable in the UK and Republic of Ireland’ and the Charities Act 2011. The financial statements have been prepared under the historical cost convention.
Tangible fixed assets
Depreciation is provided at the following annual rates in order to write off each asset over its estimated useful life. Computer equipment - 33% on cost
Stocks
Stocks are valued at the lower of cost and net realisable value, after making due allowance for obsolete and slow moving items.
Taxation
The charity is a Charitable Incorporated Organisation (CIO) registered with the Charity Commission in England and Wales.
The charity is exempt from tax on its charitable activities.
Fund accounting
Unrestricted funds can be used in accordance with the charitable objectives at the discretion of the trustees.
Financial reporting standard 102 - reduced disclosure exemptions
Restricted funds can only be used for particular restricted purposes within the objects of the charity. Restrictions arise when specified by the donor or when funds are raised for particular restricted purposes.
The charity has taken advantage of the following disclosure exemption in preparing these financial statements, as permitted by FRS 102 ‘The Financial Reporting Standard applicable in the UK and Republic of Ireland’:
Further explanation of the nature and purpose of each fund is included in the notes to the financial statements.
- the requirements of Section 7 Statement of Cash Flows.
Income
All income is recognised in the Statement of Financial Activities once the charity has entitlement to the funds, it is probable that the income will be received and the amount can be measured reliably.
Donations in kind are valued at the market rate of the services donated.
Our activities - awareness raising
Our activities - clinical research
Our activities - clinical supervision
Our activities - support for UK families
Financial review
Structure, governance & management
Independent examiner’s statement
Statement of financial activities
Expenditure
Liabilities are recognised as expenditure as soon as there is a legal or constructive obligation committing the charity to that expenditure, it is probable that a transfer of economic benefits will be required in settlement and the amount of the obligation can be measured reliably. Expenditure is accounted for on an accruals basis and has been classified under headings that aggregate all cost related to the category. Where costs cannot be directly attributed to particular headings they have been allocated to activities on a basis consistent with the use of resources.
Balance sheet
Notes to the financial statements
Detailed statement of financial activities
Societi Foundation - Annual Report & Accounts January 2023 - December 2023
Page 57
About Kawasaki Disease
Independent examiner’s report
Notes to the financial statement for the year ended 31 December 2023
About Societi Foundation
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| 2. OTHER TRADING ACTIVITIES | 2023 £ | 2022 £ | |
|---|---|---|---|
| Fundraising events | 2,759 | 12,317 | |
| Merchandise income | 2,166 | 1,906 | |
| 4,925 | 14,223 | ||
| 3. SUPPORT COSTS | Other £ | Governance costs £ | Totals £ |
| Kawasaki Disease awareness | 30,506 | 1,140 | 31,646 |
| Support costs, included in the above, are as follows: | 2023 Kawasaki Disease awareness £ |
2022 Total activities £ |
|
| Postage and stationery Insurance |
6,783 187 |
2,716 185 |
|
| Accountancy | 626 | 577 | |
| Offce costs | 8,872 | 9,886 | |
| Legal and professional fees | 622 | - | |
| Administrative staff costs | 10,504 | 11,665 | |
| Amortisation of intangible fxed assets | 2,523 | 3,299 | |
| Depreciation of tangible fxed assets | 389 | 238 | |
| Independent Examination | 1,140 | 1,032 | |
| 31,646 | 29,598 | ||
| 4. INDEPENDENT EXAMINATION | £ | £ | |
| Independent examination fee | 1,140 | 1,032 | |
| 5. TRUSTEES’ REMUNERATION AND BENEFITS | |||
| There were no trustees’ remuneration or other benefts for the year ended 31 December 2023 nor for the year | ended 31 | ||
| December 2022. | |||
| Trustees’ expenses There were no trustees’ expenses paid for the year ended 31 December 2023 nor |
