## **Trustees’ Annual Report for the period** 

**From 02/04/2023 To 01/04/2024** 

**Charity name: PACS1 Research UK** 

**Charity registration number: 1173691** 

## **Objectives and Activities** 

||SORP reference||
|---|---|---|
|Summary of the purposes of<br>the charity as set out in its<br>governing document|Para 1.17|**To raise awareness of PACS1 as a rare**<br>**genetic condition and continue research**<br>**of the rare genetic mutation. Raising**<br>**money to provide supported living for**<br>**people with this condition and other**<br>**genetic mutations.**|
|Summary of the main<br>activities in relation to those<br>purposes for the public<br>benefit, in particular, the<br>activities, projects or<br>services identified in the<br>accounts.|Para 1.17 and<br>1.19|**Organise events to raise funds such as**<br>**car events, golf days, quiz nights,**<br>**mountain climbing events, use social**<br>**media.**|
|Statement confirming<br>whether the trustees have<br>had regard to the guidance<br>issued by the Charity<br>Commission on public<br>benefit|Para 1.18|**We are aware of guidance issued by the**<br>**Charity Commission on public benefit.**|



## **Additional information (optional)** 

You may choose to include further statements where relevant about: 

||SORP reference|
|---|---|
||Para 1.38|
|Policy on grant making||
||Para 1.38|
|Policy on social investment||
|including program related||
|investment||
||Para 1.38|
|Contribution made by||
|volunteers||





Other 

## **Achievements and Performance** 

||SORP reference||
|---|---|---|
|Summary of the main<br>achievements of the charity,<br>identifying the difference the<br>charity’s work has made to<br>the circumstances of its<br>beneficiaries and any wider<br>benefits to society as a<br>whole.|Para 1.20|**We organised some events which**<br>**brought donations such as a charitable**<br>**drive through Europe, F1 lounge**<br>**experience.**|



## **Additional information (optional)** You may choose to include further statements where relevant about: 

|Achievements against<br>objectives set|Para 1.41||
|---|---|---|
|Performance of fundraising<br>activities against objectives<br>set|Para 1.41||
|Investment performance<br>against objectives|Para 1.41||
|Other|||





## **Financial Review** 

|**Financial Review**|||
|---|---|---|
|Review of the charity’s<br>financial position at the end<br>of the period|Para 1.21|**We had some donations which covered**<br>**our expenditures.**|
|Statement explaining the<br>policy for holding reserves<br>stating why they are held|Para 1.22|**Have no reserves**|
|Amount of reserves held|Para 1.22||
|Reasons for holding zero<br>reserves|Para 1.22||
|Details of fund materially in<br>deficit|Para 1.24||
|Explanation of any<br>uncertainties about the<br>charity continuing as a going<br>concern|Para 1.23||



## **Additional information (optional)** 

You may choose to include further statements where relevant about: 

|The charity’s principal<br>sources of funds (including<br>any fundraising)|Para 1.47||
|---|---|---|
|Investment policy and<br>objectives including any<br>social investment policy<br>adopted|Para 1.46||
|A description of the principal<br>risks facing the charity|Para 1.46||
|Other|||





## **Structure, Governance and Management** 

|Description of charity’s<br>trusts:|||
|---|---|---|
|Type of governing document<br>(trust deed, royal charter)|Para 1.25|**Trust deed**|
|How is the charity<br>constituted?<br>(e.g unincorporated<br>association, CIO)|Para 1.25|**Charitable incorporated organisations**|
|Trustee selection methods<br>including details of any<br>constitutional provisions e.g.<br>election to post or name of<br>any person or body entitled<br>to appoint one or more<br>trustees|Para 1.25|**By appointment**|



## **Additional information (optional)** You may choose to include further statements where relevant about: 

Policies and procedures adopted for the induction Para 1.51 and training of trustees The charity’s organisational structure and any wider Para 1.51 network with which the charity works Relationship with any related Para 1.51 parties Other 

## **Reference and Administrative details** 

|Charity name|PACS1 Research UK|
|---|---|
|Other name the charity uses||
|Registered charity number|1173691|
|Charity’s principal address|1 The Red Lion<br>High Street<br>Much Hadham<br>SG10 6DD|
|||





## **Names of the charity trustees who manage the charity** 

|1<br>2<br>3<br>4<br>5<br>6<br>7<br>8<br>9<br>10<br>11<br>12<br>13<br>14<br>15<br>16<br>17<br>18<br>19<br>20|**Trustee name**|**Office (if any)**|**Dates acted if not for whole**<br>**year**|**Name of person (or body) entitled**<br>**to appoint trustee (if any)**|
|---|---|---|---|---|
||RoyParrish||||
||Sean Fitzgerald||||
||John Paddock||||
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## – Corporate trustees names of the directors at the date the report was approved 

**Director name** 

Name of trustees holding title to property belonging to the charity 

**Trustee name Dates acted if not for whole year** 



## **Funds held as custodian trustees on behalf of others** 

Description of the assets held in this capacity 

Name and objects of the charity on whose behalf the assets are held and how this falls within the custodian charity’s objects Details of arrangements for safe custody and segregation of such assets from the charity’s own assets 

