2021-03-31-accounts - Hughes APS Trust

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The Graham Hughes International Charity For Hughes (Antiphospholipid) Syndrome

Charity No. 1172388

Trustees' Report and Unaudited Accounts

31 March 2021

The Graham Hughes International Charity For Hughes (Antiphospholipid) Syndrome Contents

	Pages
Trustees' Annual Report	2 to 4
Independent Examiner's Report	5
Statement of Financial Activities	6
Balance Sheet	7
Notes to the Accounts	8 to 13
Statement of Cash flows	14
Detailed Statement of Financial Activities	15 to 16

Page 1

The Graham Hughes International Charity For Hughes (Antiphospholipid) Syndrome Trustees Annual Report

Graham Hughes International Charity (GHIC)

The Trustees present their report with the unaudited financial statements of the charity for the year ended 31 March 2021.

REFERENCE AND ADMINISTRATIVE DETAILS

Charity No. 1172388

Principal Office

The Shard TOG 24/25 32 London Bridge Street London SE1 9SG

Trustees

The following Trustees served during the year:

L. Bertolaccini M. Foord-Brown S. Hampson G.R. Hughes A.S.M. Jawad A. Kaul M. Malik

M. Thompson-McCormick

Key Management Personnel

Founder Professor Graham Hughes Chair of Trustees Dr Arvind Kaul Financial Controller Ms Sandra Hampson Financial Controller Dr. Maria Laura Bertolaccini

Accountants

Hammond & Co 74 Blandford Road Corfe Mullen Wimborne Dorset BH21 3HQ

Bankers

Metro Bank One Southampton Row London WC1B 5HA

Page 2

The Graham Hughes International Charity For Hughes (Antiphospholipid) Syndrome Trustees Annual Report

OBJECTIVES AND ACTIVITIES

The objectives of the charity are:

• the relief of sickness and the preservation of health of people with Hughes (Antiphospholipid) Syndrome (“Hughes Syndrome”) in particular though the provision of support, education and practical advice to patients their families and carers; and

• to advance the education of the general public in all areas relating to Hughes Syndrome.

Hughes Syndrome (also called antiphospholipd syndrome/APS/’sticky blood’) is an autoimmune disorder in which the main problem is excess blood clotting. Significantly, as well as clotting in veins, the clots can affect arteries (e.g., stroke, heart attack, angina). In addition, in pregnancy, the “sticky blood” can affect the placenta, leading to recurrent miscarriage.

The charities activities are focus on the need to improve understanding and management of the Antiphospholipid (Hughes’) Syndrome. These objectives are supported by fundraising, educational activities including website articles and invited articles from its medical expert committee and supporting education and research into the condition through bursaries and grants.

Although Hughes Syndrome was only described 36 years ago (1983), it is now recognised as a common cause of stroke, memory loss, cardiac ischaemia, cold circulation, DVT and seizures.

It is also now recognised worldwide as the commonest, treatable cause of pregnancy loss.

We have volunteers, patients and medical experts in several countries who help promote the charity and aid fundraising

ACHIEVEMENTS AND PERFORMANCE

The charity remains committed to achieving its goals. We have dedicated and committed Trustee’s. During the pandemic, in common with other charities, fundraising has been a challenge.

However, we have many potential donors and are in the process of contacting them in the coming year and aim to broaden our fundraising options through social media channels.

Out Twitter profile has reached more people for example. Antiphospholipid Syndrome is a life-threatening condition which is not easy to identify, and we strongly consider the charity is of significant benefit to patients and the wider public.

The Trustees consider the charity is making progress by promoting its sustainability with a more robust management structure while donations continue despite the pandemic.

GHIC has managed to promote fundraising through donations.

We will continue to expand our fundraising options as the pandemic eases but have also provided Patients Day to provide information to the wider public, allowing fundraising through several channels.

FINANCIAL REVIEW

The Charity is reliant on a mix of donations from the public and grants. In 2021, voluntary income was £17,506 (2020 - £8,966) against costs of running the charity of £5,757 (2020 - £22,674). The biggest costs were the consultancy fees to SarcoidosisUK (£2,134) incurred in helping to fundraise for the Charity.

