**Societi Foundation Annual Report & Accounts** _1 January 2021 - 31 December 2021 Registered charity number 1173755_
_societi.org.uk_
_Societi Foundation Annual Report and Accounts January 2021 - December 2021_
**Annual** _Independent_ **Report** _Examiner’s Report_
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About Societi Foundation
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Our Activities -
Clinical Research
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Our Activities - Support
for UK Families
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Structure, Governance
& Management
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## _About Kawasaki Disease_
## _Kawasaki Disease symptoms_
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Rash
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Cracked lips/ Bloodshot Swollen Swollen ‘strawberry’ eyes glands fingers/toes tongue
**Persistent fever**
## Kawasaki Disease is the **leading cause of acquired heart disease in children in the UK.**
It is a type of vasculitis that mainly affects young children but it can affect people of any age – and its impact can be most serious in the very young, particularly infants. Identified in 1967 in Japan by Dr Tomisaku Kawasaki, the cause of Kawasaki Disease is still unknown. The illness presents with several symptoms common to a variety of other childhood diseases and infections and is therefore often misdiagnosed. Kawasaki Disease is a serious disease which can cause coronary artery damage and life-long heart disease.
Kawasaki Disease has a range of symptoms including a characteristic and distinctively persistent high fever for five days or more, rash, bloodshot eyes, “strawberry” tongue, cracked, dry lips, redness of the fingers and toes and swollen glands in the neck. Kawasaki Disease can be present with some or all of these symptoms and symptoms often appear in series (i.e. not all at once).
**Kawasaki Disease is increasingly common.** The above graph, based on Societi’s study on hospital admissions for Kawasaki Disease shows there are up to 1,000 hospital admissions in the UK every year. Once thought of as a rare disease, this now outdated idea, wrongly held on to by some, leads to delayed diagnosis and with this, increased risk of serious heart damage for children. In the ten years to 2015, hospital admissions for Kawasaki Disease in England increased fourfold – and across the globe cases are doubling every ten years. This is why it is the leading cause of acquired heart disease in UK children. We are working to raise awareness to make sure that doctors EXPECT to see Kawasaki Disease and are READY to treat it.
Kawasaki Disease should always be considered in any child with unexplained persistent fever. It is a serious illness that can cause damage to the blood vessels in the heart, and leads to acquired heart disease in about one in five affected children.
Children with Kawasaki Disease have much improved chances of a good recovery with timely diagnosis and the correct treatment. Studies show that children treated early have a lower risk of serious heart damage than those treated later. Doctors should aim to diagnose and treat children as soon as possible – at five days of fever or as quickly as practical after that. Research has shown that the risk of heart damage increases with increasing delay.
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_Societi Foundation Annual Report and Accounts January 2021 - December 2021_
**Annual** _Independent_ **Report** _Examiner’s Report_
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About Societi Foundation
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Our Activities -
Clinical Research
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Our Activities - Support
for UK Families
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Structure, Governance
& Management
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## _About Societi Foundation_
Societi was established in 2015 to raise awareness of Kawasaki Disease. We are an influencing and policy shaping organisation working through partnerships to drive transformational change in awareness across the UK, about Kawasaki Disease. Progress in understanding Kawasaki Disease has been severely hampered by poor levels of awareness, lack of investment and lack of essential research in the UK.
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supporters, partners, funders and anyone who reads it to get to know a little more about Societi and Kawasaki Disease - something which is hugely valuable.
backdrop of Covid 19 which has restricted us, like so many organisations. Limits on staff coming together have had an impact on our team, virtual and online Trustee meetings have shifted the dynamic too -and most significantly, the constraints faced by families during lockdowns and the far reaching impact of Covid 19 has limited fundraiser activities, awareness work and more.
Our ambition is that EVERYONE knows Kawasaki Disease. In the UK today, affected children face the same poor prospects in terms of outcomes as they did 20 years ago. We want to change that.
**Report of the trustees -** The trustees present their report with the financial statements of our charity for the year ended 31 December 2021. The trustees have adopted the provisions of Accounting and Reporting by Charities: Statement of Recommended Practice applicable to charities preparing their accounts in accordance with the Financial Reporting Standard applicable in the UK and Republic of Ireland (FRS 102) (effective 1 January 2019).
The perception of Kawasaki Disease as a rare illness hampers UK research which is stifled by a lack of funds. It also hampers clinical resource allocation and long term clinical support that research shows families need. A lack of awareness of the true incidence of Kawasaki Disease among ‘front line’ clinicians needs to be addressed, in order for Kawasaki Disease to be considered as a possible diagnosis at an early stage, in any child with a persistent fever..
We have faced these challenges with resolve and with bold choices by our trustees, to continue our urgent work with unrelenting determination. Trustees recognise too that the impact of Covid 19 will be lasting, and our continued growth as an organisation and future success will depend on continued strong leadership from our trustees, support from influential partners and the growth of our amazing community of supporters who volunteer and carry out so much of our work.
**Public benefit** - In setting our objectives and planning our activities our Trustees have given careful consideration to the Charity Commission’s guidance on public benefit. In the pages which follow our delivery and impact during January 2021 - December 2021 is set out.
We enable urgently needed research and pursue changing policy and clinical practice for Kawasaki Disease. Not enough is known about Kawasaki Disease, its symptoms or its treatment. Long term care for affected families is limited. Many agencies, doctors and parents are unaware of the disease. We are changing this.
**Societi Foundation and Covid 19** - In setting out this report, whilst much has been achieved during the year to December 2021, it must be recognised that this has been once again with the very challenging
This annual report is an important document and has been prepared by Societi Foundation for submission to the Charity Commission. It also serves to help
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_Societi Foundation Annual Report and Accounts January 2021 - December 2021_
## _About Societi Foundation_
Societi was established in 2015 as an organisation to raise awareness of Kawasaki Disease – a disease which affects hundreds of children in the UK each year. Societi is an influencing and policy shaping organisation which works through partnerships to drive transformational change in awareness across the UK, about Kawasaki Disease.
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## _Our Objectives and Activities_
**Annual** _Independent_ **Report** _Examiner’s Report_
- The advancement of education for the public benefit into the causes, detection and treatment of Kawasaki disease, by such charitable means as the Trustees shall from time to time determine.
- The promotion of research into the prevention, diagnosis, causes and treatment of Kawasaki disease by such charitable means as the Trustees shall from time to time determine.
**Significant activities -** Societi has four activity areas around which all our actions and operations are focussed. These are as follows:
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**Awareness raising-** We raise awareness of Kawasaki Disease to improve prompt diagnosis - through a dynamic multi media campaign, reaching GPs, paediatric clinicians, health professionals and parents.
**Clinical research -** We work to identify funds and lever efforts building on enhanced awareness of need, to undertake and urgently advance critical research to understand, diagnose and manage Kawasaki Disease
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Our Activities -
Clinical Research
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**Clinical supervision -** Gaps exist in current provision for Kawasaki Disease children in their long term care. We work to close these gaps, as well as connect long term care to long term research
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Our Activities - Support
for UK Families
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**Support for UK families -** Keep a sustained focus on support for families affected by Kawasaki Disease by way of development and maintenance of Kawasaki information to help support informed decision making. Provide opportunities for affected families to share experiences and to access advice and emotional support.
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Structure, Governance
& Management
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## **Our Values**
**Priority** - We will work with others to enable them to recognise Kawasaki Disease as a priority
**Pace** - We will act quickly with a momentum that comes from our motivation to succeed
**Partnership** - We will forge strong and lasting, partnerships with organisations who share our determination to transform the environment around Kawasaki Disease in the UK, and beyond.
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_societi.org.uk_
## _About Societi Foundation_
Our five Trustee Board Members, Ms Rachael McCormack, Prof Robert Tulloh, Prof Paul Brogan, Mr Roger Greenwood, and Mr Gerry Higgins bring together a strong combination of skills and expertise to drive and direct the work of our charity.
## _Societi Foundation_
_Annual Report and Accounts January 2021 - December 2021_
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## _Our Trustee Board_
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About Societi Foundation
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Our Activities -
Clinical Research
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Our Activities - Support
for UK Families
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Structure, Governance
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## **Rachael McCormack FCMI FInstLM**
Rachael is the Founder of Societi Foundation – and was inspired to create our charity after her family was affected by Kawasaki Disease. She’d found support lacking, and facts few and far between – and so undertook to create our charity to support other families facing, and living with this illness. Rachael has experience across the third sector, public and private sectors, and leads a consultancy firm she established in 2003. Rachael holds post graduate qualifications in management, is an active researcher and together with our Board, sets the tempo for our growing organisation.
## **Professor Robert Tulloh**
Rob, MA DM FRCPCH Honorary Professor of Congenital Cardiology and pulmonary hypertension (retired), is an internationally recognised expert in Kawasaki Disease. Rob led the largest Kawasaki Disease clinic in the UK and the only Adult Kawasaki Disease clinic. He is an active researcher and teacher, and has supported Societi since before its formal establishment. Today, as a Trustee, Rob brings a wealth of expert clinical and broader oversight for our organisation.
## **Professor Paul Brogan**
Paul is Professor of Vasculitis and Honorary Consultant Paediatric Rheumatologist at Great Ormond Street Hospital (GOSH). An expert in Kawasaki Disease, Paul leads a successful clinical and academic programme of work dedicated to the developing field of paediatric vasculitis and autoinflammatory diseases, including Kawasaki Disease. He is also Chair of the Vasculitis Consortium, and Clinical Lead for Autoinflammatory Disease at GOSH – and contributes to both the clinical and strategic trajectory of our charity.
## **Roger Greenwood FLI**
Roger is a Landscape Architect and master planner by profession, and has been a businessman throughout his career with diverse sector experience. He was the Chief Examiner for his industry professional body for seven years and has been mentor to a vast community of emerging professionals to support them as they developed their practice. He is also, most importantly, a parent of a child affected by Kawasaki Disease. This immensely valuable experience combination of experience and knowledge brings scrutiny, wide ranging skills and support to our charity.
## **Gerry Higgins**
Gerry is Managing Director of the Social Enterprise World Forum CIC – a fast growing global organisation which he founded and leads, proactively enabling the development of a global social impact economy. With a BA in Education and a MSc in Business Studies and decades of experience working in, establishing and supporting third sector organisations, Gerry brings in depth expertise in recognising and addressing the challenges of third sector organisational sustainability and leadership to Societi.
Our Board is also supported by:
## **Paul Colcomb, Independent Examiner**
Paul is a Partner at Wright Vigar, the retained financial specialists and accountants for Societi Foundation – bringing extensive expertise in charitable organisation structures and financial matters. Paul supports both the team and the Board in financial reporting, annual reporting and Charity governance requirements.
