Societi Foundation
Annual Report & Accounts 01 July 2020 - 31 December 2020 Registered charity number 1173755
societi.org.uk
Societi Foundation Annual Report and Accounts July 2020 - December 2020
Annual I ndependen t Report Examiner’s Report
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About Kawasaki Disease
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Responding to Covid-19
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Our Activities -
Awareness Raising
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Our Activities -
Clinical Research
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Our Activities -
Clinical Supervision
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Our Activities - Support
for UK Families
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Financial Review
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About Kawasaki Disease
Kawasaki Disease symptoms
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Cracked lips/
Persistent Bloodshot Swollen Swollen
Rash ‘strawberry’
fever eyes glands fingers/toes
tongue
Kawasaki Disease is the leading cause of acquired heart disease
Kawasaki Disease Hospital Admissions 2006 - 2018
in children in the UK.
Number of Kawasaki Disease Projected number of Kawasaki
It is a type of vasculitis that mainly affects young children but it UK Hospital admissions Disease UK hospital admissions
can affect people of any age – and its impact can be most serious 1000
in the very young, particularly infants. Identified in 1967 in Japan
by Dr Tomisaku Kawasaki, the cause of Kawasaki Disease is still 800
unknown. The illness presents with several symptoms common to
600
a variety of other childhood diseases and infections and is therefore
often misdiagnosed. Kawasaki Disease is a serious disease which if 400
untreated can cause coronary artery damage.
200
Kawasaki Disease has a range of symptoms including a
characteristic and distinctively persistent high fever for five days 0
or more, rash, bloodshot eyes, “strawberry” tongue, cracked, dry
lips, redness of the fingers and toes and swollen glands in the
Year of admission
neck. Kawasaki Disease can be present with some or all of these
symptoms and symptoms often appear in series (i.e. not all at Societi Freedom of Information study 2016 & 2018
2006 2007 2008 2009 2010 2011 2012 2013 2014 2015 2016 2017 2018 2019 2020 2021 2022
No. of Kawasaki Disease hospital admissions
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Kawasaki Disease has a range of symptoms including a characteristic and distinctively persistent high fever for five days or more, rash, bloodshot eyes, “strawberry” tongue, cracked, dry lips, redness of the fingers and toes and swollen glands in the neck. Kawasaki Disease can be present with some or all of these symptoms and symptoms often appear in series (i.e. not all at once).
Kawasaki Disease is increasingly common. The above graph, based on Societi’s Freedom of Information study shows there are up to 1,000 hospital admissions for Kawasaki Disease in the UK every year. Once thought of as a rare disease, this now outdated idea, wrongly held on to by some, leads to delayed diagnosis and with this, increased risk of serious heart damage for children. In the ten years to 2015, hospital admissions for Kawasaki Disease in England increased fourfold – and across the globe cases are doubling every ten years. This is why it is the leading cause of acquired heart disease in UK children. We are working to raise awareness to make sure that doctors EXPECT to see Kawasaki Disease and are READY to treat it.
Kawasaki Disease should always be considered in any child with unexplained persistent fever. It is a serious illness that can cause coronary artery damage – damage to the blood vessels in the heart, and can lead to acquired heart disease in children.
Children affected by Kawasaki Disease have much improved chances of a good recovery with timely diagnosis and the correct treatment. Studies show that children treated early have a lower risk of serious heart damage than those treated later. Doctors should aim to diagnose and treat children as soon as possible – at five days of fever or as quickly as practical after that. The risk of heart damage increases proportionately with increasing delay.
Societi Foundation Annual Report and Accounts July 2020 - December 2020
Annual I ndependen t Report Examiner’s Report
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About Kawasaki Disease
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Responding to Covid-19
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Our Activities -
Awareness Raising
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Our Activities -
Clinical Research
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Our Activities -
Clinical Supervision
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Our Activities - Support
for UK Families
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Financial Review
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About Societi Foundation
Societi was established to raise awareness of Kawasaki Disease. We are an influencing and policy shaping organisation working through partnerships to drive transformational change in awareness across the UK, about Kawasaki Disease. Progress in understanding Kawasaki Disease has been severely hampered by poor levels of awareness, lack of investment and lack of essential research in the UK.
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Our ambition is that EVERYONE knows Kawasaki Disease. In the UK today, affected children face the same poor prospects in terms of outcomes as they did 20 years ago. We want to change that.
who reads it to get to know a little more about Societi and Kawasaki Disease - something which is hugely valuable.
The decision was made by the Trustees to bring Societi’s reporting period in line with usual year end accounting periods. This report therefore covers a shorter period of just six months to the end of December 2020, rather that a full year. Thereafter, the accounting period for Societi will run from January to December going forward.
The perception of Kawasaki Disease as a rare illness hampers UK research which is stifled by a lack of funds. It also hampers clinical resource allocation for treatments and long term clinical support that research shows families need. A lack of awareness of the true incidence of Kawasaki Disease among ‘front line’ clinicians needs to be addressed, in order for Kawasaki Disease to be considered as a possible diagnosis at an early stage.
The trustees present their report with the financial statements of the charity for the six months ended 31 December 2020. The trustees have adopted the provisions of Accounting and Reporting by Charities: Statement of Recommended Practice applicable to charities preparing their accounts in accordance with the Financial Reporting Standard applicable in the UK and Republic of Ireland (FRS 102) (effective 1 January 2019).
We enable urgently needed research and pursue changing policy and clinical practice for Kawasaki Disease. Not enough is known about Kawasaki Disease, its symptoms or its treatment. Long term care for affected families is limited. Many agencies, doctors and parents are unaware of the disease. We are changing this.
Public benefit - In setting our objectives and planning our activities our Trustees have given careful consideration to the Charity Commission’s guidance on public benefit. In the pages which follow our delivery and impact during July - December 2020 is set out.
This annual report is an important document and has been prepared by Societi Foundation for submission to the Charity Commission. It also serves to help supporters, partners, funders and anyone
About Societi Foundation
The trustees present their report with the financial statements of the charity for the period 1 July 2020 to 31 December 2020. The trustees have adopted the provisions of Accounting and Reporting by Charities: Statement of Recommended Practice applicable to charities preparing their accounts in accordance with the Financial Reporting Standard applicable in the UK and Republic of Ireland (FRS 102) (effective 1 January 2019).
Societi Foundation Annual Report and Accounts July 2020 - December 2020
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Our Objectives and Activities
- The advancement of education for the public benefit into the causes, detection and treatment of Kawasaki disease, by such charitable means as the Trustees shall from time to time determine.
Annual I ndependen t Report Examiner’s Report
- The promotion of research into the prevention, diagnosis, causes and treatment of Kawasaki disease by such charitable means as the Trustees shall from time to time determine.
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About Kawasaki Disease
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Our Values
Significant activities
Priority - We will work with others to enable them to recognise Kawasaki Disease as a priority
Societi has four activity areas around which all our actions and operations are focussed. These are as follows:
Awareness raising a voice for Kawasaki Disease
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Responding to Covid-19
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Pace - We will act quickly with a momentum that comes from our motivation to succeed
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Our Activities -
Awareness Raising
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Clinical research sharing knowledge, influencing funders and enabling co-ordination
Partnership - We will forge strong and lasting, partnerships with organisations who share our determination to transform the environment around Kawasaki Disease in the UK, and beyond.
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Clinical Research
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Clinical supervision shaping new care protocols and health policy
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Our Activities -
Clinical Supervision
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Support for UK families enabling sustained focus on family support
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Our Activities - Support
for UK Families
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Financial Review
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Societi Foundation Annual Report and Accounts July 2020 - December 2020
Annual I ndependen t Report Examiner’s Report
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About Kawasaki Disease
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Responding to Covid-19
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Our Activities -
Awareness Raising
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Our Activities -
Clinical Research
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Our Activities -
Clinical Supervision
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Our Activities - Support
for UK Families
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Financial Review
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About Societi Foundation
The trustees present their report with the financial statements of the charity for the period 1 July 2020 to 31 December 2020. The trustees have adopted the provisions of Accounting and Reporting by Charities: Statement of Recommended Practice applicable to charities preparing their accounts in accordance with the Financial Reporting Standard applicable in the UK and Republic of Ireland (FRS 102) (effective 1 January 2019).
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Our Organisational Structure
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Board of Trustees Kawasaki Disease UK
Steering Group
(Societi chair)
Societi Scientific
Advisory Board
Leadership and
Operational Activities Key Partnerships
Societi Foundation Core
Volunteers & staff team
Key:
Volunteers &
Fundraisers Key links
Societi Supporters
Management
& information
flows
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Societi Foundation Annual Report and Accounts July 2020 - December 2020
Annual I ndependen t Report Examiner’s Report
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About Kawasaki Disease
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Responding to Covid-19
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Our Activities -
Awareness Raising
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Our Activities -
Clinical Research
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Our Activities -
Clinical Supervision
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Our Activities - Support
for UK Families
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About Societi Foundation
Our future plans
In 2016, Societi Foundation published the first ever National Strategy to address Kawasaki Disease, the leading cause of acquired heart disease in children in the UK. The strategy focusses on the strategic aims for Societi Foundation and defines our work going forward.