Page 3

The Graham Hughes International Charity For Hughes (Antiphospholipid) Syndrome Trustees Annual Report

The charity remains solvent and viable, and we hope improvements in its financial position in the coming year as the pandemic eases and fundraising options improve will occur.

As with any charity, it is vital that fundraising to meet the objectives of the charity is sustained. This has been a challenging year, but the Trustees remain committed to ensuring the progression of the charity through fundraising.

Reserves policy

The trustees aim to maintain free reserves in unrestricted funds at a level which equates to approximately 6 months of unrestricted charitable expenditure. The trustees consider that this level will provide sufficient funds to respond to applications for grants and ensure that there are sufficient funds available to cover support and governance costs.

STRUCTURE, GOVERNANCE AND MANAGEMENT

The Graham Hughes International Charity for Hughes (Antiphospholipid) Syndrome is a Charitable Incorporated Organisation (CIO) governed according to the constitution dated 30th March 2017. The Charity was established on 30th March 2017 and registered with the Charities Commission on 3rd April 2017 and has registered charity number 1172388.

Trustees are appointed for a term of three years by a resolution passed at a properly convened meeting of the charity trustees.

Trustees are recruited on the basis of skills that they can bring to the charity underpinned by knowledge of the condition. Trustees often bring medical knowledge, skills with social media such as Twitter Facebook and particular fundraising experience and skills.

The charity structure comprises Trustees who meet once monthly (currently virtually). There is an executive structure which is shared in small part with SarcoidosisUK. One member of the SarcoidosisUK team provides defined hours of service per month which are detailed in a monthly invoice sent from SarcoidosisUK to GHIC. Advice and ideas are freely exchanged between the charities.

Statement of trustees' responsibilities in relation to the financial statements

The charity trustees are responsible for preparing a trustees' annual report and financial statements in accordance with applicable law and United Kingdom Accounting Standards (United Kingdom Generally Accepted Accounting Practice).

The Trustees are responsible for keeping proper accounting records that disclose with reasonable accuracy at any time the financial position of the charity and to enable them to ensure that the financial statements comply with the Charities Act 2011, the applicable Charities (Accounts and Reports) Regulations, and the provisions of the Trust deed. The Trustees are also responsible for safeguarding the assets of the charity and hence taking reasonable steps for the prevention and detection of fraud and other irregularities.

Signed on behalf of the charity's trustees

A. Kaul Trustee 25 January 2022

Page 4

The Graham Hughes International Charity For Hughes (Antiphospholipid) Syndrome Independent Examiners Report

Independent Examiner's Report to the trustees of The Graham Hughes International Charity For Hughes (Antiphospholipid) Syndrome

I report to the trustees on my examination of the accounts of The Graham Hughes International Charity For Hughes (Antiphospholipid) Syndrome for the year ended 31 March 2021 which comprise the Statement of Financial Activities, the Balance Sheet, the Statement of Cash Flows and the related notes.

Responsibilities and basis of report

As the charity's trustees you are responsible for the preparation of the accounts in accordance with the requirements of the Charities Act 2011('the Act'). The trustees consider that an audit is not required for this year under the Charities Act 2011, s.144(2) (the 2011 Act) and that an independent examination is needed.

I report in respect of my examination of the charity's accounts carried out under section 145 of the 2011 Act and in carrying out my examination I have followed all the applicable Directions given by the Charity Commission under section 145(5)(b) of the Act.

Independent examiner's statement

I have completed my examination. I can confirm that no material matters have come to my attention in connection with the examination giving me cause to believe that in, any material respect:

the accounting records were not kept in respect of the charity as required by section 130 of the Act; or
the accounts do not accord with those records; or
the accounts did not comply with the applicable requirements concerning the form and content of accounts set out in the Charities (Accounts and Reports) Regulations 2008 other than any requirement that the accounts give a 'true and fair' view which is not a matter considered as part of an independent examination.

I have no concerns and have come across no other matters in connection with the examination to which attention should be drawn in this report in order to enable a proper understanding of the accounts to be reached.