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## _Societi Foundation_
_Annual Report and Accounts January 2021 - December 2021_
## _About Societi Foundation_
We work with pace, passion and through partnership to create high visibility for Kawasaki Disease and bring about the transformation our children deserve in their care. We aim to increasingly enable correct care for the thousands of children, young people and adults previously affected by Kawasaki Disease - and through expanded knowledge, stem the rising number of children carrying a lifelong legacy of heart damage. They cannot act for themselves. So Societi must.
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## _Our Organisational Structure_
**Annual** _Independent_ **Report** _Examiner’s Report_
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About Societi Foundation
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Our Activities -
Clinical Research
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Our Activities - Support
for UK Families
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Structure, Governance
& Management
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Board of Trustees Kawasaki Disease UK
Steering Group
(Societi chair)
Societi Scientific
Advisory Board
Leadership and
Operational Activities Key Partnerships
Societi Foundation Core
Volunteers & Staff Team
Key:
Volunteers &
Fundraisers Key links
Societi Supporters
Management
& information
flows
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_Societi Foundation Annual Report and Accounts January 2021 - December 2021_
**Annual** _Independent_ **Report** _Examiner’s Report_
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About Societi Foundation
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Our Activities -
Clinical Research
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Our Activities - Support
for UK Families
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Structure, Governance
& Management
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## _About Societi Foundation_
## _Acknowledging our partners_
By working in partnership, we can achieve our stated aims and those shared aims of our partners and stakeholders. In partnership we can have greater impact, work with increased pace and reach; and create the urgently needed step change for Kawasaki Disease.
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We place huge importance on partnership and relationships – the issues we face are huge and we know we simply can’t tackle them alone. If we are to make real progress for our children – if we are to protect tiny hearts from the serious threat of Kawasaki Disease – and if we are to learn and share much more about this serious and enigmatic disease – we need strong partnerships.
Our partners, stakeholders and organisations we are in dialogue with are many and varied – and we are so grateful to those who support us by bringing influence, helping us make impact – and those who support us financially.
We are very thankful to receive support from a number of organisations including Clear Channel, The Randal Charitable Foundation Lanarca, Microsoft, Adobe and Google whose donated services and/ or financial support during the period have expedited the work of Societi in a way that otherwise would not be achievable by our young charity.
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## _Societi Foundation_
_Annual Report and Accounts January 2021 - December 2021_
**Annual** _Independent_ **Report** _Examiner’s Report_
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About Societi Foundation
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Our Activities -
Clinical Research
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## _About Societi Foundation_
## _Our future plans_
In 2021, Societi Foundation reported on achievements from its first UK National Strategy for Kawasaki Disease, and comprehensively revised the strategy with ambitious targets for the five years ahead. Our aim remains the same - to tackle the leading cause of acquired heart disease in children in the UK and it defines the focus areas for our work, going forward.
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In 2016, Societi Foundation led the development of the first ever UK Strategy for Kawasaki Disease. This important document successfully directed the focus of the first five years of work by our charity. In that time much has been achieved, working through partnerships and creating change across the landscape of Kawasaki Disease.
In 2021, to take our work and our organisation forward, building on the successes to date, Societi has both celebrated our achievements since publishing that strategy, and developed a fully refreshed strategy. This takes into account a review of Societi’s core purpose, the current Kawasaki Disease environment, new evidence available from research and resources and capabilities available to our organisation.
Our strategy is a starting point from which to engage with partners to discuss mutual opportunities to address the challenges we collectively face and to drive the work of Societi Foundation.
Societi’s aims have been reviewed against all the evidence currently available and remain aligned to the aims of the 2016 strategy with an exception of an update to Family Support to enable a sustained focus in this area.
To read our National Strategy for 2021 - 2025 click here.
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_societi.org.uk_
## _Societi Foundation_
_Annual Report and Accounts January 2021 - December 2021_
**Annual** _Independent_ **Report** _Examiner’s Report_
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About Societi Foundation
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Our Activities -
Clinical Research
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Our Activities - Support
for UK Families
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Structure, Governance
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## _Awareness Raising_
## _Activities around raising awareness of Kawasaki Disease_
We raise awareness of Kawasaki Disease to improve prompt diagnosis - through multi media campaigns, reaching GPs, paediatric clinicians, health professionals and parents. Click on the buttons below to find out about our activities around raising awareness of Kawasaki Disease:
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## _Clear Channel helping to Get Kawasaki Disease known!_
Once again, the exceptional team at Clear Channel generously donated advertising space for a whole week, in January 2021, including on Awareness Day (26 January), to help us get Kawasaki Disease known, reaching tens of thousands of people!
All week, Societi’s campaign was displayed on Clear Channel’s spectacular Adshel Live and Storm Board digital screen network - in shopping centres, on busy streets and city centres, even on huge screens at the side of motorways - right across the UK!
The campaign raised awareness of Kawasaki Disease across the UK to levels which otherwise Societi would not be able to obtain.
We are so grateful to the incredible team at Clear Channel for this huge act of kindness, their continuing support, help and advice and for their phenomenal commitment to growing their #PlatformForGood Clear Channel Outdoor.
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## _Societi Foundation_
_Annual Report and Accounts January 2021 - December 2021_
## _Awareness Raising_
## _Activities around raising awareness of Kawasaki Disease_
We raise awareness of Kawasaki Disease to improve prompt diagnosis - through multi media campaigns, reaching GPs, paediatric clinicians, health professionals and parents. Click on the buttons below to find out about our activities around raising awareness of Kawasaki Disease:
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## _Press coverage_
**Annual** _Independent_ **Report** _Examiner’s Report_
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About Societi Foundation
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Our Activities -
Clinical Research
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Societi successfully published an article as part of our World Heart Day 2021 awareness campaign, in News Medical.
News Medical are one of the world’s leading open-access medical and life science hubs with a global reach of 121 million annual visitors worldwide – their weight behind our work is just immense and means a great deal.
This is an important milestone for Societi Foundation – with support from such a trusted life sciences and medical publication, physicians across the globe will read our article and will now know to think Kawasaki Disease. And by doing this we are delivering on our aim - to put Kawasaki Disease at the forefront of doctor’s minds.
The article is available to read here.
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## _Societi Foundation_
_Annual Report and Accounts January 2021 - December 2021_
**Annual** _Independent_ **Report** _Examiner’s Report_
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About Societi Foundation
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Our Activities -
Clinical Research
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## _Awareness Raising_
## _Activities around raising awareness of Kawasaki Disease_
We raise awareness of Kawasaki Disease to improve prompt diagnosis - through multi media campaigns, reaching GPs, paediatric clinicians, health professionals and parents. Click on the buttons below to find out about our activities around raising awareness of Kawasaki Disease:
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## _Work starts on new awareness animation_
Towards the end of 2021, Societi started work on the production of a new awareness raising animation.
Working with creative experts, The Animation Guys, we set out to create an animation that would give people key information about Kawasaki Disease. We wanted the animation to centre around our well known Societi Kids, and give a fresh feel to our awareness raising, while keeping true to our trusted brand.
Planning for the creation of the animation, and our initial investment in this important film started in October 2021, for a release on 26 January 2022 - International Kawasaki Disease Awareness Day.
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## _Societi Foundation_
_Annual Report and Accounts January 2021 - December 2021_
**Annual** _Independent_ **Report** _Examiner’s Report_
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About Societi Foundation
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Clinical Research
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## _Awareness Raising_
## _Activities around raising awareness of Kawasaki Disease_
We raise awareness of Kawasaki Disease to improve prompt diagnosis - through multi media campaigns, reaching GPs, paediatric clinicians, health professionals and parents. Click on the buttons below to find out about our activities around raising awareness of Kawasaki Disease:
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## **Click on the logos below to visit our social media platforms and take a look at our online awareness raising work:**
## _Campaigning and awareness raising online_
Societi’s social media channels are essential to our work in raising awareness of Kawasaki Disease throughout the UK. It is one of the most efficient and effective ways to get our message to as many people as possible including parents, carers and clinicians.
Our Marketing, Media and Digital Lead continues to work to expand the reach we have through daily posts and campaigns on Facebook, Twitter Instagram and Linkedin. As our social media following continues to grow, we are able to achieve greater levels of engagement, consistently furthering our reach.
We will continue to invest in our online campaigns and work hard to raise awareness via effective digital marketing initiatives.
_societi.org.uk_
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## _Societi Foundation_
_Annual Report and Accounts January 2021 - December 2021_
**Annual** _Independent_ **Report** _Examiner’s Report_
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## _Awareness Raising_
## _Activities around raising awareness of Kawasaki Disease_
We raise awareness of Kawasaki Disease to improve prompt diagnosis - through multi media campaigns, reaching GPs, paediatric clinicians, health professionals and parents. Click on the buttons below to find out about our activities around raising awareness of Kawasaki Disease:
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## _Supporting our Supporters_
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We never cease to be astonished by the absolute dedication and simply astounding support from #TeamSocieti - families who have often been affected by Kawasaki Disease themselves or have been inspired by the work of our charity and get involved.
Throughout 2021, circumstances continued to be difficult for everyone because of Covid 19 and the restrictions that brought for everyone. But, that didn’t stop our AMAZING supporters taking on fantastic challenges, raising much needed funds and raising awareness of Kawasaki Disease.
TeamSocieti showed new and ingenious ways of raising awareness and funds for Kawasaki Disease and they cycled miles, walked miles, ran miles, swam miles... everywhere from coast to coast and even up to the highest peaks!
We always strive to help our supporters in their awareness and fundraising efforts. Our gratitude to every single member of #TeamSocieti for their unrelenting effort and their show of support is endless.
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## _Societi Foundation_
_Annual Report and Accounts January 2021 - December 2021_
**Annual** _Independent_ **Report** _Examiner’s Report_
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## _Awareness Raising_
## _Activities around raising awareness of Kawasaki Disease_
We raise awareness of Kawasaki Disease to improve prompt diagnosis - through multi media campaigns, reaching GPs, paediatric clinicians, health professionals and parents. Click on the buttons below to find out about our activities around raising awareness of Kawasaki Disease:
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## _The Societi newsletter_
We love to hear all about what our supporters are up to and we hope they like to hear about what we are doing just as much! It is so important that we let our supporters know about the work our organisation does. After all, it is their support that drives us and helps us to achieve our objectives for Kawasaki Disease in the UK.
Societi produces a regular newsletter with updates about our work that is distributed directly to our supporters.
As well as information about our latest projects and activities and invitations to supporters to help us in our work, our newsletters also draw attention to the incredible hard work and achievements of #TeamSocieti.
Click here to read our 2021 Christmas newsletter.
