APRIL 2025
Cianna’s Smile annual Trustee's Report Year 2024/2025
Charity information
Charity name: Cianna’s Smile Charity registration number : 1173030
Address: 10 Eaton Place, Reading, RG1 7LP Website: www.ciannassmile.co.uk
Contact email: info@ciannassmile.co.uk
Trustees for the Reporting Year:
Hayley King Melissa Connor Ashleigh Alli
Independent Examiner/Auditor:
Holybrook Accounting
Structure, Governance, and Management Governing Document:
Cianna's Smile is governed by its Constitution.
Trustee Recruitment and Appointment:
Through interview and nomination.
02
Trustee
Statements
Hayley King
On behalf of the Board of Trustees, I am proud to present the Annual Report for Cianna’s Smile.
This year has been one of growth, reflection and continued determination to ensure that individuals and families impacted by sickle cell are seen, heard and supported. However, it has also been a year shaped by significant external pressures. The ongoing cost of living crisis in the UK continues to have a profound impact on the families we support, increasing financial hardship and insecurity. As a result, we have seen a growing demand for emergency support and essential services, including emergency food bundles and household support packages, to help families meet their most basic needs during times of crisis.
Alongside these financial challenges, our work has continued to highlight serious and ongoing concerns within healthcare settings. Between 2020 and 2025, Cianna’s Smile recorded the highest number of confirmed negative experiences during hospital admissions than ever before. These experiences reinforce what families have been telling us for years: there remains an urgent and critical need for improved training, education, and resources for healthcare professionals involved in the care of people living with sickle cell.
This need extends beyond healthcare alone. Teachers, community workers, youth professionals and others who play a key role in the lives of children and families impacted by sickle cell must also be equipped with the knowledge, understanding and confidence to provide appropriate support. Education and awareness remain central to improving experiences, outcomes, dignity, and equity for those living with the condition.
In response to these challenges, and in order to protect the quality and integrity of our work, the trustees made a strategic decision during 2024 and 2025 to concentrate on delivering projects and services that the families we support felt were crucial to supporting them. This ensured that Cianna’s Smile continued to operate to a high standard, met all funding deliverables, and provided consistent, reliable support to the families who depend on us.
Looking ahead, we have committed to increasing our focus on resource development, training, awareness and education. By strengthening these areas, we aim to directly improve the experiences of children, young people and families supported by Cianna’s Smile — particularly within hospital settings and schools — where understanding and appropriate responses can make a life-changing difference.
As trustees, we are continually inspired by the resilience of the families and young people we support, and by the dedication of our staff, volunteers, and partners. We are deeply grateful to our funders and supporters whose generosity enables this work to continue.
With a clear vision, strong governance, and a renewed focus on sustainable impact, we remain confident in Cianna’s Smile’s ability to be a trusted voice and source of support within the sickle cell community. Thank you to everyone who has supported our journey this year.
03
Trustee
Statements
Melissa Connor
As a trustee of Cianna’s Smile, I am privileged to have supported the organisation over a number of years and to work alongside a committed and highly effective leadership team. The charity continues to deliver significant impact through its strategic approach to raising awareness of sickle cell and providing practical, targeted support to families across the UK.
Having seen Cianna’s Smile’s work first-hand, I am continually inspired by the depth and quality of its delivery. Through direct engagement with families and young people supported by the charity, it is clear that the activities and projects delivered are not only well designed, but genuinely life changing. The feedback shared consistently demonstrates the positive difference these services make to confidence, wellbeing, understanding and long-term outcomes.
Cianna’s Smile operates with a strong sense of purpose and responsiveness, often going beyond standard service expectations to ensure families receive timely and appropriate support. This commitment, combined with a clear focus on quality and accountability, has enabled the charity to build trust within the community and sustain its work over many years.
The organisation’s longevity reflects the strength of its leadership, governance and values. I am confident in Cianna’s Smile’s strategic direction and look forward to continuing to support the charity as it builds on its achievements and extends its impact for the families and communities it serves.
04
Trustee
Statements
Ashleigh Alli
As a Trustee, I am pleased to provide an overview of Cianna’s Smiles' decision-making and strategic oversight during this reporting period.
The reporting period has taken place against a challenging external environment, including sustained economic pressures and increased demand for charitable services. The Board has remained focused on ensuring that Cianna’s Smile operates in a financially responsible, wellgoverned and resilient manner, while continuing to deliver meaningful impact for individuals and families impacted by sickle cell.
Throughout 2024 and 2025, the Board has exercised careful oversight of organisational performance, risk management and compliance. In response to capacity and funding considerations, trustees agreed a strategic approach that prioritised the delivery of existing, funded projects and services that were most needed by the families we support. This decision was taken to ensure consistent service quality, fulfilment of funding obligations and effective use of charitable resources.
The Board has also reviewed evidence highlighting ongoing systemic challenges affecting the sickle cell community, including gaps in understanding across health, education and community settings. These findings have influenced the charity’s strategic direction and reinforced the importance of targeted training, education and resource development as key levers for long-term improvement.
Looking ahead, the Board has agreed to increase its strategic focus on education, awareness and professional development initiatives aimed at improving experiences for families within hospitals, schools and wider community environments. This approach aligns with the charity’s objectives to influence practice, strengthen systems, and support sustainable change beyond direct service delivery.
I would like to thank my fellow trustees for their professionalism, commitment and constructive challenge throughout the year. The Board also acknowledges the work of the staff and volunteers in delivering services in line with agreed objectives and standards, as well as the continued support of funders and partners.
The trustees remain committed to maintaining high standards of governance, accountability and transparency and to ensuring that Cianna’s Smile is well positioned to manage risk, respond to need and deliver its charitable purposes effectively.
05
Charitable Objectives
Raise Awareness:
Educate the public and professionals about Sickle Cell and the importance of ethnically matched blood donations through events, campaigns and resources.
Support Families:
Provide emotional and practical support, addressing mental health needs and creating safe spaces for those impacted by Sickle Cell.
Increase Blood Donations:
Launch campaigns to recruit new donors, especially from underrepresented groups, and collaborate with partners to improve accessibility and retention.
Empower Youth and Communities:
Develop leadership and entrepreneurial skills through initiatives like the Youth Entrepreneur Club and Coalition for Change, while fostering cultural and educational connections.
Build Partnerships:
Collaborate with healthcare providers, educational institutions, and community leaders to expand reach and resources.
Promote Research and Innovation:
Advocate for research addressing nutritional needs and healthcare gaps for individuals with Sickle Cell.
Ensure Sustainability: Secure funding through events and adapt programmes based on community feedback to maximise impact.
Mission
At Cianna's Smile, our mission is to improve the lives of children, young people and families impacted by Sickle Cell conditions. We are dedicated to raising awareness, providing support, and advocating for better healthcare and social understanding of this life-altering condition.
Through education, empowerment, and community engagement, we strive to reduce the stigma associated with Sickle Cell and ensure that those living with the condition have the resources and opportunities they need to thrive.
We believe in the power of community, the importance of representation, and the strength of a collective voice.
Our initiatives focus on Health Education, Mental Well-being, and Creative expression, offering a safe and inclusive space for individuals impacted by Sickle Cell to share their experiences and connect with others. We are committed to driving positive change in society, advocating for improved services, and inspiring future generations to be changemakers in the fight against the inequalities experienced by those impacted by Sickle Cell.
Together, we aim to create a world where no one is defined by their condition, but rather empowered to live their fullest and most vibrant lives.
Public Benefit:
In planning our activities, the trustees have had regard to the Charity Commission’s guidance on public benefit. All activities undertaken during the year align with our charitable purposes.
06
Achievements and Performance
Key Activities and Outcomes: Over the past year, Cianna's Smile delivered the following impactful programmes and events:
-
Family Online focus groups and workshops for young people and their carers addressing mental health provided a safe space for individuals to learn,
-
support connect and share experiences.
-
initiatives Support Tour Family Fun Days in Manchester, Kent, West London and
-
Support Tour Family Fun Days in Manchester, Kent, West London and Reading offered opportunities for family bonding, respite, community inclusion and enjoyment.
Advocacy and awareness
-
Workshops and talks, including our participation at University of Reading and multiple University African Caribbean Societies, increasing understanding of Sickle Cell and educating diverse audiences on the challenges.
-
Awareness events within Aylesbury, Reading, London and campaigns, such as our Youth Coalition for Change, reached over 5000, highlighting the importance of blood donation and understanding Sickle Cell.
Youth
engagement
-
Activities such as the African and Caribbean Culture Club and Entrepreneur Club empowered young people with real-world skills in business, leadership, and creative problem-solving, building motivation and encouraging innovation.
-
Creative workshops such as CAD and AI photo editing art introduced young people to creative digital skills and encouraged confidence.
Community events
Family Fun Days and trips to Spa Valley POlar Express provided safe inclusive spaces for families and helped build their peer support networks with other families impacted by Sickle Cell. Attending various community events such as Matt’s BBQ, raising understanding about Sickle Cell, uniting communities and engaging with an audience of over 10,000 individuals with cultural and health information.