for the year ended 31 December 2022. | ||
| 6. STAFF COSTS | 2023 £ | 2022 £ | |
| Wages and salaries | 45,424 | 48,564 | |
| Social security costs | - | 1,260 | |
| Other pension costs | 878 | 1,150 | |
| 46,302 | 50,974 | ||
| No employees received employee benefts over £60,000. The average monthly number of employees during the year was as follows: |
|||
| 2023 | 2022 | ||
| Administration | 1 | 2 | |
| No employees received emoluments in excess of £60,000. |
Our activities - awareness raising
Our activities - clinical research
Our activities - clinical supervision
Our activities - support for UK families
Financial review
Structure, governance & management
Independent examiner’s statement
Statement of financial activities
Balance sheet
Notes to the financial statements
Detailed statement of financial activities
Societi Foundation - Annual Report & Accounts January 2023 - December 2023
Page 58
About Kawasaki Disease
Independent examiner’s report
Notes to the financial statement for the year ended 31 December 2023
About Societi Foundation
| Annual Report & Accounts Jan 2023 - Dec 2023 7. INTANGIBLE FIXED ASSETS COST At 1 January 2023 and 31 December 2023 AMORTISATION At 1 January 2023 Charge for year At 31 December 2023 NET BOOK VALUE At 31 December 2023 At 31 December 2022 8. TANGIBLE FIXED ASSETS COST At 1 January 2023 Additions At 31 December 2023 DEPRECIATION At 1 January 2023 Charge for year At 31 December 2023 NET BOOK VALUE At 31 December 2023 At 31 December 2022 9. STOCKS Stocks 10. DEBTORS: AMOUNTS FALLING DUE WITHIN ONE YEAR Trade debtors Prepayments and accrued income 11. CREDITORS: AMOUNTS FALLING DUE WITHIN ONE YEAR Trade creditors Taxation and social security Other creditors 3 3 4 5 2 2 1 1 8 7 6 |
Website £ - 11,932 9,251 2,524 11,775 157 2,681 Computer equipment £ 713 799 1,512 591 388 979 533 122 2023 £ 2022 £ 1,991 2,346 2023 £ 2022£ 18,588 1 4,652 28,594 23,240 28,595 2023 £ 2022 £ - 1 984 613 4,811 32,584 5,795 33,198 |
|---|---|
Our activities - awareness raising
Our activities - clinical research
Our activities - clinical supervision
Our activities - support for UK families
Financial review
Structure, governance & management
Independent examiner’s statement
Statement of financial activities
Balance sheet
Notes to the financial statements
Detailed statement of financial activities
Societi Foundation - Annual Report & Accounts January 2023 - December 2023
Page 59
About Kawasaki Disease
Independent examiner’s report
Notes to the financial statement for the year ended 31 December 2023
About Societi Foundation
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Annual Report & Accounts Jan 2023 - Dec 2023
| 12. MOVEMENT IN FUNDS | At 1.1.23 £ | Net movement in funds £ |
At 31.12.23 £ |
|---|---|---|---|
| Unrestricted funds General fund TOTAL FUNDS |
100,156 100,156 |
(15,409) (15,409) |
- (15,409) (15,409) |
| Net movement in funds, included on the | Incoming | Resources expended | Movement in funds |
| previous page are as follows: | resources £ | £ | £ |
| Unrestricted funds | |||
| General fund | 101,147 | (116,556) | (15,409) |
| Restricted funds | |||
| Randal Charitable Foundation | 40,000 | (40,000) | - |
| TOTAL FUNDS | 141,147 | (156,556) | (15,409) |
| Comparatives for movement in funds | At 1.1.22 £ | Net movement in funds £ |
At 31.12.22 £ |
| Unrestricted funds | |||
| General fund | 103,247 | (3,091) | 100,156 |
| Restricted funds | |||
| Randal Charitable Foundation | 20,000 | (20,000) | - |
| TOTAL FUNDS Comparative net movement in funds, included in the above are as follows |
123,247 Incoming resources £ |
(23,091) Resources expended £ |
10156 Movement in funds £ |
| Unrestricted funds | |||
| General fund | 102,159 | (105,250) | (3,091) |
| Restricted funds | |||
| Randal Charitable Foundation | - | (20,000) | (20,000) |
| TOTAL FUNDS | 102,159 | (125,250) | (23,091) |
Randal Charitable Foundation Fund - The fund arose from a grant made to Societi to focus on building a strategic partnership with children’s hospitals in the UK promoting awareness campaigns and engagement initiatives for Kawasaki Disease.