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## _Societi Foundation_
_Annual Report and Accounts January 2021 - December 2021_
**Annual** _Independent_ **Report** _Examiner’s Report_
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## _Awareness Raising_
## _Activities around raising awareness of Kawasaki Disease_
We raise awareness of Kawasaki Disease to improve prompt diagnosis - through multi media campaigns, reaching GPs, paediatric clinicians, health professionals and parents. Click on the buttons below to find out about our activities around raising awareness of Kawasaki Disease:
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## _Societi Active_
Led by simply fantastic volunteers, Hayley, Vikki, Gayle and Lucy, Societi Active continued to encourage our supporters to get active for Kawasaki Disease.
The team supported our marathon runners, led our virtual runs for World Heart Day and International Kawasaki Disease Awareness Day and inspired everyone with energy and enthusiasm.
Societi Active provide the information needed to start fundraising for Societi Foundation and suggest ways to promote challenges and raise awareness of Kawasaki Disease. They also provide training advice and tips from a qualified sports and running coach, offer bespoke training plans for runners, share ideas, books, music, podcasts and lots of other inspiration.
We’re really grateful to the team for everything they do and for keeping #TeamSocieti active!
Follow the Societi Active team on Facebook here.
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## _Societi Foundation_
_Annual Report and Accounts January 2021 - December 2021_
**Annual** _Independent_ **Report** _Examiner’s Report_
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## _Awareness Raising_
## _Activities around raising awareness of Kawasaki Disease_
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## _Travelling as a team to Tokyo!_
For Kawasaki Disease International Awareness Day 2021, Societi Active organised a BRILLIANT challenge to help protect tiny hearts - and amazing #TeamSocieti really stepped up to that challenge!
A massive team took part and collectively walked, ran and cycled the distance from Societi HQ all the way to Tokyo, Japan – that’s 5885 miles!
Why Tokyo?!! It was the home of Dr Tomisaku Kawasaki who first identified Kawasaki Disease – a perfect challenge to mark such an important date.
With all those supporters out and about in their Societi running tops, t-shirts and hoodies and letting everyone know their progress on social media, the event was INCREDIBLE for awareness - and Societi Active raised a fabulous £530.50 too!
We are extremely grateful to everyone who took part.
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## _Societi Foundation_
_Annual Report and Accounts January 2021 - December 2021_
**Annual** _Independent_ **Report** _Examiner’s Report_
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## _Awareness Raising_
## _Activities around raising awareness of Kawasaki Disease_
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## _The Virtual 10k for World Heart Day_
Societi Active’s Virtual 10k returned for its 3rd year in a row, thanks to our incredible volunteers Hayley, Vikki, Gayle and Lucy who dedicate hours of their time to organising, planning and running the event. Each year, our virtual 10k event is even more successful than the year before – and this year was no exception. This was our biggest Virtual run yet with over 80 supporters taking part and well over £1,500 raised to help raise awareness of Kawasaki Disease!
Aside from the important funds raised by the Virtual 10k, a huge amount of Kawasaki Disease awareness was also raised in communities throughout the UK (and even as far afield as Italy!) by our participants, all in their brand new Societi running shirts - simply stunning! Thank you to EVERYONE who took part!
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**Annual** _Independent_ **Report** _Examiner’s Report_
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## _Awareness Raising_
## _Activities around raising awareness of Kawasaki Disease_
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## _Promoting Societi merchandise_
Each piece of Societi merchandise is a fantastic opportunity to raise both funds and much needed awareness of Kawasaki Disease. We continue to make our merchandise available to our supporters on our website and promote it through social media.
A popular addition to our online shop over the Christmas period were these beautiful, bespoke hand-crafted glass and ceramic Societi decorations. They were a reminder of what it means to be part of #TeamSocieti – a passionate and determined group of people that are dedicated to helping to protect children’s hearts. And, as if that was enough, we also offered limited edition chocolate hearts made especially for Societi - yum yum!
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## _Societi Foundation_
_Annual Report and Accounts January 2021 - December 2021_
**Annual** _Independent_ **Report** _Examiner’s Report_
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## _Awareness Raising_
## _Activities around raising awareness of Kawasaki Disease_
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## _Lighting up for Kawasaki Disease awareness_
FANTASTIC landmarks, including the Mersey Gateway Bridge and the Council House in Nottingham illuminated bright pink and red for Kawasaki Disease International Awareness Day 2021.
Beautiful beams lit up the sky, shining a light on Kawasaki Disease for International Kawasaki Disease Awareness Day. Landmarks lit up were accompanied by local media posts sharing information about Kawasaki Disease - stories were picked up in local papers and excellent coverage of the seriousness of this little known disease was achieved.
We are very grateful to the hard work of supporters who made this happen and for the support from the local authorities.
Due to this success we also worked throughout 2021 to encourage our supporters to approach their local authorities and local landmarks to light up for Kawasaki Disease Awareness Day 2022.
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## _Societi Foundation_
_Annual Report and Accounts January 2021 - December 2021_
**Annual** _Independent_ **Report** _Examiner’s Report_
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## _Awareness Raising_
## _Activities around raising awareness of Kawasaki Disease_
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## _Building momentum with Members of Parliament_
Societi works through partnerships to achieve our stated aims and those shared aims of our partners and stakeholders, some of which are a number of committed MP’s working with us to get Kawasaki Disease known! We need political stakeholders to understand the seriousness and urgency of Kawasaki Disease if we are to create change which really benefits our children. Fabulous support from our generous partner, Lexington Communications allowed us to reach and secure positive engagement with a number of politicians.
In 2021, we were delighted to receive support from MP Henry Smith, MP Elliot Colbourn and MP James Davies. Their support is significant in building a powerful presence for Kawasaki Disease in the UK parliament.
Kawasaki Disease needs Government investment in research, awareness and education to prevent lifelong heart disease in our children. We continue to engage with our MPs across the UK.
_societi.org.uk_
**20**
## _Societi Foundation_
_Annual Report and Accounts January 2021 - December 2021_
**Annual** _Independent_ **Report** _Examiner’s Report_
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## _Awareness Raising_
## _Activities around raising awareness of Kawasaki Disease_
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## _KNOW Kawasaki Disease awareness film released_
Working with parents of children who have been affected by Kawasaki Disease, Societi produced a powerful awareness raising film - featuring family voices and views.
Released on International Kawasaki Disease awareness day 2021, the film is powerful and hard hitting and gives an insight into the devastating affect Kawasaki Disease can have on families.
Massive thanks to ALL the wonderful parents who feature in our film. Their powerful voices are helping us get Kawasaki Disease known!
Thank you too, to the hundreds of fabulous people who helped us to get Kawasaki Disease known, protecting children’s hearts by sharing our Kawasaki Disease awareness film.
Watch the film here.
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## _Societi Foundation_
_Annual Report and Accounts January 2021 - December 2021_
**Annual** _Independent_ **Report** _Examiner’s Report_
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## _Awareness Raising_
## _Activities around raising awareness of Kawasaki Disease_
We raise awareness of Kawasaki Disease to improve prompt diagnosis - through multi media campaigns, reaching GPs, paediatric clinicians, health professionals and parents. Click on the buttons below to find out about our activities around raising awareness of Kawasaki Disease:
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## _Founder, Rachael talks about how Societi began_
A video published to Societi’s YouTube channel in November 2021 featured Founder, Rachael, as she explains about how and why Societi Foundation was established.
Rachael founded Societi after her family was affected by Kawasaki Disease. After months and many misdiagnoses, this little-known children’s disease led to a lifetime of heart damage which, as Rachael became aware, is an all too familiar story for many hundreds of UK families.
Shared across our social media platforms, the video is a useful tool to explain the work that Societi does, some of the issues surrounding Kawasaki Disease and why awareness is so important.
Watch the video here.
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## _Societi Foundation_
_Annual Report and Accounts January 2021 - December 2021_
**Annual** _Independent_ **Report** _Examiner’s Report_
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## _Working with our sister organisations_
Societi works with sister organisations across the globe to collaborate, share information and to get Kawasaki Disease known.
On Kawasaki Disease International Awareness Day, we joined sister organisations, Kawasaki Disease Canada and Malattia Di Kawasaki, Italy, in a webinar series ‘The Heart of the matter’ to talk about all things Kawasaki Disease.
Our shared commitment to getting Kawasaki Disease known is essential and we work together, debunking myths on Kawasaki Disease. Children in every part of the globe suffer from this disease and its devastating impacts! Working together we are stronger in our shared fight against Kawasaki Disease!
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## _Societi Foundation_
_Annual Report and Accounts January 2021 - December 2021_
**Annual** _Independent_ **Report** _Examiner’s Report_
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## _Awareness Raising_
## _Activities around raising awareness of Kawasaki Disease_
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## _World Heart Day - Let’s protect tiny hearts..._
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World Heart
Day 2021 societi.org.uk
Fabulous Family Stories
Sharing family stories is an extremely powerful way to raise awareness of Kawasaki Disease. For World
Heart Day, we asked Societi supporters to share their stories of Kawasaki Disease, to help others who
may have been through similar experiences. It is our aim that these powerful stories, shared
generously by our families, will be a valued source of support, help grow understanding of Kawasaki
Disease and protect tiny hearts into the future.
We are incredibly grateful to everyone who has contributed their very special story, and have
generously shared their unique Kawasaki Disease journey to help get Kawasaki Disease known. You
We just love World Heart Day! It gives us an amazing opportunity to work with our fabulous supporters, brilliant partners and can read our Family Stories here.
a whole host of exceptional organisations to raise awareness of Kawasaki Disease and heart health. World Heart Day 2021
was no exception! We ran our campaign ‘Let’s Protect Tiny Hearts’ throughout the entire month of September and our
partners and supporters #TeamSocieti worked incredibly hard to make 29 September - World Heart Day - a fantastic success.
Our campaign focused on raising awareness of Kawasaki Disease with families, clinicians and just about EVERYONE who can
make a difference and help to protect tiny hearts. Together we shared awareness raising messages far across social media,
told family stories, released informative podcasts, published media releases and held our Virtual 10k event, all to highlight the
urgent need for more public awareness of Kawasaki Disease and investment to prevent heart damage in our children.
Thank you to every single one of our supporters and partners who made World Heart Day such a special day for our children
– by helping to protect tiny hearts from the #1 cause of acquired heart disease in UK children. Together we are getting
Kawasaki Disease known - we WILL improve outcomes for our children and improve care in the UK for those who have
already been affected. THANK YOU!
Powerful Partners Social to shout about!