07
2024 to 2025 Activities
The following activities were carried out between April 2024 and April 2025, demonstrating our commitment to supporting individuals with Sickle Cell, their families and caregivers while promoting awareness and advocacy. Each event provided opportunities for connection, education, and enjoyment for our beneficiaries.
April 2024
8th April- African and Caribbean Culture Youth Club:
3D printing workshop, Caribbean cooking class and carers pamper session in Reading.
11th April- Online Carers Focus Group: A virtual session gathering input from participants to guide future programming and address community needs.
May 2024
9th May- Carers workshop: How to support young people affected by mental health challenges: A workshop aimed at equipping carers with tools and understanding to better support young people facing mental health issues.
10th May- Haematology patient and carers congress: An informative event bringing together patients and carers to discuss developments and experiences in haematology care.
15th May- Online Training Workshop and Sickle Cell Talk with Reading Borough Council Care Staff: Training session for Reading Borough Council care staff focused on Sickle Cell awareness and care strategies for clients.
24th May- African and Caribbean Culture Youth Club: Creative youth session exploring fashion through Caribbean cultural expression by designing personal outfits.
31st May- Art Workshop With Akacia School : Interactive art workshop to inspire creativity and self-expression among students at Akacia School.
08
June 2024
1st June- Reading Children’s Festival: Fun, hands-on Caribbean-themed arts and crafts activities for children in our community as part of Reading’s annual children's festival.
10th June- Youth Entrepreneur Club: Guest speaker and published author Maria spoke to participants of the Entrepreneur Club, sharing insights, a story writing workshop and meet the author.
5th June- Carers Workshop: Supporting Young People Impacted By Mental Health Challenges: A 2nd workshop offering practical support and guidance for carers helping young people with mental health needs whilst looking after their own mental health.
14th - 16th June- Family Respite Break: A family respite break in Birmingham offering a fun and relaxing experience, including seeing Black Ballet Heroes and visits to Cadbury World and the Sea Life Centre.
17th June- Youth Entrepreneur Club: An insightful session updating us on the progress of the tasks they were set during the previous club session on story writing.
18th June- Langley College Fundraiser: Student-led fundraising event supporting sickle cell awareness and our charity causes.
21st June- Life In Your Blood Screening: Special premier of our documentary, Life In Your Blood (LIYB) highlighting stories and awareness around sickle cell, held at The Reading Biscuit Factory.
22nd- Matt’s BBQ Event stall: Community outreach stall at Matt’s BBQ, raising awareness and engaging attendees with cultural and health information.
28th- African and Caribbean Culture Youth Club: Art Workshop: Creative session for young people focused on Caribbean-inspired art and cultural expression.
July 2024
1st July- Youth Entrepreneur Club: Youth Club session concluding the sessions on story writing progress of the tasks they were set during the previous club sessions.
8th July- Youth Entrepreneur Club: Youth Club session focused on developing ideas, building confidence, and learning practical skills to support young people on their entrepreneurial journey.
15th July- Youth Entrepreneur Club: Youth Club session focused on developing ideas, building confidence, and learning practical skills to support young people on their entrepreneurial journey.
18th July- Online Focus Group: A virtual session gathering input from participants to guide future programming and address community needs and what they would like Cianna’s Smile to be.
27th July- Support Tour Manchester Family Fun Day: A vibrant family event with entertainment, activities, and support resources for the community, held in Manchester as well as screening of Life in Your blood short film on Sickle Cell.
29th July- Youth Entrepreneur Club: Youth Club session focused on developing ideas, building confidence, and learning practical skills to support young people on their entrepreneurial journey.
09
August 2024
5th August- Youth club: An engaging session for young people with games, discussions and creative activities in a safe, social space.
7th August- Youth club: A fun-filled day trip to Chessington World of Adventures for youth club members to enjoy rides, attractions and bonding time.
10th August- Support Tour Family Fun Day in Kent: A vibrant family event with entertainment, activities, and support resources for the community, held in Kent as well as screening of Life in Your blood and filming for The BBC Children In Need appeal show.
12th August Youth Entrepreneur Club: Youth Club session focused on exploring innovative ideas and practical solutions for creating and improving computer-aided design.
- 14th August- Support Tour Family Fun Day in Bristol: A vibrant family event with entertainment, activities, and support resources for the community, held in Bristol as well as screening of Life in Your blood short film in collaboration with OSCAR Bristol.
15th August- Online Focus Group: A virtual session gathering input from participants to guide future activities, events, projects and support.
21st August - Support Tour Family Fun Day in Oxford: A vibrant family event with entertainment, activities, and support resources for the community, held in Oxford as well as screening of Life in Your blood short film.
28th August- Kings Award Celebration Event: Invitation to attend the King’s Award event, celebrating our outstanding achievements and contributions from the winners of The Kings Award for Voluntary Action certificate.
September 2024
1st September- Steps for Sickle Cell Challenge Launch: fundraising campaign launch day for sickle cell supporters to raise awareness, engage the community, and generate vital funds for family support.
4th September- Catford Pure Gym: Collaboration with Pure Gym in Catford to raise awareness about sickle cell and promote blood donation through an interactive information stand engaging with the gym members/general public.
9th September- Awareness and Blood Donation Talk Reading Borough Council Chambers: Educational talk to raise awareness about sickle cell and the importance of blood donation, hosted at the council chambers.
11th September- Sydenham Pure Gym: Collaboration with Pure Gym in Sydenham to raise awareness about sickle cell and promote blood donation through an interactive information stand engaging with the gym members/general public.
Saturday 14th September- Sponsored Hike with Summit Seekrs - Location: A 20.8 km hike around Henley on Thames and Marlow. An opportunity for supporters to raise awareness, hike and chat. With an incredible almost £2000 raised by the group.
19th September- Focus Group and Volunteer Meeting (Online): A planning session to gather feedback from families and strengthen volunteer involvement.
23rd September- Blood Donation and Awareness Aylesbury: A local event promoting blood donation and sickle cell awareness within the Aylesbury community.
10
25th September- Woolwich Pure Gym: Collaboration with Pure Gym in Woolwich to raise awareness about sickle cell and promote blood donation through an interactive information stand engaging with the gym members/general public.
26th September- Sickle Cell Advocacy Training Webinar: online webinar, inviting the community, supporters, beneficiaries, and those impacted to join an educational and informative session about sickle cell.
29th September- Family Fun Day Reading Fundraiser: A lively community fundraiser with family-friendly activities, supporting sickle cell awareness and local initiatives at Beansheaf Community Centre.
October 2024
-
1st October- Youth Art Exhibition: Held at Reading Biscuit Factory, showcasing our youth group’s paintings alongside an exhibition of blood donation posters to recruit donors and provide information across their community space for the duration of Black History Month.
-
2nd October – Awareness Talk for Healthcare students: An online session focusing on student healthcare awareness, understanding what patients with Sickle Cell face, how to be a better healthcare professional and improve patient experience.
5th October – Kids Literary Festival: Children’s literature festival held at Aylesbury Library
-
7th October – Awareness and Blood Donation Day: Sickle Cell awareness and blood donation event at the Biscuit Factory.
-
8th October – Coffee Morning and Art Workshop: A social morning with creative activities at the Reading Biscuit Factory.
-
9th October – Screening, Community Talk, and Meal: An engaging community event with discussions, food, and a screening at the Reading Biscuit Factory.
-
12th October – Literary Festival: Festival celebrating literature, held at the Reading Biscuit Factory featuring meet the author session, book signings and workshops.
13th October - Screening and Talk at The Globe, Reading: Life In Your Blood screening and talk at The Globe Church in a collaborative community event.
16th October – Careers Fair (Reading University): Information and engagement fair at Reading University to recruit volunteers and community outreach.
17th October – Focus Group: Online focus group session for feedback and discussion.
19th October – Health Awareness Community Event: Blood donation stand and community awareness event at Hilltop Community Centre, spreading information about sickle cell.
- 21st October- Youth Entrepreneur Club: Youth Club session focused on exploring innovative ideas and practical solutions for creating and improving computer-aided design.
29th October – Parent Q&A Session: Toddler Talk event at Aylesbury Community Library, featuring book readings, arts and crafts, and activities open to the community.
11
November 2024
th November – Youth entrepreneur club:
4th November – Youth entrepreneur club: Online digital skills workshop for youth focusing on business skills
7th November – Volunteer Meeting: Recurring online meeting for volunteers.
9th November – Polar Express at Spa Valley: Festive family event in Kent aboard the Polar Express.
13th November –Youth entrepreneur club: Online digital skills workshop for youth focusing on business skills
16th November – Carers Dads Club Lunch: Support and networking event for dads.
20th November –Youth entrepreneur club: Online digital skills workshop for youth focusing on business skills
21st November – Focus Group: Online discussion and feedback group session.
27th November – Youth entrepreneur club: Online digital skills workshop for youth focusing on business skills
30th November – Xmas Party: Families impacted by Sickle Cell and action group members Christmas celebration, brunch with Santa.
December 2024
2nd December – Awareness and Blood Donation Day: Sickle Cell awareness and blood donation awareness event in Swindon.