## **Additional information (optional)** 

## **Names and addresses of advisers (Optional information)** 

|**Type of**|**Name**|**Address**|
|---|---|---|
|**adviser**|||



**Name of chief executive or names of senior staff members (Optional information)** 

## **Exemptions from disclosure** 

Reason for non-disclosure of key personnel details 

## **Other optional information** 



## **Declarations** 

**The trustees declare that they have approved the trustees’ report above.** 

**Signed on behalf of the charity’s trustees** 

|**Signature(s)**<br>**Full name(s)**<br>**Position (eg Secretary,**<br>**Chair, etc)**<br>**Date**|Roy Parrish||
|---|---|---|
||R A Parrish||
||<br>Trustee||
||30.01.25||
||30.01.25||





|**No (if any)**<br>**PACS1 Research UK**<br>**1173691**<br>**Receipts andpayments accounts**<br>**For the period**<br>**from**<br>**To**<br>Period end date<br>02/04/2023<br>01/04/2024<br>~~ee~~|**No (if any)**<br>**PACS1 Research UK**<br>**1173691**<br>**Receipts andpayments accounts**<br>**For the period**<br>**from**<br>**To**<br>Period end date<br>02/04/2023<br>01/04/2024<br>~~ee~~|**No (if any)**<br>**PACS1 Research UK**<br>**1173691**<br>**Receipts andpayments accounts**<br>**For the period**<br>**from**<br>**To**<br>Period end date<br>02/04/2023<br>01/04/2024<br>~~ee~~|**No (if any)**<br>**PACS1 Research UK**<br>**1173691**<br>**Receipts andpayments accounts**<br>**For the period**<br>**from**<br>**To**<br>Period end date<br>02/04/2023<br>01/04/2024<br>~~ee~~|**No (if any)**<br>**PACS1 Research UK**<br>**1173691**<br>**Receipts andpayments accounts**<br>**For the period**<br>**from**<br>**To**<br>Period end date<br>02/04/2023<br>01/04/2024<br>~~ee~~|**No (if any)**<br>**PACS1 Research UK**<br>**1173691**<br>**Receipts andpayments accounts**<br>**For the period**<br>**from**<br>**To**<br>Period end date<br>02/04/2023<br>01/04/2024<br>~~ee~~|**No (if any)**<br>**PACS1 Research UK**<br>**1173691**<br>**Receipts andpayments accounts**<br>**For the period**<br>**from**<br>**To**<br>Period end date<br>02/04/2023<br>01/04/2024<br>~~ee~~|**No (if any)**<br>**PACS1 Research UK**<br>**1173691**<br>**Receipts andpayments accounts**<br>**For the period**<br>**from**<br>**To**<br>Period end date<br>02/04/2023<br>01/04/2024<br>~~ee~~|**No (if any)**<br>**PACS1 Research UK**<br>**1173691**<br>**Receipts andpayments accounts**<br>**For the period**<br>**from**<br>**To**<br>Period end date<br>02/04/2023<br>01/04/2024<br>~~ee~~|**No (if any)**<br>**PACS1 Research UK**<br>**1173691**<br>**Receipts andpayments accounts**<br>**For the period**<br>**from**<br>**To**<br>Period end date<br>02/04/2023<br>01/04/2024<br>~~ee~~|**CC16a**<br>~~-~~|**CC16a**<br>~~-~~|**CC16a**<br>~~-~~|
|---|---|---|---|---|---|---|---|---|---|---|---|---|
|**Section A Receipts and payments**|||||||||||||
||**Unrestricted**<br>**funds**|||**Restricted**<br>**funds**|**Restricted**||**Endowment**<br>**funds**||**Total funds**||**Last year**||
||**to the nearest**<br>**£**||**to the nearest**|**to the nearest £**|**to the nearest £**||**to the nearest £**||**to the nearest £**||**to the nearest £**|**to the nearest £**|
|**A1 Receipts**|||||||||||||
|Donations|**18 157**|**18 157**||**-**|**-**||**-**||**18 157**||**-**|**-**|
||**-**|**-**||**-**|**-**||**-**||**-**||**-**|**-**|
||**-**|**-**||**-**|**-**||**-**||**-**||**-**|**-**|
||**-**|**-**||**-**|**-**||**-**||**-**||**-**|**-**|
||**-**|**-**||**-**|**-**||**-**||**-**||**-**|**-**|
||**-**|**-**||**-**|**-**||**-**||**-**||**-**|**-**|
||**-**|**-**||**-**|**-**||**-**||**-**||**-**|**-**|
||**-**|**-**||**-**|**-**||**-**||**-**||**-**|**-**|
|**_Sub total_**_(Gross income for_<br>_AR)_|_(Gross income for_<br>_AR)_<br>**18 157**|**18 157**||**-**|**-**||**-**||**18 157**||**-**|**-**|
|**A2 Asset and investment sales,**<br>**(see table).**<br>**-**<br>**-**<br>**-**<br>**-**<br>**-**<br>**-**<br>**-**<br>**-**<br>**-**<br>**_Sub total_                              -**<br>**-**<br>**-**<br>**-**<br>**-**<br>**_Total receipts_                18 157**<br>**-**<br>**-**<br>**18 157**<br>**-**<br>~~—_———_—~~|||||||||||||
|**A3 Payments**|||||||||||||
|Donationsprocessingfees|**216**|**216**||**-**|**-**||**-**||**216**||**-**|**-**|
|Event organisingfees|**5 000**|**5 000**||**-**|**-**||**-**||**5 000**||**-**|**-**|
|Marketingfees|**9 592**|**9 592**||**-**|**-**||**-**||**9 592**||**-**|**-**|
|bank charges|**60**|**60**||**-**|**-**||**-**||**60**||**-**|**-**|
||**-**|**-**||**-**|**-**||**-**||**-**||**-**|**-**|
||**-**|**-**||**-**|**-**||**-**||**-**||**-**|**-**|
||**-**|**-**||**-**|**-**||**-**||**-**||**-**|**-**|
||**-**|**-**||**-**|**-**||**-**||**-**||**-**|**-**|
||**-**|**-**||**-**|**-**||**-**||**-**||**-**|**-**|
|**_Sub total_ **|**14 868**|**14 868**||**-**|**-**||**-**||**14 868**||**-**|**-**|
|**A4 Asset and investment**<br>**purchases, (see table)**<br>**-**<br>**-**<br>**-**<br>**-**<br>**-**<br>**-**<br>**-**<br>**-**<br>**_Sub total_                               -**<br>**-**<br>**-**<br>**-**<br>**-**<br>**_Total payments_**<br>**14 868**<br>**-**<br>**-**<br>**14 868**<br>**-**<br>~~_———=—~~|||||||||||||
|**_Net of receipts/(payments)_**|**3 289**|**3 289**||**-**|**-**|**-**|**-                    3 289**|**-                    3 289**|**-                    3 289**||**-**|**-**|
|**A5 Transfers between funds**|**-**|**-**|**-**|**-                           -**|**-                           -**|**-                           -**|**-                           -**||**-**||**-**|**-**|
|**A6 Cash funds last year end**|**2 185**|**2 185**||**-                           -**|**-                           -**|**-                           -**|**-                           -**||**2 185**||**-**|**-**|
|**_Cash funds this year end_**|**5 474**|**5 474**||**-**|**-**|**-**|**-                    5 474**|**-                    5 474**|**-                    5 474**||**-**|**-**|