John Cordner Association of Chartered Certified Accountants

Hammond & Co 74 Blandford Road Corfe Mullen Wimborne Dorset BH21 3HQ 25 January 2022

Page 5

The Graham Hughes International Charity For Hughes (Antiphospholipid) Syndrome Statement of Financial Activities

for the year ended 31 March 2021

Unrestricte d funds 2021 £ 17,506	Total funds 2021 £ 17,506	Total funds 2020 £ 8,966
17,506 - 5,757	17,506 - 5,757	8,966 2,060 20,614
5,757 -	5,757 -	22,674 -
11,749 -	11,749 -	(13,708) -
11,749	11,749	(13,708)
11,749 22,551	11,749 22,551	(13,708) 36,259
34,300	34,300	22,551

Page 6

The Graham Hughes International Charity For Hughes (Antiphospholipid) Syndrome Balance Sheet

at 31 March 2021

Charity No. 1172388 Fixed assets Intangible assets 8 Current assets Stocks 9 Cash at bank and in hand Creditors:Amount falling due within one year 10 Net current assets Total assets less current liabilities Net assets excluding pension asset or liability Total net assets The funds of the charity Restricted funds 11 Unrestricted funds 11 General funds Reserves 11 Total funds Approved by the trustees on 25 January 2022	2021 £ - - 1,643 34,421 36,064 (1,764) 34,300 34,300 34,300 34,300 34,300 34,300 34,300	2020 £ 659
		659 1,643 21,089
		22,732 (840)
		21,892 22,551
		22,551
		22,551
		22,551
		22,551
		22,551

And signed on their behalf by:

A. Kaul Trustee 25 January 2022

Page 7

The Graham Hughes International Charity For Hughes (Antiphospholipid) Syndrome Notes to the Accounts

for the year ended 31 March 2021

1 Accounting policies

Basis of preparation

The financial statements have been prepared in accordance with Statement of Recommended Practice: Accounting and Reporting by Charities preparing their accounts in accordance with the Financial Reporting Standard applicable in the UK and Republic if Ireland (FRS 102) issued on 16 July 2014 and the Financial Reporting Standard applicable in the United Kingdom and Republic of Ireland (FRS 102) and the Charities Act 2011.

Change in basis of accounting or to previous accounts

There has been no change to the accounting policies (valuation rules and method of accounting) since last year and no changes have been made to accounts for previous years.

Fund accounting

Unrestricted funds These are available for use at the discretion of the trustees in furtherance of the general objects of the charity.
Designated funds These are unrestricted funds earmarked by the trustees for particular purposes. Revaluation funds These are unrestricted funds which include a revaluation reserve representing the restatement of investment assets at their market values.
Restricted funds These are available for use subject to restrictions imposed by the donor or through terms of an appeal.

Income

Recognition of Income is included in the Statement of Financial Activities (SoFA) when the charity income becomes entitled to, and virtually certain to receive, the income and the amount of the income can be measured with sufficient reliability.
Income with related Where income has related expenditure the income and related expenditure is expenditure reported gross in the SoFA.
Donations and Voluntary income received by way of grants, donations and gifts is included in the legacies the SoFA when receivable and only when the Charity has unconditional entitlement to the income.
Tax reclaims on Income from tax reclaims is included in the SoFA at the same time as the donations and gifts gift/donation to which it relates. Donated services These are only included in income (with an equivalent amount in expenditure) and facilities where the benefit to the Charity is reasonably quantifiable, measurable and material.
Volunteer help The value of any volunteer help received is not included in the accounts. Investment income This is included in the accounts when receivable. Gains/(losses) on This includes any gain or loss resulting from revaluing investments to market value revaluation of fixed at the end of the year. assets

Page 8

The Graham Hughes International Charity For Hughes (Antiphospholipid) Syndrome Notes to the Accounts

Expenditure

Recognition of Expenditure is recognised on an accruals basis. Expenditure includes any VAT which expenditure cannot be fully recovered, and is reported as part of the expenditure to which it relates.
Expenditure on These comprise the costs associated with attracting voluntary income, fundraising raising funds trading costs and investment management costs. Expenditure on These comprise the costs incurred by the Charity in the delivery of its activities and charitable activities services in the furtherance of its objects, including the making of grants and governance costs.
Grants payable All grant expenditure is accounted for on an actual paid basis plus an accrual for grants that have been approved by the trustees at the end of the year but not yet paid.
Governance costs These include those costs associated with meeting the constitutional and statutory requirements of the Charity, including any audit/independent examination fees, costs linked to the strategic management of the Charity, together with a share of other administration costs.
Other expenditure These are support costs not allocated to a particular activity.