We are deeply grateful to our incredible Support received from #TeamSocieti is essential for Societi to
Societi Active’s Virtual 10k World Heart Day Podcast series partners who tweeted and posted our carry our work. YOUR support on all of our Social media
Societi Founder, Rachael, teamed up with some of the fantastic experts on our Scientific Advisory Board, to record and release a series of Kawasaki Disease podcasts, especially for World Heart Day. Huge thanks go to the amazing doctors who gave their precious awareness raising statements on World Heart Day - such powerful partnerships grow awareness and spread our important messages far and wide. These big voices help us create the change we need. platforms throughout September and on World Heart Day was just **phenomenal** and meant that our Kawasaki Disease awareness raising messages reached thousands more people! Support from YOU is simply vital if we are to get Kawasaki Disease known - THANK YOU!
Societi Active’s Virtual 10k returned for its 3rd year in a time to help create these informative podcasts, which have already been so useful to families and clinicians alike. World Heart Day was an opportunity to engage with new partners too. We were Profile visits Pageviews Reach
row, thanks to our incredible volunteers Hayley, Vikki, Gayle and Lucy who dedicate hours of their time to organising, planning and running the event. Each year, our virtual 10k event is even more successful than the year before – and this year was no exception. This was our biggest Virtual run yet with over 80 supporters taking part and well over £1,500 raised to help raise awareness of Kawasaki Disease!Aside from the important funds raised by the Virtual 10k a huge amount of Kawasaki Disease awareness was also raised in communities throughout the UK (and even as far afield as Italy!) by our participants, all in their brand new Societi running shirts - simply stunning! Our podcast series includes: Kawasaki Disease - “Presenting the facts and dispelling myths” with Professor Robert Tulloh Listen to the podcast hereRead the transcript here Kawasaki Disease - “What everyone needs to know” with Dr Damian Roland Listen to the podcast hereRead the transcript here Kawasaki Disease - “The latest research” with Professor Despina Eleftheriou Listen to the podcast here thrilled two influential parent focused groups: Mumsnet and Netmums (with a combined following of over 280,000 people) offered to share our content and help spread the urgent message that all parents and carers need to know Kawasaki Disease.With such strong partnerships and a growing number of partners, we WILL get this disease known, we can and will protect children’s hearts from the devastating damage Kawasaki Disease can cause. News Medical are one of the world’s leading open-access medical and life science hubs with a global reach of 121 million annual visitors worldwide – their weight behind our work is just immense and means a great deal.This is an important milestone for Societi Foundation – with 175% Press coverage We’re really excited to have successfully published an article as part of our World Heart Day 2021 awareness campaign, in News Medical. 74% 23%
Thank you to EVERYONE who took part! Read the transcript here Kawasaki Disease - “Protecting tiny hearts into support from such a trusted life sciences and medical publication, physicians across the globe will read our article
If you’d like to take part in one of our future Societi Active the future” with Dr Tom Johnson and will now know to think Kawasaki Disease. And by doing
events, make sure to follow our dedicated Societi Active Facebook page to find out what’s coming up! Listen to the podcast hereRead the transcript here this we are delivering on our aim - to put Kawasaki Disease at the forefront of doctor’s minds. #ForOurChildren
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Our partnership with the World Heart Federation led to a concerted campaign once again for World Heart Day in 2021. #TeamSocieti worked incredibly hard to make 29 September - World Heart Day - a fantastic success. Our campaign focused on raising awareness of Kawasaki Disease with families, clinicians and just about EVERYONE who can make a difference and help to protect tiny hearts.
Together we shared awareness raising messages far across social media, told family stories, released informative podcasts, published media releases and held our Virtual 10k event, all to highlight the urgent need for more public awareness of Kawasaki Disease and investment to prevent heart damage in our children.
We are very grateful to every single one of our supporters and partners who made World Heart Day such a special day for our children.
Read our impact statement here, with amazing highlights from #TeamSocieti on World Heart Day.
_societi.org.uk_
**24**
_Societi Foundation Annual Report and Accounts January 2021 - December 2021_
**Annual** _Independent_ **Report** _Examiner’s Report_
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## _Awareness Raising_
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## _International Kawasaki Disease Awareness Day_
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International Kawasaki Disease Awareness Day 2021
MY SOCIETI KNOW Kawasaki Disease!
mysocieti.org.uk
International Kawasaki Disease Awareness Day 2021 was phenomenal - our most successful campaign yet!
#TeamSocieti filled the entire month of January with Kawasaki Disease awareness raising and projects designed to
get everyone to KNOW Kawasaki Disease. This Impact Statement highlights just some of #TeamSocieti’s amazing
successes, remarkable achievements and the hard work which led to our success!
The launch of My Societi Clear Channel get Kawasaki Disease Known!
One spectacular highlight was the launch of our much Once again, the exceptional team at Clear Channel generously
anticipated “My Societi” young people’s portal. donated advertising space for a whole week, including on
The creation of My Societi really was an amazing collaboration awareness day, to help us get Kawasaki Disease known,
from #TeamSocieti. From our design and tech gurus at O reaching thousands of people!
Street and Form Digital - to the young people who helped All week, Societi’s campaign was displayed on Clear Channel’s
shape the portal - to all our doctors who generously shared Sharing our powerful awareness raising video Utterly BREATHTAKING!! spectacular Adshel Live and Storm Board digital screen network
their time and expertise! Thank you too, to the Foyle Hundreds of fabulous people helped us get Kawasaki Two FANTASTIC landmarks, the Mersey Gateway Bridge and the - in shopping centres, on busy streets and city centres, even on
Foundation for their funding and to donations from Ladies Disease known, protecting children’s hearts by sharing our Council House in Nottingham illuminated bright pink and red this huge screens at the side of motorways - right across the UK!
Circle, making this project possible. Kawasaki Disease awareness video - it‘s now been viewed January. Beautiful beams lit up the sky for Kawasaki Disease We are so grateful to Clear Channel for this huge act of
We are very proud to have launched “My Societi”, full of hundreds of times! awareness on International KAWASAKI DISEASE AWARENESS DAY. kindness and for their phenomenal commitment to growing
trusted and clinician backed info, designed to answer questions A massive thank you to ALL the wonderful parents who Why not get in touch with your council to ask if they can light up their #PlatformForGood Clear Channel Outdoor.
young people affected by Kawasaki Disease may have. feature in our video - your powerful voices are being heard! a local landmark on Kawasaki Disease awareness day next year!
Working across the globe… ..to get Kawasaki Disease known. On awareness day we joined sister organisations, Kawasaki Disease Canada and Italy, in a webinar series + 92% Facebook post reach 86% post engagement 56,200 +Twitter Impressions Profilevisits Building momentum We have a number of committed MP’s working with us to get Kawasaki Disease known! We were delighted to receive awareness day support from
‘The Heart of the matter’ to talk about all things Kawasaki Disease. Our shared commitment to +142% pageviews 19 New Twitter followers 47 MP Henry Smith, MP Elliot Colbourn and MP James Davies. Their support is significant in
getting Kawasaki Disease known is essential building a powerful presence for Kawasaki Disease
and we work together, debunking myths on Kawasaki Disease. Children in every part of the 4,200 368 6200 website in the UK parliament. Kawasaki Disease needs Government investment in research, awareness
globe suffer this disease and its devastating impacts! Working together we are stronger in our shared fight against Kawasaki Disease! Instagram Impressions likes page views and education to prevent lifelong heart disease in our children. We continue to engage with our MPs across the UK - together we WILL make progress!
You made it to Tokyo! Go Dexter! Minehead “metal heads”
Thank you to EVERYONE who took part in Societi Active’s BRILLIANT challenge to help One of our youngest ever fundraisers went the extra mile for International Kawasaki A life size Societi Kid was made entirely out of metal by talented Steven Heard, a retired
protect tiny hearts. A massive team took part Disease awareness day setting himself a carpenter from Minehead. Steven has created
and collectively walked, ran and cycled the distance from Societi HQ all the way to Tokyo, 2x2x12 challenge. 8 year old Dexter took on 2 challenges or 2k every 2 hours for 12 over 50 "metal heads" that form an activity trail. The mastermind behind this is our wonderful
Japan – that’s 5885 miles!!! Wow! Why hours on awareness day. Dexter absolutely Societi supporter Lisa – who does so much for
Tokyo?!! It was the home of Dr Tomisaku Kawasaki who first identified Kawasaki Disease – a perfect challenge to mark such an smashed his challenge and ran, walked, biked, bounced, balance hovered and wiggle scooted his way to help protect tiny hearts! Kawasaki Disease awareness – always thinking of innovative ideas! What a wonderful model of wonderful Societi
im portant date. This event has been Not only that, but Dexter and his army of Kid Reuben, Lisa! Now standing proud in
IN CREDIBLE for awareness - and Societi Active supporters raised a staggering £700 too. Minehead for everyone to see, creating lots of
ra ised a fabulous £530.50 too! Wow! Dexter you are AMAZING! Kawasaki conversations!
Kawasaki Disease is the leading cause of acquired heart disease in children in the UK. It’s time we changed that...
... Together we will!
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International Kawasaki Disease Awareness Day is THE most important day in Societi’s calendar.
2021 was phenomenal - our most successful campaign yet! #TeamSocieti filled the entire month of January with Kawasaki Disease awareness raising and projects designed to get everyone to KNOW Kawasaki Disease.
Digital displays up and down the entire UK displayed Kawasaki Disease awareness raising messages - thanks to Clear Channel and their amazing Platform for Good support. Our new children’s and Young People’s portal, MySocieti was released, buildings throughout the country lit up red, Societi supporters walked, ran and cycled the distance from Societi HQ to Tokyo - the home of Dr Tomisaku Kawasaki! And there was so much more besides! A true team effort for everyone involved!
Read our Impact Statement here, which highlights just some of #TeamSocieti’s amazing successes, remarkable achievements and the hard work which led to our success!
**25**
_societi.org.uk_
_Clinical Research_
## _Societi Foundation_
_Annual Report and Accounts January 2021 - December 2021_
**Annual** _Independent_ **Report** _Examiner’s Report_
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## _Activities around clinical research_
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## _Updating our Diagnosis Day research poll_
Towards the end of 2021, Societi started work to collect information as part of an important update to our Diagnosis Day poll - a research project conducted in 2018, on supporters experience of their child’s Kawasaki Disease diagnosis. It’s clear the diagnosis experience varies from family to family and through this research, we are trying to understand more about just what is happening when our children are first being diagnosed.
Responses to the poll were collected from November 2021 with the poll remaining open into 2022.
The results and the subsequent analysis of the poll, will help direct and focus Societi’s work to benefit families affected by Kawasaki Disease in the future - and help them have quicker, more accurate diagnoses.