4th, 11th and 14th December – Youth Entrepreneur club
14th December – Caribbean Culture Youth Club: Family Action Group Kahoot quiz night
12
January 2025
2nd to 5th January– Awareness at Winter by the river, Southbank Xmas Cabin: Fundraising event held at the Southbank Christmas cabin.
6th January– Youth Entrepreneur Club: Akanji Studios introduction to the Youth Entrepreneur Club on his journey with founding Akanji Studios.
8th January– Youth Coalition Meeting: Youth coalition session to plan and coordinate activities.
9th January– Advocacy Training- Public Training session focused on advocacy skills and support.
13th, 20th and 27th January– Youth Entrepreneur Club: Workshops on how to use Canva and develop marketing materials for business
31st January – Caribbean Youth Culture Club: Family Action Group’s online event, Caribbean carnival mask making
February 2025
10th February – Youth Entrepreneur club: Creative Writing: Creative writing session for youth empowerment.
19th February – Careers Fair Setup at Reading University: Preparation for the careers fair event.
24th February – Youth Entrepreneur club: Podcasting Session: First podcasting workshop for youth teaching them skills on filming, editing and techniques.
25th February – King’s Award for Voluntary Service celebratory event: Cianna’s Smile was invited to attend the event to receive their prestigious Kings Award for Voluntary Service from Andrew Try, His Majesty’s Lord-Lieutenant of the Royal County of Berkshire
March 2025
2nd March – Carib and Co Brunch at Box park, Wembley: International Women’s Day stall event. Raising awareness of Sickle Cell and recruiting new blood donors. Screening LIYB throughout the event.
3rd, 10th and 24th March – Youth Entrepreneur Club Illustration: Youth creative session focusing on illustration and logo design.
7th March – ACS Sheffield Online Event: Short film screening and Q&A session with the African and Caribbean Society at the University of Sheffield.
26th March – ACS Bristol Online Event: Online talk and screening of short film with the African and Caribbean Society at the University of Bristol.
28th March – Book Club and Caribbean Culture Club: Community event, cooking recipes from our new recipe book and nutritional guide.
13
Beneficaries Feedback Thank you all for helping me, I appreciate the opportunity to create and share a positive atmosphere within the Cianna Smile community. We attended a family fun day event and a job well done – it was a lovely It's always a wonderful way to end a atmosphere and such a pleasure to fantastic year by coming together to connect with other families. The day celebrate our community. was filled with warmth, laughter, and meaningful conversations. Events like this make a real difference, helping us feel supported, seen, and part of a Cianna Smile has brought my caring community. family closer than ever. We create wonderful memories together, making me feel eo supported in this journey and giving me the chance to hear I am grateful for the others' experiences. wonderful and enjoyable We really appreciated experiences they * the chance to join a Cianna’s Smile have given community and mix us. with other families, whose children have sickle cell. Cianna's Smile has enabled me to be a part of a community with families that are sn® experiencing similar challenges like my My daughter was very own. To be able to connect, share and happy to see other people learn from others has been invaluable. The family days out living with sickle cell and and respite breaks she feels so comfortable to have also been relate. fantastic in creating more positive memories for my son with sickle cell. It’s very good. Excellent to meet other families in person. To be able to chat and talk about issues. It cuts out some of the anxiety and worries, the problems of getting help and help being available. Being able to share and keep It was a lot of fun. It was great as a parent to a in contact with people. To know that above all child with sickle cell to be able to speak with there are other people out there. The fact that other parents. Form friendships and learn from Cianna's smile is out there is so nice. parents with older children. It was great for my son to meet other sickle cells parents and for his brother to see he’s not alone, that their are other siblings who have to adapt their life for their family members with sickle cell.
14
When asked: Being part of Cianna’s Smile has helped me to behave more..............
I feel braver and more confident because I shared my story as part of a documentary *Life in Your Blood and public speaking.
My child has become engaged with others which translates to more positive behaviour at school. He has had entrepreneurial training and he enjoys the new experiences that I could not financially provide. Most importantly he comes away from the activities smiling happy and more confident.
Positive. I can help my sister more and become an advocate for her and others impacted by Sickle Cell.
Am confident and able to support other parents especially new ones as there isn’t much support out there for us.
More aware of advocating for children with sickle cell needs and more knowledgeable of others experience with sickle cell.
Eager to learn more about sickle cell and spread sickle cell
awareness.
15
When asked: If I was not a member of Cianna’s Smile, I would.................
-
Without Cianna’s Smile, I would feel much more alone in navigating the complexities of life with Sickle Cell.
-
I’d likely feel isolated—possibly avoiding conversations about Sickle Cell altogether— because I wouldn’t have a safe, understanding community to turn to. Without this support, it would be harder to stay positive, both for myself and for my child.
-
We wouldn’t have access to the incredible trips that bring joy, build confidence, and teach life skills. Those shared experiences not only help us bond as a family, but also remind us that we are more than a diagnosis.
-
I would miss out on vital opportunities to connect with others who understand, and we would be without the thoughtful support that truly makes a difference during difficult times.
-
I wouldn’t feel confident recommending others to get involved and find their support circle.
-
My child might feel like they’re the only one living with this condition.
-
I’d struggle to help my daughter see that she is more than her diagnosis.
-
My mental health would suffer without a space where people truly “get it.”
-
I’d miss the chance to connect, ask for advice, and be uplifted by a caring network.
-
We wouldn’t laugh as much. We wouldn’t have as much fun together.
-
I might feel lost.
-
Anxious about my child’s future and wellbeing
-
Frustrated by the lack of opportunities to build confidence and social skills
-
Unsupported in advocating for my family’s needs
-
Lacking in motivation without a positive community to encourage me
-
Less confident in helping my child feel proud of their identity
Sad about missing quality family time and bonding experiences
16
24/25 Report Findings:
We conducted our own research to explore the experiences of individuals impacted by Sickle Cell regarding their mental health. We would like to share the key findings and insights gathered from this important study.
Severity and Impact:
83.3% of respondents rated the impact of Sickle Cell on their daily life as 5 out of 5 (extremely impactful), with the remaining 16.7% rating it 4 out of 5.
All participants (100%) rated Sickle Cell as a 5 out of 5 in terms of severity as a health condition.
Daily Challenges Reported:
-
Respondents described a wide range of significant challenges, including:
-
Emotional strain and worry for their child’s health and family wellbeing.
-
Financial burdens due to treatment costs, hospital visits, and increased household expenses (e.g., heating).
-
Disruption of daily routines caused by frequent medical emergencies, hospital admissions, and caregiving demands.
-
Educational setbacks for affected children due to missed school days and related cognitive difficulties.
-
Social isolation and stigma impacting family interactions and support networks.
-
Constant vigilance needed to prevent crises, such as medication management, avoiding overexertion, and staying hydrated.
-
Limitations on physical activities and lifestyle compared to siblings and peers.
-
The toll on caregivers balancing health needs with other family responsibilities.
When asked how often does the person living with Sickle Cell experience fatigue due to Sickle Cell?
50 % said daily, 16.7% said once per month and 33.3% said at least once per week
When asked how often does the person living with Sickle Cell experience mild to moderate pain due to Sickle Cell?
33.3% said daily, 33.3 % said at least once per fortnight and 33.3% said once per month or less.
When asked how often does the person living with Sickle Cell experience severe pain due to Sickle Cell?
16.7% said daily, 16.7% said every other day, 16.7% said once per fortnight, 16.7 % said less than once per year, 33.3 % said once every 1 to 6 months.
17
Report Findings: Continued
When asked how often does the person living with Sickle Cell have to take precautions to prevent Sickle Cell symptoms?
100% said daily
When asked how often does having/caring for someone living with Sickle Cell impact your family?
100% said daily
When asked to explain how Sickle Cell impacts their family. Some responses were as follows:
“It impacts on every aspect of life really. Like I said before, we can't just get up and do anything without proper planning. We must always " be prepared" in case of a crisis. Anywhere we go we must know where the nearest hospital is and then we worry if they would even know how to care for a child with sickle cell. Our son has an older sister and although she understands what is going on, she does feel left out a lot because "everything is about R" (My son with Sickle Cell)
“We cannot take my daughter everywhere and she's also restricted in doing some activities like her siblings.”
“
“As a family our lives revolve around my son’s sickle cell disease. Managing his pain. Maintaining his safety. It affects him holistically”
“Emotional Strain: The constant worry and uncertainty surrounding my child's health can be emotionally draining. Sickle cell disease often requires frequent hospital visits, which can disrupt family routines and lead to feelings of anxiety and stress”.
“Financial Burden: Managing sickle cell disease involves additional expenses, including childcare for other siblings while in hospital, travel to, regular check-ups, and this has a strain on family finances and impacts long-term financial planning”.
“Social Isolation: Sickle cell disease is still so misunderstood and sometimes we experience social isolation due to the need to prioritise health over social engagements. This can impact family relationships and social interactions. People underestimate how serious a condition it can be, even in a healthcare setting. There is an onus on us to explain the condition medically”.
“My family has to separate when she is in hospital. I cannot leave her on her own in the hospital and I cannot leave her 2 younger siblings on their own. They become young carers when she is poorly. They worry and cry about their sister at school. We all suffer. I live in constant worry. Spending money on hospital stays for my food and travel often have an impact financially.”