Taxation

The charity is exempt from tax on its charitable activities.

Intangible fixed assets and amortisation

Intangible fixed assets (including purchased goodwill, patents and trademarks) are carried at cost less accumulated amortisation and impairment losses.

Website development 50% Straight line

Stocks

Stock is included at the lower of cost or net realisable value. Donated items of stock are recognised at fair value which is the amount the charity would have been willing to pay for the items on the open market.

Trade and other debtors

Trade and other debtors are recognised at the settlement amount due after any trade discount offered. Prepayments are valued at the amount prepaid net of any trade discounts due.

Cash and cash equivalents

Cash and cash equivalents comprise cash at bank and on hand, demand deposits with banks and other short-term highly liquid investments with original maturities of three months or less and bank overdrafts. In the statement of financial position, bank overdrafts are shown within borrowings or current liabilities. In the Statement of Cash Flows, cash and cash equivalents are shown net of bank overdrafts that are repayable on demand and form an integral part of the company's cash management.

Trade and other creditors

Short term creditors are measured at the transaction price. Other creditors and provisions are recognised where the charity has a present obligation resulting from a past event that will probably result in the transfer of funds to a third party and the amount due to settle the obligation can be measured or estimated reliably. Creditors and provisions are normally recognised at their settlement amount after allowing for any trade discounts due.

Page 9

The Graham Hughes International Charity For Hughes (Antiphospholipid) Syndrome Notes to the Accounts

Research and development

Expenditure on research and development is written off in the year in which it is incurred.

Receipt of donated goods, facilities and services

All donated goods, facilities and services received are recognised within incoming resources and expenditure at an estimate of the value to the charity.

2 Statement of Financial Activities - prior year

2 Statement of Financial Activities - prior year
Income and endowments from: Donations and legacies Total Expenditure on: Charitable activities Other Total Net income Net income before other gains/(losses) Other gains and losses: Net movement in funds Reconciliation of funds: Total funds brought forward Total funds carried forward 3 Income from donations and legacies Personal donations Gift Aid Online Giving Merchandise sold	Unrestricted £ 17,385 121 - - 17,506	Unrestricted funds 2020 £ 8,966 8,966 2,060 20,614 22,674 (13,708) (13,708) (13,708) 36,259 22,551 Total 2021 £ 17,385 121 - - 17,506	Total funds 2020 £ 8,966
			8,966 2,060 20,614
			22,674
			(13,708)
			(13,708)
			(13,708) 36,259
			22,551
			Total 2020 £ 6,167 69 2,700 30
			8,966

Page 10

The Graham Hughes International Charity For Hughes (Antiphospholipid) Syndrome Notes to the Accounts

4 Expenditure on charitable activities

Total 2021 £ Expenditure on charitable activities Awards and bursaries - Support groups - Governance costs - 5 Other expenditure Unrestricted Total 2021 £ £ Motor and travel costs - - Premises costs 728 728 Amortisation, depreciation, impairment, profit/loss on disposal of fixed assets 659 659 General administrative costs 1,227 1,227 Legal and professional costs 3,143 3,143 5,757 5,757 6 Net income/(expenditure) before transfers 2021 This is stated after charging: £ Amortisation of intangible fixed assets 659 7 Trustee remuneration and expenses One or more of the trustees has been paid expenses in the current or prior periods. 2021 Number Number of trustees paid expenses - £ Total expenses reimbursed to trustees -	Total 2020 £ 1,600 460
	2,060
	Total 2020 £ 269 763 1,660 2,202 15,720
	20,614
	2020 £ 1,660 2020 Number 1 £ 269