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Our strategy is used as a starting point from which to engage with partners to discuss mutual opportunities to address the challenges we collectively face and to drive the work of Societi Foundation.
In July 2020, we released an impact statement summarising the work of Societi Foundation from 2016 in delivering the national strategy and highlighting the achievements realised.
Our charity has progressed from an initial start-up organisation to registered charity status, successfully contributing towards the achievements of its aims with modest amounts of funding. This National Strategy Impact Statement summarises the progress made towards achieving the set strategic aims.
To read our National Strategy Impact Statement click here or on the image opposite.
Work has begun on a refreshed strategy which will continue to provide structure and direction for our work. The refreshed strategy will be published in 2021.
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Financial Review
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Societi Foundation
Annual Report and Accounts July 2020 - December 2020
Annual I ndependen t Report Examiner’s Report
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About Kawasaki Disease
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Responding to Covid-19
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Our Activities -
Awareness Raising
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Our Activities -
Clinical Research
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Our Activities -
Clinical Supervision
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Our Activities - Support
for UK Families
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Financial Review
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Responding to Covid-19
The implications of Covid-19
The Trustees of Societi are aware that it is important to provide users of the Annual Report with information about the decisions they have had to take on judgements and uncertainties due to the Covid-19 pandemic. The below statement describes the effect of the pandemic on the organisations activities and the decisions that have been made in response.
stretched Societi beyond the limits of our volunteers and the staff employed by Societi.
worked hard to provide our supporters with alternative ways to continue their fundraising and awareness raising, including publishing Our Fundraising from Home infographic. Our newly launched Societi Active Facebook page led by our volunteer running group has also led to hugely successful virtual events, raising vital funds and awareness of Kawasaki Disease at a time when it is most needed.
To enable Societi to respond quickly and usefully to the emerging needs of our users, the decision was taken to employ a part time Marketing, Media and Digital lead.
Lucy joined the Societi team in August and is a long term supporter of Societi who has volunteered her time and media skills over the last few years. Lucy brings a wealth of knowledge - she is a communications and public relations professional, expert in developing effective and innovative comms strategies within the charity sector.
We continue to be overwhelmed by the response of our supporters in such difficult times and are truly grateful to every single member of #TeamSocieti.
The Covid-19 pandemic continued to impact Societi within the second half of 2020 in various ways.
Due to online and digital procedures already in place, we have continued to work effectively and at full capacity within a remote environment, including holding online Trustee Board meetings.
Our work to protect children from Kawasaki Disease, the LEADING cause of acquired heart disease in children, remains of the utmost importance. Children who are affected by Kawasaki Disease whilst the pandemic continues may not get the urgent help they need. We must continue to work with pace to raise awareness across the UK, reaching families who will be unfortunate enough to be affected by Kawasaki Disease - with our aim of helping them get rapid diagnosis and early treatment.
Creating this new role within our staff team has considerably increased our capacity to respond to the needs of our supporters during an unprecedented period for our organisation.
Enquiries from media and Supporters about Kawasaki Disease in relation to Covid-19 and PIMS-TS remained high. We have continued to collaborate with our Scientific Advisory Board to give our supporters the FACTS we know they need.
The expertise of our new Marketing, Media and Digital lead has allowed us to amplify our work across digital and social media, enabling us to reach a wider audience.
In response to the postponement and cancellation of fundraising events across the UK and the implementation of Covid-19 restrictions, we have
This vastly increased demand for our services and the need to counter confusing misinformation being circulated has
Societi Foundation Annual Report and Accounts July 2020 - December 2020
Annual I ndependen t Report Examiner’s Report
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About Kawasaki Disease
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Responding to Covid-19
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Our Activities -
Awareness Raising
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Our Activities -
Clinical Research
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Our Activities -
Clinical Supervision
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Our Activities - Support
for UK Families
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Awareness Raising
Activities around raising awareness of Kawasaki Disease
We raise awareness of Kawasaki Disease to improve prompt diagnosis - through multi media campaigns, reaching GPs, paediatric clinicians, health professionals and parents. Click on the buttons below to find out about our activities around raising awareness of Kawasaki Disease:
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Online campaigning and awareness raising
Telling the whole of the UK about Kawasaki Disease is a very big job - especially for a small organisation like Societi. One of the most efficient and effective ways to get our message to a s many people as possible is via the use o f social media.
In August, to increase much needed capacity in response to the Covid-19 pandemic, Societi employed a Marketing, Media and Digital Lead. As well as helping to cope with the increased demand for Societi’s services, this new role has also allowed us to expand greatly upon our social media campaigning.
Our following on all social media platforms has increased exponentially over the period, with higher levels of engagement, consistently furthering our reach. As our audience continues to grow, we will continue to work hard to raise awareness via effective online campaigns and digital marketing initiatives.
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Financial Review
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Societi Foundation
Annual Report and Accounts July 2020 - December 2020
Annual I ndependen t Report Examiner’s Report
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About Kawasaki Disease
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Responding to Covid-19
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Our Activities -
Awareness Raising
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Our Activities -
Clinical Research
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Our Activities -
Clinical Supervision
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Our Activities - Support
for UK Families
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Financial Review
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Awareness Raising
Activities around raising awareness of Kawasaki Disease
We raise awareness of Kawasaki Disease to improve prompt diagnosis - through multi media campaigns, reaching GPs, paediatric clinicians, health professionals and parents. Click on the buttons below to find out about our activities around raising awareness of Kawasaki Disease:
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Enabling #TeamSocieti
With events postponed and restrictions still in place, circumstances continued to prove difficult for supporters wanting to raise awareness and funds throughout the second half of the year.
We always work hard to enable our supporters and we were just blown away by the effort, ingenuity and sheer brilliance of #TeamSocieti despite such
Skydives, 24 hour gaming sessions, bake sales, head shaves and 30 mile walks were just some of the brilliant events completed by our supporters.
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One amazing lady, Zara, even managed to complete her phenomenal challenge of running 2,020km throughout 2020. Zara completed her challenge in November and raised an unbelievable £2527.95.
We are hugely grateful to every single member of #TeamSocieti for continuing to show their support during at a time when it is most needed.
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Societi Foundation
Annual Report and Accounts July 2020 - December 2020
Annual I ndependen t Report Examiner’s Report
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About Kawasaki Disease
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Responding to Covid-19
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Our Activities -
Awareness Raising
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Our Activities -
Clinical Research
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Our Activities -
Clinical Supervision
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Our Activities - Support
for UK Families
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Financial Review
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Awareness Raising
Activities around raising awareness of Kawasaki Disease
We raise awareness of Kawasaki Disease to improve prompt diagnosis - through multi media campaigns, reaching GPs, paediatric clinicians, health professionals and parents. Click on the buttons below to find out about our activities around raising awareness of Kawasaki Disease:
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Keeping our supporters informed
We think it’s vitally important to let our supporters know exactly what we are doing as an organisation to help achieve our objective aims around Kawasaki Disease in the UK.
As well as providing updates on social media and our website, Societi also produces a regular newsletter that is distributed among our supporters.
As well as informing our supporters about Societi’s latest projects and activities, our newsletters also highlight the tremendous hard work and achievements of #TeamSocieti - something which is extremely important to us as an organisation. You can find all of our newsletters here.
Societi Foundation
Annual Report and Accounts July 2020 - December 2020
Annual I ndependen t Report Examiner’s Report
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About Kawasaki Disease
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Responding to Covid-19
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Our Activities -
Awareness Raising
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Our Activities -
Clinical Research
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Our Activities -
Clinical Supervision
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Our Activities - Support
for UK Families
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Financial Review
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Awareness Raising
Activities around raising awareness of Kawasaki Disease
We raise awareness of Kawasaki Disease to improve prompt diagnosis - through multi media campaigns, reaching GPs, paediatric clinicians, health professionals and parents. Click on the buttons below to find out about our activities around raising awareness of Kawasaki Disease:
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Building Societi Active
Societi’s newly launched Societi Active Facebook page was an instant success, encouraging hundreds of Societi supporters to get active, raising Kawasaki Disease awareness and funds at the same time!