18
Report Findings: Continued
When asked what do you believe can help improve the lives of those impacted by Sickle Cell people said:
-
Sickle Cell being recognised as a serious illness and given as much attention & funding as others conditions.
-
Professionals listening to patients and/ or carers.
-
More awareness & knowledge on it. Sickle cell should be taught at school like any other conditions.
-
More media coverage.
-
:Sickle cell patients should not be afraid to go to hospital when in a crisis. They must receive appropriate care and medical attention. They must be respected & valued as human beings and individuals. They are nor drug addicts.
-
Free mediation for adults.
-
More & better moral support.
-
Give them priority and create avenues to help them get better.
-
Greater awareness, empathy. It feels as if No one is listening
-
I believe Improving the lives of those impacted by sickle cell disease can be achieved through a combination of approaches, starting with the government approving this treatment .
-
Increased Awareness and Education**: Promoting awareness about sickle cell disease to reduce stigma, increase understanding, and encourage early detection and intervention. Making sickle cell disease training for all clinicians compulsory
19
Financial Review
During the 2023/24 financial year, Cianna’s Smile achieved a record level of fundraising income, as reflected in the figures submitted to the Charity Commission. This strong income performance enabled the charity to secure funding in advance for a number of core projects and services aligned with its charitable objectives.
In the 2024/25 financial year, the trustees took a deliberate and strategic decision to reduce fundraising activity in order to prioritise the delivery of projects funded in earlier periods. This approach resulted in lower income for the year; however, it ensured that the charity met its contractual and funding obligations, maintained high standards of service delivery and used charitable funds in accordance with their intended purpose. The trustees consider this to be a prudent and responsible approach to financial management.
The charity’s financial position reflects the nature of its funding model, whereby income is typically secured prior to the commencement of projects. As a result, there can be timing differences between when income is recognised and when expenditure is incurred. The trustees monitor these timing differences carefully and consider this approach to be effective in managing financial risk, ensuring sustainability and avoiding unfunded commitments.
The trustees have reviewed the charity’s financial resilience and continue to manage reserves in line with the charity’s Reserves Policy. Cianna’s Smile aims to hold unrestricted reserves equivalent to approximately six months of core operating expenditure. These reserves are intended to provide financial stability, support cash flow, manage short-term income fluctuations and mitigate key operational risks, including funding delays and unexpected increases in demand for services.
Financial risks, including reliance on grant funding and fluctuations in income, are identified and monitored as part of the charity’s wider Risk Management Framework. The trustees regularly review financial performance against budget and take appropriate action to manage risk and ensure responsible management of finances.
Looking ahead, the trustees are satisfied that Cianna’s Smile is financially well managed and appropriately resourced to continue delivering its charitable activities. With a strong financial foundation, clear strategic priorities, and robust governance arrangements, the charity is well positioned to maintain sustainability, respond to need, and pursue future funding opportunities in line with its charitable aims.
Main source of income: Grants
Key areas of expenditure: Activities and support for beneficiaries, salary and blood donation campaign.
Reserves Policy: The charity aims to maintain reserves sufficient to cover 6 months of operating costs to ensure sustainability.
20
Plans for Future Periods
Looking ahead, the trustees have identified a number of key priorities that will guide Cianna’s Smile’s work over the coming period. These plans are informed by evidence gathered through service delivery, feedback from families and young people and the charity’s ongoing commitment to improving outcomes for those impacted by sickle cell.
Supporting Schools through teacher training and advocacy
The charity plans to expand its work with schools by delivering targeted teacher training and advocacy initiatives. This will include the development of detailed educational resources and accessible infographics aimed at increasing understanding of sickle cell, supporting inclusion and improving the educational experience and quality of life for students living with the condition.
Development of new creative and connection-based youth provision
Cianna’s Smile plans to launch new creative initiatives, including the Create & Connect Club, providing a dedicated space for young people aged 11 and over to explore art, music and nature-based activities. These sessions are intended to support self-expression, independence, confidence-building and peer connection.
Expansion of youth support for older young People and young adults
The trustees recognise a gap in provision for older young people and young adults and plan to expand support for those aged 16–18 and 18–25. This will include the development of safe, ageappropriate spaces focused on personal development, life skills, emotional wellbeing, and peer support, delivered through initiatives such as a monthly art club and regular wellness walks.
Increasing Awareness and Advocacy
The charity plans to deliver focused awareness and advocacy campaigns to improve public understanding of sickle cell and sickle cell trait, while continuing to highlight the urgent need for new back heritage blood donors. These campaigns will seek to engage diverse communities and promote informed, inclusive conversations.
Strengthening Community Support and Local Reach
Cianna’s Smile plans to strengthen and extend its community support services, with a particular focus on reaching more families across the Thames Valley. This will include the provision of tailored resources and practical support to respond to ongoing and emerging needs within the community.
These plans demonstrate the trustees’ commitment to delivering meaningful, sustainable impact and to ensuring that Cianna’s Smile continues to respond effectively to the needs of individuals, families and communities affected by sickle cell.
21
Acknowledgements
The trustees wish to place on record their sincere appreciation to all those who have contributed to the work and impact of Cianna’s Smile during the reporting period.
The trustees extend their gratitude to the charity’s volunteers, donors and fundraisers, whose generosity of time, skills and financial support continues to make the delivery of the charity’s work possible. Their commitment plays a vital role in enabling Cianna’s Smile to respond to need, sustain its services, and reach individuals and families affected by sickle cell across the communities it serves.
The trustees also wish to acknowledge and thank partner organisations, funders and sponsors for their collaboration, confidence and continued support. Through strong partnerships and shared objectives, Cianna’s Smile has been able to enhance the quality, reach and effectiveness of its programmes. The trustees greatly value these relationships and recognise the importance of collaborative working in achieving lasting and systemic change.
The trustees are particularly grateful to the families, children and young people supported by the charity. Their openness in sharing lived experiences, insights and feedback continues to inform the charity’s work and strategic direction. Their resilience and determination remain a constant source of inspiration and serve as a powerful reminder of the importance and purpose of Cianna’s Smile’s mission.
To our funders, the trustees would like to express their sincere thanks for your continued belief in and support of the charity’s work. Your investment has enabled Cianna’s Smile to raise awareness, educate professionals and communities and deliver meaningful support to young people and families impacted by sickle cell throughout the 2024/25 financial year. Your ongoing commitment not only underpins current activity but also strengthens the charity’s ability to plan sustainably and pursue its strategic vision as it moves into 2026 and beyond.
The trustees recognise that the charity’s achievements would not be possible without the collective efforts of all those who support Cianna’s Smile. We remain deeply appreciative of this continued support and look forward to working together to further advance our charitable objectives.
----- Start of picture text -----
Contact
info@ciannassmile.co.uk
—
www.ciannassmile.co.uk
@ciannassmile.co.uk
— —
----- End of picture text -----
22
Registered charity number in England 1173030
CIANNA'S SMILE 1173030 FOR ENGLAND AND WALES Annual accounts for the period Period end Period start date 06/04/2024 To date 05/04/2025 in ~~—————— ae~~ Section A Statement of financial activities
Recommended categories by activity
Incoming resources (Note 3)
Income and endowments from:
Donations and legacies Charitable activities Other trading activities Investments Separate material item of income Other
Total
Resources expended (Note 4)
Expenditure on:
Raising funds Charitable activities Separate material item of expense
Governance
Total
Net income/(expenditure) before investment gains/(losses)
Net gains/(losses) on investments
Net income/(expenditure) Extraordinary items Transfers between funds Other recognised gains/(losses):
Gains and losses on revaluation of fixed assets for the charity’s own use Other gains/(losses)
Net movement in funds
Reconciliation of funds:
Total funds brought forward
Total funds carried forward
| Restricted | ||||||
|---|---|---|---|---|---|---|
| Unrestricted | Unrestricted | income | Endowment | Prior year | ||
| funds | funds | funds | Total funds | funds | ||
| £ | £ | £ | £ | £ | ||
| F01 | F02 | F03 | F04 | F05 | ||
| 17,345 | 60,578 | 77,923 | 34,803 | |||
| - | ||||||
| - | ||||||
| - | - | |||||
| - | - | - | ||||
| - | - | - | ||||
| 17,345 | 60,578 | - | 77,923 | 34,803 | ||
| 9,100 | - | - | 9,100 | 4,682 | ||
| 194 | 64,368 | - | 64,561 | 63,431 | ||
| - | - | - | - | - | ||
| 1,803 | - | - | 1,803 | 1,191 | ||
| 11,096 | 64,368 | - | 75,464 | 69,304 | ||
| 6,248 | - | 3,790 - |
- | 2,459 | - | 34,501 - |
| - | - | - | - | - | ||
| 6,248 | - | 3,790 - |
- | 2,459 | - | 34,501 - |
| - | - | - | - | - | ||
| 17,401 | - | 17,401 - |
- | - | - | |
| - | - | - | - | - | ||
| - | - | - | - | - | ||
| 23,650 | - | 21,191 - |
- | 2,459 | - | 34,501 - |
| 63,045 | 53,760 | - | 116,806 | 153,214 | ||
| 86,695 | 32,569 | - | 119,265 | 118,713 |
0
Section B Balance sheet
| Fixed assets Tangible assets (Note 7) Total fixed assets Current assets Debtors (Note 8) Cash at bank and in hand Total current assets Creditors: amounts falling due within one year (Note 9) Net current assets Total assets less current liabilities Total net assets Funds of the Charity Restricted income funds (Note 10) Unrestricted funds Revaluation reserve Total funds Signed on behalf of the trustee body |
Unrestricted funds £ F01 |
Restricted income funds Endowment funds Total this year £ £ £ F02 F03 F04 |
Restricted income funds Endowment funds Total this year £ £ £ F02 F03 F04 |
Restricted income funds Endowment funds Total this year £ £ £ F02 F03 F04 |
Total last year £ F05 |
|---|---|---|---|---|---|
| 5,422 | - | 5,422 | 6,741 | ||
| 5,422 | - | - | 5,422 | 6,741 | |
| 3,078 | - | 3,078 | - | ||
| 85,677 | 32,569 | - | 118,247 | 111,740 | |
| 88,755 | 32,569 | - | 121,324 | 111,740 | |
| 7,481 | - | - | 7,481 | 1,675 | |
| 81,274 | 32,569 | - | 113,843 | 110,065 | |
| 86,695 | 32,569 | - | 119,265 | 116,806 | |
| 86,695 | 32,569 | - | 119,265 | 116,806 | |
| 32,569 | 32,569 | 53,760 | |||
| 86,695 | - | 86,695 | 63,045 | ||
| - | - | ||||
| 86,695 | 32,569 | - | 119,265 | 116,806 | |
| Signature | Print Name | Date of approval dd/mm/yyyy |
|||
CC17a (Excel)
04/02/2026
2
Section C Notes to the accounts
Note 1 Basis of preparation
This section should be completed by all charities .