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_Clinical Research_
## _Societi Foundation_
_Annual Report and Accounts January 2021 - December 2021_
**Annual** _Independent_ **Report** _Examiner’s Report_
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_Leading Public and Patient Involvement (PPI) for Europe-wide clinical trial_
Societi continues to play an ongoing role in the delivery of KDCAAP (Kawasaki Disease Coronary Artery Aneurysm Prevention), the largest Kawasaki Disease clinical trial of its type to ever take place. Societi leads the patient and public (PPI) elements and is part of the Trial Management Group and Trial Steering Group too – with an important part to play making sure the views of families and patients are represented. Our work includes ensuring the profile of the trial is raised and the information families need, as they consider taking part in the trial, is available in user friendly formats.
Societi was the catalyst for the clinical trial which is investigating the potential for better acute treatments for Kawasaki Disease which may reduce the heart damage children can experience when affected by Kawasaki Disease.
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_Clinical Research_
## _Societi Foundation_
_Annual Report and Accounts January 2021 - December 2021_
**Annual** _Independent_ **Report** _Examiner’s Report_
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## _Raising awareness of KD-CAAP_
Societi raises awareness of the KDCAAP clinical trial to clinicians and to the public as part of our role.
A KD-CAAP Twitter account dedicated to promoting awareness of the KD-CAAP trial continued to post during 2021 on a weekly basis and followers continue to grow in numbers.
Societi cross-posts to the Societi Twitter account which has a regular, active following of over 1,200.
Societi’s Facebook page, which has an international following of over 1,800, continues to promote and explain the trial and highlight its focus.
Societi also draws attention to the work of the trial using LinkedIn via the Societi Foundation account.
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_Clinical Research_
## _Societi Foundation_
_Annual Report and Accounts January 2021 - December 2021_
**Annual** _Independent_ **Report** _Examiner’s Report_
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## _Reviewing and updating KDCAAP trial web pages and resources_
Societi continues to review and update a series of dedicated KDCAAP web pages with new trial information as it becomes available.
Content includes lots of useful information about the trial, a range of downloadable resources for families and an interactive map of KD-CAAP centres across Europe.
The web pages developed for the trial can be viewed here or by clicking on the image opposite.
Societi also reviews and helps to develop trial resources including a trial newsletter providing design input and reviewing content.
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_Clinical Research_
## _Societi Foundation_
_Annual Report and Accounts January 2021 - December 2021_
**Annual** _Independent_ **Report** _Examiner’s Report_
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## _Activities around clinical research_
We work to lever efforts building on enhanced awareness of need, to undertake and urgently advance critical research to understand, diagnose and manage Kawasaki Disease. Click on the buttons below to find out about our activities around clinical research:
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## _Supporting research into incidence of Kawasaki Disease_
Societi supported research undertaken by paediatric researcher, Dr Fiona Pearce (UH Nottingham) into the incidence of Kawasaki Disease in England from 2006 to 2021.
Societi Trustees and members of our Scientific Advisory Board were invited to review and comment on the paper which confirms an increase in Kawasaki Disease incidence across England and draws valuable insights including, for example, the effect of child deprivation status on Kawasaki Disease.
Societi also offered support to the project to produce graphic visual representations of the paper’s findings. Societi Foundation (R Mccormack) will be included as a co-author on the paper, on publication, reflecting the considerable contribution made into the study development.
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_Societi Foundation Annual Report and Accounts January 2021 - December 2021_
**Annual** _Independent_ **Report** _Examiner’s Report_
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## _Clinical Supervision_
## _Activities around clinical supervision_
Gaps exist in current provision for Kawasaki Disease children in their long term care. We work to close these gaps, as well as connect long term care to long term research. Click on the buttons below to find out about our activities around clinical supervision:
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_Working with Societi’s Scientific Advisory Board_
Kawasaki Disease has many effects on a child and as such a multi-disciplinary approach to research/care is needed for this disease.
Societi is supported by the phenomenal clinical expertise of our Scientific Advisory Board - UK leading medical experts who guide and underpin our work as a charity.
**Prof Despina Prof Paul Brogan Eleftheriou**
_Professor of Vasculitis Professor of Paediatrics & Consultant Cardiologist, Paediatric Rheumatologist, and Honorary Consultant International Child Health, Bristol Heart Institute Great Ormond Street Paediatric Rheumatologist, Imperial College London Hospital and Institute of Great Ormond Street Child Health Hospital_
We work with the Scientific Advisory Board on a regular basis to ensure our output is reviewed by experts, meaning our supporters can rely on the information and facts we share.
**Prof Damian Roland**
**Dr Filip Kucera**
**Dr Owen Miller**
_Consultant and Honorary Consultant in Paediatric Paediatric Cardiologist, Associate Professor in and Fetal Cardiology, Great Ormond Street Paediatric Emergency Clinical Director, Hospital Medicine, University Congenital Heart Network, Hospitals, Leicester Evelina London Children’s Hospital_
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## _Societi Foundation_
_Annual Report and Accounts January 2021 - December 2021_
**Annual** _Independent_ **Report** _Examiner’s Report_
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## _Clinical Supervision_
## _Activities around clinical supervision_
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## _UK Kawasaki Disease Steering Group_
Societi continues to chair the UK Kawasaki Disease Steering Group - a UK wide partnership group comprising key Kawasaki Disease experts, national leaders and influencers who act together as a catalyst for positive change around Kawasaki Disease - for awareness, knowledge sharing and to encourage best practice in clinical care.
During 2021, the group focused on areas including the impact of Covid-19 on Kawasaki Disease and emerging and ongoing issues, the endorsement of our updated National Strategy for Kawasaki Disease, research updates, parliamentary and Government matters, development of a Kawasaki Disease registry and progress on the adoption of lifetime guidance for Kawasaki Disease.
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_Clinical Supervision_
## _Societi Foundation_
_Annual Report and Accounts January 2021 - December 2021_
**Annual** _Independent_ **Report** _Examiner’s Report_
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## _Activities around clinical supervision_
Gaps exist in current provision for Kawasaki Disease children in their long term care. We work to close these gaps, as well as connect long term care to long term research. Click on the buttons below to find out about our activities around clinical supervision:
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_Embarking on our Strategic Children’s Hospital Partnership Programme_
Societi started work on a 3-year children’s hospital partnership programme, thanks to generous investment and support from the Randal Charitable Foundation who awarded a grant for the work.
This programme will include vital work to dramatically improve Kawasaki Disease knowledge and early disease identification by doctors, to save lives, shorten diagnosis times and enable rapid treatment of Kawasaki Disease – the leading cause of acquired heart disease in UK children.
Such powerful support means we can really drive forward with knowledge building among children’s doctors, who will then be equipped to ensure timely diagnosis and improved care for affected children. Our goals include a reduction in both loss of life from Kawasaki Disease and in the rate of heart damage in children over the course of this fabulous partnership programme.
You can read more about this partnership on the Societi website here.
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## _Societi Foundation_
_Annual Report and Accounts January 2021 - December 2021_
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## _Clinical Supervision_
## _Activities around clinical supervision_
Gaps exist in current provision for Kawasaki Disease children in their long term care. We work to close these gaps, as well as connect long term care to long term research. Click on the buttons below to find out about our activities around clinical supervision:
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## _Engaging with healthcare providers_
Societi regularly engages with clinicians through our various social media channels and employs a focused approach to knowledge sharing and awareness raising.
During 2021 we enjoyed a continued increase in reach and communications with thousands of healthcare providers on Twitter, Facebook, Instagram and Linkedin – promoting key awareness messages and other important information.
Occasions marked on social media in the period include International Nurses Day, Mental Health Awareness Week, International Clinical Trials Day and World Health Day.
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## _Societi Foundation_
_Annual Report and Accounts January 2021 - December 2021_
## _Clinical Supervision_
## _Activities around clinical supervision_
Gaps exist in current provision for Kawasaki Disease children in their long term care. We work to close these gaps, as well as connect long term care to long term research. Click on the buttons below to find out about our activities around clinical supervision:
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## _Working with NHSBT_
**Annual** _Independent_ **Report** _Examiner’s Report_
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Societi were excited to work in partnership with NHS Blood and Transplant (NHSBT) to raise the profile of blood plasma donations for lifesaving immunoglobulin medicines for people who depend on these treatments – such as children affected by Kawasaki Disease.
Immunoglobulin is extremely important in the treatment of Kawasaki Disease – it is a very special lifesaving medicine made from the antibodies in plasma donations. Antibodies are made by the immune system to fight bacteria, viruses and toxins.
There is a global supply shortage of immunoglobins due to rising demand. By re-starting plasma donation in England, it will strengthen the supply chain - something Societi Foundation is extremely passionate about supporting.
Working alongside NHSBT also gave us the chance to raise awareness and improve knowledge around Kawasaki Disease with NHSBT colleagues.
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## _Societi Foundation_
_Annual Report and Accounts January 2021 - December 2021_
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## _Clinical Supervision_
## _Activities around clinical supervision_
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## _Updating and reviewing our clinicians information_
Societi makes information available to clinicians interested in Kawasaki Disease through a dedicated space on our website.
The information within this space includes learning information and resources, links to useful Kawasaki Disease research, papers on Kawasaki Disease Management and a clinician Q&A which has been created following many of the discussions we have had with clinicians during events, conferences and webinars.
The information in our clinicians area is well used and is regularly reviewed and updated with new information being added constantly.
To view the clinician’s area of our website, click here or on the image opposite.
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## _Societi Foundation_
_Annual Report and Accounts January 2021 - December 2021_
## _Clinical Supervision_
## _Activities around clinical supervision_
Gaps exist in current provision for Kawasaki Disease children in their long term care. We work to close these gaps, as well as connect long term care to long term research. Click on the buttons below to find out about our activities around clinical supervision:
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## _Renewing our e-learning module with RCGP_
**Annual** _Independent_ **Report** _Examiner’s Report_
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In 2020 Societi partnered with the Royal College of General Practitioners (RCPG) - the professional body for UK GPs to develop and release a Kawasaki Disease e-learning module.
Development and initial hosting of the course, which was made available to 100,000 GPs within the UK, was funded with generous donations from Veswas Ltd and Alsford Timber.
In 2021, after reviewing an encouraging statistics report on access and use of the module from RCGP, Societi made the decision to renew the course hosting to keep it available on the RCGP learning platform. Societi funded renewal of the hosting with another very generous donation from Virtual Runner after we were nominated by a supporter to receive a proportion of race entry fees for a race held in January 2021.
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_Societi Foundation Annual Report and Accounts January 2021 - December 2021_
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## _Support for UK families_
## _Activities around support for UK families_
We recognise that when faced with a diagnosis of Kawasaki Disease, support, expert backed information and helpful resources are of vital importance to families. Our work enables a sustained focus on family support. Click on the buttons below to find out about our activities around supporting UK families:
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## _Launching My Societi_
On Kawasaki Disease Awareness Day in January 2021, Societi launched My Societi, a children and young people’s information portal which was designed by young people for young people affected by Kawasaki Disease.