Led by the simply fantastic volunteers, Hayley, Vikki, Gayle and Lucy, Societi Active will lead our virtual runs for World Heart Day and International Kawasaki Disease Awareness Day. Societi Active also:
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Provide information needed to start fundraising for Societi Foundation
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Suggest ways to promote challenges and raise awareness of Kawasaki Disease
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Provide training advice and tips from a qualified sports and running coach
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Offer bespoke marathon and half marathon training plans for runners
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Share ideas, books, music, podcasts and lots of other inspiration
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Reveal BRAND NEW Societi Active merchandise
Societi Foundation
Annual Report and Accounts July 2020 - December 2020
Annual I ndependen t Report Examiner’s Report
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About Kawasaki Disease
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Responding to Covid-19
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Our Activities -
Awareness Raising
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Our Activities -
Clinical Research
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Our Activities -
Clinical Supervision
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Our Activities - Support
for UK Families
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Financial Review
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Awareness Raising
Activities around raising awareness of Kawasaki Disease
We raise awareness of Kawasaki Disease to improve prompt diagnosis - through multi media campaigns, reaching GPs, paediatric clinicians, health professionals and parents. Click on the buttons below to find out about our activities around raising awareness of Kawasaki Disease:
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Virtual 10K & Fun Mile
Our virtual run for World Heart Day was the first to be officially run by the newly established Societi Active.
The fabulous Societi Active Committee, Vikki, Hayley, Gayle and Lucy worked so hard to organise the Virtual 10k and Fun Mile. We were absolutely overwhelmed by the success of this year’s event.
69 entrants to the virtual race and linked events raised nearly £4,000 AND... not only that - all those participants ran their individual races up and down the UK raising much needed Kawasaki Disease awareness in their gorgeous new Societi Active t-shirts. We are immensely grateful to every member of #TeamSocieti for the astonishing effort put into the event to make it such a massive success - THANK YOU!
Societi Foundation
Annual Report and Accounts July 2020 - December 2020
Annual I ndependen t Report Examiner’s Report
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About Kawasaki Disease
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Responding to Covid-19
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Our Activities -
Awareness Raising
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Our Activities -
Clinical Research
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Our Activities -
Clinical Supervision
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Our Activities - Support
for UK Families
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Financial Review
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Awareness Raising
Activities around raising awareness of Kawasaki Disease
We raise awareness of Kawasaki Disease to improve prompt diagnosis - through multi media campaigns, reaching GPs, paediatric clinicians, health professionals and parents. Click on the buttons below to find out about our activities around raising awareness of Kawasaki Disease:
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Ladies Circle
Ladies Circle national President for 2019-20, Lindsay Pickard, named Societi Foundation as her presidential charity for the year. In September, at their annual conference, Lindsay handed over her presidency and Rachael, Societi Founder shared the incredible news that this wonderful organisation raised well over £10,000 for Societi.
THOUSANDS of amazing women at Ladies Circle worked tirelessly to raise awareness of Kawasaki Disease, and were constantly coming up with original and exciting ideas to raise funds during, in part, some really difficult times.
Ladies Circle is a phenomenal organisation - and one of scale. They have brought so much energy, real passion and determination to our charity and know they will bring the same level of support to their next charity partner.
Thank you again Lindsay, for inspired leadership as President, for your friendship shown to Societi, and for nominating our charity and making BIG change happen for tiny hearts.
Societi Foundation
Annual Report and Accounts July 2020 - December 2020
Annual I ndependen t Report Examiner’s Report
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About Kawasaki Disease
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Awareness Raising
Activities around raising awareness of Kawasaki Disease
We raise awareness of Kawasaki Disease to improve prompt diagnosis - through multi media campaigns, reaching GPs, paediatric clinicians, health professionals and parents. Click on the buttons below to find out about our activities around raising awareness of Kawasaki Disease:
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A powerful campaign video
We released our powerful and hardhitting campaign video featuring parents, whose children have been affected by Kawasaki Disease, sharing their sincere plea, to ‘Know Kawasaki Disease’.
We were delighted at how successful the video has been with it being viewed and shared many times over.
We are so grateful to the simply incredible families featured in our ‘Know Kawasaki Disease’ film. It isn’t always easy to share experiences about the devastating consequences of this serious disease. We want to say a HUGE thank you to everyone who volunteered to take part. Our ‘Know Kawasaki Disease’ video has helped grow understanding, awareness, and is helping us to protect even more tiny hearts.
You can watch the video by clicking here or on the image opposite.
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Financial Review
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Societi Foundation
Annual Report and Accounts July 2020 - December 2020
Annual I ndependen t Report Examiner’s Report
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About Kawasaki Disease
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Financial Review
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Awareness Raising
Activities around raising awareness of Kawasaki Disease
We raise awareness of Kawasaki Disease to improve prompt diagnosis - through multi media campaigns, reaching GPs, paediatric clinicians, health professionals and parents. Click on the buttons below to find out about our activities around raising awareness of Kawasaki Disease:
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Clear Channel UK’s Malls Live network
Societi was given an extraordinary opportunity – UK wide advertising space to support our mission to protect children’s hearts - at no cost. We’re hugely grateful to Clear Channel UK for donating very valuable space for a Kawasaki Disease campaign on their digital screens - across the Malls Live network in the UK’s leading shopping malls nationwide. The campaign was even extended for an extra 7 days. The added potential reach this extra time gave us was just fantastic!
We were able to reach a whole new audience with our Kawasaki Disease awareness raising message - something that, without the generosity of Clear Channel, we just could not have done. The incredible team at Clear Channel provided all the help and advice needed to create an effective campaign.
Societi Foundation
Annual Report and Accounts July 2020 - December 2020
Annual I ndependen t Report Examiner’s Report
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About Kawasaki Disease
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Awareness Raising
Activities around raising awareness of Kawasaki Disease
We raise awareness of Kawasaki Disease to improve prompt diagnosis - through multi media campaigns, reaching GPs, paediatric clinicians, health professionals and parents. Click on the buttons below to find out about our activities around raising awareness of Kawasaki Disease:
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Political engagement
Societi continues to make significant progress in the engagement of Government around the issues surrounding Kawasaki Disease.
With the fantastic support of Lexington communications - a recognised leader in the field of communications and engagement - Societi developed plans to reach UK policymakers, politicians and wider stakeholders on World Heart Day.
Societi engaged with a number of concerned MPs that have put a series of parliamentary questions forward to the Secretary of State for Health and Social Care on our behalf.
We need political stakeholders to understand the seriousness and urgency of Kawasaki Disease if we are to create change which really benefits our children – we need shifts in health policy and investment. We will continue to engage with Government to ensure those affected by Kawasaki Disease receive the support they need.
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Societi Foundation
Annual Report and Accounts July 2020 - December 2020
Annual I ndependen t Report Examiner’s Report
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Financial Review
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Awareness Raising
Activities around raising awareness of Kawasaki Disease
We raise awareness of Kawasaki Disease to improve prompt diagnosis - through multi media campaigns, reaching GPs, paediatric clinicians, health professionals and parents. Click on the buttons below to find out about our activities around raising awareness of Kawasaki Disease:
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Developing and promoting Societi merchandise
Societi continues to make merchandise available to our supporters which importantly, serves to raise both funds and much needed awareness of Kawasaki Disease.
New products introduced to our online shop and available to our supporters included Societi branded face coverings, children’s hoodies and a limited edition black Societi jute bag.
Another popular addition to our online shop over the festive period was an incredibly cute chocolate reindeer. Featuring a red chocolate heart in place of a nose, the chocolate reindeer were produced by Park House Barns, a social enterprise supporting people with disabilities into work, offering a variety of roles for different levels of ability.
Societi Foundation Annual Report and Accounts July 2020 - December 2020
Annual I ndependen t Report Examiner’s Report
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Awareness Raising
Activities around raising awareness of Kawasaki Disease
We raise awareness of Kawasaki Disease to improve prompt diagnosis - through multi media campaigns, reaching GPs, paediatric clinicians, health professionals and parents. Click on the buttons below to find out about our activities around raising awareness of Kawasaki Disease:
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World Heart Day - FACTS not fear
World Heart Day 2020 was an utterly exceptional day for Kawasaki Disease awareness. So many people, and so many partners contributed - many throughout the entire month of September — as we planned, prepared and worked on content for 29 September 2020 - World Heart Day!
This year our campaign centred around “FACTS not fear” and we highlighted the urgent need for more public awareness and investment to raise awareness of Kawasaki Disease. We are particularly grateful to everyone who contributed this year - as we navigated the most unprecedented of times. Times where there is much uncertainty and trepidation but where Kawasaki Disease remains little known.
Our Impact Statement highlighting all the activities around World Heart Day can be found here.