Page 11

The Graham Hughes International Charity For Hughes (Antiphospholipid) Syndrome Notes to the Accounts

8 Intangible fixed assets

Cost At 1 April 2020 At 31 March 2021 Amortisation and impairment At 1 April 2020 Amortisation charge for the year At 31 March 2021 Net book values At 31 March 2021 At 31 March 2020 Website development costs		Total £ 9,202
		9,202
		8,543 659
		9,202
		-
		659



9 Stocks Finished goods Carrying value analysed by activities Merchandise expensed 10 Creditors: amounts falling due within one year Accruals and deferred income	2021 £ 1,643 1,643 2021 £ 1,643 1,643 2021 £ 1,764 1,764	2020 £ 1,643
		1,643
		2020 £ 1,643
		1,643
		2020 £ 840
		840

Page 12

The Graham Hughes International Charity For Hughes (Antiphospholipid) Syndrome Notes to the Accounts

11 Movement in funds

Incoming resources (including other gains/losses ) £ 17,506 17,506 At 1 April 2020 £	Resources expended £ (5,757) (5,757) Unrestricted funds £ 34,300 34,300 Cash flows £	At 31 March 2021 £ 34,300
		34,300
		Total £ 34,300
		34,300
		At 31 March 2021 £
21,089	13,332	34,421
21,089 21,089	13,332 13,332	34,421
		34,421

Page 13

The Graham Hughes International Charity For Hughes (Antiphospholipid) Syndrome Statement of Cash flows

for the year ended 31 March 2021

Cash flows from operating activities Net income/(expenditure) per Statement of Financial Activities Adjustments for: Amortisation of intangible assets Increase in stocks Increase/(Decrease) in trade and other payables Net cash provided by/(used in) operating activities Net cash from investing activities Net cash from financing activities Net increase/(decrease) in cash and cash equivalents Cash and cash equivalents at the beginning of the year Cash and cash equivalents at the end of the year	2021 £ 11,749 659 - 924 13,332 - - 13,332 21,089 34,421	2020 £ (13,708) 1,660 (1,643) (840)
		(14,531)
		-

		-

		(14,531)
		35,620
		21,089

Components of cash and cash equivalents
Cash and bank balances	34,421	21,089

	34,421	21,089

Page 14

The Graham Hughes International Charity For Hughes (Antiphospholipid) Syndrome Detailed Statement of Financial Activities

for the year ended 31 March 2021

Income and endowments from: Donations and legacies Personal donations Gift Aid Online Giving Merchandise sold Total income and endowments Expenditure on: Charitable activities Awards and bursaries Support groups Total of expenditure on charitable activities Travel and subsistence Premises costs Rent General administrative costs, including depreciation and amortisation Amortisation Bank charges Information and publications Sundry expenses Legal and professional costs Audit/Independent examination fees Accountancy and bookkeeping Consultancy fees Other legal and professional costs Total of expenditure of other costs Total expenditure Net gains on investments	Unrestricted funds 2021 £ 17,385 121 - - 17,506 17,506 - - - - - - 728 728 659 260 - 967 1,886 924 - 2,134 85 3,143 5,757 5,757 -	Total funds 2021 £ 17,385 121 - - 17,506 17,506 - - - - - - 728 728 659 260 - 967 1,886 924 - 2,134 85 3,143 5,757 5,757 -	Total funds 2020 £ 6,167 69 2,700 30
			8,966
			8,966 1,600 460
			2,060
			2,060 269
			269
			763
			763
			1,660 340 1,382 480
			3,862
			840 - 14,795 85
			15,720

			20,614
			22,674 -

Page 15

The Graham Hughes International Charity For Hughes (Antiphospholipid) Syndrome Detailed Statement of Financial Activities

Net income/(expenditure) Net income/(expenditure) before other gains/(losses) Other Gains Net movement in funds Reconciliation of funds: Total funds brought forward Total funds carried forward	11,749 11,749 - 11,749 22,551 34,300	11,749 11,749 - 11,749 22,551 34,300	(13,708)
			(13,708) -
			(13,708)
			36,259
			22,551

Page 16