1.1 Basis of accounting
These accounts have been prepared under the historical cost convention with items recognised at cost or transaction value unless otherwise stated in the relevant note(s) to these accounts.
The accounts have been prepared in accordance with:
-
the Statement of Recommended Practice: Accounting and Reporting by Charities
-
• and with* ✓ preparing their accounts in accordance with the Financial Reporting Standard applicable in the UK and Republic of Ireland (FRS 102) issued on 16 July 2014
the Financial Reporting Standard applicable in the United Kingdom and Republic of • and with* ✓ Ireland (FRS 102)
- and with the Charities Act 2011.
The charity constitutes a public benefit entity as defined by Yes FRS 102.*
- -Tick as appropriate
1.2 Going concern
There are no material uncertainties related to events or conditions that cast significant doubt on the charity's ability to continue as a going concern.
1.3 Change of accounting policy
The accounts present a true and fair view and the accounting policies adopted are those outlined in note 2.
1.4 Changes to accounting estimates
No changes to accounting estimates have occurred in the reporting period (3.46 FRS 102 SORP).
1.5 Material prior year errors
No material prior year error have been identified in the reporting period (3.47 FRS 102 SORP).
CC17a (Excel)
04/02/2026
3
Section C Notes to the accounts (cont)
Note 2 Accounting policies 2.2 INCOME This standard list of accounting policies has been applied by the charity except for those ticked "No" or "N/a". Where a different or additional policy has been adopted then this is detailed in the box below.
| Recognition of income | These are included in the Statement of Financial Activities (SoFA) when: |
|---|---|
| • the charity becomes entitled to the resources; | |
| · it is more likely than not that the trustees will receive the resources; and | |
| • the monetary value can be measured with sufficient reliability. | |
| There has been no offsetting of assets and liabilities, or income and expenses, unless required or | |
| Offsetting | permitted by the FRS 102 SORP or FRS 102. |
| Grants and donations are only included in the SoFA when the general income recognition | |
| Grants and donations | criteria are met (5.10 to 5.12 FRS102 SORP). |
| In the case of performance related grants, income must only be recognised to the extent | |
| that the charity has provided the specified goods or services as entitlement to the grant | |
| only occurs when the performance related conditions are met (5.16 FRS 102 SORP). | |
| Legacies | Legacies are included in the SOFA when receipt is probable, that is, when there has |
| been grant of probate, the executors have established that there are sufficient assets in | |
| the estate and any conditions attached to the legacy are either within the control of the | |
| charity or have been met. | |
| Government grants | The charity has not received government grants in the reporting period |
| Gift Aid receivable is included in income when there is a valid declaration from the donor. | |
| Tax reclaims on | Any Gift Aid amount recovered on a donation is considered to be part of that gift and is |
| donations and gifts | treated as an addition to the same fund as the initial donation unless the donor or the |
| terms of the appeal have specified otherwise. | |
| Contractual income and | This is only included in the SoFA once the charity has provided the related goods or |
| performance related | services or met the performance related conditions. |
| grants | |
| Donated goods | Donated goods are measured at fair value (the amount for which the asset could be exchanged) unless impractical to do so. |
| The cost of any stock of goods donated for distribution to beneficiaries is deemed to be | |
| the fair value of those gifts at the time of their receipt and they are recognised on receipt. | |
| In the reporting period in which the stocks are distributed, they are recognised as an | |
| expense at the carrying amount of the stocks at distribution. | |
| Donated goods for resale are measured at fair value on initial recognition, which is the | |
| expected proceeds from sale less the expected costs of sale, and recognised in 'Income | |
| from other trading activities' with the corresponding stock recognised in the balance | |
| sheet. On its sale the value of stock is charged against 'Income from other trading | |
| activities' and the proceeds from sale are also recognised as 'Income from other trading | |
| activities'. | |
| Goods donated for on-going use by the charity are recognised as tangible fixed assets | |
| and included in the SoFA as incoming resources when receivable. | |
| Gifts in kind for use by the charity are included in the SoFA as income from donations | |
| when receivable. | |
| Donated services and | Donated services and facilities are included in the SOFA when received at the value of |
| facilities | the gift to the charity provided the value of the gift can be measured reliably. |
| Donated services and facilities that are consumed immediately are recognised as income | |
| with an equivalent amount recognised as an expense under the appropriate heading in | |
| the SOFA. | |
| Support costs | The charity has incurred expenditure on support costs. |
| Volunteer help | The value of any voluntary help received is not included in the accounts but is described in the trustees’ annual report. |
| Income from interest, | This is included in the accounts when receipt is probable and the amount receivable can |
| royalties and dividends | be measured reliably. |
| Income from membership | Membership subscriptions received in the nature of a gift are recognised in Donations |
| subscriptions | and Legacies. |
| Membership subscriptions which gives a member the right to buy services or other |
p p g g y benefits are recognised as income earned from the provision of goods and services as income from charitable activities.
Settlement of insurance Insurance claims are only included in the SoFA when the general income recognition criteria are met (5.10 to 5.12 FRS102 SORP) and are included as an item of other claims income in the SoFA.
Investment gains and This includes any realised or unrealised gains or losses on the sale of investments and losses any gain or loss resulting from revaluing investments to market value at the end of the year.
2.3 EXPENDITURE AND LIABILITIES
Liability recognition Liabilities are recognised where it is more likely than not that there is a legal or constructive obligation committing the charity to pay out resources and the amount of the obligation can be measured with reasonable certainty.
Support costs have been allocated between governance costs and other support. Governance and support Governance costs comprise all costs involving public accountability of the charity and its costs compliance with regulation and good practice.
Support costs include central functions and have been allocated to activity cost categories on a basis consistent with the use of resources, eg allocating property costs by floor areas, or per capita, staff costs by the time spent and other costs by their usage. Where the charity gives a grant with conditions for its payment being a specific level of Grants with performance service or output to be provided, such grants are only recognised in the SoFA once the conditions recipient of the grant has provided the specified service or output. Where there are no conditions attaching to the grant that enables the donor charity to Grants payable without realistically avoid the commitment, a liability for the full funding obligation must be performance conditions recognised. Redundancy cost The charity made no redundancy payments during the reporting period.
No material item of deferred income has been included in the accounts, other than a Deferred income grant received in advance in accordance with the policies above. The charity has creditors which are measured at settlement amounts less any trade Creditors discounts
A liability is measured on recognition at its historical cost and then subsequently Provisions for liabilities measured at the best estimate of the amount required to settle the obligation at the reporting date Basic financial The charity accounts for basic financial instruments on initial recognition as per paragraph 11.7 FRS102 SORP. Subsequent measurement is as per paragraphs 11.17 instruments to 11.19, FRS102 SORP.
2.4 ASSETS
Tangible fixed assets for These are capitalised if they can be used for more than one year, and cost at least £500 use by charity They are valued at cost.
The depreciation rates and methods used are disclosed in note 9.2. Intangible fixed assets The charity has intangible fixed assets, that is, non-monetary assets that do not have physical substance but are identifiable and are controlled by the charity through custody or legal rights. The amortisation rates and methods used are disclosed in note 9.5
They are valued at cost.
Heritage assets The charity has heritage assets, that is, non-monetary assets with historic, artistic, scientific, technological, geophysical or environmental qualities that are held and maintained principally for their contribution to knowledge and culture. The depreciation rates and methods used as disclosed in note 9.6.1.4.