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Financial Review
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Societi Foundation Annual Report and Accounts July 2020 - December 2020
Annual I ndependen t Report Examiner’s Report
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About Kawasaki Disease
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Awareness Raising
Activities around raising awareness of Kawasaki Disease
We raise awareness of Kawasaki Disease to improve prompt diagnosis - through multi media campaigns, reaching GPs, paediatric clinicians, health professionals and parents. Click on the buttons below to find out about our activities around raising awareness of Kawasaki Disease:
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Updating our School’s and Nursery’s Information Pack
Our Kawasaki Disease School’s information packs were updated in December and provided electronically to allow them to be downloaded by our supporters in time for Kawasaki Disease Awareness Day.
The packs were promoted and sent out to all supporters who requested them.
These information packs contain a customisable letter, leaflets and posters with Kawasaki Disease information suitable for display in a childcare setting and have helped to raise much needed awareness of Kawasaki Disease with parents and childcare providers across the UK.
The packs also contain resources to allow schools and nurseries to hold awareness days ensuring that everyone knows Kawasaki Disease!
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Societi Foundation
Annual Report and Accounts July 2020 - December 2020
Annual I ndependen t Report Examiner’s Report
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About Kawasaki Disease
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Awareness Raising
Activities around raising awareness of Kawasaki Disease
We raise awareness of Kawasaki Disease to improve prompt diagnosis - through multi media campaigns, reaching GPs, paediatric clinicians, health professionals and parents. Click on the buttons below to find out about our activities around raising awareness of Kawasaki Disease:
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Social Media Ambassadors
Social media is an essential part of our work, it helps us create much needed and vital awareness of Kawasaki Disease - the leading cause of acquired heart disease in children in the UK.
We want to reach as many people as possible, in fact we want to reach 66 million people - that is the entire population of the UK.
We encourage our supporters to become Social Media Ambassadors as their activity on social media can actively help support and further our work. The more people that hear our message the bigger impact we have. We are so grateful to the supporters that share our messages.
Simply interacting with our updates, images and videos we share; liking, retweeting, sharing or commenting on them helps to spread our vital message to even more potential supporters.
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Societi Foundation
Annual Report and Accounts July 2020 - December 2020
Annual I ndependen t Report Examiner’s Report
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Clinical Research
Activities around clinical research
We work to lever efforts building on enhanced awareness of need, to undertake and urgently advance critical research to understand, diagnose and manage Kawasaki Disease. Click on the buttons below to find out about our activities around clinical research:
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Leading Public and Patient Involvement (PPI) for Europe-wide clinical trial
Societi was the catalyst for a clinical trial for Kawasaki Disease treatments. The trial titled KDCAAP (Kawasaki Disease Coronary Artery Aneurysm Prevention) will investigate the potential for better acute treatments for Kawasaki Disease which may reduce the heart damage children can experience when affected by Kawasaki Disease.
Societi plays an ongoing role in the delivery of the largest Kawasaki Disease clinical trial of its type to ever take place – by leading the PPI elements. Societi sits as part of the Trial Management Group and Trial Steering group too – with an important part to play making sure the views of families and patients are represented. Our work includes ensuring the profile of the trial is raised and the information families need, as they consider taking part in the trial, is available in user friendly formats.
Clinical Research
Societi Foundation
Annual Report and Accounts July 2020 - December 2020
Annual I ndependen t Report Examiner’s Report
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Activities around clinical research
We work to lever efforts building on enhanced awareness of need, to undertake and urgently advance critical research to understand, diagnose and manage Kawasaki Disease. Click on the buttons below to find out about our activities around clinical research:
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Raising awareness of KDCAAP
As part of Societi’s role within the KDCAAP clinical trial, Societi works to raise awareness of the trial to clinicians and to the public.
A KDCAAP Twitter account dedicated to promoting awareness of the KDCAAP trial was created in November 2020.
The dedicated KDCAAP Twitter account is actively posting on a weekly basis and followers continue to grow in numbers.
Societi cross-posts to the Societi Twitter account which has a regular, active following of c. 1,200.
Societi’s Facebook page, which has an international following of over 1,400, continues to promote and explain the trial and highlight its focus.
Societi also uses LinkedIn via the Societi Foundation account to draw attention to the work of the trial too.
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Societi Foundation
Annual Report and Accounts July 2020 - December 2020
Annual I ndependen t Report Examiner’s Report
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Clinical Research
Activities around clinical research
We work to lever efforts building on enhanced awareness of need, to undertake and urgently advance critical research to understand, diagnose and manage Kawasaki Disease. Click on the buttons below to find out about our activities around clinical research:
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Developing KDCAAP trial web pages and resources
Societi developed a series of web pages dedicated to the KDCAAP trial information which are now live.
Content developed and published includes lots of useful information about the trial, a range of downloadable resources for families and an interactive map of KDCAAP centres across Europe.
Web pages are being continuously developed and added to over time as queries emerge and FAQ’s are
To view the web pages developed for the trial click here or on the image opposite.
Societi has also helped to develop trial resources including a logo and a trial newsletter providing design input and reviewing content.
Societi Foundation Annual Report and Accounts July 2020 - December 2020
Annual I ndependen t Report Examiner’s Report
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Clinical Supervision
Activities around clinical supervision
Gaps exist in current provision for Kawasaki Disease children in their long term care. We work to close these gaps, as well as connect long term care to long term research. Click on the buttons below to find out about our activities aroun d clinical supervision:
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Recruiting to the Scientific Advisory Board
Kawasaki Disease has many effects on a child and as such a multi-disciplinary approach to research/care is needed fo r this disease.
Societi is supported by the phenomenal clinical expertise of our Scientific Advisory Board which underpins our work as a charity - UK leading medical experts guide all our work meaning our supporters can rely on the facts we share.
Prof Michael Levin
Associate Professor Despina Eleftheriou
Prof Paul Brogan
Dr Tom Johnson
Professor of Paediatrics & Consultant Cardiologist, International Child Health, Bristol Heart Institute Imperial College London
Professor of Vasculitis Paediatric Rheumatologist, and Honorary Consultant Great Ormond Street Paediatric Rheumatologist, Hospital and Institute of Great Ormond Street Child Health Hospital
In August, Dr Filip Kucera, a Consultant paediatric cardiologist at Great Ormond Street Hospital joined our Scientific Advisory Board further strengthening the team.
Dr Kucera has a wealth of expertise in paediatric echocardiography - having authored the “Atlas of Paediatric Echocardiography” - a leading handbook for clinicians who themselves want to develop their skills in this important area.
Dr Filip Kucera
Dr Damian Roland Dr Owen Miller Dr Filip Kucera Consultant and Honorary Consultant in Paediatric Paediatric Cardiologist, Associate Professor in and Fetal Cardiology, Great Ormond Street Paediatric Emergency Clinical Director, Hospital Medicine, University Congenital Heart Network, Hospitals, Leicester Evelina London Children’s Hospital
Societi Foundation
Annual Report and Accounts July 2020 - December 2020
Annual I ndependen t Report Examiner’s Report
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Financial Review
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Clinical Supervision
Activities around clinical supervision
Gaps exist in current provision for Kawasaki Disease children in their long term care. We work to close these gaps, as well as connect long term care to long term research. Click on the buttons below to find out about our activities aroun d clinical supervision:
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UK Kawasaki Disease Steering Group
Societi continues to chair the UK Kawasaki Disease Steering Group - a UK wide partnership group comprising key national leaders and influencers who act together as a catalyst for positive change around Kawasaki Disease - for awareness, knowledge sharing and to encourage best practice in clinical care.
Societi was privileged to be joined by many colleagues, expert in Kawasaki Disease including Societi Trustees Prof Tulloh and Prof Brogan and influential leaders including Prof Nick Linker, NHS England National Clinical Director, Heart Disease.
Working through a demanding agenda the group focused on our national strategy for the next 4 years, Covid-19 and Kawasaki Disease, and lifetime care needs.
We are grateful too, to Dr Jethro Herberg, Prof Despina Eleftheriou, Dr Louis Hall and Nick King for a simply great conversation - keeping Kawasaki Disease on the national healthcare map and high on the political agenda.
Societi Foundation
Annual Report and Accounts July 2020 - December 2020
Annual I ndependen t Report Examiner’s Report
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Clinical Supervision
Activities around clinical supervision
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Distribution of GP information
Societi has created and distributes GP information packs and hospital information packs to ensure that doctors have the information they need to make a Kawasaki Disease diagnosis quickly.
Even though work to create and distribute the packs has needed to be temporarily halted due to Covid-19 national restrictions, work has taken place to create and distribute the packs electronically.
In September, to mark World Heart Day, our electronic information packs were sent to every single CCG in England.
Click here or on the image opposite to view our interactive map showing exactly where our packs have been sent.