Much collaboration and partnership contributed to the creation of the portal and our grateful thanks go out to all of our partners, especially the young people and Societi supporters whose contribution to the portal was so valuable.
The project, funded by a grant from The Foyle Foundation, has been a huge success and we are very proud of the resulting resource that will provide essential and trustworthy information to young people, tailored to their specific needs.
The portal will continue to be reviewed and updated with new and relevant information and resources for young people.
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_Societi Foundation Annual Report and Accounts January 2021 - December 2021_
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## _Support for UK families_
## _Activities around support for UK families_
We recognise that when faced with a diagnosis of Kawasaki Disease, support, expert backed information and helpful resources are of vital importance to families. Our work enables a sustained focus on family support. Click on the buttons below to find out about our activities around supporting UK families:
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_Sharing family stories and support for families_
Sharing family stories is an extremely powerful way to help others going through similar experiences of a Kawasaki Disease diagnosis and to raise awareness of Kawasaki Disease.
Work began during 2020 to engage with supporters who wanted to share their family stories to help others. The family stories were released and shared across our social media throughout September 2021 in the run up to World Heart Day. They are now available to all families using our website.
_Ali’s Story_
_Aileen’s Story_
_Laura’s Story_
It is our hoped that these stories will help affected families, grow understanding, awareness and knowledge about Kawasaki Disease and protect the tiny hearts of the future.
_Michaela’s Story_
_Michelle’s Story_
_Loren’s Story_
_Sarah’s Story_
_Heather’s Story_
_Lorna’s Story_
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## _Societi Foundation_
_Annual Report and Accounts January 2021 - December 2021_
**Annual** _Independent_ **Report** _Examiner’s Report_
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## _Support for UK families_
## _Activities around support for UK families_
We recognise that when faced with a diagnosis of Kawasaki Disease, support, expert backed information and helpful resources are of vital importance to families. Our work enables a sustained focus on family support. Click on the buttons below to find out about our activities around supporting UK families:
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## _Release of Societi podcasts_
Societi worked with the fantastic experts on our Scientific Advisory Board, to record and release a series of Kawasaki Disease podcasts.
Huge thanks go to the amazing doctors who gave their precious time to help create these informative podcasts, which are extremely useful to families and clinicians alike.
The podcast series includes:
**Kawasaki Disease - “Presenting the facts and dispelling myths”** with Professor Robert Tulloh
Kawasaki Disease - **“What everyone needs to know”** with Professor Damian Roland
Kawasaki Disease - **“The latest research”** with Professor Despina Eleftheriou
Kawasaki Disease - **“Protecting tiny hearts into the future”** with Dr Tom Johnson
Transcript of the podcasts are also available on our website here.
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_Societi Foundation Annual Report and Accounts January 2021 - December 2021_
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## _Support for UK families_
## _Activities around support for UK families_
We recognise that when faced with a diagnosis of Kawasaki Disease, support, expert backed information and helpful resources are of vital importance to families. Our work enables a sustained focus on family support. Click on the buttons below to find out about our activities around supporting UK families:
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_Updating and promoting our online and downloadable resources_
Societi has many assets and resources available for families who have experienced a diagnosis of Kawasaki Disease.
Our information filled website, Family Resource Portal and children’s and young people’s portal are all extremely helpful resources and can be a lifeline for families experiencing a Kawasaki Disease diagnosis.
We constantly review and update and promote our website and portal content, including our downloadable leaflets and information, to ensure that the most up to date and accurate information is available to users.
Feedback received from supporters suggests that our resources are invaluable tools for those affected by Kawasaki Disease and their families. Visit our website here.
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## _Societi Foundation_
_Annual Report and Accounts January 2021 - December 2021_
**Annual** _Independent_ **Report** _Examiner’s Report_
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## _Support for UK families_
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We recognise that when faced with a diagnosis of Kawasaki Disease, support, expert backed information and helpful resources are of vital importance to families. Our work enables a sustained focus on family support. Click on the buttons below to find out about our activities around supporting UK families:
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## _Kawasaki Disease and Covid-19_
Covid-19 continued to have an impact on our day to day lives during 2021. Understandably, parents of children affected by Kawasaki Disease continued to have worries and a lot of questions about the issues bought about by the pandemic.
Societi continued to work hard to provide up to date information and give answers wherever possible to the questions asked by our supporters.
Consulting with our Scientific Advisory Board (SAB), a series of detailed statements about Kawasaki Disease and Covid-19 were constantly reviewed, updated and promoted throughout the year.
During 2021, Societi received an overwhelming amount of requests for advice and information about Covid-19 vaccines for children affected by Kawasaki Disease. In response, Societi, along with incredible support from our SAB, published a new statement on children, young people and vaccines for Covid-19.
You can visit our Kawasaki Disease and Covid-19 web pages here.
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## _Societi Foundation_
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**Annual** _Independent_ **Report** _Examiner’s Report_
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## _Support for UK families_
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_Support for the Kawasaki Disease Support Group (KSSG)_
KSSG are an organisation run by parents of children who have been affected by Kawasaki Disease. They have an invaluable role in providing a listening ear and emotional support for Families affected by Kawasaki Disease.
Societi hosts the Support Group’s website within its own site and completes updates as and when required. Families who are in need of emotional support are signposted to KSSG. Societi also has an open offer of support financially to KSSG.
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## _Societi Foundation_
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**Annual** _Independent_ **Report** _Examiner’s Report_
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Our Activities - Support
for UK Families
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Structure, Governance
& Management
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## _Financial Review_
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## _Financial position_
_At the period end, the charity had total reserves of £123,247 (2020: £44,785) composed of unrestricted funds of £103,247 (2020: £36,477) and restricted funds of £20,000 (2020: £8,308)._
## _Reserves Policy_
## **Context**
Societi Foundation (Societi) has established a reserves policy to protect its activities by providing a financial comfort zone against an unpredictable environment and to make sufficient provision for future cash flow requirements to sustain our charitable activities. The policy also provides the framework for future strategic planning and decision-making. The development of an effective reserves policy will reduce the impact of financial risks upon the continuing operations of Societi.
The reserves policy and the establishment of ranges is based upon an annual risk assessment of the internal and external operating environment, as well as having a due regard for the nature of activities under taken by Societi for our beneficiaries.
Following the impact of the COVID-19 pandemic on the charitable sector and the potential cost of living impact on donors, the charity has factored this into determining the desired level of reserves alongside its growth aspirations.
## **Scope**
This policy relates to Societi Foundations
operation as a charity with four strategic aims - to raise awareness, enhance clinical supervision, enable clinical research and support the UK Support Group. In setting this policy Trustees are aware that, as a newly established organisation our reserves policy will need to be under regular review and be adjusted appropriately to reflect growth in our organisation.
## **Reserves**
Societi Foundation holds unrestricted reserves derived from fundraiser income or donations that can be spent at the discretion of the Trustees in furtherance of any of Societi’s objectives.
## **Range of Reserves Held**
The target range for reserves has been set by Trustees at no less than £80,000. This policy remains under informal review (annually) and formal review (every 3 years) to ensure that, as a new charity with a rapidly changing financial environment (due to positive growth and an increasing supporter/fundraiser base) our reserves policy remains relevant and continues to act to appropriately safeguard the future operation of Societi. At the year end the charity had unrestricted reserves of £103,247 which included functional fixed assets of £6,340. The ‘free reserves’ available to the charity was £96,907 which is above the minimum level per the reserves policy of £80,000.
## **Approach to Reserves**
The work of our charity is both planned and reactive. As well as planned works,
such as the development and delivery of Societi-led projects, opportunities can be presented - or circumstances arise which demand an immediate response or a new approach. New funding opportunities also arise which may require match funding and in order to ensure we are well placed to take advantage of these, and through these address the challenges presented to UK children by Kawasaki Disease, reserves are held by Societi.
As a newly established organisation, at the time of the development of this policy we have no paid staff so continuity planning for such costs, in challenging circumstances are not allowed for in the reserves. However it is foreseen that with growth, this position will change and our reserves policy will need to change to reflect this. Similarly, only minimal costs are incurred by Societi currently in respect of its organisational overheads and as we grow, Trustees recognise that these will increase and again, our reserves position will need to be amended to reflect the need to ensure operational continuity.
Trustees have considered operational costs and the considerable challenges of circumstances such as Covid-19, when setting the reserves policy, organisational sustainability, current and planned commitments and ‘seed-corn’ funding requirements which may be needed.
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## _Societi Foundation_
_Annual Report and Accounts January 2021 - December 2021_
**Annual** _Independent_ **Report** _Examiner’s Report_
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About Societi Foundation
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Our Activities -
Clinical Research
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Our Activities - Support
for UK Families
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Structure, Governance
& Management
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## _Financial Review_
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Our current modest reserves level (whilst relatively high in percentage terms) reflects:
1. the low turnover of the organisation - from which a modest sum must be identified as reserves to protect the sustainable operation of the organisation, and this translates as a higher relative percentage as presently, income is low.
2. the need to continue our primary operations - awareness raising - in the face of financial pressures. Trustees have satisfied themselves that these can be continued with the modest financial provisions described in this policy.
3. experience of establishing and growing Societi as a new organisation - Trustees have a proven track record of delivering the work of the charity within a very small budget having started the charity without grants or access to donations/ fundraising.
## **Management of Reserves**
Any reserves held in excess of the target percentage will be reviewed by Societi Foundation Trustees on a regular basis and an appropriate range of options will be considered, which might include releasing the funds to enhance delivery of Societi’s objectives. As we grow as a charity this reserves policy could be updated to include provisions such as investment of funds, to generate further income and allow the
expansion of Societi’s work. As a young organisation our current focus is on actions to deliver against our objectives and grow our reach.
The movement of funds to and from the reserves identified above will be at the discretion of the Trustees.
## **Reviewing our Policy**
The Charity Commission recommends that charities develop their reserves policy and their planning at the same time, recognising that strategic and financial planning informs the development of reserves policies and vice versa. Trustees recognise the importance of setting our operational budgets to identify peaks or troughs in cash flow and the reserves policy must ensure the troughs in funding can be met from reserves held.
Our reserves policy will be regularly reviewed in light of the changing funding and financial climate and other emerging risks. We publish our assessment of the risks that we are facing as part of our statutory accounts/annual report.
This policy will also be amended in line with UK Government guidance, as amended.