CCXX R1 accounts (SS) 

1 



## **Section B Statement of assets and liabilities at the end of the period** 

|**Categories**<br>Signed by one or two trustees on<br>behalf of all the trustees<br>**B5 Liabilities**<br>**B4 Assets retained for the**<br>**charity’s own use**<br>**B3 Investment assets**<br>**B2 Other monetary assets**<br>**B1 Cash funds**|Signature<br>RoyParrish<br>**Details**<br>**Details**<br>**Details**<br>**_Total cash funds_**<br>(agree balances with receipts and payments<br>account(s))<br>**Details**<br>**Details**|**Unrestricted**<br>**funds**<br>**Restricted**<br>**funds**<br>**to nearest £**<br>**to nearest £**<br>**5 474**<br>**-**<br>**-**<br>**-**<br>**-**<br>**-**<br>**5 474**<br>**-**<br>OK<br>OK<br>**Unrestricted**<br>**funds**<br>**Restricted**<br>**funds**<br>**to nearest £**<br>**to nearest £**<br>**-**<br>**-**<br>**-**<br>**-**<br>**-**<br>**-**<br>**-**<br>**-**<br>**-**<br>**-**<br>**-**<br>**-**<br>**Fund to which**<br>**asset belongs**<br>**Cost (optional)**<br>**-**<br>**-**<br>**-**<br>**-**<br>**-**<br>**Fund to which**<br>**asset belongs**<br>**Cost (optional)**<br>**-**<br>**-**<br>**-**<br>**-**<br>**-**<br>**-**<br>**-**<br>**-**<br>**-**<br>**Fund to which**<br>**liability relates**<br>**Amount due**<br>**(optional)**<br>**-**<br>**-**<br>**-**<br>**-**<br>**-**<br>Print Name<br>RoyParrish|**Endowment**<br>**funds**<br>**to nearest £**|
|---|---|---|---|
||||**-**|
||||**-**|
||||**-**|
||||**-**|
||||OK|
||||**Endowment**<br>**funds**<br>**to nearest £**|
||||**-**|
||||**-**|
||||**-**|
||||**-**|
||||**-**|
||||**-**|
||||**Current value**<br>**(optional)**|
||||**-**|
||||**-**|
||||**-**|
||||**-**|
||||**-**|
||||**Current value**<br>**(optional)**|
||||**-**|
||||**-**|
||||**-**|
||||**-**|
||||**-**|
||||**-**|
||||**-**|
||||**-**|
||||**-**|
||||**When due**<br>**(optional)**|
|||||
|||||
|||||
|||||
|||||
|||||
||||Date of<br>approval|
||RoyParrish|RoyParrish|30.01.25|
|||||



CCXX R2 accounts (SS) 

2 