Societi Foundation
Annual Report and Accounts July 2020 - December 2020
Annual I ndependen t Report Examiner’s Report
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About Kawasaki Disease
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Our Activities -
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Our Activities -
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Our Activities - Support
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Clinical Supervision
Activities around clinical supervision
Gaps exist in current provision for Kawasaki Disease children in their long term care. We work to close these gaps, as well as connect long term care to long term research. Click on the buttons below to find out about our activities aroun d clinical supervision:
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International Kawasaki Disease Registry global conference
It was fantastic to be part of the International Kawasaki Disease Registry global conference in Montreal in September - opening Keynote for the afternoon session given by our founding Scientific Advisory Board member and Societi Trustee, Prof Robert Tulloh.
A global community of experts, a critically important sharing of global research efforts and clinical approaches - and powerful Kawasaki conversations sharing contemporary clinical and prepublished learning.
We were delighted for the work of our charity to be contributing as part of such a phenomenal global community, dedicated to protecting children from Kawasaki Disease.
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Financial Review
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Societi Foundation
Annual Report and Accounts July 2020 - December 2020
Annual I ndependen t Report Examiner’s Report
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About Kawasaki Disease
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Our Activities -
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Our Activities - Support
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Clinical Supervision
Activities around clinical supervision
Gaps exist in current provision for Kawasaki Disease children in their long term care. We work to close these gaps, as well as connect long term care to long term research. Click on the buttons below to find out about our activities aroun d clinical supervision:
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The Skin Deep Project
Over the Summer, Societi built a partnership with Skin Deep - an incredibly important project led by doctors that aims to improve the diversity in children’s skin images in medical education and medical books.
The Skin Deep project is building a medical training resource - online - so that doctors worldwide can get to know what different illnesses can appear like on the whole range of skin tones.
We invited our supporters to contribute to the project which our Scientific Advisory Board saw HUGE value in and which will focus on children with black and minority ethnic skin tones.
The Scientific Advisory Board are keen too, to build a medical “Symptoms Library” of the very varied symptoms as they present on ALL children - as they know that all too often, extreme (and unrepresentative!) pictures are used in medical education too.
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Financial Review
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Societi Foundation
Annual Report and Accounts July 2020 - December 2020
Annual I ndependen t Report Examiner’s Report
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About Kawasaki Disease
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Our Activities -
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Our Activities -
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Clinical Supervision
Activities around clinical supervision
Gaps exist in current provision for Kawasaki Disease children in their long term care. We work to close these gaps, as well as connect long term care to long term research. Click on the buttons below to find out about our activities aroun d clinical supervision:
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Updating and reviewing our clinicians information
Societi has a dedicated space on our website for clinicians interested in Kawasaki Disease.
The information available includes learning information and resources, links to useful Kawasaki Disease research, papers on Kawasaki Disease Management and a clinician Q&A which has been created following many of the discussions we have had with clinicians during events, conferences and webinars.
The information in our clinicians area is well used and is regularly reviewed and updated with new information added constantly.
To view the clinician’s area of our website, click here or on the image opposite.
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Our Activities - Support
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Financial Review
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Societi Foundation
Annual Report and Accounts July 2020 - December 2020
Annual I ndependen t Report Examiner’s Report
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Clinical Supervision
Activities around clinical supervision
Gaps exist in current provision for Kawasaki Disease children in their long term care. We work to close these gaps, as well as connect long term care to long term research. Click on the buttons below to find out about our activities aroun d clinical supervision:
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New resources for clinicians
Making Kawasaki Disease memorable for doctors is incredibly important to ensuring affected children are diagnosed and treated quickly.
We asked doctors what sort of materials would help to make Kawasaki Disease memorable for them. They said....
”stuff that hangs around”..... “
”stuff that we can use....”
”practical things...”
So we designed and ordered these fabulous note pads and post-its!!! A simply BRILLIANT partner to our lovely Societi pens! We are DETERMINED to make Kawasaki Disease memorable!
Societi Foundation
Annual Report and Accounts July 2020 - December 2020
Annual I ndependen t Report Examiner’s Report
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Support for UK families
Activities around support for UK families
We recognise that when faced with a diagnosis of Kawasaki Disease, support, expert backed information and helpful resources are of vital importance to families. Our work enables a sustained focus on family support. Click on the buttons below to find out about our activities around supporting UK families:
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Creating My Societi
A huge amount of work took place in preparation for the launch of My Societi, a children and young people’s information portal ready for Kawasaki Disease Awareness Day in January 2021.
Much collaboration and partnership contributed to the creation of the portal and our grateful thanks go out to all of our partners, especially the young people and Societi supporters whose contribution to the portal was so valuable.
Societi received a grant from The Foyle Foundation to support the development work. The Foyle Foundation is an independent grant making trust that distributes grants to UK charities, and which invested £9,100 specifically to develop My Societi. We are hugely grateful to the Foyle Foundation for their support and shared pledge to build a resource that will provide essential and trustworthy information to young people, tailored to their specific needs.
Societi Foundation
Annual Report and Accounts July 2020 - December 2020
Annual I ndependen t Report Examiner’s Report
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Support for UK families
Activities around support for UK families
We recognise that when faced with a diagnosis of Kawasaki Disease, support, expert backed information and helpful resources are of vital importance to families. Our work enables a sustained focus on family support. Click on the buttons below to find out about our activities around supporting UK families:
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Kawasaki Disease Heart-to-Heart
We had an unstoppable Kawasaki conversation with our wonderful Scientific Advisory Board in September, marking World Heart Day with a very special Heart-to-Heart virtual round table.
We asked our supporters to provide us with the questions they have about Kawasaki Disease so we could put them to our Advisory Board. Our amazing team of expert clinicians answered our supporter’s questions, talking through topics like long term issues, aspirin and lifetime care.
At Societi, sharing expert, up-to-date and FACT-based knowledge to families and carers of children affected by the all-too-often devastating consequences of Kawasaki Disease, remains at the top of our agenda.
Our HUGE thanks to our Scientific Advisory Board - all giving their time generously as volunteers to support Societi and our families, in an astonishingly busy period for them.
To watch the Heart-to-Heart on our YouTube channel click here or on the image opposite.
Societi Foundation
Annual Report and Accounts July 2020 - December 2020
Annual I ndependen t Report Examiner’s Report
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About Kawasaki Disease
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Support for UK families
Activities around support for UK families
We recognise that when faced with a diagnosis of Kawasaki Disease, support, expert backed information and helpful resources are of vital importance to families. Our work enables a sustained focus on family support. Click on the buttons below to find out about our activities around supporting UK families:
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Sharing family stories and supporting families
Supporting families who have been affected by Kawasaki Disease is extremely important to Societi Foundation. Sharing family stories is an extremely powerful way to raise awareness of Kawasaki Disease and help others going through similar experiences of a Kawasaki Disease diagnosis.
Work began during the period to engage with supporters who wanted to share their family stories to help others. The family stories will be released and will be available on our website and across our social media platforms during 2021. It is our hope they will help grow understanding, awareness and knowledge about Kawasaki Disease and protect the tiny hearts of the future.
Societi also has an open offer of support financially to the UK Kawasaki Disease Support Group, (KSSG), who have an invaluable role in providing a listening ear and emotional support for Families affected by Kawasaki Disease.
Societi Foundation Annual Report and Accounts July 2020 - December 2020
Annual I ndependen t Report Examiner’s Report
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Support for UK families
Activities around support for UK families
We recognise that when faced with a diagnosis of Kawasaki Disease, support, expert backed information and helpful resources are of vital importance to families. Our work enables a sustained focus on family support. Click on the buttons below to find out about our activities around supporting UK families:
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Updating and promoting our online and downloadable resources
Societi has many assets and resources available for families who have experienced a diagnosis of Kawasaki Disease.
Our information filled website and Family Resource Portal are both extremely helpful resources and can be a lifeline for families experiencing a Kawasaki Disease diagnosis.
We constantly review and update and promote our website and portal content, including our downloadable leaflets and information, to ensure that the most up to date and accurate information is available to users.
Feedback received from supporters suggests that our resources are invaluable tools for those affected by Kawasaki Disease and their families. Visit our website here.
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Financial Review
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Societi Foundation
Annual Report and Accounts July 2020 - December 2020
Annual I ndependen t Report Examiner’s Report
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Support for UK families
Activities around support for UK families
We recognise that when faced with a diagnosis of Kawasaki Disease, support, expert backed information and helpful resources are of vital importance to families. Our work enables a sustained focus on family support. Click on the buttons below to find out about our activities around supporting UK families:
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Promoting our resources around Covid-19
In response to the misinformation and confusion created around Kawasaki Disease due to the Covid-19 pandemic, Societi created a number of resources for to be used by families to enable them to get correct and up to date information.
Working in collaboration with our Scientific Advisory Board, a number of resources were created including multiple statements and a filmed interview with one of our advisors, top paediatrician and Kawasaki Disease expert Professor Paul Brogan, Professor of Vasculitis and Honorary Consultant Paediatric Rheumatologist, Great Ormond Street Hospital.