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**45**
## _Societi Foundation_
_Annual Report and Accounts January 2021 - December 2021_
**Annual** _Independent_ **Report** _Examiner’s Report_
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About Societi Foundation
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Our Activities -
Clinical Research
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Our Activities - Support
for UK Families
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Structure, Governance
& Management
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## _Structure, governance and management_
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## **Process to Appoint Trustees**
## _Governing Document_
The procedures for electing or appointing new Trustees is set out in overview in our Constitution. Section 10 of the Societi Foundation Constitution notes:
The legal form of the charity is that of a Charitable Incorporated Organisation (CIO) which is controlled by its governing document, its constitution dated 10 July 2017.
(1) Apart from the first charity Trustees, every trustee must be appointed for a term of three years by a resolution passed at a properly convened meeting of the charity Trustees.
## _Recruitment and appointment of new trustees_
## **Selecting Trustees - Preparations**
Prior to mapping out our selection process for Trustees joining Societi Foundation, Trustees are alerted to, and informed of existing and new rules regarding eligibility and automatic disqualification of charity Trustees. Any amendments to these provisions are circulated automatically to Trustees, and the most up to date guidance will be consulted at each point a recruitment process is considered (and always before commencement).
(2) In selecting individuals for appointment as charity trustees, the charity Trustees must have regard to the skills, knowledge and experience needed for the effective administration of the CIO.
We acknowledge that we are quorate with five Trustees but we recognise that, for a strong organisation, our aim is always to exceed this minimum number of Trustees and that our Trustee cohort should bring breadth of reach, capacity and energy, to ambitiously drive our organisation.
Trustees are aware of the need for a balance of skills and abilities on our Board - as well as the need for available capacity in all Trustees if we are to achieve our objectives as a charity. A “hands-on” role is expected from all Trustees as we guide and grow our organisation. In determining the need for additional Trustees therefore we consider current skills, abilities and capacity - as well as horizon scanning for the skill sets and capacity we will need in order to achieve current and future plans.
## **Recruiting Trustees**
As the requirements for Trustees within our growing charity are changing rapidly - mirroring the growth we experience and plan to continue to achieve, it is essential that Trustees joining Societi Foundation can be selected to meet these changing needs. Equally, it is essential that new Trustees are able to join the organisation and bring strong, positive contributions - and in doing this they must match and exceed the level of ambition for our organisation as demonstrated by our current Trustees.
We will work to recruit Trustees not simply when vacancies occur, but when needs are identified. We will recruit through informal and formal processes - as may be needed and best suited to the Trustee position(s) which we have identified to fill.
## **Appointment**
Information on prospective Trustees including professional biographies and/ or the findings from formal recruitment processes and/or references taken up will inform the appointment process. Trustees will make a majority decision on the appointment of any new Trustee(s) at a formally convened meeting of the Board of Trustees - whether within or outside of the cycle of planned meetings. This recognises that additional meetings may be called to confirm the appointment of a Trustee if needed.
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## _Societi Foundation_
_Annual Report and Accounts January 2021 - December 2021_
**Annual** _Independent_ **Report** _Examiner’s Report_
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About Societi Foundation
**----- End of picture text -----**
**----- Start of picture text -----**
Our Activities -
Clinical Research
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**----- Start of picture text -----**
Our Activities - Support
for UK Families
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Structure, Governance
& Management
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## _Structure, governance and management_
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## _Induction and training of new trustees_
## _Reference and administrative details_
## **Induction**
## **Registered Charity number**
We recognise that an appropriately organised induction for all new Trustees is vital. It is a gateway for both new trustees - helping them to get up to speed with the role, the organisation and their legal responsibilities.
1173755
## **Principal address**
Victoria Court Holme Lane Winthorpe Newark Nottinghamshire NG24 2NU
Trustees are alert to the need for a strong induction which ensures we can provide evidence that the people in our organisation have an awareness and understanding of our ambitions and aims - but also, essentially, key policies and procedures such as health and safety and data protection. Our Trustee induction programme includes a variety of activities over a period of time, including:
## **Trustees**
Professor R Tulloh R E A Greenwood R D Greenwood
G Higgins
Professor P Brogan
- Meetings and introductions to other Trustees, beneficiaries, service users etc
## **Independent Examiner**
Wright Vigar Limited Chartered Accountants & Business Advisers 15 Newland Lincoln
- Invitations to events, meetings and presentations
- A Trustee induction pack
- Lincolnshire LN1 1XG
- Buddying or coaching
Approved by order of the board of trustees on 14 September 2022 and signed on its behalf by:
....................................................................
R E A Greenwood - Trustee
## _Thank you_
Our annual report is an important document for us as a charity. But it serves to do much more than that by helping anyone who reads it to get to know a little more about Societi and Kawasaki Disease than they did before.
For me, that’s a truly valuable outcome to have achieved. Sharing knowledge and growing the number of people who can recognise this often pernicious disease will always remain a core aim for Societi.
Thank you for reading our annual report. The time you’ve invested in understanding more about out work means such a lot.
With my very best wishes,
Rachael McCormack, Founder for Societi Foundation
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## _Independent Examiner’s Report_
## _Societi Foundation_
_Annual Report and Accounts January 2021 - December 2021_
_Annual_ **Independent** _Report_ **Examiner’s Report**
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Statement of financial
activities
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Notes to the financial
statements
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10 October 2022
_societi.org.uk_
**48**
## _Societi Foundation_
_Annual Report and Accounts January 2021 - December 2021_
_Annual_ **Independent** _Report_ **Examiner’s Report**
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Statement of financial
activities
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Notes to the financial
statements
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## _Independent Examiner’s Report_
## _Statement of financial activities for the Year Ended 31 December 2021_
|||||**Year ended**|**Period 1.7.20 to**|
|---|---|---|---|---|---|
|||**Unrestricted**|**Restricted funds**|**31.12.21 Total**|**31.12.20 Total**|
||**Notes**|**funds £**|**£**|**funds £**|**funds £**|
|**INCOME AND ENDOWMENTS FROM**||||||
|Donations and legacies||85,777|97,188|182,965|30,611|
|Other trading activities|2|2,242|-|2,242|653|
|Other income||334|9,900|10,234|3,604|
|**Total**||88,353|107,088|195,441|34,868|
|**EXPENDITURE ON**||||||
|Raising funds||33,614|-|33,614|12,250|
|**Charitable activities**||||||
|Kawasaki Disease awareness||73,465|9,900|83,365|31,334|
|**Total**||107,079|9,900|116,979|43,584|
|**NET INCOME / (EXPENDITURE)**||(18,726)|97,188|78,462|(8,716)|
|**Transfers between funds**|12|85,496|(85,496)|-|-|
|**Net movement in funds**||66,770|11,692|78,462|(8,716)|
|**RECONCILIATION OF FUNDS**||||||
|**Total funds brought forward**||36,477|8,308|44,785|53,501|
|**TOTAL FUNDS CARRIED FORWARD**||103,247|20,000|123,247|44,785|
**49**
_societi.org.uk_
## _Societi Foundation_
_Annual Report and Accounts January 2021 - December 2021_
_Annual_ **Independent** _Report_ **Examiner’s Report**
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Statement of financial
activities
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Notes to the financial
statements
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## _Independent Examiner’s Report_
## _Balance sheet 31 Dec 2021_
|_alance sheet 31 Dec 2021_||||||
|---|---|---|---|---|---|
|||**Unrestricted funds**|**Restricted funds**|**2021 Total funds**|**2020 Total Funds**|
||**Notes**|**£**|**£**|**£**|**£**|
|**FIXED ASSETS**||||||
|Intangible assets|7|5,980|-|5,980|4,046|
|Tangible assets|8|360|-|360|595|
|||6,340|-|6,340|4,641|
|**CURRENT ASSETS**||||||
|Stocks|9|1,388|-|1,388|3,296|
|Debtors|10|78,262|57,813|136,075|168|
|Cash at bank||23,049|20,000|43,049|48,630|
|||102,699|77,813|180,512|52,094|
|**CREDITORS**||||||
|Amounts falling due within one year|11|(5,792)|(57,813)|(63,605)|(11,950)|
|**NET CURRENT ASSETS**||96,907|20,000|116,907|40,144|
|**TOTAL ASSETS LESS CURRENT**||103,247|20,000|123,247|44,785|
|**LIABILITIES**||||||
|**NET ASSETS**||103,247|20,000|123,247|44,785|
|**FUNDS**|12|||||
|Unrestricted funds||||103.247|36,477|
|Restricted funds||||20,000|8,308|
|**TOTAL FUNDS**||||123,247|44,785|
The financial statements were approved by the Board of Trustees and authorised for issue on 14 September 2022 and were signed on its behalf by:
R E A Greenwood - Trustee
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## _Societi Foundation_
_Annual Report and Accounts January 2021 - December 2021_
_Annual_ **Independent** _Report_ **Examiner’s Report**
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Statement of financial
activities
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Notes to the financial
statements
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## _Independent Examiner’s Report_
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## _Notes to the Financial Statement for the Year Ended 31 Dec 2021_
## _1. Accounting Policies_
## **Income**
All income is recognised in the Statement of Financial Activities once the charity has entitlement to the funds, it is probable that the income will be received and the amount can be measured reliably.
## **Basis of preparing the financial statements**
The financial statements of the charity, which is a public benefit entity under FRS 102, have been prepared in accordance with the Charities SORP (FRS 102) ‘Accounting and Reporting by Charities: Statement of Recommended Practice applicable to charities preparing their accounts in accordance with the Financial Reporting Standard applicable in the UK and Republic of Ireland (FRS 102) (effective 1 January 2019)’, Financial Reporting Standard 102 ‘The Financial Reporting Standard applicable in the UK and Republic of Ireland’ and the Charities Act 2011. The financial statements have been prepared under the historical cost convention. The charity is a Charitable Incorporated Organisation (CIO) registered with the Charity Commission in England and Wales.
Donations in kind are valued at the market rate of the services donated.
## **Expenditure**
Liabilities are recognised as expenditure as soon as there is a legal or constructive obligation committing the charity to that expenditure, it is probable that a transfer of economic benefits will be required in settlement and the amount of the obligation can be measured reliably. Expenditure is accounted for on an accruals basis and has been classified under headings that aggregate all cost related to the category. Where costs cannot be directly attributed to particular headings they have been allocated to activities on a basis consistent with the use of resources.
## **Financial reporting standard 102 - reduced disclosure exemptions**
- The charity has taken advantage of the following disclosure exemptions in preparing these financial statements, as permitted by FRS 102 ‘The Financial Reporting Standard applicable in the UK and Republic of Ireland’:
## **Intangible assets**
Amortisation is provided at the following annual rates in order to write off each asset over its estimated useful life.
Website - 33% on cost
## **Tangible fixed assets**
Depreciation is provided at the following annual rates in order to write off each asset over its estimated useful life.
Computer equipment - 33% on cost
## **Stocks**
Stocks are valued at the lower of cost and net realisable value, after making due allowance for obsolete and slow moving items.