They are valued at cost.
Investments Fixed asset investments in quoted shares, traded bonds and similar investments are valued at initially at cost and subsequently at fair value (their market value) at the year end. The same treatment is applied to unlisted investments unless fair value cannot be measured reliably in which case it is measured at cost less impairment. Investments held for resale or pending their sale and cash and cash equivalents with a maturity date of less than 1 year are treated as current asset investments Stocks and work in Stocks held for sale as part of non-charitable trade are measured at the lower or cost or net realisable value.
progress
Goods or services provided as part of a charitable activity are measured at net realisable value based on the service potential provided by items of stock.
Work in progress is valued at cost less any foreseeable loss that is likely to occur on the contract.
Debtors (including trade debtors and loans receivable) are measured on initial recognition at Debtors settlement amount after any trade discounts or amount advanced by the charity. Subsequently, they are measured at the cash or other consideration expected to be received.
Current asset investments
The charity has has investments which it holds for resale or pending their sale and cash and cash equivalents with a maturity date less than one year. These include cash on deposit and cash equivalents with a maturity date of less than one year held for investment purposes rather than to meet short term cash commitments as they fall due.
They are valued at fair value except where they qualify as basic financial instruments.
POLICIES ADOPTED ADDITIONAL TO OR DIFFERENT FROM THOSE ABOVE
Section C Notes to the accounts (cont)
Note 3 Analysis of income
| Note 3 Analysis of income | Analysis of income | Analysis of income | Analysis of income | Analysis of income | Analysis of income | Analysis of income |
|---|---|---|---|---|---|---|
| Unrestricted funds Restricted income funds Endowment funds Total funds Prior year £ £ Donations and gifts 6,070 - - 6,070 2,419 Ball income (fundraising - - - Legacies - - - Grants 11,275 60,578 - 71,853 32,384 Total 17,345 60,578 - 77,923 34,803 17,345 60,578-77,923 34,803 Analysis Donations and legacies: TOTAL INCOME |
Unrestricted funds Restricted income funds Endowment funds Total funds Prior year £ £ Analysis |
|||||
| Donations and gifts | 6,070 | - | - | 6,070 | 2,419 | |
| Ball income (fundraising | - | - | - | |||
| Legacies | - | - | - | |||
| Grants | 11,275 | 60,578 | - | 71,853 | 32,384 | |
| 17,345 | 60,578 | - | 77,923 | 34,803 | ||
| 17,345 | 60,578 | - | 77,923 | 34,803 |
CC17a (Excel)
04/02/2026
57
Section C Notes to the accounts (cont)
Note 4 Analysis of expenditure
| Analysis Expenditure on raising funds: |
Analysis Expenditure on raising funds: |
Unrestricted funds Restricted income funds Total funds Unrestricted funds Restricted income funds Total funds £ £ 15 -15- - - 9,085 - 9,0854,682 - 4,682 9,100 -9,1004,682 - 4,682 - 8,919 8,919 - - 11 17 - 17 - 11 11 - 2,677 2,677 - - - 400 400 - - - 920 920 - 250 250 - 2,574 2,574 2,409 - 2,409 This year Last year |
Unrestricted funds Restricted income funds Total funds Unrestricted funds Restricted income funds Total funds £ £ 15 -15- - - 9,085 - 9,0854,682 - 4,682 9,100 -9,1004,682 - 4,682 - 8,919 8,919 - - 11 17 - 17 - 11 11 - 2,677 2,677 - - - 400 400 - - - 920 920 - 250 250 - 2,574 2,574 2,409 - 2,409 This year Last year |
Unrestricted funds Restricted income funds Total funds Unrestricted funds Restricted income funds Total funds £ £ 15 -15- - - 9,085 - 9,0854,682 - 4,682 9,100 -9,1004,682 - 4,682 - 8,919 8,919 - - 11 17 - 17 - 11 11 - 2,677 2,677 - - - 400 400 - - - 920 920 - 250 250 - 2,574 2,574 2,409 - 2,409 This year Last year |
Unrestricted funds Restricted income funds Total funds Unrestricted funds Restricted income funds Total funds £ £ 15 -15- - - 9,085 - 9,0854,682 - 4,682 9,100 -9,1004,682 - 4,682 - 8,919 8,919 - - 11 17 - 17 - 11 11 - 2,677 2,677 - - - 400 400 - - - 920 920 - 250 250 - 2,574 2,574 2,409 - 2,409 This year Last year |
Unrestricted funds Restricted income funds Total funds Unrestricted funds Restricted income funds Total funds £ £ 15 -15- - - 9,085 - 9,0854,682 - 4,682 9,100 -9,1004,682 - 4,682 - 8,919 8,919 - - 11 17 - 17 - 11 11 - 2,677 2,677 - - - 400 400 - - - 920 920 - 250 250 - 2,574 2,574 2,409 - 2,409 This year Last year |
Unrestricted funds Restricted income funds Total funds Unrestricted funds Restricted income funds Total funds £ £ 15 -15- - - 9,085 - 9,0854,682 - 4,682 9,100 -9,1004,682 - 4,682 - 8,919 8,919 - - 11 17 - 17 - 11 11 - 2,677 2,677 - - - 400 400 - - - 920 920 - 250 250 - 2,574 2,574 2,409 - 2,409 This year Last year |
Unrestricted funds Restricted income funds Total funds Unrestricted funds Restricted income funds Total funds £ £ 15 -15- - - 9,085 - 9,0854,682 - 4,682 9,100 -9,1004,682 - 4,682 - 8,919 8,919 - - 11 17 - 17 - 11 11 - 2,677 2,677 - - - 400 400 - - - 920 920 - 250 250 - 2,574 2,574 2,409 - 2,409 This year Last year |
|---|---|---|---|---|---|---|---|---|
| Direct costs | 15 | - | 15 | - | - | - | ||
| Event costs | 9,085 | - | 9,085 | 4,682 | - | 4,682 | ||
| Total expenditure on raising funds | 9,100 | - | 9,100 | 4,682 | - | 4,682 | ||
| Expenditure on charitable activities: | ||||||||
| Support Group | - | 8,919 | 8,919 | - | - | 11 | ||
| Bank fees | 17 | - | 17 | - | 11 | 11 | ||
| Bereavement costs | - | 2,677 | 2,677 | - | - | |||
| Carer Lunches | - | 400 | 400 | - | - | |||
| Cost of living crisis | - | 920 | 920 | - | 250 | 250 | ||
| Depreciation Expense | - | 2,574 | 2,574 | 2,409 | - | 2,409 | ||
| Family Support | - | - | - | - | 17,999 | 17,999 | ||
| Focus Group | - | 120 | 120 | - | 40 | 40 | ||
| Hospital project | - | - | - | - | 270 | 270 | ||
| Insurance | - | 212 | 212 | - | 196 | 196 | ||
| IT software and consumables | - | 421 | 421 | - | 322 | 322 | ||
| Kids Book club | - | 883 | 883 | - | 3,956 | 3,956 | ||
| Light, Power, Heating | - | 1,602 | 1,602 | - | 2,528 | 2,528 | ||
| Marketing | - | 3,259 | 3,259 | - | 1,383 | 1,383 | ||
| NHSBT Project | - | 8,140 | 8,140 | - | 4,989 | 4,989 | ||
| Office equipment (non fixed asset) | - | 1,466 | 1,466 | - | 709 | 709 | ||
| Pension costs | - | - | - | - | 94 | 94 | ||
| Postage, Freight & Courier | - | 349 | 349 | - | 686 | 686 | ||
| Printing & Stationery | - | 89 | 89 | - | - | - | ||
| Public Awareness | - | 1,597 | 1,597 | - | 510 | 510 | ||
| Publications | - | 1,494 | 1,494 | - | 600 | 600 | ||
| Rates | - | 204 | 204 | - | - | |||
| Rent | - | 902 | 902 | - | - | |||
| Salaries | - | 18,772 | 18,772 | 7,281 | 8,935 | 16,216 | ||
| Subscriptions | - | 1,066 | 1,066 | - | 209 | 209 | ||
| Sundry Payments | - | 623 | 623 | - | 267 | 267 | ||
| Telephone & Internet | - | 1,735 | 1,735 | - | 1,151 | 1,151 | ||
| Training | - | 48 | 48 | - | - | |||
| Travel - National | - | 985 | 985 | - | 466 | 466 | ||
| Volunteer Expenses | - | 1,594 | 1,594 | - | 2,186 | 2,186 | ||
| Website | 176 | 152 | 328 | - | 287 | 287 | ||
| Wellness Day | - | - | - | - | 56 | 56 | ||
| YAP | - | - | - | - | 2,931 | 2,931 | ||
| Youth Digital 1 | - | 3,165 | 3,165 | - | 2,710 | 2,710 | ||
| - | - | |||||||
| Restricted funds needs allocating | 0 | 0 - |
- | - | - | |||
| Total expenditure on charitable activities |
194 | 64,368 | 64,561 | 9,689 | 53,742 | 63,431 | ||
| Goverance costs | ||||||||
| Audit & Accountancy fees | 1,803 | - | 1,803 | 1,191 | - | 1,191 | ||
| - | - | - | - | - |
CC17a (Excel)
04/02/2026
58
| - | - | - | - | - | ||
|---|---|---|---|---|---|---|
| Total | 1,803 | - | 1,803 | 1,191 | - | 1,191 |
| 11,096 64,368 75,464 18,693 56,771 - 75463.84 7,597 7,597 75,464 - |
CC17a (Excel)
04/02/2026
59
Section C Notes to the accounts
Note 5 Details of certain items of expenditure
10.1 Fees for examination of the accounts