Over the period, Societi continued to promote these resources where possible to ensure families had access to factual and accurate information when needed.
Our Kawasaki Disease & Covid-19 resources can be found here.
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Financial Review
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Societi Foundation
Annual Report and Accounts July 2020 - December 2020
Annual I ndependen t Report Examiner’s Report
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Our Activities -
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Support for UK families
Activities around support for UK families
We recognise that when faced with a diagnosis of Kawasaki Disease, support, expert backed information and helpful resources are of vital importance to families. Our work enables a sustained focus on family support. Click on the buttons below to find out about our activities around supporting UK families:
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Information films considering Kawasaki Disease issues into adulthood
There are an estimated 20,000 children, young people and adults in the UK who have been affected by Kawasaki Disease.
In a series of videos released on Societi’s YouTube channel, Dr Tom Johnson Consultant Cardiologist at the Bristol Heart Institute, heart expert and member of Societi’s Scientific Advisory Board, considers longer term effects and implications of Kawasaki Disease into adulthood.
To view the series of videos, please click here or on the image opposite.
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Societi Foundation
Annual Report and Accounts July 2020 - December 2020
Annual I ndependen t Report Examiner’s Report
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About Societi Foundation
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Financial position
At the period end, the charity had total reserves of £44,785 (2020: £53,501) composed of unrestricted funds of £36,477 (2020: £53,501) and restricted funds of £8,308 (2020: £nil).
Reserves Policy
Context
Societi Foundation (Societi) has established a reserves policy to protect its activities by providing a financial comfort zone against an unpredictable environment and to make sufficient provision for future cash flow requirements to sustain our charitable activities. The policy also provides the framework for future strategic planning and decision-making. The development of an effective reserves policy will reduce the impact of financial risks upon the continuing operations of Societi.
The reserves policy and the establishment of ranges is based upon an annual risk assessment of the internal and external operating environment, as well as having a due regard for the nature of activities under taken by Societi for our beneficiaries.
Scope
This policy relates to Societi Foundations operation as a charity with four strategic aims - to raise awareness, enhance clinical supervision, enable clinical research and support the UK Support Group. In setting this policy Trustees are aware that, as a
newly established organisation our reserves policy will need to be under regular review and be adjusted appropriately to reflect growth in our organisation.
Reserves
Societi Foundation holds unrestricted reserves derived from fundraiser income or donations that can be spent at the discretion of the Trustees in furtherance of any of Societi’s objectives.
Range of Reserves Held
The target range for reserves has been set by Trustees at no less than £40,000. This policy remains under informal review (annually) and formal review (every 3 years) to ensure that, as a new charity with a rapidly changing financial environment (due to positive growth and an increasing supporter/fundraiser base) our reserves policy remains relevant and continues to act to appropriately safeguard the future operation of Societi. At the year end the charity had reserves of £36,477 which is just below the minimum level per the reserves policy of £40,000.
Approach to Reserves
The work of our charity is both planned and reactive. As well as planned works, such as the development and delivery of Societi-led projects, opportunities can be presented - or circumstances arise which demand an immediate response or a new approach. New funding opportunities also arise which may require match funding and
in order to ensure we are well placed to take advantage of these, and through these address the challenges presented to UK children by Kawasaki Disease, reserves are held by Societi.
As a newly established organisation, at the time of the development of this policy we have no paid staff so continuity planning for such costs, in challenging circumstances are not allowed for in the reserves. However it is foreseen that with growth, this position will change and our reserves policy will need to change to reflect this. Similarly, only minimal costs are incurred by Societi currently in respect of its organisational overheads and as we grow, Trustees recognise that these will increase and again, our reserves position will need to be amended to reflect the need to ensure operational continuity.
Trustees have considered operational costs when setting the reserves policy, current and planned commitments and ‘seedcorn’ funding requirements which may be needed.
Our current modest reserves level (whilst relatively high in percentage terms) reflects:
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the low turnover of the organisation - from which a modest sum must be identified as reserves, and this translates as a higher relative percentage as presently, income is low.
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the need to continue our primary
Societi Foundation
Annual Report and Accounts July 2020 - December 2020
Annual I ndependen t Report Examiner’s Report
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operations - awareness raising - in the face of financial pressures. Trustees have satisfied themselves that these can be continued with the modest financial provisions described in this policy.
- experience of establishing and growing Societi as a new organisation - Trustees have a proven track record of delivering the work of the charity within a very small budget having started the charity without grants or access to donations/ fundraising
Management of Reserves
Any reserves held in excess of the target percentage will be reviewed by Societi Foundation Trustees on a regular basis and an appropriate range of options will be considered, which might include releasing the funds to enhance delivery of Societi’s objectives. As we grow as a charity this reserves policy could be updated to include provisions such as investment of funds, to generate further income and allow the expansion of Societi’s work. As a young organisation our current focus is on actions to deliver against our objectives and grow our reach.
The movement of funds to and from the reserves identified above will be at the discretion of the Trustees.
Reviewing our Policy
The Charity Commission recommends that charities develop their reserves policy and
their planning at the same time, recognising that strategic and financial planning informs the development of reserves policies and vice versa. Trustees recognise the importance of setting our operational budgets to identify peaks or troughs in cash flow and the reserves policy must ensure the troughs in funding can be met from reserves held.
Our reserves policy will be regularly reviewed in light of the changing funding and financial climate and other emerging risks. We publish our assessment of the risks that we are facing as part of our statutory accounts/annual report.
This policy will also be amended in line with UK Government guidance, as amended.
Governing Document
The legal form of the charity is that of a Charitable Incorporated Organisation (CIO) which is controlled by its governing document, its constitution dated 10 July 2017.
Recruitment and appointment of new trustees
Selecting Trustees - Preparations
Prior to mapping out our selection process for Trustees joining Societi Foundation, Trustees are alerted to, and informed of existing and new rules regarding eligibility and automatic disqualification of charity Trustees. Any amendments to these
provisions are circulated automatically to Trustees, and the most up to date guidance will be consulted at each point a recruitment process is considered (and always before commencement).
Trustees are aware of the need for a balance of skills and abilities on our Board - as well as the need for available capacity in all Trustees if we are to achieve our objectives as a charity. A “hands-on” role is expected from all Trustees as we guide and grow our organisation. In determining the need for additional Trustees therefore we consider current skills, abilities and capacity - as well as horizon scanning for the skill sets and capacity we will need in order to achieve current and future plans.
Process to Appoint Trustees
The procedures for electing or appointing new Trustees is set out in overview in our Constitution. Section 10 of the Societi Foundation Constitution notes:
(1) Apart from the first charity Trustees, every trustee must be appointed for a term of three years by a resolution passed at a properly convened meeting of the charity Trustees.
(2) In selecting individuals for appointment as charity trustees, the charity Trustees must have regard to the skills, knowledge and experience needed for the effective administration of the CIO.
We acknowledge that we are quorate with five Trustees but we recognise that, for a
Societi Foundation
Annual Report and Accounts July 2020 - December 2020
Annual I ndependen t Report Examiner’s Report
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About Kawasaki Disease
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strong organisation, our aim is always to exceed this minimum number of Trustees and that our Trustee cohort should bring breadth of reach, capacity and energy, to ambitiously drive our organisation.
Recruiting Trustees
As the requirements for Trustees within our growing charity are changing rapidly - mirroring the growth we experience and plan to continue to achieve, it is essential that Trustees joining Societi Foundation can be selected to meet these changing needs. Equally, it is essential that new Trustees are able to join the organisation and bring strong, positive contributions - and in doing this they must match and exceed the level of ambition for our organisation as demonstrated by our current Trustees.
We will work to recruit Trustees not simply when vacancies occur, but when needs are identified. We will recruit through informal and formal processes - as may be needed and best suited to the Trustee position(s)
Appointment
Information on prospective Trustees including professional biographies and/ or the findings from formal recruitment processes and/or references taken up will inform the appointment process. Trustees will make a majority decision on the appointment of any new Trustee(s) at a formally convened meeting of the Board of Trustees - whether within or outside of the cycle of planned meetings. This recognises that additional meetings may be called to
confirm the appointment of a Trustee if needed.
Induction and training of new trustees
Induction
We recognise that an appropriately organised induction for all new Trustees is vital. It is a gateway for both new trustees - helping them to get up to speed with the role, the organisation and their legal responsibilities.