13. RELATED PARTY DISCLOSURES
Our activities - awareness raising
Our activities - clinical research
Our activities - clinical supervision
Our activities - support for UK families
Financial review
Structure, governance & management
Independent examiner’s statement
Statement of financial activities
During the period, the Charity received donated services of £45,850 (2022: £10,517) from Lanarca Limited, a company in which trustees R E A Greenwood and R D Greenwood are directors.
Professor Paul Brogan and Professor Robert Tulloh, Societi Foundation Trustees, are both professionally associated with the KDCAAP trial from which Societi Foundation has been contacted as PPI lead. Neither Professor Brogan or Professor Tulloh have been involved in the decision making to appoint Societi Foundation as a contractor for the clinical trial and any discussions between Trustees at Board level around the KD-CAAP trial are subject to full disclosure.
Balance sheet
Notes to the financial statements
Detailed statement of financial activities
Societi Foundation - Annual Report & Accounts January 2023 - December 2023
Page 60
About Kawasaki Disease
Independent examiner’s report
Detailed statement of financial activities for the Year Ended 31 Dec 2023
About Societi Foundation
| Societi Foundation - Annual Report & Accounts January 2023 - December 2023 Annual Report & Accounts Jan 2023 - Dec 2023 INCOME AND ENDOWMENTS 2023 £ Donations and legacies Donations 20,503 Gift aid 400 Grants 67,881 Gifts in kind 45,850 134,634 Other trading activities Fundraising events 2,759 Merchandise income 2,166 4,925 Other income Other Income 1,588 Total incoming resources 141,147 EXPENDITURE Raising donations and legacies Wages 22,712 Social security - Pensions 439 Fundraising costs 5,514 28,665 Other trading activities Opening stock 2,346 Purchases 5,493 Closing stock (1,991) 5,848 Charitable activities Wages 22,712 Social security - Pensions 439 Subscriptions 2,005 Advertising - Travel and subsistence 2,879 Resource Films 15,840 Donated services 45,850 Kawasaki Course Development 672 90,397 Support costs Other Postage and stationery 6,783 Insurance 187 Accountancy 626 Offce costs 8,872 Legal and professional fees 622 Administrative staff costs 10,504 Computer software 2,523 Computer equipment 389 30,506 Governance costs Independent Examination 1,140 Total resources expended 156,556 NET (EXPENDITURE)/INCOME (15,409) 3 3 4 5 2 2 1 1 8 7 6 |
Our activities - awareness raising Our activities - clinical research Our activities - clinical supervision Our activities - support for UK families Financial review Structure, governance & management Independent examiner’s statement Statement of fnancial activities Balance sheet Notes to the fnancial statements Detailed statement of fnancial activities Page 61 2022 £ 40,004 2,389 29,931 10,517 82,841 12,317 1,906 14,223 5,095 102,159 24,282 630 575 7,569 33,056 1,388 3,917 (2,346) 2,959 24,282 630 575 278 54 2,161 21,140 10,517 - 59,637 2,716 185 577 9,886 - 11,665 3,299 238 28,566 1,032 125,250 (23,091) |
|---|---|
Detailed statement of financial activities
About Kawasaki Disease
About Societi Foundation
Our activities - awareness raising
Our activities - clinical research
Our activities - clinical supervision
Our activities - support for UK families Financial review Structure, governance & management Independent examiner’s statement Statement of financial activities Balance sheet
Societi Foundation is a registered charity in England & Wales, number 1173755
Societi Foundation Victoria Court, Holme Lane Winthorpe, Newark NG24 2NU
info@societi.co.uk
Notes to the financial statements Detailed statement of financial activities