| Other fees (for example: financial advice, consultancy, accountancy services) paid Independent examiner’s fees Assurance services other than audit or independent examination |
This year £ |
Last year £ |
|---|---|---|
| 456 | 360 | |
| 720 | 624 | |
| 507 | - |
The Independent Examiners' firm also provided the support with accounts preparation £720 including VAT (2023 - £624) and other services includ
CC17a (Excel)
04/02/2026
60
Section C Notes to the accounts (cont)
Note 6 Paid employees
The charity had and average of 2 paid part time employees(previous year - 2)
11.1 Staff Costs
| Salaries and wages Social security costs Other employee benefits Total staff costs Pension costs (defined contribution scheme) |
This year £ |
Last year £ |
|---|---|---|
| 18,772 | 16,216 | |
| - | - | |
| - | - | |
| 18,772 | 16,216 | |
| n costs) for the reporting period of more than |
No employees received employee benefits (excluding employer pension costs) for the reporting period of more than £60,000 (prior year none)
CC17a (Excel)
04/02/2026
62
Section C Notes to the accounts (cont)
Note 7 Tangible fixed assets Please complete this note if the charity has any tangible fixed assets
14.1 Cost or valuation
| At the beginning of the year Additions Revaluations Disposals Transfers At end of the year Basis* Rate At beginning of the year Disposals Depreciation Impairment Transfers At end of the year Net book value at the beginning of the year Net book value at the end of the year 14.3 Net book value 14.2 Depreciation and impairments* |
Freehold land & buildings £ |
Other land & buildings £ |
Computer equipment £ |
Fixtures, fittings and equipment £ |
Total £ |
|---|---|---|---|---|---|
| - | - | 1,803 | 9,433 | 11,236 | |
| - | - | 1,255 | - | 1,255 | |
| - | - | - | - | - | |
| - | - | - | - | - | |
| - | - | - | - | - | |
| - | - | 3,057 | 9,433 | 12,491 | |
| SL or RB (Straight Line or Reducing Balance) |
SL or RB | Straight Line | Straight Line | Straight Line | |
| 20% | 33% | 20% | |||
| - | - | 1,086 | 3,408 | 4,495 | |
| - | - | - | - | ||
| - | - | 729 | 1,845 | 2,574 | |
| - | - | - | - | - | |
| - | - | - | - | - | |
| - | - | 1,816 | 5,253 | 7,069 | |
| - | - | 716 | 6,025 | 6,741 | |
| - | - | 1,242 | 4,180 | 5,422 |
CC17a (Excel)
04/02/2026
63
14.4 Impairment
This year: Please provide a description of the events and circumstances that led to the recognition or reversal of an impairment loss.
Last year: Please provide a description of the events and circumstances that led to the recognition or reversal of an impairment loss.
| 14.5 Revaluation the name of independent valuer, if applicable the carrying amount that would have been recognised had the assets been carried under the cost model. the methods applied and significant assumptions the effective date of the revaluation If an accounting policy of revaluation is adopted, please provide: |
This year Last year |
This year Last year |
|---|---|---|
| - | - |
14.6 Other disclosures
| (iii) Details of the existence and carrying amounts of property, plant and equipment to which the charity has restricted title or that are pledged as security for liabilities. (i) Please state the amount of borrowing costs, if any, capitalised in the construction of tangible fixed assets and the capitalisation rate used. (ii) Please provide the amount of contractual commitments for the acquisition of tangible fixed assets. |
Thisyear | Lastyear |
|---|---|---|
| £ | £ | |
| - | - | |
| - | - | |
* The "transfers" row is for movements between fixed asset categories.
** Please indicate the method of depreciation by deleting the method not applicable (SL = straight line; RB = reducing balance). Also please indicate the rate of depreciation: for straight line, what is the anticipated life of the asset (in years); for reducing balance, what is the percentage annual deduction.
CC17a (Excel)
04/02/2026
64
Section C Notes to the accounts (cont) Note 8 Debtors and prepayments
| Analysis of debtors Prepayments and accrued income Total |
This year £ |
Last year £ |
|---|---|---|
| 3,077.7 | - | |
| 3,077.7 | - |
CC17a (Excel)
04/02/2026
65
Section C Notes to the accounts (cont)
Note 10 Creditors and accruals
| Payments received in advance for fundraiser Accruals and deferred income Taxation and social security Other creditors Total |
Amounts falling due within oneyear |
Amounts falling due within oneyear |
Amounts falling due after more than oneyear |
Amounts falling due after more than oneyear |
|---|---|---|---|---|
| This year £ |
Last year £ |
This year £ |
Last year £ |
|
| 4,838 | - | - | - | |
| 1,104 | 984 | - | - | |
| - | - | - | - | |
| 1,540 | 691 | - | - | |
| ~~7,481~~ | ~~1,675~~ | ~~-~~ | ~~-~~ |
CC17a (Excel)
04/02/2026
66
Section C Notes to the accounts (cont)
Note 10 Charity funds
27.1 Details of material funds held and movements during the CURRENT reporting period
Please give details of the movements of material individual funds in the reporting period together with a balancing figure for 'Other funds'. The 'Total
cen
| cen | |||||||
|---|---|---|---|---|---|---|---|
| Fund names | Type | Purpose and Restrictions | Fund balances brought forward £ |
Income £ |
Expenditure | Transfers £ |
Fund balances carried forward £ |
| £ | |||||||
| Global Blood Therapeutics | Restricted | 3 publications and general costs - transferred to unrestricted |
7,296 | - 7,296 | - | ||
| Novo Nordisk | Restricted | Core funding- transferred to unrestricted | 9,524 | - 9,524 | - | ||
| Children In Need | Restricted | youth worker salary , days out and overheads |
2,747 | - 2,747 | - | ||
| D'Oyle Carte | Restricted | art therapy boxes, ceramic cafe activity, art boxes, music therapy |
801 | - 801 | - | ||
| EarleyCharity | Restricted | contribution to respite break, book club | 193 | - 193 | - | ||
| Albert Hunt | Restricted | Core funding | 1,672 | - 1,672 | - | ||
| DWF | Restricted | kids book club | 278 | - 278 | - | ||
| Childwick trust | Restricted | core | 30 | - 30 | - | ||
| Matrix Causes Fund | Restricted | resource development | 13 | - 13 | - | ||
| Astor foundation | Restricted | overheads | 2 | - 2 | - | ||
| Mobbs Memorial Trust | Restricted | office furniture and equipment | 4 | - 4 | - | ||
| Comic Relief | Restricted | days out,youth worker, boxes | - 5 | 5 | - | ||
| HDH Wills 1965 Charitable Trust |
Restricted | hospital stays | 403 | - 403 | - | ||
| Foundation | Restricted | beneficiaryrecruitment in swindon | 120 | - 120 | - | ||
| Joan Wilkinson Charitable Trust | Restricted | educational resources | 335 | - 335 | - | ||
| Berkshire Masonic Charity | Restricted | hospital support in berkshire | 1,282 | - 701 | - 581 | - | |
| Sovereign #iwill Fund | Restricted | youthproject | 913 | - 913 | - | ||
| Tesco Community Grants - voting |
Restricted | kids books | 4 | - 4 | - | ||
| Grand Plan | Restricted | carers books | 23 | - 23 | - | ||
| Wokingham Residents Equality Forum |
Restricted | youthproject | 386 | - 386 | - |
CC17a (Excel)
04/02/2026
67
| UK Youth Digital Access Fund made possible by Osborne Clarke |
Restricted | youth digitalproject | 1,361 | - 1,361 | - | ||
|---|---|---|---|---|---|---|---|
| British Humane Association | Restricted | hospital support | 1,515 | - 1,515 | - | ||
| Heart of Bucks - Health Equity Fund |
Restricted | outreach in buckinghamshire | 1,114 | - 1,114 | - | ||
| Costco United Way | Restricted | book club | 1,500 | - 1,292 | 208 | ||
| NHS Blood and Transfusion | Restricted | theatreproject | 9,852 | - 9,852 | - | ||
| Comic Relief - an extra £500 | Restricted | cost of livingsupport | 443 | - 443 | - | ||
| Postcode LotteryTrust | Restricted | core | 352 | - 352 | - | ||
| EarleyTown Council | Restricted | contribution to local activities | 500 | - 500 | - | ||
| Childwick Trust 3 | Restricted | overall objectives and school supplies | 3,000 | - 3,000 | - | ||