Trustees are alert to the need for a strong induction which ensures we can provide evidence that the people in our organisation have an awareness and understanding of our ambitions and aims - but also, essentially, key policies and procedures such as health and safety and data protection. Our Trustee induction programme includes a variety of activities over a period of time, including:
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Meetings and introductions to other Trustees, beneficiaries, service users etc
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Invitations to events, meetings and presentations
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A Trustee induction pack
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Buddying or coaching
Reference and administrative details
Registered Charity number
1173755
Principal address
Victoria Court Holme Lane Winthorpe Newark Nottinghamshire NG24 2NU
Trustees
R Tulloh R E A Greenwood R D Greenwood G Higgins Professor P Brogan (appointed 10.9.20)
Independent Examiner
Wright Vigar Limited Chartered Accountants & Business Advisers 15 Newland
Lincoln Lincolnshire LN1 1XG
Approved by order of the board of trustees on 20 October 2021 and signed on its behalf by:
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R E A G reenwoo d - T rus t ee
Societi Foundation
Annual Report and Accounts July 2020 - December 2020
Annual I ndependen t Report Examiner’s Report
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Thank you
Our annual report is an important document for us as a charity. But it serves to do much more than that by helping anyone who reads it to get to know a little more about Societi and Kawasaki Disease than they did before.
For me, that’s a truly valuable outcome to have achieved. Sharing knowledge and growing the number of people who can recognise this often pernicious disease will always remain a core aim for Societi.
Thank you for reading our annual report. The time you’ve invested in understanding more about out work means such a lot.
With my very best wishes,
Rachael McCormack, Founder for Societi Foundation
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Societi Foundation
Annual Report and Accounts July 2020 - December 2020
Annual Independent Report Examiner’s Report
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Independent
examiner’s statement
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Statement of financial
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Independent Examiner’s Report
Independent Examiner's Report to the Trustees of Societi Foundation
Independent examiner's report to the trustees of Societi Foundation
I report to the charity trustees on my examination of the accounts of Societi Foundation (the Trust) for the period 1 July 2020 to 31 December 2020.
Responsibilities and basis of report
As the charity trustees of the Trust you are responsible for the preparation of the accounts in accordance with the requirements of the Charities Act 2011 ('the Act').
I report in respect of my examination of the Trust's accounts carried out under section 145 of the Act and in carrying out my examination I have followed all applicable Directions given by the Charity Commission under section 145(5)(b) of the Act.
Independent examiner's statement
I have completed my examination. I confirm that no material matters have come to my attention in connection with the examination giving me cause to believe that in any material respect:
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accounting records were not kept in respect of the Trust as required by section 130 of the Act; or
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the accounts do not accord with those records; or
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the accounts do not comply with the applicable requirements concerning the form and content of accounts set out in the Charities (Accounts and Reports) Regulations 2008 other than any requirement that the accounts give a true and fair view which is not a matter considered as part of an independent examination.
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Notes to the financial
statements
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I have no concerns and have come across no other matters in connection with the examination to which attention should be drawn in this report in order to enable a proper understanding of the accounts to be reached.
Paul Colcomb FCCA Wright Vigar Limited Chartered Accountants & Business Advisers 15 Newland Lincoln Lincolnshire LN1 1XG Date: ............................................. 20 October 2021
Societi Foundation Annual Report and Accounts July 2020 - December 2020
Annual Independent Report Examiner’s Report
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Independent examiner’s
statement
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Statement of financial
activities
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Notes to the financial
statements
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Independent Examiner’s Report
Statement of financial activities for the period 1 July 2020 to 31 December 2020
| Notes | Unrestricted | Restricted funds | Period 1.7.20 to | Year ended | |
|---|---|---|---|---|---|
| fund £ | £ | 31.12.20 Total | 30.06.20 Total | ||
| INCOME AND ENDOWMENTS FROM | funds £ | funds £ | |||
| Donations and legacies | 21,511 | 9,100 | 30,611 | 79,417 | |
| Other trading activities | 2 | 653 | - | 653 | 843 |
| Other income | 304 | 3,300 | 3,604 | 356 | |
| Total | 22,468 | 12,400 | 34,868 | 80,616 | |
| EXPENDITURE ON | |||||
| Raising funds | 12,250 | - | 12,250 | 6,081 | |
| Charitable activities | |||||
| Kawasaki Disease awareness | 27,242 | 4,092 | 31,334 | 61,068 | |
| Total | 39,492 | 4,092 | 43,584 | 67,149 | |
| NET INCOME / (EXPENDITURE) | (17,024) | 8,308 | (8,716) | 13,467 | |
| RECONCILIATION OF FUNDS | |||||
| Total funds brought forward | 53,501 | - | 53,501 | 40,034 | |
| TOTAL FUNDS CARRIED FORWARD | 36,477 | 8,308 | 44,785 | 53,501 |
Societi Foundation
Annual Report and Accounts July 2020 - December 2020
Annual Independent Report Examiner’s Report
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Independent examiner’s
statement
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Statement of financial
activities
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Notes to the financial
statements
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Independent Examiner’s Report
Balance sheet 31 Dec 2020
| alance sheet 31 Dec 2020 | |||||
|---|---|---|---|---|---|
| Unrestricted funds | Restricted funds | 2020 Total funds | 2019 Total Funds | ||
| Notes | £ | £ | £ | £ | |
| FIXED ASSETS | |||||
| Intangible assets | 7 | 38 | 4,008 | 4,046 | 272 |
| Tangible assets | 8 | 595 | - | 595 | - |
| 633 | 4,008 | 4,641 | 272 | ||
| CURRENT ASSETS | |||||
| Stocks | 9 | 3,296 | - | 3,296 | 2,445 |
| Debtors | 10 | 168 | - | 168 | 202 |
| Cash at bank | 44,330 | 4,300 | 48,630 | 59,686 | |
| 47,794 | 4,300 | 52,094 | 62,333 | ||
| CREDITORS | |||||
| Amounts falling due within one year | 11 | (11,950) | - | (11,950) | (9,104) |
| NET CURRENT ASSETS | 35,844 | 4,300 | 40,144 | 53,229 | |
| TOTAL ASSETS LESS CURRENT | 36,477 | 8,308 | 44,785 | 53,501 | |
| LIABILITIES | |||||
| NET ASSETS | 36,477 | 8,308 | 44,785 | 53,501 | |
| FUNDS | 12 | ||||
| Unrestricted funds | 36,477 | 53,501 | |||
| Restricted funds | 8,308 | - | |||
| TOTAL FUNDS | 44,785 | 53,501 |
The financial statements were approved by the Board of Trustees and authorised for issue on 20 October 2021 and were signed on its behalf by:
R E A Greenwood - Trustee
Societi Foundation
Annual Report and Accounts July 2020 - December 2020
Annual Independent Report Examiner’s Report
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Independent examiner’s
statement
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Statement of financial
activities
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Balance sheet
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Detailed statement of
financial activities
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Independent Examiner’s Report
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Notes to the Financial Statement for the period 1 July 2020 to 31 December 2020
Tangible fixed assets
1. Accounting Policies
Income
Depreciation is provided at the following annual rates in order to write off each asset over its estimated useful life.
All income is recognised in the Statement of Financial Activities once the charity has entitlement to the funds, it is probable that the income will be received and the amount can be measured reliably.
Basis of preparing the financial statements
The financial statements of the charity, which is a public benefit entity under FRS 102, have been prepared in accordance with the Charities SORP (FRS 102) ‘Accounting and Reporting by Charities: Statement of Recommended Practice applicable to charities preparing their accounts in accordance with the Financial Reporting Standard applicable in the UK and Republic of Ireland (FRS 102) (effective 1 January 2019)’, Financial Reporting Standard 102 ‘The Financial Reporting Standard applicable in the UK and Republic of Ireland’ and the Charities Act 2011. The financial statements have been prepared under the historical cost convention.
Computer equipment - 33% on cost
Stocks
Donations in kind are valued at the market rate of the services donated.
Stocks are valued at the lower of cost and net realisable value, after making due allowance for obsolete and slow moving items.
Expenditure
Liabilities are recognised as expenditure as soon as there is a legal or constructive obligation committing the charity to that expenditure, it is probable that a transfer of economic benefits will be required in settlement and the amount of the obligation can be measured reliably. Expenditure is accounted for on an accruals basis and has been classified under headings that aggregate all cost related to the category. Where costs cannot be directly attributed to particular headings they have been allocated to activities on a basis consistent with the use of resources.
Taxation
The charity is exempt from tax on its charitable activities.
Fund accounting
Unrestricted funds can be used in accordance with the charitable objectives at the discretion of the trustees.
Restricted funds can only be used for particular restricted purposes within the objects of the charity. Restrictions arise when specified by the donor or when funds are raised for particular restricted purposes.
The charity is a Charitable Incorporated Organisation (CIO) registered with the Charity Commission in England and Wales.
Financial reporting standard 102 - reduced disclosure exemptions
Further explanation of the nature and purpose of each fund is included in the notes to the
Intangible assets
The charity has taken advantage of the following disclosure exemptions in preparing these financial statements, as permitted by FRS 102 ‘The Financial Reporting Standard applicable in the UK and Republic of Ireland’:
Amortisation is provided at the following annual rates in order to write off each asset over its estimated useful life.