## **Taxation**
The charity is exempt from tax on its charitable activities.
## **Fund accounting**
Unrestricted funds can be used in accordance with the charitable objectives at the discretion of the trustees.
Restricted funds can only be used for particular restricted purposes within the objects of the charity. Restrictions arise when specified by the donor or when funds are raised for particular restricted purposes.
Further explanation of the nature and purpose of each fund is included in the notes to the financial statement.
- the requirements of Section 7 Statement of Cash Flows.
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## _Societi Foundation_
_Annual Report and Accounts January 2021 - December 2021_
_Annual_ **Independent** _Report_ **Examiner’s Report**
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Statement of financial
activities
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Notes to the financial
statements
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## _Independent Examiner’s Report_
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## _Notes to the Financial Statement - continued for the Year Ended 31 Dec 2021_
_2. Other trading activities_
|||**Year Ended**
**31.12.21 £**|**Period 1.7.20 to**
**31.12.20 £**|**Period 1.7.20 to**
**31.12.20 £**|
|---|---|---|---|---|
|Merchandise income||2,242||653|
||**Other**|**Governance costs £**||**Totals £**|
|Kawasaki Disease Awareness|16,342|1,200||17,542|
|Support costs, included in the above, are as follows:|||||
|||**Year Ended**|**Period 1.7.20 to**||
|||**31.12.21 £**||**31.12.20**|
|||**Kawasaki Disease**|**Total activities £**||
|||**awareness**|||
|Postage and stationary||526||1,074|
|Insurance||186||93|
|Accountancy
Offce costs||562
5,074||444
2,012|
|Legal and professional services||-||900|
|Administrative staff costs||6,595||5,886|
|Amortisation of intangible fxed assets
Depreciation of tangible fxed assets||3,164
235||1,026
118|
|Independent examination||1,200||900|
|||17,542||12,453|
|Independent examination fee||**£**
900||**£**
300|
|There were no trustees’ remuneration or other benefts for the year ended 31 December 2021 nor for
the period ended 31 December 2020.**Trustees’ expenses**- There were no trustees’ expenses paid
for the period ended 31 December 2021 nor for the period ended 31 December 2020.|||||
|||**Year ended 31.12.21**|**Period 1.7.20 to**||
|||**£**||**31.12.20 £**|
|Wages and salaries||54,600||23,166|
|Social security costs||16||-|
|Other pension costs||1,264||210|
|||55,880||23,376|
|No employees received employee benefts over|£60,000||||
|The average monthly number of employees during the
year was as follows:||**Year ended**
**31.12.21**|**Period 1.7.20 to**
**31.12.20**||
|Administration||2||2|
|No employees received emoluments in excess of|£60,000.||||
## _3. Support costs_
## _4. Independent examination_
_5. Trustees’ remuneration and benefits_
## _6. Staff costs_
**52**
_societi.org.uk_
## _Societi Foundation_
_Annual Report and Accounts January 2021 - December 2021_
_Annual_ **Independent** _Report_ **Examiner’s Report**
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Statement of financial
activities
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Notes to the financial
statements
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## _Independent Examiner’s Report_
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## _Notes to the Financial Statement - continued for the Year Ended 31 Dec 2021_
|_7. Intangible fxed assets_||**Website £**|
|---|---|---|
|**Cost**|||
|At 1 January 2021||6,843|
|Additions||5,098|
|At 31 December 2021||11,932|
|**Amortisation**|||
|At 1 January 2021||2,788|
|Charge for year||3,164|
|At 31 December 2021||5,952|
|**Net book value**|||
|At 31 December 2021||5,980|
|At 31 December 2020||4,046|
|_8. Tangible fxed assets_||**Computer equipment £**|
|**Cost**|||
|At 1 January 2021 and 31 December 2021||713|
|**Depreciation**
At 1 January 2021
Charge for the year
At 31December 2021||118
235
353|
|**Net book value**|||
|At 31 December 2021
At 31 December 2020||360
595|
|_9. Stocks_|**2021 £**|**2020 £**|
|Stocks|1,388|3,296|
|_10. Debtors: amounts falling due within one year_
Payments and accrued income|**2021 £**
136,075|**2020 £**
168|
|_11. Creditors: amounts falling due within one year_
Taxation and social security|**2021 £**
847|**2020 £**
1,700|
|Other creditors|62,758|10,250|
||63,605|11,950|
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**53**
## _Societi Foundation_
_Annual Report and Accounts January 2021 - December 2021_
_Annual_ **Independent** _Report_ **Examiner’s Report**
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Statement of financial
activities
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## _Independent Examiner’s Report_
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## _Notes to the Financial Statement - continued for the Year Ended 31 Dec 2021_
|_12. Movement in funds_|**At 1.1.21 £**|**Net movement in**|**Transfers between funds**|**At 31.12.21 £**|
|---|---|---|---|---|
|||**funds £**|**£**||
|**Unrestricted funds**|||||
|General fund|36,477|(18,726)|85,496|103,247|
|**Restricted funds**|||||
|Young Person’s Portal|8,308|-|8,308|-|
|Randal Charitable Foundation|-|20,000|-|20,000|
|KD-CAAP Trial|-|77,188|(77,188)|-|
||8,308|97,188|(85,496|20,000|
|**TOTAL FUNDS**|44,785|78,462|-|123,247|
|**Net movement in funds, included in the**
**above are as follows:**||**Incoming resources £**|**Resources expended**|**Movement in funds**|
|**Unrestricted funds**|||||
|General fund||88,353|(107,079)|(18,726)|
|**Restricted funds**|||||
|Lanarca fund||9,900|(9,900)|-|
|Randal Charitable Foundation||20,000|-|20,000|
|KD-CAAP Trial||77,188|-|77,188|
|||107,188|(9,900)|97,188|
|**TOTAL FUNDS**||195,441|(116,979)|78,462|
**54**
_societi.org.uk_
## _Societi Foundation_
_Annual Report and Accounts January 2021 - December 2021_
_Annual_ **Independent** _Report_ **Examiner’s Report**
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activities
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statements
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## _Independent Examiner’s Report_
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## _Notes to the Financial Statement - continued for the Year Ended 31 Dec 2021_
|**Comparatives for movement in funds**|**At**|**1.7.20 £**|**Net movement in funds£**|**Net movement in funds£**|**At 31.12.20 £**|
|---|---|---|---|---|---|
|**Unrestricted funds**||||||
|General fund||53,501|(17,024)||36,477|
|**Restricted funds**||||||
|Young Person’s Portal||-||8,308|8,308|
|**TOTAL FUNDS**||53,501||(8,716)|44,785|
|**Comparatives for movement in funds, included in the above are as follows:**||||||
|**Unrestricted funds**|**Incoming resources £**||**Resources expended £**||**Movement in funds £**|
|General fund||22,468|(39,492)||(17,024)|
|**Restricted funds**||||||
|Lanarca fund||3,300||(3,300)|-|
|Young Person’s Portal||9,100||(792)|8,308|
|||12,400||(4,092)|8,308|
|**TOTAL FUNDS**||34,868|(43,584)||(8,716)|
**Young Person’s Portal Fund -** The fund arose following a grant from The Foyle Foundation. This grant is to be used to fund the creation of a Children’s and Young People’s Online Information Portal about Kawasaki Disease.
**Lanarca Fund -** This fund was a donation from Lanarca towards the staff costs of the charity.
**Randal Charitable Foundation Fund -** The fund arose from a grant made to Societi to focus on building a strategic partnership with children’s hospitals in the UK promoting awareness campaigns and engagement initiatives for Kawasaki Disease.
**KD-CAAP Trial -** The fund arose from an agreement for provision of resources with University College London (UCL) as part of a larger grant arrangement. The agreement specifies the expenditure must be spent on delivering the project and any variation needs to be approved by UCL
## **Transfer between funds**
**KD-CAAP Trial -** The project requires claims to be made following the expenditure on the project with claims being made in arrears. During the period claims were made for prior year expenditure which was funded out of general funds. A transfer of £ 77,188 was therefore required to recognise the reimbursement to the general fund
**Young Person’s Portal Fund -** The project was completed in the period and there were no ongoing restrictions over the fixed asset so it was transferred to the general fund.
## _13. Related party disclosures_
During the period, the Charity received gifts in kind of £35,256 (2020: £3,756 from Lanarca Limited, a company in which trustees R E A Greenwood and R D Greenwood are directors. Additionally salaries for the period of £Nil (2020: £1,868) have been recharged from Lanarca Limited at cost and with no uplift for the secondment of a Design and Research staff member
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## _Societi Foundation_
_Annual Report and Accounts January 2021 - December 2021_
_Annual_ **Independent** _Report_ **Examiner’s Report**
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Statement of financial
activities
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Notes to the financial
statements
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## _Independent Examiner’s Report_
## _Detailed Statement of financial activities for the Year Ended 31 Dec 2021_
|**INCOME AND ENDOWMENTS**
**Donations and legacies**|**Year Ended**
**31.12.21 £**|**Period 1.7.20**
**to 31.12.20 £**|**Support costs**
**Other**|**Year Ended**
**31.12.21 £**|**Period 1.7.20**
**to 31.12.20 £**|
|---|---|---|---|---|---|
|Donations|48,232|17,755|Postage and stationery|526|1,074|
|Gift aid|2,289|-|Insurance|186|93|
|Grants|97,188|9,100|Accountancy|562|444|
|Gifts in kind|35,256
182,965|3,756
30,611|Offce costs
Legal and professional fees|5,074
-|2,012
900|
|**Other Trading Activities**|||Administrative staff costs|6,595|5,886|
|Merchandise income|2,242|653|Computer software|3,164|1,026|
|**Other income**|||Computer equipment|235|118|
|Other income|10,234|3,604||16,342|11,553|
|**Total incoming resources**
**EXPENDITURE**
**Raising donations and legacies**|195,441|34,868|**Governance costs**
Independent Examination|1,200|900|
|Wages|27,300|11,583|Total resources expended|116,979|43,584|
|Pensions|632|105||||
|Fundraising costs|84|-|**Net (expenditure)/income**|78,462|(8,716)|
|**Other trading activities**|28,016|11,688||||
|Opening stock|3,296|2,445||||
|Purchases|3,690|1,416||||
|Closing stock|(1,388)|(3,296)||||
|**Charitable activities**|5,598|562||||
|Wages|27,300|11,583||||
|Social security|16|-||||
|Pensions|632|105||||
|Subscriptions|295|185||||
|Advertising|168|162||||
|Resource flms|5,900|900||||
|Donated services|7,512|3,756||||
|Recharged staff costs|24,000|1,868||||
|Raising awareness costs|-|322||||
||65,823|18,881||||
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