| UK Youth 2 | Restricted | youth digitalproject | 1,873 | - 1,873 | - | ||
| Prince of Wales charity | Restricted | respite break 2024 | 3,000 | - 3,000 | - | ||
| NHS Berkshire West | Restricted | youthproject | 1,229 | - 1,229 | - | ||
| Matrix 2 | Restricted | resource development | 2,000 | - 1,763 | 237 | ||
| bbccin 3 | restricted | youth worker salary , days out and overheads |
10,000 | - 9,051 | 949 | ||
| NHSBT 3 | restricted | NHSBT project 24/25 | 14,178 | - 2,536 | 11,642 | ||
| ukyouthgrant 3 | restricted | youth difgitalproject and tech for kids | 5,000 | - 3,369 | 1,631 | ||
| THE MULBERRY TRUST | Restricted | overall objectives to support young people impacted by sickle cell |
2,000 | - 2,000 | - | ||
| BERKS COMMUNITY Foundation |
restricted | winter utilities | 900 | - 900 | - | ||
| CHILDWICK TRUST | restricted | respite break 2025 and summer boxes | 3,000 | - 3,000 | - | ||
| GARFIELD WESTON FOUNDATION |
restricted | core costs | 10,000 | - 1,053 | 8,947 | ||
| KENT COMMUNITY FOUNDATION |
restricted | wellness day and carers lunch in kent only | 2,000 | - | 2,000 | ||
| PRISM THE GIFT FUND MATRIX |
restricted | resource development | 2,000 | - 1,494 | 506 | ||
| Vertex Pharma | restricted | gala sponosrship | 5,000 | - 5,000 | - | ||
| COLYER-FERGUSSON CHARITABLE TRUST P5373 |
restricted | wellness day and caresr lunch in kent only | 2,000 | - 50 | - | 1,950 | |
| GREENH GRANT | restricted | respite break | 2,500 | - | - | 2,500 | |
| BRIAN MURTAGH CHARITABLE TRUST NO REF |
restricted | African and Caribbean Culture Club | 1,500 | - | - | 1,500 | |
| STANTON | restricted | support for families in oxford | 500 | - | - | 500 | |
| - | - | - | - | - |
CC17a (Excel)
04/02/2026
68
| - | - | - | - | - | |||
|---|---|---|---|---|---|---|---|
| - | - | - | - | - | - | ||
| - | - | - | - | - | |||
| - | - | - | - | - | |||
| - | - | - | - | - | |||
| Unrestricted Funds | Unrestricted | Unrestricted | 63,045 |
17,345 |
- 11,096 |
17,401 |
86,695 |
| Total Funds | ~~116,806~~ | ~~77,923~~ | ~~- 75,464~~ | ~~-~~ | ~~119,265~~ |
Transfers between funds were as a result of funders approving the release of remaining funds to unrestricted expenditure
CC17a (Excel)
04/02/2026
69
Section C Notes to the accounts (cont)
Note 10 Charity funds
27.1 Details of material funds held and movements during the CURRENT reporting period
Please give details of the movements of material individual funds in the reporting period together with a balancing figure for 'Other funds'. * Key: PE - permanent endowment funds; EE - expendible endowment funds; R - restricted income funds, including special trusts, of the
| Fund names | Type | Purpose and Restrictions | Fund balances brought forward £ |
Income £ |
Expenditure £ |
Fund balances carried forward £ |
|---|---|---|---|---|---|---|
| Global Blood Therapeutics | Restricted | 3publications andgeneral costs | 7,296 | - 3,994 | 3,302 | |
| Novo Nordisk | Restricted | Core funding helpline youth worker salary, days out and overheads |
10,000 | - 476 | 9,524 | |
| Peter Harrison Foundation | Restricted | 3,995 | - | - | ||
| Children In Need | Restricted | 10,672 | - 7,925 | 2,747 | ||
| D'Oyle Carte | Restricted | art therapy boxes, ceramic cafe activity, art boxes, music therapy |
1,061 | - 260 | 801 | |
| EarleyCharity | Restricted | contribution to respite break, book club Core funding kids book club |
970 | - 777 | 193 | |
| Albert Hunt | Restricted | 1,672 | - | 1,672 | ||
| DWF | Restricted | 2,108 | - 1,830 | 278 | ||
| NHSBT | Restricted | 3 x blood drives | 2,475 | - | ||
| Syder Foundation | Restricted | office equipment | 14 | - 14 | 0 | |
| Clothworkers | Restricted | office equipment includingcapital spend | 79 | - 79 | 0 | |
| Childwick trust | Restricted | core | 165 | - 136 | 30 | |
| Matrix Causes Fund | Restricted | resource development | 13 | - | 13 | |
| Astor foundation | Restricted | overheads | 1,000 | - 998 | 2 | |
| Berkshire Community Foundation |
Restricted | salary, office,promotion | 80 | - 80 | - | |
| Mobbs Memorial Trust | Restricted | office furniture and equipment | 1,944 | - 1,941 | 4 | |
| Comic Relief | Restricted | days out,youth worker, boxes | 3,846 | - 3,851 | - 5 | |
| HDH Wills 1965 Charitable Trust |
Restricted | hospital stays | 500 | - 97 | 403 | |
| Foundation | Restricted | beneficiaryrecruitment in swindon | 1,455 | - 1,335 | 120 | |
| Joan Wilkinson Charitable Trust | Restricted | educational resources | 500 | - 165 | 335 | |
| Heathrow CommunityTrust | Restricted | outreach salary, coffee morning, beneficary recruitment |
1,952 | - | ||
| Berkshire Masonic Charity | Restricted | hospital support in berkshire | 1,500 | - 218 | 1,282 | |
| Sovereign #iwill Fund | Restricted | youthproject | 5,081 | - 4,167 | 913 |
CC17a (Excel)
04/02/2026
73
| Tesco Community Grants - voting |
Restricted | kids books | 940 | - 937 | 4 | |
|---|---|---|---|---|---|---|
| Grand Plan | Restricted | carers books | 389 | - 366 | 23 | |
| Wokingham Residents Equality Forum |
Restricted | youthproject | 500 | - 114 | 386 | |
| NHS Berkshire West Mental Health Community Grant via ReadingVoluntaryAction |
Restricted | contribution to overall objectives for local families |
200 | - 200 | - | |
| Lions Wokingham | Restricted | POC machine | 1,000 | - 1,000 | - | |
| UK Youth Digital Access Fund made possible by Osborne Clarke |
Restricted | youth digitalproject | 5,000 | - 3,639 | 1,361 | |
| Childwick Trust | Restricted | overall objectives and respite break | 1,385 | - 1,385 | - | |
| British Humane Association | Restricted | hospital support | 1,515 | - | 1,515 | |
| Heart of Bucks - Health Equity Fund |
Restricted | outreach in buckinghamshire | 3,304 | - 2,190 | 1,114 | |
| Costco United Way | Restricted | book club | 1,500 | - | 1,500 | |
| Comic Relief- Winter Campaign cost of livingfund |
Restricted | office utilities bill, cost of livingsupport | 379 | - 379 | - | |
| NHS Blood and Transfusion | Restricted | theatreproject | 18,700 | - 8,848 | 9,852 | |
| Comic Relief - an extra £500 | Restricted | cost of livingsupport | 500 | - 57 | 443 | |
| Postcode LotteryTrust | Restricted | core | 5,000 | - 4,648 | 352 | |
| EarleyTown Council | Restricted | contribution to local activities | 500 | - | 500 | |
| Hay's Travel Foundation | Restricted | poc machine | 2,410 | - 2,410 | - | |
| Childwick Trust 3 | Restricted | overall objectives and school supplies | 3,000 | - | 3,000 | |
| UK Youth 2 | Restricted | youth digitalproject | 5,000 | - 3,127 | 1,873 | |
| Sovereign Housing | Restricted | youthproject celebrationparty | 250 | - 250 | - | |
| Prince of Wales charity | Restricted | respite break 2024 | 3,000 | - | 3,000 | |
| NHS Berkshire West | Restricted | youthproject | 2,980 | - 1,751 | 1,229 | |
| Matrix 2 | Restricted | resource development | 2,000 | - | 2,000 | |
| - | - | - | - | |||
| - | - | - | - | |||
| - | - | - | - | |||
| - | - | - | - | |||
| - | - | - | - | |||
| - | - | - | - | |||
| - | - | - | - | |||
| - | - | - | - | |||
| - | - | - | - |
CC17a (Excel)
04/02/2026
74
| - | - | - | - | |||
|---|---|---|---|---|---|---|
| Unrestricted Funds | Unrestricted | Unrestricted | 59,523 |
10,663 |
- 9,661 |
63,275 |
| Total Funds | ~~153,214~~ | ~~34,803~~ | ~~- 69,304~~ | ~~113,042~~ |
Note that the expenditure figure on the restricted funds does not match the SOFA due to some of the spend being on capital items that were transferred to the unrestrict
CC17a (Excel)
04/02/2026
75
Section C Notes to the accounts (cont)
Note 11 Transactions with trustees and related parties
This year
None of the trustees have been paid any remuneration or received any other benefits from an employment with their charity or a related entity.
Last year
None of the trustees have been paid any remuneration or received any other benefits from an employment with their charity or a related entity.
CC17a (Excel)
04/02/2026
76