Website - 33% on cost
- the requirements of Section 7 Statement of Cash Flows.
Societi Foundation
Annual Report and Accounts July 2020 - December 2020
Annual Independent Report Examiner’s Report
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Independent examiner’s
statement
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Statement of financial
activities
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Balance sheet
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Detailed statement of
financial activities
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Independent Examiner’s Report
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Notes to the Financial Statement - continued for the period 1 July 2020 to 31 Dec 2020
2. Other trading activities
| ent - continued for the period 1 July | 2020 | to 31 Dec 2020 | |
|---|---|---|---|
| Period 1.7.20 to 31.12.20 £ |
Year ended 30.6.20 £ |
||
| Merchandise income | 653 | 843 | |
| Other | Governance costs £ | Totals £ | |
| Kawasaki Disease Awareness 11,553 |
900 | 12,453 | |
| Support costs, included in the above, are as follows: | |||
| Period 1.7.20 to | Year ended | ||
| 31.12.20 Kawasaki | 30.6.20 | ||
| Disease awareness £ | Total activities £ | ||
| Postage and stationary | 1,074 | 5,004 | |
| Insurance | 93 | 185 | |
| Accountancy | 444 | 804 | |
| Offce costs | 2,012 | 7,550 | |
| Legal and professional services | 900 | - | |
| Sundries | - | 677 | |
| Administrative staff costs | 5,886 | - | |
| Amortisation of intangible fxed assets | 1,026 | 671 | |
| Depreciation of tangible fxed assets | 118 | - | |
| Independent examination | 900 | 300 | |
| 12,453 | 15,191 | ||
| £ | £ | ||
| Independent examination fee | 900 | 300 | |
| There were no trustees’ remuneration or other benefts for the period ended 31 December 2020 nor for the year ended 30 June 2020.Trustees’ expenses- There were no trustees’ expenses paid for the period ended 31 December 2020 nor for the year ended 30 June 2020. |
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| Period 1.7.20 to | Year ended | ||
| 31.12.20 £ | 30.6.20 £ | ||
| Wages and salaries | 23,166 | 9,613 | |
| Other pension costs | 210 | - | |
| 23,376 | 9,613 | ||
| No employees received employee benefts over £60,000. | |||
| The average monthly number of employees during | |||
| the period was as follows: 2 part time staff members | |||
| equivalent to 1.3fte |
3. Support costs
4. Independent examination
5. Trustees’ remuneration
6. Staff costs
Societi Foundation
Annual Report and Accounts July 2020 - December 2020
Annual Independent Report Examiner’s Report
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Independent examiner’s
statement
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Statement of financial
activities
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Balance sheet
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Detailed statement of
financial activities
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Independent Examiner’s Report
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Notes to the Financial Statement - continued for the period 1 July 2020 to 31 Dec 2021
| 7. Intangible fxed assets | Website £ | |
|---|---|---|
| Cost | ||
| At 1 July 2020 | 2,034 | |
| Additions | 4,800 | |
| At 31 December | 6,834 | |
| Amortisation | ||
| At 1 July 2020 | 1,762 | |
| Charge for year | 1,026 | |
| At 31 December | 2,788 | |
| Net book value | ||
| At 31 December | 4,046 | |
| At 30 June 2020 | 272 | |
| 8. Tangible fxed assets | Computer equipment £ | |
| Cost | ||
| additions | 713 | |
| Depreciation Charge for the year |
118 | |
| Net book value | ||
| At 31 December 2020 | 595 | |
| - | ||
| 9. Stocks | 2020 £ | 2020 £ |
| Stocks | 3,296 | 2,445 |
| 10. Debtors: amounts falling due within one year Payments and accrued income |
2020 £ 168 |
2020 £ 202 |
| 11. Creditors: amounts falling due within one year Taxation and social security |
2020 £ 1,700 |
2020 £ - |
| Other creditors | 10,250 | 9,104 |
| 11,950 | 9,104 |
Societi Foundation
Annual Report and Accounts July 2020 - December 2020
Annual Independent Report Examiner’s Report
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Independent examiner’s
statement
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Statement of financial
activities
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Balance sheet
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Detailed statement of
financial activities
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Independent Examiner’s Report
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Notes to the Financial Statement - continued for the period 1 July 2020 to 31 Dec 2021
| 12. Movement in funds | At 1.7.20 £ | Net movement in funds£ | Net movement in funds£ | At 31.12.20 £ |
|---|---|---|---|---|
| Unrestricted funds | ||||
| General fund | 53,501 | (17,024) | 36,477 | |
| Restricted funds | ||||
| Young Person’s Portal | - | 8,308 | 8,308 | |
| TOTAL FUNDS | 53,501 | (8,761) | 44,785 | |
| Net movement in funds, included in the above are as follows: |
Incoming resources £ | Resources expended | Movement in funds |
|
| Unrestricted funds | ||||
| General fund | 22,468 | (39,492) | (17,024) | |
| Restricted funds | ||||
| Lanarca fund | 3,300 | (3,300) | - | |
| Young Person’s Portal | 9,100 | (792) | 8,308 | |
| 12,400 | (4,092) | 8,308 | ||
| TOTAL FUNDS | 34,868 | (43,584) | (8,716) | |
| Comparatives for movement in funds | At 1.7.19 £ | Net movement in funds£ | At 30.6.20 £ | |
| Unrestricted funds | ||||
| General fund | 40,034 | 13,467 | 53,501 | |
| TOTAL FUNDS | 40,034 | 13,467 | 53,501 |
Young Person’s Portal Fund - The fund arose following a grant from The Foyle Foundation. This grant is to be used to fund the creation of a Children’s and Young People’s Online Information Portal about Kawasaki Disease.
Lanarca Fund - This fund was a donation from Lanarca towards the staff costs of the charity.
13. Related party disclosures
During the period, the Charity received donated services of £3,756 (2020: £7,512) from Lanarca Limited, a company in which trustees R E A Greenwood and R D Greenwood are directors.
Additionally salaries for the period of £1,868 (2020: £28,017) have been recharged from Lanarca Limited at cost and with no uplift for the secondment of a Design and Research staff member.
Societi Foundation
Annual Report and Accounts July 2020 - December 2020
Annual Independent Report Examiner’s Report
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Independent examiner’s
statement
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Statement of financial
activities
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Notes to the financial
statements
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Independent Examiner’s Report
Detailed Statement of financial activities for the period 1 July 2020 to 31 Dec 2020
| Period 1.7.20 to | Year ended | Period 1.7.20 to | Year ended | ||
|---|---|---|---|---|---|
| 31.12.20 £ | 30.6.2020 | 31.12.20 £ | 30.6.2020 | ||
| INCOME AND ENDOWMENTS | Support costs | ||||
| Donations and legacies | Other | ||||
| Donations | 17,755 | 71,905 | Postage and stationery | 1,074 | 5,004 |
| Grants | 9,100 | - | Insurance | 93 | 185 |
| Donated services | 3,756 | 7,512 | Accountancy | 444 | 804 |
| 30,611 | 79,417 | Offce cost | 2,012 | 7,550 | |
| Other Trading Activities | Legal and professional fees | 900 | - | ||
| Merchandise income | 653 | 843 | Sundries | - | 677 |
| Other income | Administrative staff costs | 5,886 | - | ||
| Other income | 3,604 | 356 | Computer software | 1,026 | 671 |
| Total incoming resources | 34,868 | 80,616 | Computer equipment | 118 | - |
| EXPENDITURE | 11,553 | 14,891 | |||
| Raising donations and legacies | Governance costs | ||||
| Wages | 11,583 | - | Independent Examination | 900 | 300 |
| Pensions | 105 | - | |||
| Fundraising costs | - | 2,665 | Total resources expended | 43,584 | 67,149 |
| 11,688 | 2,665 | ||||
| Other trading activities | Net (expenditure)/income | (8,716) | 13,467 | ||
| Opening stock | 2,445 | 3,103 | |||
| Purchases | 1,413 | 2,758 | |||
| Closing stock | (3,296) | (2,445) | |||
| 562 | 3,416 | ||||
| Charitable activities | |||||
| Wages | 11,583 | 9,613 | |||
| Pensions | 105 | - | |||
| Subscriptions | 185 | 82 | |||
| Advertising | 162 | 206 | |||
| Travel and subsistence | - | 112 | |||
| Resource flms | 900 | - | |||
| Donated services | 3,756 | 7,512 | |||
| Recharged staff costs | 1,868 | 28,017 | |||
| Raising awareness costs | 322 | 355 | |||
| 18,881 | 45,877 |